Re: Newbie here...

[Guest guest]

Hi ! Glad that you are here! Yep, it's true

there are others out there that can relate all too

well. You've been dealing with all of this for quite

awhile now. How did they treat your JRA? Did you have

surgery on your spine after the accident? You

mentioned that you take vicodin and steroids, is that

just for flares? Do you see a rheumatologist? Is that

who did the epi injections, etc..? Wow, enough of that

- I bet you didn't study for that pop quiz! Sorry

about the fall in 2004, that seemed to be a year for

falling. I'm sorry that your back is giving you such

fits. You mentioned tendonitis, bursitis - hell that

alone is enough to make me miserable just hearing it!

OUCH!!!! Are you on any kind of biologic or such? It

sounds as though those type of meds may be just the

ticket. Surely there is something! I hope you get

some answers soon! I can't help much other than

reassuring you and saying hi basically. I don't know

a whole lot about any of those type of meds by

personal experience. I do have hope though! Hang in

there and I am sure someone will be able to help you!

Good luck and take care. Kim

--- scrpbookinmom <scrpbookinmom@...> wrote:

> Wow....I am so glad to have found this group! I

> have been thinking

> that there is NO ONE else out there like me, and

> that I am all alone

> in this fight. Thank God that you all are here, and

> I can vent,

> share, talk, learn and listen to others with similar

> problems.

> What are my problems? Well, I was diagnosed with JRA

> at 12 way back

> just before I started high school. What an aweful

> time of life that

> was! Then I was in a car accident when I was 16 and

> destroyed my

> cervical spine. That equalled more arthur in my

> spine, where it wasnt

> before. A couple years after that I was dx with

> Fibro as well.

> Problem is....I am intolerant to non steroidal anti

> inflammatory

> drugs. Sooo...I lived without help for the past

> almost 20 years. On

> and off steroids for flares and using home remedies

> other times. Now,

> back on Christmas of 04, I fell on the ice on my

> front porch. Broke

> my left wrist and blew out my lower spine. I have

> had severe chronic

> pain since then. That broken bone was number

> 7....(ankles 5 times,

> left foot and then left wrist)so the steroid use has

> taken its toll on

> my body already and Im only 34! Anyway, wow...I

> sound like a real

> complainer....I am really not trying to...I just

> want to get some advice.

> Ok, so now I am living in CONSTANT, SEVERE lower

> back and right leg

> pain. The pain is really getting to me, and the

> arthur has gotten

> severe there now too...but all my options seem to

> have been used up.

> They tried epi injections of steroids and couldnt do

> them...no surgeon

> wants to touch me because of the RA and on top of

> everything else is

> the CFS and Fibro. Aand now, because of the limping

> and immobility

> from the back injury, I have tendonitis, bursitis

> and severe

> inflammation in the SI joints as well. Anyone have

> any suggestions?

> I was told today that I should try myofascial

> release therapy...????

> Anyone done that yet? I have a TENS unit...lots of

> Vicodin....PT,

> OT,chiropractic manipulations and therapies, disc

> decompression, and

> the old favorite STEROIDS!

> Help...Im really not a complainer...I just want some

> advice. I am

> willing to try anything at this point. I have 2

> little girls (ages 8

> and 7) that need their Mama back up and functioning

> with their busy

> little lives. Please, someone send me some ray of

> hope!

> Thanks for listening to my babbling.

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

In a message dated 3/10/2006 9:02:37 PM Central Standard Time,

scrpbookinmom@... writes:

Help...Im really not a complainer...I just want some advice. I am

willing to try anything at this point. I have 2 little girls (ages 8

and 7) that need their Mama back up and functioning with their busy

little lives. Please, someone send me some ray of hope!

Thanks for listening to my babbling.

welcome! Please dont feel like you are complaining! We all know how

you feel and are here to listen. God bless you for going thru all of that at

such a young age with little meds. Have you spoken to a Rheumy about any of the

new meds they have out now?I also have 2 young children(boy age7 and girl

age 2) along with RA so i can totally relate there. Email me anytime. HUGS

from PA

[Guest guest]

Hi . You're had a very rough time. You haven't mentioned being

on any DMARD's.

Many people that can't tolerate nsaids are able to take dmards.

Nsaids don't treat the

disease, they only treat the symptoms. Dmards can help control the

disease.

Have you tried Enbrel or Humira, or Remicade or methotrexate or

plaquenil?

a

On Mar 10, 2006, at 9:59 PM, scrpbookinmom wrote:

> Wow....I am so glad to have found this group! I have been thinking

> that there is NO ONE else out there like me, and that I am all alone

> in this fight. Thank God that you all are here, and I can vent,

> share, talk, learn and listen to others with similar problems.

> What are my problems? Well, I was diagnosed with JRA at 12 way back

> just before I started high school. What an aweful time of life that

> was! Then I was in a car accident when I was 16 and destroyed my

> cervical spine. That equalled more arthur in my spine, where it wasnt

> before. A couple years after that I was dx with Fibro as well.

> Problem is....I am intolerant to non steroidal anti inflammatory

> drugs. Sooo...I lived without help for the past almost 20 years. On

> and off steroids for flares and using home remedies other times. Now,

> back on Christmas of 04, I fell on the ice on my front porch. Broke

> my left wrist and blew out my lower spine. I have had severe chronic

> pain since then. That broken bone was number 7....(ankles 5 times,

> left foot and then left wrist)so the steroid use has taken its toll on

> my body already and Im only 34! Anyway, wow...I sound like a real

> complainer....I am really not trying to...I just want to get some

> advice.

> Ok, so now I am living in CONSTANT, SEVERE lower back and right leg

> pain. The pain is really getting to me, and the arthur has gotten

> severe there now too...but all my options seem to have been used up.

> They tried epi injections of steroids and couldnt do them...no surgeon

> wants to touch me because of the RA and on top of everything else is

> the CFS and Fibro. Aand now, because of the limping and immobility

> from the back injury, I have tendonitis, bursitis and severe

> inflammation in the SI joints as well. Anyone have any suggestions?

> I was told today that I should try myofascial release therapy...????

> Anyone done that yet? I have a TENS unit...lots of Vicodin....PT,

> OT,chiropractic manipulations and therapies, disc decompression, and

> the old favorite STEROIDS!

> Help...Im really not a complainer...I just want some advice. I am

> willing to try anything at this point. I have 2 little girls (ages 8

> and 7) that need their Mama back up and functioning with their busy

> little lives. Please, someone send me some ray of hope!

> Thanks for listening to my babbling.

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

I noticed you didn't mention calcium tablets, I'm on 5mg.Prednisone every

morning (along with the rest of my drug cocktails), I also take 1200 mg. of

Caltrate EACH day to help offset the steroids...ask your doc about Caltrate or

Oscal...maybe you need to see another doctor if you can-I have my family doctor,

an othopedic doctor, my OB-GYN doc and my rheumy doc interact with each other

all the time. Keep in touch, '

---------------------------------

Use Photomail to share photos without annoying attachments.

[Guest guest]

Hello Kerry, Welcome to our family.. We are a group of souls that gathered to try to change realities, We believe that everyone makes a difference and we can together heal the hearts of others.It is a big pleasure to have here for us, We are looking forward for you input and guidance and also in how can we help and support you. Welcome friend! Much love and respect,Liane>> Hi Everyone!> > Just wanted to give a HELLO to all! I'm very much in awe of Humanity > Healing... and find that it resonates with me and my own company's > mission! > > In helping to spread the word about Humanity Healing... I've added > many of their videos to my website... www.RipplesOfLove.com.> > I've also added them to our True Friendships page... you can all take > a peek here:> > http://www.ripplesoflove.com/truefriendships.html> > You are a wonderful group of people... trying to do wonderful things > for humanity and I applaude you all! > > Hugs, Kindness and Warm Wishes...> > Namaste> > ~Kerrie>

[Guest guest]

Hi , I am new to this site myself. At first I didn't know if I even

should join because I officially have not been diagnosed with RA yet. It does

run in my family and I have been in pain from one place on my body to another

for a couple years. (since about 40). I have very tender hips. Right at the

joints on the side. It could be anything I guess. Fibro, RA whatever. My

wrists hurt, especially at night. Am stiff feet and ankles, hands fingers you

name it. Takes a little bit to loosen up but never really goes away. My aunt

has had RA since a child and is in a wheel chair now. She is almost 60. I

guess I think of her and the pain and the fingers all bent in ackward ways and I

get depressed about whats to come of me. But, after reading many posts here, I

think there are better drugs out there and if you catch it in time before too

much damage is done, your prognosis is much better. Good luck to you and

welcome.

>

> Hello everyone,

>

> My name is and I was diagnosed with RA officially on May 7th. I had

seen a Rhuematologist in the fall and they believed I might have RA so we did a

Prednison taper and took aleve and I felt better. Obviously it didn't last. I

now have pain in just about every joint and especially my shoulders and very

stiff hands and one terrible knee.

> So I did the Prednisone taper again started Plaqunil and Nebumetone. I am

still in pain but I know the Plaqunil takes quite some time to take effect.

> I have a few questions if anyone would be able to help out...

> How do I know if I have agressive, moderate, etc. RA?

>

> Does anyone else have pain in their hips?

>

> I have read alot of posts of people feeling very depressed with this

diagnosis. I haven't yet so I am wondering if I am not aware how severe this

will get. I have alot of pain and stiffness but I don't know if this means it

will continue to get worse and worse to the point of not being able to do things

I normally do. Not sure if that makes sense or not.

>

> What are some of the better internet sites and books to get?

>

> Thanks,

>

>