Okay, I knew families could be nasty...

January 6, 2006

We found out that our ds2 got the gene from his daddy. I'm in shock

b/c I thought for sure it would be me.

I did the responsible thing and notified my SIL and MIL that my dh was

the gene carrier. I did this while still in a state of shock. The

intent was to let them know they were at risk.

SIL got defensive, accused me of looking to lay blame and didn't see

what the big deal was -- " We are all adults and if by some dumb luck

we have this gene or disease I think we have been handling our lives

pretty well. We should already know what may cause us gas, to puke,

have diarrhea or some other symptom that is unpleasant. But I don't

need to know where it came from unless it is cancer, heart disease,

lukemia, kidney disease, or some other disease that might require a

blood transfusion or transplant. " She also felt I was intorrogating

her mother by asking my MIL to find out if she was tested for CD when

she was so sick in the ER with bloody stool we thought she was going

to die.

I got little sleep last night. I am still ill to my stomach. I was

fore warned that family might not take it well, but I never expected

this kind of reaction from dh's family. My father was willing to go

get tested, but now unfortunately he does not have a reason. And I

think my father might have CD, even though he didn't pass the gene to me.

I wrote SIL a very long reply with more detail than her little brain

could possibly ever comprehend. She was so nasty toward me, I

couldn't help myself but reply. The most unnerving thing was her lack

of understanding that it took us 3 1/2 yrs to get a diagnosis, not 3

1/2 yrs to know something was wrong with him - the ignorance. And she

went on to tell me I needed to learn about it and teach him!!! Like

she is all authoritative and I've sat here looking to lay blame

instead of learning about CD...

I don't know why I even bothered -- oh, yeah, I didn't want them to

suffer from undiagnosed CD and get cancer and die.

Rejoyce

Winchester, VA

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