Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 I am so sorry you are going through this rogene You are definitely in my prayers. Love In a message dated 2/29/2008 6:17:17 P.M. Eastern Standard Time, coss@... writes: Oh Rogene,I am so sorry. I know exactly how it feels to get that type of news.LyndaAt 03:51 PM 2/29/2008, you wrote:>Thanks Ladies,>>I'm going to need a lot more prayers.>>I just talked to the doctor. I have temporal bone, squamous cell ear cancer.>>It's going to require fairly extensive surgery, then radiation. . . >assuming I go that route . . . and I probably will. . . Right now, I >just want it OUT and everything over with!>>I'm still reeling from the news. . . hubby is in town . . . wish he >was here right now.>>Hugs to all of you,>>Rogene>> Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Rogene, So sorry to hear you have to go through all this. I am home now. Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Welcome home Lynda, I hope you had a most relaxing time and are feeling a little renewed! Hugs, Patty > > Rogene, > > So sorry to hear you have to go through all this. > > I am home now. > > Lynda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Thanks Ladies,I'm going to need a lot more prayers.I just talked to the doctor. I have temporal bone, squamous cell ear cancer. It's going to require fairly extensive surgery, then radiation. . . assuming I go that route . . . and I probably will. . . Right now, I just want it OUT and everything over with! I'm still reeling from the news. . . hubby is in town . . . wish he was here right now.Hugs to all of you,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Lynda, I am happy you are home safe. I have missed your posts. How are you feeling? I hope the vacation has helped. Love, Lynn > > Rogene, > > So sorry to hear you have to go through all this. > > I am home now. > > Lynda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Oh Rogene, Darn it! Many prayers are coming your way. Much love, Lynn > > Thanks Ladies, > > I'm going to need a lot more prayers. > > I just talked to the doctor. I have temporal bone, squamous cell ear cancer. > > It's going to require fairly extensive surgery, then radiation. . . assuming I go that route . . . and I probably will. . . Right now, I just want it OUT and everything over with! > > I'm still reeling from the news. . . hubby is in town . . . wish he was here right now. > > Hugs to all of you, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Oh Rogene, I am so sorry. I know exactly how it feels to get that type of news. Lynda At 03:51 PM 2/29/2008, you wrote: >Thanks Ladies, > >I'm going to need a lot more prayers. > >I just talked to the doctor. I have temporal bone, squamous cell ear cancer. > >It's going to require fairly extensive surgery, then radiation. . . >assuming I go that route . . . and I probably will. . . Right now, I >just want it OUT and everything over with! > >I'm still reeling from the news. . . hubby is in town . . . wish he >was here right now. > >Hugs to all of you, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Hi everyone, Now that I am home, I can fill everyone in on what is happening. I am scheduled for chemo again on Tues. I can tell you that the anxiety and panic started this last Wed. I am trying to control it, but it seems to be winning. I have figured out a lot of things about how I feel about all of this. First of all, I am angry as hell. That anger has many components. There is fear (a lot of fear), there is the loss of control over my life, there is the pain that my family and friends are feeling, there is the angry and not being able to do the things I normally do that make me who I am (or feel like I am who I am) and then there is the deep, deep anger at my body for betraying me so seriously. There may be more components to this anger, but these are the ones I have identified this last week. There is also the need to try to not see the chemo as the enemy of my body (which in some ways it is, but it also kills the cancer cells, so it could be seen as my friend). I cannot see it that way at this point. I need to work on that. So, as you can see, I have been thinking and feeling a lot of things, and now have to decide how to work on all of these issues. I had two thoracentesis while in Hawaii, and will continue to have to have them at regular intervals until the chemo destroys enough of the cancer to allow the drainage to occur naturally. I am going to try to spread out the intervals so I have less of these. That may be possible and it may not be possible. I have many things to think about and deal with, and then I have the side effects of the chemo to also deal with. And the possible (they say probable) loss of my hair, which also effects self-esteem and trying to feel positive. And one must feel positive if one is to fight this disease. This is probably not the whole picture, but it just lets you know what I have been doing with my time and energy while I was enjoying the healing environment of the Big Island of Hawaii. Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Lynda, I can relate at a much lesser level on the anger issue. I am so upset what the implants did to my immune system, with each new symptom I get more angry I get at my body for fighting itself. I am going to stay positive for you though. You are right, the chemo can be your friend even though it is making you ill right now. I hope you can find some wigs to help. My MILs worst issue with her cancer was losing her hair. I don't know what else I can say but I am sorry and I am here for you when you need to vent. If you need anything, I can always come by and help you. Please let me know. If I am not at work, I can make it work. Prayers and hugs. Love, Lynn > > Hi everyone, > > Now that I am home, I can fill everyone in on what is happening. > > I am scheduled for chemo again on Tues. I can tell you that the > anxiety and panic started this last Wed. I am trying to control it, > but it seems to be winning. > > I have figured out a lot of things about how I feel about all of this. > > First of all, I am angry as hell. That anger has many > components. There is fear (a lot of fear), there is the loss of > control over my life, there is the pain that my family and friends > are feeling, there is the angry and not being able to do the things I > normally do that make me who I am (or feel like I am who I am) and > then there is the deep, deep anger at my body for betraying me so seriously. > > There may be more components to this anger, but these are the ones I > have identified this last week. > > There is also the need to try to not see the chemo as the enemy of my > body (which in some ways it is, but it also kills the cancer cells, > so it could be seen as my friend). I cannot see it that way at this > point. I need to work on that. > > So, as you can see, I have been thinking and feeling a lot of things, > and now have to decide how to work on all of these issues. > > I had two thoracentesis while in Hawaii, and will continue to have to > have them at regular intervals until the chemo destroys enough of the > cancer to allow the drainage to occur naturally. I am going to try > to spread out the intervals so I have less of these. That may be > possible and it may not be possible. > > I have many things to think about and deal with, and then I have the > side effects of the chemo to also deal with. And the possible (they > say probable) loss of my hair, which also effects self-esteem and > trying to feel positive. And one must feel positive if one is to > fight this disease. > > This is probably not the whole picture, but it just lets you know > what I have been doing with my time and energy while I was enjoying > the healing environment of the Big Island of Hawaii. > > Lynda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 OMG, Rogene, I am just shocked by this news! This does not sound good. But, you are a fighter, dear one. You've fought this before, you can fight it again and win. It concerns me that both you and Lynda have been long term breast implant survivors, but are still both fighting TWO separate diagnoses of cancer in two different places. It is not good news. We will definitely be praying for you. Patty > > Thanks Ladies, > > I'm going to need a lot more prayers. > > I just talked to the doctor. I have temporal bone, squamous cell ear cancer. > > It's going to require fairly extensive surgery, then radiation. . . assuming I go that route . . . and I probably will. . . Right now, I just want it OUT and everything over with! > > I'm still reeling from the news. . . hubby is in town . . . wish he was here right now. > > Hugs to all of you, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Rogene...I will keep you close to my heart and in my prayers. I am sorry about the news BUT I KNOW you have the information, attitude, and health to get through this. I am not at all familiar with this but I will do some searches on it to get a better understanding of what is going on. Do you have any info on when they are wanting to do the surgery and treatments??? Keep us posted....I know I can speak for everyone here....we are here for you!!!! Love, Beth Re: Re: Rogene, ear Thanks Ladies,I'm going to need a lot more prayers.I just talked to the doctor. I have temporal bone, squamous cell ear cancer. It's going to require fairly extensive surgery, then radiation. . . assuming I go that route . . . and I probably will. . . Right now, I just want it OUT and everything over with! I'm still reeling from the news. . . hubby is in town . . . wish he was here right now.Hugs to all of you,Rogene Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Rogene, I am so sorry you got such a bad report from the doctor. I just wanted to say that you are in my prayers. Blessings, April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Thanks Ladies!I'll see the surgeon again Monday. He's going to order a CT scan to see if there's any cancer in my lymph nodes . . . Hopefully not! . . . that would call for chemo. Funny thing, I saw where Coumadin is supposed to have anti-tumor properties . . . it seems to act like fertilizer on me!The surgeon needs to put together a team of doctors . . . and a time allotment for an operating room . . . Right now there are no available hospital beds due to the flu. . . I can't see that getting better very soon! But I'm sure he'll work it out.I want to consult with the oncologist who's been monitoring me after breast cancer two years ago. It would be wonderful if they could use the type of pinpoint radiation in my ear they used for my breast. . . Five days, minimal radiation, no burns, no fatigue, nothing but an inconvenience. (Mammosite radiation therapy). I also want to find a hematologist to manage my blood thinning meds throughout. I don't have confidence in my primary care doctor to manage them. My oncologist is a hematologist too. Maybe he'll supervise my care through this situation.I'm checking into a cancer nutritionist who helped a woman we met in Alaska. . . She had cancer in multiple locations, but was doing great, going strong. . . I've sent a message to her to see if she stills feel as strongly that nutrition has done the job. If so, I'll contact her nutritionist.I'm also checking out a doctor that a former member sees in Tulsa, Oklahoma. His degree is in pharmacology. He specializes in cancer treatment - Dr. LeuWe were scheduled for a month long cruise in May . . . Radiation therapy will land on top of that! . . . So, we'll either have to cancel or delay it. . . I'd much rather delay it to when I'm feeling great again! Someone sent me "The Secret" ... I haven't even checked it out yet. . . I saw on the Silva Mind Control group where someone had gotten rid of her cancer using Reiki and Silva. . . That would be my ideal treatment! I figure I have a couple weeks to figure things out before they start cutting! . . . I'd love for it to dry up and fall out before then. I'm probably going to be a bit scare on the group. I need to put my energy into healing right now . . . So, if my posts become a bit erratic, know I'm there in spirit . . . If you'll send messages with my name in the Subject line, I'll be sure to get to them. Please keep me in your prayers . . . I'm going to need a bunch!God Bless,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Yep, it does seem like we've done our time.I'm regrouping today . . . developing a plan of action. I know one thing for sure. I'm going to get through this and come out fine on the other side. We had a trip planned for the month of May . . . Hubby first canceled it . . . called back a few minutes later and put it on hold . . . then rescheduled it this morning. I feel ever so much better knowing that we will be taking the trip of a lifetime. I can really relate to how Lynda felt . . . Cancer is one thing, but giving up on a long anticipated trip pours salt into the wounds. I'm going to take a back seat with the group for now. I need to pour all my energy into getting well . . . My thoughts and prayers will be with everyone. Hugs and prayers,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Yep, it does seem like we've done our time.I'm regrouping today . . . developing a plan of action. I know one thing for sure. I'm going to get through this and come out fine on the other side. We had a trip planned for the month of May . . . Hubby first canceled it . . . called back a few minutes later and put it on hold . . . then rescheduled it this morning. I feel ever so much better knowing that we will be taking the trip of a lifetime. I can really relate to how Lynda felt . . . Cancer is one thing, but giving up on a long anticipated trip pours salt into the wounds. I'm going to take a back seat with the group for now. I need to pour all my energy into getting well . . . My thoughts and prayers will be with everyone. Hugs and prayers,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Rogene- We will miss you like crazy, but your health comes first! We will be thinking about you and praying for you as you start your treatment and focus on your health. I'm so glad to hear you didn't cancel your trip. Can't wait to see you come back and say " I've kicked the stupid cancer's butt! " Much Love, Krista > > Yep, it does seem like we've done our time. > > I'm regrouping today . . . developing a plan of action. I know one thing for sure. I'm going to get through this and come out fine on the other side. > > We had a trip planned for the month of May . . . Hubby first canceled it . . . called back a few minutes later and put it on hold . .. . then rescheduled it this morning. I feel ever so much better knowing that we will be taking the trip of a lifetime. > > I can really relate to how Lynda felt . . . Cancer is one thing, but giving up on a long anticipated trip pours salt into the wounds. > > I'm going to take a back seat with the group for now. I need to pour all my energy into getting well . . . My thoughts and prayers will be with everyone. > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Rogene- We will miss you like crazy, but your health comes first! We will be thinking about you and praying for you as you start your treatment and focus on your health. I'm so glad to hear you didn't cancel your trip. Can't wait to see you come back and say " I've kicked the stupid cancer's butt! " Much Love, Krista > > Yep, it does seem like we've done our time. > > I'm regrouping today . . . developing a plan of action. I know one thing for sure. I'm going to get through this and come out fine on the other side. > > We had a trip planned for the month of May . . . Hubby first canceled it . . . called back a few minutes later and put it on hold . .. . then rescheduled it this morning. I feel ever so much better knowing that we will be taking the trip of a lifetime. > > I can really relate to how Lynda felt . . . Cancer is one thing, but giving up on a long anticipated trip pours salt into the wounds. > > I'm going to take a back seat with the group for now. I need to pour all my energy into getting well . . . My thoughts and prayers will be with everyone. > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Rogene, Please keep us informed. We will miss your input. And we will be praying that you have the very best outcome. Lynda At 08:37 AM 3/1/2008, you wrote: >Yep, it does seem like we've done our time. > >I'm regrouping today . . . developing a plan of action. I know one >thing for sure. I'm going to get through this and come out fine on >the other side. > >We had a trip planned for the month of May . . . Hubby first >canceled it . . . called back a few minutes later and put it on hold >. . . then rescheduled it this morning. I feel ever so much better >knowing that we will be taking the trip of a lifetime. > >I can really relate to how Lynda felt . . . Cancer is one thing, but >giving up on a long anticipated trip pours salt into the wounds. > >I'm going to take a back seat with the group for now. I need to pour >all my energy into getting well . . . My thoughts and prayers will >be with everyone. > >Hugs and prayers, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Rogene, Please keep us informed. We will miss your input. And we will be praying that you have the very best outcome. Lynda At 08:37 AM 3/1/2008, you wrote: >Yep, it does seem like we've done our time. > >I'm regrouping today . . . developing a plan of action. I know one >thing for sure. I'm going to get through this and come out fine on >the other side. > >We had a trip planned for the month of May . . . Hubby first >canceled it . . . called back a few minutes later and put it on hold >. . . then rescheduled it this morning. I feel ever so much better >knowing that we will be taking the trip of a lifetime. > >I can really relate to how Lynda felt . . . Cancer is one thing, but >giving up on a long anticipated trip pours salt into the wounds. > >I'm going to take a back seat with the group for now. I need to pour >all my energy into getting well . . . My thoughts and prayers will >be with everyone. > >Hugs and prayers, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
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