Guest guest Posted January 8, 2000 Report Share Posted January 8, 2000 you have a really great attitude considering all your hardships. i dont think i have it so bad now and your optimism is very admirable. no, tristan isnt in school or daycare..ive been terrified to leave him with anyone but a few good friends and family. im so protective of him and even left a great paying job to stay home to take care of him full time. i would really like to go back to work, it would be good for him to have other children his age to play with but i am afraid. i also have a 7 year old daughter thats in the 1st grade and last year she came down with chicken pox and i went hysterical. i was so afraid tristan would get them but luckily my ex husband (haleys dad) kept her for the week. i just know how awful it is when tristan gets the slightest bit of a cold so i dont want to have him in preschool or daycare! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Excellent responses, Connie! Welcome, Cherie! Just adding my two cents here to some of Cherie's comments. Having 3 autoimmune diseases (one, myasthenia gravis, affecting 1 in 50,000), I have gone through the dr. mill more times than I can say. Don't get frustrated - get educated and determined! For the RA, it took me 9 drs. and 9 months before getting diagnosed. For the mysasthenia, it took me 12 drs. and 3 years. As for depression, be assured it is not uncommon at all with RA, and certainly not for anyone who is suffering physical pain. Re: taking " poisons " , I took prednisone and weaned onto methotrexate and was still on mxt. when I started AP; I weaned off the mxt. and onto Minocin with excellent results. I'm sure you will find lots of info and support here! Babs RA 8/98, DX 4/99, AP 11/99 200 mg. Minocin 150 mcg. Synthroid 8 mg. Hytrin 20 mg. Pravachol 20 mg. Celexa Mestinon Vits. & Misc. Suplmts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Your welcome: We are all in this together and everyone posts updates and that helps alot. Eileen >From: riyoelam@... >Reply- > >Subject: Re: Eileen >Date: Fri, 12 Nov 2004 23:59:23 EST > > >Thank you Eileen, I will order and try! > Cherie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Thank you, , and the others who responded. I did join Listen Up on and will check out their website as well. I just printed some info from AGBell.org. Looks like a great resource. I will check out the other recommended sites as well. My daughter is already qualified for special needs preschool through our school district due to her lack of speech. Only in the last several months was it discovered that she wasn't speaking due to lack of hearing! And I've been told that our school district has a great preschool program that includes the FM systems and a great speech pathologist. I was told just today that Grace will have a child in her class that uses HA's and another child that has CI's so they should know how to deal with her just fine. I don't know how much posting I will be doing on this site but I will be a lurker trying to learn as much as I can. Thank you for the information. Cherie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2005 Report Share Posted August 12, 2005 Hi Cherie, That is wonderful that you have a preschool program for deaf/hh kids! It might be really good. However, in my experience, it is really worthwhile to shop around a little before committing to a program. Even though the staff at your local preschool may be great, you may find yourself in a situation where the other children are not up to speed because their parents don't work with them (are possibly still in denial about their child's hearing loss -- I've known cases where denial has lasted years) or just don't know how to/don't want to work with their kids at home. I can tell you some sad stories about my son's classmates in a school with a stellar staff but overworked, non-English speaking families (mostly children of migrant farmworkers, many of whom, I am convinced, were deaf or had other issues -- many deformities -- with higher incidence because of their parents' direct contact with farm chemicals -- they drove the pesticide trucks, etc. I digress, but wash all of your lettuce and strawberries please, or buy organic and wash those too, because the farms are right next door to the ones that use pesticides!!) To find out if there are private oral schools in your area, visit the Oberkotter Foundation's web site, www.oraldeafed.org Even if a school is an hour away, go visit! Shop, shop shop around! Are you hooked into any local parents' groups? Sometimes your hospital or audiologist's office can put you in touch with other parents. Find out where their kids go to school. Your local program may be good, but there may be one even better 2 towns over. Hey, and say HI to Barbara Mellert, Jill Wood and all the others at Listen Up for me! Good luck, Lydia Now in the Boston area (formerly in Santa Cruz, California) Mom of , 8, bilateral implant user > Thank you, , and the others who responded. I did join Listen Up > on and will check out their website as well. I just printed some > info from AGBell.org. Looks like a great resource. I will check out > the other recommended sites as well. > > My daughter is already qualified for special needs preschool through > our school district due to her lack of speech. Only in the last > several months was it discovered that she wasn't speaking due to lack > of hearing! And I've been told that our school district has a great > preschool program that includes the FM systems and a great speech > pathologist. I was told just today that Grace will have a child in her > class that uses HA's and another child that has CI's so they should > know how to deal with her just fine. > > I don't know how much posting I will be doing on this site but I will > be a lurker trying to learn as much as I can. > > Thank you for the information. > > Cherie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2005 Report Share Posted August 12, 2005 Cherie, I just have to say that I want to echo what Lydia said about checking things out. I know that it sounds just wonderful when you find out that the district has a program. Everything is just so easy that way. I just speak from experience. When my daughter received her implants the district tried to create a program(I know that this is a little different than a current working program but I know families who found that they didn't work for their child) for my daughter. We tried it for 3 months and it did not work in our opinion. We know drive 1 1/2 hours four days a week to an oral deaf school. The progress that I have seen since she has been removed from the district's programming has been awesome! So my advice to everyone is check things out. Find out whatelse is out there. And don't think that just because your child is HOH or deaf that they will just fit in this mold that the program has running. If it works for her and you like it great, if not just remember to look around and always re-evaluate. Each child is different and they will respond differently to different programming. This is what we have constantly fought the district on. They don't believe that she has the right placement they say that they can offer a different program for her and still see the same results. I disagree. Annika is one smart cookie and she has lead the way in most of our decisions. We have found what works for her and that is where she will stay as long as we can afford to do it. Just keep researching and looking around that is the most you can do as her parent, which it sounds like you already do. Mom of 4 Marcus 15 13 Jon 11 Annika 3.5 bilaterally implanted 3/1/04 hookup 3/25/04 spastic diaplegic CP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 Hi Cherie- No, I've never gotten my path results from Dr. Huang, but I've never asked for them either. I guess I didn't really see a reason to, so I never worried about it. That's really strange about them not knowing which lab, I wonder if you can call the hospital and see if they know. That's what I would do if I were you. You were a patient at the hospital so they should have records on you. Good luck! Love, Krista > > Hi Krista, > > Did you ever get the path results from your explant? I never did and > Dr. Huang's staff said that they do not get those results nor did they > know who the lab was. > > Thanks > Cherie > Quote Link to comment Share on other sites More sharing options...
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