Re: Type of Helmet/Kirsten

[Guest guest]

Hello Kirsten!

I meant to post to you earlier. I am very excited to hear about

another option for our area! I would love to hear about your

experience at The Brace Shop. It has been quite a long time, but I

remember hearing from another group member that Children's in Cinci

would only send severe cases, only babies under a year, too, for

helmet referral... I think I also understood it to be a local helmet,

and actually no one had been there yet. Obviously the group is

thrilled to get an update on this info. Thank you so much for posting

about this new option.

I checked Hanger's website, and there were several " The Brace Shop " s

in and around the Cincinnati area. Would you mind sharing which

location you are going to? I would really like to add their info to

the Helmet/Band Database. There is also a place in the database entry

for individual group members to add their email address for contact by

any future plagio parents who want to learn about a particular

facility or option... would you consider adding your email in the

future once The Brace Shop entry is complete? Also, any information

about how Children's approaches helmet referral would be a plus. Do

they indeed refer children over a year if the situation warrants? Did

they seem amenable to referring moderate cases as well? I know the

Hanger band is FDA approved for use up to 18 months of age.

Also, best of luck on your baby's fitting on the 15th! Please let us

know how everything goes.

Take care,

Christie (Mom to Repo'd Remy)

> >

> > Our local orthotic helmet provider uses a chin strap. My personal

> > feeling is that it will causse more discomfort for my daughter, and

> > might result in a chin defect as well. We don't live near a city that

> > carries the DOC brand. Does anyone know of a city near Louisville, KY

> > that would carry something similar to that brand. Any suggestions

> > would be appreciated, since we're having our daughter's helmet fitted

> > this coming up Tuesday, March 7th. She's now 6-months old, and it

> will

> > take them 3-weeks to make the helmet.

> > Thanks.

> >

>

[Guest guest]

Hello Kirsten!

I meant to post to you earlier. I am very excited to hear about

another option for our area! I would love to hear about your

experience at The Brace Shop. It has been quite a long time, but I

remember hearing from another group member that Children's in Cinci

would only send severe cases, only babies under a year, too, for

helmet referral... I think I also understood it to be a local helmet,

and actually no one had been there yet. Obviously the group is

thrilled to get an update on this info. Thank you so much for posting

about this new option.

I checked Hanger's website, and there were several " The Brace Shop " s

in and around the Cincinnati area. Would you mind sharing which

location you are going to? I would really like to add their info to

the Helmet/Band Database. There is also a place in the database entry

for individual group members to add their email address for contact by

any future plagio parents who want to learn about a particular

facility or option... would you consider adding your email in the

future once The Brace Shop entry is complete? Also, any information

about how Children's approaches helmet referral would be a plus. Do

they indeed refer children over a year if the situation warrants? Did

they seem amenable to referring moderate cases as well? I know the

Hanger band is FDA approved for use up to 18 months of age.

Also, best of luck on your baby's fitting on the 15th! Please let us

know how everything goes.

Take care,

Christie (Mom to Repo'd Remy)

> >

> > Our local orthotic helmet provider uses a chin strap. My personal

> > feeling is that it will causse more discomfort for my daughter, and

> > might result in a chin defect as well. We don't live near a city that

> > carries the DOC brand. Does anyone know of a city near Louisville, KY

> > that would carry something similar to that brand. Any suggestions

> > would be appreciated, since we're having our daughter's helmet fitted

> > this coming up Tuesday, March 7th. She's now 6-months old, and it

> will

> > take them 3-weeks to make the helmet.

> > Thanks.

> >

>

[Guest guest]

My experience with the plastics group at Children's has been

excellent so far. I was referred to them by my pediatrician's

office. Laurel's appointment was with Dr. Gordon. He

took one look at her and said that she was definitely a candidate

for the helmet. She has pretty severe flattening on the right side

of the back of her head and her forehead is beginning to bulge out

on her right side somewhat. Also, one of her ears is almost an inch

further forward than the other. Sorry, I don't know the exact

measurements. She is six months old, so I'm not sure what their

policies are regarding children over one year.

The plastic surgeon we saw is also working on his own helmet that

will probably be available in the summer sometime. He said his will

be a " ski boot " type of helmet. Apparently, they will be able to

insert the foam right onto the baby's head to ensure a custom fit

without a separate casting? Again, not sure of the details

there...just some more information I received.

The Brace Shop that we are using is the Clifton (Wellington Place)

location. The only two locations that do the cranial bands are

Clifton and Township. In retrospect, I wish I had chosen

to go to Township. I picked Clifton because I work

downtown and it's only about 10-15 minutes from my office and

Laurel's daycare. I don't have any issues with the personnel at the

Clifton office, it's just the atmosphere around there. The building

it's in is an old gothic building right across the street from the

Planned Parenthood where the abortion protesters are always

stationed.

Our orthotist's name is Greg, his last name slips my mind at the

moment. The scanning went pretty well...Laurel was unthrilled when

they slipped the little sock thing on her head, so I'm relieved that

we didn't have to go through the plaster casting process. She

would've had total meltdown. It only took about 45 minutes, from

the time we arrived to when we were leaving.

So now I'm just trying to prepare myself mentally for the challenges

ahead. I'm hoping Laurel gets accustomed to the helmet easily and

that she'll be fine with it. In the meantime, I've been occupying

myself with retail therapy (new stroller, new diaper bag) and

creating a flyer to put on her bulletin board at daycare to explain

what the helmet is for. (Thanks to all the excellent examples on

the boards here, I think I have all the info I need!)

If you have any other questions I can answer, please feel free to

let me know.

Kirsten

--- In Plagiocephaly , " redlocks2003 " <clkline@...>

wrote:

>

> Hello Kirsten!

>

> I meant to post to you earlier. I am very excited to hear about

> another option for our area! I would love to hear about your

> experience at The Brace Shop. It has been quite a long time, but I

> remember hearing from another group member that Children's in Cinci

> would only send severe cases, only babies under a year, too, for

> helmet referral... I think I also understood it to be a local

helmet,

> and actually no one had been there yet. Obviously the group is

> thrilled to get an update on this info. Thank you so much for

posting

> about this new option.

>

> I checked Hanger's website, and there were several " The Brace

Shop " s

> in and around the Cincinnati area. Would you mind sharing which

> location you are going to? I would really like to add their info

to

> the Helmet/Band Database. There is also a place in the database

entry

> for individual group members to add their email address for

contact by

> any future plagio parents who want to learn about a particular

> facility or option... would you consider adding your email in the

> future once The Brace Shop entry is complete? Also, any

information

> about how Children's approaches helmet referral would be a plus.

Do

> they indeed refer children over a year if the situation warrants?

Did

> they seem amenable to referring moderate cases as well? I know the

> Hanger band is FDA approved for use up to 18 months of age.

>

> Also, best of luck on your baby's fitting on the 15th! Please let

us

> know how everything goes.

>

> Take care,

>

> Christie (Mom to Repo'd Remy)

>

>

>

[Guest guest]

My experience with the plastics group at Children's has been

excellent so far. I was referred to them by my pediatrician's

office. Laurel's appointment was with Dr. Gordon. He

took one look at her and said that she was definitely a candidate

for the helmet. She has pretty severe flattening on the right side

of the back of her head and her forehead is beginning to bulge out

on her right side somewhat. Also, one of her ears is almost an inch

further forward than the other. Sorry, I don't know the exact

measurements. She is six months old, so I'm not sure what their

policies are regarding children over one year.

The plastic surgeon we saw is also working on his own helmet that

will probably be available in the summer sometime. He said his will

be a " ski boot " type of helmet. Apparently, they will be able to

insert the foam right onto the baby's head to ensure a custom fit

without a separate casting? Again, not sure of the details

there...just some more information I received.

The Brace Shop that we are using is the Clifton (Wellington Place)

location. The only two locations that do the cranial bands are

Clifton and Township. In retrospect, I wish I had chosen

to go to Township. I picked Clifton because I work

downtown and it's only about 10-15 minutes from my office and

Laurel's daycare. I don't have any issues with the personnel at the

Clifton office, it's just the atmosphere around there. The building

it's in is an old gothic building right across the street from the

Planned Parenthood where the abortion protesters are always

stationed.

Our orthotist's name is Greg, his last name slips my mind at the

moment. The scanning went pretty well...Laurel was unthrilled when

they slipped the little sock thing on her head, so I'm relieved that

we didn't have to go through the plaster casting process. She

would've had total meltdown. It only took about 45 minutes, from

the time we arrived to when we were leaving.

So now I'm just trying to prepare myself mentally for the challenges

ahead. I'm hoping Laurel gets accustomed to the helmet easily and

that she'll be fine with it. In the meantime, I've been occupying

myself with retail therapy (new stroller, new diaper bag) and

creating a flyer to put on her bulletin board at daycare to explain

what the helmet is for. (Thanks to all the excellent examples on

the boards here, I think I have all the info I need!)

If you have any other questions I can answer, please feel free to

let me know.

Kirsten

--- In Plagiocephaly , " redlocks2003 " <clkline@...>

wrote:

>

> Hello Kirsten!

>

> I meant to post to you earlier. I am very excited to hear about

> another option for our area! I would love to hear about your

> experience at The Brace Shop. It has been quite a long time, but I

> remember hearing from another group member that Children's in Cinci

> would only send severe cases, only babies under a year, too, for

> helmet referral... I think I also understood it to be a local

helmet,

> and actually no one had been there yet. Obviously the group is

> thrilled to get an update on this info. Thank you so much for

posting

> about this new option.

>

> I checked Hanger's website, and there were several " The Brace

Shop " s

> in and around the Cincinnati area. Would you mind sharing which

> location you are going to? I would really like to add their info

to

> the Helmet/Band Database. There is also a place in the database

entry

> for individual group members to add their email address for

contact by

> any future plagio parents who want to learn about a particular

> facility or option... would you consider adding your email in the

> future once The Brace Shop entry is complete? Also, any

information

> about how Children's approaches helmet referral would be a plus.

Do

> they indeed refer children over a year if the situation warrants?

Did

> they seem amenable to referring moderate cases as well? I know the

> Hanger band is FDA approved for use up to 18 months of age.

>

> Also, best of luck on your baby's fitting on the 15th! Please let

us

> know how everything goes.

>

> Take care,

>

> Christie (Mom to Repo'd Remy)

>

>

>

[Guest guest]

Kirsten,

Thank you so much for the detailed info. I've added all the new info

to the Helmet/Band Database in the Database section of the group. I

look forward to hearing your impressions as Laurel progresses through

her treatment.

The plastic surgeon's helmet sounds interesting. If you ever find

anything out further, please do share!

Take care,

Christie (Mom to repo'd Remy)

\

> >

> > Hello Kirsten!

> >

> > I meant to post to you earlier. I am very excited to hear about

> > another option for our area! I would love to hear about your

> > experience at The Brace Shop. It has been quite a long time, but I

> > remember hearing from another group member that Children's in Cinci

> > would only send severe cases, only babies under a year, too, for

> > helmet referral... I think I also understood it to be a local

> helmet,

> > and actually no one had been there yet. Obviously the group is

> > thrilled to get an update on this info. Thank you so much for

> posting

> > about this new option.

> >

> > I checked Hanger's website, and there were several " The Brace

> Shop " s

> > in and around the Cincinnati area. Would you mind sharing which

> > location you are going to? I would really like to add their info

> to

> > the Helmet/Band Database. There is also a place in the database

> entry

> > for individual group members to add their email address for

> contact by

> > any future plagio parents who want to learn about a particular

> > facility or option... would you consider adding your email in the

> > future once The Brace Shop entry is complete? Also, any

> information

> > about how Children's approaches helmet referral would be a plus.

> Do

> > they indeed refer children over a year if the situation warrants?

> Did

> > they seem amenable to referring moderate cases as well? I know the

> > Hanger band is FDA approved for use up to 18 months of age.

> >

> > Also, best of luck on your baby's fitting on the 15th! Please let

> us

> > know how everything goes.

> >

> > Take care,

> >

> > Christie (Mom to Repo'd Remy)

> >

> >

> >

>

[Guest guest]

Kirsten,

Thank you so much for the detailed info. I've added all the new info

to the Helmet/Band Database in the Database section of the group. I

look forward to hearing your impressions as Laurel progresses through

her treatment.

The plastic surgeon's helmet sounds interesting. If you ever find

anything out further, please do share!

Take care,

Christie (Mom to repo'd Remy)

\

> >

> > Hello Kirsten!

> >

> > I meant to post to you earlier. I am very excited to hear about

> > another option for our area! I would love to hear about your

> > experience at The Brace Shop. It has been quite a long time, but I

> > remember hearing from another group member that Children's in Cinci

> > would only send severe cases, only babies under a year, too, for

> > helmet referral... I think I also understood it to be a local

> helmet,

> > and actually no one had been there yet. Obviously the group is

> > thrilled to get an update on this info. Thank you so much for

> posting

> > about this new option.

> >

> > I checked Hanger's website, and there were several " The Brace

> Shop " s

> > in and around the Cincinnati area. Would you mind sharing which

> > location you are going to? I would really like to add their info

> to

> > the Helmet/Band Database. There is also a place in the database

> entry

> > for individual group members to add their email address for

> contact by

> > any future plagio parents who want to learn about a particular

> > facility or option... would you consider adding your email in the

> > future once The Brace Shop entry is complete? Also, any

> information

> > about how Children's approaches helmet referral would be a plus.

> Do

> > they indeed refer children over a year if the situation warrants?

> Did

> > they seem amenable to referring moderate cases as well? I know the

> > Hanger band is FDA approved for use up to 18 months of age.

> >

> > Also, best of luck on your baby's fitting on the 15th! Please let

> us

> > know how everything goes.

> >

> > Take care,

> >

> > Christie (Mom to Repo'd Remy)

> >

> >

> >

>