Thanks

[Guest guest]

oh linda you are entitled to have one or two days like that. Somedays i feel

the same way. Just think of all the little arguements we have around my

house. sometimes i just sit and laugh at the little fights cause usually they

are over small stuff. Some days though i have to release too and thats

usually when i have pms and all the boys run for cover. hasn't learned

yet not to get in my way. my oldest son keeps telling him " man just

stay away from her or else its gonna be your butt " .

[Guest guest]

Hi ,

No thanks is necessary. Really. =) I hope this all works out soon. When I

read they were outside your home, I was t'd off. I'd close all my shades.

Call the police. Press charges for harassment! Arg! Jerks! One day when they

are in your position, they'll remember you and all the others they harassed

and understand.

~Hugs,

<< Hi ,

Thank You for that web site on WC.

>>

[Guest guest]

Hi ,

You're welcome. I'll be very happy for you when you get that hip pain

diagnosed and under control. I'm sure it's not " in your head " . That

just does *not* fit your style at all!!! Hope you have a wonderful

day!

Hugs,

Carolyn

Valued Compaq Customer wrote:

>

> Hi Carolyn,

> Thank You for all the information on the cane, it wasn't too

> long at all.

> I am waiting for the results of the MRI on my hip. Maybe, there is

> nothing

> wrong and it is all in my head LOL. I think I will go shopping and

> look

> around at the different canes. I didn't go to class tonight because

> we

> have to walk around the archeological site and I didn't want to make

> things

> worse. Anyway thank you again, I appreciate your help.

>

> --------------------------------------------------------------------

>

> --------------------------------------------------------------------

> URL to change your membership options:

> /group/

> RA-support website: http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

[Guest guest]

> Hi ,

> Thanks for the phone number, I will give them a call.

>

You're welcome and GOOD LUCK!

~

[Guest guest]

,

Looks like you were up late writing the last message (says Fri 1:46am?).

Here's a link to some good books published by APHA: American

Public Health Association - Books and Other Media - American Public Health

Association 2000 Publications Catalog - Books by Title . Probably

not news to many on the list. After the APHA catalogue at the top

of the page, you'll find a book on AIDS prevention in the community.

If you scroll down to the sixth book listed, you'll see the book that my

father helped edit. He's a physician that majored in anthropology,

so you might share some perspectives.

Sure, it's a plug, but let it underscore your thanks to those that have

been pointing the way.

Thanks, again,

keith.bletzer@... wrote:

TO MEMBERS OF THE MIGRANT HEALTH RESEARCH NETWORK:

Thanks.

I appreciate the suggestions for contacts and resources regarding my

three-part request for assistance in the area of HIV initiatives for/among

farmworkers. And, as an anthropologist, I appreciate the subtle

hints on the

appropriate rules of conduct for entering into a multi-site dialogue

by means

of the "network."

....

Their words better than mine describe the strengths

they

embody. Thanks.

V Bletzer

Post-Doctoral Research Associate

Department of Anthropology

Arizona State University

PO BOX 87-2402

Tempe, AZ 85287-2402

Tel 480 858-0778

The fax at the office I use doesn't work, so it's not included.

The e-mail address at the top, on the other hand, works.

[Guest guest]

Hi Bambi,

Welcome to the group.

I understand your feelings that you feel okay, and that you don't seem to

think you need any meds right now. I wish that was true, however, the BEST

way to get yourself into remission for RA is to go on DMARD's and be tough

on RA. Just because you are not hurting that badly, RA is still attacking

your joints and tendons. Enbrel is your best bet to get yourself into

remission.

I know that others on this list will agree with me that you need to be

agressive in your treatment NOW.

Please listen to those of us who wish we could start over with our

treatments.

Judy

At 03:11 AM 5/12/2000 -0000, you wrote:

>I can go back sooner to the RD but I feel really good. I really

>haven't felt this good since I started on the meds. When I was first

>disagnosed my Dr put me on Sulfasulzane, and Celebrex. The sulfa

>didn't seem to work so when I went back he put me on the Metho. I do

>not want to go back on that for anything!! Would rather take nothing

>at all. The Celebrex seems to be working right now but will have to

>waiy and see what happens! If I get into pain the Dr will see me he

>will have no choice!! I can be a pain when I need to be. It just

>usually takes a lot for me to get that way. There are only 2 RA Drs

>in this area and I still have to drive 65 miles one way to see him.

>They are partners and teh one is not taking any new patients. So I

>got to see this guy. He usually seemed to be ok but not sure. I

>have some information coming about Enbrel I want to check that out.

>See what it is like. But I am not one who wants to give herself

>shots so need to take some time. I know I shouldn't wait to long

>before starting back on meds. That means I need to take a day off

>from work and go to the Dr. No one there knows I have RA. I started

>this job in Aug and was disagnosed in Sept. So I keep quiet about it

>and mask my pain when I do hurt, just take it easy when needed. Dumb

>I know!! Thank you to all that made me feel welcomed. I hope that

>you all have a good night and as little as pain as possible!!

>

> Hugs Bambi :-)

[Guest guest]

I agree with Judy, Bambi. Early diagnosis and aggressive treatment are key

in getting rheumatic diseases under control. Hope you can add a DMARD soon.

----- Original Message -----

From: " Judy " <rrjsen@...>

< egroups>

Sent: Thursday, May 11, 2000 10:27 PM

Subject: Re: [ ] Thanks

> Hi Bambi,

>

> Welcome to the group.

>

> I understand your feelings that you feel okay, and that you don't seem to

> think you need any meds right now. I wish that was true, however, the BEST

> way to get yourself into remission for RA is to go on DMARD's and be tough

> on RA. Just because you are not hurting that badly, RA is still attacking

> your joints and tendons. Enbrel is your best bet to get yourself into

> remission.

>

> I know that others on this list will agree with me that you need to be

> agressive in your treatment NOW.

>

> Please listen to those of us who wish we could start over with our

> treatments.

>

> Judy

[Guest guest]

Alecia,

I'm glad you are comfortable with your GP. We all get

frustrated with our doctors for not being able to cure us.

You have a 100% say in the treatment you choose. Doctors

don't have much choice in abiding by our wishes because

we won't take meds that we aren't happy with. Doctor and

patient are more like a partnership. You have hired him to

take care of your disease, and have every right to deny any

meds you aren't comfortable with. I am surprised that the

Remicade people would make the statement that Remicade is

a cure. I've seen nothing that says it cures anything. Many

drugs can cause remission, but remission is not a cure.

It surely shouldn't be used when there is a question about the

diagnosis. I hope you get answers soon. It is difficult to treat

a disease that isn't yet diagnosed properly.

a

----- Original Message -----

From: Alecia Flaherty <aleciaflaherty@...>

< egroups>

Sent: Tuesday, August 22, 2000 11:17 AM

Subject: [ ] Thanks

>

> I just wanted to thank everyone for their advice,

> words of encouragement,etc. I do not want to lose my

> gp since he is the only doctor who has ever taken the

> time to really listen to me. I found out he is going

> through some personal stuff and probably was

> distracted by that during my last appt. I feel he is

> wanting to do what is best for me, but did not take

> the time to talk through it with me because his mind

> was somewhere else that day. (rumor is that his wife

> is having an affair).

>

> I think I have decided to tell him I am going to stay

> on the Enbrel for now and the Plaquenil the rheumy

> prescribed until my Nov. appt and then we can

> re-evaluate from there. The more I read about

> Remicade, the more unsure of that I'm becoming. I

> cannot find any studies or evidence that Remicade is a

> disease reversing drug as my gp has been told by the

> Remicade people. I also found an article which says

> that there is a concern that Remicade can put patients

> at risk of Lupus because a side effect is the

> possiblity of developing double-stranded DNA. Since I

> already have Lupus symptoms, I do not want to take a

> drug that could possibly make things worse.

>

> I may not have painted a good picture of either of my

> drs. but I don't think either of them are bad doctors

> or uneducated. I think my gp goes with his instincts

> instead of relying only on lab tests and the rheumy

> (having never seen me before) relies totally on the

> lab work and what she has observed during the appt. I

> was feeling better when I saw her because I had been

> on a high dose of prednisone for 3 weeks, so that may

> have affected some of the tests. I feel they are both

> trying to do what is best for me, but in the long run,

> I'm the one most affected by these choices, so I

> should have a say in what happens in my treatment -

> right????

>

> Thanks again - it so nice to be able to talk these

> things out with people who really understand.

>

> Alecia

>

> __________________________________________________

>

[Guest guest]

Boy do I know what you are talking about..I get so bored day to day......I

have gone from days of just staying in bed ( aching and depression.which goes

cyclic with my periods)and days when I feel good trying to take myself out to

lunch or a movie.(stadium seating only). It is hard ...I have a brain.....all

my friends work too....I long for an adult to talk to most days......14 yrold

boys don't exactly think in same way as 48yr old mothers.......I try really

hard on most days to get out if only for a short ride to store ........on my

miserable days (flares) I just become a recluse till I feel better. This

computer has become my friend.Have talked to many people off of here.....I

do have days when it bothers me to type, and sometimes just get tired of aol

bull.......I also love Scrabble..and I have the game on here which I play

against computer .....sometimes that works.....Just try to get through it

best you can....meds do help, and I think that in going from an active

lifestyle to this disease....it's just hard . JUDY

[Guest guest]

Jeannette,

Glad you got some sleep. My moving days are over, but why don't you and Ed

move to FL?? .

I don't remember, but do you have any pets? Maybe a new kitten or puppy,

bird. We have an African Grey parrot and she is so much fun, it's like

having another person in the house. She meow's at the cat, and calls her

name, when is in the tub we always call out to him are you ok, and now

she'll say " are you ok in there? " . Animals are lot's of company.

Also, do you read? To me I love to read and could spend the entire day

reading if everyone would just " go away " . I've never been a crafty person,

so I'm no help there. So pack your packs and move and down. Tery

[Guest guest]

Tery:

I would love to move to Florida for the Winter. Unfortunately, we have many

years before Ed retires.

I do have a house full of pets and they are very much company. We have 3

cats and 2 birds (parakeets; Ricky and Lucy ). They are quite noisy

and when I leave the room, the call for me. The cats are always at my heels

or beck and call. We love them dearly. I was trying to talk Ed into letting

me get a dog but no dice. He said we have enough right now.

I just have the blues right now and for no particular reason. I cannot

figure out why. Perhaps it is coming off of all the stress I have been

through for quite some time. The after shock so to speak. I called Ed at

work and cried in his ear for awhile. He is so good at listening and making

me feel better. He really puts no pressure on me and appreciates everything

big or small that I do. Who could ask for more. I have nothing to feel

sorry for myself about. I just plain ole have the blues and am hoping they

will pass soon. Maybe it is a cleansing process. You are really sweet.

Thanks.

Jeannette

[Guest guest]

Tery,

where in fl do you live? you never know when we may move back to fl. lol

[Guest guest]

,

I live in ville. I think I remember you saying you lived in Daytona.

If you ever come back, let me know. Hopefully we can arrange a meeting.

Tery

[Guest guest]

yes i did live in daytona. and if i get back that way which is very

possible(ex husband still lives in daytona) i would love to meet you and you

would even get to meet the whole tribe. no stealing jesse though. lol.

everyone that meets him wants to take him home with them.

shelly

[Guest guest]

Jeannette:

I read your email and I hope you are feeling better. Depression is no fun, I

certainly know that. Where do you live by the way, you didn't mention it in

the email. I live in New Jersey.

Sincerely, Colletti

Anjillah@...

[Guest guest]

Stasia-

I'm really glad that you are here and I agree with you about this group. It

is AWESOME!! It's really amazing how close you can feel to people you've only

met through email!!! My baby will be done with treatment in a couple of

weeks, but I will still be here - I don't know what I would do without my

plagio buddies!

{{{{{HUGS TO EVERYONE!!!}}}}}}}

Marci (Mom to )

Oklahoma

[Guest guest]

(((((((((Hugs back to everyone!!))))))))))

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: marcisch@...

Plagiocephaly

Sent: Thursday, March 15, 2001 9:39 AM

Subject: Re: THANKS

Stasia-I'm really glad that you are here and I agree with you about this group. It is AWESOME!! It's really amazing how close you can feel to people you've only met through email!!! My baby will be done with treatment in a couple of weeks, but I will still be here - I don't know what I would do without my plagio buddies!{{{{{HUGS TO EVERYONE!!!}}}}}}}Marci (Mom to )Oklahoma

[Guest guest]

Thank your for being honest in your message! I feel good about my decision

and it has been nice to be able to write out my feelings, knowing people who

understand are reading. I wasn't aware of your story with Conor, glad to hear

that you did get some correction! Thank you again! Eileen, Frazier's mommy

[Guest guest]

Paolo this is wonderful news. We have a saying in the UK which goes:- from small

acorns great oak trees grow.

All the acorns you've planted

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: Paolo Vinci

Sent: Friday, November 16, 2001 12:13 AM

Subject: [] Thanks

Thank you, Gretchen, for giving me the opportunity of discussing about my book

and rehabilitation through the chat.

I think that things may change in the world, if many CMTers would contact

the rehabilitation professionals (in my country the physiatrists who are in

charge of the rehabilitative services) in order

to inform them that " much can be done... " and what can be done.

This very morning I received a call from a physiatrist in Southern Italy,

who has been contacted by one of our members, who told me that he is

available to organize the rehabilitative team I spoke of in my book.

Yesterday, when I said that rehabilitation does not pay, I meant that

rehabilitation is not a great business, because there are no drug companies

(and no diagnostic labs) interested in sponsoring it, and requires more work

(and brain) than just prescribing pills.

But it is our right to receive better treatment! It will take some time and

much effort, but I am sure we can succeed.

Thank you also to all those who participated in the chat and, for you and for

those who could not attend, I am always available to answer questions about the

subject.

Ciao.

Paolo

[Guest guest]

> Just wanted to say thanks to Rocky and for your quick

> responses. Your statement (Rocky) about how the more you wear

AFO " S,

> the more you need them is exactly what I have been thinking about.

**********************************************************************

**Hello Mamie

Yes, I do wear AFO's.

Right now I wear them about 12 hours a day--then 4 hours cane +

bumming off the walls etc… 8 hours sleep.

It has all in all raised my quality of life, I believe (never got to

try it the other ways).

I have met two people in my life with CMT, so it was real cool to

find a site like this, I also am new here.

Getting AFO's made will be time + effort intensive, NO FUN.

Many trips to get fitted correctly ( if you are lucky).

I hate AFO's and that I have to wear them but I love what they allow

me to do.

I myself may have waited a bit to long, I was not diagnosed until

much damage had been done so I figured I got this far without them, I

don't need no stinking braces !!!!

Thing was I was not fully aware of how my quality of life had been

affected by my deteration.

No harm except time and energy spent to give them a try right, maybe

they will make you feel like supperman/woman.

Bottom line is it is a personal decision that no one can make for you!

People can help you make it though.

By the way I got my first AFO's at least 8 years before wearing them

full time, started out wearing for certain activity's like trail

hiking which I would have had to give up (quality of life!) without

AFO's.

I wore them at first about 3 months, took them off and was bummed

that I " forgot how to walk without them " , I gained that back and

decided not to wear them except for things I otherwise could not do.

They made life so much better that I drifted to full time use.

I sometimes think of stopping them even now.

That rock and hard place are not the only hard things in play, there

are many things , stigma of AFO's, pain etc….

Rocky

**********************************************************************

[Guest guest]

This is a good point. I know some people who come

here (the U.S.) on a regular basis, but not for

farmwork. They come to do restaurant work (in

Pittsburgh, PA... don't ask me why they choose to go

there, but they do). They leave their home towns at

the time of year when there isn't anything to harvest,

and there's nothing in need of planting. Sometimes

they leave if there's a drought or some other cause of

crop destruction. They usually stay for periods of 2

years, and try to return at the time when planting or

harvesting will take place in central Mexico, in an

effort to ensure that there will be work when they

return. Apparently they've worked out a deal with some

restaurant managers, and so they are guaranteed a job

when they arrive here.

--- V Bletzer <keith.bletzer@...> wrote:

> Migrant.Health.Research.Network.

>

> I appreciate the information and suggestions related

> to my question on the

> three-stream concept. I was pleased for suggestions

> that went beyond the

> immediate focus of my inquiry, which was concerned

> with (visual and verbal)

> representation and validation of research materials.

>

> Diagrams of migrant movement have been around at

> least since the early

> 1940s, both in the form of reports from

> congrressional committees and

> publications (especially Carey Mc, 1942, Ill

> Fares the Land). Most

> likely the stream concept accompanied or was

> encouraged by the visual

> displays. The three-stream concept, as was

> mentioned in earlier responses,

> has a distinct history and specific application.

>

> I was pleased to find the adaptation of social

> science concepts in the

> production of later diagrams, particularly in

> relation to forms of migrant

> movement. Several diagram makers had good training,

> or knew who to

> consult, or combined a little of both. (The diagram

> I mentioned in my

> inquiry has fascinated me for a long time since its

> wispy branches and

> tapering points-toward-destination have an artistic

> quality that lends

> itself to repeated use.)

>

> Tina raises an interesting issue of who are those

> whom we serve who are

> those who migrate for purposes of agricultural

> employment who may also

> engage in other kinds of work. And the related

> issue if those who

> traditionally worked in agriculture sometimes work

> outside farm labor, the

> same processes of information-sharing we have

> assumed exist inside

> agriculture may extend beyond farmwork and bring

> folks into migratory & /or

> seasonal agricultural employment, if only once, or

> periodically, or perhaps

> for long-term. These folks, and farmworkers who

> work outside agriculture,

> may be counted differently at distinct points in

> their work trajectory...

>

> The question Bobbi raises on " needs assessment "

> (both types) should include

> consideration of who are the farmworkers we serve.

> They are hard-to-reach

> for different reasons today than in the past and

> hard-to-find for more

> reasons than other difficult-to-serve populations.

>

> Yes, there are improved baseline materials for more

> effective, better

> designed studies. And the need to re-assess who as

> well as where are those

> whom we serve.

>

> V Bletzer. Post-Doctoral Research Associate,

> Department of

> Anthropology, Arizona State University.

>

>

__________________________________________________

[Guest guest]

eddiesunflower wrote:

i am a new member. i just want to say thanks to all of you who joined

this group. isn't it great to have a computer and share all this

information? just did my 10th flush last week, still had some pain,

so will continue the flushes. does the pain ever go away?

Why dont you check out www.curezone.com and post your success story in our liver

forum! We love success stories.

[Guest guest]

You are entirely welcome. As Gingersnap..( JANET) I am very sick and hard to find anyone to believe me as well as fighting a federal workmen's comp case on my own. Like I said. I wish there were more of you. is great. Her and Kathie and everyone is wonderful and concerned. Even if over email, it makes me feel less alone. The government says tough. No CDC rule on Toxic Mold. Last allergist called it hocus pocus and shot me up with high doses almost killed me and now I am in severe pain and cant walk and drive never mind the mold toxins and asthma and 3m mask I have t wear now.

If you are helping people suffering from Stachy, Aspergillus , everything I was exposed to for eight years then you are A OK in my book. All my friends are gone. No one understands.

Janet s 207 384 2242

[Guest guest]

Hi guys....I know that some people might wonder why we continue to spread

the word about LDN. Takes a lot of my online time these days actually. I

just received this wonderful letter from a woman who's daughter is now

taking the LDN. It warms my heart when I hear these stories. Just thought

you all might like to see the e-mail that I received from her. JoyceF

Subject: THANKS

Date: Thu, 20 Nov 2003 14:47:41 +0000

Joyce, I want to thank you so much for recommending LDN to me for my

daughter . She started it on September 4, 2003, just over two months

ago. She has SPMS and could not walk at all, couldn't read because her eyes

" jumped " all the time, could hardly move from the couch to the wheelchair,

was weak, dizzy and nauseus much of the time and slept almost all the time.

In this short time her speech is absolutely normal, she can read everything,

no more nauseau, dizziness or weakness, she can completely dress herself,

sleeps 7-8 hours a night and no more during the day (once in a while a short

nap), looks and feels very well. Last night she walked up and down the hall

(holding railings) twice before watching her favourite tv shows. In short,

it's a miracle and I have you thank. Keep spreading the word. sees

her neurologist in January - he will be amazed, I know. He was wonderful to

prescribe LDN but did caution us that it probably wouldn't help! I have

told him what has happened and altho he says it is probably a coincidence, I

think he realizes there is something important here. She went through a

couple of weeks of her legs being very stiff but when she changed the time

she took LDN from 1 am to 10:30 pm, it went completely away. Thanks again.

_________________________________________________________________

Gift-shop online from the comfort of home at MSN Shopping! No crowds, free

parking. http://shopping.msn.com

[Guest guest]

It's wonderful isn't it Joyce.....I recieved one of those thank you

notes myself, today....as follows:

sally chrisman

Sent: Thursday, November 20, 2003 7:43 AM

Subject: Re: Happy Thanks Giving

Thanks, Happy-T-Day to you too!!!!

I want to tell you ,Rider started on LDN a month ago & it has done

wonders for him!!!!

Thank You for telling us about this wonderful drug!!!. He quit

taking everything else & only takes the LDN.He has done more in the

last month and a half, than he has done all year. We tried & failed

local DRS., so got it from DR. Scot.

thanks again!

Love Rosie

>

> Hi guys....I know that some people might wonder why we continue to

spread

> the word about LDN. Takes a lot of my online time these days

actually. I

> just received this wonderful letter from a woman who's daughter is

now

> taking the LDN. It warms my heart when I hear these stories. Just

thought

> you all might like to see the e-mail that I received from her.

JoyceF

>

> Subject: THANKS

> Date: Thu, 20 Nov 2003 14:47:41 +0000

>

>

> Joyce, I want to thank you so much for recommending LDN to me for

my

> daughter . She started it on September 4, 2003, just over

two months

> ago. She has SPMS and could not walk at all, couldn't read

because her eyes

> " jumped " all the time, could hardly move from the couch to the

wheelchair,

> was weak, dizzy and nauseus much of the time and slept almost all

the time.

> In this short time her speech is absolutely normal, she can read

everything,

> no more nauseau, dizziness or weakness, she can completely dress

herself,

> sleeps 7-8 hours a night and no more during the day (once in a

while a short

> nap), looks and feels very well. Last night she walked up and

down the hall

> (holding railings) twice before watching her favourite tv shows.

In short,

> it's a miracle and I have you thank. Keep spreading the word.

sees

> her neurologist in January - he will be amazed, I know. He was

wonderful to

> prescribe LDN but did caution us that it probably wouldn't help!

I have

> told him what has happened and altho he says it is probably a

coincidence, I

> think he realizes there is something important here. She went

through a

> couple of weeks of her legs being very stiff but when she changed

the time

> she took LDN from 1 am to 10:30 pm, it went completely away.

Thanks again.

>

> _________________________________________________________________

> Gift-shop online from the comfort of home at MSN Shopping! No

crowds, free

> parking. http://shopping.msn.com