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Mom ~

Bless your heart, I am so sorry you are

having problems. Are you having any other

symptoms of anything? Tired? achey ?

What all is going on with you? You are in

my prayers.

DedeSee AOL's top rated recipes and easy ways to stay in shape for winter.

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Mom ~

Bless your heart, I am so sorry you are

having problems. Are you having any other

symptoms of anything? Tired? achey ?

What all is going on with you? You are in

my prayers.

DedeSee AOL's top rated recipes and easy ways to stay in shape for winter.

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I have been to tons of doctors and specialist regarding my health.

I'm meeting with my surgeon who implanted my saline implants next week

to talk about having them removed. After reading the information with

this group. So many of the issues have related to me!!!! The

receptionist at the doctors office said I really didn't need to meet

with him for this proceedure as they do it in the office now. My

question to everyone is what should I have him remove? By reading

some of the messages, it seems to be more than the implant.

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I have been to tons of doctors and specialist regarding my health.

I'm meeting with my surgeon who implanted my saline implants next week

to talk about having them removed. After reading the information with

this group. So many of the issues have related to me!!!! The

receptionist at the doctors office said I really didn't need to meet

with him for this proceedure as they do it in the office now. My

question to everyone is what should I have him remove? By reading

some of the messages, it seems to be more than the implant.

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Hi and welcome to our group,

I did the same thing as you and went back to my implanting surgeon to

discuss the issues with my health and the association with the

implants, and about getting them out. It was a Waste of time with a

capital W!!!!

Here is what you will most likely experience. The doctor will say

that the implants are safe and that your health issues have nothing

to do with the implants. He may offer to remove them or he may try

to convince you to keep them as they often claim that you will be so

depressed with the way you look after they are gone. (That's not

always the case. With a good explanting surgeon you can look great!)

Implanting surgeons seem to get defensive about " their work " and

don't really do a good job of removal since they do not take the

health issues seriously. They will take the quickest route and that

is to just pop those babies out of you as quickly as they can. I even

went with a woman to a consultation where the doctor bragged about

how fast he could do the surgery. That is NOT what we are looking

for! Some doctors nod and seem to acquiesce to your every request

for a proper removal, but when it comes right down to it, they know

what they are going to do ahead of time, and they them make excuses

as to why they couldn't get all the scar tissue....too much risk, too

much bleeding, it wasn't that thick, etc. They may seem very nice

and cooperative, but when all is said and done, you are left

wondering if they did all they could do. You need that peace of mind

in knowing that all of the scar tissue was removed with the

implants. Peace of mind goes a long way in this recovery.

A proper removal requires doing an en bloc explant, or a total

capsulectomy at the very least. This means that the doctor makes

every effort to not only remove the implant but the scar tissue that

surrounds it as well. Drains are also important..this removes all

the fluid that is going to build up in the pocket where the implant

was.

Please research your explanting surgeon before you go through with

it. Make sure they will do a total capsulectomy. This will give you

the best chance at healing. Retained scar capsules can cause

problems, and we have files on our website that discuss what those

risks are. Keep asking questions! If you have a hard time finding

the right surgeon, please check our list of recommended surgeons.

Patty

>

> I have been to tons of doctors and specialist regarding my health.

> I'm meeting with my surgeon who implanted my saline implants next

week

> to talk about having them removed. After reading the information

with

> this group. So many of the issues have related to me!!!! The

> receptionist at the doctors office said I really didn't need to

meet

> with him for this proceedure as they do it in the office now. My

> question to everyone is what should I have him remove? By reading

> some of the messages, it seems to be more than the implant.

>

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Hi and welcome to our group,

I did the same thing as you and went back to my implanting surgeon to

discuss the issues with my health and the association with the

implants, and about getting them out. It was a Waste of time with a

capital W!!!!

Here is what you will most likely experience. The doctor will say

that the implants are safe and that your health issues have nothing

to do with the implants. He may offer to remove them or he may try

to convince you to keep them as they often claim that you will be so

depressed with the way you look after they are gone. (That's not

always the case. With a good explanting surgeon you can look great!)

Implanting surgeons seem to get defensive about " their work " and

don't really do a good job of removal since they do not take the

health issues seriously. They will take the quickest route and that

is to just pop those babies out of you as quickly as they can. I even

went with a woman to a consultation where the doctor bragged about

how fast he could do the surgery. That is NOT what we are looking

for! Some doctors nod and seem to acquiesce to your every request

for a proper removal, but when it comes right down to it, they know

what they are going to do ahead of time, and they them make excuses

as to why they couldn't get all the scar tissue....too much risk, too

much bleeding, it wasn't that thick, etc. They may seem very nice

and cooperative, but when all is said and done, you are left

wondering if they did all they could do. You need that peace of mind

in knowing that all of the scar tissue was removed with the

implants. Peace of mind goes a long way in this recovery.

A proper removal requires doing an en bloc explant, or a total

capsulectomy at the very least. This means that the doctor makes

every effort to not only remove the implant but the scar tissue that

surrounds it as well. Drains are also important..this removes all

the fluid that is going to build up in the pocket where the implant

was.

Please research your explanting surgeon before you go through with

it. Make sure they will do a total capsulectomy. This will give you

the best chance at healing. Retained scar capsules can cause

problems, and we have files on our website that discuss what those

risks are. Keep asking questions! If you have a hard time finding

the right surgeon, please check our list of recommended surgeons.

Patty

>

> I have been to tons of doctors and specialist regarding my health.

> I'm meeting with my surgeon who implanted my saline implants next

week

> to talk about having them removed. After reading the information

with

> this group. So many of the issues have related to me!!!! The

> receptionist at the doctors office said I really didn't need to

meet

> with him for this proceedure as they do it in the office now. My

> question to everyone is what should I have him remove? By reading

> some of the messages, it seems to be more than the implant.

>

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I have had my implants since 2001 which are now getting hard at the

bottom.

>

> Mom ~

> NO NO NO NO NO

> do not let him touch you ! ! !

> You need to be explanted properly

> and that cannot be done in the doctor

> office ! ! !

> How long have you had them? There is

> scar tissue capsules that grow around implants

> that HAS to come out as there will be toxic

> chemicals in them. If they stay in, you will stay ill

> God Bless YOU ~

> Dede

>

>

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

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I have had my implants since 2001 which are now getting hard at the

bottom.

>

> Mom ~

> NO NO NO NO NO

> do not let him touch you ! ! !

> You need to be explanted properly

> and that cannot be done in the doctor

> office ! ! !

> How long have you had them? There is

> scar tissue capsules that grow around implants

> that HAS to come out as there will be toxic

> chemicals in them. If they stay in, you will stay ill

> God Bless YOU ~

> Dede

>

>

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

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Thank you for all of the information!!!! I will check your list

for recommended surgeons. Hopefully there is a good one in

Columbus, Ohio. I'm very happy that I asked and am more informed.

Thank you thank you thank you!!!

> >

> > I have been to tons of doctors and specialist regarding my

health.

> > I'm meeting with my surgeon who implanted my saline implants

next

> week

> > to talk about having them removed. After reading the

information

> with

> > this group. So many of the issues have related to me!!!!

The

> > receptionist at the doctors office said I really didn't need to

> meet

> > with him for this proceedure as they do it in the office now.

My

> > question to everyone is what should I have him remove? By

reading

> > some of the messages, it seems to be more than the implant.

> >

>

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Thank you for all of the information!!!! I will check your list

for recommended surgeons. Hopefully there is a good one in

Columbus, Ohio. I'm very happy that I asked and am more informed.

Thank you thank you thank you!!!

> >

> > I have been to tons of doctors and specialist regarding my

health.

> > I'm meeting with my surgeon who implanted my saline implants

next

> week

> > to talk about having them removed. After reading the

information

> with

> > this group. So many of the issues have related to me!!!!

The

> > receptionist at the doctors office said I really didn't need to

> meet

> > with him for this proceedure as they do it in the office now.

My

> > question to everyone is what should I have him remove? By

reading

> > some of the messages, it seems to be more than the implant.

> >

>

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Welcome! There is a wonderful surgeon in Ohio. Lu-Feng is in Cleveland. She is one of the best. I drove from the west side of Michigan (7 hours) to see her. My husband and I stayed there for a week. She does full en-bloc procedures and is full knowledgable about implant illnesses. She said my explant would take 1-2 hours, it ended up taking over 3hours. She wasn't satisfied with closing me up with any infected scar tissue left behind. When i read her post surgical report it is amazing how many muscles that stuff was hiding behind. I am not sure how she could have done all that right there in the office. I have alot less stress knowing my surgeon cared that much about my health. Her staff is also very caring and sensitive to what we go through. Good luck, my dear finding someone to meet your needs.ua3mom <ua3mom@...> wrote: Thank you for all of the information!!!! I will check your list for recommended surgeons. Hopefully there is a good one in Columbus, Ohio. I'm very happy that I asked and am more informed.Thank you thank you thank you!!! > >> > I have been to tons of doctors and specialist regarding my health. > > I'm meeting with my surgeon who implanted my

saline implants next > week > > to talk about having them removed. After reading the information > with > > this group. So many of the issues have related to me!!!! The > > receptionist at the doctors office said I really didn't need to > meet > > with him for this proceedure as they do it in the office now. My > > question to everyone is what should I have him remove? By reading > > some of the messages, it seems to be more than the implant.> >>-

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Welcome! There is a wonderful surgeon in Ohio. Lu-Feng is in Cleveland. She is one of the best. I drove from the west side of Michigan (7 hours) to see her. My husband and I stayed there for a week. She does full en-bloc procedures and is full knowledgable about implant illnesses. She said my explant would take 1-2 hours, it ended up taking over 3hours. She wasn't satisfied with closing me up with any infected scar tissue left behind. When i read her post surgical report it is amazing how many muscles that stuff was hiding behind. I am not sure how she could have done all that right there in the office. I have alot less stress knowing my surgeon cared that much about my health. Her staff is also very caring and sensitive to what we go through. Good luck, my dear finding someone to meet your needs.ua3mom <ua3mom@...> wrote: Thank you for all of the information!!!! I will check your list for recommended surgeons. Hopefully there is a good one in Columbus, Ohio. I'm very happy that I asked and am more informed.Thank you thank you thank you!!! > >> > I have been to tons of doctors and specialist regarding my health. > > I'm meeting with my surgeon who implanted my

saline implants next > week > > to talk about having them removed. After reading the information > with > > this group. So many of the issues have related to me!!!! The > > receptionist at the doctors office said I really didn't need to > meet > > with him for this proceedure as they do it in the office now. My > > question to everyone is what should I have him remove? By reading > > some of the messages, it seems to be more than the implant.> >>-

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Hey B ~

Yes, I can be pretty outspoken....

especially on this subject......with the

years under my belt with implants and

multiple surgeries and all the crap I have

gone thru, I wanna save anyone I can from

continued harm. Implants are enough harm

improper explant is just plain crule ! !

Love DedeSee AOL's top rated recipes and easy ways to stay in shape for winter.

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Hey B ~

Yes, I can be pretty outspoken....

especially on this subject......with the

years under my belt with implants and

multiple surgeries and all the crap I have

gone thru, I wanna save anyone I can from

continued harm. Implants are enough harm

improper explant is just plain crule ! !

Love DedeSee AOL's top rated recipes and easy ways to stay in shape for winter.

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Hi UA3mom .

There's absolutely no way I would allow my implants to be removed this way!

Please take a deep breath, and take your time to understand what you need . . . then find a doctor who will do the job right the first time! . . .

We have a number of women who have had to have second surgeries, after being seriously ill for an extended period because their implants weren't removed properly.

The good news is that you can get much, much better . . . but it takes time and discipline! . . .

Hugs,

Rogene

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Hi UA3mom .

There's absolutely no way I would allow my implants to be removed this way!

Please take a deep breath, and take your time to understand what you need . . . then find a doctor who will do the job right the first time! . . .

We have a number of women who have had to have second surgeries, after being seriously ill for an extended period because their implants weren't removed properly.

The good news is that you can get much, much better . . . but it takes time and discipline! . . .

Hugs,

Rogene

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Hi,

Yes, removing just the implant isn't enough, and often the doctor who

put the implants in isn't always the right one to take them out.

First of all, you'll probably find that the doctor tries to talk you

out of it, tells you you'll be deformed (I had mine removed, and I'm

not deformed), insists the illness isn't due to the implants, and a

doctor who doesn't believe in implant illness often doesn't remove the

capsules or use drains. The capsules should not be left behind, and

the implants should not be drained while in your body - they should be

removed whole (en bloc). After the surgery, drains should be used -

aside from the fact that they greatly reduce swelling which means you

won't experience as much pain, they also remove fluids from the area

that might contain some of the very things that contribute to your

illness.

I used Dr. Feng in Ohio. I live in New Jersey and had to travel 6

hours to get to her, and I had to stay in a hotel for 5 days, but it

was worth it. She has alot of experience in removing implants, and my

results are great. Plus I had alot of faith in her because she

believes that some people get sick from implants, and I knew she'd

take the capsules out.

Sis

Sis

>

> I have been to tons of doctors and specialist regarding my health.

> I'm meeting with my surgeon who implanted my saline implants next

week

> to talk about having them removed. After reading the information

with

> this group. So many of the issues have related to me!!!! The

> receptionist at the doctors office said I really didn't need to meet

> with him for this proceedure as they do it in the office now. My

> question to everyone is what should I have him remove? By reading

> some of the messages, it seems to be more than the implant.

>

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Hi,

Yes, removing just the implant isn't enough, and often the doctor who

put the implants in isn't always the right one to take them out.

First of all, you'll probably find that the doctor tries to talk you

out of it, tells you you'll be deformed (I had mine removed, and I'm

not deformed), insists the illness isn't due to the implants, and a

doctor who doesn't believe in implant illness often doesn't remove the

capsules or use drains. The capsules should not be left behind, and

the implants should not be drained while in your body - they should be

removed whole (en bloc). After the surgery, drains should be used -

aside from the fact that they greatly reduce swelling which means you

won't experience as much pain, they also remove fluids from the area

that might contain some of the very things that contribute to your

illness.

I used Dr. Feng in Ohio. I live in New Jersey and had to travel 6

hours to get to her, and I had to stay in a hotel for 5 days, but it

was worth it. She has alot of experience in removing implants, and my

results are great. Plus I had alot of faith in her because she

believes that some people get sick from implants, and I knew she'd

take the capsules out.

Sis

Sis

>

> I have been to tons of doctors and specialist regarding my health.

> I'm meeting with my surgeon who implanted my saline implants next

week

> to talk about having them removed. After reading the information

with

> this group. So many of the issues have related to me!!!! The

> receptionist at the doctors office said I really didn't need to meet

> with him for this proceedure as they do it in the office now. My

> question to everyone is what should I have him remove? By reading

> some of the messages, it seems to be more than the implant.

>

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  • 1 year later...

Tina,

Thank you so much! This is exactly the information I am needing.

There are things I have seen my son do that I just thought was him

or " just boys " but now after reading information on the links you

sent, I realize it is not " just him or " just being a boy " . This

information is very valuable. I think with it I will be able to help

him progress and hopefully eliminate or minimalize problems in his

near future. Thank you again so much.

Michele

> >

> > My son was diagnosed with apraxia at about age 2. He is now 6-

> 1/2.

> > At the time of his diagnosis, I had never heard of apraxia and

> > naively thought that once he was done with his speech therapy he

> was

> > at better. Since his diagnosis, I have realized other deficits

and

> > have learned a lot about this life long issue.

> >

> > We began homeschooling this year (he is in 1st grade) and now I am

> > really noticing some things that I'm not sure whether it is

apraxia

> > or him or something else. I recently began researching and have

> > learned so much. I realize my son's deficits are minimal compared

> to

> > many stories I have read. However, I am also aware that the

> > struggles I am seeing could definately progess in the future.

> >

> > My question, how much does concentration/ability to focus and

> apraxia

> > correlate? When he was little, in speech therapy, he had a really

> > good concentration level and his attention span was long for his

> > age. Now, however, I am finding it difficult to keep him focused

> for

> > his school work.

> >

> > Also, I don't see alot of information about gross motor skills and

> > apraxia but my son has had definate gross motor deficits that he

> has

> > had to/and is having to over come. He was a late crawler, late

> > walker and even to this day gross motor activities are more

> difficult

> > for him compared to other boys his age.

> >

> > Don't get me wrong, my son is doing very well; he is doing well

> > academically and progressing in his motor skills through sports

> > acitivities but the problems I'm seeing are beginning to concern

me

> > about problems for the future. My concerns led me to have him

> > retested and he passed all the therapists tests but I realize that

> > doesn't mean he doesnt' still have some deficits or other issues.

> >

> > Any comments would be appreciated. I'm just not sure if the

> > concentration and gross motor typically are seen with apraxia or

if

> > this is possibly another issue going on. I have been searching

and

> > just havn't found much on these issues.

> >

>

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I know there is an excellent article in the archives I thought may

help you but couldn't find it. In the meantime below are two archives

you may be able to pull advice from.

(but to me it sounds like all aspects were not dealt with earlier)

RE: [ ] Re: Do you have older apraxic children?

Dear Liz,

Have you gotten a diagnosis or a complete workup on your son's cognitive,

emotional, and academic abilities? This is usually done through a

neuropsychologist. Have you looked at PACE www.processingskills.com or

read

the book by Dorinne " Sound Bodies for Sound Minds "

www.thedaviscenter.com There also was information on this messageboard

regarding a pyramid for child development.

Here is a theory (can't recall where I got this from - sorry to who ever

should be cited here) of the learning pyramid of a child's development:

Child development is a pyramid. The broad bottom layer is genetic

heritage,

which we cannot change. The next layer up is sensory development -- the

major areas being motor development, visual efficiency skills

(accommodation, convergence, etc.) and hearing, and the integration of

these

areas (visual-motor integration, visual-auditory, etc.). The layer on top

of this is cognitive skills acquisition -- skills such as attention

(ability

to sustain focus, ability to sustain focus in the presence of

distractions,

ability to multi-task), visual processing, visual short-term memory,

auditory processing, auditory short-term memory, sequencing skills,

reasoning and logic, etc. The very peak of the pyramid is academic

learning. Everything underneath affects the peak.

Children with learning disabilities typically have a brick missing

here and

there throughout the pyramid. The farther down the holes are, the more

profound their impact on the upper layers.

From a remediation standpoint, it is best to repair the layers starting at

the bottom so that you are always building on as firm a foundation as you

can establish. This means that, ideally, you first find out if there are

sensory level problems in the areas of motor skills development,

vision and

auditory processing. If so, you work on reducing these deficits first.

Therapies that address sensory level problems include sound therapies

(TLP,

Tomatis, Samonas, AIT, FastForWord), vision therapy, speech/language

therapy

and occupational therapy (including Balametrics, Bal-A-Vis-X, NeuroNet,

Interactive Metronome, biofeedback, etc.).

Any time there are sensory level deficits, there will be corresponding

lags

in cognitive skills development. Once sensory level deficits are

reduced as

much as possible or ruled out, the next logical step is to check cognitive

skills. Programs that address cognitive skills development include

Audiblox, BrainSkills, PACE, and Instrumental Enrichment (Feuerstein's

approach).

Once cognitive skills have been developed as optimally as possible,

the very

last step is academic remediation. If all of the layers below the peak

have

been repaired, academic remediation will proceed much faster than if the

holes had been left. Furthermore, with a solid foundation underneath it,

the size of the peak will be larger.

Therapies require a lot of effort on the part of the child, so it is

definitely not desirable to try to add them to an already stressful

full-day

of school. Some families pull their children out of school for the

therapy,

some families do them during summer vacation, and some families homeschool

in order to fit them in.

My son has been to many therapists and treatments including

Occupational therapist

Speech therapist

Developmental Optometrist - vision therapy, PACE and Master the Code.

Audiologist specializing in sound therapy, Fast Forword, Interactive

Metronome, mood Bell

Each professional has successfully brought him to his age appropriate

skills

in time, so we move up the pyramid closing up the holes. There have

been no

guarantees, and lots of time and patience with all involved (and money,

too).

Every child learns differently and has other issues. I can only tell you

what I did for my child.

Could it be dyspraxia?

Developmental Dyspraxia is a neurologically based disorder, a motor

planning

difficulty present from birth. It is believed to be an immaturity of parts

of the motor cortex (area of the brain) that prevents messages from being

properly transmitted to the body.

There are three (3) types of Developmental Dyspraxia. Oral Dyspraxia,

Verbal

Dyspraxia (DVD), and Motor Dyspraxia. The three variations effect

approximately 5% of the population with approximately 70% of those

effected

being boys.

Oral Dyspraxia causes children not to be able to reproduce mouth

movements.

When asked to put their tongue up to the top of their mouth a child with

oral Dyspraxia may not be able to, even though they do this unconsciously.

Children with Developmental Verbal Dyspraxia have difficulty in making

sounds or making sounds into words. For example, a child with DVD

might have

trouble producing sounds in the beginning, middle or end of words such as

'sh'. When trying to say " shop " it might come out as bop, regardless

of how

hard they try to produce the sound/word correctly..

Motor Dyspraxia inhibits an individual from moving as planned and

organizing

sensory input. Children with Motor Dyspraxia appear to be clumsy, but

don't

confuse a clumsy child with a child that has Motor Dyspraxia. While some

refer to Motor Dyspraxia as " Clumsy Child Syndrome " they Are Not the same

thing .

Dyspraxic children are usually of average or above intelligence. As

you can

imagine, having Dyspraxia and not being able to get your body to do

what you

want it to do, when you want it to do it, (i.e. talk properly or throw a

ball correctly) can be very frustrating to a child.

Developmental Coordination Disorder

An awesome manual covering: DCD, Dyspraxia, Fine Motor, Gross Motor,

Sensory Integration Dysfunction, Visual Perception, Motor Planning,

Poor Body Awareness, Speech & Language Difficulties

http://www.sess.ie/sess/Files/DCD_Practical_Tips.pdf

Interacting With Young Children Who Have Dyspraxia

My favorite line from the above link: Allow for repetition and

practice. It usually takes the disorganized child longer to learn

motor activities and the required practice can appear to be

perseverative.

http://www.tayloredmktg.com/dyspraxia/downloads/interact_dys.pdf

Story of

True story about , a globally apraxic girl who for years was

misdiagnosed/misclassified/mistreated as autistic and/or mentally

retarded due to inappropriate verbal based testing by the school.

http://www.cherab.org/news/.html

What is Limb Apraxia?

" Overall apraxia " is often referred to as " limb apraxia, " referring

to the arms and legs. Like verbal apraxia, it has a number of names.

It is also referred to as " motor planning " deficits, global

apraxia/dyspraxia, postural praxis, etc.

http://www.cherab.org/information/associated/limbapraxia.html

Motor Skills Disorder

Synonyms and related keywords: developmental motor coordination

disorder, motor clumsiness, clumsy child syndrome, developmental

dyspraxia, specific developmental disorder of motor function, ICD

10, clumsiness, dyscoordination disorder, motor dyspraxia

http://www.emedicine.com/ped/topic2640.htm

I hope these help.

Joanne

Re: Soft signs of Apraxia/Dyspraxia

Hi Becky!

Here's a list from the CHERAB site which puts the soft signs in a

parent friendly way. Because Dr. Marilyn Agin, my co author of The

Late Talker, is a neurodevelopmental pediatrician it's covered

indepth in the book -but also below is the link to the podcast and

articles from Contemporary Pediatrics.

Parent friendly signs of " soft signs " ... from a parent

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