Re: Incidence of hearing loss in families

[Guest guest]

Myself and husband both carriers of Connexin 26 gene,

neither side had history of hearing loss.

First child has moderate to severe hearing loss

Second child has profound hearing loss

[Guest guest]

Myself and husband both carriers of Connexin 26 gene,

neither side had history of hearing loss.

First child has moderate to severe hearing loss

Second child has profound hearing loss

[Guest guest]

Myself and husband both carriers of Connexin 26 gene,

neither side had history of hearing loss.

First child has moderate to severe hearing loss

Second child has profound hearing loss

[Guest guest]

Myself and husband both carriers of Connexin 26 gene,

neither side had history of hearing loss.

First child has moderate to severe hearing loss

Second child has profound hearing loss

[Guest guest]

Myself and husband both carriers of Connexin 26 gene,

neither side had history of hearing loss.

First child has moderate to severe hearing loss

Second child has profound hearing loss

[Guest guest]

Hi there,

Here's our background....

* I am profoundly hearing impaired, diagnosed at age 3. Slow,

progressive, bilateral sensorineural hearing loss.

* My husband is mild to moderately hearing impaired, diagnosed in his

teens. Stable, bilateral sensorineural hearing loss.

* Daughter, age 6 1/2, diagnosed at 23 months with a bilateral,

moderately severe, sensorineural hearing loss. Rapidly progressive loss

and is now severe to profound.

* Son, age 4 1/2, normal hearing (!)

We do NOT have the Connexin 26 gene.

With good parental, audiological and educational guidance, hearing loss

should not detrimentally impact your child's life. My husband and I both

graduated from college, I have an advanced degree and we both have

successful careers. Our daughter managed to overcome her significant

speech and language delays due to her late diagnosis. She is now

academically ahead of her peers and on target for language skills.

Please do not hesitate to contact me privately if you have any questions.

~ a, Nucleus 24 C surgery expected Thursday, July 18th (after a 4

year wait!)

Parent of 6 1/2 yr old girl, Nucleus 24C implanted 4/30, Hooked up 5/20

* * * * * * * * * * * * * * * * * * * * * * * * *

a Rosenthal, Publisher

HearingExchange http://www.HearingExchange.com

For People with Hearing Loss, Parents & Professionals

[Guest guest]

Hi there,

Here's our background....

* I am profoundly hearing impaired, diagnosed at age 3. Slow,

progressive, bilateral sensorineural hearing loss.

* My husband is mild to moderately hearing impaired, diagnosed in his

teens. Stable, bilateral sensorineural hearing loss.

* Daughter, age 6 1/2, diagnosed at 23 months with a bilateral,

moderately severe, sensorineural hearing loss. Rapidly progressive loss

and is now severe to profound.

* Son, age 4 1/2, normal hearing (!)

We do NOT have the Connexin 26 gene.

With good parental, audiological and educational guidance, hearing loss

should not detrimentally impact your child's life. My husband and I both

graduated from college, I have an advanced degree and we both have

successful careers. Our daughter managed to overcome her significant

speech and language delays due to her late diagnosis. She is now

academically ahead of her peers and on target for language skills.

Please do not hesitate to contact me privately if you have any questions.

~ a, Nucleus 24 C surgery expected Thursday, July 18th (after a 4

year wait!)

Parent of 6 1/2 yr old girl, Nucleus 24C implanted 4/30, Hooked up 5/20

* * * * * * * * * * * * * * * * * * * * * * * * *

a Rosenthal, Publisher

HearingExchange http://www.HearingExchange.com

For People with Hearing Loss, Parents & Professionals

[Guest guest]

Hi there,

Here's our background....

* I am profoundly hearing impaired, diagnosed at age 3. Slow,

progressive, bilateral sensorineural hearing loss.

* My husband is mild to moderately hearing impaired, diagnosed in his

teens. Stable, bilateral sensorineural hearing loss.

* Daughter, age 6 1/2, diagnosed at 23 months with a bilateral,

moderately severe, sensorineural hearing loss. Rapidly progressive loss

and is now severe to profound.

* Son, age 4 1/2, normal hearing (!)

We do NOT have the Connexin 26 gene.

With good parental, audiological and educational guidance, hearing loss

should not detrimentally impact your child's life. My husband and I both

graduated from college, I have an advanced degree and we both have

successful careers. Our daughter managed to overcome her significant

speech and language delays due to her late diagnosis. She is now

academically ahead of her peers and on target for language skills.

Please do not hesitate to contact me privately if you have any questions.

~ a, Nucleus 24 C surgery expected Thursday, July 18th (after a 4

year wait!)

Parent of 6 1/2 yr old girl, Nucleus 24C implanted 4/30, Hooked up 5/20

* * * * * * * * * * * * * * * * * * * * * * * * *

a Rosenthal, Publisher

HearingExchange http://www.HearingExchange.com

For People with Hearing Loss, Parents & Professionals

[Guest guest]

My husband and I are both hearing.

My oldest is 7 years old - hearing but has a different father than my other

two children.

My middle child is 2 1/2 years old - HI with sensorineural profound loss in

one ear and severe loss in the other ear. Wears two hearing aids and uses

SEE and trying to use speech.

My youngest child is 1 1/2 years old - hearing.

My son that is hearing impaired had a 1 in 4 chance of having a HI and so

will any other children that we have if we have ant more.

My children also have a 1 in 4 chance of having children with HI but my 2

year old has a 50% chance.

Incidence of hearing loss in families

> I was wondering if I could do my own little survey: Could everyone on the

list (who can be bothered), who has a child with a genetic (or likely

genetic) hearing loss, with 1 or more siblings, hearing or hearing impaired,

let me know each child's hearing status.

> Eg. Child 1 - severe hearing impairment

> Child 2 - hearing

>

> or: Child 1 - moderate hearing impairment

> Child 2 - severe hearing impairment

> Child 3 - hearing

>

> If one or both of the parents are hearing impaired, could you also please

mention this.

>

> I am hoping to get a better idea of the likelihood of having more than 1

hearing impaired child and if so, whether the degree of loss is likely to be

similar or the same as previously HI children. Naturally, this information

will in no way change my mind to have another child and I know there are no

guarantees what will happen, but I was just interested to see the results. I

would really appreciate your time and trouble.

> Kind regards,

> Kerryn (Mum to , 20 months, moderate HI)

>

>

>

[Guest guest]

My husband and I both have normal hearing, but turns out we each

carry a connexin 26 mutation. Our daughter, age 7, is supposedly also

a carrier (one normal, one mutated gene), but she has a mild loss. My

son, age 3, has both mutated genes, and has a severe loss. He is an

absolute delight, and a hellion; his hearing loss would not stop me

from having more kids, knowing what I do now. But I never wanted more

than two, so not even a question for me!

>To everyone,

>

>Since was diagnosed, some people have asked whether we will

>have more children or not. We have been told we have a 1 in 8 chance

>of future children being hearing impaired (HI), but know this is not

>a reason not to have more children. We want a sibling for and

>HI or not, a second baby will be exactly that. We certainly wouldn't

>have not had had we been told before she was born that she

>would be HI - she is too precious!

>

>However, the concept of having another HI child does cross our

>minds. I understand the incidence of HI is more likely once you have

>one HI child, but was wondering whether it makes any difference if

>you have, say, one child who is severely HI, does this mean if you

>have another HI child, is that child more likely to be severely HI,

>or could it be any degree of loss?

>

>I was wondering if I could do my own little survey: Could everyone

>on the list (who can be bothered), who has a child with a genetic

>(or likely genetic) hearing loss, with 1 or more siblings, hearing

>or hearing impaired, let me know each child's hearing status.

>Eg. Child 1 - severe hearing impairment

> Child 2 - hearing

>

>or: Child 1 - moderate hearing impairment

> Child 2 - severe hearing impairment

> Child 3 - hearing

>

>If one or both of the parents are hearing impaired, could you also

>please mention this.

>

>I am hoping to get a better idea of the likelihood of having more

>than 1 hearing impaired child and if so, whether the degree of loss

>is likely to be similar or the same as previously HI children.

>Naturally, this information will in no way change my mind to have

>another child and I know there are no guarantees what will happen,

>but I was just interested to see the results. I would really

>appreciate your time and trouble.

>Kind regards,

>Kerryn (Mum to , 20 months, moderate HI)

>

>

>

[Guest guest]

My husband and I both have normal hearing, but turns out we each

carry a connexin 26 mutation. Our daughter, age 7, is supposedly also

a carrier (one normal, one mutated gene), but she has a mild loss. My

son, age 3, has both mutated genes, and has a severe loss. He is an

absolute delight, and a hellion; his hearing loss would not stop me

from having more kids, knowing what I do now. But I never wanted more

than two, so not even a question for me!

>To everyone,

>

>Since was diagnosed, some people have asked whether we will

>have more children or not. We have been told we have a 1 in 8 chance

>of future children being hearing impaired (HI), but know this is not

>a reason not to have more children. We want a sibling for and

>HI or not, a second baby will be exactly that. We certainly wouldn't

>have not had had we been told before she was born that she

>would be HI - she is too precious!

>

>However, the concept of having another HI child does cross our

>minds. I understand the incidence of HI is more likely once you have

>one HI child, but was wondering whether it makes any difference if

>you have, say, one child who is severely HI, does this mean if you

>have another HI child, is that child more likely to be severely HI,

>or could it be any degree of loss?

>

>I was wondering if I could do my own little survey: Could everyone

>on the list (who can be bothered), who has a child with a genetic

>(or likely genetic) hearing loss, with 1 or more siblings, hearing

>or hearing impaired, let me know each child's hearing status.

>Eg. Child 1 - severe hearing impairment

> Child 2 - hearing

>

>or: Child 1 - moderate hearing impairment

> Child 2 - severe hearing impairment

> Child 3 - hearing

>

>If one or both of the parents are hearing impaired, could you also

>please mention this.

>

>I am hoping to get a better idea of the likelihood of having more

>than 1 hearing impaired child and if so, whether the degree of loss

>is likely to be similar or the same as previously HI children.

>Naturally, this information will in no way change my mind to have

>another child and I know there are no guarantees what will happen,

>but I was just interested to see the results. I would really

>appreciate your time and trouble.

>Kind regards,

>Kerryn (Mum to , 20 months, moderate HI)

>

>

>

[Guest guest]

My husband and I both have normal hearing, but turns out we each

carry a connexin 26 mutation. Our daughter, age 7, is supposedly also

a carrier (one normal, one mutated gene), but she has a mild loss. My

son, age 3, has both mutated genes, and has a severe loss. He is an

absolute delight, and a hellion; his hearing loss would not stop me

from having more kids, knowing what I do now. But I never wanted more

than two, so not even a question for me!

>To everyone,

>

>Since was diagnosed, some people have asked whether we will

>have more children or not. We have been told we have a 1 in 8 chance

>of future children being hearing impaired (HI), but know this is not

>a reason not to have more children. We want a sibling for and

>HI or not, a second baby will be exactly that. We certainly wouldn't

>have not had had we been told before she was born that she

>would be HI - she is too precious!

>

>However, the concept of having another HI child does cross our

>minds. I understand the incidence of HI is more likely once you have

>one HI child, but was wondering whether it makes any difference if

>you have, say, one child who is severely HI, does this mean if you

>have another HI child, is that child more likely to be severely HI,

>or could it be any degree of loss?

>

>I was wondering if I could do my own little survey: Could everyone

>on the list (who can be bothered), who has a child with a genetic

>(or likely genetic) hearing loss, with 1 or more siblings, hearing

>or hearing impaired, let me know each child's hearing status.

>Eg. Child 1 - severe hearing impairment

> Child 2 - hearing

>

>or: Child 1 - moderate hearing impairment

> Child 2 - severe hearing impairment

> Child 3 - hearing

>

>If one or both of the parents are hearing impaired, could you also

>please mention this.

>

>I am hoping to get a better idea of the likelihood of having more

>than 1 hearing impaired child and if so, whether the degree of loss

>is likely to be similar or the same as previously HI children.

>Naturally, this information will in no way change my mind to have

>another child and I know there are no guarantees what will happen,

>but I was just interested to see the results. I would really

>appreciate your time and trouble.

>Kind regards,

>Kerryn (Mum to , 20 months, moderate HI)

>

>

>