Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Colleen, I think that we are getting close to being done with therapy. We are working on some hand stuff but the improvements we are noticing with biomed..... therapy cannot fix, at least it hasn't so far. The improvements we saw last week with biomed had to do with cognitive awareness, focus, attention, whole body energy, alertness, attention, etc. Except for the speech clarity and quickness, the improvements have not been a 'skill' improvement but a more how 'up/fast/atttentive/'withit/ you are..... is this comprehendable in the least? Janice [sPAM]RE: [ ] Re: Mercury Chelation Janice, Excellent education as usual. He will be back. Charlie is right on today! Last night he said Linus and Charlie Brown outside... I about freaked because last week he could barley say his name, Charlie. 5 words! In stead of saying papa to grandpa he said grandpa today right after ST. Another note, I must say, when I started back in August, I remember reading your posts on Mark in Therapy. Now, I am reading more on biomed and noticing less on therapy and even larger striedes in biomed. Something to be said for your progress! A nice combo. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Janice, This makes great sense. Amazing work you do! Charlie has had an amazing marvelous day! i am now RE: [ ] Re: Mercury Chelation Colleen, I think that we are getting close to being done with therapy. We are working on some hand stuff but the improvements we are noticing with biomed..... therapy cannot fix, at least it hasn't so far. The improvements we saw last week with biomed had to do with cognitive awareness, focus, attention, whole body energy, alertness, attention, etc. Except for the speech clarity and quickness, the improvements have not been a 'skill' improvement but a more how 'up/fast/atttentive/'withit/ you are..... is this comprehendable in the least? Janice [sPAM]RE: [ ] Re: Mercury Chelation Janice, Excellent education as usual. He will be back. Charlie is right on today! Last night he said Linus and Charlie Brown outside... I about freaked because last week he could barley say his name, Charlie. 5 words! In stead of saying papa to grandpa he said grandpa today right after ST. Another note, I must say, when I started back in August, I remember reading your posts on Mark in Therapy. Now, I am reading more on biomed and noticing less on therapy and even larger striedes in biomed. Something to be said for your progress! A nice combo. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Does that mean you are done with NACD - or is that a lifetime one with you? I know is just 6, but the idea that NACD might not be there through all his schooling - whether he normalizes or not scares me. Thanks for your reply to Mercury Chelation - this is all helping so much. I am so insipired by your chelation story Janice, that is amazing for a 13 year old from what I have read. Good luck with the rest of the rounds. [sPAM]RE: [ ] Re: Mercury Chelation Janice, Excellent education as usual. He will be back. Charlie is right on today! Last night he said Linus and Charlie Brown outside... I about freaked because last week he could barley say his name, Charlie. 5 words! In stead of saying papa to grandpa he said grandpa today right after ST. Another note, I must say, when I started back in August, I remember reading your posts on Mark in Therapy. Now, I am reading more on biomed and noticing less on therapy and even larger striedes in biomed. Something to be said for your progress! A nice combo. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 I don't consider NACD a life-time thing. I think you can stop and still do 'revisit evals' once a year or so if you wish. I can see us scaling back and slowly declining all therapy soon. The hands are not quite done but when they are....... I would like to reclaim my life without dyspraxia whatever that is! (do I even know now?) It will be time then for me to get therapy..... psychotherapy! We will focus completely on academics (maybe a math tutor to really get those skills to a superior level) and no more therapy! It's been a long time coming. I am crossing my fingers that the NT boy comes back to us after this weekend. I have grown fond of watching the maturity unfold. It's quite fun. Janice [sPAM]Re: [ ] Re: Mercury Chelation Does that mean you are done with NACD - or is that a lifetime one with you? I know is just 6, but the idea that NACD might not be there through all his schooling - whether he normalizes or not scares me. Thanks for your reply to Mercury Chelation - this is all helping so much. I am so insipired by your chelation story Janice, that is amazing for a 13 year old from what I have read. Good luck with the rest of the rounds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 , We are thinking of doing the Cutler protocol - lead is definitely an issue here - but wondering where to get 25mg DMSA mailorder (we are in the UK) - also would we need a script?. Your post was great in giving me insight into wht to expect each day. Any tips on how to do night dosing - my son at 12 still can't swallow pills. Any views on which DMSA tastes the least awful. Thanks catherine (mom to Nic age 12 - 102 lbs) --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Hi , The only place I know of to get DMSA mail order is from www.vrp.com (Vitamin Research Products). They sell it in small 25 mg, 50mg or 100mg capsules. For your son, I would dose no more than 25-50 mg for your son. If he can't swallow pills, open the contents of the capsule into about 1/2 shot glass full of juice (2-3 tsp is fine). The best juice to mask the taste is pineapple or really citrus-like fruit juices. Use a toothpick to mix it up. You do not need a script for DMSA or ALA. I would suggest that on the nights you are chelating, you sleep in the same room as your son. My husband or I would take her bed and then she would crash in our room on the bigger bed. That way, whoever had to get up didn't wake up the other, and we didn't have to even get out of bed. Keep the juice on your nighstand and your little cup. Keep the pills right there too. Set the alarm for when you have to get up, open the pills into the juice, gently rouse your son awake, have him swallow the juice and go back to bed. You don't even need more than a night light and you can get back to sleep pretty quickly this way. I used to keep everything downstairs, wake up, go down there, mix it up, walk back upstairs, go in her room, give it to her, go back downstairs to put it away and then go back to bed. By then, I was awake and couldn't get back to bed. Trust me, the first option is so much easier! Also, if you use this schedule : Friday 4pm, 7pm, 11pm, 3am, 7am, 10am, 1pm, 4pm and over until Monday 7 am, you only have to get up once during the night. Good luck! -------------- Original message -------------- From: Armstrong <catherine_castiglione@...> , We are thinking of doing the Cutler protocol - lead is definitely an issue here - but wondering where to get 25mg DMSA mailorder (we are in the UK) - also would we need a script?. Your post was great in giving me insight into wht to expect each day. Any tips on how to do night dosing - my son at 12 still can't swallow pills. Any views on which DMSA tastes the least awful. Thanks catherine (mom to Nic age 12 - 102 lbs) --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Tyler is not progressing at all right now, and I'm at my wits end waiting for his first evaluation and program from NACD. It would be less stressful if I knew for sure this story has a happy ending. You give me hope, Janice! in NJ > > I don't consider NACD a life-time thing. I think you can stop and still do 'revisit evals' once a year or so if you wish. I can see us scaling back and slowly declining all therapy soon. The hands are not quite done but when they are....... I would like to reclaim my life without dyspraxia whatever that is! (do I even know now?) It will be time then for me to get therapy..... psychotherapy! > > We will focus completely on academics (maybe a math tutor to really get those skills to a superior level) and no more therapy! It's been a long time coming. > > I am crossing my fingers that the NT boy comes back to us after this weekend. I have grown fond of watching the maturity unfold. It's quite fun. > > Janice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 You hang tough . I know kids who screeched as he did whose parents did not do half of what you are doing and are well. I think when you catch it really early they may not need as much so he may need time off biomed to level out and time on therapy to receive messages his brain missed. > > Tyler is not progressing at all right now, and I'm at my wits end > waiting for his first evaluation and program from NACD. It would be > less stressful if I knew for sure this story has a happy ending. You > give me hope, Janice! > > in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 , You know..... you just cannot predict happy endings. My neighbour has the most lovely of daughters. I've watched her grow and thrive and go to University to become a nurse. She is sweet, angelic, elegant and kind..... a true " winner " . She is the daughter that we all hope our girls grow into.... just a really nice girl. This summer I had not seen her around and had assumed that she had gotten her own place..... Wrong. She was in the hospital for anorexia. So......... this beautiful, wonderful kid has been in the hospital for over 6-7 months now. She should have had everything and now she has this aweful disease. You simply cannot predict what is lying in wait...... just around the corner for ALL of our children. We just got our " heads up " at a younger age! Because we got this heads up..... our children are really protected by us and perhaps that is a good thing. Perhaps had we not had this experience, some other monster would have found our kids. I know that I dyspraxia is my foe but it has truly made me aware of what is important in life and I have had to really bond with my children. We have had to come together as a family in a way that no one else can comprehend or comes even close to capturing. In a sense, this experience has made us all better people. My daughter is nicer and cares about the important things (she is not shallow or silly like other girls her age) and my son works his tail off defeating dyspraxia! They are not spoiled, not petulant and not bratty (like many kids their age). I think this is because they know what is important. Dyspraxia has given us all the wake-up call that we needed to be better people in our life! I could have used an easier method to get this lesson..... but I must see what this experience has done for us..... it has not been all bad. Janice Mother of Mark, 13 [sPAM][ ] Re: Mercury Chelation You hang tough . I know kids who screeched as he did whose parents did not do half of what you are doing and are well. I think when you catch it really early they may not need as much so he may need time off biomed to level out and time on therapy to receive messages his brain missed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Dont forget how many people you have helped along the way! Re:[ ] Re: Mercury Chelation , You know..... you just cannot predict happy endings. My neighbour has the most lovely of daughters. I've watched her grow and thrive and go to University to become a nurse. She is sweet, angelic, elegant and kind..... a true " winner " . She is the daughter that we all hope our girls grow into.... just a really nice girl. This summer I had not seen her around and had assumed that she had gotten her own place..... Wrong. She was in the hospital for anorexia. So......... this beautiful, wonderful kid has been in the hospital for over 6-7 months now. She should have had everything and now she has this aweful disease. You simply cannot predict what is lying in wait...... just around the corner for ALL of our children. We just got our " heads up " at a younger age! Because we got this heads up..... our children are really protected by us and perhaps that is a good thing. Perhaps had we not had this experience, some other monster would have found our kids. I know that I dyspraxia is my foe but it has truly made me aware of what is important in life and I have had to really bond with my children. We have had to come together as a family in a way that no one else can comprehend or comes even close to capturing. In a sense, this experience has made us all better people. My daughter is nicer and cares about the important things (she is not shallow or silly like other girls her age) and my son works his tail off defeating dyspraxia! They are not spoiled, not petulant and not bratty (like many kids their age). I think this is because they know what is important. Dyspraxia has given us all the wake-up call that we needed to be better people in our life! I could have used an easier method to get this lesson..... but I must see what this experience has done for us..... it has not been all bad. Janice Mother of Mark, 13 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Thanks Janice. I needed that. Hug your kids etra for us all:) > > Dont forget how many people you have helped along the way! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Hi Patty, I'm curious if you figured out whether you were a slow or fast liver phase one and two according to Cutler's protocol. As well, did you check sulfur and cysteine levels? I can't decide...I hate to do more testing and think all I need to do is keep detoxing. Yet, a lot of people on his forum are doing the testing since it follows the protocol. Part of me thinks it doesn't matter and that I can still eat what I want as long as it's healthy. Sometimes though it concerns me the way they talk about how eating a ton of broccoli, cauliflower, eggs and berries can actually make your symptoms worse if you have sulfation issues. Since that's pretty much what I eat, I wonder if that's why I feel so lousy. Did you do the testing? Thanks. Love, PH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Hi PH, I did figure out which one I was, but it was so long ago, I don't remember! I never did check my sulfur and cysteine levels. I think I had everything pretty well figured out based on my symptoms, and though I wanted to get testing,I just decided to keep detoxing and letting my body heal on its own. I guess it worked pretty well, as I have healed. I have no regrets in my choice to follow this path. Why don't you do some self testing? I would suggest cutting out some of the foods that would be aggravating to you if you have sulfation issues, and just see how you feel. You may be surprised to find out something about yourself. Just remember how you thought all those green juices were good for you because they are supposed to be, but in truth, they were causing your brain fog! The same could apply to these other foods if there is indeed a sulfation issue. The only way to know for sure is testing, or self-experimentation with your diet. How do you do with raw garlic? Let me know what you find out. Hugs, Patty > > Hi Patty, > > I'm curious if you figured out whether you were a slow or fast liver > phase one and two according to Cutler's protocol. As well, did you > check sulfur and cysteine levels? I can't decide...I hate to do more > testing and think all I need to do is keep detoxing. > > Yet, a lot of people on his forum are doing the testing since it > follows the protocol. Part of me thinks it doesn't matter and that I > can still eat what I want as long as it's healthy. Sometimes though it > concerns me the way they talk about how eating a ton of broccoli, > cauliflower, eggs and berries can actually make your symptoms worse if > you have sulfation issues. Since that's pretty much what I eat, I > wonder if that's why I feel so lousy. Did you do the testing? > Thanks. Love, PH > Quote Link to comment Share on other sites More sharing options...
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