Re: Researching Doctor's (Dede or anybody who can help)

[Guest guest]

Lynn,

I am so sorry to hear this for you. I thought you were doing

so well. I will keep you in my prayers....Lots of healing

sending your way. Do you think this was caused from

the breast implants ?

Love

In a message dated 4/8/2008 6:54:58 P.M. Eastern Daylight Time, saxony01@... writes:

Oh Lynn,

I'm so sorry. . . I know you feel the floor has just fallen out from under you . . . It will get better though as you learn more about your options.

You might want to check into some place that does brachytherapy.

Essentially, IF it is cancer, they can do radiation while you're still in the OR (one treatment). Or, they can implant a balloon into which a wire is inserted with nodes that deliver radiation right to the site. . . . It should take five days to do a complete round of therapy that way.

I could have saved myself a procedure, and time, with my breast cancer had I known what to request.

If it was me, I'd start with the procedure, then find a specialist who knows what to do. . .

Here, one of the places here is the University of Arkansas for Medical Sciences. . .

If you'll check this out, you might save yourself lots of time and misery.

A P.E.T scan should determine IF it is cancer ... You'll drink a sugary drink laced with a radioactive substance that is asborbed by cancer cells . . . resulting in a scan that makes cancer light up like a Christmas tree. I would insist on the scan before anyone does ANY cutting.

M.D. has an outstanding radiation program . . if you need it, and if your insurance covers it.

Hugs and prayers,

Rogene

Planning your summer road trip? Check out AOL Travel Guides.

[Guest guest]

Lynn,

I had an ovarian cyst removed a long time ago, mine was very large

and turned out to be from endometriosis. I'm keeping you in my

thoughts and prayers.

Sis

>

> >I recall Dede posting a website to rate a doctor. I can't

remember the

> >site. Does anybody recall what it is?

> >

> >I have to have surgery on my right ovary. My CA-125 came back

high and

> >after ultrasounds they found a mass. I am thinking it is an

> >endometrioma that my prior OB/GYN refused to remove about 2 years

ago.

> >Anyhow, it is growing. I need to get it removed but I refuse to

go to

> >my previous OB/GYN. So, I need a new surgeon and I would like to

> >research a few prior to making an appt.

> >

> >If you know the website, please post it.

> >

> >PS... I noticed Toni Braxton was hospitalized in Las Vegas - I

thought

> >she had issues with implants, wonder if that is the cause now?

> >

> >Hugs, Lynn

> >

> >

>

[Guest guest]

I had an ovarian cyst in 1961 shortly after I got pregnant. It was

painful, but harmless.

Lynda

At 07:42 PM 4/8/2008, you wrote:

>Lynn,

>

>I had an ovarian cyst removed a long time ago, mine was very large

>and turned out to be from endometriosis. I'm keeping you in my

>thoughts and prayers.

>

>Sis

>

>

> >

> > >I recall Dede posting a website to rate a doctor. I can't

>remember the

> > >site. Does anybody recall what it is?

> > >

> > >I have to have surgery on my right ovary. My CA-125 came back

>high and

> > >after ultrasounds they found a mass. I am thinking it is an

> > >endometrioma that my prior OB/GYN refused to remove about 2 years

>ago.

> > >Anyhow, it is growing. I need to get it removed but I refuse to

>go to

> > >my previous OB/GYN. So, I need a new surgeon and I would like to

> > >research a few prior to making an appt.

> > >

> > >If you know the website, please post it.

> > >

> > >PS... I noticed Toni Braxton was hospitalized in Las Vegas - I

>thought

> > >she had issues with implants, wonder if that is the cause now?

> > >

> > >Hugs, Lynn

> > >

> > >

> >

>

>

[Guest guest]

Lynda,

Unfortunetly mine isn't a cyst so it won't go away on its own (darn

it). During my last laparoscopy (06), the doctor had a choice to

remove the endometrioma but decided not too because it was too big

and he knew it would render that ovary useless. So he talked me in

to Lupron (ERRRRR) saying it would shrink it (LIE LIE LIE).

Lupron made my life a living hell and I swear, along with my

implants, it induced all my autoimmune/thyroid issues. It shut down

my pituitary gland for nearly 6 months.

Anyhow, my ovary is useless with this huge endometrioma on it, so he

should have just taken it then. Now I have to pay and go through

another surgery. I am not happy about it, and sad to lose the ovary

but the way I see it is the ovary was gone anyway.

Hugs, Lynn

> > >

> > > >I recall Dede posting a website to rate a doctor. I can't

> >remember the

> > > >site. Does anybody recall what it is?

> > > >

> > > >I have to have surgery on my right ovary. My CA-125 came back

> >high and

> > > >after ultrasounds they found a mass. I am thinking it is an

> > > >endometrioma that my prior OB/GYN refused to remove about 2

years

> >ago.

> > > >Anyhow, it is growing. I need to get it removed but I refuse to

> >go to

> > > >my previous OB/GYN. So, I need a new surgeon and I would like

to

> > > >research a few prior to making an appt.

> > > >

> > > >If you know the website, please post it.

> > > >

> > > >PS... I noticed Toni Braxton was hospitalized in Las Vegas - I

> >thought

> > > >she had issues with implants, wonder if that is the cause now?

> > > >

> > > >Hugs, Lynn

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Hi Rogene,

I am praying and hoping it is just an endometrioma. I have had

endometriosis since I was a teen, and several surgeries. My sister

just had a hysterectomy due to endometriosis and a large endometrioma

that was pushing on her bladder and bowels.

So far the doctors are reassuring me that it is just an endometrioma,

the word cancer hasn't come up quite yet. I think it is all due to

my history.

If (please God no) it would be cancer, I will definetly be asking you

several questions on this therapy. Right now, they said no rush for

surgery.

Just pray it is endometrioma. I can live without that ovary.

Ovarian cancer is a big killer, I don't even want to think of that

right now.

Love, Lynn

>

> Oh Lynn,

>

> I'm so sorry. . . I know you feel the floor has just fallen out

from under you . . . It will get better though as you learn more

about your options.

>

> You might want to check into some place that does brachytherapy.

>

> Essentially, IF it is cancer, they can do radiation while you're

still in the OR (one treatment). Or, they can implant a balloon into

which a wire is inserted with nodes that deliver radiation right to

the site. . . . It should take five days to do a complete round of

therapy that way.

>

> I could have saved myself a procedure, and time, with my breast

cancer had I known what to request.

>

> If it was me, I'd start with the procedure, then find a specialist

who knows what to do. . .

>

> Here, one of the places here is the University of Arkansas for

Medical Sciences. . .

>

> If you'll check this out, you might save yourself lots of time and

misery.

>

> A P.E.T scan should determine IF it is cancer ... You'll drink a

sugary drink laced with a radioactive substance that is asborbed by

cancer cells . . . resulting in a scan that makes cancer light up

like a Christmas tree. I would insist on the scan before anyone does

ANY cutting.

>

> M.D. has an outstanding radiation program . . if you need

it, and if your insurance covers it.

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

Thank you.

>

> http://health.usnews.com/sections/health/best-hospitals

>

>

> Researching Doctor's (Dede or anybody

who can help)

>

>

> I recall Dede posting a website to rate a doctor. I can't

remember the

> site. Does anybody recall what it is?

>

> I have to have surgery on my right ovary. My CA-125 came back

high and

> after ultrasounds they found a mass. I am thinking it is an

> endometrioma that my prior OB/GYN refused to remove about 2 years

ago.

> Anyhow, it is growing. I need to get it removed but I refuse to

go to

> my previous OB/GYN. So, I need a new surgeon and I would like to

> research a few prior to making an appt.

>

> If you know the website, please post it.

>

> PS... I noticed Toni Braxton was hospitalized in Las Vegas - I

thought

> she had issues with implants, wonder if that is the cause now?

>

> Hugs, Lynn

>

[Guest guest]

Lynda,

This is very reassuring, thank you so much!

Thanks for the prayers too.

Love, Lynn

>

> >I recall Dede posting a website to rate a doctor. I can't remember

the

> >site. Does anybody recall what it is?

> >

> >I have to have surgery on my right ovary. My CA-125 came back high

and

> >after ultrasounds they found a mass. I am thinking it is an

> >endometrioma that my prior OB/GYN refused to remove about 2 years

ago.

> >Anyhow, it is growing. I need to get it removed but I refuse to go

to

> >my previous OB/GYN. So, I need a new surgeon and I would like to

> >research a few prior to making an appt.

> >

> >If you know the website, please post it.

> >

> >PS... I noticed Toni Braxton was hospitalized in Las Vegas - I

thought

> >she had issues with implants, wonder if that is the cause now?

> >

> >Hugs, Lynn

> >

> >

>

[Guest guest]

Oh Dede,

I am so sorry! This is horrible. Please let me know how the scan

goes. I will pray for you!

Thank you for the site. I didn't see any of the doctors near me on

the list. The nurse practitioner I see recommended two OB/GYN

surgeons in her clinic. One is the one who did my sister's

hysterectomy. He is a Lupron fan, so I am nixing him from my list.

Even after the horror story I told my sister about Lupron, he talked

her into getting it. I need to find somebody I am comfortable with.

Love you, Lynn

>

> Hello Sweetie ~

> _http://www.doctorscorecard.com/doctors?sta=TX_

> (http://www.doctorscorecard.com/doctors?sta=TX)

> This is it !

> Wow, I am sorry they have found a mass. I tell ya,

> I found out today that both lungs have multiple nodes in them

> that they say look suspicious and worrysome..............yikes ! !

> I have a pet scan scheduled for friday.........

> God Bless US ALL ! ! ! !

> Much Love ~ Dede

>

>

>

> **************Planning your summer road trip? Check out AOL Travel

Guides.

> (http://travel.aol.com/travel-guide/united-states?

ncid=aoltrv00030000000016)

>

[Guest guest]

Hi ,

How are you?

I have been doing pretty good. I had my pap done and the doctor ran

a CA 125 as diagnostic testing only, it came back high. But she

states it can detect anything wrong with the ovaries. I had a

laparscopy in 2006 for my endometriosis and at that time my doctor

found a large endometrioma on my right ovary, he left it there

because I haven't had kids yet (I am 35). So, I knew it was there

and left - I am sure that is what is causing the elevated test.

The problem is, it is growing So, I will probably have to have

the ovary removed. It really isn't causing me pain but it isn't

healthy either. Probably a good idea to get that out of me.

I don't think it is implant related. I have had endometriosis since

I was in high school and I didn't get implants until I was in my late

20's.

I hope you are doing well.

Hugs, Lynn

>

> Lynn,

>

> I am so sorry to hear this for you. I thought you were doing

> so well. I will keep you in my prayers....Lots of healing

> sending your way. Do you think this was caused from

> the breast implants ?

>

> Love

>

>

> In a message dated 4/8/2008 6:54:58 P.M. Eastern Daylight Time,

> saxony01@... writes:

>

>

>

>

>

> Oh Lynn,

> I'm so sorry. . . I know you feel the floor has just fallen out

from under

> you . . . It will get better though as you learn more about your

options.

> You might want to check into some place that does brachytherapy.

> Essentially, IF it is cancer, they can do radiation while you're

still in

> the OR (one treatment). Or, they can implant a balloon into which a

wire is

> inserted with nodes that deliver radiation right to the

site. . . . It should

> take five days to do a complete round of therapy that way.

> I could have saved myself a procedure, and time, with my breast

cancer had I

> known what to request.

> If it was me, I'd start with the procedure, then find a specialist

who knows

> what to do. . .

> Here, one of the places here is the University of Arkansas for

Medical

> Sciences. . .

> If you'll check this out, you might save yourself lots of time and

misery.

> A P.E.T scan should determine IF it is cancer ... You'll drink a

sugary

> drink laced with a radioactive substance that is asborbed by cancer

cells . . .

> resulting in a scan that makes cancer light up like a Christmas

tree. I would

> insist on the scan before anyone does ANY cutting.

> M.D. has an outstanding radiation program . . if you

need it, and

> if your insurance covers it.

> Hugs and prayers,

> Rogene

>

>

>

>

>

>

>

>

> **************Planning your summer road trip? Check out AOL Travel

Guides.

> (http://travel.aol.com/travel-guide/united-states?

ncid=aoltrv00030000000016)

>

[Guest guest]

Sis,

Thanks for the hope. I am thinking this is what it is. I will be

happy to know for sure an have piece of mind. I am really looking

for a doc I can trust though.

Love, Lynn

> >

> > >I recall Dede posting a website to rate a doctor. I can't

> remember the

> > >site. Does anybody recall what it is?

> > >

> > >I have to have surgery on my right ovary. My CA-125 came back

> high and

> > >after ultrasounds they found a mass. I am thinking it is an

> > >endometrioma that my prior OB/GYN refused to remove about 2

years

> ago.

> > >Anyhow, it is growing. I need to get it removed but I refuse to

> go to

> > >my previous OB/GYN. So, I need a new surgeon and I would like to

> > >research a few prior to making an appt.

> > >

> > >If you know the website, please post it.

> > >

> > >PS... I noticed Toni Braxton was hospitalized in Las Vegas - I

> thought

> > >she had issues with implants, wonder if that is the cause now?

> > >

> > >Hugs, Lynn

> > >

> > >

> >

>

[Guest guest]

Lynn,It sounds like it's endometriosis since you've had problems with it before . . .However, before you let them start cutting, request a P.E.T. scan . . . They're expensive, so they're not offered all the time. . . But insurance should pay for one if you have a mass and a high CA-125 score. Hugs and prayers,Rogene

[Guest guest]

Oh Dede,I'd say that is more than "worrisome" . . . Please use all your wits to outwit whatever is going on! You've done it before . . . you'll do it again!Love,Rogene

[Guest guest]

Rogene ~

I have already started working my positive energy. I actually

have had some intuition on this and been working it for awhile

now, but only off and on because I have been taking care of

everyone else, and just too tired. I will now concentrate alot on

me now. My friend that had cancer and found out 2 weeks ago

went to heaven yesterday morning. I am so glad she didnt have

to suffer any more. It was already in her brain and lymph nodes.

What is so sad, bless her fathers heart, his granddaughter passed

with leukemia about 10 years ago, his oldest daughter passed about

2 1/2 years ago, his wife 9 months ago, and now his 2nd daughter yesterday. A very tough road for him.

I hope you have a sunny day and feel good !

Love and prayers ~ DedePlanning your summer road trip? Check out AOL Travel Guides.