Hello I'm new

[Guest guest]

Welcome to the group and please accept my sympathy. I feel so fortunate

that I did not suffer greatly until my children were old enough to fend for

themselves. I have started working part time and am lucky I was allowed the

flexibility to do it. I think I would be too depressed if I had to quit

completely. I am a teacher and love every minute of it.

Diabetes is a nasty complication. I wish you well.

Ks Di

[ ] Hello I'm New

> Hello Everyone , I've just stumbled across this group and thought it

> only polite to introduce myself.

> I am Huggins aged 36 from the UK.

> I'm married to who is a saint and I have a 21 month old

> daughter , Lottie who gives me a reason to live.

> I have had psoriactic arthritis for around 2 years but it was only

> diagnosed in June.At the same time i was also diagnosed with Type 2

> Diabetes and hypertension.

> In the last 18 months I have been off work for 10 of them , this last

> flare up has lasted 7 months so far.

> I have yet to start Methetrexate as the diabetes complicates matters

> somewhat , but from what I've read I'm dreading it!

> Anyway enough of me for now.

> I would just like to say how pleased I am to have found other people

> who REALLY understand the things that are happening to me.

> I wish you all the very best

> Rich X

>

>

>

> Please visit our Psoriatic Arthritis Group's informational web page at:

> http://www.wpunj.edu/pa/ -- created and edited by list member

aka(raharris@...).

>

> In August 2001 list member Jack aka(Cornishpro@...) began to

conduct extensive research which he publishes as the Psoriatic Arthritic

Research Newsletter monthly in our emails and digest format. Many thanks to

Jack. Back issues of the newsletter are stored on our PA webpage.

>

> Also remember that the list archives comprise a tremendous amount of

information (Over two years of messages and answers).Feel free to browse

them at your convenience.

>

> Let's hear from some of you lurkers out there! If you have a comment or

question chances are there is a person who has been around a while who can

help you out with an educated guess for an answer. If not we can at least

steer you in the right direction with a good website to go to for the

answers.

>

> Blessings and Peace,

>

> Atwood-Stack, Founder

> Alan , Web & List Editor

> Jack , Newsletter Editor

> Pat Bias, List Editor

> Ron Dotson, List Editor

> and many others who help moderate (thank you!)

>

>

>

[Guest guest]

Hi, Randy, and welcome!

You sound as if you have done your research already, and you have a

competent physician already. You will find lots of good information

here and via the available links. The members are helpful...ask

away.

I too am genotype 1. Finished treatment (first one) after 32 years

of infection last April. Yes, I beat the virus. It is possible.

There are many here who cannot have tx (treatment) or choose not

to. We're all here together!

Hugs, Suzy

[Guest guest]

Cool thanks for the support! One thing I am wondering is if it's ok

to wait on the treatment if my biopsy comes back without too much

liver damage. You said you had Hepc for 32 years, how far did it

progress after all that time and how much liver damage did you have

near the end of that time? I know they have only been treating hep c

for a short time so I may just elect to wait for 5 or 10 years

before I get the treatment. What kind of chances do you think there

are that there may be a more effective/easier treatment in like 10

or 20 years and how much is it worth the gamble that my liver may

take alot more damage? Tough questions and probably no answers to

some but I'm wondering about alot of this stuff and trying to make a

decision. Thanks for replying to my post it made me feel better

>

> Hi, Randy, and welcome!

>

> You sound as if you have done your research already, and you have

a

> competent physician already. You will find lots of good

information

> here and via the available links. The members are helpful...ask

> away.

> I too am genotype 1. Finished treatment (first one) after 32

years

> of infection last April. Yes, I beat the virus. It is possible.

> There are many here who cannot have tx (treatment) or choose not

> to. We're all here together!

>

> Hugs, Suzy

[Guest guest]

Hi Randy, I have genotype 1, too (1b), and although I was diagnosed almost 3

years ago, haven't done treatment. My biopsy showed no liver damage, my viral

load is low, so I feel if it ain't broke, don't fix it. Genotypes 1 are the

least responsive to treatment, and I'm not willing to risk permanent side

effects from the drugs when my body seems to be managing this disease on its

own.

If my liver shows damage the next time I have a biopsy, I'll have to rethink

treatment. For now, I'm not willing to risk it.

Marilyn

Re: Hello I'm new

Cool thanks for the support! One thing I am wondering is if it's ok

to wait on the treatment if my biopsy comes back without too much

liver damage. You said you had Hepc for 32 years, how far did it

progress after all that time and how much liver damage did you have

near the end of that time? I know they have only been treating hep c

for a short time so I may just elect to wait for 5 or 10 years

before I get the treatment. What kind of chances do you think there

are that there may be a more effective/easier treatment in like 10

or 20 years and how much is it worth the gamble that my liver may

take alot more damage? Tough questions and probably no answers to

some but I'm wondering about alot of this stuff and trying to make a

decision. Thanks for replying to my post it made me feel better

[Guest guest]

Hey Randy,

I too am a Genotype 1a with little to no liver damge, though my

viraal load is a tad higher than most who can say this... I was

diagnosed about 7 years ago, and have had 3 biopsies during that

time, and they all have shown nothing but some minor inflamation..

so I too chose to wait for something better to come along... my

doctors tell me it may be possible the Hep C will never actually go

on attack of the liver, but then again it could tomorrow... so that

makes it a chance to wait at best... from what I have seen of people

on treatment it makes me want to wait if I can... only 2 of the 6 I

personally know who have taken treatment have responded well, and

neither were type 1's. I would suggest if you decide to wait it out,

to have testing done at least yearly, and have biopsies done every

so often... as from what I hear from my doctors that is the only

true tell all of what's happening to the liver... I also suggest

living as clean of life style as you possiblly can... remember the

harder your liver has to work, the greater the danger... alcohol is

a strict no-no... and purified water is your friend.!! There are

various stories on what vitimans and herbs to take... Pam could most

likely steer you best there... me.. I just keep it simple with

milkthistle being the only " liver " herb I take.

Best Of Luck To ya... ~Mark

> Hi Randy, I have genotype 1, too (1b), and although I was

diagnosed almost 3 years ago, haven't done treatment. My biopsy

showed no liver damage, my viral load is low, so I feel if it ain't

broke, don't fix it. Genotypes 1 are the least responsive to

treatment, and I'm not willing to risk permanent side effects from

the drugs when my body seems to be managing this disease on its own.

>

> If my liver shows damage the next time I have a biopsy, I'll have

to rethink treatment. For now, I'm not willing to risk it.

>

> Marilyn

> Re: Hello I'm new

>

>

>

> Cool thanks for the support! One thing I am wondering is if it's

ok

> to wait on the treatment if my biopsy comes back without too

much

> liver damage. You said you had Hepc for 32 years, how far did it

> progress after all that time and how much liver damage did you

have

> near the end of that time? I know they have only been treating

hep c

> for a short time so I may just elect to wait for 5 or 10 years

> before I get the treatment. What kind of chances do you think

there

> are that there may be a more effective/easier treatment in like

10

> or 20 years and how much is it worth the gamble that my liver

may

> take alot more damage? Tough questions and probably no answers

to

> some but I'm wondering about alot of this stuff and trying to

make a

> decision. Thanks for replying to my post it made me feel

better

>

>

[Guest guest]

Hi Randy,

I'm a 2a/2c, but I completed treatment in July and I'm still undetected. I was

diagnosed in Jul '02, so I had 1 1/2 years to prepare myself for treatment. I

figure, I got the virus in '80, from a transfusion. My viral load was 500,000

and my biopsy showed grade 1/stage 1, with minimal liver damage.

If you feel healthy, your biopsy will probably show little damage if any and

you're still young, so you won't need to rush into treatment.

Good luck,

Jeanie

snackly68 <snackly68@...> wrote:

Hello all, my name is Randy and I was diagnosed with Hep C a few

weeks ago. I am type 1a and I just had a liver biopsy yesterday but

havent gotten the results back yet. I am learning alot but it's all

very new and I don't have alot of support here in Texas. I was also

diagnosed with Diabetes around the same time. I'm 36 years old and

about a month ago I didnt think I had any health problems but it all

kind of came at once. I hope I can help other people once I get a

handle on things. Thanks!

[Guest guest]

Thanks for all the quick help from everbody I got my biopsy

results back and I'm grade 1, stage 1. My viral count was around 5

million when I had my last blood work done. I also showed some fatty

liver in the biopsy. My plan right now is to wait 5 years and get

another biopsy, take vitamin E and milk thistle and get the fat off

my liver with an ultra healthy lifestyle. Then in 5 years decide on

treatment again, hoping there may be a better treatment. Sound like

a good plan?

>

> Hello all, my name is Randy and I was diagnosed with Hep C a few

> weeks ago. I am type 1a and I just had a liver biopsy yesterday

but

> havent gotten the results back yet. I am learning alot but it's

all

> very new and I don't have alot of support here in Texas. I was

also

> diagnosed with Diabetes around the same time. I'm 36 years old and

> about a month ago I didnt think I had any health problems but it

all

> kind of came at once. I hope I can help other people once I get a

> handle on things. Thanks!

>

>

>

>

>

[Guest guest]

Welcome to the group.

You can learn a lot from the parents on the list servs, I also

recommend: chelatingkids2@..., eoharm@...,

gfcfkids@..., autism treatment@....

Your son's regressive autism is treatable, not everyone is successful

but it's worth trying. You have to read, ask a lot of questions and

above all get your son to a DAN Dr.

Best Wishes,

>

> I'd like to introduce myself. We are from Poland but for last 6 years

> we have been living in NYC. We would be already back to our country if

> our son Kacper was fine. He's got autism and severe verbal apraxia. He

> is 3.3 When he was 17 months old and NT he had a great vocabulary of

> 80 words, but later lost everything. Now he doesn't have any single

> word. He cannot comminicate at all. A few days ago I found this group

> , started reading and put my son on 2 caps of carnitine + 2 caps of

> EPA twice a day. Immediately he started babbling. He also has low

> muscle tone. This board gives me so much hope. I can't wait to read

> what else I can do to help him. God bless all of you.

> Agnieszka

>

[Guest guest]

welcome Fanny, what state do you have BCBS in, maybe someone has BTDT

On 7/28/07, fanny01231982 <enigma1982@...> wrote:

Hi,I'm so happy to have found this group! there's so much helpful information!I have a soon to be 8 month old baby girl, she was diagnosed with torticolis and plagio. We went to cranialtech yesterday and we are wating for them to get the denial back (as far as I've read that's what we will get) from BCBS. This is our first baby, and it took us by surprise the fact that the previous pediatrcian didn't prescrive any treatment or repositioning NOTHING! well, I know this is for the best of our baby, and I know that this is a process that will take time but at the end it will be all worth it to know we did all the efforts to get this done for her.

I'm sorry for writing all this but I don't have many friends, and I feel so much better knowing there is a support group in which even tohugh we dont know each other personaly we have so much in common!

Fanny -- -respectful model to;

-11-7-2ph-11/06

[Guest guest]

Welcome Fanny! This is a great group of supportive, helpful parents who have all been there or are starting thier Plagio journey.

Feel free to ask any question - someone here will most likley be able to help!

Also, Post a pic of your baby!!!

Jen and Luli - 19 mo.

Left Tort - Right Plagio - Hanger Band Grad - CA

tallulah jayne

www.babiesonline.com/babies/j/jens5th/

Hello I'm New

Hi,

I'm so happy to have found this group! there's so much helpful

information!

I have a soon to be 8 month old baby girl, she was diagnosed with

torticolis and plagio. We went to cranialtech yesterday and we are

wating for them to get the denial back (as far as I've read that's

what we will get) from BCBS. This is our first baby, and it took us

by surprise the fact that the previous pediatrcian didn't prescrive

any treatment or repositioning NOTHING!

well, I know this is for the best of our baby, and I know that this

is a process that will take time but at the end it will be all worth

it to know we did all the efforts to get this done for her.

I'm sorry for writing all this but I don't have many friends, and I

feel so much better knowing there is a support group in which even

tohugh we dont know each other personaly we have so much in common!

Fanny

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Hi

I'm in Miami, FLorida and i'm crossing my fingers for CranialTech to call me

this week for the fitting. Here's my little girl

Fanny

Florida

>From: " Durocher " <funwith4@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: Re: Hello I'm New

>Date: Sat, 28 Jul 2007 20:44:47 -0400

>

>welcome Fanny, what state do you have BCBS in, maybe someone has BTDT

>

>On 7/28/07, fanny01231982 <enigma1982@...> wrote:

> >

> > Hi,

> >

> > I'm so happy to have found this group! there's so much helpful

> > information!

> >

> > I have a soon to be 8 month old baby girl, she was diagnosed with

> > torticolis and plagio. We went to cranialtech yesterday and we are

> > wating for them to get the denial back (as far as I've read that's

> > what we will get) from BCBS. This is our first baby, and it took us

> > by surprise the fact that the previous pediatrcian didn't prescrive

> > any treatment or repositioning NOTHING!

> >

> > well, I know this is for the best of our baby, and I know that this

> > is a process that will take time but at the end it will be all worth

> > it to know we did all the efforts to get this done for her.

> >

> > I'm sorry for writing all this but I don't have many friends, and I

> > feel so much better knowing there is a support group in which even

> > tohugh we dont know each other personaly we have so much in common!

> >

> > Fanny

> >

> >

> >

>

>

>

>--

>-respectful model to;

>-11

>-7

>-2

>ph-11/06

[Guest guest]

omg look at that smile, she is such a cutie, good Luck!!

On 7/29/07, FANNY SALAZAR <enigma1982@...> wrote:

Hi :)I'm in Miami, FLorida and i'm crossing my fingers for CranialTech to call me this week for the fitting. Here's my little girl :)FannyFlorida>From: " Durocher " <

funwith4@...>>Reply-

Plagiocephaly >Plagiocephaly >Subject: Re: Hello I'm New

>Date: Sat, 28 Jul 2007 20:44:47 -0400>>welcome Fanny, what state do you have BCBS in, maybe someone has BTDT>>On 7/28/07, fanny01231982 <

enigma1982@...> wrote:> >> > Hi,> >> > I'm so happy to have found this group! there's so much helpful> > information!> >

> > I have a soon to be 8 month old baby girl, she was diagnosed with> > torticolis and plagio. We went to cranialtech yesterday and we are> > wating for them to get the denial back (as far as I've read that's

> > what we will get) from BCBS. This is our first baby, and it took us> > by surprise the fact that the previous pediatrcian didn't prescrive> > any treatment or repositioning NOTHING!

> >> > well, I know this is for the best of our baby, and I know that this> > is a process that will take time but at the end it will be all worth> > it to know we did all the efforts to get this done for her.

> >> > I'm sorry for writing all this but I don't have many friends, and I> > feel so much better knowing there is a support group in which even> > tohugh we dont know each other personaly we have so much in common!

> >> > Fanny> >> >> >>>>>-->-respectful model to;>-11>-7>-2>ph-11/06

-- -respectful model to;

-11-7-2ph-11/06

[Guest guest]

Fanny, Your daughter is beautiful, I am also in Miami, Florida. I need to give you a tip... my insurance did not cover the helmet, however, Cranial Tech, makers of the DocBand, gave me a discount for having insurance, they were going to charge me $1,600.00, instead of their customary $3,000.00. Since you know the insurance will not cover it, make sure and ask for a discount. Betty mom to Alessia 12 months old.FANNY SALAZAR <enigma1982@...> wrote:

Hi :)I'm in Miami, FLorida and i'm crossing my fingers for CranialTech to call me this week for the fitting. Here's my little girl :)FannyFlorida>From: " Durocher" <funwith4gmail>>Reply-Plagiocephaly >Plagiocephaly >Subject: Re: Hello I'm New>Date: Sat, 28 Jul 2007 20:44:47 -0400>>welcome Fanny, what state do you have BCBS in, maybe someone has BTDT>>On 7/28/07, fanny01231982 <enigma1982msn> wrote:> >> > Hi,> >> > I'm so happy to have found this group! there's so much helpful> > information!> >> > I have a soon to be 8

month old baby girl, she was diagnosed with> > torticolis and plagio. We went to cranialtech yesterday and we are> > wating for them to get the denial back (as far as I've read that's> > what we will get) from BCBS. This is our first baby, and it took us> > by surprise the fact that the previous pediatrcian didn't prescrive> > any treatment or repositioning NOTHING!> >> > well, I know this is for the best of our baby, and I know that this> > is a process that will take time but at the end it will be all worth> > it to know we did all the efforts to get this done for her.> >> > I'm sorry for writing all this but I don't have many friends, and I> > feel so much better knowing there is a support group in which even> > tohugh we dont know each other personaly we have so much in common!> >> > Fanny> >>

>> >>>>>-->-respectful model to;>-11>-7>-2>ph-11/06

Get the free toolbar and rest assured with the added security of spyware protection.

[Guest guest]

Thanks so much for the tip! When I called they mentioned a payment plan of

$600.00 in 5 payments, but I will definitely ask for the $1600.

I'm guessing it was a one payment correct? there was no payment arrangement?

Fanny

Miami, Florida

>From: Betty Caldera <calderabetty@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: Re: Hello I'm New

>Date: Mon, 30 Jul 2007 07:22:48 -0700 (PDT)

>

>Fanny,

>

> Your daughter is beautiful, I am also in Miami, Florida. I need to give

>you a tip... my insurance did not cover the helmet, however, Cranial Tech,

>makers of the DocBand, gave me a discount for having insurance, they were

>going to charge me $1,600.00, instead of their customary $3,000.00. Since

>you know the insurance will not cover it, make sure and ask for a discount.

>

> Betty mom to Alessia 12 months old.

>

>FANNY SALAZAR <enigma1982@...> wrote:

> Hi

>

>I'm in Miami, FLorida and i'm crossing my fingers for CranialTech to call

>me

>this week for the fitting. Here's my little girl

>

>Fanny

>Florida

>

> >From: " Durocher " <funwith4@...>

> >Reply-Plagiocephaly

> >Plagiocephaly

> >Subject: Re: Hello I'm New

> >Date: Sat, 28 Jul 2007 20:44:47 -0400

> >

> >welcome Fanny, what state do you have BCBS in, maybe someone has BTDT

> >

> >On 7/28/07, fanny01231982 <enigma1982@...> wrote:

> > >

> > > Hi,

> > >

> > > I'm so happy to have found this group! there's so much helpful

> > > information!

> > >

> > > I have a soon to be 8 month old baby girl, she was diagnosed with

> > > torticolis and plagio. We went to cranialtech yesterday and we are

> > > wating for them to get the denial back (as far as I've read that's

> > > what we will get) from BCBS. This is our first baby, and it took us

> > > by surprise the fact that the previous pediatrcian didn't prescrive

> > > any treatment or repositioning NOTHING!

> > >

> > > well, I know this is for the best of our baby, and I know that this

> > > is a process that will take time but at the end it will be all worth

> > > it to know we did all the efforts to get this done for her.

> > >

> > > I'm sorry for writing all this but I don't have many friends, and I

> > > feel so much better knowing there is a support group in which even

> > > tohugh we dont know each other personaly we have so much in common!

> > >

> > > Fanny

> > >

> > >

> > >

> >

> >

> >

> >--

> >-respectful model to;

> >-11

> >-7

> >-2

> >ph-11/06

>

>

>

>

>

>

>---------------------------------

>Get the free toolbar and rest assured with the added security of

>spyware protection.

[Guest guest]

Hello everyone,

My name is Jo... though in the last recent months a beautiful Hispanic patient of mine told me one night that she had the meaning of my name. She had no idea that I have always felt that I have never really had my own name. There is a story behind that but I won't bore you all with those details.

The important part is that I had been having internal dialogue with God about this very issue.... wondering what my name was.. what the creators name for me was.. since I never felt that I belonged to any name that I have been given or married into over the years.

I am a nurse and I work 12 hour nights in hospital. Many nights I feel my patients loneliness, as I feel a separation with the "real world" being a day sleeper and active at night when the rest of the world is sleeping.

It is our custom to write our name on a dry erase board in our patients room when we introduce ourselves as their nurse for that shift and I had noticed that she really focused on the name Jo I had written on the board. I thought it might be evidence that there would be a language barrier.. but it proved not since her English was excellent. When she excitedly told me on my third visit to her room that she had the meaning of my name, I can't say that I was excited, I assumed she would tell me that it was phina, which isn't Jo at all, but a Spanish version of phine which is not my name.

But what she spoke nearly knocked me down. I was having a particularly rough night with a patient of 19 dying of cancer, with her parents at he bedside who had just lost her sister 5 years ago to the very same cancer. It broke my heart to watch them and feel my inadequacy to be able to comfort them.

So when my "little Hispanic lady" blurted out the name "Esperanza" I was shocked! I loved it! It was beautiful! So different than Jo, sometimes when people ask me if Jo stands for Joanne, or Joan, or phine, I tell them "No it's really just Jo, short and sweet and to the point like me". I hate it when I say that! And wonder why I do, but I have yet to come up with a better come back for those people that can't seem to accept that a woman can actually just have the legal name Jo without there being more. Yet I have always felt there was more, but didn't' know where it was, or why I felt that. Until she said the name Esperanza.

I asked her what it meant, telling her it was beautiful and I had never felt my name was beautiful. She said that Jo means hope, and Esperanza is another name meaning hope.

I was astounded, because that is what my life has always been about. I have been through many deep, deep waters of pain in my life, but have always determined to find the "silver lining" in every situation that threatened to undo me or destroy my spirit or life. I have always refused to give up hope, that I would someday come out on the flip side of life triumphant. I knew the instant that she told me that meaning of my name that it was a gift from God, that he/she had truly been listening to my dialogue and my personal struggle with my name, and desired to tell me though this beautiful unsuspecting lady the meaning of my name, to give me a new name that resonated with my soul, letting me know that my life had begun a new chapter, that I would be living out my name.. living hope..

So this is a little bit about me, more words than I expected to share, but my name is Jo, Esperanza… Hope that remains eternal. Hope that will never die, no matter how many little deaths I die in this life. Hope that springs eternal out of the ashes of a difficult painful life.

The longer I live the more I see that we all struggle with our humanity. We are but frail people given to emotions that sway our thinking and cloud our minds at times. But for me "Hope Reigns Eternal" in Esperanza!

Peace to you all, and thank you for taking the time to read this. I find so much inspiration here and look forward to continuing to read, learn and grow from the experiences and thoughts I read here from all of you.

Namaste……

..Esperanza

Hope that reigns eternal.