Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 , Remind me one more time the dates you will be in SLC. I'd love to come down and say HI, if nothing else. Carmell mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc. http://carmellb-ivil.tripod.com/myfamily/ __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 Hi You and Eliana are going to be there the same time as us right? Along with Bert and Bridge. Did I read that you and Eliana will be heading over to PCMC? Siobhan and I will be there on Nov 15 and 16.... Looking forward to catching up. Hopefully and Kylie will be able to drop by? (Siobhan will be devasted if she doesn't see Kylie). Hopefully Carmell too? This will be one big get-together! See y'awl soon.... Jacki > > , > > Remind me one more time the dates you will be in SLC. > I'd love to come down and say HI, if nothing else. > > Carmell > > > mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc. http://carmellb-ivil.tripod.com/myfamily/ > > > > > __________________________________ > - PC Magazine Editors' Choice 2005 > http://mail. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 > > , > > Remind me one more time the dates you will be in SLC. > I'd love to come down and say HI, if nothing else. > > Carmell > > > mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc. http://carmellb-ivil.tripod.com/myfamily/ > > > > > __________________________________ > - PC Magazine Editors' Choice 2005 > http://mail. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 > > > > , > > > > Remind me one more time the dates you will be in SLC. > > I'd love to come down and say HI, if nothing else. > > > > Carmell > > > > > > mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon > 10, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl > implant 8/01), thoracic insufficiency, rib anomalies, congenital > scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC > (released 4/99), anal stenosis, chronic constipation, horseshoe > (cross-fused) kidney, dbl ureter in left kidney, ureterocele > (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic > bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial > torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, > 3/04), pes cavus, single umblilical artery, tonsil-adnoidectomy and > ear tubes (3/98), etc. http://carmellb-ivil.tripod.com/myfamily/ > > > > > > > > > > __________________________________ > > - PC Magazine Editors' Choice 2005 > > http://mail. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 Hi Jacki, How are all of you? I feel like I've dropped off the face of the world!! I've been so busy and exhusted the last month, I haven't been on the site for weeks! We did find a new house that will be ours and no one can tear down!! It's only about 10 minutes from where we are now. We will still be in the one we're in now 'til the end of the year. We have some stuff we want to change in the new house and don't want to be doing and living there at the same time. We do plan on visiting you and Siobhan and everyone else! What day and time works the best for you? We don't want to show up while your at Primary Children's. Kylie has her appointment on the 10th. I'm not sure what to expect! We'll let you know. She will have been in this brace for a year on Nov.11th and she has not progressed at all! Can you believe it? Well let me know what time works best. I will be checking my e-mails regularly now. --- jabostock <jabostock@...> wrote: > Hi > > You and Eliana are going to be there the same time > as us right? > Along with Bert and Bridge. > Did I read that you and Eliana will be heading over > to PCMC? Siobhan > and I will be there on Nov 15 and 16.... > > Looking forward to catching up. > > Hopefully and Kylie will be able to drop by? > (Siobhan will > be devasted if she doesn't see Kylie). > > Hopefully Carmell too? This will be one big > get-together! > > See y'awl soon.... > > Jacki > > > > > > > > , > > > > Remind me one more time the dates you will be in > SLC. > > I'd love to come down and say HI, if nothing else. > > > > Carmell > > > > > > mom to Kara 19, idiopathic scoliosis, Blake 15, > GERD and Braydon > 10, VACTERL, GERD, DGE, Titanium Rib Project patient > #137 (dbl > implant 8/01), thoracic insufficiency, rib > anomalies, congenital > scoliosis (fusion surgery 5/96), missing coccyx, > fatty filum/TC > (released 4/99), anal stenosis, chronic > constipation, horseshoe > (cross-fused) kidney, dbl ureter in left kidney, > ureterocele > (excized 6/95), kidney reflux (reimplant surgery > 1/97), neurogenic > bladder, bilateral hip dysplasia, right leg/foot > dyplasia, tibial > torsion, clubfoot with 8 toes (reconstructed 2/96, > 3/96, 1/97, > 3/04), pes cavus, single umblilical artery, > tonsil-adnoidectomy and > ear tubes (3/98), etc. > http://carmellb-ivil.tripod.com/myfamily/ > > > > > > > > > > __________________________________ > > - PC Magazine Editors' Choice 2005 > > http://mail. > > > > > > > __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 Hi Jacki, How are all of you? I feel like I've dropped off the face of the world!! I've been so busy and exhusted the last month, I haven't been on the site for weeks! We did find a new house that will be ours and no one can tear down!! It's only about 10 minutes from where we are now. We will still be in the one we're in now 'til the end of the year. We have some stuff we want to change in the new house and don't want to be doing and living there at the same time. We do plan on visiting you and Siobhan and everyone else! What day and time works the best for you? We don't want to show up while your at Primary Children's. Kylie has her appointment on the 10th. I'm not sure what to expect! We'll let you know. She will have been in this brace for a year on Nov.11th and she has not progressed at all! Can you believe it? Well let me know what time works best. I will be checking my e-mails regularly now. --- jabostock <jabostock@...> wrote: > Hi > > You and Eliana are going to be there the same time > as us right? > Along with Bert and Bridge. > Did I read that you and Eliana will be heading over > to PCMC? Siobhan > and I will be there on Nov 15 and 16.... > > Looking forward to catching up. > > Hopefully and Kylie will be able to drop by? > (Siobhan will > be devasted if she doesn't see Kylie). > > Hopefully Carmell too? This will be one big > get-together! > > See y'awl soon.... > > Jacki > > > > > > > > , > > > > Remind me one more time the dates you will be in > SLC. > > I'd love to come down and say HI, if nothing else. > > > > Carmell > > > > > > mom to Kara 19, idiopathic scoliosis, Blake 15, > GERD and Braydon > 10, VACTERL, GERD, DGE, Titanium Rib Project patient > #137 (dbl > implant 8/01), thoracic insufficiency, rib > anomalies, congenital > scoliosis (fusion surgery 5/96), missing coccyx, > fatty filum/TC > (released 4/99), anal stenosis, chronic > constipation, horseshoe > (cross-fused) kidney, dbl ureter in left kidney, > ureterocele > (excized 6/95), kidney reflux (reimplant surgery > 1/97), neurogenic > bladder, bilateral hip dysplasia, right leg/foot > dyplasia, tibial > torsion, clubfoot with 8 toes (reconstructed 2/96, > 3/96, 1/97, > 3/04), pes cavus, single umblilical artery, > tonsil-adnoidectomy and > ear tubes (3/98), etc. > http://carmellb-ivil.tripod.com/myfamily/ > > > > > > > > > > __________________________________ > > - PC Magazine Editors' Choice 2005 > > http://mail. > > > > > > > __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 Hey So GREAT to hear from you! I'll look forward to catching up " proper " when we see you, and you can fill me in on how everything is going for you all. We arrive next Sunday, Nov. 13th, at 3:45 PM, so should be arriving at Shriner's around 4:30 PM. Would Sunday work for you guys, as Carmell is planning on visiting us for an early dinner (at Shriner's) on Sunday? I believe both and Bert will be in town by then? Correct me if I'm wrong gals?? If not, we will be there for the week - Our two trips to PCMC are Nov. 15th at 1 PM, and Nov. 16th at 11 AM. We do have an appt. on Monday morning, though not too sure what we'll do? Cut the cast off, maybe x-rays, get measured up for the new brace....??? See ya soon. Hugs Jacki and Siobhan xxxx > > > > > > , > > > > > > Remind me one more time the dates you will be in > > SLC. > > > I'd love to come down and say HI, if nothing else. > > > > > > Carmell > > > > > > > > > mom to Kara 19, idiopathic scoliosis, Blake 15, > > GERD and Braydon > > 10, VACTERL, GERD, DGE, Titanium Rib Project patient > > #137 (dbl > > implant 8/01), thoracic insufficiency, rib > > anomalies, congenital > > scoliosis (fusion surgery 5/96), missing coccyx, > > fatty filum/TC > > (released 4/99), anal stenosis, chronic > > constipation, horseshoe > > (cross-fused) kidney, dbl ureter in left kidney, > > ureterocele > > (excized 6/95), kidney reflux (reimplant surgery > > 1/97), neurogenic > > bladder, bilateral hip dysplasia, right leg/foot > > dyplasia, tibial > > torsion, clubfoot with 8 toes (reconstructed 2/96, > > 3/96, 1/97, > > 3/04), pes cavus, single umblilical artery, > > tonsil-adnoidectomy and > > ear tubes (3/98), etc. > > http://carmellb-ivil.tripod.com/myfamily/ > > > > > > > > > > > > > > > __________________________________ > > > - PC Magazine Editors' Choice 2005 > > > http://mail. > > > > > > > > > > > > > > > > > > __________________________________ > FareChase: Search multiple travel sites in one click. > http://farechase. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Hi girls! I read all your posts tonight in regards to advice on the coffee enema's and detoxing. I appreaciate all your help! I see the colon hyrotherapist next week, so I am going to wait and see her first before I start anything. I'm going to ask her about all that you ladies have recommended and see if I should do them along with her treatment. Then I will go from there. I think I will have to go back on the diet tomorrow. I have been off the candida diet for four days now and my itching is coming back and my mouth sores are back too and my sinus's have been on fire. I have really noticed I'm still fatigued even off the diet and still depressed. I figure at this point, no matter what I do.....I feel crappy! BUT I did have some yummy pizza this weekend though! Dang it was good! I did go and have my massage with heat stones today. THIS IS WHAT MAKES ME HAPPY! This man I see is awesome! OMG!! He noticed I wasn't my chipper self today and asked me about it. I have been seeing him for a while but never told him about my surgery. I told him today and he was very sympathetic and understanding. He wants to help me. He does a very differenet massage, he does it for mind, body and soul for his clients. I am going to start seeing him again weekly, it really helps with my depression. I'm so frustrated these days and he helps me calm down. My daughter was gone all day with her dad so I had my massage this morning and then took a nap and then a detox bath with dead sea salts. I feel a bit better tonight. I had a me day.....I liked it so much.....I think I'll have another one tomorow too! Thanks again ladies, I am in constant need these days of encourgement. I so pray to have at least a glimse of feeling better. Hope your all enjoying your weekend! Hugs and prayers, Cherie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Hi Cherie, Oh, your day sounds wonderful. I am so happy that you opened up and he will help you! I am sorry you are depressed. I can relate. I have my blues days, especially when I am feeling crappy. God bless you for being able to do it with a child! I don't have kids and I can barely get through somedays just taking care of me. The diet is getting easier for me. I crave good foods now, I really do. But sometimes I do break down and you are right - PIZZA is sooo yummy!! I am down to skin and bones. No sugar is a great diet but I can really afford to lose too much weight. The coffee enemas are great (unless you have flaring, raging hemrrhoids). I felt much better right after, gives you lots of energy but I am certain that has to do with the caffine in the coffee. I hope you get so more " me " time soon to relax and rest. The less stress you have in your life, the faster healing. Sometimes much easier said than done - I know - my job gets super stressful! Oh, are remember to do your therapy sessions... that means checking in here, even if it is just to vent! It helps, it really does. When I am anxious I log on and feel better. Love, Lynn > > Hi girls! > > I read all your posts tonight in regards to advice on the coffee > enema's and detoxing. I appreaciate all your help! I see the colon > hyrotherapist next week, so I am going to wait and see her first > before I start anything. I'm going to ask her about all that you > ladies have recommended and see if I should do them along with her > treatment. Then I will go from there. > > I think I will have to go back on the diet tomorrow. I have been off > the candida diet for four days now and my itching is coming back and > my mouth sores are back too and my sinus's have been on fire. I have > really noticed I'm still fatigued even off the diet and still > depressed. I figure at this point, no matter what I do.....I feel > crappy! BUT I did have some yummy pizza this weekend though! Dang it > was good! > > I did go and have my massage with heat stones today. THIS IS WHAT > MAKES ME HAPPY! This man I see is awesome! OMG!! He noticed I > wasn't my chipper self today and asked me about it. I have been > seeing him for a while but never told him about my surgery. I told > him today and he was very sympathetic and understanding. He wants to > help me. He does a very differenet massage, he does it for mind, body > and soul for his clients. I am going to start seeing him again > weekly, it really helps with my depression. I'm so frustrated these > days and he helps me calm down. My daughter was gone all day with her > dad so I had my massage this morning and then took a nap and then a > detox bath with dead sea salts. I feel a bit better tonight. I had a > me day.....I liked it so much.....I think I'll have another one > tomorow too! > > Thanks again ladies, I am in constant need these days of > encourgement. I so pray to have at least a glimse of feeling better. > > Hope your all enjoying your weekend! > Hugs and prayers, > Cherie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Cherie,I'm sorry to hear you aren't feeling any better off the diet . .. but I'm happy to know you now understand the diet was helping . . . There's nothing about this mess that's easy . . . It starts in the head when we decide to get well, then becomes an exercise in commitment and patience.I just wish there was something we could do to make it easier.Hugs and prayers,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Rogene, I was too whimpy to fast today, I'll admit it! I felt not just weak but just plain awful by mid-morning. I had to eat. I see the hydrotherapist next week, maybe I can fast after a treatment. I must say that I feel a tiny...(and I mean tiny) bit more energy today. I think it may have been the dead sea salt bath I had yestereday afternoon. Can I do those nightly for maybe 15 minutes or so? I'm so dang toxic, I would think it would help me. I feel so plugged up!! The grip I've always had with this is trapped gas and nothing will come out. I have at least 1 to 2 bowels a day but still feel plugged in the lower abdomen. Let me know what you think. I don't want to over due it. Hugs, Cherie > > Cherie, > > I'd stick with the water fast today . . . even if you do feel weak. It would take a lot more to actually harm you . . . > > LOL, I remember my father . . . He thought that, if he didn't three square meals a day, he would die. . . When he thought he was dying, he went on a hunger strike, hoping to get it over with faster. . . After several days, he realized he wasn't going to die without food and went back to eating. > > You might take some vitamins with it though. . . They shouldn't encourage Candida. > > Some coffee enemas might help a lot! > > Swab the inside of your nose with an antifungal as high as you can reach - like Lamisil. You should feel a difference soon. > > A hot Epsom Salt and hydrogen peroxide bath can help draw toxins out of your tissues. > > Hugs, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Cherie,The baths won't hurt . . . and, if they help you get the toxins out, so much the better . . . And, you'll feel better just for the baths! . . . I think you'll feel better after you are thoroughly cleaned out . . . by whatever means. That gas is coming from something . . . If you were blocked, you would have been in big trouble long ago. . . so that's not possible. I suspect your gut is reacting to something it doesn't like. . . Have you tried eliminating gluten COMPLETELY? One of my friends had ongoing problems for years - she was literally starving to death, while a bit overweight, because of Celiac disease. . . Once she got on a gluten free diet, she's come back to life. She's also allergic to dairy products. She becomes violently ill very quickly if she eats just the tiniest amount of gluten. She will never be able to eat foods containing gluten again without getting sick.You may need to experiment with different foods . . . High on the list are eggs, dairy, peanuts, gluten, corn, shellfish . . . and some others I don't recall right now. PH can help you with the list. Journaling everything you eat/take is essential.Keep trying to figure this out . . . It's not easy . . . it's like solving a mystery . . . but the reward is well worth it! . .. You'll have your life back, even if you have to tolerate a few inconveniences.Hugs,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Hi Rogene, No I haven't eliminated gluten. I have eliminated dairy/lactose and yeast/sugar. I guess it's time to give this a try! Thanks for the info! Cherie > > Cherie, > > The baths won't hurt . . . and, if they help you get the toxins out, so much the better . . . And, you'll feel better just for the baths! . . . > > I think you'll feel better after you are thoroughly cleaned out . . . by whatever means. That gas is coming from something . . . If you were blocked, you would have been in big trouble long ago. . . so that's not possible. > > I suspect your gut is reacting to something it doesn't like. . . Have you tried eliminating gluten COMPLETELY? One of my friends had ongoing problems for years - she was literally starving to death, while a bit overweight, because of Celiac disease. . . Once she got on a gluten free diet, she's come back to life. She's also allergic to dairy products. She becomes violently ill very quickly if she eats just the tiniest amount of gluten. She will never be able to eat foods containing gluten again without getting sick. > > You may need to experiment with different foods . . . High on the list are eggs, dairy, peanuts, gluten, corn, shellfish . . . and some others I don't recall right now. PH can help you with the list. Journaling everything you eat/take is essential. > > Keep trying to figure this out . . . It's not easy . . . it's like solving a mystery . . . but the reward is well worth it! . .. You'll have your life back, even if you have to tolerate a few inconveniences. > > Hugs, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Cherie,There's a strong genetic factor in Celiac Disease.Has anyone in your family had undiagnosed digestive problems? There's some thought that Celiac disease can contribute to Autism too. .. .do a websearch for "Celiac Autism".My friends son has Celiac too . . . My cousin learned that her life-long indigestion was Celiac disease only after one of her daughter's was diagnosed . . . another daughter was found to have it later. In Italy, all newborns are tested . . . If I remember right, about 1/3 of the babies are born with it.Hugs,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Rogene, My mother has IBS and just takes medication for it. She still however have gas and bloating at times. The meds help her but not completely. Not sure what she takes. My grandmother had IBS when she passed away many years ago of a stroke. They could not figure out her IBS at all. Hmmmm...I think your on to something! Thanks for all your help.....your a true blessing my dear! Hugs, Cheriesaxony01 <saxony01@...> wrote: Cherie,There's a strong genetic factor in Celiac Disease.Has anyone in your family had undiagnosed digestive problems? There's some thought that Celiac disease can contribute to Autism too. .. .do a websearch for "Celiac Autism".My friends son has Celiac too . . . My cousin learned that her life-long indigestion was Celiac disease only after one of her daughter's was diagnosed . . . another daughter was found to have it later. In Italy, all newborns are tested . . . If I remember right, about 1/3 of the babies are born with it.Hugs,Rogene Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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