Re: Re: Love and Support to Jill:

[Guest guest]

Dearest Jill:

Honey, when did you join our group? What kind of breast implants did you have, and why so many surgeries? It sounds like you have been through so much pain and sufering. My heart is breaking for you, because I too must live in pain. Could you tell us more about your condition, and where do you live?

We all know our own bodies, and if you must take pain medication to cope, then it is okay. It would be wonderful if your doctors could find the cause of your pain. We are all here to listen and to help you. No one would intentionally hurt you in this wonderful group.

Sending love and Support....Lea

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Re: Re: infared saunas

Jill,I have found the absolute worst thing one can do when one has fibromyalgia is to take pain pills, as this will gradually increase the pain of the fibromyalgia.I hurt so badly I was curled up in a felal position and was crying. I gradually worked my way to where I could walk to the end of my block (that took a while, as I nearly died from my ruptured implant) and then kept working until I could do more. I would not even take tylenol. Today, I rarely have any problems with fibromyalgia, although I still do have it. If I catch a cold, I have symptoms before I know I am catching a cold. But pain pills make fibromyalgia worse in the long run. The women who have toughed it out and done the work are the ones who have the least symptoms and they do not take medication for it.LyndaAt 05:38 PM 3/16/2008, you wrote:>Jill,>>I have FM also . . . However, as long as I follow my "program" . . . >sufficient deep sleep, moderate exercise, regular massage, healthy >diet, plus stress and anger management, I wouldn't know I had it.>>It takes a while to work out your own "program" . . . but it's well >worth the effort.>>You can get past it! . . .>>FM is a syndrome, not a disease. A Syndrome is a collection of >symptoms that have enough in common to be given a name. FM appears >to be triggered by a number of things . . . Accidents, illness, >death, divorce, stress, etc. . . What the "things" have in common is >something that deprives one of sleep for an extended period.>>I hope you saw the 60 Minutes show. . . They said that sleep >deprived brains mimicked those of psychotic people. . . They also >said that one thinks they are still functioning, even though they >are sleep deprived. . . Speaking for myself, I agree 100%!>>Hugs,>>Rogene>>

[Guest guest]

Jill,

I have a non-toxic food grade enema bag from s Cleanse Corner for 11.00 or so.

I love it ..... and its easy to use.........1-877-673-0224. No clean up mess and I just hang it

on my shower about 36 inches from the floor is where you want to hang it.

I have noticed big improvements on doing coffee enemas but when you do them I

supply my body with NAC. Its a supplement for gluthione. This gives me some energy

for the day.

I dont know what i would prefer since i just got my ionic foot bath this week and it made

me feel wonderful when I was under the weather from chelation.

FIR saunas are great for FIBRO pain but then the foot baths get more heavy metals out

though oxygen and ions. When using these things you know you must supplement

with whole food vitamins to replace the minerals that you lose doing these things, OK !!

I am 39 years old and recovering slowly but I know I am going to get there with all these

things that I am doing because I am seeing improvements slowly and I have came

a long way since 4 years. Along with the thyroid meds too.

I have started chelation on getting the heavy metals out now along with my good friend PH

who is coaching me and we are seeing results........not saying these things are easy

by far because it is the toughest things I had to endure.

Jill ......I hope you can hear me and I know its tough but right now you have to have the

will to fight and get rid of those pain meds and start from there. Maybe once you get

your FIR sauna or start doing coffee enemas you may be able too.

We are here for you when family lets you down ....this is not only tough on you but

your family members also. This is a sad and hard thing for GOD to see!!!

I hope and pray you listen to us girls here especially Rogene and Patty they know

what they are talking about. I hope you seen a natural doctor for Thyroid because other

doctors dont diagnosis this awful disease of the hormones and thyroid and I went almost

4 years doctors telling me that my thyroid was OK and truly it WAS NOT !!!!!!!!

We love you and hope you feel better

In a message dated 3/19/2008 7:44:51 P.M. Eastern Daylight Time, jilllarion@... writes:

Hi Ladies,

Thanks for all the inspiration! I'm so worn out and am in so much pain I just can't cope anymore. Everything in my life has fallen apart do to this illness and I'm at a loss as what to do anymore. I do appreciate all the emails from everyone.

Lea,

I joined the group about a month ago. I had my saline implants out about then with the capsules. All my surgeries were mainly on the back and knees and then 3 for the implants and a couple for Endometriosis. Right now I live in Austin, Texas but I am moving back to Phoenix soon for multiple reasons. I do know that no one was trying to hurt me, I just know that I'm one of the unlucky ones who has to take pain meds. I have tried to get off them. I really hate them. I can't believe people take these pills for fun. They make me nauseated, exhausted, constipated, and really hot. My husband won't even sleep in the same room with me anymore because I have to keep it so cold. And I used to have to sleep with a heating blanket during the summers in Phoenix. I've had my hormones checked in and it's not menopause. I am well aware that pain meds are toxic, but I can not survive without them. I am seeing a Fibro specialist and I was hoping she could help me enough so I could get off them, but I'm just getting worse. I've been working really hard at having a positive attitude and picturing myself getting well. But with everything else that's going on in my life and my pain increasing so much I just can't keep it together.

If you all had to choose between the ionic footbath of the fir sauna for detox AND horrible chronic pain, which one do you think would be better? Where do I even get an enema bag? I can't believe I am even asking that question....

Rogene,

Do people really get sick from knee replacements? I never even thought of that. I'm only 38 and I do not see how I could go another 30 or so years with these knees. They are in such bad shape. We just bought our first 2 story house last year and I literally only go upstairs 2x's a week because of my knees. My new knee Dr. suggested that I sue my previous Dr. because he destroyed my knees and there is nothing left to do but replace. I'm sure my knee pain and limping around all the time is what caused my SEVERE Plantar Faciitis and Tarsal Tunnel Syndrome. I've been told I need all this operated on which would mean 4 surgeries. I'm going to make that a last, last resort. Also, when my knees are really acting up I get horrible sciatica. I'm just broken down and feel like I'm 100 years old.

Jill

Re: Re: infared saunas

Jill,I have found the absolute worst thing one can do when one has fibromyalgia is to take pain pills, as this will gradually increase the pain of the fibromyalgia.I hurt so badly I was curled up in a felal position and was crying. I gradually worked my way to where I could walk to the end of my block (that took a while, as I nearly died from my ruptured implant) and then kept working until I could do more. I would not even take tylenol. Today, I rarely have any problems with fibromyalgia, although I still do have it. If I catch a cold, I have symptoms before I know I am catching a cold. But pain pills make fibromyalgia worse in the long run. The women who have toughed it out and done the work are the ones who have the least symptoms and they do not take medication for it.LyndaAt 05:38 PM 3/16/2008, you wrote:>Jill,>>I have FM also . . . However, as long as I follow my "program" . . . >sufficient deep sleep, moderate exercise, regular massage, healthy >diet, plus stress and anger management, I wouldn't know I had it.>>It takes a while to work out your own "program" . . . but it's well >worth the effort.>>You can get past it! . . .>>FM is a syndrome, not a disease. A Syndrome is a collection of >symptoms that have enough in common to be given a name. FM appears >to be triggered by a number of things . . . Accidents, illness, >death, divorce, stress, etc. . . What the "things" have in common is >something that deprives one of sleep for an extended period.>>I hope you saw the 60 Minutes show. . . They said that sleep >deprived brains mimicked those of psychotic people. . . They also >said that one thinks they are still functioning, even though they >are sleep deprived. . . Speaking for myself, I agree 100%!>>Hugs,>>Rogene>>

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[Guest guest]

Jill . .. There are certain genetic types that can predispose one to be prone to autoimmune issues . . . These types likely make one more likely to react to foreign materials. I'm copying your message to . She has two HLA types that can trigger problems. She knows far more about this than I do. Perhaps you could be tested to see if you have these HLA types . . . if so, maybe action could be taken to circumvent problems.I'm thinking that, if the problem is known in advance, they could give you something that would suppress the immune system - like they do with organ transplants. I hear they're finding transplant patients may be able to safely come off the drugs after a while.

Unfortunately a healthy body tries to get rid of invaders . . . That's a normal, healthy response. Certain materials are worse offenders than others . . . Soft materials, like silicone, appear to be worse than hard ones (like titanium) because the body can't tear hard materials apart bit by bit. Personally, if it was me, I'd do whatever it takes to make it possible to get knee replacements. You may have to find a doctor who's willing to go the extra mile for you . . . But it would be worth it! Also, you might check with doctors who do organ transplants to see what they say. may be able to help you with info to approach your doctors with.Hugs and prayers,Rogene Re: Re: infared saunas

Jill,I have found the absolute worst thing one can do when one has fibromyalgia is to take pain pills, as this will gradually increase the pain of the fibromyalgia.I hurt so badly I was curled up in a felal position and was crying. I gradually worked my way to where I could walk to the end of my block (that took a while, as I nearly died from my ruptured implant) and then kept working until I could do more. I would not even take tylenol. Today, I rarely have any problems with fibromyalgia, although I still do have it. If I catch a cold, I have symptoms before I know I am catching a cold. But pain pills make fibromyalgia worse in the long run. The women who have toughed it out and done the work are the ones who have the least symptoms and they do not take medication for it.LyndaAt 05:38 PM 3/16/2008, you wrote:>Jill,>>I have FM also . . . However, as long as I follow my "program" . . . >sufficient deep sleep, moderate exercise, regular massage, healthy >diet, plus stress and anger management, I wouldn't know I had it.>>It takes a while to work out your own "program" . . . but it's well >worth the effort.>>You can get past it! . . .>>FM is a syndrome, not a disease. A Syndrome is a collection of >symptoms that have enough in common to be given a name. FM appears >to be triggered by a number of things . . . Accidents, illness, >death, divorce, stress, etc. . . What the "things" have in common is >something that deprives one of sleep for an extended period.>>I hope you saw the 60 Minutes show. . . They said that sleep >deprived brains mimicked those of psychotic people. . . They also >said that one thinks they are still functioning, even though they >are sleep deprived. . . Speaking for myself, I agree 100%!>>Hugs,>>Rogene>>