just curious

[Guest guest]

From what I have read ,aluminum does leach into the food that's in the

can.Also, aluminum makes mercury ten times more toxic when the two together

are present.

R

[Guest guest]

What about aluminum foil? I sometimes wrap it over the top of food to keep

it warm while I'm finishing some other cooking item. Or I use it to line

the cookie sheet when heating something like fries. Does that cause

aluminum to go into food? Is there some study that found that to be true?

(I'm not looking for anyone to just give their best guess.)

Best,

Lora

_________________________________________________________________

Click, drag and drop. My MSN is the simple way to design your homepage.

http://click.atdmt.com/AVE/go/onm00200364ave/direct/01/

[Guest guest]

Lora,

I know you are looking for a study...I don't have any info. on a

study, but I don't think aluminum foil is safe.

When you cook in aluminum pots and pans it has been proven that the

aluminum leaches into the food, so I would think the same would hold

true for aluminum foil.

Just my thought,

-- In , " Lora "

<lorawilson2000@h...> wrote:

> What about aluminum foil? I sometimes wrap it over the top of

food to keep

> it warm while I'm finishing some other cooking item. Or I use it

to line

> the cookie sheet when heating something like fries. Does that

cause

> aluminum to go into food? Is there some study that found that to

be true?

> (I'm not looking for anyone to just give their best guess.)

>

> Best,

> Lora

>

> _________________________________________________________________

> Click, drag and drop. My MSN is the simple way to design your

homepage.

> http://click.atdmt.com/AVE/go/onm00200364ave/direct/01/

[Guest guest]

Pots and pans. No stick skillets are aluminum underneath. Most deodorants are

high. If those are used by the mother during nursing it's not hard to figure out

that they can be a source.

From: Lora

Sent: Saturday, February 28, 2004 6:37 PM

Subject: Re: [ ] Just curious

What about aluminum foil? I sometimes wrap it over the top of food to keep

it warm while I'm finishing some other cooking item. Or I use it to line

the cookie sheet when heating something like fries. Does that cause

aluminum to go into food? Is there some study that found that to be true?

(I'm not looking for anyone to just give their best guess.)

Best,

Lora

_________________________________________________________________

Click, drag and drop. My MSN is the simple way to design your homepage.

http://click.atdmt.com/AVE/go/onm00200364ave/direct/01/

=======================================================

[Guest guest]

I thought I'd share a little about my friend, Pam, at work who has had RA for

many years. She's in her mid-forties now and works full time. She and I have

talked a lot lately about RA since it seemed for awhile that I might have some

sort of autoimmune disease of my own ... but so far, the doctor has found

nothing to indicate that. My pain goes on and I will be seeing a physical

therapist next.

Pam is on Remicade now and loves it. She is a very determined lady who has gone

through studies and helped test medicines. She took dance classes during some

of her worst periods of the disease. She refuses to use handicapped parking

spaces and walks constantly. She has deformities in her fingers and wrists and

she walks a little bend over at the waist but she never lets that get her down.

She once told me that when she didn't move for several minutes, her joints would

freeze up so she is in constant movement at work.

She's on 3 mg pred, trying to reduce it to 2 mg in an effort to get off it but

is having problems. I know there are other RX she's taking as well but don't

remember them all. We talked specifically about the prednisone because she is

rail thin! Everyone I've ever known who's been on that toxic agent is rounded.

Pam has two Siberian Huskies and a husband with his own health problems and she

takes care of all of them. I know she's been in some serious pain at times but

she never lets it stop her. I know not everyone can be like her and she gives

me encouragement to keep going even when I'm hurting most (like now when it's

been raining non-stop for three days here in SUNNY southern Calif). She is

truly an inspiration.

Loving hugs,

Pattie

ltlmisscrankypants <ltlmisscrankypants@...> wrote:

Hi again...

Seeing as I am new to all of this, I was wondering how many of you are

able to work full-time. Prior to be diagnosed and taking ill in December,

I worked 40-50 hours a week. Now that I am off sick, I spend most of

my day resting or slowly trying to get the easy stuff done around the

house. I am booked off work by my Rheumatologist until at least June,

but don't know if I can return to the same job due to the physical

demands.

Is it possible to find a balance of meds that allows people with severe

RA to lead a " normal " life? Can I support my family again by one day

being able to hold down a job? How debilitating is this?

[Guest guest]

hi pattie... i am in northern CA... Napa, to be exact.... you must be closer to

kathe... she is in southern ca.....

yes i feel better when i keep moving, too.... but with my right knee hurting

really bad... some of the cartledge is gone...

i want to get a brace or something so i can walk again..

rae

Re: [ ] Just Curious

I thought I'd share a little about my friend, Pam, at work who has had RA for

many years. She's in her mid-forties now and works full time. She and I have

talked a lot lately about RA since it seemed for awhile that I might have some

sort of autoimmune disease of my own ... but so far, the doctor has found

nothing to indicate that. My pain goes on and I will be seeing a physical

therapist next.

Pam is on Remicade now and loves it. She is a very determined lady who has

gone through studies and helped test medicines. She took dance classes during

some of her worst periods of the disease. She refuses to use handicapped

parking spaces and walks constantly. She has deformities in her fingers and

wrists and she walks a little bend over at the waist but she never lets that get

her down. She once told me that when she didn't move for several minutes, her

joints would freeze up so she is in constant movement at work.

She's on 3 mg pred, trying to reduce it to 2 mg in an effort to get off it but

is having problems. I know there are other RX she's taking as well but don't

remember them all. We talked specifically about the prednisone because she is

rail thin! Everyone I've ever known who's been on that toxic agent is rounded.

Pam has two Siberian Huskies and a husband with his own health problems and

she takes care of all of them. I know she's been in some serious pain at times

but she never lets it stop her. I know not everyone can be like her and she

gives me encouragement to keep going even when I'm hurting most (like now when

it's been raining non-stop for three days here in SUNNY southern Calif). She is

truly an inspiration.

Loving hugs,

Pattie

ltlmisscrankypants <ltlmisscrankypants@...> wrote:

Hi again...

Seeing as I am new to all of this, I was wondering how many of you are

able to work full-time. Prior to be diagnosed and taking ill in December,

I worked 40-50 hours a week. Now that I am off sick, I spend most of

my day resting or slowly trying to get the easy stuff done around the

house. I am booked off work by my Rheumatologist until at least June,

but don't know if I can return to the same job due to the physical

demands.

Is it possible to find a balance of meds that allows people with severe

RA to lead a " normal " life? Can I support my family again by one day

being able to hold down a job? How debilitating is this?

[Guest guest]

San Diego area ... about as far south as one can get here in our fine state ...

Pattie

Rae Sandberg <Raes_Yorkies@...> wrote:hi pattie... i am in northern

CA... Napa, to be exact.... you must be closer to kathe... she is in southern

ca.....

yes i feel better when i keep moving, too.... but with my right knee hurting

really bad... some of the cartledge is gone...

i want to get a brace or something so i can walk again..

rae

Re: [ ] Just Curious

I thought I'd share a little about my friend, Pam, at work who has had RA for

many years. She's in her mid-forties now and works full time. She and I have

talked a lot lately about RA since it seemed for awhile that I might have some

sort of autoimmune disease of my own ... but so far, the doctor has found

nothing to indicate that. My pain goes on and I will be seeing a physical

therapist next.

Pam is on Remicade now and loves it. She is a very determined lady who has

gone through studies and helped test medicines. She took dance classes during

some of her worst periods of the disease. She refuses to use handicapped

parking spaces and walks constantly. She has deformities in her fingers and

wrists and she walks a little bend over at the waist but she never lets that get

her down. She once told me that when she didn't move for several minutes, her

joints would freeze up so she is in constant movement at work.

She's on 3 mg pred, trying to reduce it to 2 mg in an effort to get off it but

is having problems. I know there are other RX she's taking as well but don't

remember them all. We talked specifically about the prednisone because she is

rail thin! Everyone I've ever known who's been on that toxic agent is rounded.

Pam has two Siberian Huskies and a husband with his own health problems and

she takes care of all of them. I know she's been in some serious pain at times

but she never lets it stop her. I know not everyone can be like her and she

gives me encouragement to keep going even when I'm hurting most (like now when

it's been raining non-stop for three days here in SUNNY southern Calif). She is

truly an inspiration.

Loving hugs,

Pattie

ltlmisscrankypants <ltlmisscrankypants@...> wrote:

Hi again...

Seeing as I am new to all of this, I was wondering how many of you are

able to work full-time. Prior to be diagnosed and taking ill in December,

I worked 40-50 hours a week. Now that I am off sick, I spend most of

my day resting or slowly trying to get the easy stuff done around the

house. I am booked off work by my Rheumatologist until at least June,

but don't know if I can return to the same job due to the physical

demands.

Is it possible to find a balance of meds that allows people with severe

RA to lead a " normal " life? Can I support my family again by one day

being able to hold down a job? How debilitating is this?

[Guest guest]

,

I have been on disability for two years now. I use to work a lot of

hours myself, but no way I can work now:(Tawny

>

>

> Hi again...

>

> Seeing as I am new to all of this, I was wondering how many of you

are

> able to work full-time. Prior to be diagnosed and taking ill in

December,

> I worked 40-50 hours a week. Now that I am off sick, I spend most

of

> my day resting or slowly trying to get the easy stuff done around

the

> house. I am booked off work by my Rheumatologist until at least

June,

> but don't know if I can return to the same job due to the physical

> demands.

>

> Is it possible to find a balance of meds that allows people with

severe

> RA to lead a " normal " life? Can I support my family again by one

day

> being able to hold down a job? How debilitating is this?

>

>

[Guest guest]

oh, pattie.... my husband and i took a trip down to san diego for his

business... we got to stay in the sheridan suites... and each morning he had to

leave for the one down by the water... i slept in and then got ready and walked

down town to the open mall and all around there and then had lunch and then

headed back and had a latte at the starbucks by our hotel... then we rested a

bit and then walked down town, again and had dinner and then walked back... oh

how i love to walk in a town like that!

well, i did not have the RA then... and this bad knee... but soon, i hope to be

back walking again....

rae

oh, if you ever get up here, please call and stop by... i would love it! my

number is 707-253-8223---- and my cell is 707-290-0749----

the spring is sooo pretty with all the mustard blooming...)

rae

Re: [ ] Just Curious

I thought I'd share a little about my friend, Pam, at work who has had RA

for many years. She's in her mid-forties now and works full time. She and I

have talked a lot lately about RA since it seemed for awhile that I might have

some sort of autoimmune disease of my own ... but so far, the doctor has found

nothing to indicate that. My pain goes on and I will be seeing a physical

therapist next.

Pam is on Remicade now and loves it. She is a very determined lady who has

gone through studies and helped test medicines. She took dance classes during

some of her worst periods of the disease. She refuses to use handicapped

parking spaces and walks constantly. She has deformities in her fingers and

wrists and she walks a little bend over at the waist but she never lets that get

her down. She once told me that when she didn't move for several minutes, her

joints would freeze up so she is in constant movement at work.

She's on 3 mg pred, trying to reduce it to 2 mg in an effort to get off it

but is having problems. I know there are other RX she's taking as well but

don't remember them all. We talked specifically about the prednisone because

she is rail thin! Everyone I've ever known who's been on that toxic agent is

rounded.

Pam has two Siberian Huskies and a husband with his own health problems and

she takes care of all of them. I know she's been in some serious pain at times

but she never lets it stop her. I know not everyone can be like her and she

gives me encouragement to keep going even when I'm hurting most (like now when

it's been raining non-stop for three days here in SUNNY southern Calif). She is

truly an inspiration.

Loving hugs,

Pattie

ltlmisscrankypants <ltlmisscrankypants@...> wrote:

Hi again...

Seeing as I am new to all of this, I was wondering how many of you are

able to work full-time. Prior to be diagnosed and taking ill in December,

I worked 40-50 hours a week. Now that I am off sick, I spend most of

my day resting or slowly trying to get the easy stuff done around the

house. I am booked off work by my Rheumatologist until at least June,

but don't know if I can return to the same job due to the physical

demands.

Is it possible to find a balance of meds that allows people with severe

RA to lead a " normal " life? Can I support my family again by one day

being able to hold down a job? How debilitating is this?

[Guest guest]

oh and pattie... i took a cab way out to this really well known quilt shop

because i love quilting... and then iwalked way down to this really well known

place to eat.. i think it was and irish place... can't remember the name of the

place...rae

Re: [ ] Just Curious

I thought I'd share a little about my friend, Pam, at work who has had RA

for many years. She's in her mid-forties now and works full time. She and I

have talked a lot lately about RA since it seemed for awhile that I might have

some sort of autoimmune disease of my own ... but so far, the doctor has found

nothing to indicate that. My pain goes on and I will be seeing a physical

therapist next.

Pam is on Remicade now and loves it. She is a very determined lady who has

gone through studies and helped test medicines. She took dance classes during

some of her worst periods of the disease. She refuses to use handicapped

parking spaces and walks constantly. She has deformities in her fingers and

wrists and she walks a little bend over at the waist but she never lets that get

her down. She once told me that when she didn't move for several minutes, her

joints would freeze up so she is in constant movement at work.

She's on 3 mg pred, trying to reduce it to 2 mg in an effort to get off it

but is having problems. I know there are other RX she's taking as well but

don't remember them all. We talked specifically about the prednisone because

she is rail thin! Everyone I've ever known who's been on that toxic agent is

rounded.

Pam has two Siberian Huskies and a husband with his own health problems and

she takes care of all of them. I know she's been in some serious pain at times

but she never lets it stop her. I know not everyone can be like her and she

gives me encouragement to keep going even when I'm hurting most (like now when

it's been raining non-stop for three days here in SUNNY southern Calif). She is

truly an inspiration.

Loving hugs,

Pattie

ltlmisscrankypants <ltlmisscrankypants@...> wrote:

Hi again...

Seeing as I am new to all of this, I was wondering how many of you are

able to work full-time. Prior to be diagnosed and taking ill in December,

I worked 40-50 hours a week. Now that I am off sick, I spend most of

my day resting or slowly trying to get the easy stuff done around the

house. I am booked off work by my Rheumatologist until at least June,

but don't know if I can return to the same job due to the physical

demands.

Is it possible to find a balance of meds that allows people with severe

RA to lead a " normal " life? Can I support my family again by one day

being able to hold down a job? How debilitating is this?

[Guest guest]

, it is possible for and individual to continuing working if his or her

disease is well-controlled. We do have a lot of people who work full-time in

the group.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Just Curious

>

>

>

> Hi again...

>

> Seeing as I am new to all of this, I was wondering how many of you are

> able to work full-time. Prior to be diagnosed and taking ill in December,

> I worked 40-50 hours a week. Now that I am off sick, I spend most of

> my day resting or slowly trying to get the easy stuff done around the

> house. I am booked off work by my Rheumatologist until at least June,

> but don't know if I can return to the same job due to the physical

> demands.

>

> Is it possible to find a balance of meds that allows people with severe

> RA to lead a " normal " life? Can I support my family again by one day

> being able to hold down a job? How debilitating is this?

>

>

>

[Guest guest]

Hi , I am newly diagnosed as well. I just found out in

November and was taken out of work. I cannot imagine trying to work

at this point. Like you said just doing light puttering around the

house is my main goal right now. I hear some people do work with

it, I think a lot depends on if and when the meds work for you.

Also, I am sure it depends on the type of work you do. I personally

feel my main focus though should be on resting and taking care of my

body now that I do have this disease and since the disease itself

makes you tired as do many of the meds, I am not getting my hopes up

too high on the return to work issue, but rather on just trying to

find the right meds to make me comfortable. So far we have managed

to get by financially and I pray that continues. I have found that

a lot of RA patients do some volunteer work at local schools, etc.,

as the schedule is so flexible and if you are having a bad day, it

is not a huge deal if you do not show up or can only stay an hour or

so. Every RA patient that volunteers that I talk to has said it is

a great joy to them and lifts their spirits immensely. Don't give

up hope. I know I am not going to. You can email me anytime if you

need someone to talk to. --- Tracie, age 38

> , it is possible for and individual to continuing working if

his or her

> disease is well-controlled. We do have a lot of people who work

full-time in

> the group.

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] Just Curious

>

>

> >

> >

> >

> > Hi again...

> >

> > Seeing as I am new to all of this, I was wondering how many of

you are

> > able to work full-time. Prior to be diagnosed and taking ill in

December,

> > I worked 40-50 hours a week. Now that I am off sick, I spend

most of

> > my day resting or slowly trying to get the easy stuff done

around the

> > house. I am booked off work by my Rheumatologist until at least

June,

> > but don't know if I can return to the same job due to the

physical

> > demands.

> >

> > Is it possible to find a balance of meds that allows people with

severe

> > RA to lead a " normal " life? Can I support my family again by

one day

> > being able to hold down a job? How debilitating is this?

> >

> >

> >

[Guest guest]

Thanks for all the information. Dana

[Guest guest]

Hi, Thanks for all the information. I live in County. Thanks

again once more, Dana

>

> Hi Dana!

>

> Many of us breast fed our babies who later were diagnosed as

> apraxic. Many of us come from families of no speech impairments.

> About the essential fatty acids in the breast milk -that's true they

> are supposed to be there. If however you don't consume enough in

> your diet, which most of us don't, then the baby's growing brain

> will pull from the mother's supply. We learned this at the First

> Apraxia Conference http://www.cherab.org/news/scientific.html where

> Dr. ph Hibbeln was one of our speakers.

>

> Here's just one article that quotes him:

> " A 1998 study by ph Hibbeln of the National Institutes of Health

> found a significant inverse correlation between DHA intake and

> incidence of clinical depression, and a more recent study by Hibbeln

> found the same relationship between DHA levels in breast milk and

> incidence of postpartum depression. During pregnancy, the placenta

> pumps DHA from the expectant mother to the fetus, increasing the

> mother's susceptibility to depression. "

> http://www.beachpsych.com/pages/cc46.html

>

> Apparently different countries have different amounts

> of EFAs in the breast milk due to today's diet. US is low overall.

>

> Breast fed or formula fed -we have both in this group with apraxia.

> I'm curious if there is anyone here with a child formula fed with

> the new EFA enriched formula that is now apraxic. Anyone?

>

> Since you are from NJ, (didn't someone just say South Jersey?!) One

> of my best friends, -Ross MD is an internist through

> Kimball Medical and refers to her patients (mostly senior citizens)

> as " fish deficient " She supplemented herself with essential fatty

> acids while she was pregnant with her son, and breast fed for awhile

> too. When she started to use formula as well she squeezed a capsule

> of fish oil into the formula. Added a capsule of fish oil to his

> food etc. What's amazing about this is that her son was born a

> preemie due to a pregnancy complication. It's not unusual for

> preemies to be slightly delayed. Her son is above average in his

> abilities! Sounds fishy huh? But it's true -that's why I posted

> her name and where she works because some of you have checked (just

> don't bug her too much because she runs a very busy practice and ask

> her questions she finds silly like why should I give my child fish

> oil or she'll ask you " why do you choose to feed your child french

> fries? " )

>

> (you're from the Tom's River area of Jersey right?)

>

> =====

>

[Guest guest]

Thanks for all the support and encouragement, Dana

[Guest guest]

Dana, I breastfed my daughter Meghan ( she is my youngest who is now almost

16) for about 6 months. She did have a little trouble latching on for the

first two weeks. I noticed it because I have two typical older daughters.

She had drooling issues and was late to walk which is why we went to the

neurologist.

He said at that time ( she was fifteen months) that she would also be late

to talk. He did mention Oral Motor Apraxia. She quickly caught up in the

gross and fine motor activities, never had any trouble swallowing, blowing,

or sucking through a straw, but her speech continues to be an issue for her.

She speaks in phrases and is sometimes hard to understand. She is a great

kid and wants so to fit in. She played on the freshman volleyball team.

Friendships are hard to develop as kids (especially girls) are not always

easy at that age. She is in a special program at school which tailors the

curriculum to her level. She is below grade level but is doing well. She

does very well on the computer and communicates well with some on line

friend by instant messaging. Good luck with your son. (As far as the

relatives go, breastfeeding is not the answer to EVERYTHING. Yeah it gives

them a good start but cannot fix problems that would have been there anyway)

Take care

Joyce Cerulo (Mother to Keryn 24, 19 and Meghan 16(verbal apraxia))

[ ] just curious

> I am a mother of a 4year old with severe apraxia, mild hypotonia, and

> mild right side dysarthria and SID ( sensory seekinig). I was just

> curious about how many mothers breastfed their child who were diagnosed

> with Apraxia. My son was breastfed until he was almost 2 years old,

> and as far as I know breastfeeding is suppose to be the best thing for

> babies it gives them all the nutrients that are in all the fish oils we

> supplement our children with, and it strengthens their oral cavitiy

> because it takes a lot of facial muscles to breastfeed, so I cannot

> understand how my son ended up with muscle and tongue weakness in the

> oral area. Also, my in-laws keep asking me how he ended up with all

> these problems even though I breastfed him Forever! I am going to

> scream! So out of curiousity, how many mom's breastfed their children

> who were diagnosed with oral and verbal Apraxia? I don't know if this

> was ever posted, but I am just curious and would like to inform my in-

> laws that I am not the only mother out there that nursed a child who

> ended up with Apraxia. Thanks for all the info. Dana in NJ (mom to

> 4years old with Apraxia )and ph 6 years old (typical)

>

>

>

>

>

>

>

>

[Guest guest]

Tell your in-laws to research Apraxia and learn about it. They will soon

find out that there is no specific cause of Apraxia. It is not anything you

did or didn't do...I get upset when I hear these stories. People are always

trying to put blame on someone/something. They should put all their

energies on supporting you and assisting whereever possible with your

child.

" Dana & Matt "

<my2boysjm@...>

Sent by: cc:

@yaho Subject:

[ ] just curious

ogroups.com

03/15/2006 08:29 AM

Please respond to

I am a mother of a 4year old with severe apraxia, mild hypotonia, and

mild right side dysarthria and SID ( sensory seekinig). I was just

curious about how many mothers breastfed their child who were diagnosed

with Apraxia. My son was breastfed until he was almost 2 years old,

and as far as I know breastfeeding is suppose to be the best thing for

babies it gives them all the nutrients that are in all the fish oils we

supplement our children with, and it strengthens their oral cavitiy

because it takes a lot of facial muscles to breastfeed, so I cannot

understand how my son ended up with muscle and tongue weakness in the

oral area. Also, my in-laws keep asking me how he ended up with all

these problems even though I breastfed him Forever! I am going to

scream! So out of curiousity, how many mom's breastfed their children

who were diagnosed with oral and verbal Apraxia? I don't know if this

was ever posted, but I am just curious and would like to inform my in-

laws that I am not the only mother out there that nursed a child who

ended up with Apraxia. Thanks for all the info. Dana in NJ (mom to

4years old with Apraxia )and ph 6 years old (typical)

[Guest guest]

I work as a breastfeeding counsellor for WIC until I gain enough clinical

hours to take the IBCLC exam.

My oldest who was a very late talker breastfed 5.5 years and his apraxic

brother breastfed 3.5 years! (It was tandem for those 3.5 years - they

weaned at about the same time.)

I don't wonder why he still has issues even though I breastfed I wonder

where would he be at if I had NOT breastfed! I think the oral strength he

gained from breastfeeding actually masked some of the mild oral dyspraxia

he has. I keep thinking back to when he was a newborn to remember if he

had any latch problems. I had helped so many moms at that point and been

through MAJOR latch issues with my first so if he did they were minor and I

only imagine I corrected them easily without really thinking about it.

Breastfeeding is wonderful for mom and baby, but it won't fix

everything. Breastfed babies still get sick, they can still have speech

issues, but overall statistics show that illness when it happens is overall

milder than with a formula fed baby (less rehospitalization) and if you

look at all kids speech problems are less frequent in kids who are

breastfed. I imagine that mild pronounciation issues are helped the most

with a breastfed child as there are different muscles used in nursing vs.

bottlefeeding, but breastfeeding won't cure apraxia!

Be proud of breastfeeding your child that long. It WAS the best thing for

him. We don't know why apraxia and the other conditions he has happen, but

breastfeeding for sure didn't cause it and don't let anyone think there was

something you could do or shouldn't have done that caused it either!

Miche

At 06:29 AM 3/15/2006, you wrote:

> I am a mother of a 4year old with severe apraxia, mild hypotonia, and

>mild right side dysarthria and SID ( sensory seekinig). I was just

>curious about how many mothers breastfed their child who were diagnosed

>with Apraxia. My son was breastfed until he was almost 2 years old,

>and as far as I know breastfeeding is suppose to be the best thing for

>babies it gives them all the nutrients that are in all the fish oils we

>supplement our children with, and it strengthens their oral cavitiy

>because it takes a lot of facial muscles to breastfeed, so I cannot

>understand how my son ended up with muscle and tongue weakness in the

>oral area. Also, my in-laws keep asking me how he ended up with all

>these problems even though I breastfed him Forever! I am going to

>scream! So out of curiousity, how many mom's breastfed their children

>who were diagnosed with oral and verbal Apraxia? I don't know if this

>was ever posted, but I am just curious and would like to inform my in-

>laws that I am not the only mother out there that nursed a child who

>ended up with Apraxia. Thanks for all the info. Dana in NJ (mom to

> 4years old with Apraxia )and ph 6 years old (typical)

>

[Guest guest]

Hi Dana!

Many of us breast fed our babies who later were diagnosed as

apraxic. Many of us come from families of no speech impairments.

About the essential fatty acids in the breast milk -that's true they

are supposed to be there. If however you don't consume enough in

your diet, which most of us don't, then the baby's growing brain

will pull from the mother's supply. We learned this at the First

Apraxia Conference http://www.cherab.org/news/scientific.html where

Dr. ph Hibbeln was one of our speakers.

Here's just one article that quotes him:

" A 1998 study by ph Hibbeln of the National Institutes of Health

found a significant inverse correlation between DHA intake and

incidence of clinical depression, and a more recent study by Hibbeln

found the same relationship between DHA levels in breast milk and

incidence of postpartum depression. During pregnancy, the placenta

pumps DHA from the expectant mother to the fetus, increasing the

mother's susceptibility to depression. "

http://www.beachpsych.com/pages/cc46.html

Apparently different countries have different amounts

of EFAs in the breast milk due to today's diet. US is low overall.

Breast fed or formula fed -we have both in this group with apraxia.

I'm curious if there is anyone here with a child formula fed with

the new EFA enriched formula that is now apraxic. Anyone?

Since you are from NJ, (didn't someone just say South Jersey?!) One

of my best friends, -Ross MD is an internist through

Kimball Medical and refers to her patients (mostly senior citizens)

as " fish deficient " She supplemented herself with essential fatty

acids while she was pregnant with her son, and breast fed for awhile

too. When she started to use formula as well she squeezed a capsule

of fish oil into the formula. Added a capsule of fish oil to his

food etc. What's amazing about this is that her son was born a

preemie due to a pregnancy complication. It's not unusual for

preemies to be slightly delayed. Her son is above average in his

abilities! Sounds fishy huh? But it's true -that's why I posted

her name and where she works because some of you have checked (just

don't bug her too much because she runs a very busy practice and ask

her questions she finds silly like why should I give my child fish

oil or she'll ask you " why do you choose to feed your child french

fries? " )

(you're from the Tom's River area of Jersey right?)

=====

[Guest guest]

My grandson has apraxia also, he is 3 yrs 10 months old he has a very

small vocabulary, his word is Ma, and then he does the sign or action to show us

what he is trying to say. he might be able to say other words when he is calm

or not even trying to say the word. I started giving him the omega 3 & 9 and

its been two days and i started to notice that he said a new word.....Baby. that

made me so happy. He is getting speech therapy twice a week. and is also

learning sign language. He is very smart and loves all sports. I have Great

Hope and I do believe that he will talk and if not talk he will learn to

communicate I have been looking on the internet for a communicator for him.

Some come w/picture and sounds and others are for older childern and adults

which is the keyboard w/speakers as you type it speaks so that is something

great for childern this will I think help them so they will not get restless

that they can't communicate. Let just stick together if anyone

has other ideas please let me know.

thank you and God Bless.

Akian <kristena@...> wrote:

I am the mother of a 4.5 year old who was breastfed for 13 months. He

showed signs of oral apraxia from the moment of birth (he had a poor suck

and I even commented to the post partum nurse, who thought I was a crazy

first time mother.) I am also a pediatric nurse who has had years of

experience feeding children with speech and feeding difficulties. I knew my

son was showing signs of oral motor dysfunction from the very beginning;

unfortunately, no one else believed there was anything wrong until he walked

and his " global apraxia " signs became more significant. I was interested

(seeing as my son has a left sided deficit) to read your post b/c I do not

find that many people write here about children who seem to display

dysarthria signs on predominately one side of their body. This just shows

you that the apraxia has nothing to due with being breastfed; otherwise it

would not have been apparent in my sons first day of life.

, in NJ

_____

From:

[mailto: ] On Behalf Of Dana & Matt

Sent: Wednesday, March 15, 2006 8:30 AM

Subject: [ ] just curious

I am a mother of a 4year old with severe apraxia, mild hypotonia, and

mild right side dysarthria and SID ( sensory seekinig). I was just

curious about how many mothers breastfed their child who were diagnosed

with Apraxia. My son was breastfed until he was almost 2 years old,

and as far as I know breastfeeding is suppose to be the best thing for

babies it gives them all the nutrients that are in all the fish oils we

supplement our children with, and it strengthens their oral cavitiy

because it takes a lot of facial muscles to breastfeed, so I cannot

understand how my son ended up with muscle and tongue weakness in the

oral area. Also, my in-laws keep asking me how he ended up with all

these problems even though I breastfed him Forever! I am going to

scream! So out of curiousity, how many mom's breastfed their children

who were diagnosed with oral and verbal Apraxia? I don't know if this

was ever posted, but I am just curious and would like to inform my in-

laws that I am not the only mother out there that nursed a child who

ended up with Apraxia. Thanks for all the info. Dana in NJ (mom to

4years old with Apraxia )and ph 6 years old (typical)

[Guest guest]

Thank you for your replies. All of you support and help and just sharing

your stories are so helpful and refreshing to know that I am not the only mom

out there with these problems. Thanks Dana in NJ

[Guest guest]

I nursed all my kids until age 2 - given the strong family history of

allergy. My youngest has apraxia. The other 2 have dyslexia. My nearly 5

year old had signs of ADHD that have resolved with omega supplements.

Apraxia really isn't " muscle weakness " in the tongue - its more a motor

planning problem (although some kids also have low tone). Nursing and suck

is a very primitive reflex. These children are really not " Planning " -

although I believe some apraxic children have feeding swallowing issues -

not all do. It makes complete sense that these children would breastfeed

fine once they got the hang of it. I'm not sure this is all just

" nutritional " . You did a wonderful thing for your child by nursing for that

long. Don't let anyone make you feel bad or guilty about this. It is truly

the best source of nutrition for your child. Your child's apraxia likely has

nothing to do with his initial diet. Given the need for such high doses in

my son, I suspect at least in some cases - that there is some reason a

deficiency develops - abnormal processing/metabolism or some enzyme that's

not doing its job, resulting in a need for much higher levels of omega 3 to

be utilized properly. I suspect genetics will also play a contributing role

for some kids. (We have a strong family hx of dyslexia and ADHD).

[ ] just curious

I am a mother of a 4year old with severe apraxia, mild hypotonia, and

mild right side dysarthria and SID ( sensory seekinig). I was just

curious about how many mothers breastfed their child who were diagnosed

with Apraxia. My son was breastfed until he was almost 2 years old,

and as far as I know breastfeeding is suppose to be the best thing for

babies it gives them all the nutrients that are in all the fish oils we

supplement our children with, and it strengthens their oral cavitiy

because it takes a lot of facial muscles to breastfeed, so I cannot

understand how my son ended up with muscle and tongue weakness in the

oral area. Also, my in-laws keep asking me how he ended up with all

these problems even though I breastfed him Forever! I am going to

scream! So out of curiousity, how many mom's breastfed their children

who were diagnosed with oral and verbal Apraxia? I don't know if this

was ever posted, but I am just curious and would like to inform my in-

laws that I am not the only mother out there that nursed a child who

ended up with Apraxia. Thanks for all the info. Dana in NJ (mom to

4years old with Apraxia )and ph 6 years old (typical)

[Guest guest]

I breastfed both my kids for 2+ years, and my daughter was dx with

apraxia but not my son. I would guess that the great majority of

children with apraxia did not get long-term breastfeeding. I have

always felt guilty because my son showed his first symptoms of autism

not long after I weaned him. I wish pregnant and nursing mothers were

given more encouragement to take EFAs themselves. My midwife talked to

me about taking other nutrients, like folic acid and iron, but never

about EFAs.

>

> Hi Dana!

>

> Many of us breast fed our babies who later were diagnosed as

> apraxic. Many of us come from families of no speech impairments.

> About the essential fatty acids in the breast milk -that's true they

> are supposed to be there. If however you don't consume enough in

> your diet, which most of us don't, then the baby's growing brain

> will pull from the mother's supply. We learned this at the First

> Apraxia Conference http://www.cherab.org/news/scientific.html where

> Dr. ph Hibbeln was one of our speakers.

>

> Here's just one article that quotes him:

> " A 1998 study by ph Hibbeln of the National Institutes of Health

> found a significant inverse correlation between DHA intake and

> incidence of clinical depression, and a more recent study by Hibbeln

> found the same relationship between DHA levels in breast milk and

> incidence of postpartum depression. During pregnancy, the placenta

> pumps DHA from the expectant mother to the fetus, increasing the

> mother's susceptibility to depression. "

> http://www.beachpsych.com/pages/cc46.html

>

> Apparently different countries have different amounts

> of EFAs in the breast milk due to today's diet. US is low overall.

>

> Breast fed or formula fed -we have both in this group with apraxia.

> I'm curious if there is anyone here with a child formula fed with

> the new EFA enriched formula that is now apraxic. Anyone?

>

> Since you are from NJ, (didn't someone just say South Jersey?!) One

> of my best friends, -Ross MD is an internist through

> Kimball Medical and refers to her patients (mostly senior citizens)

> as " fish deficient " She supplemented herself with essential fatty

> acids while she was pregnant with her son, and breast fed for awhile

> too. When she started to use formula as well she squeezed a capsule

> of fish oil into the formula. Added a capsule of fish oil to his

> food etc. What's amazing about this is that her son was born a

> preemie due to a pregnancy complication. It's not unusual for

> preemies to be slightly delayed. Her son is above average in his

> abilities! Sounds fishy huh? But it's true -that's why I posted

> her name and where she works because some of you have checked (just

> don't bug her too much because she runs a very busy practice and ask

> her questions she finds silly like why should I give my child fish

> oil or she'll ask you " why do you choose to feed your child french

> fries? " )

>

> (you're from the Tom's River area of Jersey right?)

>

> =====

>

[Guest guest]

> I'm curious if there is anyone here with a child formula fed with

> the new EFA enriched formula that is now apraxic. Anyone?

>

Hi ,

My family history is that my oldest Meg (3.5 apraxic) was very bad

at latching on and really was having a hard time in general

breastfeeding, so being a first-time mom I gave up in less than a

week. She was NOT on EFA-enriched formula, because she was on a

special one (Nutramigen) that didn't come enriched at that time. My

second daughter Kate breastfed until around 6 months and then went

on the EFA-enriched formula, and she is definitely NOT apraxic.

So my family does support the theory.

Kerri

[Guest guest]

>Apraxia really isn't " muscle weakness " in the tongue - its more a motor

>planning problem (although some kids also have low tone).

Just to clarify, the original posted who asked and said her son had muscle

weakness also mentioned that he had dysarthria as well as apraxia.

Miche