Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 In a message dated 12/29/99 11:44:17 AM Pacific Standard Time, gayk@... writes: I shared with you that our daughter, age 9, with HCV is undergoing combination therapy through the Shering-Plough study. She has held her weight pretty well and has grown almost an inch (we are now in week 8 of treatment). ******** I`m happy for your good news....such a young one.......could you tell me please, was your daughter exibiting any symptoms, prior to Tx? Is she injecting the meds? How does she tolerate taking them? tia, debmc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 That's Wonderful! Carol Update on treatment >From: Gay Ketterer <gayk@...> > >I shared with you that our daughter, age 9, with HCV is undergoing >combination therapy through the Shering-Plough study. We just got the >results of the RNA test that was done following week 4 of treatment. As of >week 4, she is suppressed with negative RNA <100 copies/ml.!! > >We are elated. Now only 40 more weeks to go! At least we know that >something is working and we are encouraged. She is handling it very well. >She has had some itchiness on her fingers, some anxiety. Sometimes she >appears a little more tired than usual and sometimes her appetite isn't >quite what it used to be. She has held her weight pretty well and has >grown almost an inch (we are now in week 8 of treatment). Only 40 more >weeks to go! > >Just wanted to share the good news! > >Gay K > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 1999 Report Share Posted December 31, 1999 Great news, Gay. I am so very happy for you and especially for your daughter. Seeing what this horrible disease does to my husband, I can't imagine having to watch my child go through it. I hope she continues to do well with the treatment. Jeanie Subject: Update on treatment > > > >From: Gay Ketterer <gayk@...> > > > >I shared with you that our daughter, age 9, with > HCV is undergoing > >combination therapy through the Shering-Plough > study. We just got the > >results of the RNA test that was done following > week 4 of treatment. As of > >week 4, she is suppressed with negative RNA <100 > copies/ml.!! > > > >We are elated. Now only 40 more weeks to go! At > least we know that > >something is working and we are encouraged. She is > handling it very well. > >She has had some itchiness on her fingers, some > anxiety. Sometimes she > >appears a little more tired than usual and > sometimes her appetite isn't > >quite what it used to be. She has held her weight > pretty well and has > >grown almost an inch (we are now in week 8 of > treatment). Only 40 more > >weeks to go! > > > >Just wanted to share the good news! > > > >Gay K > > > >> > > <HR> <html> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Dear Kate, You are doing great! Yes, 11 weeks is when it starts to fall out-- hope you don't have natural curls, LOL. Interferon hair is stick- straight. My curls are now growing back in, six months after the 48 week tx.... Also, many of us do experience an increase in sides after the first three months. Like you said, it's one day at a time. I pray you don't get as sick as I did. For me, the first three months were a breeze, but by six months I was just trying to keep going! It was very difficult to get through the seventh and eighth month--piece of rotten cake after that, LOL. Now is the time your blood might begin to show decreases which your doc's will monitor. If you feel really fatigued, or out of breath, your RBC is going down...I think that was the worst symptom I had. Procrit helped! Hang in there, you are doing great. Kill, kill and kill that virus some more! Hugs and prayers, Suzy > I have taken TX for 11 weeks now and have had very little side > effects...I have lost a little hair but that is all so far. My moods > are managable. I have noticed only that I am a little more blunt but > that may be a good think. I just thought I would post this for > anyone considering treatment... I was so scared in the beginning but > everyone here was so supportive. So far So Good. I don't know if > this is usual and things will get worse later. I pray that this is > as bad as it get. Could I be so lucky??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Aloha ! Have a safe trip and enjoy, enjoy, enjoy! Hugs, Cherie > > Heading to Hawaii today. Had the pleural cavity drained late > yesterday. Will have to have it done in Hawaii, but otherwise do not > intend to think much about treatment if I can avoid it. Nausea still > hangs on a bit. They are going to work on new strategies to cut that > down a lot more. Hope it works. They did not like the weight > loss. I had actually gained back 2 pounds when they last weighed > me. The hand-foot syndrome and the mouth sores will be the biggest challenge. > > Next treatment March 4th. I have a little time to get ready after I > get home. Not looking forward to it. > > Lynda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Lynda, Have you tried using baking soda it has been helping me with the candida and mouth sores. I take what the box recommends 1/2 teaspoons up to seven times a day. Love In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time, happy2bexplanted@... writes: Dear Lynda, I'm praying for you that the thrush and canker will heal quickly so you'll be able to have your treatments on time. Diflucan is probably a very good idea. It works great for yeast related problems. Hang in there! You are a survivor and you will get through this. Prayers are being offered in your behalf. Love, a update on treatment Friends asked if I had a great Easter. For Easter I suffered with thrush and canker sores, friends invited us down to Broomfield for dinner after church and we could not go because I could not eat. So, I fixed Bob dinner and ate some very soft lemon bread (with a helping of pain). I was nauseated from the Mycelex (for the thrush) and had to quit it when it gave me the runs (horribly). Back to the swish and swallow (Lidocaine and Nystatin). For the canker sores I am taking L-lysine in huge doses. It has made them smaller, but not taken them away.I talked to the doctor's office today. I told them these sores had to go away before I could do chemo again. I have 10 days to get rid of them. If they don't go away by then, I could have them all of next month if I do chemo again. If they can find a way to kill the pain from them, then maybe??????? ???????? They are going to call me tomorrow to see if we can find some other things to do. In addition, I am calling my naturopath for help. I may take diflucan to see if that helps. I see an eye doc on Wed. because I am having some visual blurring also. So side effects are getting me. What may happen is a reduction in the dosage of chemo. Often with doxil this happens.I have an appt. with a neurologist Wed. A.M. to see what can be done for the RSD that is getting more painful daily. I want them to do a sympathetic nerve block to see if this stops the pain, because if it does, that means they can stop it permanently. It would have to be done soon, before the dystrophy sets in. This on top of chemo. I want so badly to get back to doing hyperbaric treatment. It could be months before that could happen, however.Now, I really want to do this next treatment on time, as I have a wedding to get to in Missouri on the 19th. I want to be over the worst of the side effects by then. Besides, I need to do the next one early in May because of Bob's family all coming the end of May. So I want them to be on time and get this over with so I can get on with trying to get better and have a life. And the sooner the fluid is completely gone out of my lungs and I am not sick from chemo, I can do hyperbarics again. So, again, any miracles you have out there, send them my way. Prayers also!Love you all,Lynda __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 , I have been using a mouthwash made with salt and soda and water many times a day, but I will check out the baking soda idea. Thanks, Lynda At 07:33 PM 3/24/2008, you wrote: >Lynda, >Have you tried using baking soda it has been helping >me with the candida and mouth sores. I take >what the box recommends 1/2 teaspoons up to >seven times a day. > >Love > >In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time, >happy2bexplanted@... writes: > >Dear Lynda, > >I'm praying for you that the thrush and canker will heal quickly so >you'll be able to have your treatments on time. Diflucan is >probably a very good idea. It works great for yeast related >problems. Hang in there! You are a survivor and you will get >through this. Prayers are being offered in your behalf. >Love, >a > > update on treatment > >Friends asked if I had a great Easter. For Easter I suffered with >thrush and canker sores, friends invited us down to Broomfield for >dinner after church and we could not go because I could not eat. So, >I fixed Bob dinner and ate some very soft lemon bread (with a helping >of pain). I was nauseated from the Mycelex (for the thrush) and had >to quit it when it gave me the runs (horribly). Back to the swish >and swallow (Lidocaine and Nystatin). For the canker sores I am >taking L-lysine in huge doses. It has made them smaller, but not >taken them away. > >I talked to the doctor's office today. I told them these sores had >to go away before I could do chemo again. I have 10 days to get rid >of them. If they don't go away by then, I could have them all of >next month if I do chemo again. If they can find a way to kill the >pain from them, then maybe??????? ???????? They are going to call me >tomorrow to see if we can find some other things to do. In addition, >I am calling my naturopath for help. I may take diflucan to see if >that helps. I see an eye doc on Wed. because I am having some visual >blurring also. So side effects are getting me. What may happen is a >reduction in the dosage of chemo. Often with doxil this happens. > >I have an appt. with a neurologist Wed. A.M. to see what can be done >for the RSD that is getting more painful daily. I want them to do a >sympathetic nerve block to see if this stops the pain, because if it >does, that means they can stop it permanently. It would have to be >done soon, before the dystrophy sets in. This on top of chemo. I >want so badly to get back to doing hyperbaric treatment. It could be >months before that could happen, however. > >Now, I really want to do this next treatment on time, as I have a >wedding to get to in Missouri on the 19th. I want to be over the >worst of the side effects by then. Besides, I need to do the next >one early in May because of Bob's family all coming the end of >May. So I want them to be on time and get this over with so I can >get on with trying to get better and have a life. And the sooner the >fluid is completely gone out of my lungs and I am not sick from >chemo, I can do hyperbarics again. So, again, any miracles you have >out there, send them my way. Prayers also! > >Love you all, >Lynda > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Oh Lynda . . . I shudder to think what you're going through! . . . You give meaning to the words Cancer Survivor! We'll pray they have an answer to those canker sores! . . . Wouldn't it be nice if you could just go to sleep and wake up when the chemo is over, and you're feeling well again? . . . I'm about to decide against radiation. I need to speak to some radiologists yet though. I spoke to my doctor's other ear cancer patient. She had a much worse case than I did. . . She's doing well now, but she went through Hell to get there. She said she wouldn't do it again. . . Actually she couldn't . . . She lost 80 pounds . . . She doesn't have an extra pound left over. We'll keep you in our prayers . . . Keep your mind on all the things you're going to enjoy doing when this is over!Love,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Rogene, Chemotherapy survivor springs to mind, if I can survive the side effects. Something has to take care of these sores. It would be nice to wake up and find out this whole thing was a nightmare and I am cancer free. I do need to get through this. And fight the RSD. Some days that is too much to contemplate. I am working on things to look forward to so that I can be positive. I think I feel guilty that my sister is really having to sacrifice to come here to help me. She has given away some of her parrots and is farming out a few along with her little dog. She bought a one way ticket. It is so easy for me to help others but seems so hard to let someone help me. The Reiki Master I saw today told me I need to let my sister take care of me and not feel so bad about it. But it is a struggle for me to do that. If you do annual follow-ups to be sure that you are cancer free, I think that might be the wise decision. But I would do very, very good follow-ups to be sure nothing is showing up. You cannot be too careful. It can take many years for something to show up. So, if you are very good with follow-ups, I think you will be fine. Love, Lynda At 08:39 PM 3/24/2008, you wrote: >Oh Lynda . . . > >I shudder to think what you're going through! . . . You give meaning >to the words Cancer Survivor! > >We'll pray they have an answer to those canker sores! . . . > >Wouldn't it be nice if you could just go to sleep and wake up when >the chemo is over, and you're feeling well again? . . . > >I'm about to decide against radiation. I need to speak to some >radiologists yet though. > >I spoke to my doctor's other ear cancer patient. She had a much >worse case than I did. . . She's doing well now, but she went >through Hell to get there. She said she wouldn't do it again. . . >Actually she couldn't . . . She lost 80 pounds . . . She doesn't >have an extra pound left over. > >We'll keep you in our prayers . . . Keep your mind on all the things >you're going to enjoy doing when this is over! > >Love, > >Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Lynda,Your sister must be something special . . . just like you. Our Cathie is a bird lady too . . . She's way down from where she used to be. Parting with them is like giving up ones own children!I understand about letting someone take care of me. . . That's been the hardest part . . . I knew I had a good husband, but I never dreamed he was capable of being as good a caretaker as he has been through this! . . . I don't know I could have managed without him. The way I see it is that, should the cancer reoccur, at least I'll have bought some more "good" time. And, if it doesn't, I'll have won the lottery! My doctor is really good. He'll be the one reviewing all the tests and scans, not a radiologist who studies films of people he/she never meets. He said that only the surgeon who created this mess would understand what to look for. Love,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 , Do you mix the baking soda with anything to take it, or just in water? Lynda At 07:33 PM 3/24/2008, you wrote: >Lynda, >Have you tried using baking soda it has been helping >me with the candida and mouth sores. I take >what the box recommends 1/2 teaspoons up to >seven times a day. > >Love > >In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time, >happy2bexplanted@... writes: > >Dear Lynda, > >I'm praying for you that the thrush and canker will heal quickly so >you'll be able to have your treatments on time. Diflucan is >probably a very good idea. It works great for yeast related >problems. Hang in there! You are a survivor and you will get >through this. Prayers are being offered in your behalf. >Love, >a > > update on treatment > >Friends asked if I had a great Easter. For Easter I suffered with >thrush and canker sores, friends invited us down to Broomfield for >dinner after church and we could not go because I could not eat. So, >I fixed Bob dinner and ate some very soft lemon bread (with a helping >of pain). I was nauseated from the Mycelex (for the thrush) and had >to quit it when it gave me the runs (horribly). Back to the swish >and swallow (Lidocaine and Nystatin). For the canker sores I am >taking L-lysine in huge doses. It has made them smaller, but not >taken them away. > >I talked to the doctor's office today. I told them these sores had >to go away before I could do chemo again. I have 10 days to get rid >of them. If they don't go away by then, I could have them all of >next month if I do chemo again. If they can find a way to kill the >pain from them, then maybe??????? ???????? They are going to call me >tomorrow to see if we can find some other things to do. In addition, >I am calling my naturopath for help. I may take diflucan to see if >that helps. I see an eye doc on Wed. because I am having some visual >blurring also. So side effects are getting me. What may happen is a >reduction in the dosage of chemo. Often with doxil this happens. > >I have an appt. with a neurologist Wed. A.M. to see what can be done >for the RSD that is getting more painful daily. I want them to do a >sympathetic nerve block to see if this stops the pain, because if it >does, that means they can stop it permanently. It would have to be >done soon, before the dystrophy sets in. This on top of chemo. I >want so badly to get back to doing hyperbaric treatment. It could be >months before that could happen, however. > >Now, I really want to do this next treatment on time, as I have a >wedding to get to in Missouri on the 19th. I want to be over the >worst of the side effects by then. Besides, I need to do the next >one early in May because of Bob's family all coming the end of >May. So I want them to be on time and get this over with so I can >get on with trying to get better and have a life. And the sooner the >fluid is completely gone out of my lungs and I am not sick from >chemo, I can do hyperbarics again. So, again, any miracles you have >out there, send them my way. Prayers also! > >Love you all, >Lynda > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Dear Lynda, I know how you feel when you say you like to help others but have a hard time letting others help you. I feel the exact same way! Someone recently reminded me that we need to remember that we gain blessings from God by helping and serving others. If we don't allow others to help us then we are actually denying them blessings. That helped me alot. It is still hard for me to let others help me and I have to remind myself of the same thing. I'm glad your sister will be there to help you. That is wonderful! You would do the same for her if you could. Love, a Re: update on treatment Rogene,Chemotherapy survivor springs to mind, if I can survive the side effects. Something has to take care of these sores. It would be nice to wake up and find out this whole thing was a nightmare and I am cancer free. I do need to get through this. And fight the RSD. Some days that is too much to contemplate. I am working on things to look forward to so that I can be positive. I think I feel guilty that my sister is really having to sacrifice to come here to help me. She has given away some of her parrots and is farming out a few along with her little dog. She bought a one way ticket. It is so easy for me to help others but seems so hard to let someone help me. The Reiki Master I saw today told me I need to let my sister take care of me and not feel so bad about it. But it is a struggle for me to do that.If you do annual follow-ups to be sure that you are cancer free, I think that might be the wise decision. But I would do very, very good follow-ups to be sure nothing is showing up. You cannot be too careful. It can take many years for something to show up. So, if you are very good with follow-ups, I think you will be fine.Love,LyndaAt 08:39 PM 3/24/2008, you wrote:>Oh Lynda . . .>>I shudder to think what you're going through! . . . You give meaning >to the words Cancer Survivor!>>We'll pray they have an answer to those canker sores! . . .>>Wouldn't it be nice if you could just go to sleep and wake up when >the chemo is over, and you're feeling well again? . . .>>I'm about to decide against radiation. I need to speak to some >radiologists yet though.>>I spoke to my doctor's other ear cancer patient. She had a much >worse case than I did. . . She's doing well now, but she went >through Hell to get there. She said she wouldn't do it again. . . >Actually she couldn't . . . She lost 80 pounds . . . She doesn't >have an extra pound left over.>>We'll keep you in our prayers . . . Keep your mind on all the things >you're going to enjoy doing when this is over!>>Love,>>Rogene> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 a, I have done the same for her, but on a much smaller scale. I hope that I do not have to do this for anyone, because it would break my heart to see someone I love go through the same thing I am going through. Actually it is breaking my sister's heart, because she knows that my time is limited and she wants to make it easier for me during this chemo period. She is hoping that I have some good years after this, and I plan to have some good years. The more the better. It is hard for me, still. I need to work on this, as I know she is doing it because she feels it is the thing to do and she loves me. She wants to make it the best she can for me during this awful period of time. Thanks for the thoughts, I will work on this more. I have to accept that I need help and allow others to help me. Lynda At 09:36 PM 3/24/2008, you wrote: >Dear Lynda, > >I know how you feel when you say you like to help others but have a >hard time letting others help you. I feel the exact same >way! Someone recently reminded me that we need to remember that >we gain blessings from God by helping and serving others. If we >don't allow others to help us then we are actually denying them >blessings. That helped me alot. It is still hard for me to let >others help me and I have to remind myself of the same thing. > > > >I'm glad your sister will be there to help you. That is >wonderful! You would do the same for her if you could. > > > >Love, > >a > > > Re: update on treatment > >Rogene, > >Chemotherapy survivor springs to mind, if I can survive the side >effects. Something has to take care of these sores. It would be >nice to wake up and find out this whole thing was a nightmare and I >am cancer free. I do need to get through this. And fight the >RSD. Some days that is too much to contemplate. I am working on >things to look forward to so that I can be positive. I think I feel >guilty that my sister is really having to sacrifice to come here to >help me. She has given away some of her parrots and is farming out a >few along with her little dog. She bought a one way ticket. It is >so easy for me to help others but seems so hard to let someone help >me. The Reiki Master I saw today told me I need to let my sister >take care of me and not feel so bad about it. But it is a struggle >for me to do that. > >If you do annual follow-ups to be sure that you are cancer free, I >think that might be the wise decision. But I would do very, very >good follow-ups to be sure nothing is showing up. You cannot be too >careful. It can take many years for something to show up. So, if >you are very good with follow-ups, I think you will be fine. > >Love, >Lynda > >At 08:39 PM 3/24/2008, you wrote: > > >Oh Lynda . . . > > > >I shudder to think what you're going through! . . . You give meaning > >to the words Cancer Survivor! > > > >We'll pray they have an answer to those canker sores! . . . > > > >Wouldn't it be nice if you could just go to sleep and wake up when > >the chemo is over, and you're feeling well again? . . . > > > >I'm about to decide against radiation. I need to speak to some > >radiologists yet though. > > > >I spoke to my doctor's other ear cancer patient. She had a much > >worse case than I did. . . She's doing well now, but she went > >through Hell to get there. She said she wouldn't do it again. . . > >Actually she couldn't . . . She lost 80 pounds . . . She doesn't > >have an extra pound left over. > > > >We'll keep you in our prayers . . . Keep your mind on all the things > >you're going to enjoy doing when this is over! > > > >Love, > > > >Rogene > > > > > > >Never miss a thing. ><http://us.rd./evt=51438/*http://www./r/hs>Make > your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Lynda, I mix 1/2 baking soda and that's all ....I drink it down up to 7 times a day. You can probably put lemon juice if you cant stomach it but I drink it plain. Love In a message dated 3/24/2008 11:11:21 P.M. Eastern Daylight Time, coss@... writes: ,Do you mix the baking soda with anything to take it, or just in water?LyndaAt 07:33 PM 3/24/2008, you wrote:>Lynda,>Have you tried using baking soda it has been helping>me with the candida and mouth sores. I take>what the box recommends 1/2 teaspoons up to>seven times a day.>>Love >>In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time, >happy2bexplanted writes:>>Dear Lynda,>>I'm praying for you that the thrush and canker will heal quickly so >you'll be able to have your treatments on time. Diflucan is >probably a very good idea. It works great for yeast related >problems. Hang in there! You are a survivor and you will get >through this. Prayers are being offered in your behalf.>Love,>a>> update on treatment>>Friends asked if I had a great Easter. For Easter I suffered with>thrush and canker sores, friends invited us down to Broomfield for>dinner after church and we could not go because I could not eat. So,>I fixed Bob dinner and ate some very soft lemon bread (with a helping>of pain). I was nauseated from the Mycelex (for the thrush) and had>to quit it when it gave me the runs (horribly). Back to the swish>and swallow (Lidocaine and Nystatin). For the canker sores I am>taking L-lysine in huge doses. It has made them smaller, but not>taken them away.>>I talked to the doctor's office today. I told them these sores had>to go away before I could do chemo again. I have 10 days to get rid>of them. If they don't go away by then, I could have them all of>next month if I do chemo again. If they can find a way to kill the>pain from them, then maybe??????? ???????? They are going to call me>tomorrow to see if we can find some other things to do. In addition,>I am calling my naturopath for help. I may take diflucan to see if>that helps. I see an eye doc on Wed. because I am having some visual>blurring also. So side effects are getting me. What may happen is a>reduction in the dosage of chemo. Often with doxil this happens.>>I have an appt. with a neurologist Wed. A.M. to see what can be done>for the RSD that is getting more painful daily. I want them to do a>sympathetic nerve block to see if this stops the pain, because if it>does, that means they can stop it permanently. It would have to be>done soon, before the dystrophy sets in. This on top of chemo. I>want so badly to get back to doing hyperbaric treatment. It could be>months before that could happen, however.>>Now, I really want to do this next treatment on time, as I have a>wedding to get to in Missouri on the 19th. I want to be over the>worst of the side effects by then. Besides, I need to do the next>one early in May because of Bob's family all coming the end of>May. So I want them to be on time and get this over with so I can>get on with trying to get better and have a life. And the sooner the>fluid is completely gone out of my lungs and I am not sick from>chemo, I can do hyperbarics again. So, again, any miracles you have>out there, send them my way. Prayers also!>>Love you all,>Lynda>>>>__________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Oh Lynda , I know God is with you and I am glad it is less painful. I heard baking soda helps with cancer as well when you drink it. My grandfather swears by it and drinks it everyday ! He is in his 90's and still hunting coons every night. When I first used the baking soda it burned the whole roof of my mouth this week and its still sore but I am continueine to use it because I see that it is helping me. I know it will help you as well. Thank God for the simple remedies I say. Love In a message dated 3/25/2008 8:00:43 A.M. Eastern Daylight Time, coss@... writes: ,I made a paste with baking soda and put it on the canker sores last night. Burned a lot, but this morning they feel less painful. I am going to do it again a few times today, plus I will drink the baking soda and hope it helps the thrush as well. Can't hurt.LyndaAt 05:15 AM 3/25/2008, you wrote:>Lynda,>I mix 1/2 baking soda and that's all ....I drink it down up>to 7 times a day. You can probably put lemon juice if you>cant stomach it but I drink it plain.>Love >>In a message dated 3/24/2008 11:11:21 P.M. Eastern Daylight Time, >cossprivatei writes:>>,>>Do you mix the baking soda with anything to take it, or just in water?>>Lynda>>At 07:33 PM 3/24/2008, you wrote:>> >Lynda,> >Have you tried using baking soda it has been helping> >me with the candida and mouth sores. I take> >what the box recommends 1/2 teaspoons up to> >seven times a day.> >> >Love > >> >In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time,> ><mailto:happy2bexplanted%40>happy2bexplanted writes:> >> >Dear Lynda,> >> >I'm praying for you that the thrush and canker will heal quickly so> >you'll be able to have your treatments on time. Diflucan is> >probably a very good idea. It works great for yeast related> >problems. Hang in there! You are a survivor and you will get> >through this. Prayers are being offered in your behalf.> >Love,> >a> >> > update on treatment> >> >Friends asked if I had a great Easter. For Easter I suffered with> >thrush and canker sores, friends invited us down to Broomfield for> >dinner after church and we could not go because I could not eat. So,> >I fixed Bob dinner and ate some very soft lemon bread (with a helping> >of pain). I was nauseated from the Mycelex (for the thrush) and had> >to quit it when it gave me the runs (horribly). Back to the swish> >and swallow (Lidocaine and Nystatin). For the canker sores I am> >taking L-lysine in huge doses. It has made them smaller, but not> >taken them away.> >> >I talked to the doctor's office today. I told them these sores had> >to go away before I could do chemo again. I have 10 days to get rid> >of them. If they don't go away by then, I could have them all of> >next month if I do chemo again. If they can find a way to kill the> >pain from them, then maybe??????? ???????? They are going to call me> >tomorrow to see if we can find some other things to do. In addition,> >I am calling my naturopath for help. I may take diflucan to see if> >that helps. I see an eye doc on Wed. because I am having some visual> >blurring also. So side effects are getting me. What may happen is a> >reduction in the dosage of chemo. Often with doxil this happens.> >> >I have an appt. with a neurologist Wed. A.M. to see what can be done> >for the RSD that is getting more painful daily. I want them to do a> >sympathetic nerve block to see if this stops the pain, because if it> >does, that means they can stop it permanently. It would have to be> >done soon, before the dystrophy sets in. This on top of chemo. I> >want so badly to get back to doing hyperbaric treatment. It could be> >months before that could happen, however.> >> >Now, I really want to do this next treatment on time, as I have a> >wedding to get to in Missouri on the 19th. I want to be over the> >worst of the side effects by then. Besides, I need to do the next> >one early in May because of Bob's family all coming the end of> >May. So I want them to be on time and get this over with so I can> >get on with trying to get better and have a life. And the sooner the> >fluid is completely gone out of my lungs and I am not sick from> >chemo, I can do hyperbarics again. So, again, any miracles you have> >out there, send them my way. Prayers also!> >> >Love you all,> >Lynda> >> >> >> >__________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 , I made a paste with baking soda and put it on the canker sores last night. Burned a lot, but this morning they feel less painful. I am going to do it again a few times today, plus I will drink the baking soda and hope it helps the thrush as well. Can't hurt. Lynda At 05:15 AM 3/25/2008, you wrote: >Lynda, >I mix 1/2 baking soda and that's all ....I drink it down up >to 7 times a day. You can probably put lemon juice if you >cant stomach it but I drink it plain. >Love > >In a message dated 3/24/2008 11:11:21 P.M. Eastern Daylight Time, >coss@... writes: > >, > >Do you mix the baking soda with anything to take it, or just in water? > >Lynda > >At 07:33 PM 3/24/2008, you wrote: > > >Lynda, > >Have you tried using baking soda it has been helping > >me with the candida and mouth sores. I take > >what the box recommends 1/2 teaspoons up to > >seven times a day. > > > >Love > > > >In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time, > ><mailto:happy2bexplanted%40>happy2bexplanted@... writes: > > > >Dear Lynda, > > > >I'm praying for you that the thrush and canker will heal quickly so > >you'll be able to have your treatments on time. Diflucan is > >probably a very good idea. It works great for yeast related > >problems. Hang in there! You are a survivor and you will get > >through this. Prayers are being offered in your behalf. > >Love, > >a > > > > update on treatment > > > >Friends asked if I had a great Easter. For Easter I suffered with > >thrush and canker sores, friends invited us down to Broomfield for > >dinner after church and we could not go because I could not eat. So, > >I fixed Bob dinner and ate some very soft lemon bread (with a helping > >of pain). I was nauseated from the Mycelex (for the thrush) and had > >to quit it when it gave me the runs (horribly). Back to the swish > >and swallow (Lidocaine and Nystatin). For the canker sores I am > >taking L-lysine in huge doses. It has made them smaller, but not > >taken them away. > > > >I talked to the doctor's office today. I told them these sores had > >to go away before I could do chemo again. I have 10 days to get rid > >of them. If they don't go away by then, I could have them all of > >next month if I do chemo again. If they can find a way to kill the > >pain from them, then maybe??????? ???????? They are going to call me > >tomorrow to see if we can find some other things to do. In addition, > >I am calling my naturopath for help. I may take diflucan to see if > >that helps. I see an eye doc on Wed. because I am having some visual > >blurring also. So side effects are getting me. What may happen is a > >reduction in the dosage of chemo. Often with doxil this happens. > > > >I have an appt. with a neurologist Wed. A.M. to see what can be done > >for the RSD that is getting more painful daily. I want them to do a > >sympathetic nerve block to see if this stops the pain, because if it > >does, that means they can stop it permanently. It would have to be > >done soon, before the dystrophy sets in. This on top of chemo. I > >want so badly to get back to doing hyperbaric treatment. It could be > >months before that could happen, however. > > > >Now, I really want to do this next treatment on time, as I have a > >wedding to get to in Missouri on the 19th. I want to be over the > >worst of the side effects by then. Besides, I need to do the next > >one early in May because of Bob's family all coming the end of > >May. So I want them to be on time and get this over with so I can > >get on with trying to get better and have a life. And the sooner the > >fluid is completely gone out of my lungs and I am not sick from > >chemo, I can do hyperbarics again. So, again, any miracles you have > >out there, send them my way. Prayers also! > > > >Love you all, > >Lynda > > > > > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Lynda, It sounds so hard, what you're going through. I'm sure you are soldiering admirably, but having your sister there sounds like it will be a big comfort. Maybe if you can consider the idea that it is a gift to her to be able to help you, you might accept it with a little less guilt. If it were she who was sick, you'd do the same, and she would be as grateful as you are to have the help and support. Don't give up, ! Bathe those cells of yours in optimism and hope. Remind them they have much living left to do. Yours, Bindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Bindi, I have discovered that dealing with the side effects of chemotherapy (particularly this chemotherapy) is a full-time job. So help may be just what I need. I am working on not feeling guilty. I am really working on being positive. It is hard when the side effects are so bad that you hurt and just want to escape everything. Maybe not doing it alone will be the thing that works for me. Lynda At 11:50 AM 3/25/2008, you wrote: >Lynda, >It sounds so hard, what you're going through. I'm sure you are >soldiering admirably, but having your sister there sounds like it >will be a big comfort. Maybe if you can consider the idea that it is >a gift to her to be able to help you, you might accept it with a >little less guilt. If it were she who was sick, you'd do the same, >and she would be as grateful as you are to have the help and support. >Don't give up, ! Bathe those cells of yours in optimism and >hope. Remind them they have much living left to do. >Yours, >Bindi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Lynda, I hope something will help make you more comfortable - that has got to be so painful, and to top it off you can barely eat when you need your nutrition the most. Thinking of you.... Sis > > >Lynda, > >Have you tried using baking soda it has been helping > >me with the candida and mouth sores. I take > >what the box recommends 1/2 teaspoons up to > >seven times a day. > > > >Love > > > >In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time, > >happy2bexplanted@... writes: > > > >Dear Lynda, > > > >I'm praying for you that the thrush and canker will heal quickly so > >you'll be able to have your treatments on time. Diflucan is > >probably a very good idea. It works great for yeast related > >problems. Hang in there! You are a survivor and you will get > >through this. Prayers are being offered in your behalf. > >Love, > >a > > > > update on treatment > > > >Friends asked if I had a great Easter. For Easter I suffered with > >thrush and canker sores, friends invited us down to Broomfield for > >dinner after church and we could not go because I could not eat. So, > >I fixed Bob dinner and ate some very soft lemon bread (with a helping > >of pain). I was nauseated from the Mycelex (for the thrush) and had > >to quit it when it gave me the runs (horribly). Back to the swish > >and swallow (Lidocaine and Nystatin). For the canker sores I am > >taking L-lysine in huge doses. It has made them smaller, but not > >taken them away. > > > >I talked to the doctor's office today. I told them these sores had > >to go away before I could do chemo again. I have 10 days to get rid > >of them. If they don't go away by then, I could have them all of > >next month if I do chemo again. If they can find a way to kill the > >pain from them, then maybe??????? ???????? They are going to call me > >tomorrow to see if we can find some other things to do. In addition, > >I am calling my naturopath for help. I may take diflucan to see if > >that helps. I see an eye doc on Wed. because I am having some visual > >blurring also. So side effects are getting me. What may happen is a > >reduction in the dosage of chemo. Often with doxil this happens. > > > >I have an appt. with a neurologist Wed. A.M. to see what can be done > >for the RSD that is getting more painful daily. I want them to do a > >sympathetic nerve block to see if this stops the pain, because if it > >does, that means they can stop it permanently. It would have to be > >done soon, before the dystrophy sets in. This on top of chemo. I > >want so badly to get back to doing hyperbaric treatment. It could be > >months before that could happen, however. > > > >Now, I really want to do this next treatment on time, as I have a > >wedding to get to in Missouri on the 19th. I want to be over the > >worst of the side effects by then. Besides, I need to do the next > >one early in May because of Bob's family all coming the end of > >May. So I want them to be on time and get this over with so I can > >get on with trying to get better and have a life. And the sooner the > >fluid is completely gone out of my lungs and I am not sick from > >chemo, I can do hyperbarics again. So, again, any miracles you have > >out there, send them my way. Prayers also! > > > >Love you all, > >Lynda > > > > > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Lynda, I hope something will help make you more comfortable - that has got to be so painful, and to top it off you can barely eat when you need your nutrition the most. Thinking of you.... Sis > > >Lynda, > >Have you tried using baking soda it has been helping > >me with the candida and mouth sores. I take > >what the box recommends 1/2 teaspoons up to > >seven times a day. > > > >Love > > > >In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time, > >happy2bexplanted@... writes: > > > >Dear Lynda, > > > >I'm praying for you that the thrush and canker will heal quickly so > >you'll be able to have your treatments on time. Diflucan is > >probably a very good idea. It works great for yeast related > >problems. Hang in there! You are a survivor and you will get > >through this. Prayers are being offered in your behalf. > >Love, > >a > > > > update on treatment > > > >Friends asked if I had a great Easter. For Easter I suffered with > >thrush and canker sores, friends invited us down to Broomfield for > >dinner after church and we could not go because I could not eat. So, > >I fixed Bob dinner and ate some very soft lemon bread (with a helping > >of pain). I was nauseated from the Mycelex (for the thrush) and had > >to quit it when it gave me the runs (horribly). Back to the swish > >and swallow (Lidocaine and Nystatin). For the canker sores I am > >taking L-lysine in huge doses. It has made them smaller, but not > >taken them away. > > > >I talked to the doctor's office today. I told them these sores had > >to go away before I could do chemo again. I have 10 days to get rid > >of them. If they don't go away by then, I could have them all of > >next month if I do chemo again. If they can find a way to kill the > >pain from them, then maybe??????? ???????? They are going to call me > >tomorrow to see if we can find some other things to do. In addition, > >I am calling my naturopath for help. I may take diflucan to see if > >that helps. I see an eye doc on Wed. because I am having some visual > >blurring also. So side effects are getting me. What may happen is a > >reduction in the dosage of chemo. Often with doxil this happens. > > > >I have an appt. with a neurologist Wed. A.M. to see what can be done > >for the RSD that is getting more painful daily. I want them to do a > >sympathetic nerve block to see if this stops the pain, because if it > >does, that means they can stop it permanently. It would have to be > >done soon, before the dystrophy sets in. This on top of chemo. I > >want so badly to get back to doing hyperbaric treatment. It could be > >months before that could happen, however. > > > >Now, I really want to do this next treatment on time, as I have a > >wedding to get to in Missouri on the 19th. I want to be over the > >worst of the side effects by then. Besides, I need to do the next > >one early in May because of Bob's family all coming the end of > >May. So I want them to be on time and get this over with so I can > >get on with trying to get better and have a life. And the sooner the > >fluid is completely gone out of my lungs and I am not sick from > >chemo, I can do hyperbarics again. So, again, any miracles you have > >out there, send them my way. Prayers also! > > > >Love you all, > >Lynda > > > > > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Sis, I put a paste of baking soda and water on the canker sores, don't know if it helped, but they got smaller. Only one still exists, and it is stubborn. It has been hard to eat, I have lost more weight. And I am sure that my stomach has shrunk a lot, because when I can eat, it is not much. Lynda At 07:32 PM 3/27/2008, you wrote: >Lynda, > >I hope something will help make you more comfortable - that has got >to be so painful, and to top it off you can barely eat when you need >your nutrition the most. Thinking of you.... > >Sis > > > > > > >Lynda, > > >Have you tried using baking soda it has been helping > > >me with the candida and mouth sores. I take > > >what the box recommends 1/2 teaspoons up to > > >seven times a day. > > > > > >Love > > > > > >In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time, > > >happy2bexplanted@... writes: > > > > > >Dear Lynda, > > > > > >I'm praying for you that the thrush and canker will heal quickly >so > > >you'll be able to have your treatments on time. Diflucan is > > >probably a very good idea. It works great for yeast related > > >problems. Hang in there! You are a survivor and you will get > > >through this. Prayers are being offered in your behalf. > > >Love, > > >a > > > > > > update on treatment > > > > > >Friends asked if I had a great Easter. For Easter I suffered with > > >thrush and canker sores, friends invited us down to Broomfield for > > >dinner after church and we could not go because I could not eat. >So, > > >I fixed Bob dinner and ate some very soft lemon bread (with a >helping > > >of pain). I was nauseated from the Mycelex (for the thrush) and >had > > >to quit it when it gave me the runs (horribly). Back to the swish > > >and swallow (Lidocaine and Nystatin). For the canker sores I am > > >taking L-lysine in huge doses. It has made them smaller, but not > > >taken them away. > > > > > >I talked to the doctor's office today. I told them these sores had > > >to go away before I could do chemo again. I have 10 days to get >rid > > >of them. If they don't go away by then, I could have them all of > > >next month if I do chemo again. If they can find a way to kill the > > >pain from them, then maybe??????? ???????? They are going to call >me > > >tomorrow to see if we can find some other things to do. In >addition, > > >I am calling my naturopath for help. I may take diflucan to see if > > >that helps. I see an eye doc on Wed. because I am having some >visual > > >blurring also. So side effects are getting me. What may happen is >a > > >reduction in the dosage of chemo. Often with doxil this happens. > > > > > >I have an appt. with a neurologist Wed. A.M. to see what can be >done > > >for the RSD that is getting more painful daily. I want them to do >a > > >sympathetic nerve block to see if this stops the pain, because if >it > > >does, that means they can stop it permanently. It would have to be > > >done soon, before the dystrophy sets in. This on top of chemo. I > > >want so badly to get back to doing hyperbaric treatment. It could >be > > >months before that could happen, however. > > > > > >Now, I really want to do this next treatment on time, as I have a > > >wedding to get to in Missouri on the 19th. I want to be over the > > >worst of the side effects by then. Besides, I need to do the next > > >one early in May because of Bob's family all coming the end of > > >May. So I want them to be on time and get this over with so I can > > >get on with trying to get better and have a life. And the sooner >the > > >fluid is completely gone out of my lungs and I am not sick from > > >chemo, I can do hyperbarics again. So, again, any miracles you >have > > >out there, send them my way. Prayers also! > > > > > >Love you all, > > >Lynda > > > > > > > > > > > >__________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Sis, I put a paste of baking soda and water on the canker sores, don't know if it helped, but they got smaller. Only one still exists, and it is stubborn. It has been hard to eat, I have lost more weight. And I am sure that my stomach has shrunk a lot, because when I can eat, it is not much. Lynda At 07:32 PM 3/27/2008, you wrote: >Lynda, > >I hope something will help make you more comfortable - that has got >to be so painful, and to top it off you can barely eat when you need >your nutrition the most. Thinking of you.... > >Sis > > > > > > >Lynda, > > >Have you tried using baking soda it has been helping > > >me with the candida and mouth sores. I take > > >what the box recommends 1/2 teaspoons up to > > >seven times a day. > > > > > >Love > > > > > >In a message dated 3/24/2008 9:16:41 P.M. Eastern Daylight Time, > > >happy2bexplanted@... writes: > > > > > >Dear Lynda, > > > > > >I'm praying for you that the thrush and canker will heal quickly >so > > >you'll be able to have your treatments on time. Diflucan is > > >probably a very good idea. It works great for yeast related > > >problems. Hang in there! You are a survivor and you will get > > >through this. Prayers are being offered in your behalf. > > >Love, > > >a > > > > > > update on treatment > > > > > >Friends asked if I had a great Easter. For Easter I suffered with > > >thrush and canker sores, friends invited us down to Broomfield for > > >dinner after church and we could not go because I could not eat. >So, > > >I fixed Bob dinner and ate some very soft lemon bread (with a >helping > > >of pain). I was nauseated from the Mycelex (for the thrush) and >had > > >to quit it when it gave me the runs (horribly). Back to the swish > > >and swallow (Lidocaine and Nystatin). For the canker sores I am > > >taking L-lysine in huge doses. It has made them smaller, but not > > >taken them away. > > > > > >I talked to the doctor's office today. I told them these sores had > > >to go away before I could do chemo again. I have 10 days to get >rid > > >of them. If they don't go away by then, I could have them all of > > >next month if I do chemo again. If they can find a way to kill the > > >pain from them, then maybe??????? ???????? They are going to call >me > > >tomorrow to see if we can find some other things to do. In >addition, > > >I am calling my naturopath for help. I may take diflucan to see if > > >that helps. I see an eye doc on Wed. because I am having some >visual > > >blurring also. So side effects are getting me. What may happen is >a > > >reduction in the dosage of chemo. Often with doxil this happens. > > > > > >I have an appt. with a neurologist Wed. A.M. to see what can be >done > > >for the RSD that is getting more painful daily. I want them to do >a > > >sympathetic nerve block to see if this stops the pain, because if >it > > >does, that means they can stop it permanently. It would have to be > > >done soon, before the dystrophy sets in. This on top of chemo. I > > >want so badly to get back to doing hyperbaric treatment. It could >be > > >months before that could happen, however. > > > > > >Now, I really want to do this next treatment on time, as I have a > > >wedding to get to in Missouri on the 19th. I want to be over the > > >worst of the side effects by then. Besides, I need to do the next > > >one early in May because of Bob's family all coming the end of > > >May. So I want them to be on time and get this over with so I can > > >get on with trying to get better and have a life. And the sooner >the > > >fluid is completely gone out of my lungs and I am not sick from > > >chemo, I can do hyperbarics again. So, again, any miracles you >have > > >out there, send them my way. Prayers also! > > > > > >Love you all, > > >Lynda > > > > > > > > > > > >__________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Lynda,Before you lose too much weight, you may need to consider getting nutrition via IV . . .The lady who had radiation had to do so because she couldn't eat. It saved her life.Love,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Lynda,Before you lose too much weight, you may need to consider getting nutrition via IV . . .The lady who had radiation had to do so because she couldn't eat. It saved her life.Love,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Rogene, I think I have at least 10 pounds to go before I get too worried. I weighed 10 pounds less than this when I did chemo the first time. Most of this weight was from the fibromyalgia and thyroid problems. I won't miss it if it doesn't come back. I certainly do not want to lose much more, however, this early in the chemo. I am certain my weight will be a topic when I see the doctor before my next chemo on the 3rd. Every time I lose weight, it comes up. They are going to reduce the chemo amount this time, although I have not told them that yet. I have lost some close up vision and don't want that to continue. If I lose any more vision, we will be switching types of chemo. So, this next month I will probably know a lot more. Love, Lynda At 10:44 PM 3/27/2008, you wrote: >Lynda, > >Before you lose too much weight, you may need to consider getting >nutrition via IV . . . > >The lady who had radiation had to do so because she couldn't eat. It >saved her life. > >Love, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
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