Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 I agree. They should be for the most part, be against the law. I feel the system has no right to decide exclusively what they think is appropriate to teach my daughter, how much she can learn, and put limits on her. Not to mention the fact that she is not getting any real life education being with her peers(sorry Mr. Principal, hallways don’t count)and that segregation brings us full circle to a community that has no compassion, understanding and ability to be friends and coworkers of our differently abled population. This has happened to most human populations of color, ethnicity, religion. Enough should just be enough already. From: sList [mailto:sList ] Sent: Friday, April 16, 2010 10:33 AM To: sList Subject: Digest Number 4056 's List Messages In This Digest (5 Messages) 1a. Re: cluster ratings From: Heifferon 2a. Broward: Pragmatics Boot Camp Summer 2010 From: Ilene Rotman 3. Cranial Electrotherapy Stimulation? From: Cohane 4. SchaferAutismReport: New Research Theorizes Link Between Autism And From: Karp 5a. Re: Do we really want to Help Kill This Bill: HB645C1? From: Milian View All Topics | Create New Topic Messages 1a. Re: cluster ratings Posted by: " Heifferon " gary00001@... gary0323_44 Thu Apr 15, 2010 1:21 pm (PDT) I wish there was a rating for clusters. But if they did, it would go from bad to worse. From: sList [mailto:sList ] On Behalf Of Mike Wintzer Sent: Thursday, April 15, 2010 12:34 PM To: deniseslist Subject: cluster ratings I feel it would be useful, especially at this time of the year, to exchange experiences with the various autism clusters. We, parents of a severly autistis child, are struggling with the question of where to place him for his kindergarten year. ANY input from ANYbody most welcome. Thanks in advance! Mike Wintzer, City Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (10) 2a. Broward: Pragmatics Boot Camp Summer 2010 Posted by: " Ilene Rotman " irotman@... irotman Thu Apr 15, 2010 1:22 pm (PDT) LANGUAGE LINK THERAPY 9508 Rd. City, FL 33328 Office(954) 689-0730 Fax PRAGMATICS BOOT-CAMP SUMMER 2010 June 14th-Aug 20th *We will work around your ESY schedule and will offer Friday camp during the 4 or 5 weeks of ESY. PRAGMATICS BOOT-CAMP is back and our wonderful speech and occupational therapy staff are eagerly preparing for an exciting summer. Camp is being offered from 9:00am-12:00pm Monday-Friday. It is a pragmatic-based program that utilizes group play, arts and crafts, music and movement, sensory integration therapy to develop and exemplify appropriate social skills. Our thematic week adds excitement and creativity to camp. We will have a “WACKY DAY†where we dress up, are entertained by volunteers in the community, and participate in camp parades. Being that it is a therapy-based program, Medicaid will be accepted towards the fees for camp. *Please call Ilene or Jody at for more information. Regular Sessions ESY Friendly Sessions (Friday camp option available during ESY) Session 1 June 14th-July 9th Session 1 June 14th-june 25th Session 2 July 12th-July 30th Session 2 Aug 2nd-Aug 20th Session 3 Aug 2nd-Aug 20th *Based on a 5 week ESY Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (2) 3. Cranial Electrotherapy Stimulation? Posted by: " Cohane " thecohanes@... ecohane Thu Apr 15, 2010 8:01 pm (PDT) Anybody familiar with " Cranial Electrotherapy Stimulation " (CES).? Read more product page---- http://www.alpha-stim.com/SCS.html _____ From: JoanEC@... Sent: Thursday, April 15, 2010 8:14 AM To: thecohanes@... Subject: Fwd: FW: check it out Reply from Abe worth reading. Joan E. Childs, LCSW Specializing in Individual, Couples, Family and Group Counseling Email: joanec@... Web Site: www.joanechilds.com <http://www.joanechilds.com/> _____ From: abraham.weissmark@... To: JoanEC@... Sent: 4/15/2010 7:57:57 A.M. Eastern Daylight Time Subj: RE: FW: check it out Hi Joan, I sent you the information on this technology " Cranial Electrotherapy Stimulation " (CES). It is similar to TMS but instead stimulating the brain with magnetic pulses this method delivers electrical pulses via electrodes on the surface of the skin (ear lobes and forehead). The AlphaStim device is relatively inexpensive $500-$800 I believe it requires a prescription from a psychiatrist to purchase. The technology is similar to a TENS unit. In addition, if is interested in the therapy she can treat her children at home with this device as it does not require specialized training Read more product page---- http://www.alpha-stim.com/SCS.html Abe Weissmark (954)232-9369 abraham.weissmark@... From: JoanEC@... Sent: Wednesday, April 14, 2010 11:13 PM To: abraham.weissmark@... Subject: Fwd: FW: check it out sent this to me. Check it out. Joan E. Childs, LCSW Specializing in Individual, Couples, Family and Group Counseling Email: joanec@... Web Site: www.joanechilds.com <http://www.joanechilds.com/> _____ From: thecohanes@... To: JoanEC@... Sent: 4/14/2010 8:59:35 P.M. Eastern Daylight Time Subj: FW: check it out Mom, Is this same stuff Abe is doing? _____ From: b g Sent: Wednesday, April 14, 2010 4:46 PM To: ; Subject: check it out ----- Forwarded Message ---- To: bons7@... Sent: Wed, April 14, 2010 12:00:26 PM Subject: Tired of Stuggling with Symptoms? Image removed by sender. *Know Someone with Autism? See the Research Study showing Significant ASD Symptom Reduction using Assessment Guided Neurofeedback. Access the study on our new website at www.centerforbrain.com/conditions/autism-aspergers/ < learn. The Center for Brain Training offers help to individuals suffering from a variety of conditions. 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You can modify/update your subscription via the link below. < Email Marketing by < Image removed by sender. < 65841 & c=259328> Manage your subscription < & cid=259328> cid=259328 Image removed by sender. Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) 4. SchaferAutismReport: New Research Theorizes Link Between Autism And Posted by: " Karp " deniseslist@... deniseslist Thu Apr 15, 2010 8:02 pm (PDT) ----- Forwarded Message ---- To: Schafer Autism Report Sent: Thu, April 15, 2010 7:58:52 PM Subject: New Research Theorizes Link Between Autism And Toxic Chemicals Read this report online Large text, printer version Thursday, April 15, 2010p Reader Supported ________________________________ 800 Autism Events Listed Here NEWS New Research Theorizes Link Between Autism And Toxic Chemicals By Zulima Palacio, Voice of America. is.gd/buBmf During the last decade the reported cases of autism and other illnesses related to brain development have dramatically increased not just in the U.S. but around the world. Scientists say the increase cannot be explained by genetics and they believe it's linked to the increase of toxic chemicals in the environment. Dr. Martha Herbert is a pediatric neurologist at Massachusetts General Hospital. She's directing a large research study on toxic chemicals in the environment and their impact on brain development, including autism. " The genes load the gun, " she said. " But the environment pulls the trigger. " For years, scientists have believed that autism was genetically based. But Dr. Herbert believes environmental factors can either trigger or worsen the illness. She says finding those elements early in life and changing them could determine the severity of the disease. " We have a system in the body called the detoxification system, detoxification is another variant. In detoxification you get rid of things that you don't want either your body's own waste products or things that get in which you don't want to have around, " she said. " It can be air pollution, it can be plastics in the food, it can be pesticides that are in so many of our products. " Dr. Herbert's research involves babies, school age children and adults, with and without autism. She is trying to find out how the brain becomes autistic and at what point. She has been following Kenzie and , For rest of today's SAR click here: Today's SAR newslist is human compiled and provided through the support of paid subscriptions. - THANK YOU - $35 for 1 year - or free! In This Issue: ________________________________ • • • • • • • • • NEWS New Research Theorizes Link Between Autism And Toxic Chemicals RESOURCES Dealing with the “Special Needs†of Divorce 'Time Out' for Houston Parents of Autistic Children Couple Launches Web Site To Help Disabled Find Discounts RESEARCH The ABC’s of Autism - New Book Explores the Genetic Factors in Autism PUBLIC HEALTH Against the Element PEOPLE Gruesome Testimony In Odgren Murder Trial Parents of Autistic Kids Face Daily Fear LETTERS On the New ARI Supplement to the SAR ________________________________ Send your LETTER ________________________________ DO SOMETHING ABOUT AUTISM NOW .. . . Read, then Forward the Schafer Autism Report. $35 for 1 year - or free! ________________________________ Hundreds of Local Autism Events Web / Everywhere Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Hawaii Idaho Web / Everywhere Illinois Indiana Iowa Kansas Kentucky Louisiana Maine land Massachusetts Michigan Minnesota Mississippi Missouri Web / Everywhere Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Web / Everywhere Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming Web / Everywhere ________________________________ ________________________________ Now's the perfect time to order your free Puzzle Piece kits and launch an autism awareness campaign in your community. When we raise the funding necessary, ARI will see that important research is done, including the large-scale, independent study of vaccinated vs. unvaccinated children Click here. ________________________________ SAR Back Issues ________________________________ The Autism Community Supports the Schafer Autism Report .. . . Read, then Forward the Schafer Autism Report. $35 for 1 year - or free! ________________________________ Copyright Notice: The above items are copyright protected. They are for our readers' personal education or research purposes only and provided at their request. Articles may not be further reprinted or used commercially without consent from the copyright holders. To find the copyright holders, follow the referenced website link provided at the beginning of each item. Lenny Schafer editor@... The Schafer Autism Report is a non-profit corporation Vol. 14 No. 36 Unsubscribe here: Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) 5a. Re: Do we really want to Help Kill This Bill: HB645C1? Posted by: " Milian " cathymilian@... cathymilian Fri Apr 16, 2010 6:19 am (PDT) Vince, and Group My questions to our state representatives and organizations like ADAPT would be what are their interest? Meaning as a large group of individuals who have a great deal of interest on the well being of our kids future. WHAT DOES THIS LAW SAY? Good example I work for a rehab company outsourced in a Independent Living Facility/Adult Living Facility for the elderly community. They as well have there own services inside this community such as therapy and other services which they bill medicare. NOW IS THIS DOUBLE DIPPING? Like how the schools get paid for therapy services if the child doesn't get services from outside school. Though they receive Mc Kay money as well to provide your child the education they need???? GROUP!!!! Time to wake up and smell the coffee. Your child is someones income. Maybe your child is high functioning and they will be OK in the rat race when they become an adult. MAYBE? Or the chances that any lower functioning children will have to have an endless wait for living on their own, in a group home or community. Have you seen the numbers of how many are on the wait list for med waiver lately? The fact is SUSAN, DENISE, and VEN..... I am waiting for when this state can demonstrate " QUALITY OF LIFE " for my son. Actually all our kids. Not only do I care for him but for all our kids and families out there. SO we decided to close institutions to bring the disabled communities in the real world. BUT like Mayor says there is no such thing as the real world. That was a stupid show on MTV. Our kids need communities such as dale, Classic Hyatt, and more.... These are elderly communities who need different levels of needs met that aren't provided at home. These are far from being institutions. They have very small memory units and dedicate more to the higher level. That's what we need!!!!! Are you listening. I love my son and I am going to make sure to strive for creating this from scratch if I need to. aka enzo's mom Even if Enzo doesn't get to live in a place like this because of his medical issues. I am still doing it for all my families which I have met through out the years. I am not the only one on here who wants a better life for their son or daughter. Like the song by Mayor says " I like to think the best of me is hiding up my sleeve " : ) Subject: Do we really want to Help Kill This Bill: HB645C1? To: " " <deniseslist > Date: Thursday, April 15, 2010, 9:36 AM This was sent to the listserv by a group called ADAPT. I have asked Ven Sequenzia to annotate it with his thoughts, which closely mirror my own and many other parents of children with autism. Bottom Line: Although ADAPT would like to have this bill killed, most of us do not. ----- Forwarded Message ---- From: " vsequenzia@ aol.com " <vsequenziaaol (DOT) com> To: deniseslist@ yahoo.com Sent: Wed, April 14, 2010 9:26:27 PM Subject: Re: To Ven: Please review : This is not what this bill does. Many of the comments in this email are inflammatory and are not based in fact. Please read my responses after each concern in blue font with yellow background. Regards, Ven Sequenzia President Autism Society of America State of Florida Chapter A Message From ADAPT To: Chapman <rac@.... edu> Help Kill This Bill: HB645C1 What it does The bill creates “Planned Residential Communities†for people with developmental disabilities and removes the 1000 ft. siting limit in FS 419. Communities must be sited on at least 10 acres with unified control. The current limit prevents group homes from being closer than 1000 ft apart unless approved by local government. First of all, the addition of the acreage requirement was not in the original bill. A legislator added this verbiage, not the proponents. Also, it has been changed to 8 acres. That being said, I don't feel that there should be a limit in size, but for the bill to proceed, it was understood that it had to be in there. Furthermore, this bill does not change the 1,000 foot rule for group homes in the community at large. It only addresses homes located within the planned residential community itself. Why is it important? There is nothing in this bill that prevents planned communities from becoming institutions or at best, housing projects for people with developmental disabilities. Institutions have a very checkered record serving people with developmental disabilities in this state and others. As a result, the bill represents the most important shift in more than 30 years in terms of how adults with disabilities are served in Florida and it represents a total reversal of the mainstreaming of children with disabilities while they are in public schools. This is another inflammatory statement and is not based in fact. Most institutions of the past were state run facilities. The intent of this bill is to allow intentional communities to be created where individuals with disabilities and their families choose to live there. I doubt many families would choose what is described by Adapt. There is no intent to create segregated institutions. Why does this bill need to die? 1. This bill does not direct the Agency for Persons with Disabilities (APD) to license these communities in total. APD will only be able to license the individual residences in the community. Since the bill does not prevent sheltered workshops, medical and other services from being in these communities, then there will be no way to oversee how the total “community†is operating. There is nothing that happens to or for individuals served by APD that is not overseen in group homes, supported living or any of the other settings they license. I am unclear how having a planned community will avoid scrutiny. As for the sheltered workshop issue, I agree that sheltered workshops are not a great option whether in or out of a community, but the existence of one, does not in and of itself cause the community to be an institution. On the medical issue, I am unclear what this has to do with being in a planned community or not. Medical services in close proximity is a good thing. 2. This bill takes away local control over density and there is no requirement that people without disabilities live in the communities. To my knowledge, there is an amendment that has or will be added that addresses this concern. 3. The backers of this bill want Medicaid Waiver funds from the Agency for Persons with Disabilities to help pay for the ongoing care for the people with disabilities that will reside in these communities but these funds are not intended for institutions. Again, this is inflammatory language and has no basis in fact. These communities are not going to be institutions. The funds follow the individual and if the individual wants to live in this type of community, are we to tell them they cannot? Where is the choice in that? 4. The federal government has indicated they will stop paying for services to people with disabilities in these types of communities which will likely put an additional burden on local government and the state. I would like to see the law, language or basis for this comment. Again, I think this is merely a scare tactic and not based in fact. 5. There is no definition of what†unified control†means – it could mean a neighborhood association or a single provider/administra tor such as you would have in an institution. This language was added by the same legislator that added the acreage requirement. We had no control over that being added. Furthermore, if you are creating a community, someone needs to be in charge, right? Not sure how that automatically makes it an institution. 6. The provision requiring a 10 acre parcel effectively precludes having these “communities†in urban areas - a form of red lining (e.g. discrimination) and pushes these “communities†into more rural areas. This is addressed above. It has been reduced to 8 acres and a legislator added this language, not the proponents. 7. Staff Analysis states that HB645C1 will cut money for transportation because of the one-stop-shop approach. We need multiple eyes to prevent abuse of the most vulnerable citizens. Not sure how this will cut funding for transportation? What does transportation have to do with abuse? The fact is, there will be less need for transportation for things that the individual may choose to do in the planned community. Nothing precludes the individual from leaving the planned community to go shopping, movies, the beach, the mall, work, bowling or any other activity. What do you need to do today? Call Representative Dave Murzin at and let him know that you believe that 645 should not be put on the agenda. Call Rep. lin Sands and Rep Bill Galvano and tell them to stop HB 645C1 from moving NOW.Do NOT email. We need to generate call volume. You should know the facts and what the intent of this bill are and not get caught up in the scare tactics listed here. The proponents of the bill are parents that have children with developmental disabilities and they want an option for their child that is readily available to all non-disabled members of society. Nobody is going to force anyone to live in a planned residential community, it is a choice. Visit ..org/ or m.org/ and after looking at these intentional communities, if you feel they are institutions, then make your calls to oppose the bill. But, if after looking at these sites, you see what we see and realize how wonderful a planned community can be, then call and tell them you want it to be heard and to pass the bill. Bill Galvano Rules Chair lin Sands Democratic Leader Call the following legislators and tell them HB 645C1 must not be allowed to pass. We do not need more institutions and there are too many unintended consequences in this bill. First Name Last Name Position District Phone Local Phone Larry Cretul Speaker -Cantera Majority Whip -- Kristyn McNally Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (4) Recent Activity · 6 New Members Visit Your Group Share Photos Put your favorite photos and more online. Cat Groups on Yahoo! 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