GROUP

[Guest guest]

Interesting timing. For awhile now I have been thinking of the list as it was.

I joined around 1996, I believe.

I often wonder about some of the listers. a P. posts once in a while, Ute

just recently and the Fairy Lady. Geoff is quiet. Joe G. and Janet in Tulsa

apparently are managing. I wonder about C., Liz G., Bev in Ontario, Ray

B., Dr. Chiu. No doubt I have missed some folks. We were a community.

Don't even hear about Dr. Franco either.

Pray the ry

----------

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Checked by AVG Free Edition.

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[Guest guest]

I one from way back and was very active with posoting. Probaly seven years

or so. Unfortunately the AP was not for me and after five years I sustained

great joint damage. I only email privately since my experiences are not all

positive and some messages need to be handled only with the person. I still

read the posts to see how the " old timers " on the AP are doing, and still

email several at their personal addresses.

I wrote some of the ex-members from an old list that I had and asked it they

still were on AP and how they were doing, and never heard a word.

rheumatic re: group

>

>

> Interesting timing. For awhile now I have been thinking of the list as it

was. I joined around 1996, I believe.

> I often wonder about some of the listers. a P. posts once in a while,

Ute just recently and the Fairy Lady. Geoff is quiet. Joe G. and Janet in

Tulsa apparently are managing. I wonder about C., Liz G., Bev in

Ontario, Ray B., Dr. Chiu. No doubt I have missed some folks. We were a

community.

> Don't even hear about Dr. Franco either.

>

>

> Pray the ry

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.8.3/360 - Release Date: 6/9/2006

>

>

>

[Guest guest]

Hi ;

I joined in 1998,have Scleroderma,doc said I would die within the

year.HA! I am doing just fine thank you,about 98% normal.Had to get off

the MTX and could not do it until I got the Celiac and vit.D controled

then the AP kicked in just fine. Lynne G.

wrote:

> I one from way back and was very active with posoting. Probaly seven years

> or so. Unfortunately the AP was not for me and after five years I

> sustained

> great joint damage. I only email privately since my experiences are

> not all

> positive and some messages need to be handled only with the person. I

> still

> read the posts to see how the " old timers " on the AP are doing, and still

> email several at their personal addresses.

>

> I wrote some of the ex-members from an old list that I had and asked

> it they

> still were on AP and how they were doing, and never heard a word.

>

>

>

> rheumatic re: group

>

> >

> >

> > Interesting timing. For awhile now I have been thinking of the list

> as it

> was. I joined around 1996, I believe.

> > I often wonder about some of the listers. a P. posts once in a

> while,

> Ute just recently and the Fairy Lady. Geoff is quiet. Joe G. and Janet in

> Tulsa apparently are managing. I wonder about C., Liz G., Bev in

> Ontario, Ray B., Dr. Chiu. No doubt I have missed some folks. We were a

> community.

> > Don't even hear about Dr. Franco either.

> >

> >

> > Pray the ry

> > ----------

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.1.394 / Virus Database: 268.8.3/360 - Release Date: 6/9/2006

> >

> >

> >

[Guest guest]

Congrats! I sure wish that my aunt had been able to have the same option of

being able to use the AP in the 70's. Oh believe me, I know it works for many.

I went to one of the best docs in the country for the AP for several years, but

for me it didn't stop the damage. Good to see that you are still participating

in the group!

rheumatic re: group

>

> >

> >

> > Interesting timing. For awhile now I have been thinking of the list

> as it

> was. I joined around 1996, I believe.

> > I often wonder about some of the listers. a P. posts once in a

> while,

> Ute just recently and the Fairy Lady. Geoff is quiet. Joe G. and Janet in

> Tulsa apparently are managing. I wonder about C., Liz G., Bev in

> Ontario, Ray B., Dr. Chiu. No doubt I have missed some folks. We were a

> community.

> > Don't even hear about Dr. Franco either.

> >

> >

> > Pray the ry

> > ----------

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.1.394 / Virus Database: 268.8.3/360 - Release Date: 6/9/2006

> >

> >

> >

[Guest guest]

Dave, this site is devoted to the antibiotic protocol. I would highly

suggest that you peruse the entire site and look at the established protocol

there. Then, read the stories of the people there. I am WAY behind on

updating

my story which is there as I am one of the SD patients whose tests are now

negative and I feel great. It has been a long and steady journey. READ the

suggested diets and take the seriously. Read and follow suggestions for

supplements. and first and foremost, go to amazon.com or one of the bigger

bookstores and order two books and read them thoroughly. Both books are by Dr.

McPearson Brown and Henry Scammel. The first is THE NEW RHEUMATIC BREAKTHROUGH

and the second is SCLERODERMA: THE TREATMENT THAT CAN SAVE YOUR LIFE. I read

and carried these books around like bibles as they came me direction and hope.

Best of luck to you.

[Guest guest]

I STAND CORRECTED!!!! YOU ARE RIGHT! IT IS SCLERODERMA: THE PROVEN

THERAPY THAT CAN SAVE YOUR LIFE. It is a small book and I still recommend both

but for the SDers, it gives a personal approach to a deadly disease.

[Guest guest]

The Fairy Lady (dermatomyositis) made a complete recovery after changing her

diet and incorporating detoxing as part of her therapy. Upon remission she

studied to be a nutritionist and now has her own shop.

Ethel

rheumatic re: group

>

>

> Interesting timing. For awhile now I have been thinking of the list as it

> was. I joined around 1996, I believe.

> I often wonder about some of the listers. a P. posts once in a while,

> Ute just recently and the Fairy Lady. Geoff is quiet. Joe G. and Janet

> in Tulsa apparently are managing. I wonder about C., Liz G., Bev in

> Ontario, Ray B., Dr. Chiu. No doubt I have missed some folks. We were a

> community.

> Don't even hear about Dr. Franco either.

>

>

> Pray the ry

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.8.3/360 - Release Date: 6/9/2006

>

>

>

[Guest guest]

Hi Ethel. Can you tell me what is a good detox method. Thanks.

Ethel Snooks <emsnooks@...> wrote: The

Fairy Lady (dermatomyositis) made a complete recovery after changing her

diet and incorporating detoxing as part of her therapy. Upon remission she

studied to be a nutritionist and now has her own shop.

Ethel

rheumatic re: group

>

>

> Interesting timing. For awhile now I have been thinking of the list as it

> was. I joined around 1996, I believe.

> I often wonder about some of the listers. a P. posts once in a while,

> Ute just recently and the Fairy Lady. Geoff is quiet. Joe G. and Janet

> in Tulsa apparently are managing. I wonder about C., Liz G., Bev in

> Ontario, Ray B., Dr. Chiu. No doubt I have missed some folks. We were a

> community.

> Don't even hear about Dr. Franco either.

>

>

> Pray the ry

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.8.3/360 - Release Date: 6/9/2006

>

>

>

[Guest guest]

Treatment Than Can Save Your Life, but they do have one by Henry Scammel titled

The Proven Therapy That Can Save Your Life. Is this the book that you have. I

would very much like to buy it, but would like the one that you are talking

about. Thanks ever so much.

Sltfain@... wrote: Dave, this site is devoted

to the antibiotic protocol. I would highly

suggest that you peruse the entire site and look at the established protocol

there. Then, read the stories of the people there. I am WAY behind on

updating

my story which is there as I am one of the SD patients whose tests are now

negative and I feel great. It has been a long and steady journey. READ the

suggested diets and take the seriously. Read and follow suggestions for

supplements. and first and foremost, go to amazon.com or one of the bigger

bookstores and order two books and read them thoroughly. Both books are by

Dr.

McPearson Brown and Henry Scammel. The first is THE NEW RHEUMATIC BREAKTHROUGH

and the second is SCLERODERMA: THE TREATMENT THAT CAN SAVE YOUR LIFE. I read

and carried these books around like bibles as they came me direction and hope.

Best of luck to you.

[Guest guest]

From: " Rizun " <eorizun@...>

Sent: Tuesday, June 13, 2006 10:30 AM

Hi Ethel. Can you tell me what is a good detox method.

That depends on the area you are detoxing because each area requires something

different. It is thought best to start with a good bowel cleanse - one that

will remove the impacted fecal matter - and repeat it again later. Colonics

would be an excellent way to detox the bowel. You can ask at any good health

food store and they should be able to tell you who offers this service in your

area. I remember an RA patient in Texas telling me how many pounds she lost

doing 5 days of colonics. She drank a lot of organic apple juice before and

during the therapy. After the series was completed, a good probiotic was

implanted to replace any good bacteria lost in the procedure. Other colon

therapists offer herbs to clean the bowel. www.blessedherbs.com has a kit for

several hundred dollars.

Remember, 70% of immune function takes place in the gut. When it's out of

balance - watch out!

The well known herbalist, Dr. Schulze has a good oral bowel cleanse

called Intestinal I and Intestinal II. It's reasonable and effective. I go

through cleanses at least every six months and sometimes use this one.

www.herbdoc.com. You need to drink a LOT of water with this or any other such

cleanse.

The doctors I know who prescribe cleanses do a parasite cleanse before doing a

liver/gallbladder cleanse.

I've used Dr. Hulda 's parasite cleanse

(http://www..net/info/p_chart.htm) and also Premier Research Labs'

Parastat and Paracidin starting with one capsule three times a day and building

up to three capsules three tmes a day. I know these give results so I stick

with them.

There are a number of good liver/gallbladder cleanses on the net but the one I

like best was given to me by a doctor who battled breast cancer metastcized to

the bone, followed by what she diagnosed as MCTD. This was one sick doctor

when I met her. Her arms and legs were hard and bronze colored. I introduced

her to the AP protocol and she was juicing and detoxing. She also did DMSO IVs

after learning about them from Dr. s at Oregon State University.

I will post this liver cleanse separately. You need to repeat this cleanse

until you clean the area out. You will be amazed at what you see and how much

of it is there.

You also need to consider being tested for heavy metal toxicity. www.gsdl.com.

Intravenous chelation is sometimes used and then there is another product giving

good results called -

PCA-Rx by Maxam Neutraceutics - www.maxamlabs.com

It is said to act as a chelator of heavy metals, cardio and vascular plaque,

removes toxins and help rid body of mycoplasmas.

Dosage is 1 to 8 oral sprays - mist (trans-mucosal) 1 or more times daily

Another good product winning good reviews is NDF and NDF Plus from BioRay, Inc.

www.bioray2000.com

Dr. recommends the following:

Blend in blender - 1 clove garlic

½ cup almonds, cashews or other nuts

1 cup packed fresh cilantro leaves

2 tablespoons fresh lemon juice

6 tablespoons olive oil

Two teaspoons a day for two to three weeks. Freezes well so make several

batches.

(Liquid 3 to 1 ratio of oil to juice. Add touch of hot water to scrape blender.

Check for neurotoxins often present in chronic disease.

www.chronicneurotoxins.com. There is a visual test on this site you can take

for a nominal fee.

Several years ago a doctor handed me a brochure about a place (I think) called

Blueberry Hill. He said one of his patients had gone there and in 7 days (!)

had made a remarkable recovery from a debilitating illness. (I've forgotten the

diagnosis. Blueberry Hill was a home surrounded by landscaped acreage - a very

quiet, serene place. You were not allowed to talk on the phone, see friends or

family, or do any work.) The doctor decided to send another patient, and then

another, and the same thing occurred. He told me he was so impressed he was

going to take a week off and go himself. What was the therapy? Detoxing the

body and enhancing the immune system through diet and supplements.

My daughter, a nurse, tells me back in the early 70s, one of the first things

they did when a patient was put in the hospital was to give them an enema. She

said you would be surprised at how many patients recovered from their illness

after the enema, but this practice was stopped years ago.

Please let me know if something isn't clear or you have questions.

Ethel

Ethel

Ethel Snooks <emsnooks@...> wrote: The

Fairy Lady (dermatomyositis) made a complete recovery after changing her

diet and incorporating detoxing as part of her therapy. Upon remission she

studied to be a nutritionist and now has her own shop.

Ethel

rheumatic re: group

>

>

> Interesting timing. For awhile now I have been thinking of the list as it

> was. I joined around 1996, I believe.

> I often wonder about some of the listers. a P. posts once in a while,

> Ute just recently and the Fairy Lady. Geoff is quiet. Joe G. and Janet

> in Tulsa apparently are managing. I wonder about C., Liz G., Bev in

> Ontario, Ray B., Dr. Chiu. No doubt I have missed some folks. We were a

> community.

> Don't even hear about Dr. Franco either.

>

>

> Pray the ry

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.8.3/360 - Release Date: 6/9/2006

>

>

>

[Guest guest]

I see some of the people posting on the two other sites I know of. The

biggest problem is that when we get our lives back and feeling great again, it

is

easy to forget about the sites. I am as guilty as others. I post mostly on

this site as it comes to my email. Others I only visit occasionally now. I

feel a bit guilty but am so busy with doing all the things I never thought I

would do again. Just need more hours in the day. Martha

[Guest guest]

....Although I was not on your list, I am doing great. Five years on

AP and no pain or other drugs. Came out of remission once and went back up

to a higher dose. Went right back in remission and then back on a maintanance

dose. I am grateful that the Minocin continues to work and did once get an

email from an 85 year old man who had been on of Dr Browns patients. It was

still working for him after 40 years!!! Please God, let me be like him!!

Martha

[Guest guest]

>I see some of the people posting on the two other sites I know of.

what exactly are the other two sites?

[Guest guest]

The Roadback Foundation has a site...plug it into your browser. There is

also a site _http://www.rheumaticsupport.net/_

(http://www.rheumaticsupport.net/) which is informative. I browse both of

them occasionally but the

email on this site is easy to keep up with and I tend to see anything new that

someone sends. On the other hand all the information is helpful, and when

one is struggling the more helping hands the better.

If one candle brightens the darkness, think how much better three will

be. Martha

[Guest guest]

Gwen, I would quickly go back to format and request the Digest version

instead of the individual emails. Some of the new ones here need the same

amount

of attention that we " oldies " got way back when. Life will be simpler for

you, then!

[Guest guest]

thanks , . Not sure what you mean " go back to format " . How do I do that?

Gwen

Re: rheumatic group

Gwen, I would quickly go back to format and request the Digest version

instead of the individual emails. Some of the new ones here need the same

amount

of attention that we " oldies " got way back when. Life will be simpler for

you, then!

[Guest guest]

GWEN, THIS IS A SIGHT FOR OTHERS TO GET INFORMATION ON THERE

DISEASES, IF YOURS IS UNDER CONTROL OR YOU ARE MORE INFORMED? LOG OFF FOR

AWHILE. OTHER NEW MEMBERS ARE TRYING TO HELP THEMSELVES.

GOD-BLESS ROSE (OLD MEMBER BUT STILL

TRYING TO UNDERSTAND).

rheumatic group

Just got back from a stint in hospital.What is with all the mail in the

group all of a sudden? My mail box was full , just in the last few days.

Not sure what to do about this---I really don't want to discontinue my

involvement but I can't have this happen all the time.

Gwen (old member)

[Guest guest]

Martha

Do you have R.A.? I am 60, and have gone into remission after many years of

pain. I did standard protocal for approx. 10 years and then approx 5 years

of I.V. Clindamycin. Did you ever get deformities or joint replacements? I

have had many. I do fear the return of the R.A.

Right now, I take prednizone (4 mg.), celebrex 2x daily, ranitidine, and

pain drugs as needed.

Thanks,

[Guest guest]

The IV'S are paid for if you have medicare.

[Guest guest]

Dear ,

Will you please elaborate on the 5 years of Clindamicin IVs? How many times a

week did you go, etc. . . I have been doing the Clindamicin IVs for several

months now and I had no idea it could take years (it's $75/IV)!

kjdel1977@... wrote:

Martha

Do you have R.A.? I am 60, and have gone into remission after many years of

pain. I did standard protocal for approx. 10 years and then approx 5 years

of I.V. Clindamycin. Did you ever get deformities or joint replacements? I

have had many. I do fear the return of the R.A.

Right now, I take prednizone (4 mg.), celebrex 2x daily, ranitidine, and

pain drugs as needed.

Thanks,

[Guest guest]

I did the IV's for 6 or 7 years. At first I did them once a week for 10

weeks and then a 5 day stretch of daily then back to the 10 weeks. I did

that for a year. Later I did them 4 day stretches once a month and then the

last year only a 4 day stretch when I noticed symptoms. I administered my

own since I am a nurse so it was not as expensive as getting someone to do

them. It was the best thing I did.

cooky

By the way if you have not read all of our biographys go to

rheumatic.org/medhist.htm

Re: rheumatic re: group

Dear ,

Will you please elaborate on the 5 years of Clindamicin IVs? How many

times a week did you go, etc. . . I have been doing the Clindamicin IVs for

several months now and I had no idea it could take years (it's $75/IV)!

kjdel1977@... wrote:

Martha

Do you have R.A.? I am 60, and have gone into remission after many years of

pain. I did standard protocal for approx. 10 years and then approx 5 years

of I.V. Clindamycin. Did you ever get deformities or joint replacements? I

have had many. I do fear the return of the R.A.

Right now, I take prednizone (4 mg.), celebrex 2x daily, ranitidine, and

pain drugs as needed.

Thanks,

[Guest guest]

Oh, I don't have medicare. I am only 28 years old.

Tooshooze@... wrote: The IV'S are paid for if you have medicare.

[Guest guest]

Could you tell me where you doctor at? I would sure be glad to have

medicare pay for the IV's

SKip

Re: rheumatic re: group

The IV'S are paid for if you have medicare.

[Guest guest]

Hi Gwen! Geoff here.

You wrote:

> Just got back from a stint in hospital.What is with all the mail in the

> group all of a sudden? My mail box was full , just in the last few days.

Rather than doing as Craig suggests, you might change your settings at

Groups to get the digest rather than individual emails. That condenses the

volume considerably.

Geoff

Acts 2:39

[Guest guest]

www.rheumaticsupport.net is one. I don;t know the URL for the rfb.

Re: rheumatic re: group

>I see some of the people posting on the two other sites I know of.

what exactly are the other two sites?