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Re: I'm hyper again:(-help Elaine please

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Terry,

Maybe when you get the other results you will have a better idea.How long?

I can't help with 'how hyper is 3.0' because of my wonderful, keep her hypo

to fix the BP doc, <sigh>

So I never went that high.

I would think if the other numbers were high, then the combination would be

giving you more obvious symptoms. Right?

How is your paper sensitivity coming along?

It is brand new, and you have been more hyper than this for sure.

I hope you get the rest of the results soon. The guessing is possibly the

hardest part for me.

I know what you mean about wishing someone would just tell you what to do. I

had a hyper feeling this morning, and went through a lot of figuring. Ended

up not knowing what to do for sure. It is so frustrating. I ended up taking

a tiny bit of lemon balm, but I know that now I will not get a true lab

reading for MORE time.

Oh, well.

maybe I should have waited it out. Because by the time the lemon balm had

obviously worn off, I felt like a fool. There does not seem to be any

problem. I think ???

Dang, now I have another month, before a lab test will tell me how my own

body is doing.

I like the thought of what Val went through. Thank you. I had forgotten

about your final up and down Val. So thank you too, for having posted while

it was all going on.

-Pam- only saying I don't know but I sure do understand.

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Correction:

I said I never went that high. FT4 of 3.0

I meant : I never went that high in the last couple of years since I have

been keeping records.

In reading that, it just looked funny.

-Pam-

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Correction:

I said I never went that high. FT4 of 3.0

I meant : I never went that high in the last couple of years since I have

been keeping records.

In reading that, it just looked funny.

-Pam-

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Correction:

I said I never went that high. FT4 of 3.0

I meant : I never went that high in the last couple of years since I have

been keeping records.

In reading that, it just looked funny.

-Pam-

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Terry,

This may have no bearing on your current situation, but I thought I would

mention it. I tend to have higher lab values if my blood is drawn in the

afternoon as opposed to a morning draw.

Doris

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Hi Terry,

Let's just say I've had an FT4 of 3.0 from taking extra Armour on occasion

and the only symptoms I had were eye twitch. It's hard to say how hyper this

is, but we see levels as high as 7.0 or 8.0 on occasion.

What's important here is that your FT4 did rise and you will have to increase

your ATD dose a bit until you reverse things. This is likely part of the

normal waxing and waning of symptoms that you hear so much about. Sometimes

you can figure out the triggers, like added estrogens, dietary indiscretion

such as too much processed food, stress, etc. And sometimes the warmer

weather, and your need for less thyroid hormone, can cause increased levels.

Many of us hypo people have to adjust our replacement hormone with the

seasons, taking less in the warmer weather.

I would like to see your new TSI level too. This is the best clue to see if

you have an active autoimmune process going on. Take care, Elaine

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Hi Terry,

Let's just say I've had an FT4 of 3.0 from taking extra Armour on occasion

and the only symptoms I had were eye twitch. It's hard to say how hyper this

is, but we see levels as high as 7.0 or 8.0 on occasion.

What's important here is that your FT4 did rise and you will have to increase

your ATD dose a bit until you reverse things. This is likely part of the

normal waxing and waning of symptoms that you hear so much about. Sometimes

you can figure out the triggers, like added estrogens, dietary indiscretion

such as too much processed food, stress, etc. And sometimes the warmer

weather, and your need for less thyroid hormone, can cause increased levels.

Many of us hypo people have to adjust our replacement hormone with the

seasons, taking less in the warmer weather.

I would like to see your new TSI level too. This is the best clue to see if

you have an active autoimmune process going on. Take care, Elaine

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Hi Terry,

Let's just say I've had an FT4 of 3.0 from taking extra Armour on occasion

and the only symptoms I had were eye twitch. It's hard to say how hyper this

is, but we see levels as high as 7.0 or 8.0 on occasion.

What's important here is that your FT4 did rise and you will have to increase

your ATD dose a bit until you reverse things. This is likely part of the

normal waxing and waning of symptoms that you hear so much about. Sometimes

you can figure out the triggers, like added estrogens, dietary indiscretion

such as too much processed food, stress, etc. And sometimes the warmer

weather, and your need for less thyroid hormone, can cause increased levels.

Many of us hypo people have to adjust our replacement hormone with the

seasons, taking less in the warmer weather.

I would like to see your new TSI level too. This is the best clue to see if

you have an active autoimmune process going on. Take care, Elaine

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Terry,

why don't you get a mercury level too if your doctor will order it? I've been

hearing from several GD people who were eating lots of seafood and two have

high mercury levels, and mercury is known to trigger autoimmune thyroid

disease.

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Terry,

why don't you get a mercury level too if your doctor will order it? I've been

hearing from several GD people who were eating lots of seafood and two have

high mercury levels, and mercury is known to trigger autoimmune thyroid

disease.

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Hi Terry,

I can't offer any advice for you, but just want you to know I'm thinking of

you.

I do have a question, which is probably a silly one, but, within 48 hours of

labs could you have eaten something that has hidden iodine in it that maybe

you weren't aware of? I know how careful you are of your diet, but I also

know if I eat shrimp within 48 hours of labs, it gives my labs a hyper look

to them, well high normals when I run low normals lately. And since you

aren't feeling all they hyper, am just wondering here.

Hang tough Terry, you will get it sorted out!

Jody

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Hi Terry,

I can't offer any advice for you, but just want you to know I'm thinking of

you.

I do have a question, which is probably a silly one, but, within 48 hours of

labs could you have eaten something that has hidden iodine in it that maybe

you weren't aware of? I know how careful you are of your diet, but I also

know if I eat shrimp within 48 hours of labs, it gives my labs a hyper look

to them, well high normals when I run low normals lately. And since you

aren't feeling all they hyper, am just wondering here.

Hang tough Terry, you will get it sorted out!

Jody

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

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Jody,

I have never noticed a problem from seafood, which I love, so have paid

little attention to that--but I did a Cajun shrimp appetizer with my 2

cooking classes Wednesday and Thursday evenings. I only ate 2 shrimps each

time, though, so barely an ounce a night. But I have been eating a lot of

fish lately, had Alaskan halibut Tuesday night for dinner. And I made a

halibut dish with the classes last week. I suppose there could be a

cumulative effect. I'm very careful about other iodine sources, vitamins and

salt specifically.

My overall feeling, though, is that this has been creeping up on me for a

while, and that I have " failed " in reaching remission. Which is not making

me feel wonderful, mentally. I was so hoping, especially after all the

careful and patient dose-lowering since August.

Terry

>

> Reply-To: graves_support

> Date: Sun, 28 Apr 2002 10:42:59 -0400

> To: graves_support

> Subject: Re: I'm hyper again:(-help Elaine please

>

> Hi Terry,

> I can't offer any advice for you, but just want you to know I'm thinking of

> you.

>

> I do have a question, which is probably a silly one, but, within 48 hours of

> labs could you have eaten something that has hidden iodine in it that maybe

> you weren't aware of? I know how careful you are of your diet, but I also

> know if I eat shrimp within 48 hours of labs, it gives my labs a hyper look

> to them, well high normals when I run low normals lately. And since you

> aren't feeling all they hyper, am just wondering here.

>

> Hang tough Terry, you will get it sorted out!

> Jody

>

>

>

> _________________________________________________________________

> MSN Photos is the easiest way to share and print your photos:

> http://photos.msn.com/support/worldwide.aspx

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

> of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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Jody,

I have never noticed a problem from seafood, which I love, so have paid

little attention to that--but I did a Cajun shrimp appetizer with my 2

cooking classes Wednesday and Thursday evenings. I only ate 2 shrimps each

time, though, so barely an ounce a night. But I have been eating a lot of

fish lately, had Alaskan halibut Tuesday night for dinner. And I made a

halibut dish with the classes last week. I suppose there could be a

cumulative effect. I'm very careful about other iodine sources, vitamins and

salt specifically.

My overall feeling, though, is that this has been creeping up on me for a

while, and that I have " failed " in reaching remission. Which is not making

me feel wonderful, mentally. I was so hoping, especially after all the

careful and patient dose-lowering since August.

Terry

>

> Reply-To: graves_support

> Date: Sun, 28 Apr 2002 10:42:59 -0400

> To: graves_support

> Subject: Re: I'm hyper again:(-help Elaine please

>

> Hi Terry,

> I can't offer any advice for you, but just want you to know I'm thinking of

> you.

>

> I do have a question, which is probably a silly one, but, within 48 hours of

> labs could you have eaten something that has hidden iodine in it that maybe

> you weren't aware of? I know how careful you are of your diet, but I also

> know if I eat shrimp within 48 hours of labs, it gives my labs a hyper look

> to them, well high normals when I run low normals lately. And since you

> aren't feeling all they hyper, am just wondering here.

>

> Hang tough Terry, you will get it sorted out!

> Jody

>

>

>

> _________________________________________________________________

> MSN Photos is the easiest way to share and print your photos:

> http://photos.msn.com/support/worldwide.aspx

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

> of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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Pam,

I hope all the lab results are there tomorrow. I'll be calling the endo

first thing. I wish I had been home to talk with him yesterday.

My paper sensitivity seems to be getting much better. It peaked the day I

wrote about it, and has diminished somewhat every day since.

I'm sure my endo would have kept me hypo if I'd gone along with him on

dosage, he had me on 15 mg. when the August tests showed me pretty normal,

and I started reducing on my own. I absolutely am sure that my " natural "

state is at least slightly hyper, and going even a tad hypo makes me

miserable. Falling asleep last night, I was thinking that if THIS is really

hyper by the numbers, I've probably been at least this hyper most of my

life. I just don't want to get worse.

Why do you have to wait a month for the labs? Are you saying it takes that

long for the effects of the lemon balm to leave, or are you on a schedule?

It sure sounds like you are struggling to interpret your symptoms just like

I am, and I know that having the early labs was essential for me.

Isn't it wonderful for us to have this group to help muddle through? I would

have been at sea without the proverbial paddle, without everyone here!

Terry

>

> Reply-To: graves_support

> Date: Sat, 27 Apr 2002 22:49:06 -0700

> To: <graves_support >

> Subject: Re: I'm hyper again:(-help Elaine please

>

> Terry,

>

> Maybe when you get the other results you will have a better idea.How long?

>

> I can't help with 'how hyper is 3.0' because of my wonderful, keep her hypo

> to fix the BP doc, <sigh>

>

> So I never went that high.

>

> I would think if the other numbers were high, then the combination would be

> giving you more obvious symptoms. Right?

>

> How is your paper sensitivity coming along?

> It is brand new, and you have been more hyper than this for sure.

>

> I hope you get the rest of the results soon. The guessing is possibly the

> hardest part for me.

>

> I know what you mean about wishing someone would just tell you what to do. I

> had a hyper feeling this morning, and went through a lot of figuring. Ended

> up not knowing what to do for sure. It is so frustrating. I ended up taking

> a tiny bit of lemon balm, but I know that now I will not get a true lab

> reading for MORE time.

> Oh, well.

> maybe I should have waited it out. Because by the time the lemon balm had

> obviously worn off, I felt like a fool. There does not seem to be any

> problem. I think ???

>

> Dang, now I have another month, before a lab test will tell me how my own

> body is doing.

>

> I like the thought of what Val went through. Thank you. I had forgotten

> about your final up and down Val. So thank you too, for having posted while

> it was all going on.

>

> -Pam- only saying I don't know but I sure do understand.

>

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

> of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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Pam,

I hope all the lab results are there tomorrow. I'll be calling the endo

first thing. I wish I had been home to talk with him yesterday.

My paper sensitivity seems to be getting much better. It peaked the day I

wrote about it, and has diminished somewhat every day since.

I'm sure my endo would have kept me hypo if I'd gone along with him on

dosage, he had me on 15 mg. when the August tests showed me pretty normal,

and I started reducing on my own. I absolutely am sure that my " natural "

state is at least slightly hyper, and going even a tad hypo makes me

miserable. Falling asleep last night, I was thinking that if THIS is really

hyper by the numbers, I've probably been at least this hyper most of my

life. I just don't want to get worse.

Why do you have to wait a month for the labs? Are you saying it takes that

long for the effects of the lemon balm to leave, or are you on a schedule?

It sure sounds like you are struggling to interpret your symptoms just like

I am, and I know that having the early labs was essential for me.

Isn't it wonderful for us to have this group to help muddle through? I would

have been at sea without the proverbial paddle, without everyone here!

Terry

>

> Reply-To: graves_support

> Date: Sat, 27 Apr 2002 22:49:06 -0700

> To: <graves_support >

> Subject: Re: I'm hyper again:(-help Elaine please

>

> Terry,

>

> Maybe when you get the other results you will have a better idea.How long?

>

> I can't help with 'how hyper is 3.0' because of my wonderful, keep her hypo

> to fix the BP doc, <sigh>

>

> So I never went that high.

>

> I would think if the other numbers were high, then the combination would be

> giving you more obvious symptoms. Right?

>

> How is your paper sensitivity coming along?

> It is brand new, and you have been more hyper than this for sure.

>

> I hope you get the rest of the results soon. The guessing is possibly the

> hardest part for me.

>

> I know what you mean about wishing someone would just tell you what to do. I

> had a hyper feeling this morning, and went through a lot of figuring. Ended

> up not knowing what to do for sure. It is so frustrating. I ended up taking

> a tiny bit of lemon balm, but I know that now I will not get a true lab

> reading for MORE time.

> Oh, well.

> maybe I should have waited it out. Because by the time the lemon balm had

> obviously worn off, I felt like a fool. There does not seem to be any

> problem. I think ???

>

> Dang, now I have another month, before a lab test will tell me how my own

> body is doing.

>

> I like the thought of what Val went through. Thank you. I had forgotten

> about your final up and down Val. So thank you too, for having posted while

> it was all going on.

>

> -Pam- only saying I don't know but I sure do understand.

>

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

> of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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Guest guest

Pam,

I hope all the lab results are there tomorrow. I'll be calling the endo

first thing. I wish I had been home to talk with him yesterday.

My paper sensitivity seems to be getting much better. It peaked the day I

wrote about it, and has diminished somewhat every day since.

I'm sure my endo would have kept me hypo if I'd gone along with him on

dosage, he had me on 15 mg. when the August tests showed me pretty normal,

and I started reducing on my own. I absolutely am sure that my " natural "

state is at least slightly hyper, and going even a tad hypo makes me

miserable. Falling asleep last night, I was thinking that if THIS is really

hyper by the numbers, I've probably been at least this hyper most of my

life. I just don't want to get worse.

Why do you have to wait a month for the labs? Are you saying it takes that

long for the effects of the lemon balm to leave, or are you on a schedule?

It sure sounds like you are struggling to interpret your symptoms just like

I am, and I know that having the early labs was essential for me.

Isn't it wonderful for us to have this group to help muddle through? I would

have been at sea without the proverbial paddle, without everyone here!

Terry

>

> Reply-To: graves_support

> Date: Sat, 27 Apr 2002 22:49:06 -0700

> To: <graves_support >

> Subject: Re: I'm hyper again:(-help Elaine please

>

> Terry,

>

> Maybe when you get the other results you will have a better idea.How long?

>

> I can't help with 'how hyper is 3.0' because of my wonderful, keep her hypo

> to fix the BP doc, <sigh>

>

> So I never went that high.

>

> I would think if the other numbers were high, then the combination would be

> giving you more obvious symptoms. Right?

>

> How is your paper sensitivity coming along?

> It is brand new, and you have been more hyper than this for sure.

>

> I hope you get the rest of the results soon. The guessing is possibly the

> hardest part for me.

>

> I know what you mean about wishing someone would just tell you what to do. I

> had a hyper feeling this morning, and went through a lot of figuring. Ended

> up not knowing what to do for sure. It is so frustrating. I ended up taking

> a tiny bit of lemon balm, but I know that now I will not get a true lab

> reading for MORE time.

> Oh, well.

> maybe I should have waited it out. Because by the time the lemon balm had

> obviously worn off, I felt like a fool. There does not seem to be any

> problem. I think ???

>

> Dang, now I have another month, before a lab test will tell me how my own

> body is doing.

>

> I like the thought of what Val went through. Thank you. I had forgotten

> about your final up and down Val. So thank you too, for having posted while

> it was all going on.

>

> -Pam- only saying I don't know but I sure do understand.

>

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

> of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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Guest guest

Doris,

I always get mine drawn in the morning. That's when my lab is less busy, so

I don't have to wait. So, not a factor.

Thanks,

Terry

> From: k9mom1@...

> Reply-To: graves_support

> Date: Sun, 28 Apr 2002 11:32:03 EDT

> To: graves_support

> Subject: Re: I'm hyper again:(-help Elaine please

>

> Terry,

> This may have no bearing on your current situation, but I thought I would

> mention it. I tend to have higher lab values if my blood is drawn in the

> afternoon as opposed to a morning draw.

> Doris

>

>

>

>

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Guest guest

Elaine,

Thank you so much! You make it all sound much less dramatic than what I'd

built up in my mind. Do you think I should ask for a TSI right now, or just

wait a month and do it all together, since I know I will want more labs to

see if the dose increase was enough or too much?

The normal waxing & waning of symptoms--how big a swing are we talking? I

guess everyone is different, huh? I don't think I've any added estrogens, my

cycle has stopped, although I have had a bout of hot flashes lately that I

guess could indicate that estrogens are higher. I don't eat processed food

much if at all, but I did eat a lot of seafood lately. And, I've been less

stressed than my norm, since it's been a slow period with catering.

I'll ask for the test for mercury too. That should be interesting to see. I

hadn't realized it was a trigger, only thought about the iodine content of

seafood being one.

Most of all though, I am relieved to have some reference to how high FT4 can

go. I will have an interesting conversation with the endo tomorrow, for

sure.

Again thanks,

Terry

>

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Guest guest

Elaine,

Thank you so much! You make it all sound much less dramatic than what I'd

built up in my mind. Do you think I should ask for a TSI right now, or just

wait a month and do it all together, since I know I will want more labs to

see if the dose increase was enough or too much?

The normal waxing & waning of symptoms--how big a swing are we talking? I

guess everyone is different, huh? I don't think I've any added estrogens, my

cycle has stopped, although I have had a bout of hot flashes lately that I

guess could indicate that estrogens are higher. I don't eat processed food

much if at all, but I did eat a lot of seafood lately. And, I've been less

stressed than my norm, since it's been a slow period with catering.

I'll ask for the test for mercury too. That should be interesting to see. I

hadn't realized it was a trigger, only thought about the iodine content of

seafood being one.

Most of all though, I am relieved to have some reference to how high FT4 can

go. I will have an interesting conversation with the endo tomorrow, for

sure.

Again thanks,

Terry

>

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Guest guest

Elaine,

Thank you so much! You make it all sound much less dramatic than what I'd

built up in my mind. Do you think I should ask for a TSI right now, or just

wait a month and do it all together, since I know I will want more labs to

see if the dose increase was enough or too much?

The normal waxing & waning of symptoms--how big a swing are we talking? I

guess everyone is different, huh? I don't think I've any added estrogens, my

cycle has stopped, although I have had a bout of hot flashes lately that I

guess could indicate that estrogens are higher. I don't eat processed food

much if at all, but I did eat a lot of seafood lately. And, I've been less

stressed than my norm, since it's been a slow period with catering.

I'll ask for the test for mercury too. That should be interesting to see. I

hadn't realized it was a trigger, only thought about the iodine content of

seafood being one.

Most of all though, I am relieved to have some reference to how high FT4 can

go. I will have an interesting conversation with the endo tomorrow, for

sure.

Again thanks,

Terry

>

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Guest guest

Terry,

mine fluctuated from .7 to 3.2 during my crazy phase. Like I said

too, neither ER doc or Endo could explain varying degrees or weirdness

of symptoms. Heart palpitations and extreme fatigue one week and the next

sweaty hyper witn my pulse rate through the roof.

It's just a weird thing, but try and not get too too worried!! :)

Hang in there.

Val

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Val,

How did you deal with the fluctuations? Keep adjusting your dose, or just

ride through the changes? Were you on Tap or PTU?

Thanks,

Terry

>

> Reply-To: graves_support

> Date: Sun, 28 Apr 2002 09:32:57 -0700

> To: graves_support

> Subject: Re: I'm hyper again:(-help Elaine please

>

> Terry,

>

> mine fluctuated from .7 to 3.2 during my crazy phase. Like I said

> too, neither ER doc or Endo could explain varying degrees or weirdness

> of symptoms. Heart palpitations and extreme fatigue one week and the next

> sweaty hyper witn my pulse rate through the roof.

>

> It's just a weird thing, but try and not get too too worried!! :)

>

> Hang in there.

>

> Val

>

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

> of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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Share on other sites

Guest guest

Val,

How did you deal with the fluctuations? Keep adjusting your dose, or just

ride through the changes? Were you on Tap or PTU?

Thanks,

Terry

>

> Reply-To: graves_support

> Date: Sun, 28 Apr 2002 09:32:57 -0700

> To: graves_support

> Subject: Re: I'm hyper again:(-help Elaine please

>

> Terry,

>

> mine fluctuated from .7 to 3.2 during my crazy phase. Like I said

> too, neither ER doc or Endo could explain varying degrees or weirdness

> of symptoms. Heart palpitations and extreme fatigue one week and the next

> sweaty hyper witn my pulse rate through the roof.

>

> It's just a weird thing, but try and not get too too worried!! :)

>

> Hang in there.

>

> Val

>

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

> of

> the listowner. I have no input as to what ads are attached to emails.

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Hi Terry,

You haven't failed at all! This disease has no rhyme or reason in how it

flows and we all do the best that we can with whatever we are doing to feel

better.

I'm surprised you haven't noticed a difference with the seafood. Even with

my thyroid ablated, I still have some function and when I go overboard,

especially with shellfish, I can feel that old hyper buzz. Maybe next time,

the 3/4 days before you have labs, you stay away from that and see what

happens? Couldn't hurt. I think the one thing I would hold onto if I were

in your position is that you don't feel hyper, so maybe something else is

playing with the labs?

Don't know, just guessing.

Maybe going by more how we feel than the labs is better than letting our

labs tell us how we should feel...I am so guilty about this too, especially

lately. Try to take care,

Jody

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