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Hi Bindi~

It is so wonderful to hear you are doing so well. I am so happy for you!

Did you go to a Naturopathic Physician for help with your hormones?

Hugs~

a

Feelin' fine

Just wanted to let you all know that I am feeling great. I can't believe the difference hormones make. Night and day. Three weeks in and already I have more energy, am sleeping better, my mood is better, no more muscle aches, my brain fog is all but disappeared, my sugar/carb cravings are gone. My libido is back with a vengeance, ooh la la.

I'm using 5 mg/day DHEA, 30 mg/day Armour thyroid, and natural estrogen and progesterone creams 2 x/day.

There's hope. Don't give up! If I can feel this good I'm sure others can too.

Bindi

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a,

I'm working with a health practioner who calls herself a " health

integrationist. " I know that sounds like a flaky name but she's really

very experienced with chronic illnesses. She hosts a health program on

a progressive radio station in our area and works with her husband, a

doctor. She can work with people through phone consultation if

necessary. Her name is Layna Berman. He web site is

here:http://www.yourownhealthandfitness.org/

Layna asked me to do a complete hormone panel through ZRT labs, then

she consulted with me twice before suggesting the natural hormones I

use.

I FEEL GREAT.

Love,

Bindi

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Thank you Rogene and Dede. I wish I could bottle and send you both by

overnight mail gallon jugs of my current (knock on wood)feelings of

good health. But barring that I am picturing you both in my mind's eye,

smiling and glowing with perfect health.

Love Bindi--- In , saxony01 <saxony01@...>

wrote:

>

> Bindi . . .

> I'm thrilled for you! . . . .

> It's time to enjoy life.

> You deserve it!

> Hugs,

> Rogene

>

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Hi Bindi- This is great news for those of us that are still in the

suffering stages. PH told me that hormones have really worked for you.

I think I may have to look at that next.

I'm still not feeling great, even 7 months after explant. Poo!

I'm glad to hear that YOU are feeling better!

Did your thyroid tests come up whacky too? I feel like my thyroid is

whacky, but everytime it is checked, it comes back " normal. "

~Krista

>

> Just wanted to let you all know that I am feeling great. I can't

believe the difference hormones make. Night and day. Three weeks in

and already I have more energy, am sleeping better, my mood is better,

no more muscle aches, my brain fog is all but disappeared, my

sugar/carb cravings are gone. My libido is back with a vengeance, ooh

la la.

>

> I'm using 5 mg/day DHEA, 30 mg/day Armour thyroid, and natural

estrogen and progesterone creams 2 x/day.

>

> There's hope. Don't give up! If I can feel this good I'm sure others

can too.

>

> Bindi

>

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Bindi,

Is DHEA prescribed or OTC?

Thanks,

Lynn

> >

> > Just wanted to let you all know that I am feeling great. I can't

> believe the difference hormones make. Night and day. Three weeks in

> and already I have more energy, am sleeping better, my mood is

better,

> no more muscle aches, my brain fog is all but disappeared, my

> sugar/carb cravings are gone. My libido is back with a vengeance,

ooh

> la la.

> >

> > I'm using 5 mg/day DHEA, 30 mg/day Armour thyroid, and natural

> estrogen and progesterone creams 2 x/day.

> >

> > There's hope. Don't give up! If I can feel this good I'm sure

others

> can too.

> >

> > Bindi

> >

>

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Bindi,

Do you mind if I ask how much the hormone panel cost?

Thanks,

Lynn

PS... I am so happy you are feeling great! I wish my libido would

turn around, I know my hubby does too.

>

> a,

> I'm working with a health practioner who calls herself a " health

> integrationist. " I know that sounds like a flaky name but she's

really

> very experienced with chronic illnesses. She hosts a health program

on

> a progressive radio station in our area and works with her husband,

a

> doctor. She can work with people through phone consultation if

> necessary. Her name is Layna Berman. He web site is

> here:http://www.yourownhealthandfitness.org/

>

> Layna asked me to do a complete hormone panel through ZRT labs,

then

> she consulted with me twice before suggesting the natural hormones

I

> use.

>

> I FEEL GREAT.

>

> Love,

> Bindi

>

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Hi Dede-

I've posted them before, but here they are again....let me know what

you(or anyone else) thinks:

7/14/05 3/17/07 4/13/07 8/31/07 3/26/08 7/8/08

0.719 0.934 0.644 1.058 1.687 1.002

My doctor says that the standard range is .320 to 5.500, so I am

definitely on the lower end. Hyper-thyroid, I believe.

I'm still feeling extremely fatigued, low-energy, and brain foggy.

Boo hoo!

~Krista

>

> Krista ~

>

> What are the numbers of your test

> results they are saying are normal?

> They may not be normal for you ! !

> Get your labs and post them so we

> can check them out for you.

> Lots of experts here on that subject !

>

> Hugs Dede

>

>

> **************

> Get the scoop on last night's hottest shows and the

> live music scene in your area - Check out TourTracker.com!

>

> (http://www.tourtracker.com?NCID=aolmus00050000000112)

>

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Sorry, that last post stuck all the numbers together, here they are again:

7/14/05 0.719

3/17/07 0.934

4/13/07 0.644

8/31/07 1.058

3/26/08 1.687

7/8/08 1.002

>

>

> My doctor says that the standard range is .320 to 5.500, so I am

> definitely on the lower end. Hyper-thyroid, I believe.

> I'm still feeling extremely fatigued, low-energy, and brain foggy.

>

> Boo hoo!

> ~Krista

>

>

>

> >

> > Krista ~

> >

> > What are the numbers of your test

> > results they are saying are normal?

> > They may not be normal for you ! !

> > Get your labs and post them so we

> > can check them out for you.

> > Lots of experts here on that subject !

> >

> > Hugs Dede

> >

> >

> > **************

> > Get the scoop on last night's hottest shows and the

> > live music scene in your area - Check out TourTracker.com!

> >

> > (http://www.tourtracker.com?NCID=aolmus00050000000112)

> >

>

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Lynn,

DHEA is available in most health food stores and online in different

strengths. Start low.

Patty

> > >

> > > Just wanted to let you all know that I am feeling great. I

can't

> > believe the difference hormones make. Night and day. Three weeks

in

> > and already I have more energy, am sleeping better, my mood is

> better,

> > no more muscle aches, my brain fog is all but disappeared, my

> > sugar/carb cravings are gone. My libido is back with a vengeance,

> ooh

> > la la.

> > >

> > > I'm using 5 mg/day DHEA, 30 mg/day Armour thyroid, and natural

> > estrogen and progesterone creams 2 x/day.

> > >

> > > There's hope. Don't give up! If I can feel this good I'm sure

> others

> > can too.

> > >

> > > Bindi

> > >

> >

>

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Krista,

These TSH numbers are entirely normal.

How about thyroid antibodies? Were those all tested? And Free T3?

How about other hormones? Cortisol, sex hormones?

You could still have hormonal imbalances that aren't huge, but enough

to keep you feeling icky.

Patty

> >

> > Krista ~

> >

> > What are the numbers of your test

> > results they are saying are normal?

> > They may not be normal for you ! !

> > Get your labs and post them so we

> > can check them out for you.

> > Lots of experts here on that subject !

> >

> > Hugs Dede

> >

> >

> > **************

> > Get the scoop on last night's hottest shows and the

> > live music scene in your area - Check out TourTracker.com!

> >

> > (http://www.tourtracker.com?NCID=aolmus00050000000112)

> >

>

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Hi Rogene- Oh yes, I've been in on a lot of adrenal conversations.

I've been with you guys for nearly a year now! Can you believe it? My

how times flies (when you're having a good time...NOT!..hahaha!)

My ND has me on something for adrenal support, but I don't feel like

it is doing anything for me. Either it's not doing the trick, or

adrenals just aren't my problem. Perhaps, I just need to bite the

bullet and go see an endocrinologist. Agh! I was hoping I'd get my

energy back by now, but nope!

~Krista

>

> Krista . . .

>

> Were you with us when we were discussing adrenal function? . . . You

might want to get that checked. I think Patty has a lot of adrenal

info in the archives.

>

> Rogene

>

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Ah Dede- You're so sweet for posting all of that for me. Luckily, I

was a pre-nursing student, so I already know a lot about the human

body. I'm no pro....but at least nothing sounds totally foreign to me!

LOL!

Yes, my doc has checked my T3 and T4, and my antibodies...they all

come back normal! Everything has come back normal...and trust

me...I've had at least 100 blood tests done over the past 15 months to

try and figure out what is going on. My doctor just has no clue! I

think my next step is to see the endo and do a thorough check of the

hormones. She (my doctor) also wants me to see a neurologist...I'm not

sure why though. I'm just so tired of having no energy all the time,

I'm ready for some answers and solutions!

~Krista

>

> Krista ~

>

> Thyrotropin, TSH (Thyroid-Stimulating Hormone)

>

>

> > Test Overview

> >

> > A thyroid-stimulating hormone (TSH) blood test is used to check

for thyroid

> > gland problems. TSH is produced when the hypothalamus releases a

substance

> > called thyrotropin-releasing hormone (TRH). TRH then triggers the

pituitary

> > gland to release TSH. See illustrations of the thyroid gland and

the pituitary

> > gland.

> >

> > TSH causes the thyroid gland to make two hormones:

triiodothyronine (T3) and

> > thyroxine (T4). T3 and T4 help control your body's metabolism.

> >

> > Triiodothyronine (T3) and thyroxine (T4) are needed for normal

growth of the

> > brain, especially during the first 3 years of life. A baby whose

thyroid

> > gland does not make enough thyroid hormone (congenital

hypothyroidism) may, in

> > severe cases, be mentally retarded. Older children also need

thyroid hormones

> > to grow and develop normally.

> >

> > This test may be done at the same time as tests to measure T3 and T4.

> >

> >

> > Why It Is Done

> >

> > A test for thyroid-stimulating hormone (TSH) is done to:

> > Find out whether the thyroid gland is working properly.

> > An underactive thyroid gland (hypothyroidism) can cause symptoms

such as

> > weight gain, tiredness, dry skin, constipation, a feeling of being

too cold, or

> > frequent menstrual periods.

> > An overactive thyroid (hyperthyroidism) can cause symptoms such as

weight

> > loss, rapid heart rate, nervousness, diarrhea, a feeling of being

too hot, or

> > irregular menstrual periods.

> > Find the cause of an underactive thyroid gland (hypothyroidism).

TSH levels

> > can help determine whether hypothyroidism is due to a damaged

thyroid gland

> > or some other cause (such as a problem with the pituitary gland or

the

> > hypothalamus).

> > Keep track of treatment with thyroid replacement medicine for

people who

> > have hypothyroidism.

> > Keep track of thyroid gland function in people who are being

treated for

> > hyperthyroidism. This treatment may include antithyroid medicine,

surgery, or

> > radiation therapy.

> > Double-check the diagnosis of an underactive thyroid gland in a

newborn

> > (congenital hypothyroidism).

>

> > Results

> >

> > A thyroid-stimulating hormone (TSH) blood test is used to check

for thyroid

> > gland problems. The normal ranges for the results of this test may

vary from

> > laboratory to laboratory. Results are usually available within 2

to 3 days.

> > Thyroid-stimulating hormone (TSH)Adults:0.4†" 4.5mIU/L or 0.4†" 4.5

mU/L (SI

> > units)

> > Babies:3†" 18 mIU/L or 3†" 18 mU/L (SI units)

> > High valuesHigh TSH levels may be caused by:

> > An underactive thyroid (hypothyroidism). Hashimoto's thyroiditis

is the most

> > common cause of primary hypothyroidism.

> > A pituitary gland tumor that is making too much TSH. This is uncommon.

> > Not taking enough thyroid hormone medicine for treatment of an

underactive

> > thyroid gland.Low valuesLow TSH levels may be caused by:

> > An overactive thyroid gland (hyperthyroidism). Causes of

hyperthyroidism

> > include Graves' disease, a type of goiter (toxic multinodular

goiter), or a

> > noncancerous (benign) tumor called a toxic nodule.

> > Damage to the pituitary gland that prevents it from making TSH

(secondary

> > hypothyroidism).

> > Taking too much thyroid medicine for treatment of an underactive

thyroid

> > gland.

>

>

> > What Affects the Test

> >

> > Reasons you may not be able to have the test or why the results

may not be

> > helpful include:

> > Taking medicine, such as corticosteroids, levodopa, heparin,

dopamine,

> > lithium (such as Carbolith, Duralith, or Lithane), methimazole

(Tapazole), and

> > propylthiouracil.

> > Having had a recent X-ray with iodine dye or test using radioactive

> > materials.

> > Having severe stress or a long-term (chronic) illness.

> > Pregnancy during the first trimester.

>

>

> > What To Think About

> >

> >

> > The thyroid-stimulating hormone (TSH) test is the best screening

test for

> conditions that can affect the thyroid gland.

> The results of a TSH test should be considered along with the

results of

> thyroid hormone tests, especially thyroxine (T4) results. For more

information

> about T3 and T4 testing, see the medical test Thyroid Hormone Tests.

> Another test that measures TSH levels in the blood is called the

> thyrotropin-releasing hormone (TRH) challenge test. TSH blood levels

are measured before

> and after an injection of TRH. Normally the injection causes the

pituitary

> gland to release TSH. TSH levels that do not rise after the

injection can indicate

> the presence of conditions such as a damaged pituitary gland (secondary

> hypothyroidism), Graves' disease, or any condition that causes an

overactive

> thyroid gland (hyperthyroidism).

> The upper value of the normal TSH range for adults is 4.5 mIU/L or

4.5 mU/L

> (SI units).

>

> Have you done the other tests the T3 N T4 ?

> and the thyroid antibody tests?

> What about the cortisol testing thru canary?

> where they test you 4 times during the day ?

> and your saliva thyroid and female hormones?

> It is about 150 bucks and well worth the info.

>

> I will keep thinking and looking up stuff......

> Loveya ! Dede

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> **************

> Get the scoop on last night's hottest shows and the live music

> scene in your area - Check out TourTracker.com!

>

> (http://www.tourtracker.com?NCID=aolmus00050000000112)

>

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Patty- Yep, totally normal! My doc keeps checking them because my

symptoms seem so thyroid related! Yes, we've checked the T3, T4 and

antibodies too....all normal! I think you are right, might be time to

see the endo and get the cortisol and sex hormones checked. I'm sure

they'll all be normal! They just can't seem to find a thing wrong with

me to explain my extreme fatigue, low energy, brain fog, etc. My doc

is now talking chronic fatigue syndrome, but I know that's no

diagnosis...there HAS to be a reason!

My father in law (the chiropractor) has CFS, and he says he's been

checking his ph levels, and getting his levels within the correct

limits and he is feeling better. So, I just ordered some test strips,

so that I can check mine and see where I'm at. I'm open to any and all

suggestions for things I can try at this point!

~Krista

> > >

> > > Krista ~

> > >

> > > What are the numbers of your test

> > > results they are saying are normal?

> > > They may not be normal for you ! !

> > > Get your labs and post them so we

> > > can check them out for you.

> > > Lots of experts here on that subject !

> > >

> > > Hugs Dede

> > >

> > >

> > > **************

> > > Get the scoop on last night's hottest shows and the

> > > live music scene in your area - Check out TourTracker.com!

> > >

> > > (http://www.tourtracker.com?NCID=aolmus00050000000112)

> > >

> >

>

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Krista,

It took me a very long time to have any energy again...well over 2

years and even then it was not a full dose of energy. That didn't

happen until about 4 years after explant.

Give your adrenals time to recover. It definitely takes years, not

months.

There could be other issues that need addressing as well, but

sometimes it is just a matter of patience as your body does what it

does in the effort to get back to health. But don't leave any stone

unturned! I would not put alot of stock in what an endocrinologist

says, however. They usually look at the numbers and categorize you

based on those alone, and you will be no better off.

But a good one, or a naturopathic doctor will listen to you, take

stock of your symptoms and be willing to experiment with various

hormones to find the missing puzzle piece, regardless of what the

numbers appear to be saying. Those numbers are guidelines only, and

should not be treated as set in stone. Sometimes the answers to

feeling better are surprising.

Patty

> >

> > Krista . . .

> >

> > Were you with us when we were discussing adrenal function? . . .

You

> might want to get that checked. I think Patty has a lot of adrenal

> info in the archives.

> >

> > Rogene

> >

>

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Krista,

It sounds like oxygen is not getting into the cells for some reason.

I'm glad you have a knowledgeable father-in-law! That's awesome.

Did you see that article I recently posted about the father who got

his 15 year old daughter's CFS figured out? He discusses the oxygen

issue and how they treated it (lots of detoxing, as you would

suspect.)

If you didn't see it, I'll post it again. I thought it was very

enlightening.

Patty

> > > >

> > > > Krista ~

> > > >

> > > > What are the numbers of your test

> > > > results they are saying are normal?

> > > > They may not be normal for you ! !

> > > > Get your labs and post them so we

> > > > can check them out for you.

> > > > Lots of experts here on that subject !

> > > >

> > > > Hugs Dede

> > > >

> > > >

> > > > **************

> > > > Get the scoop on last night's hottest shows and the

> > > > live music scene in your area - Check out TourTracker.com!

> > > >

> > > > (http://www.tourtracker.com?NCID=aolmus00050000000112)

> > > >

> > >

> >

>

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Here's that article that discusses oxidative molecular injury and treatments this man found helpful for his daughter. This is an excerpt. You can find the whole article at the link.

Patty

http://www.cfidsinsights.com/cfidlk00.htm

Dr. Ali's approach to treating my daughter's CFIDS is holistic, aimed at supporting the body's own healing dynamics, both systemically and right down to a cellular level . He calls his practice of medicine Clinical Ecology and also refers to it as Molecular Medicine. It evolved from his orthodox allopathic training and career in pathology and also in surgery; then in allergy combining with study of immunology , nutrition and interests in alternative/complementary medicine.

This is a syndrome not a specific disease. With a scientific understanding of the human body as a biological ecosystem. he first asks, "How many ways can I support, what things can I do to restore this ecosystem to its natural state of balance." Then he does them all. And there's a lot that must be done: identify, eliminate and treat as needed all sources of oxidative molecular injury such as viruses, bacteria, chemical toxins, food allergies, airborne allergies, mold and fungus, and physical emotional and mental stress. Restore the bowel ecosystem which entails use of natural methods such as herbals to weed out harmful bacteria. Reduce candida and other yeast overgrowths. Identify and treat any parasites. Re-cultivate healthy gut flora (the normal , necessary bacterial colonies of a healthy digestive system). Help cells to repair their internal environment by giving them a supportive external environment. This facilitates membrane channeling functions. It is accomplished with protocols of intravenous and intramuscular nutrients and antioxidants initially and oral supplementation later on. Note the word "supplementation." Of great importance are correct dietary choices, eliminations, and modifications. The good clinical ecologist provides this guidance or has a nutritionist on staff who is experienced with diet and CFIDS. A good dietitian or nutritionist without this experience will be drawing on the knowledge of diet in healthy people with the standard food pyramid and can hinder the reversal process. (There's that "loop" again.) Understand also that high dose nutrient I.V. and I.M. used by clinical ecologists are not mainly intended to treat vitamin deficiencies, although membrane damaged cells are magnesium and potassium depleted and sodium toxic. The intent is to boost or kick-start enzymatic pathways and promote the internal/external cellular exchanges that restore homeostasis. A little "expensive urine" is well worth the results. That such heroic intervention is called for is evident. The body has long been trying but has been unable to reverse the oxidative damage unassisted.

This is not a do-it-yourself project. Many PWCs have tried nutritional supplements without apparent benefit. The use of oral vitamins and antioxidants alone even in high doses is not enough to restore cellular mitochondrial ATP production and cellular membrane pump functions. The intravenous and intramuscular protocols of carefully synergized components, especially of magnesium sulfate and potassium ( minerals , co-factors for enzyme functions ), taurine (amino acid, antioxidant), vitamin C (water phase antioxidant), vitamins E and A (fat phase antioxidants), vitamin B12, and B complex are key to initiating cellular restoration and reversal of oxidative damage. Then the oral supplements do provide benefit and help sustain the restoration. Get the care of a good clinical ecologist . Dr. Ali teaches I.V. therapy courses for CFS at annual meetings of the American Academy of Otolarngic Allergy and at instruction courses of the American Academy of Environmental Medicine. He has a reputation among other clinical ecologists as having the most scientifically thought out formulas for I.V. protocols. Many use his monograph "Intravenous Nutrient Protocols in Molecular Medicine"9 as a guide to preparing their I.V. solutions It is written for the professional but if you want to know what each nutrient is doing to cells and tissues I would suggest you read it. It has 141 references to the scientific and medical studies that helped him come to such a deep understanding of cellular metabolism.

There are several other clinical ecologists who have had success in reversing Chronic Fatigue Syndrome with these types of therapies. To name a few there are Teitelbaum, M.D.,10 Stoff, M.D.,11 and n Whitaker, M.D.12 In Orange, Connecticut there is Dr. Robban Sicca at The Center for the Healing Arts. In Cambridge, Mass. there is Dr. Asis and his staff at The Marino Center. These are not quacks with mail-order Ph.Ds. They are respected doctors who have the vision and resilience to criticism from peers in the loop to use unorthodox methods because they know that they work! In fact most of the treatments you have read about in the CFIDS Chronicle used by many CFIDS specialists incorporate at least one, some a few and others several of the same alternative strategies that Dr. Ali uses. The main difference is that Ali "puts it all together." He has done his homework and makes use of all the accumulated science. As Teitelbaum, M.D. puts it, " The key to eliminating chronic fatigue is to treat all of the underlying problems simultaneously."

The fast action of an effective drug at a time of crisis is a godsend for urgent intervention of pain. The night was hospitalized I remember how distressed we were and how grateful I was to the doctor who knew what to give her. However, long term use of drugs can and must adversely affect the prognosis. They are all toxic chemicals as noted in the introduction to the "Physician's Desk Reference." Dr. Ali emphasizes the inefficacy of drug treatments for CFIDS with his three Rs: chronic fatigue is Real, chronic fatigue is Reversible, chronic fatigue cannot be Reversed with drugs.. They add to the body's total toxic load and drain enzymatic energies for detoxification from the body's already depleted stores. See Dr. Rigden13 and Dr. Cheney's14 work for explanation of detox processes of gut, liver, brain and blood. Weaning off medication presents a dilemma to the PWC and caregiver / parent. However, as the body responds to the holistic restorative support, reversal begins and the symptoms all begin to improve together and weaning off of the drugs is accomplished quite rapidly. This is a milestone and contributes to a sense of hope, confidence, encouragement and relief. The PWC and parent will know they are looking at the light at the end of the tunnel.

Exercise also has a place in the holistic treatment of CFIDS. It must be gentle, non-aerobic, non goal oriented, patient-controlled types of exercise as simple as stretching or rebounding (effortless, shock-free bouncing on a trampoline). The goal-oriented, "push through the pain," "no pain no gain" approaches used by physical therapists in the loop are wrong. If they would examine the literature9 for the experiences of patients and doctors they would see dozens of accounts all the way back to 1958 of disastrous deterioration of the clinical condition of CFS, M.E., post-polio and post viral syndrome patients caused by these practices. The contribution of physical therapists to the teamwork in the loop is to drive PWCs into relapses. But they won't go to the literature and ignore it if you, the layman, bring it to them. They're the professionals, highly trained and you are the overprotective parent or wimpy hypochondriac patient. Here the patient is on his own and will learn to sense when he is approaching his limit the hard way - by exceeding it and paying for it. It is always better to err on the side of caution. As author Jane Colby 15 says, "It is ironic that some so-called "treatments" of ME--for those who have often been thought of as over-pushing themselves already--consists of encouraging these very people to do just that. What extraordinarily muddled thinking we are capable of."

Another aspect of Dr. Ali's holistic approach is to teach the patient techniques to alleviate worry and stress. He has developed a very simple controlled breathing method, easily taught to patients that allows one to clear the mind and bring some autonomic functions under conscious self regulation. Functions of pulse, blood pressure and temperature are monitored by the patient who is connected to specialized electronic equipment during the training session. This provides visual proof of the regulation and helps the trainee to master the technique quickly. Then the monitors are no longer necessary. It is not designed to make one an overnight yogi . It improves circulation , helps manage and even avert headaches and gives one the ability to do something immediate to cope with and manage symptoms. If it sounds hocus pocus consider that the most conservative, orthodox institution, The Mayo Clinic explains and recommends a similar technique in their "Family Health Book," 1990.

> > > > >> > > > > Krista ~ > > > > > > > > > > What are the numbers of your test > > > > > results they are saying are normal?> > > > > They may not be normal for you ! ! > > > > > Get your labs and post them so we> > > > > can check them out for you.> > > > > Lots of experts here on that subject ! > > > > > > > > > > Hugs Dede> > > > > > > > > > > > > > > **************> > > > > Get the scoop on last night's hottest shows and the > > > > > live music scene in your area - Check out TourTracker.com!> > > > > > > > > > (http://www.tourtracker.com?NCID=aolmus00050000000112)> > > > >> > > >> > >> >>

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Patty- I won't put a lot of stock in what the endo says. That's kinda

why I've been putting off seeing one all this time. Because I've heard

over and over again that they weren't helpful. My ND is on maternity

leave, and I don't want to start up seeing another one, so the MDs at

Kaiser are kinda my only option right now. Luckily my MD is committed

to finding out what is going on, and turning over every stone to

figure it out.

I don't know if this is the same thing, but I've had my oxygen levels

checked from a few different docs, and they always come back at 100%.

I don't know if that is the same thing that you are talking about though.

I will definitely read the article that you posted for me. It's just

so hard to know if this is something that I need to ride out for a few

years, or if it is something that needs to be found, you know what I

mean? I did the waiting for 7 months now (since explant,) with

absolutely no improvement, so I thought it might be time to see if

something more is going on.

~Krista

> > > > >

> > > > > Krista ~

> > > > >

> > > > > What are the numbers of your test

> > > > > results they are saying are normal?

> > > > > They may not be normal for you ! !

> > > > > Get your labs and post them so we

> > > > > can check them out for you.

> > > > > Lots of experts here on that subject !

> > > > >

> > > > > Hugs Dede

> > > > >

> > > > >

> > > > > **************

> > > > > Get the scoop on last night's hottest shows and the

> > > > > live music scene in your area - Check out TourTracker.com!

> > > > >

> > > > > (http://www.tourtracker.com?NCID=aolmus00050000000112)

> > > > >

> > > >

> > >

> >

>

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Krista,

My TSH was low-normal, the T3 was low.

Have you had T4 and T3 tested?

Don't rule out the sex hormones. If they are low it will make you feel cruddy too.

xo

Bindi

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Lynn,

The ZRT panel was $300. It includes both saliva and blood spot testing. (There's a little finger-prick thing included in the test kit. It's not that bad).

xo

Bindi

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Patty- Very interesting article. I just went to Dr. Ali's website and

read more about his theory. I decided to buy his book on chronic

fatigue, to find out more. I found it on half.com for $5.50. I will

let you know what I think once I read it. Thanks for the info!!

~Krista

> > > > > >

> > > > > > Krista ~

> > > > > >

> > > > > > What are the numbers of your test

> > > > > > results they are saying are normal?

> > > > > > They may not be normal for you ! !

> > > > > > Get your labs and post them so we

> > > > > > can check them out for you.

> > > > > > Lots of experts here on that subject !

> > > > > >

> > > > > > Hugs Dede

> > > > > >

> > > > > >

> > > > > > **************

> > > > > > Get the scoop on last night's hottest shows and the

> > > > > > live music scene in your area - Check out TourTracker.com!

> > > > > >

> > > > > > (http://www.tourtracker.com?NCID=aolmus00050000000112)

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Patty And All- I was just reading some more of Dr. Ali's theory on

CFS. And, I found this interesting, this is how he sums up chronic

fatigue:

Chronic Fatigue sufferers are human canaries--unique people who

tolerate poorly the biologic oxidative stressors of the late 20th

century. They are genetically predisposed to injury and their energy

and detoxification enzymes by agents in their internal and external

environments.

Their molecular defenses are damaged by undiagnosed and unmanaged

allergies, chemical sensitivities, environmental pollutants, microbes,

sugar-insulin-adrenaline roller coasters, stress and hostility of sped

up lives. Under their skin, they carry oxidative storms--the Fourth of

July chemistry.

What do you guys think? Are we (the ones who have bad reactions to

implants, vaccines, mercury fillings, cleaning products, cosmetics,

etc.) sick because we were predisposed to having reactions?

Interesting.

~Krista

> > > > > >

> > > > > > Krista ~

> > > > > >

> > > > > > What are the numbers of your test

> > > > > > results they are saying are normal?

> > > > > > They may not be normal for you ! !

> > > > > > Get your labs and post them so we

> > > > > > can check them out for you.

> > > > > > Lots of experts here on that subject !

> > > > > >

> > > > > > Hugs Dede

> > > > > >

> > > > > >

> > > > > > **************

> > > > > > Get the scoop on last night's hottest shows and the

> > > > > > live music scene in your area - Check out TourTracker.com!

> > > > > >

> > > > > > (http://www.tourtracker.com?NCID=aolmus00050000000112)

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Krista--

Dr. Ali's theory sits well with me. I think some of us may very well be genetically predisposed to environmental sensitivities. I am one of three people in my family who have suffered symptoms of chronic fatigue-- both my uncle and my cousin on my mom's side have it-- my uncle seems to have a reaction to some kind of chemical found in plastic, and my cousin (who is not his daughter) fell ill after being exposed to parasites while living in India.

My cousin recovered most of her health after 8 YEARS of intensive ayurvedic therapies. She is now an ayurvedic practioner who runs an ayurvedic clinic in India for women. You can check it out here if you are curious: http://www.rasaayurveda.com/index.html.

My uncle has only become more ill. Though he eats a pretty good diet, he eschews alternative therapies, and sadly he has weakened over time.

Canaries Unite!

xo

Bindi

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Bindi- Dr. Ali's theory sits well with me too. I'm usually skeptical

of all these theories, but this one actually makes sense to me. I know

I'm a super sensitive person. I'm not sure if it runs in my family or

not, it is possible and I'm just not aware.

I just bought Dr.Ali's book on chronic fatigue, so I will let you know

what I think once I read it. I'm hoping to find some answers! I'm all

about alternative therapies. The MDs these days just don't seem to

understand that there are other problems with the human body other

then the list of diseases they were taught in their text books. It is

so frustrating!

~Krista

>

> Krista--

> Dr. Ali's theory sits well with me. I think some of us may very well

be genetically predisposed to environmental sensitivities. I am one of

three people in my family who have suffered symptoms of chronic

fatigue-- both my uncle and my cousin on my mom's side have it-- my

uncle seems to have a reaction to some kind of chemical found in

plastic, and my cousin (who is not his daughter) fell ill after being

exposed to parasites while living in India.

>

> My cousin recovered most of her health after 8 YEARS of intensive

ayurvedic therapies. She is now an ayurvedic practioner who runs an

ayurvedic clinic in India for women. You can check it out here if you

are curious: http://www.rasaayurveda.com/index.html.

>

> My uncle has only become more ill. Though he eats a pretty good

diet, he eschews alternative therapies, and sadly he has weakened over

time.

>

> Canaries Unite!

>

> xo

> Bindi

>

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Yeah, you may be right, Rogene, about lasting genetic damage.

I remember that article you mentioned in Discover Magazine about a

terrible famine suffered by a village in Sweden that had health

implications for their descendents several generations later.

Bindi

> From: saxony01 <saxony01@...>

> Subject: Re: Re: Feelin' fine

>

> Date: Tuesday, July 15, 2008, 10:48 PM

>

>

>

>

>

>

>

>

>

>

>

> I became chemically sensitive shortly after getting

implants . .. I didn't connect it to my implants until a couple years

after my implants were gone when I realized I could go almost

anywhere.

>

> Still, a heavy exposure could get me. . . Recently I stripped and

stained some deck furniture. I was amazed to find that I didn't react

at all to any of the chemicals I was using. . . I'm convinced that

between FAR infared sauna and ionic foot baths, I've dumped enough

toxins to do well now. . .

>

> When I had so much trouble, the smells were magnified greatly . . .

Now they aren't overwhelming at all.

>

> Check this week's TIME magazine . . . with Mandela on the

cover. . . They have an article on plastics -

> includes some of those found in breast implants!

>

> It may not be just genetics . . . It may be second/third/ fourth

generation exposure to chemicals that get passed along to future

generations . . .  Sickening when one considers all the chemicals

being dumped in the environment today.

>

> Love,

>

> Rogene

>

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