Re: Patty. et al-- Bindi's lastest hormone panel-- To PH, and A SHIFT

[Guest guest]

PH,

Sorry I didn't respond until now. You wouldn't believe it, but I had

written a very LONG post to you yesterday, and then just before I

clicked " send " my computer crashed and I lost it all. ARGH.

Some questions came up for me while reading your post. I'll try to

remember what they were!

I'm sorry your morning was so awful. Those kinds of mornings suck.

You feel like you are in prison, just waiting to get out. When it

gets that bad, it's a waiting game, and time moves real slow (and yet

your life is racing by).

Did you read what I wrote to , 's mom, about my candida

experience? I copied you on that. Have you already tried caprylic

acid? I have no candida-type itching, rashes or toenail fungus

anymore. I don't know if it is due to the caprylic acid or that my

immune system is getting stronger or what.

My current health practitioner told me she believed implants cause

the body to go into a heightened defense mode(she gave it a

scientific name, but I forget what it is), beginning with an extreme

immune reponse (thus the high cortisol, heart palpitations,

sensitivity to stimuli, vertigo, nystagmus, etc, etc) at the

beginning of the illness that eventually gives way to a sluggish

immune system and poor endocrine function, with all of their related

problems-- chronic low energy, muscle aches, susceptibility to

infections, low metabolism, low thyroid, low sex hormones, low

cortisol, basically low everything. I'm on board with this theory, at

least as it relates to me. Melmed promotes this theory as well.

As I said before I'd been having a set-back in recent months--

extremely tired, achey muscles, bouts of vertigo, etc. I started on

hormones and definitely have been going through a transition period,

but now, about six days in, I am starting to feel a positive shift. I

still feel a little queasy, and my vertigo is not gone yet, but I am

also feeling less tired and weak, and more clear-headed.It's weird--

I feel crappy and good at the same time, does that make sense? I

haven't felt this much better since I got sick 3 1/2 years ago. Cross

your fingers it ain't a placebo or coincidence or something.

Our hormone test results are so similar. Are you opposed to and/or

waiting to take hormones? Which ones are you taking and how much? PH,

unless your ob/gyn is open to the idea of hormone balancing (and many

doctors are NOT, especially with the current estrogen scare), you

might have to find someone else in your area who is. If there isn't

anyone (what city/state do you live in?)I have a friend who went

through www.womentowomen.com and she has had good luck with them. You

test your hormones and send them the results, they recommend

treatment,including bio-identical hormones, etc.

I've also started taking 1000 mg resveratrol, which I take in powder

form. I haven't been taking it for very long. It's pricey (about $2 a

a day) and I am kind of using myself as a lab rat, but in rat

studies, resveratrol markedly helped prevent most degenerative

diseases, including cancer, heart disease, stroke, etc, as well as

increasing muscle strength and energy level. It's a substance found

in red wine. You can read more about it on wikipedia. If you are

interested in taking it, email me and I will forward the source for

the powder. Most resveratrol supplements have very low levels of

actual resveratrol and end being a a waste of money.

That's interesting about your MSH test. I don't know a whole lot

about that. I have not had melasma, in fact I have had the opposite,

beginning since age 26 ( I am 45). I started developing patches of

skin, mostly on my head, where there is no melanin (this is called

vitiligo). This makes the hairs that grow from that skin turn white.

I started with one white streak growing in the midst of my dark hair,

kind of like Cruella de Ville. Now about 75% of my hair is white, in

streaks all over. People think I pay big bucks to have it bleached. I

was told by a dermatologist vitiligo is an auto-immune disorder. I

had it before I had implants.

I don't have much to say about Kolb's explanations/recommendations. I

know she has helped many women. I also think she too quickly applies

the fungal theory and prescribes hardcore anti-fungals that are hard

on the liver. And I was pretty appalled to read the post by the woman

who became sick recently after receiving implants from-yes, you

guessed it!-- Dr. Kolb. Enuf said.

PH, did you mean you are one and a half years post explant? Don't

give up! You'll get to the bottom of this.

xoxo

Bindi

> >

> > PH,

> > That weird vision and foggy head stuff is the worst. Give me full

body

> > pain any day rather than have to tolerate that stuff. Blech.

Lately

> > I've been having it too, but I'm hoping it's just a temporary

setback

> > or side effects from the hormones.

> > Remind me, how did your hormone panel come out? And what have you

been

> > doing, healthwise? I apologize if I don't remember, I don't read

as

> > many messages as I would like, I've been trying to stay focused

on my

> > writing.

> > xoxox

> > Bindi

> >

>

[Guest guest]

Bindi,

You describe my feelings to a T...prison bound the majority of the

time and when I do feel " better " (if you can call it that), mild

nausea and anxiety accompanies it. So I relate to the feeling well

and like crap at the same time.

No, I didn't read your candida experience you wrote to . I'll

have to search it. I took caprylic acid twice (2 wks each time, 1600

mg daily).

I don't doubt your practitioner's theory. It seems very plausible

and that might help me understand why those on the implant, mold and

mercury forums all have similar symptoms...all three toxins could

contribute to shaking up the immune response.

How wonderful you are noticing a shift with the hormones. I pray

that this is exactly what you need to be in balance again.

No, I'm not opposed to taking hormones, but I'm nervous to do so

given all the previous posts I've read...seems there's a lot of

tweaking and I haven't found a practitioner that seems confident in

what I need. I have seriously thought about using

www.womentowomen.com because they seem more knowledgeable than my

endo and OB/gyn.

Yes, please send the info on the reservatrol. I have a family

history of Alzheimer's and I've read that's good in preventing it as

well.

That's so interesting about the vitilligo. Shortly after I swallowed

the mercury filling, I began getting small white patches

(hypopigmentation) on my forearms. MSH is somehow tied in with

melanin, immune system and neurotoxins but I don't understand it

entirely. I've read that those w/ low MSH have difficulty tanning

(which I do now), yet when I think of my pastey-white nephews, they

seem to have strong immune systems and very sharp brains!

As far as Kolb applying the fungal theory too readily...you may be

right. Yet, most of the women on here have digestive issues that are

consistent with what I've read about candida. I know I've been

tested repeatedly by various doctors through kineseology and they all

say I have candida. I don't know how vaild muscle testing is

though! As far as the woman who became ill after implant, I don't

think that's Kolb's fault. I think any time anyone goes into

surgery, they are taking a huge risk because one never knows how the

immune system will respond. Surgery is listed as a big immune

response trigger and I think even the best docs may have patients who

don't respond favorably. It's Russian Roulette.

Thanks for all your advice and encouragement, Bindi!! I really hope

these hormones do the trick for you. Keep us posted on your progress.

Love, Ph

> > >

> > > PH,

> > > That weird vision and foggy head stuff is the worst. Give me

full

> body

> > > pain any day rather than have to tolerate that stuff. Blech.

> Lately

> > > I've been having it too, but I'm hoping it's just a temporary

> setback

> > > or side effects from the hormones.

> > > Remind me, how did your hormone panel come out? And what have

you

> been

> > > doing, healthwise? I apologize if I don't remember, I don't

read

> as

> > > many messages as I would like, I've been trying to stay focused

> on my

> > > writing.

> > > xoxox

> > > Bindi

> > >

> >

>

[Guest guest]

PH,

I copied you on the email I sent to , but maybe you didn't

receive it. I am highlighting what I wrote her about candida here:

" How do you know that what you have is candida? I am not totally on

the candida bandwagon, though I don't discount it either. I just

think the diagnosis is given too liberally. Lots of things can give

people symptoms that match the symptoms of candida, but may not be

candida-- a hormone imbalance is an example. The drugs used to treat

fungal diseases are very harsh on the liver, and I believe some

doctors give them too casually.

I say this as someone who was diagnosed last winter with a " vaginal

overgrowth of candida " by my doctor, due to test results after a pap.

At the time I had a yeasty rash on my privates that would not go

away, no matter what I tried, over-the counter or prescription. I

also had toenail fungus on all my toes, and extremely sensitive skin--

I would break out in hives over almost anything. I had repeated

vaginal yeast infections. I took caprylic acid for six weeks. I used

an herbal ointment on the yeasty rash. I was also taking the adrenal

herbs I mentioned above. All of those " candida " symptoms are gone

now. I have not been retested for vaginal candida, but I am going to

have it done at my next appointment, to see what the results are. I

expect they will be different.

I still have bouts of vertigo, and mild nystagmus from time to time.

I am not convinced they are from candida, but I am not convinced of

anything else either. I do know that neurological damage can cause

vertigo, nystagmus, tinnitus, etc. "

Anyway, PH, at the time I was also taking the adrenal herbs--

ashwaganda, rhodiola rosea, tulsi basil, maca... maybe they helped. I

am going to start up on them again. I've been lazy because I buy the

bulk powders and then cap them myself, but it's tedious so I

procrastinate.

I don't want to be a Kolb-basher. I agree that surgery can induce an

immune response (it has also been proven recently to cause cognitive

decline, at least in older people:

http://www.dukemednews.org/news/article.php?id=8318), but I think

having implants put in is way more dangerous to one's health than

your average surgery. When it comes to implant surgey, I think Kolb

should Just Say No.

That's interesting about the similar toxicity issues amongst the

different forums. Have you looked into MCP--modified citrus pectin--

for chelating heavy metals?

The place I purchased the resveratrol is

http://vitaspace.com/antioxidants.htm. I buy the 98% trans-

resveratrol. The 50% has a naturally-occuring substance in it that

can make some people queasy. The 98% does not. Though it is not

listed, they will sell you 50 grams for $100. Just email them-- they

are very nice. It's cheaper to buy it in larger quantities, but if

you just want to try it out, this works well. 1 gram/day is a good

therapeutic dose. The resveratrol scientists take 1 or more per day,

but I don't want to get too crazy. It's tricky stuff to measure out,

but 3/4 teaspoon is about 960 mg. It tastes bitter, so you have to

mix it with something or cap it.I'm still trying to figure out the

best way to use this expensive stuff

I know what you mean about hormone-tweaking worries. The womentowomen

site might be the way to go for you. If I start feeling fabulous, you

better get on the stick and do the hormones, PH, because ours are so

close. Obviously I'm not an expert, but I don't think they will get

better by themselves.

Tell me, how many months post explant are you?

Hope today is a better day for you!

xo

Bindi

> > > >

> > > > PH,

> > > > That weird vision and foggy head stuff is the worst. Give me

> full

> > body

> > > > pain any day rather than have to tolerate that stuff. Blech.

> > Lately

> > > > I've been having it too, but I'm hoping it's just a temporary

> > setback

> > > > or side effects from the hormones.

> > > > Remind me, how did your hormone panel come out? And what have

> you

> > been

> > > > doing, healthwise? I apologize if I don't remember, I don't

> read

> > as

> > > > many messages as I would like, I've been trying to stay

focused

> > on my

> > > > writing.

> > > > xoxox

> > > > Bindi

> > > >

> > >

> > > --- In , " freebindi " <bindi@>

wrote:

> > > >

> > > > PH,

> > > > That weird vision and foggy head stuff is the worst. Give me

> full

> > body

> > > > pain any day rather than have to tolerate that stuff. Blech.

> > Lately

> > > > I've been having it too, but I'm hoping it's just a temporary

> > setback

> > > > or side effects from the hormones.

> > > > Remind me, how did your hormone panel come out? And what have

> you

> > been

> > > > doing, healthwise? I apologize if I don't remember, I don't

> read

> > as

> > > > many messages as I would like, I've been trying to stay

focused

> > on my

> > > > writing.

> > > > xoxox

> > > > Bindi

> > > >

> > >

> >

>

[Guest guest]

Hi Bindi,

Thanks for the info. I'm one year and almost two months post explant

so I know part of me just needs to be patient, yet it gets old having

every task seem so difficult. Even just the simple task of looking

in the fridge is not easy when you have neurotoxins!

Thanks for copying me on your letter to . I agree that hormone

imbalances can mimic candida but I don't think hormone imbalances

occur without some trigger. Whether that's implants, candida or

other toxins or all three...who knows. I guess I am not as leary of

the candida theory because my gut has bothered me for six years.

Every GI told me it wasn't candida because they don't believe in it.

I tested positive for bacterial overgrowth but they couldn't

determine specifically which kind but gave me antibiotics. I became

100 times worse. When Kolb said right away that it was yeast and I

needed Nystatin (an antifungal) and I took it, within two days my

bloating had diminished significantly. By taking natural antifungals

and probiotics, my gut is in good shape again.

Also, in working with autistic children who have heavy metal

poisoning, all in my mercury support group have very high fungal

markers in their urine. Mine was high as well and based on what I've

read with metal toxicity, metals go into the cell, robbing it of

oxygens...mitochondrial disorder results and the body can no longer

fight off the everyday fungi/bacteria/viruses it could before the

insult (vaccines, implants, surgery, etc). This might be why you see

many sick implanted women with EBV, CMV, Lyme and other mycoplasmas.

I know it sounds crazy to make parallels between implanted women and

autistic kids, yet for the implanted women who are experiencing

neurotoxins, I'm realizing much of it is similar in symptomology as

well as in treatment. The kids I've seen who recover are those who

chelate the metals, take antifungals and eat a paleolthic diet as

well as gentle detox. Not all of these kids have mercury poisoning.

Many have different high levels of heavy metals in the body. Some

don't have a high hair analysis because the body doesn't excrete the

metals. Yet, when they chelate, metals and fungi are pouring out in

excessive amounts in their urine.

Anyway, my theory is that maybe the metal catalysts in implants are

the precursor for fungal overgrowth. My doc in Chicago said that if

one has candida problems that take weeks or longer to resolve, there

is always a deeper underlying problem and that it's usually

metals.

Also, in reading about metal toxicity, it's the synergistic effect of

more than one metal that furthers the toxicity. I'm not exactly sure

what the specific metal catalysts are in implants, but if there's

more than one, that immediately sets the stage for potential probs.

Sorry to get off on a tangent...I'm just thinking out loud!

Thanks for the MCP info...I hadn't heard of it and will definintely

look into it. I'm going to check out the Resevatrol too as I want my

brain back!! I always appreciate what you have to contribute because

I learn something new every time. We will overcome this, Bindi!

Please keep us posted on your hormone experience. That will be my

next step if it works for you!

Take care. Love,

PH

> > > > >

> > > > > PH,

> > > > > That weird vision and foggy head stuff is the worst. Give

me

> > full

> > > body

> > > > > pain any day rather than have to tolerate that stuff.

Blech.

> > > Lately

> > > > > I've been having it too, but I'm hoping it's just a

temporary

> > > setback

> > > > > or side effects from the hormones.

> > > > > Remind me, how did your hormone panel come out? And what

have

> > you

> > > been

> > > > > doing, healthwise? I apologize if I don't remember, I don't

> > read

> > > as

> > > > > many messages as I would like, I've been trying to stay

> focused

> > > on my

> > > > > writing.

> > > > > xoxox

> > > > > Bindi

> > > > >

> > > >

> > >

> >

>

[Guest guest]

PH,

Your letter amazes me....you have such a skill for investigating all

of the angles that may be presented in our circumstances, and trying

to figure out what is going on. I agree that it is okay to make

parallels between our situation and that of autistic kids (as well as

other conditions) because in many ways we have suffered similarly.

There are so many overlapping symptoms in autoimmune and autistic

conditions. If something has been found to work for them, I am all

for seeing if it will work for us, and if it DOES, then we are that

much closer to understanding what might be going on in our bodies.

What amazes me (and happened to me too) is that this brain fog can

make our lives so miserable, yet thank God we still have the

capability of reading and making sense of some of this complicated

information! There was a time when I first got sick that even

reading was difficult, and I was so afraid because I almost couldn't

comprehend what I was reading and it scared the hell out of me. It

literally felt like I was going out of my mind. But I was still

coherent enough to be able to observe my own behavior and go " Wow,

that is so weird! What is wrong with me?!! " While it was laborious

to think through conversations with my kids and try to find the right

words to speak, my ability to comprehend a book was still there,

thank God. I would have been a real basket case if I had completely

lost my ability to analyze, read and learn.

You're making very valuable contributions to this group, and I am so

thankful! I know it is a difficult time in your life and you want to

be healed...I went through that. But you will eventually get

there...as I did.

At this same time in your healing time frame, I was still very much

struggling and felt REALLY poisoned. I mean totally poisoned. I had

NO energy. I remember the summer of 1999 with clarity because I

really wanted to die. (I was explanted in Feb 1998.) It got to the

point that I was beside myself with knowing what to do next. That is

when I decided to go back to the fasting I had done at the beginning,

and started seeing the toxic rash on my breasts again. I was so

shocked. This was over 18 months post explant. I did a serious of

water only fasts, and by the third day, my breasts were covered in a

red rash that did not itch or hurt...it was just there. That was

when I knew I still had " crap " in my body that needed to come out. It

was right there in living color on my breasts. I fasted as many

times as I needed to, until I could go on a fast and not see the rash

appear. It took at least 4 or 5 such fasts. After that is when my

healing plateau shifted and things started to improve.

I really have no idea if fasting is a better detox than other forms,

but what I do know is that your body will use up whatever excess junk

is in you for fuel, and your eliminative organs will do a clean sweep

without having digestive functions getting in the way. It worked for

me. I was not overweight at that time, either. I was about 125 lbs

on my 5'7 " frame.

Fasting is not only a cheap therapy, but it saves money! (I fasted

without supervision, having already been through several fasts with

supervision...so I only recommend fasting with supervision if you are

unfamiliar with this therapy ladies!)

PH, I just want you to know that I've been down this road with you.

It's hard. That's all there is to it. But it's not forever, and I

believe totally that you are on your way to being healed. You just

need to continue to prompt your body to get rid of the junk that may

be lurking deep in the tissues. I only say that based on my

experience...I have no idea if that is what will work for everyone,

but I truly want to see you and all of our beautiful, amazing women

get better and start living life again.

I'll be praying for God's guidance for you!

Love,

Patty

> > > > > >

> > > > > > PH,

> > > > > > That weird vision and foggy head stuff is the worst. Give

> me

> > > full

> > > > body

> > > > > > pain any day rather than have to tolerate that stuff.

> Blech.

> > > > Lately

> > > > > > I've been having it too, but I'm hoping it's just a

> temporary

> > > > setback

> > > > > > or side effects from the hormones.

> > > > > > Remind me, how did your hormone panel come out? And what

> have

> > > you

> > > > been

> > > > > > doing, healthwise? I apologize if I don't remember, I

don't

> > > read

> > > > as

> > > > > > many messages as I would like, I've been trying to stay

> > focused

> > > > on my

> > > > > > writing.

> > > > > > xoxox

> > > > > > Bindi

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

For anyone who is curious about that rash on my breasts during a

fast, I have a picture of it in our photos section under the

album " Patty " . That was a typical rash I got after the third day of

water only fasting. It happened over and over again, so I knew I had

to keep fasting until it finally did not show up. That was the fall

and winter of 1999-2000. After those fasts, I started feeling much

better. By March of 2000 I was feeling better enough to go and

testify before the FDA Advisory panel in Washington DC about my

difficult experiences with saline breast implants. In July of 2000 I

started this group so we could find ways together to beat this

illness!

Patty

> > > > > > >

> > > > > > > PH,

> > > > > > > That weird vision and foggy head stuff is the worst.

Give

> > me

> > > > full

> > > > > body

> > > > > > > pain any day rather than have to tolerate that stuff.

> > Blech.

> > > > > Lately

> > > > > > > I've been having it too, but I'm hoping it's just a

> > temporary

> > > > > setback

> > > > > > > or side effects from the hormones.

> > > > > > > Remind me, how did your hormone panel come out? And

what

> > have

> > > > you

> > > > > been

> > > > > > > doing, healthwise? I apologize if I don't remember, I

> don't

> > > > read

> > > > > as

> > > > > > > many messages as I would like, I've been trying to stay

> > > focused

> > > > > on my

> > > > > > > writing.

> > > > > > > xoxox

> > > > > > > Bindi

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Patty,

Thank you so much for your kind words and sharing your own

experience! What you wrote in your second paragraph comforted me

beyond words because I've been so scared that my brain will always

feel this way. You described EXACTLY what I feel like. It's so odd

that I can comprehend (to some degree) an article on mitochondrial

disorder but not be able to remember where the butter is in a store I

visit daily!

I honestly believe God has a plan for me of some type. I had a

business degree but then one day out of the blue decided I was going

to work with autistic kids, not knowing a SINGLE thing about autism.

Years later, I am suffering the exact symptoms as many of them from

none other than mercury poisoning! The coincidences are too huge to

ignore. There's much more to it...more that I want to share w/ you

and will email you personally.

Yes, I definitely intend to fast. I think about it often but don't

know where to fit it in with my FCT and kids. I do better if they're

not here so I should probably try to arrange that this summer. Did

you have much support during your 10 day fasts? I'm just afraid my

kids would witness something horrible as I have days where I barely

know where I am! Thank you for cheering all of us on Patty. We

couldn't do it without you.

Love, PH

> > > > > > >

> > > > > > > PH,

> > > > > > > That weird vision and foggy head stuff is the worst.

Give

> > me

> > > > full

> > > > > body

> > > > > > > pain any day rather than have to tolerate that stuff.

> > Blech.

> > > > > Lately

> > > > > > > I've been having it too, but I'm hoping it's just a

> > temporary

> > > > > setback

> > > > > > > or side effects from the hormones.

> > > > > > > Remind me, how did your hormone panel come out? And

what

> > have

> > > > you

> > > > > been

> > > > > > > doing, healthwise? I apologize if I don't remember, I

> don't

> > > > read

> > > > > as

> > > > > > > many messages as I would like, I've been trying to stay

> > > focused

> > > > > on my

> > > > > > > writing.

> > > > > > > xoxox

> > > > > > > Bindi

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Dear Patty,

I, too, found comfort in your email. Thank you so very much.

I have many of the same symptoms PH has. The weird brain symptoms scare me to death! It is definetely worse when I get too tired.

I worked a long day yesterday and could barely get myself home. I was completely exhausted. My voice was weak and my eyes were very glassy.

I was in tears. I am exhausted today. I did do a coffee enema and feel a little better. I hate that I don't dare make plans the way I used to because I don't know how I will feel at that time. This sucks! I want my life back.

My husband keeps reminding me how far I have come since my explant 4 months ago. It's true.....I have come a long way since then as I felt as though I were going to die. Healing is just so much slower than I would like. It is so inconsistent. I feel like I'm on the roller coaster from hell! I struggle with anxiety because I'm afraid this is how I will feel forever and I even fear I may get worse. It is sooooooo helpful to hear that you felt the same way Patty. You inspire us and give us hope and I thank your for that.

Love,

a

Re: Patty. et al-- Bindi's lastest hormone panel-- To PH, and A SHIFT

Hi Patty,Thank you so much for your kind words and sharing your own experience! What you wrote in your second paragraph comforted me beyond words because I've been so scared that my brain will always feel this way. You described EXACTLY what I feel like. It's so odd that I can comprehend (to some degree) an article on mitochondrial disorder but not be able to remember where the butter is in a store I visit daily!I honestly believe God has a plan for me of some type. I had a business degree but then one day out of the blue decided I was going to work with autistic kids, not knowing a SINGLE thing about autism. Years later, I am suffering the exact symptoms as many of them from none other than mercury poisoning! The coincidences are too huge to ignore. There's much more to it...more that I want to share w/ you and will email you personally.Yes, I definitely intend to fast. I think about

it often but don't know where to fit it in with my FCT and kids. I do better if they're not here so I should probably try to arrange that this summer. Did you have much support during your 10 day fasts? I'm just afraid my kids would witness something horrible as I have days where I barely know where I am! Thank you for cheering all of us on Patty. We couldn't do it without you.Love, PH> > > > > > >> > > > > > > PH,> > > > > > > That weird vision and foggy head stuff is the worst. Give > > me > > > > full > > > >

> body> > > > > > > pain any day rather than have to tolerate that stuff. > > Blech. > > > > > Lately> > > > > > > I've been having it too, but I'm hoping it's just a > > temporary > > > > > setback> > > > > > > or side effects from the hormones.> > > > > > > Remind me, how did your hormone panel come out? And what > > have > > > > you > > > > > been> > > > > > > doing, healthwise? I apologize if I don't remember, I > don't > > > > read > > > > > as> > > > > > > many messages as I would like, I've been trying to stay > > > focused > > > > > on my> > > > > > > writing.> > > > > >

> xoxox> > > > > > > Bindi> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

God Bless you Patty for starting this group. Without you starting this group I would have never found Dr. Brown who saved my life. I am eternally grateful to you.Love Traci"Feeling down? Saddle up." ~Author Unknown From: glory2glory1401 <glory2glory1401@...>Subject:

Re: Patty. et al-- Bindi's lastest hormone panel-- To PH, and A SHIFT Date: Wednesday, July 2, 2008, 11:19 AM

For anyone who is curious about that rash on my breasts during a

fast, I have a picture of it in our photos section under the

album "Patty". That was a typical rash I got after the third day of

water only fasting. It happened over and over again, so I knew I had

to keep fasting until it finally did not show up. That was the fall

and winter of 1999-2000. After those fasts, I started feeling much

better. By March of 2000 I was feeling better enough to go and

testify before the FDA Advisory panel in Washington DC about my

difficult experiences with saline breast implants. In July of 2000 I

started this group so we could find ways together to beat this

illness!

Patty

> > > > > > >

> > > > > > > PH,

> > > > > > > That weird vision and foggy head stuff is the worst.

Give

> > me

> > > > full

> > > > > body

> > > > > > > pain any day rather than have to tolerate that stuff.

> > Blech.

> > > > > Lately

> > > > > > > I've been having it too, but I'm hoping it's just a

> > temporary

> > > > > setback

> > > > > > > or side effects from the hormones.

> > > > > > > Remind me, how did your hormone panel come out? And

what

> > have

> > > > you

> > > > > been

> > > > > > > doing, healthwise? I apologize if I don't remember, I

> don't

> > > > read

> > > > > as

> > > > > > > many messages as I would like, I've been trying to stay

> > > focused

> > > > > on my

> > > > > > > writing.

> > > > > > > xoxox

> > > > > > > Bindi

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

PH-

I wish I could find some solid research to support the fungal/heavy

metals theory. I haven't been able to find anything. Are there any

studies that you know of? I'm not saying I am not willing to believe

it, it's just that there are so many health-related theories and

therapies out there and frankly some of them are BS, but I won't go

there now! It does make a lot of sense that surgery/implants/vaccines

etc could lower the body's resistance to bacteria/fungals/viruses.

I've always wondered about the mycoplasma idea. I've been thinking

about getting tested for that. Did you?

One thing about the resveratrol, in one study it was found that it is

best absorbed through the inside of the cheek, like swish the powder

with a mouthful of grape juice for about a minute before swallowing.

Yeah, at 1 1/2 years post, you got some time to go before you should

start worrying too much about not being up to snuff health-wise. I

totally get it about opening the fridge. I am a former professional

chef who has dreaded the fridge ever since I got sick. Just too

overwhelming, all those things in there. AAAAAAHHHH! I'm feeling a

little less so lately, been cooking more.

Oh I hope you find some relief PH. I will definitely keep you posted

on my progress, and you keep me posted too. Your posts are so

thoughtful and smart, I can't even imagine how you'd be without brain

fog!

xo

Bindi

> > > > > >

> > > > > > PH,

> > > > > > That weird vision and foggy head stuff is the worst. Give

> me

> > > full

> > > > body

> > > > > > pain any day rather than have to tolerate that stuff.

> Blech.

> > > > Lately

> > > > > > I've been having it too, but I'm hoping it's just a

> temporary

> > > > setback

> > > > > > or side effects from the hormones.

> > > > > > Remind me, how did your hormone panel come out? And what

> have

> > > you

> > > > been

> > > > > > doing, healthwise? I apologize if I don't remember, I

don't

> > > read

> > > > as

> > > > > > many messages as I would like, I've been trying to stay

> > focused

> > > > on my

> > > > > > writing.

> > > > > > xoxox

> > > > > > Bindi

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Bindi,

I wish I could find more some solid research to support it as well, but unfortunately research has not been devoted to such issues. I am getting my information from various sources: information from my doctors, anecdotal accounts from books I've read over the last 11 years (most written by parents of autistic children), the parents of children I worked with, countless forums (autism, mercury, MS) I've read and the 25 members in my mercury support group. It just seems too ironic that all the children in my group as well as many on forums, have fungal markers and heavy metal toxicity (both of which are in vaccines), yet the scientific evidence will say vaccines are safe. There are a few parents who are paving the way with some research they've done themselves. One is Wakefield (a scientist who is a parent of an autistic child) and the other is a grandmother of an autistic child who is also a neurologist. Unfortunately, what happens when these people bring forth what they learn, they are ridiculed, threatened and even lose their jobs. It's sad because the parents in my group know that their kids are filled with fungi based on the lab work, yet finding an MD to listen or treat is impossible.

I completely understand you wanting hard evidence…me too!!! I wish it could be!!! A huge portion of my masters in social work was devoted to evidence-based practice and we were told that ALWAYS in providing treatment, use ONLY what is evidence-based. While that sounds ideal, in many ways it's unrealistic. If a doctor has an explanted woman show up in his office believing her child is sick from her implants, if he uses evidence-based practice, he'll say it can't be true and probably prescribe her an antidepressant! Based on research, implants do not harm children, yet Rogene and the mothers on the Silicone Kids forum know that is furthest from the truth!!

I think after seeing all the info Krista added to the www.truthaboutbreastimplants.com regarding the shoddy and nonexistent research on breast implants, I take research with a grain of salt. Toxicity issues are new to medicine to a large degree and so we're not going to see a whole lot on the toxins produced by fungi and how it affects the brain…there is research on it, but not how it may relate to vaccines, metals, breast implants or foods we eat. It's new territory. So for now, the parents of autistic kids who are researching their damdest to get their kids back (and we as well), are actually the "experts."

Again, I'm going on and on, but this is something I feel passionate about. In many ways all of us are pioneers. I read a woman's story of overcoming MS and she wrote how she found her answers not through research but through people's experiences who had been there themselves. In many ways we're all doing the same on this forum. I thought of Patty, Rogene, Lynda and Dede when I read this. Here's an excerpt of what she wrote:

"Don't you admire those rare individuals who are willing to sacrifice their lives, their wealth, and their position to swim counter to the popular current, and to courageously face confrontation to do what they know in their heart to be right? I think of people like:

The founding fathers of our nation who pledged their lives, their wealth and their sacred honor to declare independence from an oppressive mother country.

Like Abraham Lincoln who held fast to his belief that slavery was wrong and that freedom was worth fighting for.

Like Luther King who made the country aware that, while slavery had officially ended, the destructive practice of racism was keeping so many great Americans in bondage.

Like Helen Keller who proved to everyone that people with disabilities could be productive and live mainstream lives.

Like Winston Churchill who awakened the appeaser nations to the true threat of a horrifyingly evil leader.

Like Reagan who knew that putting up walls to keep a country's citizens captive was wrong.

Like the Baptist who openly told people that their ways were evil and that they must repent of this ungodly behavior.

And like who preached the Good News of the Gospel while suffering repetitive persecution. "

None of those people acted on research but were on the threshold of something new. We could be/are those same people to some degree. What would be really interesting is if we could contact all the women who've ever been on this forum and have them take some type of poll on what they used to recover…i.e. did they detox, did they treat for candida, use hormone therapy, how long did they have implants, how long did it take them to recover, how many did not recover, family autoimmune history, etc., and put the stats into a research paper. You'd be awesome at that Bindi w/ your writing talent!!!

No, I have not been tested for mycoplasma. I asked my docs at Infectious Disease and they laughed at me. They said if I had a mycoplasma I wouldn't have been able to walk into the office and I'd be coughing like crazy. Yet, when I've read stories of Gulf War vets and autistic kids with mycoplasmas, they don't mention bronchial problems. I know on the forum tested positive for mycoplasma. Rogene said to look up info by Garth Nicholson (I think that's the name, may have spelled it wrong).

Thanks for the info on increasing the absorption of the Reservatrol…good to know! Professional chef too…on top of college professor and author??? You amaze me.

Love, PH

> > > > > > >> > > > > > > PH,> > > > > > > That weird vision and foggy head stuff is the worst. Give > > me > > > > full > > > > > body> > > > > > > pain any day rather than have to tolerate that stuff. > > Blech. > > > > > Lately> > > > > > > I've been having it too, but I'm hoping it's just a > > temporary > > > > > setback> > > > > > > or side effects from the hormones.> > > > > > > Remind me, how did your hormone panel come out? And what > > have > > > > you > > > > > been> > > > > > > doing, healthwise? I apologize if I don't remember, I > don't > > > > read > > > > > as> > > > > > > many messages as I would like, I've been trying to stay > > > focused > > > > > on my> > > > > > > writing.> > > > > > > xoxox> > > > > > > Bindi> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

Thank you Traci, God has done miracles through all of the precious

ladies who have contributed so graciously to the success of this

group.

God bless Traci...and please get better soon!

Hugs,

Patty

>

> > > > > > > >

>

> > > > > > > > PH,

>

> > > > > > > > That weird vision and foggy head stuff is the worst.

>

> Give

>

> > > me

>

> > > > > full

>

> > > > > > body

>

> > > > > > > > pain any day rather than have to tolerate that stuff.

>

> > > Blech.

>

> > > > > > Lately

>

> > > > > > > > I've been having it too, but I'm hoping it's just a

>

> > > temporary

>

> > > > > > setback

>

> > > > > > > > or side effects from the hormones.

>

> > > > > > > > Remind me, how did your hormone panel come out? And

>

> what

>

> > > have

>

> > > > > you

>

> > > > > > been

>

> > > > > > > > doing, healthwise? I apologize if I don't remember, I

>

> > don't

>

> > > > > read

>

> > > > > > as

>

> > > > > > > > many messages as I would like, I've been trying to

stay

>

> > > > focused

>

> > > > > > on my

>

> > > > > > > > writing.

>

> > > > > > > > xoxox

>

> > > > > > > > Bindi

>

> > > > > > > >

>

> > > > > > >

>

> > > > > >

>

> > > > >

>

> > > >

>

> > >

>

> >

>

[Guest guest]

Wow, PH, you've really been in the trenches with all this, haven't

you? I'm amazed that you have been able to keep working through your

illness. I have not gone back to full-time teaching since I fell ill,

and though I miss it, I am glad I am able to rest when I need to. I

did teach one literature class last semester, and it was SO HARD. I'd

be giving a lecture and my mouth would feel like it was made out of

wood, and my brain out of lard. I just couldn't keep up the snappy,

articulate repartee of yore. Sad.

But hey, I think it's coming back! I've noticed a difference in my

writing, which has been very difficult for me these last years. The

language is flowing better, ideas and words and images are filling my

head and I'm back to scribbling in notebooks everywhere I go.

Thank you for taking the time to explain what you've learned to me.

Very enlightening. I agree that there's a lot of important health-

related information out there that is often twisted, ignored,

discounted and otherwise discredited, especially if it is

antagonistic to any corporation (Mentor, for example). There is also

so much BS about health that is disseminated amongst the populace by

well-meaning folks who are desperate to get well, and by charlatons

who prey upon such people. I've already mentioned one of the latter

in a previous post so I won't get all huffy about him again, but I am

so sick of fluff that passes as science. If I showed you a photo of

green worms coming out of my ear and told you that if you drink this

special juice from the fruit of the Oingo-Boingo tree, you can detox

yourself of YOUR green worms, too, and it costs only 29.99 per

bottle, but if you become a distributor you can achieve not only

HEALTH but FINANCIAL WEALTH, would you buy it? I don't think YOU

would, but sadly, there are many others who would.

I am going to see my doctor and ask him to test me for mycoplasma,

once and for all. I have been putting it off, but hey, it can't hurt.

I always did wonder if I was infected with something when my evil PS

aspirated my hematoma after my implant surgery. It was done in

his " back room " which was so obviously not a sterile enviroment. He

just opened me up, stuck a tube in there and sucked out a pint of

rusty-colored blood. Soon after, I became very ill, and so the story

goes.

PH, definitely look up MCP. A dose of 15 grams per day for six months

has been shown to decrease heavy metals in the body by 68%. It tastes

yucky but tolerable. I think I'm going to start up on it again, JUST

IN CASE.

xoxo

Bindi

> > > > > > > >

> > > > > > > > PH,

> > > > > > > > That weird vision and foggy head stuff is the worst.

Give

> > > me

> > > > > full

> > > > > > body

> > > > > > > > pain any day rather than have to tolerate that stuff.

> > > Blech.

> > > > > > Lately

> > > > > > > > I've been having it too, but I'm hoping it's just a

> > > temporary

> > > > > > setback

> > > > > > > > or side effects from the hormones.

> > > > > > > > Remind me, how did your hormone panel come out? And

what

> > > have

> > > > > you

> > > > > > been

> > > > > > > > doing, healthwise? I apologize if I don't remember, I

> > don't

> > > > > read

> > > > > > as

> > > > > > > > many messages as I would like, I've been trying to

stay

> > > > focused

> > > > > > on my

> > > > > > > > writing.

> > > > > > > > xoxox

> > > > > > > > Bindi

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Bindi,You might want to look into the work of Dr. Stoff...I clearly remember one of his statements in a book about reducing the viral, fungal and bacterial load in order for treatments to work.

Here is an interesting excerpt from a website about a father trying to find help for his 15 year old daughter who had CFIDS. Good read, actually.

http://www.cfidsinsights.com/cfidlk00.htm

Dr. Ali's approach to treating my daughter's CFIDS is holistic, aimed at supporting the body's own healing dynamics, both systemically and right down to a cellular level . He calls his practice of medicine Clinical Ecology and also refers to it as Molecular Medicine. It evolved from his orthodox allopathic training and career in pathology and also in surgery; then in allergy combining with study of immunology , nutrition and interests in alternative/complementary medicine.

This is a syndrome not a specific disease. With a scientific understanding of the human body as a biological ecosystem. he first asks, "How many ways can I support, what things can I do to restore this ecosystem to its natural state of balance." Then he does them all. And there's a lot that must be done: identify, eliminate and treat as needed all sources of oxidative molecular injury such as viruses, bacteria, chemical toxins, food allergies, airborne allergies, mold and fungus, and physical emotional and mental stress. Restore the bowel ecosystem which entails use of natural methods such as herbals to weed out harmful bacteria. Reduce candida and other yeast overgrowths. Identify and treat any parasites. Re-cultivate healthy gut flora (the normal , necessary bacterial colonies of a healthy digestive system). Help cells to repair their internal environment by giving them a supportive external environment. This facilitates membrane channeling functions. It is accomplished with protocols of intravenous and intramuscular nutrients and antioxidants initially and oral supplementation later on. Note the word "supplementation." Of great importance are correct dietary choices, eliminations, and modifications. The good clinical ecologist provides this guidance or has a nutritionist on staff who is experienced with diet and CFIDS. A good dietitian or nutritionist without this experience will be drawing on the knowledge of diet in healthy people with the standard food pyramid and can hinder the reversal process. (There's that "loop" again.) Understand also that high dose nutrient I.V. and I.M. used by clinical ecologists are not mainly intended to treat vitamin deficiencies, although membrane damaged cells are magnesium and potassium depleted and sodium toxic. The intent is to boost or kick-start enzymatic pathways and promote the internal/external cellular exchanges that restore homeostasis. A little "expensive urine" is well worth the results. That such heroic intervention is called for is evident. The body has long been trying but has been unable to reverse the oxidative damage unassisted.

This is not a do-it-yourself project. Many PWCs have tried nutritional supplements without apparent benefit. The use of oral vitamins and antioxidants alone even in high doses is not enough to restore cellular mitochondrial ATP production and cellular membrane pump functions. The intravenous and intramuscular protocols of carefully synergized components, especially of magnesium sulfate and potassium ( minerals , co-factors for enzyme functions ), taurine (amino acid, antioxidant), vitamin C (water phase antioxidant), vitamins E and A (fat phase antioxidants), vitamin B12, and B complex are key to initiating cellular restoration and reversal of oxidative damage. Then the oral supplements do provide benefit and help sustain the restoration. Get the care of a good clinical ecologist . Dr. Ali teaches I.V. therapy courses for CFS at annual meetings of the American Academy of Otolarngic Allergy and at instruction courses of the American Academy of Environmental Medicine. He has a reputation among other clinical ecologists as having the most scientifically thought out formulas for I.V. protocols. Many use his monograph "Intravenous Nutrient Protocols in Molecular Medicine"9 as a guide to preparing their I.V. solutions It is written for the professional but if you want to know what each nutrient is doing to cells and tissues I would suggest you read it. It has 141 references to the scientific and medical studies that helped him come to such a deep understanding of cellular metabolism.

There are several other clinical ecologists who have had success in reversing Chronic Fatigue Syndrome with these types of therapies. To name a few there are Teitelbaum, M.D.,10 Stoff, M.D.,11 and n Whitaker, M.D.12 In Orange, Connecticut there is Dr. Robban Sicca at The Center for the Healing Arts. In Cambridge, Mass. there is Dr. Asis and his staff at The Marino Center. These are not quacks with mail-order Ph.Ds. They are respected doctors who have the vision and resilience to criticism from peers in the loop to use unorthodox methods because they know that they work! In fact most of the treatments you have read about in the CFIDS Chronicle used by many CFIDS specialists incorporate at least one, some a few and others several of the same alternative strategies that Dr. Ali uses. The main difference is that Ali "puts it all together." He has done his homework and makes use of all the accumulated science. As Teitelbaum, M.D. puts it, " The key to eliminating chronic fatigue is to treat all of the underlying problems simultaneously."

The fast action of an effective drug at a time of crisis is a godsend for urgent intervention of pain. The night was hospitalized I remember how distressed we were and how grateful I was to the doctor who knew what to give her. However, long term use of drugs can and must adversely affect the prognosis. They are all toxic chemicals as noted in the introduction to the "Physician's Desk Reference." Dr. Ali emphasizes the inefficacy of drug treatments for CFIDS with his three Rs: chronic fatigue is Real, chronic fatigue is Reversible, chronic fatigue cannot be Reversed with drugs.. They add to the body's total toxic load and drain enzymatic energies for detoxification from the body's already depleted stores. See Dr. Rigden13 and Dr. Cheney's14 work for explanation of detox processes of gut, liver, brain and blood. Weaning off medication presents a dilemma to the PWC and caregiver / parent. However, as the body responds to the holistic restorative support, reversal begins and the symptoms all begin to improve together and weaning off of the drugs is accomplished quite rapidly. This is a milestone and contributes to a sense of hope, confidence, encouragement and relief. The PWC and parent will know they are looking at the light at the end of the tunnel.

Exercise also has a place in the holistic treatment of CFIDS. It must be gentle, non-aerobic, non goal oriented, patient-controlled types of exercise as simple as stretching or rebounding (effortless, shock-free bouncing on a trampoline). The goal-oriented, "push through the pain," "no pain no gain" approaches used by physical therapists in the loop are wrong. If they would examine the literature9 for the experiences of patients and doctors they would see dozens of accounts all the way back to 1958 of disastrous deterioration of the clinical condition of CFS, M.E., post-polio and post viral syndrome patients caused by these practices. The contribution of physical therapists to the teamwork in the loop is to drive PWCs into relapses. But they won't go to the literature and ignore it if you, the layman, bring it to them. They're the professionals, highly trained and you are the overprotective parent or wimpy hypochondriac patient. Here the patient is on his own and will learn to sense when he is approaching his limit the hard way - by exceeding it and paying for it. It is always better to err on the side of caution. As author Jane Colby 15 says, "It is ironic that some so-called "treatments" of ME--for those who have often been thought of as over-pushing themselves already--consists of encouraging these very people to do just that. What extraordinarily muddled thinking we are capable of."

Another aspect of Dr. Ali's holistic approach is to teach the patient techniques to alleviate worry and stress. He has developed a very simple controlled breathing method, easily taught to patients that allows one to clear the mind and bring some autonomic functions under conscious self regulation. Functions of pulse, blood pressure and temperature are monitored by the patient who is connected to specialized electronic equipment during the training session. This provides visual proof of the regulation and helps the trainee to master the technique quickly. Then the monitors are no longer necessary. It is not designed to make one an overnight yogi . It improves circulation , helps manage and even avert headaches and gives one the ability to do something immediate to cope with and manage symptoms. If it sounds hocus pocus consider that the most conservative, orthodox institution, The Mayo Clinic explains and recommends a similar technique in their "Family Health Book," 1990.

> > > > > > >> > > > > > > PH,> > > > > > > That weird vision and foggy head stuff is the worst. Give > > me > > > > full > > > > > body> > > > > > > pain any day rather than have to tolerate that stuff. > > Blech. > > > > > Lately> > > > > > > I've been having it too, but I'm hoping it's just a > > temporary > > > > > setback> > > > > > > or side effects from the hormones.> > > > > > > Remind me, how did your hormone panel come out? And what > > have > > > > you > > > > > been> > > > > > > doing, healthwise? I apologize if I don't remember, I > don't > > > > read > > > > > as> > > > > > > many messages as I would like, I've been trying to stay > > > focused > > > > > on my> > > > > > > writing.> > > > > > > xoxox> > > > > > > Bindi> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

Hey Bindi,

I just replied but accidentally sent it to you from my private

account...don't know how you check this forum...if through the site

or your personal box.

~ PH

> > > > > > > > >

> > > > > > > > > PH,

> > > > > > > > > That weird vision and foggy head stuff is the

worst.

> Give

> > > > me

> > > > > > full

> > > > > > > body

> > > > > > > > > pain any day rather than have to tolerate that

stuff.

> > > > Blech.

> > > > > > > Lately

> > > > > > > > > I've been having it too, but I'm hoping it's just a

> > > > temporary

> > > > > > > setback

> > > > > > > > > or side effects from the hormones.

> > > > > > > > > Remind me, how did your hormone panel come out? And

> what

> > > > have

> > > > > > you

> > > > > > > been

> > > > > > > > > doing, healthwise? I apologize if I don't remember,

I

> > > don't

> > > > > > read

> > > > > > > as

> > > > > > > > > many messages as I would like, I've been trying to

> stay

> > > > > focused

> > > > > > > on my

> > > > > > > > > writing.

> > > > > > > > > xoxox

> > > > > > > > > Bindi

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Patty,

Thanks, wow, this guy looks legit. I am definitely going to look into

him!

Bindi

> > > > > > > >

> > > > > > > > PH,

> > > > > > > > That weird vision and foggy head stuff is the worst.

Give

> > > me

> > > > > full

> > > > > > body

> > > > > > > > pain any day rather than have to tolerate that stuff.

> > > Blech.

> > > > > > Lately

> > > > > > > > I've been having it too, but I'm hoping it's just a

> > > temporary

> > > > > > setback

> > > > > > > > or side effects from the hormones.

> > > > > > > > Remind me, how did your hormone panel come out? And

what

> > > have

> > > > > you

> > > > > > been

> > > > > > > > doing, healthwise? I apologize if I don't remember, I

> > don't

> > > > > read

> > > > > > as

> > > > > > > > many messages as I would like, I've been trying to

stay

> > > > focused

> > > > > > on my

> > > > > > > > writing.

> > > > > > > > xoxox

> > > > > > > > Bindi

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>