Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 I also had this problem with the mercury inhibiting my lyme improvement.. I've been chelating for heavy metals/mercury for almost 1 yr (some breaks inbetween). The majority of the chelation methods simply made me feel worse even after sticking with them a while. The only one i tried that i did not have a negative physical response to was Maxam's PCR-X and PC3-X natural, safe chelation sprays. For me they are SO gentle, too which is a big plus. They're the only method i'll use now, they work thoroughly and don't make me feel awful. At most i did feel a bit more tired the first week i used them, after that, just better. But i did start at the minimum dose (1spray/day) and worked up to the max. I know they've been mentioned on here before, but the site gives a wealth of info about them if anyone's curious.. www.maxamlabs.com. I trust maxam because i know everything is science-based and extensively researched for effectiveness. On 6/12/07, kendra <kendraz@...> wrote: > > maria wrote: > My doctor also says that I won't improve more (with the candida) until I > get rid of the mercury. I'm totally terrified to do so because of how > I've set up my busy schedule for the next few months- don't want to > backslide into Lyme symptoms again and the last attempt at chelation > produced increased symptoms. > > I'll start the chelation at some point this summer, just avoiding it for > the moment. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Thanks for the info on the products. For how long have you used them and how do you know you got rid of mercury/ metals? I'm also looking for alternatives as chelating is a long time work (and tough!!). Selma I also had this problem with the mercury inhibiting my lyme improvement.. > I've been chelating for heavy metals/mercury for almost 1 yr (some breaks > inbetween). The majority of the chelation methods simply made me feel worse > even after sticking with them a while. The only one i tried that i did not > have a negative physical response to was Maxam's PCR-X and PC3-X natural, > safe chelation sprays. For me they are SO gentle, too which is a big plus. > They're the only method i'll use now, they work thoroughly and don't make me > feel awful. At most i did feel a bit more tired the first week i used them, > after that, just better. But i did start at the minimum dose (1spray/day) > and worked up to the max. I know they've been mentioned on here before, but > the site gives a wealth of info about them if anyone's curious.. > www.maxamlabs.com. I trust maxam because i know everything is science-based > and extensively researched for effectiveness. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Hi Kendra & , I was interested to read both of your posts as I am in a similar position in that I am dealing with mercury toxicity plus I was recently found to have borrelia. Kendra its intersting that your doctor told you that the mercury is getting in the way of your recovery from lyme and that you have found that getting the lyme under control has helped you to start dealing with the mercury issue. It definitely seems like once one aspect is under control it makes dealing with the other issue easier. My experience is that I have been chelating mercury for a couple of years now using the Cutler protocol too and it is generally going quite slow. Some of my chelation rounds have gone smoothly but overall I have found it difficult to increase my dose especially with alpha lipoic acid without getting awful side effects and some of my rounds have not gone well at all. I wasnt really sure why this was though I know chelation can be a very slow process for many people anyway and I wondered if it was because I have a high load plus like so many others I have chronic gut problems. So having recently tested positive for borrelia and suspecting that I have other infections too it seems that they are probably getting in the way of my chelation process. As I am starting to address the infections now it will be interesting to see how I progress on the chelation front from now on. Kendra I'm glad to hear that the chelation is going well for you up to now so good luck with that and good luck with your continuing recovery from lyme. Best wishes, Anne > My doctor also says that I won't improve more (with the candida) until I > get rid of the mercury. I'm totally terrified to do so because of how > I've set up my busy schedule for the next few months- don't want to > backslide into Lyme symptoms again and the last attempt at chelation > produced increased symptoms. > > I'll start the chelation at some point this summer, just avoiding it for > the moment. > > hi, , > i've been in similar situation with no improvement in lyme because my llmd > said 2 years ago i was too mercury toxic. it took me over year to just > stablize my health enough with buhner herbs to be able to tolerate removing > my mercury fillings this spring. i had last of the fillings out april 27. > with each quadrant removed, i felt an immediate sense of lightness, > upliftedness--some psychological, some physical? > > i've reviewed mercury chelation protocols, and decided that andy cutler's > protocol is by far the safest and most effective for me. what protocol were > you using when you had problems? > > last night i finished my 4th round of cutler chelation, and feeling okay. > still usual ups and downs, but no major flares. if anything, i sense a > slight overall increase in well-being while i'm chelating, which is > wonderful. per cutler protocol, i started at very low dose per my weight, > only 12mg of dmsa every 4 hours for 3 days and nights. > > i've not yet been able to convince my llmd to read cutler's book (says she's > too swamped now). she is using chelation protocol of a single large dose of > dmsa, 300mg/day. she strongly warned me when i told her i was going to start > chelating. she said i might not be well enough to tolerate the symptoms > (that is, the symptoms that her patients on the single large dose get). and > when i told her i was going to do 3 days on with 4 days off, she > emphatically said i had to rest at least 11 days. > > after all the horror stories about problems from other chelation protocols, > i'm delighted that i'm doing this well with it. i can't wait til next appt > to tell doc how easy this low dose every 4 hours protocol is compared to > what she is putting her other patients thru. the last couple rounds i even > extended the chelation to 4 days instead of 3 days because i felt slightly > better when chelating, and i'm only resting 3 days between. we'll see how > this goes as i slowly increase the dose with future rounds. > > learning to surrender > with grace & ease, > kendra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Anne, I follow another protocol for mercury chelation (and other metals) for more than a year, using NDF-Plus, Phospholipid Exchange, cilantro sometimes, bear garlic, MSM, and chlorella. It's been a tough year, but at least I don't think I fell downwards. Alpha lipoic acid seems to work well for some, but for others could make the mercury goes directly to the brain, for what I heard. I never tested good for it, so I don't use it (muscle test). I guess, different people, different methods and different results. My doctor said that the average of chelation time goes about 2 years for his lyme patients. At least to reach a minimum level so that the immune system starts to work back again. I can't say if this is true, but it's based on the dr. K's method, he's got lots of experience in that field. It's slow too.... Selma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 In my opinion it is not enough of a chelator to worry. My husband has a HUGE mouth full of amalgams and has hashimotos. He is a patient of Dr. Brownstein's as well and is on 31.25 mgs per day. I took 50 mgs per day for 4 mos prior to removing my amalgams and felt really good. I am sure there are many here that have amalgams and are using iodine. I would say that the potential benefits OF supplementing vs NOT are greater. Mercury chelation I impulsively bought Lugol's after hearing the excellent tapes by Dr. Flechas but now remember that iodine moves metal easily.I have a mouth full of mercury that I cannot afford to take out.Should I just not take iodine or can I chelate it somehow. I can't do the colon cleanse thing. Parashis artpages@...zine:artpagesonline.comportfolio:http://www.artpagesonline.com/EPportfolio/000portfolio.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2007 Report Share Posted July 22, 2007 Thank you so much! I can hardly wait to start now. On Jul 21, 2007, at 7:57 PM, ladybugsandbees wrote: > In my opinion it is not enough of a chelator to worry. My husband has > a HUGE mouth full of amalgams and has hashimotos. He is a patient of > Dr. Brownstein's as well and is on 31.25 mgs per day. I took 50 mgs > per day for 4 mos prior to removing my amalgams and felt really good. > I am sure there are many here that have amalgams and are using > iodine. I would say that the potential benefits OF supplementing vs > NOT are greater. Parashis artpages@... zine: artpagesonline.com portfolio: http://www.artpagesonline.com/EPportfolio/000portfolio.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 I replied already but now I can't find the links to say how much magnesium and selenium to take and how much with each quantity. I plan to start out with one drop a day and work up to 50, adding one each day. Good idea? Then how much of the supps go with each dose? Thanks if you know those answers. On Jul 21, 2007, at 7:57 PM, ladybugsandbees wrote: > In my opinion it is not enough of a chelator to worry. My husband has > a HUGE mouth full of amalgams and has hashimotos. He is a patient of > Dr. Brownstein's as well and is on 31.25 mgs per day. I took 50 mgs > per day for 4 mos prior to removing my amalgams and felt really good. > I am sure there are many here that have amalgams and are using > iodine. I would say that the potential benefits OF supplementing vs > NOT are greater. >  Parashis artpages@... zine: artpagesonline.com portfolio: http://www.artpagesonline.com/EPportfolio/000portfolio.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 I take Allergy Researches Buffered C product. 3 scoops per day - split in two doses http://www.allergyresearchgroup.com/Buffered-Vitamin-C-240-Grams-Pwd-p-33.html My Selenium is in my chelation product. I take 200 mgs in a product called Heavy Detox. http://www.antiaging-systems.com/apruses/heavydetox.htm I take a lot of other stuff but it is for various specific condition issues. I don't think you need to worry about those. Does this help? Re: Mercury chelation I replied already but now I can't find the links to say how much magnesium and selenium to take and how much with each quantity. I plan to start out with one drop a day and work up to 50, adding one each day. Good idea?Then how much of the supps go with each dose?Thanks if you know those answers.On Jul 21, 2007, at 7:57 PM, ladybugsandbees wrote: In my opinion it is not enough of a chelator to worry. My husband has a HUGE mouth full of amalgams and has hashimotos. He is a patient of Dr. Brownstein's as well and is on 31.25 mgs per day. I took 50 mgs per day for 4 mos prior to removing my amalgams and felt really good. I am sure there are many here that have amalgams and are using iodine. I would say that the potential benefits OF supplementing vs NOT are greater. Parashis artpages@...zine:artpagesonline.comportfolio:http://www.artpagesonline.com/EPportfolio/000portfolio.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 very much so. Thanks. On Jul 26, 2007, at 1:47 PM, ladybugsandbees wrote: > Does this help? Parashis artpages@... zine: artpagesonline.com portfolio: http://www.artpagesonline.com/EPportfolio/000portfolio.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 Great! Re: Mercury chelation very much so. Thanks.On Jul 26, 2007, at 1:47 PM, ladybugsandbees wrote: Does this help? Parashis artpages@...zine:artpagesonline.comportfolio:http://www.artpagesonline.com/EPportfolio/000portfolio.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 I'd check out Andy Cutlers books on Chelation. He seems to be very knowledgeable. > > I didn't see much in the files about mercury chelation products. I've > looked at Heavy Metal Detox (www.detoxmetals.com) and Thorne Research > Inc's Chelation set - Captomer 250, Basic Detox Nutrients, Hydrolized > Lactalb. Protein, Medibulk and Heavy Metal Support which totals about > $200+. Wondering which way to go, what has worked well for others? > > Last March my mercury level was 16, and I took a prescription chelator > (can't remember the name), then I retested in September and level was > at 10. I finished part of the Captomer-250 I had left and am now > trying to figure out which chelation agent to go with. > > Thanks for input, Stacey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 Hi, Stacey. <reilly_stacey@...> wrote: > > I didn't see much in the files about mercury chelation products. ***The more relevant place to look is this list archives. This topic has been extensively and utterly exhausted here, it's all there in previous discussions and posts. *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 > > > > I didn't see much in the files about mercury chelation products. I've > > looked at Heavy Metal Detox (www.detoxmetals.com) Avoid it. and Thorne Research > > Inc's Chelation set - Captomer 250, Basic The 100's are more than enough. Every 4 hours or not at all. > >Detox Nutrients, Hydrolized > > Lactalb. Protein, Medibulk and Heavy Metal Support Avoid it all. > > which totals about > > $200+. If you stick to what is good for you it is a lot cheaper! > > Wondering which way to go, what has worked well for others? Much, much discussion of this in the books and on the groups I mentioned above. > > Last March my mercury level was 16, and I took a prescription chelator > > (can't remember the name), then I retested in September and level was > > at 10. I finished part of the Captomer-250 I had left and am now > > trying to figure out which chelation agent to go with. > > > > Thanks for input, Stacey > > > Most of these products are inappropriate and harmful so that saves you a lot of money right there. Alpha lipoic acid (ALA) is the most powerful chelator available, which means if you take it randomly you will mess yourself up a LOT more - you would do well to check out the Frequent Dose Chelation group, also on . ALA is also not very expensive. THe other basic supplements for chelation are also not expensive - vitamins C and E, zinc and magnesium. All the stuff you might take to control symptoms until you are adequately detoxed is what adds up. Depending on your budget you can do more or less of this. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 I would research the heck out of this. Yes, having bad things in your body is bad but displacing them and not getting them out could be worse. (i.e. mercury stuck in the pancreas) I am not sure there is a rule. I have not chelated but those I know who have know stories of recovery both with and without chelation. The tests are a guess but the dr should not be leaving it at that. Bottom line, if a kid is excreting something high that means it is coming out. More important (to me anyway) would be what does a typical kid living in that area with that vaccine history excrete. Not sure it is possible to get exactly that but I believe I saw something on Stan Kurtz's site about a range for typical vaccinated kid excretion. If a kid is a heavy excretor beyond typical the next move is looking to reduce what is going into the body via environmental and dietary supports and to assist what is coming out too fast via vitamin supports. Whether you chelate or not, if it were me, I would not let a doc, DAN, mainstrem, or hybrid, do anything to my kid that I did not have an understanding of, particularly something like this. As for the under 5 rule, I do not believe that is hard and fast. These children are all different which is why you want to know if allergies, autoimmune dysfunction, genetics, and/or environment got you to this place and you want to know as much as you can about what did it and how you reduce future exposure and toxic recycling. > > My 6 year old son starts Mercury Chelation next month. We have been on the diet GFCF and supplements for four months with good results. The doctor wants me to come in and try chelation - he is still in the normal range from his blood test, but he is high. The doctor thinks if we do further tests he will show high for Mercury. > > I am concerned about this as I know nothing about it. Forgive me and I don't mean to be offensive, but the little I have read does not show great results after the age of 5. I can't get a grip on exactly what chelation is - I would love to hear anyone's experiences on this. > > and 6 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 There are many supposed forms of mercury chelation out there right now, but only 3 things that actually, truly, scientifically work to chelate mercury from the body. Those are the chemicals DMSA, DMPS, and ALA. That's it. Glutathione is not a chelator. Saunas are not chelators. Clay baths are not chelators. EDTA does not chelate mercury. Homeopathic remedies are not chelators. Granted, people have reported improvement using those things, but they do not fit the official definition of what it means to be a chelator. There are different ideas about how to use the actual chelators. Some doctors prefer transdermal creams and others dose it orally. All of them were designed to be taken orally. Unless your child is truly unable to tolerate taking it orally, that's how they should be given. DMSA is available without prescription from www.vrp.com It is FDA approved for lead and mercury chelation. DMPS is available with prescription only. It is not FDA approved, but is a powerful mercury chelator, even better than DMSA. It is not FDA approved in the US, but is used in Japan and Germany. ALA is available at any supplement store, but hypoallergenic pills are available from www.kirkmanlabs.com ALA may be used alone without DMSA or ALA. ALA is the only chelator for sure to cross the blood brain barrier and has to be used to clear mercury from the brain. Debate about DMSA or DMPS getting into the brain or not continues. All chelators cause yeast overgrowth. You need a very good yeast protocol, preferably with a prescription antifungal. Stay clear of food that feeds yeast. Be aware that yeast can cause temporary regression and ickiness. It can cause those problems when it is dying as well. Dosing should be done in 1/8 mg to 1/4 mg per pound, aproximately 12.5 to 25 mg for a child. Give DMSA every 4 hours for 3 days. Give ALA every 3 hours for 3 days. Give DMPS every 8 hours for 3 days. If using DMSA and ALA together, do every 3-4 hours. Dosing does take place at night. Take 4 to 11 days off inbetween. Supplement with appropriate minerals and vitamins during and between chelating. (Usually high doses of zinc, calcium, vitamin C, magnesium and molybdenum work well). Do not chelate when sick. DO NOT CHELATE ANYONE WITH MERCURY FILLINGS!!!! If a child can't swallow a pill, open the capsule and empty it into a tiny amount of juice. If a dose is missed, stop the round. A round is a 3 day period. It takes approximately 100 to 125 rounds to get better, meaning 2-5 years. If this is followed properly, regression is minimal. Expect some mild irritability, lethargy, and unpleasantness when first starting. Improvement should be seen within 10 rounds. Improvement is slow but noticeable. There is a stall period for several months (between 6 and 9 months approximately). For more information, read " Amalgam Illness " by Dr. Hall Cutler, or join the group. We have recovered our daughter from Autism using this protocol and are only on round 69. -------------- Original message -------------- From: " ilizzy03 " <lizlaw@...> I would research the heck out of this. Yes, having bad things in your body is bad but displacing them and not getting them out could be worse. (i.e. mercury stuck in the pancreas) I am not sure there is a rule. I have not chelated but those I know who have know stories of recovery both with and without chelation. The tests are a guess but the dr should not be leaving it at that. Bottom line, if a kid is excreting something high that means it is coming out. More important (to me anyway) would be what does a typical kid living in that area with that vaccine history excrete. Not sure it is possible to get exactly that but I believe I saw something on Stan Kurtz's site about a range for typical vaccinated kid excretion. If a kid is a heavy excretor beyond typical the next move is looking to reduce what is going into the body via environmental and dietary supports and to assist what is coming out too fast via vitamin supports. Whether you chelate or not, if it were me, I would not let a doc, DAN, mainstrem, or hybrid, do anything to my kid that I did not have an understanding of, particularly something like this. As for the under 5 rule, I do not believe that is hard and fast. These children are all different which is why you want to know if allergies, autoimmune dysfunction, genetics, and/or environment got you to this place and you want to know as much as you can about what did it and how you reduce future exposure and toxic recycling. > > My 6 year old son starts Mercury Chelation next month. We have been on the diet GFCF and supplements for four months with good results. The doctor wants me to come in and try chelation - he is still in the normal range from his blood test, but he is high. The doctor thinks if we do further tests he will show high for Mercury. > > I am concerned about this as I know nothing about it. Forgive me and I don't mean to be offensive, but the little I have read does not show great results after the age of 5. I can't get a grip on exactly what chelation is - I would love to hear anyone's experiences on this. > > and 6 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 , We are working toward removing aluminum. We have very little mercury at all. We are using a homeopath. I guess my question is that the homeopathics will they detox alumunum? Then will the mercury stay? Colleen Mother of Charlie 30 months Re: [ ] Re: Mercury Chelation There are many supposed forms of mercury chelation out there right now, but only 3 things that actually, truly, scientifically work to chelate mercury from the body. Those are the chemicals DMSA, DMPS, and ALA. That's it. Glutathione is not a chelator. Saunas are not chelators. Clay baths are not chelators. EDTA does not chelate mercury. Homeopathic remedies are not chelators. Granted, people have reported improvement using those things, but they do not fit the official definition of what it means to be a chelator. There are different ideas about how to use the actual chelators. Some doctors prefer transdermal creams and others dose it orally. All of them were designed to be taken orally. Unless your child is truly unable to tolerate taking it orally, that's how they should be given. DMSA is available without prescription from www.vrp.com It is FDA approved for lead and mercury chelation. DMPS is available with prescription only. It is not FDA approved, but is a powerful mercury chelator, even better than DMSA. It is not FDA approved in the US, but is used in Japan and Germany. ALA is available at any supplement store, but hypoallergenic pills are available from www.kirkmanlabs.com ALA may be used alone without DMSA or ALA. ALA is the only chelator for sure to cross the blood brain barrier and has to be used to clear mercury from the brain. Debate about DMSA or DMPS getting into the brain or not continues. All chelators cause yeast overgrowth. You need a very good yeast protocol, preferably with a prescription antifungal. Stay clear of food that feeds yeast. Be aware that yeast can cause temporary regression and ickiness. It can cause those problems when it is dying as well. Dosing should be done in 1/8 mg to 1/4 mg per pound, aproximately 12.5 to 25 mg for a child. Give DMSA every 4 hours for 3 days. Give ALA every 3 hours for 3 days. Give DMPS every 8 hours for 3 days. If using DMSA and ALA together, do every 3-4 hours. Dosing does take place at night. Take 4 to 11 days off inbetween. Supplement with appropriate minerals and vitamins during and between chelating. (Usually high doses of zinc, calcium, vitamin C, magnesium and molybdenum work well). Do not chelate when sick. DO NOT CHELATE ANYONE WITH MERCURY FILLINGS!!!! If a child can't swallow a pill, open the capsule and empty it into a tiny amount of juice. If a dose is missed, stop the round. A round is a 3 day period. It takes approximately 100 to 125 rounds to get better, meaning 2-5 years. If this is followed properly, regression is minimal. Expect some mild irritability, lethargy, and unpleasantness when first starting. Improvement should be seen within 10 rounds. Improvement is slow but noticeable. There is a stall period for several months (between 6 and 9 months approximately). For more information, read " Amalgam Illness " by Dr. Hall Cutler, or join the group. We have recovered our daughter from Autism using this protocol and are only on round 69. -------------- Original message -------------- From: " ilizzy03 " <lizlawoptonline (DOT) <mailto:lizlaw%40optonline.net> net> I would research the heck out of this. Yes, having bad things in your body is bad but displacing them and not getting them out could be worse. (i.e. mercury stuck in the pancreas) I am not sure there is a rule. I have not chelated but those I know who have know stories of recovery both with and without chelation. The tests are a guess but the dr should not be leaving it at that. Bottom line, if a kid is excreting something high that means it is coming out. More important (to me anyway) would be what does a typical kid living in that area with that vaccine history excrete. Not sure it is possible to get exactly that but I believe I saw something on Stan Kurtz's site about a range for typical vaccinated kid excretion. If a kid is a heavy excretor beyond typical the next move is looking to reduce what is going into the body via environmental and dietary supports and to assist what is coming out too fast via vitamin supports. Whether you chelate or not, if it were me, I would not let a doc, DAN, mainstrem, or hybrid, do anything to my kid that I did not have an understanding of, particularly something like this. As for the under 5 rule, I do not believe that is hard and fast. These children are all different which is why you want to know if allergies, autoimmune dysfunction, genetics, and/or environment got you to this place and you want to know as much as you can about what did it and how you reduce future exposure and toxic recycling. > > My 6 year old son starts Mercury Chelation next month. We have been on the diet GFCF and supplements for four months with good results. The doctor wants me to come in and try chelation - he is still in the normal range from his blood test, but he is high. The doctor thinks if we do further tests he will show high for Mercury. > > I am concerned about this as I know nothing about it. Forgive me and I don't mean to be offensive, but the little I have read does not show great results after the age of 5. I can't get a grip on exactly what chelation is - I would love to hear anyone's experiences on this. > > and 6 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Please do not think I was suggesting diet chelates anything. What I think my friend was getting at was that some of the folks she knew did well with diet only because it allowed their body to release what was stuck in the GI tract and allowed the gut/neuro system for lack of a better phrase, to again function properly. I am troubled that this dr. wants to chelate without explaining why he thinks there is more to come, etc. What does EDTA chelate? > > > > My 6 year old son starts Mercury Chelation next month. We have been > on the diet GFCF and supplements for four months with good results. > The doctor wants me to come in and try chelation - he is still in the > normal range from his blood test, but he is high. The doctor thinks > if we do further tests he will show high for Mercury. > > > > I am concerned about this as I know nothing about it. Forgive me > and I don't mean to be offensive, but the little I have read does not > show great results after the age of 5. I can't get a grip on exactly > what chelation is - I would love to hear anyone's experiences on this. > > > > and 6 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Bravo! Very well written and explained. May I ask how old your daughter is, and if she is over toddler age, how do you dose in the middle of the night? Thanks! Stephanee > > > > My 6 year old son starts Mercury Chelation next month. We have been > on the diet GFCF and supplements for four months with good results. > The doctor wants me to come in and try chelation - he is still in the > normal range from his blood test, but he is high. The doctor thinks > if we do further tests he will show high for Mercury. > > > > I am concerned about this as I know nothing about it. Forgive me > and I don't mean to be offensive, but the little I have read does not > show great results after the age of 5. I can't get a grip on exactly > what chelation is - I would love to hear anyone's experiences on this. > > > > and 6 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Hi, and thanks to everyone who answered my reply. This sort of thing scares me, and I just wanted to get everyones point of view. I promise you ilizzy my doctor will explain fully, I just like to be informed as well, and I want to make a good choice on this, I appreciate both sides to the issue - thank you for your long, considered reply. That was great introduction to Mercury Chelation and I am pleased it is going so well for you. I am assuming you are going to complete the rounds. Can I ask a couple of questions - how old was your daughter when you started, how did you deal with school etc, or was your child at home. I ask this as he is at school for 8 hours a day. I just re-read your email and I just want to make this clear - you chelate through the night as well? When you say 'expect some irratibility, unpleasantness and lethargy' are you talking about your lack of continuous sleep or the childs? Anyway - well done! Hats off, that is a fierce regime. [ ] Re: Mercury Chelation Please do not think I was suggesting diet chelates anything. What I think my friend was getting at was that some of the folks she knew did well with diet only because it allowed their body to release what was stuck in the GI tract and allowed the gut/neuro system for lack of a better phrase, to again function properly. I am troubled that this dr. wants to chelate without explaining why he thinks there is more to come, etc. What does EDTA chelate? > > > > My 6 year old son starts Mercury Chelation next month. We have been > on the diet GFCF and supplements for four months with good results. > The doctor wants me to come in and try chelation - he is still in the > normal range from his blood test, but he is high. The doctor thinks > if we do further tests he will show high for Mercury. > > > > I am concerned about this as I know nothing about it. Forgive me > and I don't mean to be offensive, but the little I have read does not > show great results after the age of 5. I can't get a grip on exactly > what chelation is - I would love to hear anyone's experiences on this. > > > > and 6 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 It depends on which protocol you are following. We follow the DAN protocol which administers DMSA every 8 hours, day and night. There is the Cutler protocol which adminsters DMSA every 4 hours at a very low dose. We are actually chelating for lead and have seen incredible improvements from just one round. The new things we have seen in the last two weeks for my 13 year old include: - increased focused and attention; usually fatigues after about 1/2 hour doing homework; was able to sustain attention to home work for 2 & 3 hour stretches. - started making his own school lunches daily (amazing!). Usually my son is a mama's boy and needs everything 'done' for him. His self help skills were not the best but now he is actively participating in all of the things that he needs to do such as organizing his knapsack and getting everything done without me having to 'badger' and monitor his to-do list. - his speech was immediately more fluid and clear right after the round. Usually it is labored and a little off (we have done a ton of thereapy) but right after the round, it was light, quick, easy and fluid. He was immediately NT. -Showed a preference to hanging out with the older boys (young men) to watch football on Sunday rather then to play video games with kids 1-2 years his junior (as is his usual practice). -Yesterday my son took public transit home from school! YEEEHAAA!!!! This is a wonderful first (especially for me). Now, my son does not go to school within his district but goes to a school further away. The bus ride is about 3/4 of an hour and is filled with University students as his school is close to the University. He had no troubles whatsoever and is taking the bus again today. I have died and gone to heaven. There is NO WAY he could have done this 3 weeks ago.... absolutely no way! We went to the doctor yesterday and he was very pleased. We all discreetly did 'the happy dance'! The bad news is: Yesterday, along with taking the bus..... Marks speech regressed back to what it was prior to the round.... (saaaaad mommy). The doctor explained it this way to me. The DMSA pulls the lead and it clears the system so the child feels good and well. The lead in the tissues then begins to leave the tissues and circulate through the system. This is the reason for the break I suspect, to allow the metal to begin to circulate and then the DMSA (or whatever chelator you are using) can pull it out once more. We had a lot of success but this is rare and unusual particularly for an older child such as this. The cavieat on all this is...... we have done many years of intense therapy on my son before even trying this. Most of my son's issues had been resolved via therapy and some were resolved via diet. The issues that were really remaining included some 'slowness' of speech (just slightly and I cannot really explain it.... he has almost normal speech but not quite), a lot of daily fatigue, attention issues, slowness of demeanor and a general immature level of self-help and being. (Probably a couple of years behind where he should be.) I understand that mercury is a tough metal to chelate and that it really hangs on to the tissues. Patience is required and make sure you get on a decent yeast protocol because DMSA kicks up yeast like crazy. So, we do round 2 this weekend. I am crossing my fingers that my NT boy will come back to me to stay for a while! Wish us luck. Janice Mother of Mark, 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 What I don't get also is if yeast wraps itself around metal and the yeast comes out then does aany metal it wrapped around come with it as well? I realize there are reasons not to do it that way but since I did not know that when it was happening I now wonder what I saw which is why I ask. Same question for fluoride. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 My daughter will be 7 in March. We began chelating when she turned 4. We dose in the middle of the night by pouring the pill contents (we use DMSA and ALA in 12.5 mg doses...which equals 1/2 pill of each) into about 2 tsp of juice (those little medicine cups or shot glasses work best) and mixing it up with a toothpick. We then wake her up very quickly and gently, have her sit up, and get her to take a drink. The whole process takes maybe 30seconds. On chelating nights, one of us will sleep in bed with her so we can just reach over when the alarm goes off and give her the juice. Even though she can now swallow pills, we still have to do this because no one makes a 12.5mg pill, only 25 mg. We chelate on this schedule so that we only have to wake up once a night: Starting Friday, finishing Monday morning: 4pm, 7pm, 11pm, 3am, 7am, 10am, 1pm, 4pm... -------------- Original message -------------- From: " bscmommy " <stephanee_a@...> Bravo! Very well written and explained. May I ask how old your daughter is, and if she is over toddler age, how do you dose in the middle of the night? Thanks! Stephanee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Hi , This may be repetitive, so sorry! My daughter will be 7 in March. We started chelating at age 4. As I just posted to Stephanee, we chelate from Friday afternoon until Monday morning, that way the school has nothing to do with it. The schedule is Friday afternoon, 4pm start. Then 7pm, 11pm, 3am, 7am, 10am, 1pm and 4pm...all over again until 7am Monday morning. We do this every other weekend to keep yeast down and for our own sanity...it is tiring. See my response to Stephanee for how to do this with juice. You have to chelate through the night. Think of the chelator like an IV. Rather than slamming the body with big doses every 12 hours or so, you keep a very low but constant dose continually flowing. You have to do it in the night to keep that going. The irritability is minimal. It's basic crabbiness, stubborness, and tiredness. Part of it is from the chelation (it can make them feel foggy, although some people say they feel better while chelating and worse afterwards), and part of it is being woken up in the middle of the night. If it ever escalates beyond that, it's likely there is a yeast problem and/or your dose is too high. Start low, low, low. At this point, after discussing this with other moms chelating this way, we pretty much agree that the weekend of chelating went fine and on Monday, our kids were tired, but fine. Tuesday they became crabby and cranky. Wednesday they were the worst, tired, irritable, mad, easily stressed. Thursday, they were angels and new skills, words, ability would show up ever so slightly. Over the next week, the improvements continued. The only negative thing that ever happened to us happened when I gave her 50 mg of DMSA instead of 12.5. I had originally purchased pills in 100 mg amounts and was trying to break them into 12.5 (not fun). A few months later, the 25mg became available, so I put the 100 mg away. One afternoon, I grabbed a 100 instead of a 25 and divided it in half. I gave it to my daughter. Within an hour, she developed a low grade fever, sweated quite a bit, and threw up. Using small doses of 12.5mg, that has never happened. (It shows us though just how powerful the right dose actually is.) It is not uncommon, however, for her to develop a slight fever and get sweaty the first night of chelating. Sometimes her sweat even smells metalic, and the first 3 rounds I walked around the house looking for a tin can, not realizing it was her! True story! The low grade fever and lethargy disappear by Saturday, and then the rest is fine. We have actually not had the sweating or the lethargy or other crabbiness for a long time. As she has gotten better, that has subsided substantially. None of the subtle negative side effects are even close to the amazing positive effects using this protocol. I cannot emphasize enough the effectiveness of chelating for our daughter. It literally saved her life. Hope this helps! --------- [ ] Re: Mercury Chelation Please do not think I was suggesting diet chelates anything. What I think my friend was getting at was that some of the folks she knew did well with diet only because it allowed their body to release what was stuck in the GI tract and allowed the gut/neuro system for lack of a better phrase, to again function properly. I am troubled that this dr. wants to chelate without explaining why he thinks there is more to come, etc. What does EDTA chelate? > > > > My 6 year old son starts Mercury Chelation next month. We have been > on the diet GFCF and supplements for four months with good results. > The doctor wants me to come in and try chelation - he is still in the > normal range from his blood test, but he is high. The doctor thinks > if we do further tests he will show high for Mercury. > > > > I am concerned about this as I know nothing about it. Forgive me > and I don't mean to be offensive, but the little I have read does not > show great results after the age of 5. I can't get a grip on exactly > what chelation is - I would love to hear anyone's experiences on this. > > > > and 6 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Janice, Excellent education as usual. He will be back. Charlie is right on today! Last night he said Linus and Charlie Brown outside... I about freaked because last week he could barley say his name, Charlie. 5 words! In stead of saying papa to grandpa he said grandpa today right after ST. Another note, I must say, when I started back in August, I remember reading your posts on Mark in Therapy. Now, I am reading more on biomed and noticing less on therapy and even larger striedes in biomed. Something to be said for your progress! A nice combo. Colleen Re: [ ] Re: Mercury Chelation It depends on which protocol you are following. We follow the DAN protocol which administers DMSA every 8 hours, day and night. There is the Cutler protocol which adminsters DMSA every 4 hours at a very low dose. We are actually chelating for lead and have seen incredible improvements from just one round. The new things we have seen in the last two weeks for my 13 year old include: - increased focused and attention; usually fatigues after about 1/2 hour doing homework; was able to sustain attention to home work for 2 & 3 hour stretches. - started making his own school lunches daily (amazing!). Usually my son is a mama's boy and needs everything 'done' for him. His self help skills were not the best but now he is actively participating in all of the things that he needs to do such as organizing his knapsack and getting everything done without me having to 'badger' and monitor his to-do list. - his speech was immediately more fluid and clear right after the round. Usually it is labored and a little off (we have done a ton of thereapy) but right after the round, it was light, quick, easy and fluid. He was immediately NT. -Showed a preference to hanging out with the older boys (young men) to watch football on Sunday rather then to play video games with kids 1-2 years his junior (as is his usual practice). -Yesterday my son took public transit home from school! YEEEHAAA!!!! This is a wonderful first (especially for me). Now, my son does not go to school within his district but goes to a school further away. The bus ride is about 3/4 of an hour and is filled with University students as his school is close to the University. He had no troubles whatsoever and is taking the bus again today. I have died and gone to heaven. There is NO WAY he could have done this 3 weeks ago.... absolutely no way! We went to the doctor yesterday and he was very pleased. We all discreetly did 'the happy dance'! The bad news is: Yesterday, along with taking the bus..... Marks speech regressed back to what it was prior to the round.... (saaaaad mommy). The doctor explained it this way to me. The DMSA pulls the lead and it clears the system so the child feels good and well. The lead in the tissues then begins to leave the tissues and circulate through the system. This is the reason for the break I suspect, to allow the metal to begin to circulate and then the DMSA (or whatever chelator you are using) can pull it out once more. We had a lot of success but this is rare and unusual particularly for an older child such as this. The cavieat on all this is...... we have done many years of intense therapy on my son before even trying this. Most of my son's issues had been resolved via therapy and some were resolved via diet. The issues that were really remaining included some 'slowness' of speech (just slightly and I cannot really explain it.... he has almost normal speech but not quite), a lot of daily fatigue, attention issues, slowness of demeanor and a general immature level of self-help and being. (Probably a couple of years behind where he should be.) I understand that mercury is a tough metal to chelate and that it really hangs on to the tissues. Patience is required and make sure you get on a decent yeast protocol because DMSA kicks up yeast like crazy. So, we do round 2 this weekend. I am crossing my fingers that my NT boy will come back to me to stay for a while! Wish us luck. Janice Mother of Mark, 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Congratulations on healing your daughter. As for smells and investigation...man do I know that one! > > Hi , > > This may be repetitive, so sorry! > > My daughter will be 7 in March. We started chelating at age 4. As I just posted to Stephanee, we chelate from Friday afternoon until Monday morning, that way the school has nothing to do with it. > > The schedule is Friday afternoon, 4pm start. Then 7pm, 11pm, 3am, 7am, 10am, 1pm and 4pm...all over again until 7am Monday morning. We do this every other weekend to keep yeast down and for our own sanity...it is tiring. > > See my response to Stephanee for how to do this with juice. > > You have to chelate through the night. Think of the chelator like an IV. Rather than slamming the body with big doses every 12 hours or so, you keep a very low but constant dose continually flowing. You have to do it in the night to keep that going. > > The irritability is minimal. It's basic crabbiness, stubborness, and tiredness. Part of it is from the chelation (it can make them feel foggy, although some people say they feel better while chelating and worse afterwards), and part of it is being woken up in the middle of the night. If it ever escalates beyond that, it's likely there is a yeast problem and/or your dose is too high. Start low, low, low. > > At this point, after discussing this with other moms chelating this way, we pretty much agree that the weekend of chelating went fine and on Monday, our kids were tired, but fine. Tuesday they became crabby and cranky. Wednesday they were the worst, tired, irritable, mad, easily stressed. Thursday, they were angels and new skills, words, ability would show up ever so slightly. Over the next week, the improvements continued. > > The only negative thing that ever happened to us happened when I gave her 50 mg of DMSA instead of 12.5. I had originally purchased pills in 100 mg amounts and was trying to break them into 12.5 (not fun). A few months later, the 25mg became available, so I put the 100 mg away. One afternoon, I grabbed a 100 instead of a 25 and divided it in half. I gave it to my daughter. > > Within an hour, she developed a low grade fever, sweated quite a bit, and threw up. Using small doses of 12.5mg, that has never happened. (It shows us though just how powerful the right dose actually is.) > > It is not uncommon, however, for her to develop a slight fever and get sweaty the first night of chelating. Sometimes her sweat even smells metalic, and the first 3 rounds I walked around the house looking for a tin can, not realizing it was her! True story! > > The low grade fever and lethargy disappear by Saturday, and then the rest is fine. We have actually not had the sweating or the lethargy or other crabbiness for a long time. As she has gotten better, that has subsided substantially. None of the subtle negative side effects are even close to the amazing positive effects using this protocol. > > I cannot emphasize enough the effectiveness of chelating for our daughter. It literally saved her life. > > Hope this helps! > > > Quote Link to comment Share on other sites More sharing options...
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