update on treatment

[Guest guest]

Friends asked if I had a great Easter. For Easter I suffered with

thrush and canker sores, friends invited us down to Broomfield for

dinner after church and we could not go because I could not eat. So,

I fixed Bob dinner and ate some very soft lemon bread (with a helping

of pain). I was nauseated from the Mycelex (for the thrush) and had

to quit it when it gave me the runs (horribly). Back to the swish

and swallow (Lidocaine and Nystatin). For the canker sores I am

taking L-lysine in huge doses. It has made them smaller, but not

taken them away.

I talked to the doctor's office today. I told them these sores had

to go away before I could do chemo again. I have 10 days to get rid

of them. If they don't go away by then, I could have them all of

next month if I do chemo again. If they can find a way to kill the

pain from them, then maybe??????????????? They are going to call me

tomorrow to see if we can find some other things to do. In addition,

I am calling my naturopath for help. I may take diflucan to see if

that helps. I see an eye doc on Wed. because I am having some visual

blurring also. So side effects are getting me. What may happen is a

reduction in the dosage of chemo. Often with doxil this happens.

I have an appt. with a neurologist Wed. A.M. to see what can be done

for the RSD that is getting more painful daily. I want them to do a

sympathetic nerve block to see if this stops the pain, because if it

does, that means they can stop it permanently. It would have to be

done soon, before the dystrophy sets in. This on top of chemo. I

want so badly to get back to doing hyperbaric treatment. It could be

months before that could happen, however.

Now, I really want to do this next treatment on time, as I have a

wedding to get to in Missouri on the 19th. I want to be over the

worst of the side effects by then. Besides, I need to do the next

one early in May because of Bob's family all coming the end of

May. So I want them to be on time and get this over with so I can

get on with trying to get better and have a life. And the sooner the

fluid is completely gone out of my lungs and I am not sick from

chemo, I can do hyperbarics again. So, again, any miracles you have

out there, send them my way. Prayers also!

Love you all,

Lynda