Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Dee, I was diagnosed in Sept. of this year, but got sick in 2000. My Mri's from 2000 show the ACM, but they are still blaming everything on depression. My symptoms are just like yours, except I have not worked in 5 weeks, for the confusion and vertigo is so bad. The doctors relate everything to depression, and I was not depressed until a few months ago, and who would not be depressed when they have felt this bad for this long. I am going for a 2nd opinion and then I am asking my doctor to refer me to an internist. I am finally to the point that I think we have to take control of our illness and make someone understand what is going on. I wrote a letter to Dr. Malick and politely told him that I thought unless he could feel the symptoms he should not call us depressed and helpless. I think that we just have to hang in there and keep pushing for someone to help us. Hang in there and I will pray for you. God Bless Beverly new to group > Hi everyone. I'm new here and I have some questions. I was diagnosed with ACM > I at the age of 36 in 1993. At the time I was very sick- having dizzy spells, > tremors, irregular heartbeat, near-fainting spells, tingling feelings on the > side of my face and head on one side and pain in the back of my head. I could > barely get out of bed for several months. My GP put me on all kinds of > sedatives insisting that I was depressed and anxious. He finally sent me to > an ENT who looked at my MRI's and told me that my brain was not symmetrical. > He said that he was not sure what it was from, but that it could represent > fluid or something congenital. He also could not understand why this was not > mentioned in my report. I was then sent to a neurologist who looked at the > MRI'S, along with the head of radiology. They both agreed that I had ACM I. > The neurologist explained what it was to me (in medical jargin of course) and > told me that it was " clinically insignificant " and that despite my numerous > symptoms, he could find nothing neurologically wrong with me. Needless to say > I have not been seen by him or any other neurologist about this problem > since. I still have problems that I feel are realted to ACM but since there > was never a written report, I don't know how to approach my doctor about > this. I have copies of the letters from the ent and the neurologist which > contain their statements regarding the ACM and I still have the MRI'S. I'm > embarassed to say that in his letter, the neurologist stated that I did in > fact have " ACM type I brain abnormality of no clinical significance " , but he > also said that he thought that I may be suffering from depression. I do not > understand how he could have told me about the ACM and totally dismissed my > complaints as " depression " . I also suffer from chronic positional vertigo > which the doctors insist is related to my ear. After all these years I still > don't understand what is going on. Could the vertigo be caused by the ACM? I > really am afraid to bring up this subject with my doctor because I am > currently taking an antidepressant and I fear that everything will be blaimed > on depression. I was not depressed in 1993---I was sick. I can honestly say > that right now some of my symptoms are from depression but not all of them. > Any advice would be greatly appreciated , as I don't know where else to turn > for help and information. > dee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Dee, I was diagnosed in Sept. of this year, but got sick in 2000. My Mri's from 2000 show the ACM, but they are still blaming everything on depression. My symptoms are just like yours, except I have not worked in 5 weeks, for the confusion and vertigo is so bad. The doctors relate everything to depression, and I was not depressed until a few months ago, and who would not be depressed when they have felt this bad for this long. I am going for a 2nd opinion and then I am asking my doctor to refer me to an internist. I am finally to the point that I think we have to take control of our illness and make someone understand what is going on. I wrote a letter to Dr. Malick and politely told him that I thought unless he could feel the symptoms he should not call us depressed and helpless. I think that we just have to hang in there and keep pushing for someone to help us. Hang in there and I will pray for you. God Bless Beverly new to group > Hi everyone. I'm new here and I have some questions. I was diagnosed with ACM > I at the age of 36 in 1993. At the time I was very sick- having dizzy spells, > tremors, irregular heartbeat, near-fainting spells, tingling feelings on the > side of my face and head on one side and pain in the back of my head. I could > barely get out of bed for several months. My GP put me on all kinds of > sedatives insisting that I was depressed and anxious. He finally sent me to > an ENT who looked at my MRI's and told me that my brain was not symmetrical. > He said that he was not sure what it was from, but that it could represent > fluid or something congenital. He also could not understand why this was not > mentioned in my report. I was then sent to a neurologist who looked at the > MRI'S, along with the head of radiology. They both agreed that I had ACM I. > The neurologist explained what it was to me (in medical jargin of course) and > told me that it was " clinically insignificant " and that despite my numerous > symptoms, he could find nothing neurologically wrong with me. Needless to say > I have not been seen by him or any other neurologist about this problem > since. I still have problems that I feel are realted to ACM but since there > was never a written report, I don't know how to approach my doctor about > this. I have copies of the letters from the ent and the neurologist which > contain their statements regarding the ACM and I still have the MRI'S. I'm > embarassed to say that in his letter, the neurologist stated that I did in > fact have " ACM type I brain abnormality of no clinical significance " , but he > also said that he thought that I may be suffering from depression. I do not > understand how he could have told me about the ACM and totally dismissed my > complaints as " depression " . I also suffer from chronic positional vertigo > which the doctors insist is related to my ear. After all these years I still > don't understand what is going on. Could the vertigo be caused by the ACM? I > really am afraid to bring up this subject with my doctor because I am > currently taking an antidepressant and I fear that everything will be blaimed > on depression. I was not depressed in 1993---I was sick. I can honestly say > that right now some of my symptoms are from depression but not all of them. > Any advice would be greatly appreciated , as I don't know where else to turn > for help and information. > dee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Dee, I was diagnosed in Sept. of this year, but got sick in 2000. My Mri's from 2000 show the ACM, but they are still blaming everything on depression. My symptoms are just like yours, except I have not worked in 5 weeks, for the confusion and vertigo is so bad. The doctors relate everything to depression, and I was not depressed until a few months ago, and who would not be depressed when they have felt this bad for this long. I am going for a 2nd opinion and then I am asking my doctor to refer me to an internist. I am finally to the point that I think we have to take control of our illness and make someone understand what is going on. I wrote a letter to Dr. Malick and politely told him that I thought unless he could feel the symptoms he should not call us depressed and helpless. I think that we just have to hang in there and keep pushing for someone to help us. Hang in there and I will pray for you. God Bless Beverly new to group > Hi everyone. I'm new here and I have some questions. I was diagnosed with ACM > I at the age of 36 in 1993. At the time I was very sick- having dizzy spells, > tremors, irregular heartbeat, near-fainting spells, tingling feelings on the > side of my face and head on one side and pain in the back of my head. I could > barely get out of bed for several months. My GP put me on all kinds of > sedatives insisting that I was depressed and anxious. He finally sent me to > an ENT who looked at my MRI's and told me that my brain was not symmetrical. > He said that he was not sure what it was from, but that it could represent > fluid or something congenital. He also could not understand why this was not > mentioned in my report. I was then sent to a neurologist who looked at the > MRI'S, along with the head of radiology. They both agreed that I had ACM I. > The neurologist explained what it was to me (in medical jargin of course) and > told me that it was " clinically insignificant " and that despite my numerous > symptoms, he could find nothing neurologically wrong with me. Needless to say > I have not been seen by him or any other neurologist about this problem > since. I still have problems that I feel are realted to ACM but since there > was never a written report, I don't know how to approach my doctor about > this. I have copies of the letters from the ent and the neurologist which > contain their statements regarding the ACM and I still have the MRI'S. I'm > embarassed to say that in his letter, the neurologist stated that I did in > fact have " ACM type I brain abnormality of no clinical significance " , but he > also said that he thought that I may be suffering from depression. I do not > understand how he could have told me about the ACM and totally dismissed my > complaints as " depression " . I also suffer from chronic positional vertigo > which the doctors insist is related to my ear. After all these years I still > don't understand what is going on. Could the vertigo be caused by the ACM? I > really am afraid to bring up this subject with my doctor because I am > currently taking an antidepressant and I fear that everything will be blaimed > on depression. I was not depressed in 1993---I was sick. I can honestly say > that right now some of my symptoms are from depression but not all of them. > Any advice would be greatly appreciated , as I don't know where else to turn > for help and information. > dee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Boy can I relate to this. Keep searching for a Doctor who is Chairi sensative. Call other neurosurgeons offices and ask if they have experience with Chiari. Or just go right to a Chiari specialist. There is a list vis ASAP and " if I remember " ( I have a big problem with memory intermitantly) correctly there is mention of some in your welcome to wacma group emails. One NSG I saw said minimized and denounced it as a " radiological finding " . There is alot of controversy and alot of lack of education. >From: kweezon@... >To: chiari >Subject: new to group >Date: Thu, 7 Mar 2002 20:04:46 EST > >Hi everyone. I'm new here and I have some questions. I was diagnosed with >ACM >I at the age of 36 in 1993. At the time I was very sick- having dizzy >spells, >tremors, irregular heartbeat, near-fainting spells, tingling feelings on >the >side of my face and head on one side and pain in the back of my head. I >could >barely get out of bed for several months. My GP put me on all kinds of >sedatives insisting that I was depressed and anxious. He finally sent me to >an ENT who looked at my MRI's and told me that my brain was not >symmetrical. >He said that he was not sure what it was from, but that it could represent >fluid or something congenital. He also could not understand why this was >not >mentioned in my report. I was then sent to a neurologist who looked at the >MRI'S, along with the head of radiology. They both agreed that I had ACM I. >The neurologist explained what it was to me (in medical jargin of course) >and >told me that it was " clinically insignificant " and that despite my numerous >symptoms, he could find nothing neurologically wrong with me. Needless to >say >I have not been seen by him or any other neurologist about this problem >since. I still have problems that I feel are realted to ACM but since there >was never a written report, I don't know how to approach my doctor about >this. I have copies of the letters from the ent and the neurologist which >contain their statements regarding the ACM and I still have the MRI'S. I'm >embarassed to say that in his letter, the neurologist stated that I did in >fact have " ACM type I brain abnormality of no clinical significance " , but >he >also said that he thought that I may be suffering from depression. I do not >understand how he could have told me about the ACM and totally dismissed my >complaints as " depression " . I also suffer from chronic positional vertigo >which the doctors insist is related to my ear. After all these years I >still >don't understand what is going on. Could the vertigo be caused by the ACM? >I >really am afraid to bring up this subject with my doctor because I am >currently taking an antidepressant and I fear that everything will be >blaimed >on depression. I was not depressed in 1993---I was sick. I can honestly say >that right now some of my symptoms are from depression but not all of them. >Any advice would be greatly appreciated , as I don't know where else to >turn >for help and information. >dee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Boy can I relate to this. Keep searching for a Doctor who is Chairi sensative. Call other neurosurgeons offices and ask if they have experience with Chiari. Or just go right to a Chiari specialist. There is a list vis ASAP and " if I remember " ( I have a big problem with memory intermitantly) correctly there is mention of some in your welcome to wacma group emails. One NSG I saw said minimized and denounced it as a " radiological finding " . There is alot of controversy and alot of lack of education. >From: kweezon@... >To: chiari >Subject: new to group >Date: Thu, 7 Mar 2002 20:04:46 EST > >Hi everyone. I'm new here and I have some questions. I was diagnosed with >ACM >I at the age of 36 in 1993. At the time I was very sick- having dizzy >spells, >tremors, irregular heartbeat, near-fainting spells, tingling feelings on >the >side of my face and head on one side and pain in the back of my head. I >could >barely get out of bed for several months. My GP put me on all kinds of >sedatives insisting that I was depressed and anxious. He finally sent me to >an ENT who looked at my MRI's and told me that my brain was not >symmetrical. >He said that he was not sure what it was from, but that it could represent >fluid or something congenital. He also could not understand why this was >not >mentioned in my report. I was then sent to a neurologist who looked at the >MRI'S, along with the head of radiology. They both agreed that I had ACM I. >The neurologist explained what it was to me (in medical jargin of course) >and >told me that it was " clinically insignificant " and that despite my numerous >symptoms, he could find nothing neurologically wrong with me. Needless to >say >I have not been seen by him or any other neurologist about this problem >since. I still have problems that I feel are realted to ACM but since there >was never a written report, I don't know how to approach my doctor about >this. I have copies of the letters from the ent and the neurologist which >contain their statements regarding the ACM and I still have the MRI'S. I'm >embarassed to say that in his letter, the neurologist stated that I did in >fact have " ACM type I brain abnormality of no clinical significance " , but >he >also said that he thought that I may be suffering from depression. I do not >understand how he could have told me about the ACM and totally dismissed my >complaints as " depression " . I also suffer from chronic positional vertigo >which the doctors insist is related to my ear. After all these years I >still >don't understand what is going on. Could the vertigo be caused by the ACM? >I >really am afraid to bring up this subject with my doctor because I am >currently taking an antidepressant and I fear that everything will be >blaimed >on depression. I was not depressed in 1993---I was sick. I can honestly say >that right now some of my symptoms are from depression but not all of them. >Any advice would be greatly appreciated , as I don't know where else to >turn >for help and information. >dee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Boy can I relate to this. Keep searching for a Doctor who is Chairi sensative. Call other neurosurgeons offices and ask if they have experience with Chiari. Or just go right to a Chiari specialist. There is a list vis ASAP and " if I remember " ( I have a big problem with memory intermitantly) correctly there is mention of some in your welcome to wacma group emails. One NSG I saw said minimized and denounced it as a " radiological finding " . There is alot of controversy and alot of lack of education. >From: kweezon@... >To: chiari >Subject: new to group >Date: Thu, 7 Mar 2002 20:04:46 EST > >Hi everyone. I'm new here and I have some questions. I was diagnosed with >ACM >I at the age of 36 in 1993. At the time I was very sick- having dizzy >spells, >tremors, irregular heartbeat, near-fainting spells, tingling feelings on >the >side of my face and head on one side and pain in the back of my head. I >could >barely get out of bed for several months. My GP put me on all kinds of >sedatives insisting that I was depressed and anxious. He finally sent me to >an ENT who looked at my MRI's and told me that my brain was not >symmetrical. >He said that he was not sure what it was from, but that it could represent >fluid or something congenital. He also could not understand why this was >not >mentioned in my report. I was then sent to a neurologist who looked at the >MRI'S, along with the head of radiology. They both agreed that I had ACM I. >The neurologist explained what it was to me (in medical jargin of course) >and >told me that it was " clinically insignificant " and that despite my numerous >symptoms, he could find nothing neurologically wrong with me. Needless to >say >I have not been seen by him or any other neurologist about this problem >since. I still have problems that I feel are realted to ACM but since there >was never a written report, I don't know how to approach my doctor about >this. I have copies of the letters from the ent and the neurologist which >contain their statements regarding the ACM and I still have the MRI'S. I'm >embarassed to say that in his letter, the neurologist stated that I did in >fact have " ACM type I brain abnormality of no clinical significance " , but >he >also said that he thought that I may be suffering from depression. I do not >understand how he could have told me about the ACM and totally dismissed my >complaints as " depression " . I also suffer from chronic positional vertigo >which the doctors insist is related to my ear. After all these years I >still >don't understand what is going on. Could the vertigo be caused by the ACM? >I >really am afraid to bring up this subject with my doctor because I am >currently taking an antidepressant and I fear that everything will be >blaimed >on depression. I was not depressed in 1993---I was sick. I can honestly say >that right now some of my symptoms are from depression but not all of them. >Any advice would be greatly appreciated , as I don't know where else to >turn >for help and information. >dee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 > > I was just wondering if anyone else had tried chiropractic treatment > > and what your results were. > > > > Thanks for your input! God Bless. > > > > > > I tried chiropractic treatment and my results was good, but my back still > hurts and now I stopped. Its just helpt for a short time. And I tried it > since 1991- > > But my head is much better. My chiropractor was the only one who knew > something about ACM. > > kikki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 > > I was just wondering if anyone else had tried chiropractic treatment > > and what your results were. > > > > Thanks for your input! God Bless. > > > > > > I tried chiropractic treatment and my results was good, but my back still > hurts and now I stopped. Its just helpt for a short time. And I tried it > since 1991- > > But my head is much better. My chiropractor was the only one who knew > something about ACM. > > kikki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 > > I was just wondering if anyone else had tried chiropractic treatment > > and what your results were. > > > > Thanks for your input! God Bless. > > > > > > I tried chiropractic treatment and my results was good, but my back still > hurts and now I stopped. Its just helpt for a short time. And I tried it > since 1991- > > But my head is much better. My chiropractor was the only one who knew > something about ACM. > > kikki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 Hi Marsha: I like to say welcome to the group !! I am sort of a new comer (two months now), I find the group very helpful. Welcome !!! Oh, And I am also on Paxil for depression as well. Take care. Debra Newfoundland & Labrador Atlantic Canada " Practice Makes Improvement Not Perfect " ! New to group I just want to say hello - I'm new to the group, have been lurking only a week or so. I was dx with ACM I sometime before Christmas last year - Oct. or Nov., I think. At this point in time I am seeing a neurologist, not a neurosurgeon. She pinpointed ACM right off at our first appt. and ordered the MRI. I'm not sure what my " measurements " are at this time...I'm getting a copy of my report. For the most part, I'm only suffering the headaches although I've begun to suspect some other things might be related. Oh, and my doc said I also have a pseudo-tumor which she thinks is primarily the problem. She wants me to lose weight (turns out divorce is fattening!) and thinks that will eliminate my problems. I am not on pain meds right now other than Aleve (otc) which I'm not sure if it helps or not. Other than that I'm on a diuretic for the pseudotumor and Paxil for depression. As a single mom, I'm terrified when I read some of your notes for fear that my ACM may progress as far and I won't be able to take care of my son. Sorry this is so long, but you all know how it is to have a sympathetic ear! --marsha _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Help section: http://www.yahoogroups.com/help/ NOTE: NCC refers to posts with No Chiari Content To Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 Hi Marsha: I like to say welcome to the group !! I am sort of a new comer (two months now), I find the group very helpful. Welcome !!! Oh, And I am also on Paxil for depression as well. Take care. Debra Newfoundland & Labrador Atlantic Canada " Practice Makes Improvement Not Perfect " ! New to group I just want to say hello - I'm new to the group, have been lurking only a week or so. I was dx with ACM I sometime before Christmas last year - Oct. or Nov., I think. At this point in time I am seeing a neurologist, not a neurosurgeon. She pinpointed ACM right off at our first appt. and ordered the MRI. I'm not sure what my " measurements " are at this time...I'm getting a copy of my report. For the most part, I'm only suffering the headaches although I've begun to suspect some other things might be related. Oh, and my doc said I also have a pseudo-tumor which she thinks is primarily the problem. She wants me to lose weight (turns out divorce is fattening!) and thinks that will eliminate my problems. I am not on pain meds right now other than Aleve (otc) which I'm not sure if it helps or not. Other than that I'm on a diuretic for the pseudotumor and Paxil for depression. As a single mom, I'm terrified when I read some of your notes for fear that my ACM may progress as far and I won't be able to take care of my son. Sorry this is so long, but you all know how it is to have a sympathetic ear! --marsha _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Help section: http://www.yahoogroups.com/help/ NOTE: NCC refers to posts with No Chiari Content To Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 Hi Marsha: I like to say welcome to the group !! I am sort of a new comer (two months now), I find the group very helpful. Welcome !!! Oh, And I am also on Paxil for depression as well. Take care. Debra Newfoundland & Labrador Atlantic Canada " Practice Makes Improvement Not Perfect " ! New to group I just want to say hello - I'm new to the group, have been lurking only a week or so. I was dx with ACM I sometime before Christmas last year - Oct. or Nov., I think. At this point in time I am seeing a neurologist, not a neurosurgeon. She pinpointed ACM right off at our first appt. and ordered the MRI. I'm not sure what my " measurements " are at this time...I'm getting a copy of my report. For the most part, I'm only suffering the headaches although I've begun to suspect some other things might be related. Oh, and my doc said I also have a pseudo-tumor which she thinks is primarily the problem. She wants me to lose weight (turns out divorce is fattening!) and thinks that will eliminate my problems. I am not on pain meds right now other than Aleve (otc) which I'm not sure if it helps or not. Other than that I'm on a diuretic for the pseudotumor and Paxil for depression. As a single mom, I'm terrified when I read some of your notes for fear that my ACM may progress as far and I won't be able to take care of my son. Sorry this is so long, but you all know how it is to have a sympathetic ear! --marsha _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Help section: http://www.yahoogroups.com/help/ NOTE: NCC refers to posts with No Chiari Content To Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 Welcome to the group Daeley. My name is Amie. I am mommy to Karson 3.5 PDD and Peyton 23 months NT. We live in FL. I hope u enjoy this list. Amie new to group Hi everyone, I am new to this group and just wanted to introduce myself. I am a stay at home mom to two young boys. who is 4 years old and typically developing. who is almost 6 years old and has been diagnosed with Autism since the age of 2 1/2. He has been receiving services since his diagnosis which include special education, ot, and speech therapy. We recently moved to a small town to make our day to day living less stressful. Our son is in a regular kindergarten classroom with a 1:1 aide and resource room special education teacher (since they did not have a developmental kindergarten in this town.) Moving to this small town has been good for in the fact that he is now able to do things that he absolutely couldnt do in the city. (like go to the store) But he has struggled in his classroom since the start of school. He is just now beginning to connect a little bit with a couple of children in the room. I dont really know what all to tell you guys about myself, except that since our sons diagnosis, Autism has been our life. Just looking to connect with others who understand our situation and share stories with. hope to talk to you soon. Daeley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Hi Daeley. Hmm. I should have read ahead (I was 500 behind) and found all new members and then done one introduction... Well, I have a passel of kids, two on the spectrum. But I am sure you'll be hearing more of us and I hope we will all learn more of and (we DO talk about all our kids if we have others). Putter is also in regular kindergarten with a one on one aide. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Hi Daeley. Hmm. I should have read ahead (I was 500 behind) and found all new members and then done one introduction... Well, I have a passel of kids, two on the spectrum. But I am sure you'll be hearing more of us and I hope we will all learn more of and (we DO talk about all our kids if we have others). Putter is also in regular kindergarten with a one on one aide. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 In a message dated 5/15/2005 4:02:45 P.M. Eastern Daylight Time, missmeow48@... writes: I am new here, this past Thu. I was diagnosed with Type 2, and have been having a hard time dealing with the news, I am doing better today, I think. Thursday and Friday were horrid, I did nothing but cry and cry. I went out and bought two books one on Type 2 and the other was on meal planning. Hi MJ, I think everyone goes through the same thing you are now going through. It is not easy being told you have diabetes. You may think it is the end of the world. I was diagnosed in 1999 and I can tell you that it was a blessing for me. I started exercising more, started eating more healthier and I feel great everyday. Don't try to understand everything at one time. Don't get overwhelmed with all the information that is available. Take it one day or one meal at a time. Your husband doesn't have to eat the way you do, however, it may be good that he does. My husband did not give up any of his snacks or his way of eating. And, he does most of the cooking at our house. Tonight, he fixed hamburger steaks, FF and corn. I had a small steak, a few FF and a salad. I always keep salad fixings in the refrigerator. Telling your family and friends does not mean that you will be dependent on them. My family and friends know that I have diabetes, but that has not changed anything for us. My family and friends are not always watching what I eat and asking if " I should be eating that " . For some members, there family and friends are always watching. If you feel comfortable telling family/friends, do so. It is not important that you tell all family/friends, but someone should know so that they would know what to do in a medical situation, if at some point that should arise. Diabetes is different for every person. Some people can eat more carbs than others. Some people can have a small piece of cake, pie, candy, etc while others cannot. A lot depends on your will-power. Some people can eat a small piece of sweets and leave the rest while others cannot. The only way to know what you can and cannot eat is by testing. If you eat something and get a high bg (blood glucose) reading, the next time you eat that food, eat a smaller amount. If you still get a high reading, you may want to stay away from that particular food. Exercise, if you can do that, is the best way to lower bg's. Right now, you are under a lot of stress having just been diagnosed, having to move across country. Stress will cause higher bg's. Find some time each day just for you so that you can relax, even if it is only 20 minutes or so. hugs Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 In a message dated 5/15/2005 4:02:45 P.M. Eastern Daylight Time, missmeow48@... writes: I am new here, this past Thu. I was diagnosed with Type 2, and have been having a hard time dealing with the news, I am doing better today, I think. Thursday and Friday were horrid, I did nothing but cry and cry. I went out and bought two books one on Type 2 and the other was on meal planning. Hi MJ, I think everyone goes through the same thing you are now going through. It is not easy being told you have diabetes. You may think it is the end of the world. I was diagnosed in 1999 and I can tell you that it was a blessing for me. I started exercising more, started eating more healthier and I feel great everyday. Don't try to understand everything at one time. Don't get overwhelmed with all the information that is available. Take it one day or one meal at a time. Your husband doesn't have to eat the way you do, however, it may be good that he does. My husband did not give up any of his snacks or his way of eating. And, he does most of the cooking at our house. Tonight, he fixed hamburger steaks, FF and corn. I had a small steak, a few FF and a salad. I always keep salad fixings in the refrigerator. Telling your family and friends does not mean that you will be dependent on them. My family and friends know that I have diabetes, but that has not changed anything for us. My family and friends are not always watching what I eat and asking if " I should be eating that " . For some members, there family and friends are always watching. If you feel comfortable telling family/friends, do so. It is not important that you tell all family/friends, but someone should know so that they would know what to do in a medical situation, if at some point that should arise. Diabetes is different for every person. Some people can eat more carbs than others. Some people can have a small piece of cake, pie, candy, etc while others cannot. A lot depends on your will-power. Some people can eat a small piece of sweets and leave the rest while others cannot. The only way to know what you can and cannot eat is by testing. If you eat something and get a high bg (blood glucose) reading, the next time you eat that food, eat a smaller amount. If you still get a high reading, you may want to stay away from that particular food. Exercise, if you can do that, is the best way to lower bg's. Right now, you are under a lot of stress having just been diagnosed, having to move across country. Stress will cause higher bg's. Find some time each day just for you so that you can relax, even if it is only 20 minutes or so. hugs Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 In a message dated 5/15/2005 4:02:45 P.M. Eastern Daylight Time, missmeow48@... writes: I am new here, this past Thu. I was diagnosed with Type 2, and have been having a hard time dealing with the news, I am doing better today, I think. Thursday and Friday were horrid, I did nothing but cry and cry. I went out and bought two books one on Type 2 and the other was on meal planning. Hi MJ, I think everyone goes through the same thing you are now going through. It is not easy being told you have diabetes. You may think it is the end of the world. I was diagnosed in 1999 and I can tell you that it was a blessing for me. I started exercising more, started eating more healthier and I feel great everyday. Don't try to understand everything at one time. Don't get overwhelmed with all the information that is available. Take it one day or one meal at a time. Your husband doesn't have to eat the way you do, however, it may be good that he does. My husband did not give up any of his snacks or his way of eating. And, he does most of the cooking at our house. Tonight, he fixed hamburger steaks, FF and corn. I had a small steak, a few FF and a salad. I always keep salad fixings in the refrigerator. Telling your family and friends does not mean that you will be dependent on them. My family and friends know that I have diabetes, but that has not changed anything for us. My family and friends are not always watching what I eat and asking if " I should be eating that " . For some members, there family and friends are always watching. If you feel comfortable telling family/friends, do so. It is not important that you tell all family/friends, but someone should know so that they would know what to do in a medical situation, if at some point that should arise. Diabetes is different for every person. Some people can eat more carbs than others. Some people can have a small piece of cake, pie, candy, etc while others cannot. A lot depends on your will-power. Some people can eat a small piece of sweets and leave the rest while others cannot. The only way to know what you can and cannot eat is by testing. If you eat something and get a high bg (blood glucose) reading, the next time you eat that food, eat a smaller amount. If you still get a high reading, you may want to stay away from that particular food. Exercise, if you can do that, is the best way to lower bg's. Right now, you are under a lot of stress having just been diagnosed, having to move across country. Stress will cause higher bg's. Find some time each day just for you so that you can relax, even if it is only 20 minutes or so. hugs Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 hi, my name is debbie and welcome to the group. I to have type 2 diabetes and i remember when i got the news from the doctor almost 5 years ago, i cried and cried to. i can understand what you are going through and i know scary it can be. i want to let you know that i am here for you,anytime u need to talk please do and try not to worry to much. it takes time to learn how to eat and other things that goes along with diabetes. sorry to hear that u have other health problems--but take one day at a time and pray. i still have my good days and my bad days--so please try and not to get discourage--thins will get better sweetie. where in the west are u moving to? it always seems that everything happens all at once--i feel that way about myself to--when it rains it pours. i am here anytime u need to talk. nice to meet you. hugs debbie --- missmeow48@... wrote: > Hello Everyone; > > I am new here, this past Thu. I was diagnosed with > Type 2, and have been > having a hard time dealing with the news, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 hi, my name is debbie and welcome to the group. I to have type 2 diabetes and i remember when i got the news from the doctor almost 5 years ago, i cried and cried to. i can understand what you are going through and i know scary it can be. i want to let you know that i am here for you,anytime u need to talk please do and try not to worry to much. it takes time to learn how to eat and other things that goes along with diabetes. sorry to hear that u have other health problems--but take one day at a time and pray. i still have my good days and my bad days--so please try and not to get discourage--thins will get better sweetie. where in the west are u moving to? it always seems that everything happens all at once--i feel that way about myself to--when it rains it pours. i am here anytime u need to talk. nice to meet you. hugs debbie --- missmeow48@... wrote: > Hello Everyone; > > I am new here, this past Thu. I was diagnosed with > Type 2, and have been > having a hard time dealing with the news, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Chin up. ;-) Being diabetic is nowhere near as bad as it used to be. It's not as good as being healthy, of course, but all in all, it can be dealt with. Type 2 isn't all that bad if it's caught early and you take care of yourself. The hardest part for me was having to start really taking note of what I was eating because I need to lose weight and a lot of my problem was coming from sheer intake of sugars via junk carbs. That meant sugared soda and chocolate had to go and those were killing me most both in sugar content and having to let them go. But I found substitutes I could live with. The " dreaded diet food " as my mom used to call it... well, with the advent of Splenda, it's not so bad. In fact, I've found ice creams that my non-diabetic friends raved about when I gave them some without telling them it was totally sugar free. Some foods you can tell it's not the " real thing " , but in a lot of cases, the differences are negligible. And you definitely learn the art of moderation with your sweets when you go sugar-free because overdoing anything that has sugar alcohols in them will do a number on your gastric system. I've found that as long as I have no more than two of the package recommended servings of any sugar alcohol item in a day, I'm fine. Throw in that third though... very bad... up all night kind of bad. Mom had it worse. Back when she was first diagnosed as a diabetic, most of the available meds made her sick and the only alternative for an artificial sweetener was saccharine. That, I think, was THE worst excuse for a sweetener ever. :-p I've really learned that the most important things to being diabetic are 1) identifying the things that make your blood sugar go up the most and elliminating or severely moderating them (these can be foods, stress, and other things like medications), 2)learning to moderate your food so that you are eating a healthy, balanced diet without all the processed sugar junk, 3) learning to recognize the signs that come with fluctuating sugar so you can keep it controlled and 4)implementing a steady exercise plan if you don't already have one. Also, don't get into the habit of fooling yourself about what you're eating. Until you get a handle on things, WRITE IT DOWN and make sure you measure your food so you aren't overeating. I freaked when I realized how many of my " normal servings " were actually 2-3 times the recommended servings! Measuring will definitely open your eyes. I got myself a cheapo food scale for about $10 at Wal-Mart to help me out. I also got the measuing cups down out of the high cabinet and put them down where I would remember to measure out my veggies at dinner and such. I was diagnosed in September of last year. At that time my blood sugar was routinely running in the 350-450 range and had already begun to do damage and caused me to rapidly lose about 30 pounds in the space of two weeks. Now, just months later with some dietary changes and vigilance (and a two cups of green tea a day regimen along with more frequent exercise/activity), my blood sugar tends to be in the high 80's to low 100's just like our Texas weather. *chuckle* My last A1C was 5.4 and the doctor was really surprised at how fast I got all of my numbers down. Even my BP was down a bit without all the salty junk food to edge it up. I've got things so well controlled now that I can have my one day a week where I can eat whatever I want as long as it's always just the recommended serving sizes... even REAL chocolate or ice cream or a burger from Jack in the Box or a couple of pieces of Papa 's thin crust pizza. I even find that I can now have a little rice or potato without getting too big of a jump as long as it's with something high in protein. When I first started this, rice and potato were BIG no-nos. They would make my numbers soar. But it seems that with the more healthy and controlled diet, I'm more able to process them without a problem.. I think a lot of the stress of being diabetic for a lot of people is the feeling of being deprived of all the foods we know and love. So, I found ways to emulate or substitute for those foods I had to cut so I wouldn't feel left out or deprived. When I was first diagnosed, I let my friends know so that if they saw me about to cave to temptation in front of the bakery counter at the coffee shop they could haul me away and have an intervention. LOL Now I have the sugar fee alternatives and take them with me when I know those kind of temptations will be there and I will want something. I make allowances, dropping other things from the menu that day to make up for the addition of the treat. So I don't feel so bad about being a diabetic. The only thing I can't really change is the damage it did to my legs in the way of neuropathy after almost a year of out of control sugar, but even that I find ways of dealing with. I've noticed I have to be a little more conscious of the sneezy-wheezy and otherwise sick people around me as I seem to catch any bug floating around a bit more easily now than before the blood sugar got out of control. But I can deal with that, too. When I start seeing people coming down with the latest bug, I dose with echinacea purpura and vitamin C a lot quicker than I did before. Now my one real hurdle is getting rid of the weight I put back on (*irk!*) from quitting smoking. It's been almost 4 months now and I can't seem to get rid of it. It's ticking me off, but I am determined to beat it. *grrrr* Aazari The Art of Jolie E. Bonnette http://www.aazari.com/ Buy art stuff! http://www.cafepress.com/JEB_art The newest art: http://aazari.deviantart.com/ Art Protection League http://www.artprotectionleague.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Chin up. ;-) Being diabetic is nowhere near as bad as it used to be. It's not as good as being healthy, of course, but all in all, it can be dealt with. Type 2 isn't all that bad if it's caught early and you take care of yourself. The hardest part for me was having to start really taking note of what I was eating because I need to lose weight and a lot of my problem was coming from sheer intake of sugars via junk carbs. That meant sugared soda and chocolate had to go and those were killing me most both in sugar content and having to let them go. But I found substitutes I could live with. The " dreaded diet food " as my mom used to call it... well, with the advent of Splenda, it's not so bad. In fact, I've found ice creams that my non-diabetic friends raved about when I gave them some without telling them it was totally sugar free. Some foods you can tell it's not the " real thing " , but in a lot of cases, the differences are negligible. And you definitely learn the art of moderation with your sweets when you go sugar-free because overdoing anything that has sugar alcohols in them will do a number on your gastric system. I've found that as long as I have no more than two of the package recommended servings of any sugar alcohol item in a day, I'm fine. Throw in that third though... very bad... up all night kind of bad. Mom had it worse. Back when she was first diagnosed as a diabetic, most of the available meds made her sick and the only alternative for an artificial sweetener was saccharine. That, I think, was THE worst excuse for a sweetener ever. :-p I've really learned that the most important things to being diabetic are 1) identifying the things that make your blood sugar go up the most and elliminating or severely moderating them (these can be foods, stress, and other things like medications), 2)learning to moderate your food so that you are eating a healthy, balanced diet without all the processed sugar junk, 3) learning to recognize the signs that come with fluctuating sugar so you can keep it controlled and 4)implementing a steady exercise plan if you don't already have one. Also, don't get into the habit of fooling yourself about what you're eating. Until you get a handle on things, WRITE IT DOWN and make sure you measure your food so you aren't overeating. I freaked when I realized how many of my " normal servings " were actually 2-3 times the recommended servings! Measuring will definitely open your eyes. I got myself a cheapo food scale for about $10 at Wal-Mart to help me out. I also got the measuing cups down out of the high cabinet and put them down where I would remember to measure out my veggies at dinner and such. I was diagnosed in September of last year. At that time my blood sugar was routinely running in the 350-450 range and had already begun to do damage and caused me to rapidly lose about 30 pounds in the space of two weeks. Now, just months later with some dietary changes and vigilance (and a two cups of green tea a day regimen along with more frequent exercise/activity), my blood sugar tends to be in the high 80's to low 100's just like our Texas weather. *chuckle* My last A1C was 5.4 and the doctor was really surprised at how fast I got all of my numbers down. Even my BP was down a bit without all the salty junk food to edge it up. I've got things so well controlled now that I can have my one day a week where I can eat whatever I want as long as it's always just the recommended serving sizes... even REAL chocolate or ice cream or a burger from Jack in the Box or a couple of pieces of Papa 's thin crust pizza. I even find that I can now have a little rice or potato without getting too big of a jump as long as it's with something high in protein. When I first started this, rice and potato were BIG no-nos. They would make my numbers soar. But it seems that with the more healthy and controlled diet, I'm more able to process them without a problem.. I think a lot of the stress of being diabetic for a lot of people is the feeling of being deprived of all the foods we know and love. So, I found ways to emulate or substitute for those foods I had to cut so I wouldn't feel left out or deprived. When I was first diagnosed, I let my friends know so that if they saw me about to cave to temptation in front of the bakery counter at the coffee shop they could haul me away and have an intervention. LOL Now I have the sugar fee alternatives and take them with me when I know those kind of temptations will be there and I will want something. I make allowances, dropping other things from the menu that day to make up for the addition of the treat. So I don't feel so bad about being a diabetic. The only thing I can't really change is the damage it did to my legs in the way of neuropathy after almost a year of out of control sugar, but even that I find ways of dealing with. I've noticed I have to be a little more conscious of the sneezy-wheezy and otherwise sick people around me as I seem to catch any bug floating around a bit more easily now than before the blood sugar got out of control. But I can deal with that, too. When I start seeing people coming down with the latest bug, I dose with echinacea purpura and vitamin C a lot quicker than I did before. Now my one real hurdle is getting rid of the weight I put back on (*irk!*) from quitting smoking. It's been almost 4 months now and I can't seem to get rid of it. It's ticking me off, but I am determined to beat it. *grrrr* Aazari The Art of Jolie E. Bonnette http://www.aazari.com/ Buy art stuff! http://www.cafepress.com/JEB_art The newest art: http://aazari.deviantart.com/ Art Protection League http://www.artprotectionleague.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Chin up. ;-) Being diabetic is nowhere near as bad as it used to be. It's not as good as being healthy, of course, but all in all, it can be dealt with. Type 2 isn't all that bad if it's caught early and you take care of yourself. The hardest part for me was having to start really taking note of what I was eating because I need to lose weight and a lot of my problem was coming from sheer intake of sugars via junk carbs. That meant sugared soda and chocolate had to go and those were killing me most both in sugar content and having to let them go. But I found substitutes I could live with. The " dreaded diet food " as my mom used to call it... well, with the advent of Splenda, it's not so bad. In fact, I've found ice creams that my non-diabetic friends raved about when I gave them some without telling them it was totally sugar free. Some foods you can tell it's not the " real thing " , but in a lot of cases, the differences are negligible. And you definitely learn the art of moderation with your sweets when you go sugar-free because overdoing anything that has sugar alcohols in them will do a number on your gastric system. I've found that as long as I have no more than two of the package recommended servings of any sugar alcohol item in a day, I'm fine. Throw in that third though... very bad... up all night kind of bad. Mom had it worse. Back when she was first diagnosed as a diabetic, most of the available meds made her sick and the only alternative for an artificial sweetener was saccharine. That, I think, was THE worst excuse for a sweetener ever. :-p I've really learned that the most important things to being diabetic are 1) identifying the things that make your blood sugar go up the most and elliminating or severely moderating them (these can be foods, stress, and other things like medications), 2)learning to moderate your food so that you are eating a healthy, balanced diet without all the processed sugar junk, 3) learning to recognize the signs that come with fluctuating sugar so you can keep it controlled and 4)implementing a steady exercise plan if you don't already have one. Also, don't get into the habit of fooling yourself about what you're eating. Until you get a handle on things, WRITE IT DOWN and make sure you measure your food so you aren't overeating. I freaked when I realized how many of my " normal servings " were actually 2-3 times the recommended servings! Measuring will definitely open your eyes. I got myself a cheapo food scale for about $10 at Wal-Mart to help me out. I also got the measuing cups down out of the high cabinet and put them down where I would remember to measure out my veggies at dinner and such. I was diagnosed in September of last year. At that time my blood sugar was routinely running in the 350-450 range and had already begun to do damage and caused me to rapidly lose about 30 pounds in the space of two weeks. Now, just months later with some dietary changes and vigilance (and a two cups of green tea a day regimen along with more frequent exercise/activity), my blood sugar tends to be in the high 80's to low 100's just like our Texas weather. *chuckle* My last A1C was 5.4 and the doctor was really surprised at how fast I got all of my numbers down. Even my BP was down a bit without all the salty junk food to edge it up. I've got things so well controlled now that I can have my one day a week where I can eat whatever I want as long as it's always just the recommended serving sizes... even REAL chocolate or ice cream or a burger from Jack in the Box or a couple of pieces of Papa 's thin crust pizza. I even find that I can now have a little rice or potato without getting too big of a jump as long as it's with something high in protein. When I first started this, rice and potato were BIG no-nos. They would make my numbers soar. But it seems that with the more healthy and controlled diet, I'm more able to process them without a problem.. I think a lot of the stress of being diabetic for a lot of people is the feeling of being deprived of all the foods we know and love. So, I found ways to emulate or substitute for those foods I had to cut so I wouldn't feel left out or deprived. When I was first diagnosed, I let my friends know so that if they saw me about to cave to temptation in front of the bakery counter at the coffee shop they could haul me away and have an intervention. LOL Now I have the sugar fee alternatives and take them with me when I know those kind of temptations will be there and I will want something. I make allowances, dropping other things from the menu that day to make up for the addition of the treat. So I don't feel so bad about being a diabetic. The only thing I can't really change is the damage it did to my legs in the way of neuropathy after almost a year of out of control sugar, but even that I find ways of dealing with. I've noticed I have to be a little more conscious of the sneezy-wheezy and otherwise sick people around me as I seem to catch any bug floating around a bit more easily now than before the blood sugar got out of control. But I can deal with that, too. When I start seeing people coming down with the latest bug, I dose with echinacea purpura and vitamin C a lot quicker than I did before. Now my one real hurdle is getting rid of the weight I put back on (*irk!*) from quitting smoking. It's been almost 4 months now and I can't seem to get rid of it. It's ticking me off, but I am determined to beat it. *grrrr* Aazari The Art of Jolie E. Bonnette http://www.aazari.com/ Buy art stuff! http://www.cafepress.com/JEB_art The newest art: http://aazari.deviantart.com/ Art Protection League http://www.artprotectionleague.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Chin up. ;-) Being diabetic is nowhere near as bad as it used to be. It's not as good as being healthy, of course, but all in all, it can be dealt with. Type 2 isn't all that bad if it's caught early and you take care of yourself.>> What Aazari says is true, you can and will get a handle on this and be the better for it. I am still working on getting used to avoiding certain foods or finding substitutes. My partner swears I have lost weight, but I don't see where LOL. I am learning that eating past the point of feeling full is a serious no-no. I feel awful now when I let that happen. What is enough to make one person feel full without being gorged is different for each person. Like for example, I eat two four ounce servings of Dannon Light 'n Fit yogurt and a banana for breakfast and that fills me up until around 11 am or so then I go for tuna, cottage cheese and whatever raw veggies I have on hand. Dinner varies but is always protein and veggies of some kind unless I am eating alone, then it is just veggies. Others may need to add snacks in all the time, where as I may need them one day and not the next. Just take it one day at a time hun. :-) ------------ Eternal Writer/Poet/Child of the Universe http://www.eternalwytch.com ICQ: 55902650 " The moving finger writes; and, having writ, Moves on: nor all thy piety nor wit Shall lure it back to cancel half a line, Nor all thy tears wash out a word of it. " - Fitzgerald Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 Chin up. ;-) Being diabetic is nowhere near as bad as it used to be. It's not as good as being healthy, of course, but all in all, it can be dealt with. Type 2 isn't all that bad if it's caught early and you take care of yourself.>> What Aazari says is true, you can and will get a handle on this and be the better for it. I am still working on getting used to avoiding certain foods or finding substitutes. My partner swears I have lost weight, but I don't see where LOL. I am learning that eating past the point of feeling full is a serious no-no. I feel awful now when I let that happen. What is enough to make one person feel full without being gorged is different for each person. Like for example, I eat two four ounce servings of Dannon Light 'n Fit yogurt and a banana for breakfast and that fills me up until around 11 am or so then I go for tuna, cottage cheese and whatever raw veggies I have on hand. Dinner varies but is always protein and veggies of some kind unless I am eating alone, then it is just veggies. Others may need to add snacks in all the time, where as I may need them one day and not the next. Just take it one day at a time hun. :-) ------------ Eternal Writer/Poet/Child of the Universe http://www.eternalwytch.com ICQ: 55902650 " The moving finger writes; and, having writ, Moves on: nor all thy piety nor wit Shall lure it back to cancel half a line, Nor all thy tears wash out a word of it. " - Fitzgerald Quote Link to comment Share on other sites More sharing options...
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