Re: Getting There

[Guest guest]

Congratulations ! I hope the final approval and a surgery date comes

quickly. Actually you could have an MRI ONLY if the CI was removed surgically

first. My surgeon asked me at our first meeting if there was any reason I felt I

would need an MRI. Like you, I was anxious and nervous prior to my surgery on

September 13th. This is quite normal. As it turned out, the surgery was a snap(I

was sleeping) and there was no real pain afterwards. I agree that sometimes no

matter what you do, people wont make it easy for you to understand them. I made

a small sign that said I was deaf and nurses, etc. should look at me and speak

slowly. The anaestesiologist did, but the person inserting the IV certainly did

not. In my case, my sister was with me to help. Do let us know how things

progress, and try to relax. Take it from a guy who was activated almost 3 weeks

ago, it will all be worth it!

nnjl97 <nnjl97@...> wrote:Well it has been a while since I posted. Monday

I finally met with

the surgeon and he confirmed that I am a CI Implant candidate. With

that and a 1 hour talk thru he will send my application to the

hospital board who will give the final approval or rejection. Now I

have to concerns of which why are they so concerned that I understand

that I could NEVER have an MRI??? And why do I have to get a

pneumonia? shot before I have surgery. I and the doctor have decided

that I will go with Bionics.He will call next week to let me know if

the surgery will go and when. The BEST knews is that he agreed that I

could get the CI in the ear that I prefer. As if it should not work

then I will not be completely deaf as I have very limited hearing in

my other ear. Yes I am scared, nervous and very anxious to get this

happening,as at my meeting I was talked to by a few other doctors

and nurses who knew that I was there to get the final meeting to have

a CI. Of course I would not be there if I could HEAR but no one spoke

or talked to me directly so that I could read their lips or

understand them. Thankfully my husband was there to tell them and

insists that they either speak up por look at me so I could also

understand what was happening.. Scarey to think what would have

happened if he was not there.. Why is it so hard to understand that

if people cannot hear then others have to try to help them in other

ways. These are professionals here..

Well thanks for letting me sound off and will keep in touch.

PS.. I found someone thru my daughter who is a teacher also , she is

having the CI done on Friday.. Hoping hers works out as great as all

that I have read here..

Thanks

[Guest guest]

Hi:

The way I understand it is the MRI is a huge magnet that'll pull hard on

the implanted magnet of the CI and do serious damage. But I thought the new

Bionics was like Nucleus and had removable magnets(with minor surgery) if MRI's

were really necessary?

The pneumonia shot is also somehow a miningitis (sp.) shot and anytime

surgeons mess around near the brain there's an increased chance of getting that

disease.

Hal

[Guest guest]

Hi Irv,

Is this the digest list address. I have got lots of

mail today on this address.

I am going to forward you a mail, pls see if there is

music involved. Let me know on Friday.

Luv Kamala

--- Irwin Starr <irv_starr@...> wrote:

> Congratulations ! I hope the final approval and

> a surgery date comes quickly. Actually you could

> have an MRI ONLY if the CI was removed surgically

> first. My surgeon asked me at our first meeting if

> there was any reason I felt I would need an MRI.

> Like you, I was anxious and nervous prior to my

> surgery on September 13th. This is quite normal. As

> it turned out, the surgery was a snap(I was

> sleeping) and there was no real pain afterwards. I

> agree that sometimes no matter what you do, people

> wont make it easy for you to understand them. I made

> a small sign that said I was deaf and nurses, etc.

> should look at me and speak slowly. The

> anaestesiologist did, but the person inserting the

> IV certainly did not. In my case, my sister was with

> me to help. Do let us know how things progress, and

> try to relax. Take it from a guy who was activated

> almost 3 weeks ago, it will all be worth it!

>

> nnjl97 <nnjl97@...> wrote:Well it has been a

> while since I posted. Monday I finally met with

> the surgeon and he confirmed that I am a CI Implant

> candidate. With

> that and a 1 hour talk thru he will send my

> application to the

> hospital board who will give the final approval or

> rejection. Now I

> have to concerns of which why are they so concerned

> that I understand

> that I could NEVER have an MRI??? And why do I have

> to get a

> pneumonia? shot before I have surgery. I and the

> doctor have decided

> that I will go with Bionics.He will call next week

> to let me know if

> the surgery will go and when. The BEST knews is that

> he agreed that I

> could get the CI in the ear that I prefer. As if it

> should not work

> then I will not be completely deaf as I have very

> limited hearing in

> my other ear. Yes I am scared, nervous and very

> anxious to get this

> happening,as at my meeting I was talked to by a

> few other doctors

> and nurses who knew that I was there to get the

> final meeting to have

> a CI. Of course I would not be there if I could HEAR

> but no one spoke

> or talked to me directly so that I could read their

> lips or

> understand them. Thankfully my husband was there to

> tell them and

> insists that they either speak up por look at me so

> I could also

> understand what was happening.. Scarey to think

> what would have

> happened if he was not there.. Why is it so hard to

> understand that

> if people cannot hear then others have to try to

> help them in other

> ways. These are professionals here..

> Well thanks for letting me sound off and will keep

> in touch.

> PS.. I found someone thru my daughter who is a

> teacher also , she is

> having the CI done on Friday.. Hoping hers works out

> as great as all

> that I have read here..

> Thanks

>

>

>

>

>

>

>

>

>

[Guest guest]

The Med-el Pulsar implant does not require you to remove the magnet before

MRI. It is MRI safe with the magnet inside. I wish the rest of them where

that way.

_____

From: [mailto: ] On Behalf Of

halfencer@...

Sent: Wednesday, October 26, 2005 9:57 PM

Subject: Re: Getting there

Hi:

The way I understand it is the MRI is a huge magnet that'll pull hard on

the implanted magnet of the CI and do serious damage. But I thought the

new

Bionics was like Nucleus and had removable magnets(with minor surgery) if

MRI's

were really necessary?

The pneumonia shot is also somehow a miningitis (sp.) shot and anytime

surgeons mess around near the brain there's an increased chance of getting

that

disease.

Hal

[Guest guest]

Hi ,

All three of the brands now have MRI capability at a maximum of 1.5

tesla with the magnet removed. In the US - it is not FDA approved to

have an MRI over .5 without removal of the magnet. This is a very

weak strength and there are few machines in use throuought the US that

offer this low strength. In Europe, I believe you can have the MRI at

the strength of 1.5 without removal of the magnet but would still like

to have someone clarify this for me.

The MRI issue in the US is equal with the three brands done here and

that is a good thing for all CI users. CT scans are widely done with

CI users though and they can ususally provide what is necessary but

not always.

Regarding innoculations before surgery - it is recommended that all

adults getting the CI have the Pneumoccocal shot and that children

have the Meningitis shot additionally to the Pneumococcal. This is to

protect everyone and doesn't mean you would get Meningitis without it

but you should do what your center requests.

Alice

http://www..com

>

> The Med-el Pulsar implant does not require you to remove the magnet

before

> MRI. It is MRI safe with the magnet inside. I wish the rest of them

where

> that way.

>

>

[Guest guest]

Hi Beth,

In my experience, an ND has broader knowledge of diet and detox, but

my insurance covers a chiro. I was fortunate to find a great chiro

who knew a lot, but he still wasn't all I needed. Most NDs do not

take insurance. Love, PH

>

> Hi Everyone - I hope you all had a great New Year. I have been

doing

> alot of reading on here lately and just trying to get myself on

track.

> I have not posted much lately because I feel like I just confuse

myself

> more and more everytime I try to make sense of things and get

myself on

> the right path of healing. I think I finally have a somewhat clear

> idea as to where I am at least going to start and see how it

affects

> me. Thanks so much to everyone who has given me advice and

ideas......

>

> I still feel a little confused about finding the right supplements

to

> take while doing some of the detoxing. I have read that some over

the

> counter vitamins are not really all that good for you. Has anyone

> tried the multivitamin from Garden of Life? I also am considering

> seeing a naturopath or chiro. Is one better over the other?

>

> beth

>

[Guest guest]

Hi Beth,

In my experience, an ND has broader knowledge of diet and detox, but

my insurance covers a chiro. I was fortunate to find a great chiro

who knew a lot, but he still wasn't all I needed. Most NDs do not

take insurance. Love, PH

>

> Hi Everyone - I hope you all had a great New Year. I have been

doing

> alot of reading on here lately and just trying to get myself on

track.

> I have not posted much lately because I feel like I just confuse

myself

> more and more everytime I try to make sense of things and get

myself on

> the right path of healing. I think I finally have a somewhat clear

> idea as to where I am at least going to start and see how it

affects

> me. Thanks so much to everyone who has given me advice and

ideas......

>

> I still feel a little confused about finding the right supplements

to

> take while doing some of the detoxing. I have read that some over

the

> counter vitamins are not really all that good for you. Has anyone

> tried the multivitamin from Garden of Life? I also am considering

> seeing a naturopath or chiro. Is one better over the other?

>

> beth

>

[Guest guest]

Beth,

It is very confusing! . . . There are so many things that MAY help . . .

But the basics come first . . i.e. diet, rest, exercise, and stress management - and getting control of fungal issues . . . .Once you get those going your way, other things will be easier to get a handle on . . .

I think Garden of Life products are great . . . I'm not happy that some have Silicone Dioxide in them though . . . And, there are a lot of other good products available. . . I don't think you'll find them at WalMart though! . . .

One of our ladies was talking about Standard Process Products the other day . . . They sound terrific! They are completely natural and organic!

Hugs,

Rogene

[Guest guest]

Beth,

It is very confusing! . . . There are so many things that MAY help . . .

But the basics come first . . i.e. diet, rest, exercise, and stress management - and getting control of fungal issues . . . .Once you get those going your way, other things will be easier to get a handle on . . .

I think Garden of Life products are great . . . I'm not happy that some have Silicone Dioxide in them though . . . And, there are a lot of other good products available. . . I don't think you'll find them at WalMart though! . . .

One of our ladies was talking about Standard Process Products the other day . . . They sound terrific! They are completely natural and organic!

Hugs,

Rogene