Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Hi again... Seeing a GI is ok...but they should have a speciality in liver...that is who Tyler sees....they have to be up on what is going on in the liver world.... How long has she been on the 40 of pred....most with AIH are on both Imuran and Pred.....with the reduction of pred...to hopefully get off completely of the pred... What med is she taking for the help in keeping food down....Prilosec....? Ty has taken that.... I would definately ask about the imuran if she is not on it.... I think that there is a history of auto-immune in families...it is one of the questions that is always asked of us....when seeing other doctors ...or in the ER,..... I have another son who is now 24 and he has Ulcerative Colitis...since he was 3.....my daughter is 28 and has nothing now....and I certainly hope it stays that way..... Let me know how the appointment with Jackie goes and also how things go with the testing for .... take care and talk soon Luanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 My insurance company also refuses to pay for speech therapy unless it's for someone who has lost the power to speak because of a stroke ** " or an accident. " ** Jill Jill Yeah - according to the insurance company you wanted your child not to speak " on purpose " . It would seem to me - it was an accident if it wasn't on purpose. You know how they stick to the letter of the law. Maybe you can get them on wording. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 Wow Jill Sounds like things are going pretty well. good group of kids at the school too. Even though he may not be " included " in a lot of teen things, at least they aren't picking on him and tolerate his " odd " behaviour in school. Most kids would terrorize a kid that made weird noises and stuff in school. I am glad they don't do that to Owen. Dawn The kids are still really nice to him at school. He has never had a problem with other kids teasing or bullying him. Part of the reason is that they seem to respect him for his amazing memory and they are quite tolerant of his odd habits, such as wandering around the room during class and occasionally making funny noises. They even try to protect him from teachers who object! As for his academic skills, he seems to have a natural aptitude (and certainly a great interest) in math and science, including computer science, and does well in Spanish as far as spelling, vocabulary and grammar are concerned. He has trouble with writing in both English and Spanish. Long writing assignments are really difficult for him, and so are long-term projects of any kind. Planning ahead and dividing work into segments is something that doesn't come easily to him. But his grades are very good -- As and Bs. Every child with Asperger's seems to have different academic skills, though. Some are good in history and have trouble with math. Don't know if this helps? Forgot to mention that Owen is 16 and a junior in high school. He is mainstreamed in all his classes. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 <<<<<<< In elementary and middle school, usually Owen's behavior would improve over the course of each school year, as he got to know the routine. But during the last few days, when the normal structured days would be replaced by videos and trips to swimming pools and amusement parks, he felt confused and unhappy rather than like a child getting a treat.>>>> exactly ! As for not having any respect for authority, we noticed that Owen became less docile as he entered his teenage years........ but it's a stage most kids go through sooner or later.>>>>> I need to be sure this is due to teenage independce fits...... <<<<I will be praying for you and M>>>>> Thanks, Jill, you are always so supportive and generous with telling us about your exoperience (you are a veteran among us with AS, he ?) F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 Congratulations on the new baby to you and your family! My sister too had a baby boy this morning ! and boy, is Owen skinny! he has a lovely smile! F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 Hi Jill Congratulations on the new baby!!!!!!!!!! nice pictures I am so glad everyone is healthy and happy Take care Dawn Dear Gang, I put some pictures on our website (an album in the photo section) to explain why I have been so quiet on the list lately! My niece just had a baby. The first two photos in the album show a group of us when we went to visit her in the hospital. She is in the foreground, holding baby Jake. I'm at the far right, and Owen is in the background making faces. My mom and dad are in the picture (you'll be able to tell who they are) and also my sister Carol, 's mother, and her other daughter Jody (in back next to Owen). Just before Jake was born, several other family members came to visit: my sister from Arizona came with her 8-year-old daughter, and my niece who lives in Brazil came with her two daughters, 8 and 2 years old. And the visiting isn't over yet! In a few days, my sister Carol's husband will arrive, then 's husband's parents will be coming from Arizona for a few days. Life has been very busy lately, but fun. The second photo, taken at Christmas, shows how Owen outgrew me this past year! I know that many of you have reached this milestone too. I've been reading all the posts but not responding to very many. So congratulations, Roxanna, on the successful outcome of your hearing, and I hope Lindsey is OK, Tammy. Fania, you deserve praise for being so consistent. Dawn and Kathy, wish I could have joined you for lunch! Melinda, how is Tom getting along? Angel, I hope things are working out with 's new teacher. Gail, did you get back from the beach already, or are you posting from there? Welcome to all the new members. This is a great group! I know you'll enjoy joining in. Love to all, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 OH JILL !!?!?!?!?!?! I need help with some of that. in a nutshell - what is this?? Dawn Another request you can make once he has been ruled eligible for special education is a functional behavioral analysis, followed by a positive behavior plan, as provided for in the Individuals with Disabilities Education Act (a federal law). If you need more information about this, just ask. Good luck! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 <<<<congratulations on your new nephew! >>>>> thanks, and she lives near Boston. Fania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 > Congratulations on the new baby to you and your family! > My sister too had a baby boy this morning ! Congrats on the new nephew, Fania! Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 She is very bright, and was what you might call a " high-maintenance " child -- Jill Jill That is funny!! That is how I refer to Bradley. high maintenance Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 When my dd was about 15, she coined the phrased hmpu to describe dh and me. It stands for " high maintenance parental unit. " LOL Liz " D & A@Dayton " wrote: > She is very bright, and was what you might call a > " high-maintenance " child -- Jill > > Jill > That is funny!! That is how I refer to Bradley. high maintenance > Dawn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2003 Report Share Posted August 30, 2003 Now we're off to pick up my daughter at the BWI airport for one of her rare visits home! Jill Jill Have a great visit with your daughter!!!!! I know how happy you must be.... Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 Jill how nice is that?? it is wonderful that you two Moms are so understanding and just take it all in stride. Most people would find their behavior rude and unacceptable but as we all know - this is how Aspies can be. I have worked with Bradley and his manners for so long - that I can say he is the rudest polite boy I know. hahahahahaha even though he has the programmed responses, sometimes the delivery is bad or he is very " determined " when saying them. When he was little, if someone would sneeze, he would say " Bless you " then they say " thank you " and he said " your welcome " Well - when he would sneeze and someone said " Bless you " he would say " thank you " and they were SUPPOSED to say " your welcome " - Unfortunately, some people did not! so he would say very loudly, " THANK YOU! " and some people would say " your welcome " with a strange look on their face and other unsuspecting people would just have the strange look. So - he would say VERY LOUD " THANK YOU!!! " because in his mind, it wasn't finished. Some people would say " OH - your welcome " but some people would just walk away. LOL!!!! I would tell Brad to stop - but boy - is he tenacious. " They didn't say your welcome. Don't they have any manners? Didn't their Mother teach them manners?? " so after 3 long years, i finally got it through his head that it is rude to make a big deal out of them not saying your welcome and now he just shakes his head and tells me quietly, " they sure didn't bring their manners " OH - these kids are so fun!!! Dawn I have a close friend whose daughter has Asperger's syndrome. She even lives nearby -- about four houses away. How unlikely is that?! It's great that we can support each other and understand each other's children -- even though they are not very much alike in their interests and personalities. But when her daughter gets up from the table as soon as she has finished eating (at my house) and asks to go home, I'm not insulted, since I know exactly what's going on. I know that I can ask Kate for a hug, but not suddenly hug her without warning. And when my son walks into my friend's house without saying hello and looks around for the computer, she understands. She even encourages him to be more independent -- when I am still trying to shelter and protect him as if he were a much younger child! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 ROTFL! a " They didn't say your welcome. Don't they have any manners? > Didn't their Mother teach them manners?? " > so after 3 long years, i finally got it through his head that it is rude to > make a > big deal out of them not saying your welcome and now he just shakes his head > and tells me quietly, " they sure didn't bring their manners " > OH - these kids are so fun!!! > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 > > Jill > how nice is that?? > it is wonderful that you two Moms are so understanding and just take > it all in stride. > Most people would find their behavior rude and unacceptable but as > we all know - this is how Aspies can be. > I have worked with Bradley and his manners for so long - that I can say > he is the rudest polite boy I know. hahahahahaha ROFLOL!! Funny. I have been trying to teach my kids to say God Bless You forever. But they are just not aware enough of what someone else in the room is doing to notice when someone sneezes (unless of course they happen to be blocking the TV screen or computer screen!! LOL!) Still, I just keep on trying. I sneeze Silence. I say, " What do you say when someone sneezes? " Them: silent Me(louder now) " WHAT DO YOU SAY WHEN SOMEONE SNEEZES? " Kim: " Oh, sorry Mom. God bless you. " Me: Thank you....ERIC??? : " Huh " Oh yeah, God bless you. " Me: Thank you. Braden? silence Me: BRADEN???!! Silence Me: BRAAAADEN!!!!!!! Braden: What? Me: " WHAT DO YOU SAY WHEN SOMEONE SNEEZES???? " Silence. Me: BRADEN!!!!!!! Braden: " What? " Me: " SAY GOD BLESS YOU!!!! " Braden (muttering): God bless you. I try not to sneeze too much. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 <I'm sorry to hear that the risperdal doesn't seem to be working . The licking behavior makes me worry. Also the weight gain -- this doesn't sound like something you can safely ignore.>>> I know, that is why I keep posting about it, and " collecting " responses, I have my doubts. <<<I hate to sound like a broken record, but did anyone ever suggest one of the tricyclic antidepressants for him?>> never. I took him tonight for pizza and had a quiet talk with him. I was trying ot understand what he feels at school just before the outbursts. waht came up was a lot fo stress from teh EXPECTATIONS taht he'd be ok. I asked him if he felt he could curb the outbursts by making extra effort, he said he could curb it by 805 (typical answer. give him statistics and numbers!!). he said that he thinks the new dosage of risperdal is helping him somewhat with preventing him to hit, but that it is also making him so tired and sleepy that he can't concentrate at school . I will have to check with the psycht again. F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 <<<<< he said he could curb it by 805 (typical answer. give him statistics and numbers!!).> it should have read 80% but 805 would have gone fine with te pokemon power degrees, no ? :-) F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2005 Report Share Posted April 19, 2005 In a message dated 4/17/05 12:52:56 PM GMT Daylight Time, jb_sings@... writes: I am new to the group here and have been reading the responses to your initial post. Hi Jill, I can't remember if I have already welcomed you to the group. I am struggling to keep up with the posts just now. (I don't know why I am saying, " just now " because that is always the case nowadays! lol Anyway, if I didn't, Welcome! and if I did just ignore me. lol Right! Who said, " Everybody else tries to ignore him " come on, who was it? lol Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 Jill, I'm with you..Every time I'm out and about and I see a heavy person suffering, I just want to run up to them, put my arms around them, and tell them that it DOESN'T have to be like this. I am MUCH more sensitive towards the obese now than when I was still pre-op and I dont know why. Blessings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Hi Jill, Thank you for the welcome! Can you tell me more about Logan? I've only just heard of apraxia two days ago, and I'm trying to understand it. You mentioned that Logan didn't start communicating verbally until he was over 3...can you tell me what that was, how he sounded when he did start communicating that way? You mentioned that he was doing well now, but that he was diagnosed with apraxia. I'm not sure if you meant his overall healthy is good or that he's communicating well verbally now? If that's the case, can you tell me how the apraxia influences his life now, at 4 years old? Thank you so much for taking the time to answer my questions. Claren hasn't been diagnosed with apraxia...no one has even mentioned it to me, but the symptoms sound very similar to my experience with her. I am going to mention it to her speech therapist on Monday and her pediatrician in July....I'm assuming I should ask for a referral to a neurologist? Thank you! Brandelyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Ah Jill- Your post breaks my heart. None of it seems fair does it? " Why me? " is what I always think. Both of my knees and hips are shot (from cheerleading for 10 years!) Then, I got blown over by a snowboarder a few years ago, and have to have one of my knees replaced. I also deal with the scoliosis, torticollis in my neck, and had excuritiating pain on the left side of my body (which was diagnosed as fibro last year.) Not to mention the implant mess!! I can't say that I haven't thought of ending it all too. It goes beyond the pain for me, its the brain fog, the fatigue, the malaise that has given me very poor quality of life. Do you think your back problems were caused from the horse jumping? You still have so much life left you! That's what I have to keep reminding myself. We are young. On top of that, I've heard that every 365 days the cells in our body turn over. That gives me hope, and I hope it does for you too! Just keeping looking to the day when you can go through an entire day without thinking about the pain...you WILL get there! Love, Krista > > >Jill, > > > >I have FM also . . . However, as long as I follow my " program " . . . > >sufficient deep sleep, moderate exercise, regular massage, healthy > >diet, plus stress and anger management, I wouldn't know I had it. > > > >It takes a while to work out your own " program " . . . but it's well > >worth the effort. > > > >You can get past it! . . . > > > >FM is a syndrome, not a disease. A Syndrome is a collection of > >symptoms that have enough in common to be given a name. FM appears > >to be triggered by a number of things . . . Accidents, illness, > >death, divorce, stress, etc. . . What the " things " have in common is > >something that deprives one of sleep for an extended period. > > > >I hope you saw the 60 Minutes show. . . They said that sleep > >deprived brains mimicked those of psychotic people. . . They also > >said that one thinks they are still functioning, even though they > >are sleep deprived. . . Speaking for myself, I agree 100%! > > > >Hugs, > > > >Rogene > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Margaret thank you very much, your response moved me to tears, and your emotions and feelings mirror mine exactly. Have just received a wedding invitation for end of May in Ayr , and am looking at sorts of excuses to get out of it ( terrible I know), the love and support I find here is tremendous but I know I won't find it at that wedding because there will be people there I know ( and a terrible thing to say ) I haven't seen for a while that will take great delight in the way I have gone downhill ( and they are women isn't that terrible..?) Anyway have received lots of love and support, yourself included and am taking great comfort in that. god bless Jill XX PS Back at ya.. > > Hi Jill > > Marg here just got chance to write.I am older than you but feel the same.My fab hair is dull and thin and lank.I look haggard puffy ill and very very tired and old.I have always looked after myself and my weight which no amount of dieting and exercise will shift.I avoid mirrors like the plague.I use to think I was quite nice to look at and now I see this ugly women is shop windows and cringe coz its me.I have suffered this illness for 18 years on Thyroxin.The last 10 weeks have changed to Armour, which I am hoping will help.I too cant bear going out and have a big family do on Sunday and am dreading it..You are still young enough to sort this Jill > > > I think your fab anyway xxxxxxxxxxx > > Quote Link to comment Share on other sites More sharing options...
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