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  • 4 weeks later...

Carey,It's quite common for the ANA to come down after proper explant. Along with the ANA, a bunch of autoimmune-like diagnoses also fade away. A good breast cancer reconstruction surgeon should be able to do the job right. Just ask how he removes implants. . . You want him to voluntarily tell you that he either removes implants "en bloc", or at the minimum does a complete capsulectomy. You also want him to tell you that he will be using drains. . . If he goes negative on you . .. telling you that you won't get well or that you'll be deformed, you have the wrong doctor. . . You might want to keep looking for doctors while you wait.As to your sudden swelling, I don't know what it might be . .

.. implant related or not . . . Any chance you are extremely allergic to something? . . . How did you come to have an epi pen with you?A major concern with saline implants is toxic shock caused by the rupture of a highly contaminated implant/capsule . . . I don't think you fit in that category though. I'm glad you knew what to do, and had what you needed!Prednisone is an 'enjoy it now, pay later' medication. Hopefully you won't be on it long.Hugs and prayers,Rogene

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Carey,It's quite common for the ANA to come down after proper explant. Along with the ANA, a bunch of autoimmune-like diagnoses also fade away. A good breast cancer reconstruction surgeon should be able to do the job right. Just ask how he removes implants. . . You want him to voluntarily tell you that he either removes implants "en bloc", or at the minimum does a complete capsulectomy. You also want him to tell you that he will be using drains. . . If he goes negative on you . .. telling you that you won't get well or that you'll be deformed, you have the wrong doctor. . . You might want to keep looking for doctors while you wait.As to your sudden swelling, I don't know what it might be . .

.. implant related or not . . . Any chance you are extremely allergic to something? . . . How did you come to have an epi pen with you?A major concern with saline implants is toxic shock caused by the rupture of a highly contaminated implant/capsule . . . I don't think you fit in that category though. I'm glad you knew what to do, and had what you needed!Prednisone is an 'enjoy it now, pay later' medication. Hopefully you won't be on it long.Hugs and prayers,Rogene

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the facial, feet,fingers, joint swelling started back in July 05, rheumy said the symptoms are my body's response to this auto immune thing. i had an epi pen because back in september, the swelling went to my tongue and i had trouble talking. we have looked into different allergies or chemicals but have found nothing.thanks for the information!

In a message dated 2/17/2008 1:10:16 A.M. US Eastern Standard Time, saxony01@... writes:

Carey,It's quite common for the ANA to come down after proper explant. Along with the ANA, a bunch of autoimmune-like diagnoses also fade away. A good breast cancer reconstruction surgeon should be able to do the job right. Just ask how he removes implants. . . You want him to voluntarily tell you that he either removes implants "en bloc", or at the minimum does a complete capsulectomy. You also want him to tell you that he will be using drains. . . If he goes negative on you . .. telling you that you won't get well or that you'll be deformed, you have the wrong doctor. . . You might want to keep looking for doctors while you wait.As to your sudden swelling, I don't know what it might be . . . implant related or not . . . Any chance you are extremely allergic to something? . . . How did you come to have an epi pen with you?A major concern with saline implants is toxic shock caused by the rupture of a highly contaminated implant/capsule . . . I don't think you fit in that category though. I'm glad you knew what to do, and had what you needed!Prednisone is an 'enjoy it now, pay later' medication. Hopefully you won't be on it long.Hugs and prayers,Rogene

Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.

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the facial, feet,fingers, joint swelling started back in July 05, rheumy said the symptoms are my body's response to this auto immune thing. i had an epi pen because back in september, the swelling went to my tongue and i had trouble talking. we have looked into different allergies or chemicals but have found nothing.thanks for the information!

In a message dated 2/17/2008 1:10:16 A.M. US Eastern Standard Time, saxony01@... writes:

Carey,It's quite common for the ANA to come down after proper explant. Along with the ANA, a bunch of autoimmune-like diagnoses also fade away. A good breast cancer reconstruction surgeon should be able to do the job right. Just ask how he removes implants. . . You want him to voluntarily tell you that he either removes implants "en bloc", or at the minimum does a complete capsulectomy. You also want him to tell you that he will be using drains. . . If he goes negative on you . .. telling you that you won't get well or that you'll be deformed, you have the wrong doctor. . . You might want to keep looking for doctors while you wait.As to your sudden swelling, I don't know what it might be . . . implant related or not . . . Any chance you are extremely allergic to something? . . . How did you come to have an epi pen with you?A major concern with saline implants is toxic shock caused by the rupture of a highly contaminated implant/capsule . . . I don't think you fit in that category though. I'm glad you knew what to do, and had what you needed!Prednisone is an 'enjoy it now, pay later' medication. Hopefully you won't be on it long.Hugs and prayers,Rogene

Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.

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Carey ~

Sounds like your body is really confused and

hating the implants and the contents of them.

Bless your heart, I know you must be scared,

on top of feeling pretty darn punky. Just want

to tell ya you are in my prayers, and I agree with

Rogene. After proper explant and detoxing, I

feel you will heal. Your body is having quite the

reaction right now, mine did that when I had a

silicone rupture back in the 90's. I lived on steroids

had enough to kill a dinasour. I now have horrible

osteoporosis from it. I was on very heavy

doses for a number of years back then. IV, injections

trigger point injections, and by mouth. Way too many steroids !

Just try to limit them and be sure and eat bone healthy.

God Bless YOU ~ Hugs ~ Dede

Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.

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Carey ~

Sounds like your body is really confused and

hating the implants and the contents of them.

Bless your heart, I know you must be scared,

on top of feeling pretty darn punky. Just want

to tell ya you are in my prayers, and I agree with

Rogene. After proper explant and detoxing, I

feel you will heal. Your body is having quite the

reaction right now, mine did that when I had a

silicone rupture back in the 90's. I lived on steroids

had enough to kill a dinasour. I now have horrible

osteoporosis from it. I was on very heavy

doses for a number of years back then. IV, injections

trigger point injections, and by mouth. Way too many steroids !

Just try to limit them and be sure and eat bone healthy.

God Bless YOU ~ Hugs ~ Dede

Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.

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  • 1 year later...
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Those patients were taking high doses of Naltrexone because they were heroin

addicts.

Read interview with Dr. Bihari:

Dr. Kokayi: …the story about Low Dose Naltrexone is really fascinating. How did

you get the idea?

Dr. Bihari: Well, we were treating heroin addicts, and in 1984 a new drug for

the treatment of addiction came out. It was called Naltrexone, and it was

designed to block the heroin " high " and it was a flop. I used it for a lot of

patients, as did most addiction doctors across the country. At 50 milligrams a

day, it made people feel terrible. Not that it blocked the heroin so much as it

blocked their own endorphins, which is a source of our sense of well-being, so

that people couldn't sleep.

Dr. Kokayi: Your own opium, basically.

Dr. Bihari: Right. Your own equivalent. That's what heroin is. And I knew

from work that had been done by the National Institute on Drug Abuse in

developing the drug that it had the ability to trigger the body into making more

endorphins, but at the high 50 milligram dosage, the dose was too high. It

blocks those endorphins.

About six months later our addicts began dying in large numbers of AIDS. I ran

HIV tests on about a hundred addicts, and fifty percent were already HIV

positive. This was in 1985; currently it's eighty eighty-five percent around

the country. And we began looking for some way to approach this new disease,

with a view to the idea that

this disease was likely to turn into a worldwide epidemic.

Dr. Kokayi: That was about the time where people were just being blasted with

AZT with horrific results.

Dr. Bihari: Right. There was nothing else available. When I discovered that

people with HIV had less than twenty percent of the normal levels of endorphins,

that meant that the virus not only kills the immune system cells, it also

weakens the whole immune system, so that it's not as able to fight the virus.

We began looking for ways to use this drug to raise endorphins without blocking

them. We hired a laboratory scientist to measure endorphin levels. We'd

measure in the afternoon, then we'd give the first dose at bedtime that night.

Then we'd measure again at the same time the next day; then again at one week,

and again at one month.

We found that doses in the range of 1.75 to 4.5 milligrams (which is just a

fraction of the recommended dosage to addicts) would trigger or jumpstart

endorphin production during the night.

Except with exercise, endorphins are made only between two and four in the

morning. The brain sends a message out to the adrenal and pituitary glands and

tells them to make endorphins. Giving a dose three, four, five hours before

that, at bedtime, is enough to make that message from the brain much stronger.

http://www.low dose naltrexone.org/gazorpa/interview.html

Art

--

>

> I was reading the history of LDN and I read that Dr Bihari noticed that AIDS

patients using Naltrexone dint develop immune dysfunctions as other AIDS

patients that werent taking Naltrexone. Here is my dillema. The AIDS patients

were taking Naltrexone in doses of 50-300 mg. If the dosage was that high how

come everyone insists on a maximum of 4.5mg.

> It appears to me that even high doses work.

>

> I hope someone clears this up for me.

> leon

>

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