Re: Leaky Gut, etc

[Guest guest]

I thought I would let you know the result of my " leaky gut test " or more

properly known as Intestinal Permeability. There were some posting in the

summer suggesting a link with rosacea so I thought it would be worthwhile

having it checked out. After two screw-ups with the lab analyis I finally

got the results of the third attempt today. The test measures the

permeability of lactulose and mannitol and also calculates their ratio. The

results showed that I do not have a leaky gut and am in fact on the good

side of the normal distribution. (0 - 0.8 for the lactulose is the normal

range and I was 0.1, 0-30 is normal for the mannitol and I was16 and for the

ratio 0 - 0.07 is normal and I was 0.01). So as far as my rosacea is

concerned the leaky gut theory does not apply.

Regarding the lack of knowledge of rosacea by dermatologist I am not

surprised. I think one great thing about the INTERNET is that it is showing

how poorly most diseases are understood by the medical profession. Look how

many billions has been spent on research into cancers and still how little

is known about them. If you check the stats you will see that most of the

ones that have significantly declined (such as stomach cancer) have been for

environmental reasons or diet changes, not medical. Now that patients can

interact through egroups we are seeing the real picture that was previously

difficult to get. It does not surprise me in the least, however, as body

chemistry is extremely complex and the amount of new information is almost

overwhelming, so how can one expect a doctor to be knowledgeable (especially

GP's) in many areas? Even dermatology covers a multitude of diseases each

with their own peculiartities and then throw in the individual patient's

body chemistry and you will realise why there are so few cures around (plus

of course the major players in the game, such as drug companies, would make

far less money if they developed cures rather than " contolling " our

illnesses).

I see rosacea as a series of diseases with common symptons but a variety of

causes. It shows as a vascular disease with dilated, weak blood vessels but

the underlying causes may be different (why is it limited mainly to the

face?). In my case it is genetic as my father had it. So far I see no cure -

photoderm, which has been claimed as a cure really puts you back several

years or more by removing a lot of the damage but I'm not convinced the

disease has been cured. I have tried just about everything except the

physical treatments but only antibiotics seem to control it. When I first

joined I suggested we fund our own research - far cheaper than the thousands

we are all spending on the disease - but the response was only warm.

I see from our Canadian members that the availability of photoderm is almost

next to zero is this land of free medicare. Does anyone know of a clinic in

Ontario?

Merry Xmas to you all.

Gord

[Guest guest]

Hi Gord,

Sorry you were not able to track down the source of your

cea.

You asked if there were any known Photoderm practitioners

in Ontario. Back when I was researching where to go (I live

in Western New York), someone told me of a doc in Toronto

who does Photoderm. I don't remember his name--something

like Mike , but don't quote me on that. If you ask around

perhaps someone remembers?

Good Luck,

Beth

Re: Leaky Gut, etc

> I thought I would let you know the result of my " leaky gut test " or more

> properly known as Intestinal Permeability. There were some posting in the

> summer suggesting a link with rosacea so I thought it would be worthwhile

> having it checked out. After two screw-ups with the lab analyis I finally

> got the results of the third attempt today. The test measures the

> permeability of lactulose and mannitol and also calculates their ratio.

The

> results showed that I do not have a leaky gut and am in fact on the good

> side of the normal distribution. (0 - 0.8 for the lactulose is the normal

> range and I was 0.1, 0-30 is normal for the mannitol and I was16 and for

the

> ratio 0 - 0.07 is normal and I was 0.01). So as far as my rosacea is

> concerned the leaky gut theory does not apply.

>

> Regarding the lack of knowledge of rosacea by dermatologist I am not

> surprised. I think one great thing about the INTERNET is that it is

showing

> how poorly most diseases are understood by the medical profession. Look

how

> many billions has been spent on research into cancers and still how little

> is known about them. If you check the stats you will see that most of the

> ones that have significantly declined (such as stomach cancer) have been

for

> environmental reasons or diet changes, not medical. Now that patients can

> interact through egroups we are seeing the real picture that was

previously

> difficult to get. It does not surprise me in the least, however, as body

> chemistry is extremely complex and the amount of new information is almost

> overwhelming, so how can one expect a doctor to be knowledgeable

(especially

> GP's) in many areas? Even dermatology covers a multitude of diseases each

> with their own peculiartities and then throw in the individual patient's

> body chemistry and you will realise why there are so few cures around

(plus

> of course the major players in the game, such as drug companies, would

make

> far less money if they developed cures rather than " contolling " our

> illnesses).

>

> I see rosacea as a series of diseases with common symptons but a variety

of

> causes. It shows as a vascular disease with dilated, weak blood vessels

but

> the underlying causes may be different (why is it limited mainly to the

> face?). In my case it is genetic as my father had it. So far I see no

cure -

> photoderm, which has been claimed as a cure really puts you back several

> years or more by removing a lot of the damage but I'm not convinced the

> disease has been cured. I have tried just about everything except the

> physical treatments but only antibiotics seem to control it. When I first

> joined I suggested we fund our own research - far cheaper than the

thousands

> we are all spending on the disease - but the response was only warm.

>

> I see from our Canadian members that the availability of photoderm is

almost

> next to zero is this land of free medicare. Does anyone know of a clinic

in

> Ontario?

>

> Merry Xmas to you all.

>

> Gord

>

>

>

>

> -----------------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole

group. See http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to rosacea-support-unsubscribeegroups

>

>

[Guest guest]

Hi Seth

Thanks for your interesting comments.

The reason I can not find any connection with my rosacea and diet are the

following:

(By the way I have spent most of my working life as a research chemist so

have tended to experiment a lot with different foods, medications, etc., to

determine their effect on my rosacea).

I am 56 years old extremely fit (whether that equates to healthy I'm not

sure) male. I play soccer twice a week (still haven't grown up!!) and can

run 5 miles without blinking. My friends reckon I am fitter than most 40

year olds. I have no aches or pains or known illnesses except rosacea. I

started with acne as a kid and it progressed over the years to rosacea. At

present I am permanently red - I have not discovered any triggers. I have no

known allergies and can eat just about anything Rarely have had stomach

problems in my life (except when on large doses of tetracycline). Have lived

in England, Canada and Japan, travelled extensively and eaten all the

different foods available without any problem. Never was into sweet foods

though - love fruit and veg. I have been on an O-blood type diet (no wheat

or dairy) since June at recommendation of my naturopath and maybe have seen

a slight improvement. I also gave up coffee but drink lots of green tea. I

drink beer 3/4 times a week (remember " Guinness is good for you " !!)- my

father never drank alcohol but had severe rosacea. I keep trying all the

posted suggestions (presently trying the MSM) in the hope of an improvement.

Other comments: I was tested for h.pylori three years ago and was negative.

My wife who died 3 years ago from stomach cancer at age 49, (after being

misdiagnosed (menopause) by a female doctor), was h.pylori positive and had

great skin. A colleague of mine in mid-twenties has had Crohn's since age 12

but has flawless skin. I agree with all your comments about dermatologists.

Hope you can see why in my case I don't think diet is has had much effect on

my rosacea. But as I see from the many posting we are all different and it

may be important for some people.

Best wishes

Gord

[Guest guest]

Hi Seth

Thanks for your interesting comments.

The reason I can not find any connection with my rosacea and diet are the

following:

(By the way I have spent most of my working life as a research chemist so

have tended to experiment a lot with different foods, medications, etc., to

determine their effect on my rosacea).

I am 56 years old extremely fit (whether that equates to healthy I'm not

sure) male. I play soccer twice a week (still haven't grown up!!) and can

run 5 miles without blinking. My friends reckon I am fitter than most 40

year olds. I have no aches or pains or known illnesses except rosacea. I

started with acne as a kid and it progressed over the years to rosacea. At

present I am permanently red - I have not discovered any triggers. I have no

known allergies and can eat just about anything Rarely have had stomach

problems in my life (except when on large doses of tetracycline). Have lived

in England, Canada and Japan, travelled extensively and eaten all the

different foods available without any problem. Never was into sweet foods

though - love fruit and veg. I have been on an O-blood type diet (no wheat

or dairy) since June at recommendation of my naturopath and maybe have seen

a slight improvement. I also gave up coffee but drink lots of green tea. I

drink beer 3/4 times a week (remember " Guinness is good for you " !!)- my

father never drank alcohol but had severe rosacea. I keep trying all the

posted suggestions (presently trying the MSM) in the hope of an improvement.

Other comments: I was tested for h.pylori three years ago and was negative.

My wife who died 3 years ago from stomach cancer at age 49, (after being

misdiagnosed (menopause) by a female doctor), was h.pylori positive and had

great skin. A colleague of mine in mid-twenties has had Crohn's since age 12

but has flawless skin. I agree with all your comments about dermatologists.

Hope you can see why in my case I don't think diet is has had much effect on

my rosacea. But as I see from the many posting we are all different and it

may be important for some people.

Best wishes

Gord