Sue, very suspicious

[Guest guest]

that the two times I was given oxygen I felt better, had little

pain, hmm. There is something too the lack of oxygen, and it makes

sense that the muscles would react to lack of oxygen. All the drs

are wasting my time and money. I had a 2,000 MRI today! I know

what you mean, I have had periods where I am normal, but after a

big attack it takes me months to recover. Do you have the thing

where you can't walk normally, like really slow. I can not go out

much when this happens because people stare. I had one lady ask me

what was wrong with me. Last week I went to the mall and noticed I

was walking normal like everyone else, so I must be in the " good "

place now. I have lately been looking at metabolic problems, which

are caused by toxins in some. Last year I had several attacks where

my face was totally bronzed, people kept saying how healthy I looked

I was glowing. I felt like death. I never did figure that out. I

seem to be going into a better period, but it seems these last a

month or so and then I have another attack. This last episode has

gone on since August, so I am more than ready for it to end. The

neck pain gets unbearable. I just don't get it, and hoping this

environmental doctor will help. The neurologist was so typical of

my experience with doctors, uh huh, well the only thing this could

be is MS. You are kidding, you mean out of the 1.000s of diseases

I could only have this one. The doctors seems to 1/2 listen to me,

the rheumatologist did not even ask me a real question, she read

them off a computer screen and said it is fibromyalgia, but

the " attacks " are not fibromyalgia, she said I was having catatonic

depression. It almost becomes funny how stupid some of these

experiences are. I will let you know what this environmental dr

says, I go next week. I don't want to discourage anyone, but stuff

like the candida just does not come close to the kind of attacks I

am talking about. This is some kind of major problem my body is

going through, and some of it is out of my control. My friends dad

has myalgic encephalopathy, with the drs here don't believe in, and

he has said similar things. They really can't get a grip on how it

comes on and you can get into depression thinking you caused the

episodes. It does help to hear your experience, I feel like a

freak. This environmental center has people coming from all over

the world, and it right by my house, maybe? Write anytime, I try to

read but my kids have just been all consuming. Nan