Re: Sue, very suspicious

January 9, 2008

Nan,

I'm very excited for you! . . . That you are going to the environmental center, and that it's close to you!

Of course, I'm anxious to know everything you learn there!

Maybe I misunderstood your remark about Candida . . . There are a lot of symptoms that can result from Candida . . . but Candida itself isn't a disease (as I see it). The problem with Candida is that it's symptoms mimic so many diseases, and it prevent the body from getting the nutrients it needs to heal . . . Only after one gets it under control can one begin to understand what is actually going on.

I don't think it was you . . . but the other day someone mentioned they would be so glad to get through the diet so they could go back to their regular foods . . . I wish I could be that optimistic. . . But I'm afraid that we (women who have had implants and resulting fungal issues) will never be able to eat casually again. . . Yes, we can put junk food in our mouths . . . but if done often enough, we'll end up paying a price . . .i.e. start feeling bad again.

I've been fighting this stuff for years . . . I can't begin to say how many times I thought I could get by with "just a little", only to find out that my body wasn't fooled . . . and I had to start all over again!

Just another part of the deal the surgeons didn't tell us about when we got breast implants!

Hugs,

Rogene

January 9, 2008

Nan,

I've mentioned this to your before--did you forget??? When your face

is bronzed, this is a CLEAR SIGNAL that your adrenals are maxed

out!!! No question there, girlfriend!!!!!!! If anyone is taking

bets, I'm placing money on your endocrine system Nan.

You have hormonal issues big time and the adrenals, the sex hormones

and the thyroid are all intertwined, so I hope for your sake that

your doctor will start taking a look at your hormone levels and the

endocrine system. You've been on this crazy medical merry go round

from hell, and you need some answers, but these doctors have to start

looking in the right places....

Patty

>

> that the two times I was given oxygen I felt better, had little

> pain, hmm. There is something too the lack of oxygen, and it makes

> sense that the muscles would react to lack of oxygen. All the drs

> are wasting my time and money. I had a 2,000 MRI today! I know

> what you mean, I have had periods where I am normal, but after a

> big attack it takes me months to recover. Do you have the thing

> where you can't walk normally, like really slow. I can not go out

> much when this happens because people stare. I had one lady ask me

> what was wrong with me. Last week I went to the mall and noticed I

> was walking normal like everyone else, so I must be in the " good "

> place now. I have lately been looking at metabolic problems, which

> are caused by toxins in some. Last year I had several attacks

where

> my face was totally bronzed, people kept saying how healthy I

looked

> I was glowing. I felt like death. I never did figure that out. I

> seem to be going into a better period, but it seems these last a

> month or so and then I have another attack. This last episode has

> gone on since August, so I am more than ready for it to end. The

> neck pain gets unbearable. I just don't get it, and hoping this

> environmental doctor will help. The neurologist was so typical of

> my experience with doctors, uh huh, well the only thing this could

> be is MS. You are kidding, you mean out of the 1.000s of diseases

> I could only have this one. The doctors seems to 1/2 listen to me,

> the rheumatologist did not even ask me a real question, she read

> them off a computer screen and said it is fibromyalgia, but

> the " attacks " are not fibromyalgia, she said I was having catatonic

> depression. It almost becomes funny how stupid some of these

> experiences are. I will let you know what this environmental dr

> says, I go next week. I don't want to discourage anyone, but stuff

> like the candida just does not come close to the kind of attacks I

> am talking about. This is some kind of major problem my body is

> going through, and some of it is out of my control. My friends dad

> has myalgic encephalopathy, with the drs here don't believe in, and

> he has said similar things. They really can't get a grip on how it

> comes on and you can get into depression thinking you caused the

> episodes. It does help to hear your experience, I feel like a

> freak. This environmental center has people coming from all over

> the world, and it right by my house, maybe? Write anytime, I try

to

> read but my kids have just been all consuming. Nan

>

January 9, 2008

Hi Nan,

No I don’t get the walking thing, to

be honest when I get one of my WEIRD ATTACKS I COULDN’T WALK

ANYWHERE not even around the room.

I have never had the bronze thing either,

although everyone tells me how well I look usually when I am feeling at my

worst

When I feel ok I often get told I look

tired??

I hope the environmental Dr helps you, any

tips would be great.

Keep in touch let us know how its going.

Love Sue

From:

[mailto: ] On Behalf Of nnnttwilliams

Sent: 09 January 2008 01:24

Subject: Sue, very

suspicious

that the two times I was given oxygen I felt better,

had little

pain, hmm. There is something too the lack of oxygen, and it makes

sense that the muscles would react to lack of oxygen. All the drs

are wasting my time and money. I had a 2,000 MRI today! I know

what you mean, I have had periods where I am normal, but after a

big attack it takes me months to recover. Do you have the thing

where you can't walk normally, like really slow. I can not go out

much when this happens because people stare. I had one lady ask me

what was wrong with me. Last week I went to the mall and noticed I

was walking normal like everyone else, so I must be in the " good "

place now. I have lately been looking at metabolic problems, which

are caused by toxins in some. Last year I had several attacks where

my face was totally bronzed, people kept saying how healthy I looked

I was glowing. I felt like death. I never did figure that out. I

seem to be going into a better period, but it seems these last a

month or so and then I have another attack. This last episode has

gone on since August, so I am more than ready for it to end. The

neck pain gets unbearable. I just don't get it, and hoping this

environmental doctor will help. The neurologist was so typical of

my experience with doctors, uh huh, well the only thing this could

be is MS. You are kidding, you mean out of the 1.000s of diseases

I could only have this one. The doctors seems to 1/2 listen to me,

the rheumatologist did not even ask me a real question, she read

them off a computer screen and said it is fibromyalgia, but

the " attacks " are not fibromyalgia, she said I was having catatonic

depression. It almost becomes funny how stupid some of these

experiences are. I will let you know what this environmental dr

says, I go next week. I don't want to discourage anyone, but stuff

like the candida just does not come close to the kind of attacks I

am talking about. This is some kind of major problem my body is

going through, and some of it is out of my control. My friends dad

has myalgic encephalopathy, with the drs here don't believe in, and

he has said similar things. They really can't get a grip on how it

comes on and you can get into depression thinking you caused the

episodes. It does help to hear your experience, I feel like a

freak. This environmental center has people coming from all over

the world, and it right by my house, maybe? Write anytime, I try to

read but my kids have just been all consuming. Nan

January 10, 2008

nan, I read your post to my hubby, he said that you sound just like me. I know what you are going through... It is very frustrating. nnnttwilliams <nnnttwilliams@...> wrote: that the two times I was given oxygen I felt better, had little pain, hmm. There is something too the lack of oxygen, and it makes sense that the muscles would react to lack of oxygen. All the drs are wasting my time and money. I had a 2,000 MRI

today! I know what you mean, I have had periods where I am normal, but after a big attack it takes me months to recover. Do you have the thing where you can't walk normally, like really slow. I can not go out much when this happens because people stare. I had one lady ask me what was wrong with me. Last week I went to the mall and noticed I was walking normal like everyone else, so I must be in the "good" place now. I have lately been looking at metabolic problems, which are caused by toxins in some. Last year I had several attacks where my face was totally bronzed, people kept saying how healthy I looked I was glowing. I felt like death. I never did figure that out. I seem to be going into a better period, but it seems these last a month or so and then I have another attack. This last episode has gone on since August, so I am more than ready for it to end. The neck pain gets unbearable. I just don't get it, and

hoping this environmental doctor will help. The neurologist was so typical of my experience with doctors, uh huh, well the only thing this could be is MS. You are kidding, you mean out of the 1.000s of diseases I could only have this one. The doctors seems to 1/2 listen to me, the rheumatologist did not even ask me a real question, she read them off a computer screen and said it is fibromyalgia, but the "attacks" are not fibromyalgia, she said I was having catatonic depression. It almost becomes funny how stupid some of these experiences are. I will let you know what this environmental dr says, I go next week. I don't want to discourage anyone, but stuff like the candida just does not come close to the kind of attacks I am talking about. This is some kind of major problem my body is going through, and some of it is out of my control. My friends dad has myalgic encephalopathy, with the drs here don't believe in, and

he has said similar things. They really can't get a grip on how it comes on and you can get into depression thinking you caused the episodes. It does help to hear your experience, I feel like a freak. This environmental center has people coming from all over the world, and it right by my house, maybe? Write anytime, I try to read but my kids have just been all consuming. Nan-

Never miss a thing. Make your homepage.

January 10, 2008

Cathie, when I was on Prednisone, everything seemed so much better. My doctors took me off because of the blood thinners. Like you, I did better on Prednisone; however, it was destroying my bones. We found this out when I broke my ankle in four places, because the surgeon told me that my bones were very soft. Then, I had another PE, and they started me on the blood thinners, but I remember them giving me 50 mg of Prednisone at that time. Why would they do that at this time, if these two drugs are not compatible? Could someone comment on this please?

Honey, you could be right about this, because I have many women here who just cannot stop taking Prednisone. My rheumatologist wanted to put me on Prednisone to help with the pain in my leg, and then he remembered that I was on blood thinners...another good question for the doctors on Saturday. When I was on Decadron, I too developed 's disease. This drug caused me to have big humps on my shoulders, and on the back of my neck...it was awful! My doctors keep telling me that medicine is a mystery. They are experimenting on us...me thinks.

Sending love always....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

Re: Re: Sue, very suspicious

In a message dated 1/10/08 10:36:35 AM, devanscompusmart (DOT) ab.ca writes:

Patty, my cortisol levels were so very low, and the doctors did put me on progesterone injections, which made me worse. I was allergic to them, and they had to stop using it....wonders me! Every time that I have any injection, it causes symptoms. We think that it is because of the silicone coating on the needles. I plan on asking the doctors who we interview about this on Saturday. They come from different parts of the World, and they might know something about this. These doctors were practising medicine in their country, but they must requalify before they can practise medicine in Canada.These low cortisol levels may well be one reason why so many implanted women who are put on Prednisone or other steroids, are unable to get off of them when they try to cut their dose. One Rheumatologist I saw told me that he was unable to get any of the implant women he had seen off of Prednisone... I can well identify with that... Once I am at low levels, all hell breaks loose when I cut my dose, even half of a mg...My (previously implanted) friend has now developed 's Disease now and must be on cortisol (Cortef) for the rest of her life. I don't know if autoantibodies are what are causing so many problems with the adrenals, thyroids etc., but this is what showed up in my thyroid testing...Cathie**************Start the year off right. Easy ways to stay in shape.http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

January 10, 2008

Cathie, when I was on Prednisone, everything seemed so much better. My doctors took me off because of the blood thinners. Like you, I did better on Prednisone; however, it was destroying my bones. We found this out when I broke my ankle in four places, because the surgeon told me that my bones were very soft. Then, I had another PE, and they started me on the blood thinners, but I remember them giving me 50 mg of Prednisone at that time. Why would they do that at this time, if these two drugs are not compatible? Could someone comment on this please?

Honey, you could be right about this, because I have many women here who just cannot stop taking Prednisone. My rheumatologist wanted to put me on Prednisone to help with the pain in my leg, and then he remembered that I was on blood thinners...another good question for the doctors on Saturday. When I was on Decadron, I too developed 's disease. This drug caused me to have big humps on my shoulders, and on the back of my neck...it was awful! My doctors keep telling me that medicine is a mystery. They are experimenting on us...me thinks.

Sending love always....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

Re: Re: Sue, very suspicious

In a message dated 1/10/08 10:36:35 AM, devanscompusmart (DOT) ab.ca writes:

Patty, my cortisol levels were so very low, and the doctors did put me on progesterone injections, which made me worse. I was allergic to them, and they had to stop using it....wonders me! Every time that I have any injection, it causes symptoms. We think that it is because of the silicone coating on the needles. I plan on asking the doctors who we interview about this on Saturday. They come from different parts of the World, and they might know something about this. These doctors were practising medicine in their country, but they must requalify before they can practise medicine in Canada.These low cortisol levels may well be one reason why so many implanted women who are put on Prednisone or other steroids, are unable to get off of them when they try to cut their dose. One Rheumatologist I saw told me that he was unable to get any of the implant women he had seen off of Prednisone... I can well identify with that... Once I am at low levels, all hell breaks loose when I cut my dose, even half of a mg...My (previously implanted) friend has now developed 's Disease now and must be on cortisol (Cortef) for the rest of her life. I don't know if autoantibodies are what are causing so many problems with the adrenals, thyroids etc., but this is what showed up in my thyroid testing...Cathie**************Start the year off right. Easy ways to stay in shape.http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

January 10, 2008

Antibodies to the adrenal glands could very well be a problem for

some women, but it is so rarely tested! In fact, I would venture to

say that almost NO women are tested for it that have had implant

problems. I know I have never been. It is hard enough for us to

get thyroid antibodies tested, let alone adrenals.... How many of you

women have had to ASK for a thyroid antibody test, rather than your

doctor just requesting it himself?

I just really believe that undiagnosed adrenal issues are one of the

reasons there is " no association to disease " found in implant

studies. If they do not ask the right questions, they will never get

the right answers!!!!! Idiots!!!

Here is one article that discusses asymptomatic adrenal insufficiency

with autoimmune components. What is scary is that this is

potentially fatal.

http://humrep.oxfordjournals.org/cgi/content/abstract/17/8/2096

Patty

>

> In a message dated 1/10/08 10:36:35 AM, devans@... writes:

>

> > Patty, my cortisol levels were so very low, and the doctors did

put me on

> > progesterone injections, which made me worse. I was allergic

to them, and they

> > had to stop using it....wonders me! Every time that I have any

injection, it

> > causes symptoms. We think that it is because of the silicone

coating on the

> > needles. I plan on asking the doctors who we interview about this

on

> > Saturday. They come from different parts of the World, and they

might know something

> > about this. These doctors were practising medicine in their

country, but they

> > must requalify before they can practise medicine in Canada.

> >

>

> These low cortisol levels may well be one reason why so many

implanted women

> who are put on Prednisone or other steroids, are unable to get off

of them

> when they try to cut their dose. One Rheumatologist I saw told me

that he was

> unable to get any of the implant women he had seen off of

Prednisone... I can

> well identify with that... Once I am at low levels, all hell breaks

loose when I

> cut my dose, even half of a mg...

>

> My (previously implanted) friend has now developed 's

Disease now and

> must be on cortisol (Cortef) for the rest of her life. I don't know

if

> autoantibodies are what are causing so many problems with the

adrenals, thyroids

> etc., but this is what showed up in my thyroid testing...

>

> Cathie

>

> **************

> Start the year off right. Easy ways to stay in shape.

>

> http://body.aol.com/fitness/winter-exercise?

NCID=aolcmp00300000002489

>

January 10, 2008

Antibodies to the adrenal glands could very well be a problem for

some women, but it is so rarely tested! In fact, I would venture to

say that almost NO women are tested for it that have had implant

problems. I know I have never been. It is hard enough for us to

get thyroid antibodies tested, let alone adrenals.... How many of you

women have had to ASK for a thyroid antibody test, rather than your

doctor just requesting it himself?

I just really believe that undiagnosed adrenal issues are one of the

reasons there is " no association to disease " found in implant

studies. If they do not ask the right questions, they will never get

the right answers!!!!! Idiots!!!

Here is one article that discusses asymptomatic adrenal insufficiency

with autoimmune components. What is scary is that this is

potentially fatal.

http://humrep.oxfordjournals.org/cgi/content/abstract/17/8/2096

Patty

>

> In a message dated 1/10/08 10:36:35 AM, devans@... writes:

>

> > Patty, my cortisol levels were so very low, and the doctors did

put me on

> > progesterone injections, which made me worse. I was allergic

to them, and they

> > had to stop using it....wonders me! Every time that I have any

injection, it

> > causes symptoms. We think that it is because of the silicone

coating on the

> > needles. I plan on asking the doctors who we interview about this

on

> > Saturday. They come from different parts of the World, and they

might know something

> > about this. These doctors were practising medicine in their

country, but they

> > must requalify before they can practise medicine in Canada.

> >

>

> These low cortisol levels may well be one reason why so many

implanted women

> who are put on Prednisone or other steroids, are unable to get off

of them

> when they try to cut their dose. One Rheumatologist I saw told me

that he was

> unable to get any of the implant women he had seen off of

Prednisone... I can

> well identify with that... Once I am at low levels, all hell breaks

loose when I

> cut my dose, even half of a mg...

>

> My (previously implanted) friend has now developed 's

Disease now and

> must be on cortisol (Cortef) for the rest of her life. I don't know

if

> autoantibodies are what are causing so many problems with the

adrenals, thyroids

> etc., but this is what showed up in my thyroid testing...

>

> Cathie

>

> **************

> Start the year off right. Easy ways to stay in shape.

>

> http://body.aol.com/fitness/winter-exercise?

NCID=aolcmp00300000002489

>

January 10, 2008

Lea,

If you have 's disease, you should be on Cortef.

That is bio-identical cortisol.

You can't live without cortisol!

What are you taking for your 's?

Patty

>

> Cathie, when I was on Prednisone, everything seemed so much

better. My doctors took me off because of the blood thinners. Like

you, I did better on Prednisone; however, it was destroying my bones.

We found this out when I broke my ankle in four places, because the

surgeon told me that my bones were very soft. Then, I had another PE,

and they started me on the blood thinners, but I remember them giving

me 50 mg of Prednisone at that time. Why would they do that at this

time, if these two drugs are not compatible? Could someone comment on

this please?

>

> Honey, you could be right about this, because I have many women

here who just cannot stop taking Prednisone. My rheumatologist wanted

to put me on Prednisone to help with the pain in my leg, and then he

remembered that I was on blood thinners...another good question for

the doctors on Saturday. When I was on Decadron, I too developed

's disease. This drug caused me to have big humps on my

shoulders, and on the back of my neck...it was awful! My doctors keep

telling me that medicine is a mystery. They are experimenting on

us...me thinks.

>

> Sending love always....Lea

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

> Re: Re: Sue, very suspicious

>

> In a message dated 1/10/08 10:36:35 AM, devans@... writes:

>

> Patty, my cortisol levels were so very low, and the doctors did

put me on progesterone injections, which made me worse. I was

allergic to them, and they had to stop using it....wonders me! Every

time that I have any injection, it causes symptoms. We think that it

is because of the silicone coating on the needles. I plan on asking

the doctors who we interview about this on Saturday. They come from

different parts of the World, and they might know something about

this. These doctors were practising medicine in their country, but

they must requalify before they can practise medicine in Canada.

>

> These low cortisol levels may well be one reason why so many

implanted women who are put on Prednisone or other steroids, are

unable to get off of them when they try to cut their dose. One

Rheumatologist I saw told me that he was unable to get any of the

implant women he had seen off of Prednisone... I can well identify

with that... Once I am at low levels, all hell breaks loose when I

cut my dose, even half of a mg...

>

> My (previously implanted) friend has now developed 's

Disease now and must be on cortisol (Cortef) for the rest of her

life. I don't know if autoantibodies are what are causing so many

problems with the adrenals, thyroids etc., but this is what showed up

in my thyroid testing...

>

> Cathie

>

> **************

> Start the year off right. Easy ways to stay in shape.

> http://body.aol.com/fitness/winter-exercise?

NCID=aolcmp00300000002489

>

January 10, 2008