Re: Encouraging story for older banders

[Guest guest]

Hi. That is great news! Thank you for sharing it and encouraging some

of us with older plagio/brachy kids. My daughter is 17 months old and

4 1/2 weeks from finishing up with DOCBand #2. Seven months of

treatment will be completed in April. We have seen remarkable

improvement as well, especially in the facial asymmetry. We won't have

final measurements until April, but we started at 11mm CV and 3mm

facial when she was about 11 1/2 months old. My husband and I are

going to have our measurements done too just for comparison's sake.

While we will always be happy that treatment is available, we too are

looking forward to the end of this ordeal. Was he brachy or plagio?

Did you do an exit cast?

~

dd Liliana

>

> I just wanted to share that my son was banded through Cranial

> Technolgies beginning at 18 months of age, and after only 2 and a half

> months in the band, he was finished, with his assymetry in the normal

> range (actually, his head is now more symmetrical than mine is ;-)! He

> started with a 10mm CV assymetry and a 9mm ear assymetry, and is now

> at 4mm and 3mm, respectively. We were thrilled with the results and

> are so happy this ordeal is over with, especially since he spent

> almost 4 months in a locally provided band that did not work before we

> wised up and took him to CT in Charlotte!

>

> Incidentally, our insurance wanted to only pay about 1/3rd of the cost

> for the band - but I appealed it and they paid for the whole thing!

> So it just goes to show that thew squeaky wheel really can get the

> grease.

>

> Hope our experience serves to encourage some others out there!

>

> Randa, mom to ,

> Columbia, SC

>

[Guest guest]

Hi. That is great news! Thank you for sharing it and encouraging some

of us with older plagio/brachy kids. My daughter is 17 months old and

4 1/2 weeks from finishing up with DOCBand #2. Seven months of

treatment will be completed in April. We have seen remarkable

improvement as well, especially in the facial asymmetry. We won't have

final measurements until April, but we started at 11mm CV and 3mm

facial when she was about 11 1/2 months old. My husband and I are

going to have our measurements done too just for comparison's sake.

While we will always be happy that treatment is available, we too are

looking forward to the end of this ordeal. Was he brachy or plagio?

Did you do an exit cast?

~

dd Liliana

>

> I just wanted to share that my son was banded through Cranial

> Technolgies beginning at 18 months of age, and after only 2 and a half

> months in the band, he was finished, with his assymetry in the normal

> range (actually, his head is now more symmetrical than mine is ;-)! He

> started with a 10mm CV assymetry and a 9mm ear assymetry, and is now

> at 4mm and 3mm, respectively. We were thrilled with the results and

> are so happy this ordeal is over with, especially since he spent

> almost 4 months in a locally provided band that did not work before we

> wised up and took him to CT in Charlotte!

>

> Incidentally, our insurance wanted to only pay about 1/3rd of the cost

> for the band - but I appealed it and they paid for the whole thing!

> So it just goes to show that thew squeaky wheel really can get the

> grease.

>

> Hope our experience serves to encourage some others out there!

>

> Randa, mom to ,

> Columbia, SC

>

[Guest guest]

I don't have before and after pics - otherwise I would. He really

looks great!

> >

> > I just wanted to share that my son was banded through Cranial

> > Technolgies beginning at 18 months of age, and after only 2 and

a

> half

> > months in the band, he was finished, with his assymetry in the

> normal

> > range (actually, his head is now more symmetrical than mine is ;-

> )! He

> > started with a 10mm CV assymetry and a 9mm ear assymetry, and is

> now

> > at 4mm and 3mm, respectively. We were thrilled with the results

> and

> > are so happy this ordeal is over with, especially since he spent

> > almost 4 months in a locally provided band that did not work

> before we

> > wised up and took him to CT in Charlotte!

> >

> > Incidentally, our insurance wanted to only pay about 1/3rd of

the

> cost

> > for the band - but I appealed it and they paid for the whole

> thing!

> > So it just goes to show that thew squeaky wheel really can get

the

> > grease.

> >

> > Hope our experience serves to encourage some others out there!

> >

> > Randa, mom to ,

> > Columbia, SC

> >

>

[Guest guest]

I don't have before and after pics - otherwise I would. He really

looks great!

> >

> > I just wanted to share that my son was banded through Cranial

> > Technolgies beginning at 18 months of age, and after only 2 and

a

> half

> > months in the band, he was finished, with his assymetry in the

> normal

> > range (actually, his head is now more symmetrical than mine is ;-

> )! He

> > started with a 10mm CV assymetry and a 9mm ear assymetry, and is

> now

> > at 4mm and 3mm, respectively. We were thrilled with the results

> and

> > are so happy this ordeal is over with, especially since he spent

> > almost 4 months in a locally provided band that did not work

> before we

> > wised up and took him to CT in Charlotte!

> >

> > Incidentally, our insurance wanted to only pay about 1/3rd of

the

> cost

> > for the band - but I appealed it and they paid for the whole

> thing!

> > So it just goes to show that thew squeaky wheel really can get

the

> > grease.

> >

> > Hope our experience serves to encourage some others out there!

> >

> > Randa, mom to ,

> > Columbia, SC

> >

>

[Guest guest]

Wow, Randa! That is a great success story, both with your son'd

head correction and your insurance! Congratulations!

Becky

, repo grad

Pittsburgh, PA

--- In Plagiocephaly , " sc_yogini " <sc_yogini@...>

wrote:

>

> I just wanted to share that my son was banded through Cranial

> Technolgies beginning at 18 months of age, and after only 2 and a

half

> months in the band, he was finished, with his assymetry in the

normal

> range (actually, his head is now more symmetrical than mine is ;-

)! He

> started with a 10mm CV assymetry and a 9mm ear assymetry, and is

now

> at 4mm and 3mm, respectively. We were thrilled with the results

and

> are so happy this ordeal is over with, especially since he spent

> almost 4 months in a locally provided band that did not work

before we

> wised up and took him to CT in Charlotte!

>

> Incidentally, our insurance wanted to only pay about 1/3rd of the

cost

> for the band - but I appealed it and they paid for the whole

thing!

> So it just goes to show that thew squeaky wheel really can get the

> grease.

>

> Hope our experience serves to encourage some others out there!

>

> Randa, mom to ,

> Columbia, SC

>

[Guest guest]

Wow, Randa! That is a great success story, both with your son'd

head correction and your insurance! Congratulations!

Becky

, repo grad

Pittsburgh, PA

--- In Plagiocephaly , " sc_yogini " <sc_yogini@...>

wrote:

>

> I just wanted to share that my son was banded through Cranial

> Technolgies beginning at 18 months of age, and after only 2 and a

half

> months in the band, he was finished, with his assymetry in the

normal

> range (actually, his head is now more symmetrical than mine is ;-

)! He

> started with a 10mm CV assymetry and a 9mm ear assymetry, and is

now

> at 4mm and 3mm, respectively. We were thrilled with the results

and

> are so happy this ordeal is over with, especially since he spent

> almost 4 months in a locally provided band that did not work

before we

> wised up and took him to CT in Charlotte!

>

> Incidentally, our insurance wanted to only pay about 1/3rd of the

cost

> for the band - but I appealed it and they paid for the whole

thing!

> So it just goes to show that thew squeaky wheel really can get the

> grease.

>

> Hope our experience serves to encourage some others out there!

>

> Randa, mom to ,

> Columbia, SC

>

[Guest guest]

Randa,

Thank you for sharing. That is encouraging!! As you know banding can

sometimes take time when they are older and this post will help alot

of others to keep up the hope.

CAROLG

--- In Plagiocephaly , " sc_yogini " <sc_yogini@...>

wrote:

>

> I just wanted to share that my son was banded through Cranial

> Technolgies beginning at 18 months of age, and after only 2 and a

half

> months in the band, he was finished, with his assymetry in the

normal

> range (actually, his head is now more symmetrical than mine is ;-)!

He

> started with a 10mm CV assymetry and a 9mm ear assymetry, and is

now

> at 4mm and 3mm, respectively. We were thrilled with the results

and

> are so happy this ordeal is over with, especially since he spent

> almost 4 months in a locally provided band that did not work before

we

> wised up and took him to CT in Charlotte!

>

> Incidentally, our insurance wanted to only pay about 1/3rd of the

cost

> for the band - but I appealed it and they paid for the whole

thing!

> So it just goes to show that thew squeaky wheel really can get the

> grease.

>

> Hope our experience serves to encourage some others out there!

>

> Randa, mom to ,

> Columbia, SC

>

[Guest guest]

Randa,

Thank you for sharing. That is encouraging!! As you know banding can

sometimes take time when they are older and this post will help alot

of others to keep up the hope.

CAROLG

--- In Plagiocephaly , " sc_yogini " <sc_yogini@...>

wrote:

>

> I just wanted to share that my son was banded through Cranial

> Technolgies beginning at 18 months of age, and after only 2 and a

half

> months in the band, he was finished, with his assymetry in the

normal

> range (actually, his head is now more symmetrical than mine is ;-)!

He

> started with a 10mm CV assymetry and a 9mm ear assymetry, and is

now

> at 4mm and 3mm, respectively. We were thrilled with the results

and

> are so happy this ordeal is over with, especially since he spent

> almost 4 months in a locally provided band that did not work before

we

> wised up and took him to CT in Charlotte!

>

> Incidentally, our insurance wanted to only pay about 1/3rd of the

cost

> for the band - but I appealed it and they paid for the whole

thing!

> So it just goes to show that thew squeaky wheel really can get the

> grease.

>

> Hope our experience serves to encourage some others out there!

>

> Randa, mom to ,

> Columbia, SC

>