Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 B: Thank you, thank you, thank you!!!!!!!!!!!!!!!!!!!!!!!! Where is Joe? Joe is at work now. He began his new job a month ago, shortly after his diagnosis and RAI treatment. He, up to this point, has been avoiding any contact with others who have Grave's as he feels like no one could relate to him. I've been here though! I've got Type 1 diabetes (18 successful years!) and I'm a shining example of how a person can be happy and hopeful and live a normal life in spite of the challenges; that's why I sought out the group immediately when he was diagnosed! I know the " power " of empathetic support! I have convinced myself that this ugly side of him IS Grave's and not Joe. , we have had a wonderful relationship (the most wonderful and rewarding I've had in my life -- I was married for 8 years before I got divorced 4 years ago and have met a bunch of men before I finally found my Joe!) for over a year and a half, so I know the true gem of a man I've found in him. This behavior is not him. I needed reassurance. You gave it to me. Thank you again. I will hang in there with him, as my gut tells me to do. I'd want that form him if the roles were reversed. I just needed someone who " knows what's it's like to have Grave's " to tell me that. The focus of the group is often so focused on numbers, methods, etc., (nothing wrong with that -- it's great!!) and the human aspect isn't discussed. I admit, that while numbers do mean a great deal to me (I crunch them all day at work) I really am interested in how all of you (us) are facing the day to day human aspect of Grave's. It's scary because there feels like no " safe place " to run to with the emotional aspect of this disease. I guess I should be counting my lucky stars that it's not ME that's in the throes of emotional distress, and that I am strong enough emotionally to let him borrow from me in his time of need of my strength. I'm glad though that I'm not foolish for staying with a guy who this past week I could say is the biggest a**hole I've known! LOL We'll make it through this. I am in tune with the situation -- thanks to support and input like yours! (Sorry this is so long!) Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 B: Thank you, thank you, thank you!!!!!!!!!!!!!!!!!!!!!!!! Where is Joe? Joe is at work now. He began his new job a month ago, shortly after his diagnosis and RAI treatment. He, up to this point, has been avoiding any contact with others who have Grave's as he feels like no one could relate to him. I've been here though! I've got Type 1 diabetes (18 successful years!) and I'm a shining example of how a person can be happy and hopeful and live a normal life in spite of the challenges; that's why I sought out the group immediately when he was diagnosed! I know the " power " of empathetic support! I have convinced myself that this ugly side of him IS Grave's and not Joe. , we have had a wonderful relationship (the most wonderful and rewarding I've had in my life -- I was married for 8 years before I got divorced 4 years ago and have met a bunch of men before I finally found my Joe!) for over a year and a half, so I know the true gem of a man I've found in him. This behavior is not him. I needed reassurance. You gave it to me. Thank you again. I will hang in there with him, as my gut tells me to do. I'd want that form him if the roles were reversed. I just needed someone who " knows what's it's like to have Grave's " to tell me that. The focus of the group is often so focused on numbers, methods, etc., (nothing wrong with that -- it's great!!) and the human aspect isn't discussed. I admit, that while numbers do mean a great deal to me (I crunch them all day at work) I really am interested in how all of you (us) are facing the day to day human aspect of Grave's. It's scary because there feels like no " safe place " to run to with the emotional aspect of this disease. I guess I should be counting my lucky stars that it's not ME that's in the throes of emotional distress, and that I am strong enough emotionally to let him borrow from me in his time of need of my strength. I'm glad though that I'm not foolish for staying with a guy who this past week I could say is the biggest a**hole I've known! LOL We'll make it through this. I am in tune with the situation -- thanks to support and input like yours! (Sorry this is so long!) Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 B: Thank you, thank you, thank you!!!!!!!!!!!!!!!!!!!!!!!! Where is Joe? Joe is at work now. He began his new job a month ago, shortly after his diagnosis and RAI treatment. He, up to this point, has been avoiding any contact with others who have Grave's as he feels like no one could relate to him. I've been here though! I've got Type 1 diabetes (18 successful years!) and I'm a shining example of how a person can be happy and hopeful and live a normal life in spite of the challenges; that's why I sought out the group immediately when he was diagnosed! I know the " power " of empathetic support! I have convinced myself that this ugly side of him IS Grave's and not Joe. , we have had a wonderful relationship (the most wonderful and rewarding I've had in my life -- I was married for 8 years before I got divorced 4 years ago and have met a bunch of men before I finally found my Joe!) for over a year and a half, so I know the true gem of a man I've found in him. This behavior is not him. I needed reassurance. You gave it to me. Thank you again. I will hang in there with him, as my gut tells me to do. I'd want that form him if the roles were reversed. I just needed someone who " knows what's it's like to have Grave's " to tell me that. The focus of the group is often so focused on numbers, methods, etc., (nothing wrong with that -- it's great!!) and the human aspect isn't discussed. I admit, that while numbers do mean a great deal to me (I crunch them all day at work) I really am interested in how all of you (us) are facing the day to day human aspect of Grave's. It's scary because there feels like no " safe place " to run to with the emotional aspect of this disease. I guess I should be counting my lucky stars that it's not ME that's in the throes of emotional distress, and that I am strong enough emotionally to let him borrow from me in his time of need of my strength. I'm glad though that I'm not foolish for staying with a guy who this past week I could say is the biggest a**hole I've known! LOL We'll make it through this. I am in tune with the situation -- thanks to support and input like yours! (Sorry this is so long!) Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 P.S. B: The Q-tips actually make for a funny view on it all! I hope you get a chuckle out of it now! 2000 and those fears seem so far away now, don't they? Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 P.S. B: The Q-tips actually make for a funny view on it all! I hope you get a chuckle out of it now! 2000 and those fears seem so far away now, don't they? Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Terry -- Thanks so much. I just the two of you responding at this late hour I feel somewhat of a hold on the situation. He was in tears today apologizing for all his " meanness. " How could I leave him? I love him! Thank you for you input and support! We'll get through this. I am his best friend, and I'm up for it. My best to you! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Terry -- Thanks so much. I just the two of you responding at this late hour I feel somewhat of a hold on the situation. He was in tears today apologizing for all his " meanness. " How could I leave him? I love him! Thank you for you input and support! We'll get through this. I am his best friend, and I'm up for it. My best to you! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Terry -- Thanks so much. I just the two of you responding at this late hour I feel somewhat of a hold on the situation. He was in tears today apologizing for all his " meanness. " How could I leave him? I love him! Thank you for you input and support! We'll get through this. I am his best friend, and I'm up for it. My best to you! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Ann, I haven't had RAI, but I have had an out-of-wack thyroid. Whenver I've been wildly hypo or hyper OR (importantly, for your situation) experiencing quick and drastic changes in my thyroid function: I have not been myself. It has been the wacky thyroid 'speaking' and not me. Two painful examples, that may give you some insight into our relationship. First, while hyper, I thought that civilization as we know it might actually end at Y2K. I hold a doctorate and am a university professor. None of my colleagues felt the same way . I was gripped wtih fear about this and started making plans to move to an Indian reservation where a friend lived and stockpiled q-tips, of all things. I didn't know I was hyperthyroid. Within a few weeks of taking PTU for that condition, my fears suddenly stopped. Surprise, surprise. I was suddenly aware that my amazing, unprecedented anxiety was biochemical or hormonal and not what I considered to be representative of my mind/self. Second, when I became hypothyroid I was eventually so depressed that I realized why people might want to die. It's not that I wanted to die, but I was soo tired and all my worries seemed so trivial, that I could NOT force myself to care. Again: got my thyroid checked and way off wack. WIthin days of taking thyroid replacement, I could NOT belive how depressed I had been a few days earlier. Here I can NOT emphasize enough the dramatic difference in my mood, outlook, life approach -- everything. My primary symptoms were not physical here, but psychological. Please do not underestimate what Joe is going through. During times of major thyroid imbalance, I went from being a high-functioning, intense and dramtic, yet happy person to being either wildly anxious and irritable or weepy and depressed. Either way, I was not myself. I would imagine that Joe is not himself either. I would bet that this is the thyroid talking. I would urge you, if up till this point your relationship has been good, to hang in there. Where's Joe? Maybe he should be part of the group as well? best, B Help Please! > Hi All! > > As always, I'm enjoying reading the posts, but I have an urgent request: > > My darling Joe had RAI March 8th, and was going well, but the last few days > have been an emotional roller coaster ride for him (he's included attacks on > me in all of this, which makes it difficult to remain supportive -- i.e., is > he being a jerk, or is it GD?) and he complained Monday night of " not feeling > right: I'm just grouchy. " > > He has made some very STRANGE accusations towards me in our relationship > since Wednesday, and I told him today simply that if his negative attitude > toward me (I'm not perfect, but damn close to it in a mate! LOL) continues I > am asking him to leave. > > He left a message to me today from work saying, " Remember when I told you I > was grouchy on Monday, well, I feel HORRIBLE and I don't know if it's because > I've missed some of my medication doses, or the radiation, or what, I just > don't feel right. " > > I feel helpless here guys! What can I do? Should we go in tomorrow for > thyroid level checks? After reading about experiencing both hypo and hyper > when who knows where you are from those of you posting about it today, I > really concerned!!! > > Is this something any of you can relate to? I know he feels out of control > with his emotions right now. My guy is not one to sob such a pain filled > message over the phone. I want to be supportive and not beg out on him in > his time of greatest need, and I will not do that. How can I, as the > supporter, know that this is GRAVE'S talking and feeling/hurting and if it's > not then that's human beings being human? I love him with every fiber in my > being and am looking for some input! Help please! I am the one who is > strong now, and if even one of you can offer advice, I thank you from this > scary point of not knowing what's going on, yet trying to remain in control > of what has the potential to be an out of control situation. > > Much love all around! You all are wonderful people! > > Ann > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Ann, I haven't had RAI, but I have had an out-of-wack thyroid. Whenver I've been wildly hypo or hyper OR (importantly, for your situation) experiencing quick and drastic changes in my thyroid function: I have not been myself. It has been the wacky thyroid 'speaking' and not me. Two painful examples, that may give you some insight into our relationship. First, while hyper, I thought that civilization as we know it might actually end at Y2K. I hold a doctorate and am a university professor. None of my colleagues felt the same way . I was gripped wtih fear about this and started making plans to move to an Indian reservation where a friend lived and stockpiled q-tips, of all things. I didn't know I was hyperthyroid. Within a few weeks of taking PTU for that condition, my fears suddenly stopped. Surprise, surprise. I was suddenly aware that my amazing, unprecedented anxiety was biochemical or hormonal and not what I considered to be representative of my mind/self. Second, when I became hypothyroid I was eventually so depressed that I realized why people might want to die. It's not that I wanted to die, but I was soo tired and all my worries seemed so trivial, that I could NOT force myself to care. Again: got my thyroid checked and way off wack. WIthin days of taking thyroid replacement, I could NOT belive how depressed I had been a few days earlier. Here I can NOT emphasize enough the dramatic difference in my mood, outlook, life approach -- everything. My primary symptoms were not physical here, but psychological. Please do not underestimate what Joe is going through. During times of major thyroid imbalance, I went from being a high-functioning, intense and dramtic, yet happy person to being either wildly anxious and irritable or weepy and depressed. Either way, I was not myself. I would imagine that Joe is not himself either. I would bet that this is the thyroid talking. I would urge you, if up till this point your relationship has been good, to hang in there. Where's Joe? Maybe he should be part of the group as well? best, B Help Please! > Hi All! > > As always, I'm enjoying reading the posts, but I have an urgent request: > > My darling Joe had RAI March 8th, and was going well, but the last few days > have been an emotional roller coaster ride for him (he's included attacks on > me in all of this, which makes it difficult to remain supportive -- i.e., is > he being a jerk, or is it GD?) and he complained Monday night of " not feeling > right: I'm just grouchy. " > > He has made some very STRANGE accusations towards me in our relationship > since Wednesday, and I told him today simply that if his negative attitude > toward me (I'm not perfect, but damn close to it in a mate! LOL) continues I > am asking him to leave. > > He left a message to me today from work saying, " Remember when I told you I > was grouchy on Monday, well, I feel HORRIBLE and I don't know if it's because > I've missed some of my medication doses, or the radiation, or what, I just > don't feel right. " > > I feel helpless here guys! What can I do? Should we go in tomorrow for > thyroid level checks? After reading about experiencing both hypo and hyper > when who knows where you are from those of you posting about it today, I > really concerned!!! > > Is this something any of you can relate to? I know he feels out of control > with his emotions right now. My guy is not one to sob such a pain filled > message over the phone. I want to be supportive and not beg out on him in > his time of greatest need, and I will not do that. How can I, as the > supporter, know that this is GRAVE'S talking and feeling/hurting and if it's > not then that's human beings being human? I love him with every fiber in my > being and am looking for some input! Help please! I am the one who is > strong now, and if even one of you can offer advice, I thank you from this > scary point of not knowing what's going on, yet trying to remain in control > of what has the potential to be an out of control situation. > > Much love all around! You all are wonderful people! > > Ann > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Ann, I haven't had RAI, but I have had an out-of-wack thyroid. Whenver I've been wildly hypo or hyper OR (importantly, for your situation) experiencing quick and drastic changes in my thyroid function: I have not been myself. It has been the wacky thyroid 'speaking' and not me. Two painful examples, that may give you some insight into our relationship. First, while hyper, I thought that civilization as we know it might actually end at Y2K. I hold a doctorate and am a university professor. None of my colleagues felt the same way . I was gripped wtih fear about this and started making plans to move to an Indian reservation where a friend lived and stockpiled q-tips, of all things. I didn't know I was hyperthyroid. Within a few weeks of taking PTU for that condition, my fears suddenly stopped. Surprise, surprise. I was suddenly aware that my amazing, unprecedented anxiety was biochemical or hormonal and not what I considered to be representative of my mind/self. Second, when I became hypothyroid I was eventually so depressed that I realized why people might want to die. It's not that I wanted to die, but I was soo tired and all my worries seemed so trivial, that I could NOT force myself to care. Again: got my thyroid checked and way off wack. WIthin days of taking thyroid replacement, I could NOT belive how depressed I had been a few days earlier. Here I can NOT emphasize enough the dramatic difference in my mood, outlook, life approach -- everything. My primary symptoms were not physical here, but psychological. Please do not underestimate what Joe is going through. During times of major thyroid imbalance, I went from being a high-functioning, intense and dramtic, yet happy person to being either wildly anxious and irritable or weepy and depressed. Either way, I was not myself. I would imagine that Joe is not himself either. I would bet that this is the thyroid talking. I would urge you, if up till this point your relationship has been good, to hang in there. Where's Joe? Maybe he should be part of the group as well? best, B Help Please! > Hi All! > > As always, I'm enjoying reading the posts, but I have an urgent request: > > My darling Joe had RAI March 8th, and was going well, but the last few days > have been an emotional roller coaster ride for him (he's included attacks on > me in all of this, which makes it difficult to remain supportive -- i.e., is > he being a jerk, or is it GD?) and he complained Monday night of " not feeling > right: I'm just grouchy. " > > He has made some very STRANGE accusations towards me in our relationship > since Wednesday, and I told him today simply that if his negative attitude > toward me (I'm not perfect, but damn close to it in a mate! LOL) continues I > am asking him to leave. > > He left a message to me today from work saying, " Remember when I told you I > was grouchy on Monday, well, I feel HORRIBLE and I don't know if it's because > I've missed some of my medication doses, or the radiation, or what, I just > don't feel right. " > > I feel helpless here guys! What can I do? Should we go in tomorrow for > thyroid level checks? After reading about experiencing both hypo and hyper > when who knows where you are from those of you posting about it today, I > really concerned!!! > > Is this something any of you can relate to? I know he feels out of control > with his emotions right now. My guy is not one to sob such a pain filled > message over the phone. I want to be supportive and not beg out on him in > his time of greatest need, and I will not do that. How can I, as the > supporter, know that this is GRAVE'S talking and feeling/hurting and if it's > not then that's human beings being human? I love him with every fiber in my > being and am looking for some input! Help please! I am the one who is > strong now, and if even one of you can offer advice, I thank you from this > scary point of not knowing what's going on, yet trying to remain in control > of what has the potential to be an out of control situation. > > Much love all around! You all are wonderful people! > > Ann > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 > Ann, Hang in there, as says, it IS the thyroid talking. Just think about who he was before the RAI, hold onto that and get him in for some labs. In 5-6 weeks since the RAI, a lot can change. Hypo AND hyper have severe symptoms, and he needs close monitoring right now. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 > Ann, Hang in there, as says, it IS the thyroid talking. Just think about who he was before the RAI, hold onto that and get him in for some labs. In 5-6 weeks since the RAI, a lot can change. Hypo AND hyper have severe symptoms, and he needs close monitoring right now. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 > Ann, Hang in there, as says, it IS the thyroid talking. Just think about who he was before the RAI, hold onto that and get him in for some labs. In 5-6 weeks since the RAI, a lot can change. Hypo AND hyper have severe symptoms, and he needs close monitoring right now. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Ann I felt really good for three months after RAI...then BOOOOOM...things changed. Muscle pain, weight gain(so far gained 40 lbs already...former weight b4 rai was 112lbs), hair loss, severe acne, memory loss, itchy dry skin and hair, bloating to name a few, so who would ever like to have all these goin on with his/her body and still feel great!!?.....I all of sudden changed from being a sweet, loving., nice person to a monster,(grouchy mean apathetic B$%^$ & *tch)...My husband was totally not prepared about my personality change and our conversations most of the time always ended in argument...He didn't know what I was going through and not like you, he really doesn't care to find out how debilitating this disease is for me, *sigh*...anyway, HANG IN THERE for him...research .....research...research..I am jealous of JOe...cuz he got you who is there for him always and very understanding....not my husband, all he thinks of is what food i would cook for him for the day and serve him like a slave (our tradition) chie --- Terry ding wrote: > > > > Ann, > > Hang in there, as says, it IS the thyroid > talking. Just think about who > he was before the RAI, hold onto that and get him in > for some labs. In 5-6 > weeks since the RAI, a lot can change. Hypo AND > hyper have severe symptoms, > and he needs close monitoring right now. > > Terry > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Ann I felt really good for three months after RAI...then BOOOOOM...things changed. Muscle pain, weight gain(so far gained 40 lbs already...former weight b4 rai was 112lbs), hair loss, severe acne, memory loss, itchy dry skin and hair, bloating to name a few, so who would ever like to have all these goin on with his/her body and still feel great!!?.....I all of sudden changed from being a sweet, loving., nice person to a monster,(grouchy mean apathetic B$%^$ & *tch)...My husband was totally not prepared about my personality change and our conversations most of the time always ended in argument...He didn't know what I was going through and not like you, he really doesn't care to find out how debilitating this disease is for me, *sigh*...anyway, HANG IN THERE for him...research .....research...research..I am jealous of JOe...cuz he got you who is there for him always and very understanding....not my husband, all he thinks of is what food i would cook for him for the day and serve him like a slave (our tradition) chie --- Terry ding wrote: > > > > Ann, > > Hang in there, as says, it IS the thyroid > talking. Just think about who > he was before the RAI, hold onto that and get him in > for some labs. In 5-6 > weeks since the RAI, a lot can change. Hypo AND > hyper have severe symptoms, > and he needs close monitoring right now. > > Terry > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Ann, I am sorry this is happening to you and Joe!!! I did not have RAI but I might be able to explain what is happening to Joe. After taking the RAI, the thyroid cells start to die-off. As they do, the thyroid hormone is being released into Joe's blood system. People can become more hyper as this happens. What Joe is experiancing is call Graves Rage. It IS common. Maybe Elaine can explain this in more detail for you. Here is a link to the mediboard site, when Jeff, Shani's husband and myself was experiancing the rage the same day. http://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=000842 Know that Joe can't control it, it is like a little explosion that goes off and he can't stop. Any little thing can set it off. When its over the guilt sets in. Hang in there!!! You are not alone!!! Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Ann, I am sorry this is happening to you and Joe!!! I did not have RAI but I might be able to explain what is happening to Joe. After taking the RAI, the thyroid cells start to die-off. As they do, the thyroid hormone is being released into Joe's blood system. People can become more hyper as this happens. What Joe is experiancing is call Graves Rage. It IS common. Maybe Elaine can explain this in more detail for you. Here is a link to the mediboard site, when Jeff, Shani's husband and myself was experiancing the rage the same day. http://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=000842 Know that Joe can't control it, it is like a little explosion that goes off and he can't stop. Any little thing can set it off. When its over the guilt sets in. Hang in there!!! You are not alone!!! Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Ann, I am sorry this is happening to you and Joe!!! I did not have RAI but I might be able to explain what is happening to Joe. After taking the RAI, the thyroid cells start to die-off. As they do, the thyroid hormone is being released into Joe's blood system. People can become more hyper as this happens. What Joe is experiancing is call Graves Rage. It IS common. Maybe Elaine can explain this in more detail for you. Here is a link to the mediboard site, when Jeff, Shani's husband and myself was experiancing the rage the same day. http://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=000842 Know that Joe can't control it, it is like a little explosion that goes off and he can't stop. Any little thing can set it off. When its over the guilt sets in. Hang in there!!! You are not alone!!! Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hi Ann, For some reason (Yahoo!) I have not received your original post but have read it. I am glad others responded so quickly. Please have Joe get labs as soon as possible. If I remember right, he is still on beta blocker and ptu (or tap), it could be that the rai is working quickly and he is moving hypo...it may be time to wean off the beta blocker and get off his atd...a doctor will tell you that! Just don't let them run JUST a TSH to monitor him. brought something up in her post to you, and I think it is very important. Joe needs to learn about *his* disease so he can understand what is going on in his body. Your knowledge is not his knowledge...and I know your passing as much on to him as you possibly can, and that is good, but it is not the same as his own learning would be. If he isn't up to the group, please get the two books we talk about in group a lot. The Thyroid Solution by Dr. Ridha Arem, which will give many answers to this emotional/mental roller coaster Joe is on now. And get Graves Disease; A Practical Guide by Elaine . If Joe does nothing else for himself, he needs to read both books himself. He will have graves for the rest of his life and this first year after rai (and maybe longer) as his thyroid continues to die, he will find himself on these wild rides trying to find the right dose of replacement meds for himself. If he understands this is going to happen, when this begins he will know to get labs immediately, he will know his thyroid is talking to him...and I found, once I started learning what the swings were about, I seldom took them out on anyone around me anymore. When *we* (gravesians) are swinging wildly, we can become unbearable to be around, blaming everyone around us, or having our own pity parties and asking 'why me'... The more Joe learns about his disease, the more he will understand all of this and once he understands this it is not so frightening. I know we have several men in this group, a few who have had RAI, I for one wish they would post often so we women can understand the effects of graves and rai in men. We could all learn so much. Ann, you have become a wonderful asset to this group, and I don't think Joe would have been able to get through things so far without you by his side and the things I said above have no reflection on you and the knowledge you have gained and helped Joe to learn some things about this disease...I say them only because I KNOW from my personal experience how important it is that everyone of us with graves (men or women) need to learn how to become in tune with our bodies, learn the capabilities of this disease and learn what to do when things are not going right...no one else can do that for us. *I* never started learning about *my* disease for over 4 years post RAI when things go so bad, once I started learning and paying attention to my body and even the small signals it sends out, things have continued to improve in every aspect of my life. I was hypo for over 4 years, the depression is unbelievable, I became suicidal, my marriage was on the rocks, I either wanted a divorce or to kill my husband for probably the last 18 months of my hypOhell, as for my kids...just move away and leave me along! None of this was me, I had never been depressed like this before, I had never been suicidal, I loved my kids, I just didn't know it was all because of my disease and inadequate health care by doctors who either didn't have a clue or plain didn't care. After things got so bad, and I started reading, and gave some things to my family to read, my husband took the time to learn *enough* to satisfy him about this disease and can understand the not so good days now. Things have turned around in every aspect of my life, because *I* took the responsibility of my disease, my body, of my health care and of my treatment. It seems like I did this a long time ago, but it was only 2 years ago this past January and I have come a long way. When Joe learns first hand even some of this, he will find the power of personal knowledge and involvement in his health care and will feel so much better. I hope you get the books and even if you just point out chapters here and there for him to read, you will know which ones apply in the moment, you both will see changes in how Joe feels. Don't give up on him...it is the disease ;-) I met my husband when I was 16, he was 18, and other than a 13 year *break* in our lives many years ago, he is the love of my life and things are good for us...they will be for you two also! I hope some of this helps you personally, and helps Joe to see the necessity of his own learning journey to begin. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hi Ann, For some reason (Yahoo!) I have not received your original post but have read it. I am glad others responded so quickly. Please have Joe get labs as soon as possible. If I remember right, he is still on beta blocker and ptu (or tap), it could be that the rai is working quickly and he is moving hypo...it may be time to wean off the beta blocker and get off his atd...a doctor will tell you that! Just don't let them run JUST a TSH to monitor him. brought something up in her post to you, and I think it is very important. Joe needs to learn about *his* disease so he can understand what is going on in his body. Your knowledge is not his knowledge...and I know your passing as much on to him as you possibly can, and that is good, but it is not the same as his own learning would be. If he isn't up to the group, please get the two books we talk about in group a lot. The Thyroid Solution by Dr. Ridha Arem, which will give many answers to this emotional/mental roller coaster Joe is on now. And get Graves Disease; A Practical Guide by Elaine . If Joe does nothing else for himself, he needs to read both books himself. He will have graves for the rest of his life and this first year after rai (and maybe longer) as his thyroid continues to die, he will find himself on these wild rides trying to find the right dose of replacement meds for himself. If he understands this is going to happen, when this begins he will know to get labs immediately, he will know his thyroid is talking to him...and I found, once I started learning what the swings were about, I seldom took them out on anyone around me anymore. When *we* (gravesians) are swinging wildly, we can become unbearable to be around, blaming everyone around us, or having our own pity parties and asking 'why me'... The more Joe learns about his disease, the more he will understand all of this and once he understands this it is not so frightening. I know we have several men in this group, a few who have had RAI, I for one wish they would post often so we women can understand the effects of graves and rai in men. We could all learn so much. Ann, you have become a wonderful asset to this group, and I don't think Joe would have been able to get through things so far without you by his side and the things I said above have no reflection on you and the knowledge you have gained and helped Joe to learn some things about this disease...I say them only because I KNOW from my personal experience how important it is that everyone of us with graves (men or women) need to learn how to become in tune with our bodies, learn the capabilities of this disease and learn what to do when things are not going right...no one else can do that for us. *I* never started learning about *my* disease for over 4 years post RAI when things go so bad, once I started learning and paying attention to my body and even the small signals it sends out, things have continued to improve in every aspect of my life. I was hypo for over 4 years, the depression is unbelievable, I became suicidal, my marriage was on the rocks, I either wanted a divorce or to kill my husband for probably the last 18 months of my hypOhell, as for my kids...just move away and leave me along! None of this was me, I had never been depressed like this before, I had never been suicidal, I loved my kids, I just didn't know it was all because of my disease and inadequate health care by doctors who either didn't have a clue or plain didn't care. After things got so bad, and I started reading, and gave some things to my family to read, my husband took the time to learn *enough* to satisfy him about this disease and can understand the not so good days now. Things have turned around in every aspect of my life, because *I* took the responsibility of my disease, my body, of my health care and of my treatment. It seems like I did this a long time ago, but it was only 2 years ago this past January and I have come a long way. When Joe learns first hand even some of this, he will find the power of personal knowledge and involvement in his health care and will feel so much better. I hope you get the books and even if you just point out chapters here and there for him to read, you will know which ones apply in the moment, you both will see changes in how Joe feels. Don't give up on him...it is the disease ;-) I met my husband when I was 16, he was 18, and other than a 13 year *break* in our lives many years ago, he is the love of my life and things are good for us...they will be for you two also! I hope some of this helps you personally, and helps Joe to see the necessity of his own learning journey to begin. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hi Ann, For some reason (Yahoo!) I have not received your original post but have read it. I am glad others responded so quickly. Please have Joe get labs as soon as possible. If I remember right, he is still on beta blocker and ptu (or tap), it could be that the rai is working quickly and he is moving hypo...it may be time to wean off the beta blocker and get off his atd...a doctor will tell you that! Just don't let them run JUST a TSH to monitor him. brought something up in her post to you, and I think it is very important. Joe needs to learn about *his* disease so he can understand what is going on in his body. Your knowledge is not his knowledge...and I know your passing as much on to him as you possibly can, and that is good, but it is not the same as his own learning would be. If he isn't up to the group, please get the two books we talk about in group a lot. The Thyroid Solution by Dr. Ridha Arem, which will give many answers to this emotional/mental roller coaster Joe is on now. And get Graves Disease; A Practical Guide by Elaine . If Joe does nothing else for himself, he needs to read both books himself. He will have graves for the rest of his life and this first year after rai (and maybe longer) as his thyroid continues to die, he will find himself on these wild rides trying to find the right dose of replacement meds for himself. If he understands this is going to happen, when this begins he will know to get labs immediately, he will know his thyroid is talking to him...and I found, once I started learning what the swings were about, I seldom took them out on anyone around me anymore. When *we* (gravesians) are swinging wildly, we can become unbearable to be around, blaming everyone around us, or having our own pity parties and asking 'why me'... The more Joe learns about his disease, the more he will understand all of this and once he understands this it is not so frightening. I know we have several men in this group, a few who have had RAI, I for one wish they would post often so we women can understand the effects of graves and rai in men. We could all learn so much. Ann, you have become a wonderful asset to this group, and I don't think Joe would have been able to get through things so far without you by his side and the things I said above have no reflection on you and the knowledge you have gained and helped Joe to learn some things about this disease...I say them only because I KNOW from my personal experience how important it is that everyone of us with graves (men or women) need to learn how to become in tune with our bodies, learn the capabilities of this disease and learn what to do when things are not going right...no one else can do that for us. *I* never started learning about *my* disease for over 4 years post RAI when things go so bad, once I started learning and paying attention to my body and even the small signals it sends out, things have continued to improve in every aspect of my life. I was hypo for over 4 years, the depression is unbelievable, I became suicidal, my marriage was on the rocks, I either wanted a divorce or to kill my husband for probably the last 18 months of my hypOhell, as for my kids...just move away and leave me along! None of this was me, I had never been depressed like this before, I had never been suicidal, I loved my kids, I just didn't know it was all because of my disease and inadequate health care by doctors who either didn't have a clue or plain didn't care. After things got so bad, and I started reading, and gave some things to my family to read, my husband took the time to learn *enough* to satisfy him about this disease and can understand the not so good days now. Things have turned around in every aspect of my life, because *I* took the responsibility of my disease, my body, of my health care and of my treatment. It seems like I did this a long time ago, but it was only 2 years ago this past January and I have come a long way. When Joe learns first hand even some of this, he will find the power of personal knowledge and involvement in his health care and will feel so much better. I hope you get the books and even if you just point out chapters here and there for him to read, you will know which ones apply in the moment, you both will see changes in how Joe feels. Don't give up on him...it is the disease ;-) I met my husband when I was 16, he was 18, and other than a 13 year *break* in our lives many years ago, he is the love of my life and things are good for us...they will be for you two also! I hope some of this helps you personally, and helps Joe to see the necessity of his own learning journey to begin. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hi Chie, >>>not my husband, all he thinks of is what food i would cook for him for >>>the day and serve him like a slave (our tradition)<<< Have you thought about printing up some of the information you have learned from group, some posts and examples of what is going on with you, maybe even your own posts that you have described how horrible you have felt...put them on a plate and SERVE THEM TO HIM! Tell him when he is done reading them, he will get the *food* for his belly? Might be something to think about, besides, you are in this country now, not the country of your origin, and you know what they say, When in Rome, do as the Romans do...besides, slavery has been gone done away with in this country, time for hubby to realize this! Talk to you soon, Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hi Chie, >>>not my husband, all he thinks of is what food i would cook for him for >>>the day and serve him like a slave (our tradition)<<< Have you thought about printing up some of the information you have learned from group, some posts and examples of what is going on with you, maybe even your own posts that you have described how horrible you have felt...put them on a plate and SERVE THEM TO HIM! Tell him when he is done reading them, he will get the *food* for his belly? Might be something to think about, besides, you are in this country now, not the country of your origin, and you know what they say, When in Rome, do as the Romans do...besides, slavery has been gone done away with in this country, time for hubby to realize this! Talk to you soon, Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hi Chie, >>>not my husband, all he thinks of is what food i would cook for him for >>>the day and serve him like a slave (our tradition)<<< Have you thought about printing up some of the information you have learned from group, some posts and examples of what is going on with you, maybe even your own posts that you have described how horrible you have felt...put them on a plate and SERVE THEM TO HIM! Tell him when he is done reading them, he will get the *food* for his belly? Might be something to think about, besides, you are in this country now, not the country of your origin, and you know what they say, When in Rome, do as the Romans do...besides, slavery has been gone done away with in this country, time for hubby to realize this! Talk to you soon, Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
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