Re: foot and leg scan

[Guest guest]

Lynda,

I know Gods word say out of every bad ...good shall follow !!!!

I am praying for you by Jesus stripes you are pain free and healed !!

Get through this horrible deal and God has something good for you.

I know its easy to say and no one walks your shoes ...I feel you

are a strong woman and God would never allow you to go through

things that you cant handle. Too me .....YOU must be very strong.

Praying for good things for you Lynda and comfort .

Love

In a message dated 3/28/2008 11:36:28 P.M. Eastern Daylight Time, coss@... writes:

Wow, the pictures of the blood flow in my feet is something else. The right foot looks so much better than the left. Even my untrained eye could see that there is a serious problem in my left foot. Also, it appears it was broken in two places. I never heard that from the doctor. The technician said I was not doing my foot any good by walking on it (sometimes I limp on it).It certainly is visual proof that I have RSD. Once it is in the doctor's hands, I can schedule an appt. for the nerve block. I have to do it near the end of the month when my blood counts are close to normal. I am dreading this, but would love to be pain free from this. It often has to be done more than once, sometimes a number of times. If it works temporarily but the pain comes back, they can remove a small piece of the nerve. Not a fun procedure, and not without risks.But, if the nerve blocks work for a while and I finish chemo, I can also go back to hyperbarics and try to get rid of it that way. Insurance does not pay for that, but it is not painful, either.I got a copy of the scan, will pick up the report Monday. Hope it gets to the doctor on Monday also.Chemo next Thurs. They will have to reduce the dosage, as I have lost some close up and intermediate vision quickly since the second treatment, in less than a 2 week period of time. Or they will have to change to a different chemotherapy. I will know more next week. I probably could survive the thrush and the canker sores, but the loss of vision is a bit much. They really do not want that to happen.More later, hopefully good news.Lynda Create a Home Theater Like the Pros. Watch the video on AOL Home.

[Guest guest]

Thanks, Dede. Me too. I just know that I must end this pain in my

foot if I am to have a chance to fight the cancer.

I sometimes cannot believe that so much can happen to one body in

such a short period of time.

Keep the prayers coming. I will need them to get through this.

Lynda

At 06:24 AM 3/29/2008, you wrote:

>Lynda ~

>Woman, you are going through so much. I cant

>even imagine it all ! You are in my thoughts and

>prayers every day.

>I hope this treatment works well for your foot

>and you only have to have it done once ! ! Sending

>you lots of love and prayers ~ Dede

>

>

>

>

>----------

>Create a Home Theater Like the Pros.

><http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom0003\

0000000001>Watch

>the video on AOL Home.

>

[Guest guest]

Lynda, I have been reading all of your posts. Bless your precious heart, when will all this pain go away for you? We are praying overtime, and we hope that you get some comfort soon. Please stay positive.

We love you so much....Lea and

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

foot and leg scan

Wow, the pictures of the blood flow in my feet is something else. The right foot looks so much better than the left. Even my untrained eye could see that there is a serious problem in my left foot. Also, it appears it was broken in two places. I never heard that from the doctor. The technician said I was not doing my foot any good by walking on it (sometimes I limp on it).It certainly is visual proof that I have RSD. Once it is in the doctor's hands, I can schedule an appt. for the nerve block. I have to do it near the end of the month when my blood counts are close to normal. I am dreading this, but would love to be pain free from this. It often has to be done more than once, sometimes a number of times. If it works temporarily but the pain comes back, they can remove a small piece of the nerve. Not a fun procedure, and not without risks.But, if the nerve blocks work for a while and I finish chemo, I can also go back to hyperbarics and try to get rid of it that way. Insurance does not pay for that, but it is not painful, either.I got a copy of the scan, will pick up the report Monday. Hope it gets to the doctor on Monday also.Chemo next Thurs. They will have to reduce the dosage, as I have lost some close up and intermediate vision quickly since the second treatment, in less than a 2 week period of time. Or they will have to change to a different chemotherapy. I will know more next week. I probably could survive the thrush and the canker sores, but the loss of vision is a bit much. They really do not want that to happen.More later, hopefully good news.Lynda

[Guest guest]

Lynda,You really have your plate full! . . . Have you tried wrapping your FAR blanket around your leg to help increase blood flow?Would a walking boot help take your weight off the damaged bones?I sent you some info on Sodium Bicarbonate (baking soda) used for treating cancer. . . Would you ask your doctor about the validity of that info? . . . It sounds too good to be true. . . But it appears there have been some studies done overseas that show it beneficial. I started some meds for GERD a couple days ago. . . Had I seen the baking soda idea first, I could have had relief long ago! Since surgery, my tongue and mouth have been burning worse by the day. . . As a result of the

surgery, my molars don't meet completely so I can't chew my food thoroughly. . . . Apparently my stomach was rebelling, becoming even more acidic, and causing reflux. . . Just a couple days of meds, and I'm feeling much better. Also, . . . doctors in Dallas and Las Vegas were on TV talking about using ionic foot baths following chemo to get rid of the toxic build up . . . Apparently with excellent results. Hopefully you'll be getting serious relief very soon! . . . I know you're more than ready to feel better.Love,Rogene

[Guest guest]

Rogene

My oncologist did not think much of the baking soda cure. Said

people have cures and remissions from a number of things, some

unexplainable, but he has never seen anything consistently work in

alternative medicine. They have an Integrative Center downstairs

with Therapeutic Touch/Reiki, Acupuncture, Massage, Nutritional

Counseling, etc. And they have a Social Worker on staff, so they

support the healing through many means. The Social Worker does a 7

week class that includes spiritual content. I am starting that class

next month.

Try the baking soda idea for the GERD now. It is not too late.

I think the ionic foot baths for the toxins in chemo are a great

idea. I could not do them until after the 14th day with Doxil,

because it is supposed to circulate in your system for that long and

you want to avoid pulling it into your feet because of the hand-foot

syndrome. After two weeks, I could try that. I am so broke right

now from all the trips back and forth and the extra expenses for all

the adjunctive stuff you need to have (supplements, over the counter

meds, co-pays, ice packs, visits to dentist and naturopath, etc.)

that I could not afford an ionic foot bath. Wish I had one.

I have no painful canker cores in my mouth right now. My tongue has

a scar where a big one was. I have a little bit of a sore throat

still. Still taking diflucan and using the swish and swallow

(Nystatin & Lidocaine). May quit that today. I will see how the

throat is later in the day. Want it all gone by Thurs. I actually

felt better yesterday and ate a real lunch, a fairly big salad,

butternut squash soup and half a small roll. A real lunch and no

pain. That was so great.

I am using the Roomba to clean my floors, which have been sorely

neglected all month. I hope I have the energy to dust the house, it

sure needs it.

I have appointments every day next week except the day I drive to the

airport and pick up my sister. Actually, on Friday, the appt. is

Bob's and I may have my sister take him. Depends on how I

feel. Usually is it about 1 1/2 days after chemo when I start

feeling bad. The day of chemo I can usually eat a nice dinner and everything.

Hope you continue to do well with your ear and the problems from

that. Do you need to wear a splint at night to help your teeth fit

together properly?

Love,

Lynda

At 09:34 AM 3/29/2008, you wrote:

>Lynda,

>

>You really have your plate full! . . .

>

>Have you tried wrapping your FAR blanket around your leg to help

>increase blood flow?

>

>Would a walking boot help take your weight off the damaged bones?

>

>I sent you some info on Sodium Bicarbonate (baking soda) used for

>treating cancer. . . Would you ask your doctor about the validity of

>that info? . . . It sounds too good to be true. . . But it appears

>there have been some studies done overseas that show it beneficial.

>

>I started some meds for GERD a couple days ago. . . Had I seen the

>baking soda idea first, I could have had relief long ago! Since

>surgery, my tongue and mouth have been burning worse by the day. . .

>As a result of the surgery, my molars don't meet completely so I

>can't chew my food thoroughly. . . . Apparently my stomach was

>rebelling, becoming even more acidic, and causing reflux. . . Just a

>couple days of meds, and I'm feeling much better.

>

>Also, . . . doctors in Dallas and Las Vegas were on TV talking about

>using ionic foot baths following chemo to get rid of the toxic build

>up . . . Apparently with excellent results.

>

>Hopefully you'll be getting serious relief very soon! . . . I know

>you're more than ready to feel better.

>

>Love,

>

>Rogene

>

>

[Guest guest]

,

I just hope I find the strength to get through all this. I finally

did get a counselor to help me with all this stress.

Thanks for the good thoughts and the prayers. I keep trying to think positive.

Love,

Lynda

At 07:59 AM 3/29/2008, you wrote:

>Lynda,

>I know Gods word say out of every bad ...good shall follow !!!!

>

>I am praying for you by Jesus stripes you are pain free and healed !!

>Get through this horrible deal and God has something good for you.

>I know its easy to say and no one walks your shoes ...I feel you

>are a strong woman and God would never allow you to go through

>things that you cant handle. Too me .....YOU must be very strong.

>Praying for good things for you Lynda and comfort .

>Love

>

>In a message dated 3/28/2008 11:36:28 P.M. Eastern Daylight Time,

>coss@... writes:

>

>Wow, the pictures of the blood flow in my feet is something

>else. The right foot looks so much better than the left. Even my

>untrained eye could see that there is a serious problem in my left

>foot. Also, it appears it was broken in two places. I never heard

>that from the doctor. The technician said I was not doing my foot

>any good by walking on it (sometimes I limp on it).

>

>It certainly is visual proof that I have RSD. Once it is in the

>doctor's hands, I can schedule an appt. for the nerve block. I have

>to do it near the end of the month when my blood counts are close to

>normal. I am dreading this, but would love to be pain free from

>this. It often has to be done more than once, sometimes a number of

>times. If it works temporarily but the pain comes back, they can

>remove a small piece of the nerve. Not a fun procedure, and not

>without risks.

>

>But, if the nerve blocks work for a while and I finish chemo, I can

>also go back to hyperbarics and try to get rid of it that

>way. Insurance does not pay for that, but it is not painful, either.

>

>I got a copy of the scan, will pick up the report Monday. Hope it

>gets to the doctor on Monday also.

>

>Chemo next Thurs. They will have to reduce the dosage, as I have

>lost some close up and intermediate vision quickly since the second

>treatment, in less than a 2 week period of time. Or they will have

>to change to a different chemotherapy. I will know more next

>week. I probably could survive the thrush and the canker sores, but

>the loss of vision is a bit much. They really do not want that to happen.

>

>More later, hopefully good news.

>

>Lynda

>

>

>

>

>

>----------

>Create a Home Theater Like the Pros.

><http://home.aol.com/diy/home-improvement-eric-stromer?video=15 & ncid=aolhom0003\

0000000001>Watch

>the video on AOL Home.

>

[Guest guest]

Oh, Rogene, I am sorry that your mouth is burning and that you too have GERD, mine has burned ever since 1992, after the implants were removed. I have a mouth wash that a doctor from Cross Cancer developed for children with cancer. He is a child specialist, and I wonder if I could get some for you and Lynda. It must be used in eight days. It has an anti-inflammatory and an anti-fungal drug in it. I have only used it once, but it did kill the pain...I have a list of ingredients somewhere. A friend in my group needs it as well, but she lives in the US.

I am not able to write properly because I am still so sick,sorry.

Love you so...Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```

Re: foot and leg scan

Lynda,You really have your plate full! . . . Have you tried wrapping your FAR blanket around your leg to help increase blood flow?Would a walking boot help take your weight off the damaged bones?I sent you some info on Sodium Bicarbonate (baking soda) used for treating cancer. . . Would you ask your doctor about the validity of that info? . . . It sounds too good to be true. . . But it appears there have been some studies done overseas that show it beneficial. I started some meds for GERD a couple days ago. . . Had I seen the baking soda idea first, I could have had relief long ago! Since surgery, my tongue and mouth have been burning worse by the day. . . As a result of the surgery, my molars don't meet completely so I can't chew my food thoroughly. . . . Apparently my stomach was rebelling, becoming even more acidic, and causing reflux. . . Just a couple days of meds, and I'm feeling much better. Also, . . . doctors in Dallas and Las Vegas were on TV talking about using ionic foot baths following chemo to get rid of the toxic build up . . . Apparently with excellent results. Hopefully you'll be getting serious relief very soon! . . . I know you're more than ready to feel better.Love,Rogene

[Guest guest]

Lea,My mouth started burning a little more every day since my ear surgery.However, it appears it's a result of GERD . . . and that, by reducing my PH, it goes away. . . I'm really relieved! . . . I thought I was going to have to live with it.Did you see the post about using Apple Cider Vinegar (Two tablespoons) and 1/2 Teaspoon of baking soda, in 1/2 - 1 glass of water can relieve stomach acidity - as well as other aches and pains? . . . Really good news.I'm going to try the meds for while - then switch to ACV and baking soda to see if I can hold my gains. . . I'm very hopeful!I've copied some of the things I found interesting from the website I posted, I'll send those to you

directly.Love,Rogene

[Guest guest]

Lynda,Your cancer center sounds incredible! . . . I wish everyone would look at medicine from an integrative standpoint! . . . A friend, who is a Reiki master, "turned" my hands on some time ago, and gave me a "tuneup" the last time I saw her. She's been pushing me to use my hands. I'm having a hard time believing it really works. . . but she says she's seen outstanding results repeatedly. I'm trying! . .. She said to expect to see major results in several months. Sometimes I think it's helping . . . but then I wonder if it's just the pain pill kicking in! I don't need a splint right now. . . I'm just reaching the point where I can purposely close my mouth completely. I can't clamp my jaw

yet. I expect my jaw to go back into position once the swelling is gone. It's much better now. Right after surgery, I could only bring my front teeth together. I wish I had expected all that! . . . It came as an unpleasant surprise. I've been pushing it with some of the foods I eat . . . but I guess my stomach isn't happy about that! I need to stick to soft foods right now. I'm going to do the vinegar/baking soda thing . . . but I want to be able to sort out what's working first. I figure I'll give the meds a chance, and if that works, I'll use that as a baseline for what I expect from vinegar and baking soda. Right now, it's wonderful to have some relief!I think the doctors talking about ionic foot baths were talking about using it after all chemo was over. . . Hopefully you'll be able to get one by then. . . Once cancer is wiped out, you don't need those chemicals lingering any longer than

necessary.Love,Rogene

[Guest guest]

Rogene,

This cancer center is why I am driving to Boulder for treatment

instead of doing it here. It is a lot of traveling, but the people

are wonderful (most of them).

I have appts. for Reiki and for a massage, both before my

chemo. Then one for Reiki a week after my chemo. I am working with

the social worker on some things and with the nutritionist on some

things. I am in Boulder 3 days a week, it seems, the week after

chemo only once scheduled so far (hopefully it will stay that

way). Then it starts again with more appts. Blood counts, Reiki,

and a Look Good, Feel Better group held by the American Cancer

Society, where they help you find ways to look better and deal with

wigs if you need to (so far I have my hair), in Loveland

(closer) and I have a therapist now (in Ft. , also

closer). My sister will be here, so will be doing some of the

driving (she thinks the chemo affects my driving, which it probably

does, to a minor degree) but the fatigue probably affects it more.

So, it keeps me busy. It is a full-time job managing the side

effects of this chemo. I hope it lessens a bit with either the

reduction in amount given or the change, whichever it ends up being.

I am glad your mouth is straightening out. That can be such a

problem. I have to wear a splint at night ever since they rebuilt my

mouth after my accident in 1989. I think it was 1991 when I got the

splint, after braces.

Maybe I can do some ionic foot baths when I finish the chemo. That

would be good.

Love,

Lynda

At 02:03 PM 3/29/2008, you wrote:

>Lynda,

>

>Your cancer center sounds incredible! . . . I wish everyone would

>look at medicine from an integrative standpoint! . . .

>

>A friend, who is a Reiki master, " turned " my hands on some time ago,

>and gave me a " tuneup " the last time I saw her. She's been pushing

>me to use my hands. I'm having a hard time believing it really

>works. . . but she says she's seen outstanding results repeatedly.

>I'm trying! . .. She said to expect to see major results in several

>months. Sometimes I think it's helping . . . but then I wonder if

>it's just the pain pill kicking in!

>

>I don't need a splint right now. . . I'm just reaching the point

>where I can purposely close my mouth completely. I can't clamp my

>jaw yet. I expect my jaw to go back into position once the swelling

>is gone. It's much better now. Right after surgery, I could only

>bring my front teeth together. I wish I had expected all that! . . .

>It came as an unpleasant surprise. I've been pushing it with some of

>the foods I eat . . . but I guess my stomach isn't happy about that!

>I need to stick to soft foods right now.

>

>I'm going to do the vinegar/baking soda thing . . . but I want to be

>able to sort out what's working first. I figure I'll give the meds a

>chance, and if that works, I'll use that as a baseline for what I

>expect from vinegar and baking soda. Right now, it's wonderful to

>have some relief!

>

>I think the doctors talking about ionic foot baths were talking

>about using it after all chemo was over. . . Hopefully you'll be

>able to get one by then. . . Once cancer is wiped out, you don't

>need those chemicals lingering any longer than necessary.

>

>Love,

>

>Rogene

>