Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Thanks Kathy. They did a brain scan on me and couldn't find anything. (I mean I think there was a brain! but no cause for the headaches). Yes, I've tried all your other suggestions but to no avail. I went to the immunologist yesterday but he seemed to be more worried about all my other symptoms and ignored the headache stuff. I'm to visit my gastroenterologist next month. I presume they will get another colonoscopy done. I'm having terrible stinging pain going to the toilet. I have haemeroids but my husband says they look okay but I'm constantly bleeding after going to the toilet and passing stools (and for me that's at least 6 times a day). I've just gone this morning and passed quite a bit of blood. They've done stools test last week and there was no blood in the actual stools. This is really worrying me. The immunologist has put me on some extra medication - Myfortic - to supplement the Arava I'm already on with the prednisone. He had me on Myfortic back in December but at that time he had me come off the Arava at the same time. I ended up in all sorts of agony from my arthritis because I wasn't on the Arava. So now he's trying the Myfortic along with the Arava to see if he can lower my prednisone intake. He feels that a lot of my other symptoms - the high blood pressure, cholesterol, diabetes, and nerve tingling/pain etc are caused by the prednisone. I appreciate your advice and intake. I know that you are not just answering from a medical perspective but also from someone who has actually experienced AI. It makes so much difference. I trust my doctors. I know they are trying to help me. But sometimes I think all my AI symptoms are just too expansive for them to really understand when they come from their own "specialities". (((Hugs))) RobynKathy wrote: Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Thanks Kathy. They did a brain scan on me and couldn't find anything. (I mean I think there was a brain! but no cause for the headaches). Yes, I've tried all your other suggestions but to no avail. I went to the immunologist yesterday but he seemed to be more worried about all my other symptoms and ignored the headache stuff. I'm to visit my gastroenterologist next month. I presume they will get another colonoscopy done. I'm having terrible stinging pain going to the toilet. I have haemeroids but my husband says they look okay but I'm constantly bleeding after going to the toilet and passing stools (and for me that's at least 6 times a day). I've just gone this morning and passed quite a bit of blood. They've done stools test last week and there was no blood in the actual stools. This is really worrying me. The immunologist has put me on some extra medication - Myfortic - to supplement the Arava I'm already on with the prednisone. He had me on Myfortic back in December but at that time he had me come off the Arava at the same time. I ended up in all sorts of agony from my arthritis because I wasn't on the Arava. So now he's trying the Myfortic along with the Arava to see if he can lower my prednisone intake. He feels that a lot of my other symptoms - the high blood pressure, cholesterol, diabetes, and nerve tingling/pain etc are caused by the prednisone. I appreciate your advice and intake. I know that you are not just answering from a medical perspective but also from someone who has actually experienced AI. It makes so much difference. I trust my doctors. I know they are trying to help me. But sometimes I think all my AI symptoms are just too expansive for them to really understand when they come from their own "specialities". (((Hugs))) RobynKathy wrote: Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Thanks Kathy. They did a brain scan on me and couldn't find anything. (I mean I think there was a brain! but no cause for the headaches). Yes, I've tried all your other suggestions but to no avail. I went to the immunologist yesterday but he seemed to be more worried about all my other symptoms and ignored the headache stuff. I'm to visit my gastroenterologist next month. I presume they will get another colonoscopy done. I'm having terrible stinging pain going to the toilet. I have haemeroids but my husband says they look okay but I'm constantly bleeding after going to the toilet and passing stools (and for me that's at least 6 times a day). I've just gone this morning and passed quite a bit of blood. They've done stools test last week and there was no blood in the actual stools. This is really worrying me. The immunologist has put me on some extra medication - Myfortic - to supplement the Arava I'm already on with the prednisone. He had me on Myfortic back in December but at that time he had me come off the Arava at the same time. I ended up in all sorts of agony from my arthritis because I wasn't on the Arava. So now he's trying the Myfortic along with the Arava to see if he can lower my prednisone intake. He feels that a lot of my other symptoms - the high blood pressure, cholesterol, diabetes, and nerve tingling/pain etc are caused by the prednisone. I appreciate your advice and intake. I know that you are not just answering from a medical perspective but also from someone who has actually experienced AI. It makes so much difference. I trust my doctors. I know they are trying to help me. But sometimes I think all my AI symptoms are just too expansive for them to really understand when they come from their own "specialities". (((Hugs))) RobynKathy wrote: Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Yes! It takes so long to get a diagnosis and then each Doc seems to focus just on one aspect. I'm lucky that my primary Doc co-ordinates things and keeps studying up on things. LOL--that's what I told Denny when he said his MRA was negative. That I was surprised, 'cause I thought he had a brain, LOL. I hope they find the reason for the bleeding. If they found no blood in the actual stools and it's bright red blood you may have internal hemorrhoids, but I assume the Doc has checked for them. My Dad had those and for a few weeks he even had to wear a pad. Hope they figure it out. (((hugs)))) Kathy Re: Robyn Thanks Kathy. They did a brain scan on me and couldn't find anything. (I mean I think there was a brain! but no cause for the headaches). Yes, I've tried all your other suggestions but to no avail. I went to the immunologist yesterday but he seemed to be more worried about all my other symptoms and ignored the headache stuff. I'm to visit my gastroenterologist next month. I presume they will get another colonoscopy done. I'm having terrible stinging pain going to the toilet. I have haemeroids but my husband says they look okay but I'm constantly bleeding after going to the toilet and passing stools (and for me that's at least 6 times a day). I've just gone this morning and passed quite a bit of blood. They've done stools test last week and there was no blood in the actual stools. This is really worrying me. The immunologist has put me on some extra medication - Myfortic - to supplement the Arava I'm already on with the prednisone. He had me on Myfortic back in December but at that time he had me come off the Arava at the same time. I ended up in all sorts of agony from my arthritis because I wasn't on the Arava. So now he's trying the Myfortic along with the Arava to see if he can lower my prednisone intake. He feels that a lot of my other symptoms - the high blood pressure, cholesterol, diabetes, and nerve tingling/pain etc are caused by the prednisone. I appreciate your advice and intake. I know that you are not just answering from a medical perspective but also from someone who has actually experienced AI. It makes so much difference. I trust my doctors. I know they are trying to help me. But sometimes I think all my AI symptoms are just too expansive for them to really understand when they come from their own "specialities". (((Hugs))) RobynKathy wrote: Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Yes! It takes so long to get a diagnosis and then each Doc seems to focus just on one aspect. I'm lucky that my primary Doc co-ordinates things and keeps studying up on things. LOL--that's what I told Denny when he said his MRA was negative. That I was surprised, 'cause I thought he had a brain, LOL. I hope they find the reason for the bleeding. If they found no blood in the actual stools and it's bright red blood you may have internal hemorrhoids, but I assume the Doc has checked for them. My Dad had those and for a few weeks he even had to wear a pad. Hope they figure it out. (((hugs)))) Kathy Re: Robyn Thanks Kathy. They did a brain scan on me and couldn't find anything. (I mean I think there was a brain! but no cause for the headaches). Yes, I've tried all your other suggestions but to no avail. I went to the immunologist yesterday but he seemed to be more worried about all my other symptoms and ignored the headache stuff. I'm to visit my gastroenterologist next month. I presume they will get another colonoscopy done. I'm having terrible stinging pain going to the toilet. I have haemeroids but my husband says they look okay but I'm constantly bleeding after going to the toilet and passing stools (and for me that's at least 6 times a day). I've just gone this morning and passed quite a bit of blood. They've done stools test last week and there was no blood in the actual stools. This is really worrying me. The immunologist has put me on some extra medication - Myfortic - to supplement the Arava I'm already on with the prednisone. He had me on Myfortic back in December but at that time he had me come off the Arava at the same time. I ended up in all sorts of agony from my arthritis because I wasn't on the Arava. So now he's trying the Myfortic along with the Arava to see if he can lower my prednisone intake. He feels that a lot of my other symptoms - the high blood pressure, cholesterol, diabetes, and nerve tingling/pain etc are caused by the prednisone. I appreciate your advice and intake. I know that you are not just answering from a medical perspective but also from someone who has actually experienced AI. It makes so much difference. I trust my doctors. I know they are trying to help me. But sometimes I think all my AI symptoms are just too expansive for them to really understand when they come from their own "specialities". (((Hugs))) RobynKathy wrote: Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Yes! It takes so long to get a diagnosis and then each Doc seems to focus just on one aspect. I'm lucky that my primary Doc co-ordinates things and keeps studying up on things. LOL--that's what I told Denny when he said his MRA was negative. That I was surprised, 'cause I thought he had a brain, LOL. I hope they find the reason for the bleeding. If they found no blood in the actual stools and it's bright red blood you may have internal hemorrhoids, but I assume the Doc has checked for them. My Dad had those and for a few weeks he even had to wear a pad. Hope they figure it out. (((hugs)))) Kathy Re: Robyn Thanks Kathy. They did a brain scan on me and couldn't find anything. (I mean I think there was a brain! but no cause for the headaches). Yes, I've tried all your other suggestions but to no avail. I went to the immunologist yesterday but he seemed to be more worried about all my other symptoms and ignored the headache stuff. I'm to visit my gastroenterologist next month. I presume they will get another colonoscopy done. I'm having terrible stinging pain going to the toilet. I have haemeroids but my husband says they look okay but I'm constantly bleeding after going to the toilet and passing stools (and for me that's at least 6 times a day). I've just gone this morning and passed quite a bit of blood. They've done stools test last week and there was no blood in the actual stools. This is really worrying me. The immunologist has put me on some extra medication - Myfortic - to supplement the Arava I'm already on with the prednisone. He had me on Myfortic back in December but at that time he had me come off the Arava at the same time. I ended up in all sorts of agony from my arthritis because I wasn't on the Arava. So now he's trying the Myfortic along with the Arava to see if he can lower my prednisone intake. He feels that a lot of my other symptoms - the high blood pressure, cholesterol, diabetes, and nerve tingling/pain etc are caused by the prednisone. I appreciate your advice and intake. I know that you are not just answering from a medical perspective but also from someone who has actually experienced AI. It makes so much difference. I trust my doctors. I know they are trying to help me. But sometimes I think all my AI symptoms are just too expansive for them to really understand when they come from their own "specialities". (((Hugs))) RobynKathy wrote: Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 From somewhere in my past, I remember something about TMJ problems causing the headaches, too. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 From somewhere in my past, I remember something about TMJ problems causing the headaches, too. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 From somewhere in my past, I remember something about TMJ problems causing the headaches, too. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Thanks Kathy. The immunologist is suggesting that if the latest test I'm on in taking the Myfortic and Arava and prednisone combination doesn't work then the next step is to put me onto Cyclophosphamide. I've looked it up on the internet and it looks terrifying. Has anyone else been on this treatment? What side effects did they have? (((Hugs))) RobynKathy wrote: Yes! It takes so long to get a diagnosis and then each Doc seems to focus just on one aspect. I'm lucky that my primary Doc co-ordinates things and keeps studying up on things. LOL--that's what I told Denny when he said his MRA was negative. That I was surprised, 'cause I thought he had a brain, LOL. I hope they find the reason for the bleeding. If they found no blood in the actual stools and it's bright red blood you may have internal hemorrhoids, but I assume the Doc has checked for them. My Dad had those and for a few weeks he even had to wear a pad. Hope they figure it out. (((hugs)))) Kathy Re: Robyn Thanks Kathy. They did a brain scan on me and couldn't find anything. (I mean I think there was a brain! but no cause for the headaches). Yes, I've tried all your other suggestions but to no avail. I went to the immunologist yesterday but he seemed to be more worried about all my other symptoms and ignored the headache stuff. I'm to visit my gastroenterologist next month. I presume they will get another colonoscopy done. I'm having terrible stinging pain going to the toilet. I have haemeroids but my husband says they look okay but I'm constantly bleeding after going to the toilet and passing stools (and for me that's at least 6 times a day). I've just gone this morning and passed quite a bit of blood. They've done stools test last week and there was no blood in the actual stools. This is really worrying me. The immunologist has put me on some extra medication - Myfortic - to supplement the Arava I'm already on with the prednisone. He had me on Myfortic back in December but at that time he had me come off the Arava at the same time. I ended up in all sorts of agony from my arthritis because I wasn't on the Arava. So now he's trying the Myfortic along with the Arava to see if he can lower my prednisone intake. He feels that a lot of my other symptoms - the high blood pressure, cholesterol, diabetes, and nerve tingling/pain etc are caused by the prednisone. I appreciate your advice and intake. I know that you are not just answering from a medical perspective but also from someone who has actually experienced AI. It makes so much difference. I trust my doctors. I know they are trying to help me. But sometimes I think all my AI symptoms are just too expansive for them to really understand when they come from their own "specialities". (((Hugs))) RobynKathy wrote: Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Thanks Kathy. The immunologist is suggesting that if the latest test I'm on in taking the Myfortic and Arava and prednisone combination doesn't work then the next step is to put me onto Cyclophosphamide. I've looked it up on the internet and it looks terrifying. Has anyone else been on this treatment? What side effects did they have? (((Hugs))) RobynKathy wrote: Yes! It takes so long to get a diagnosis and then each Doc seems to focus just on one aspect. I'm lucky that my primary Doc co-ordinates things and keeps studying up on things. LOL--that's what I told Denny when he said his MRA was negative. That I was surprised, 'cause I thought he had a brain, LOL. I hope they find the reason for the bleeding. If they found no blood in the actual stools and it's bright red blood you may have internal hemorrhoids, but I assume the Doc has checked for them. My Dad had those and for a few weeks he even had to wear a pad. Hope they figure it out. (((hugs)))) Kathy Re: Robyn Thanks Kathy. They did a brain scan on me and couldn't find anything. (I mean I think there was a brain! but no cause for the headaches). Yes, I've tried all your other suggestions but to no avail. I went to the immunologist yesterday but he seemed to be more worried about all my other symptoms and ignored the headache stuff. I'm to visit my gastroenterologist next month. I presume they will get another colonoscopy done. I'm having terrible stinging pain going to the toilet. I have haemeroids but my husband says they look okay but I'm constantly bleeding after going to the toilet and passing stools (and for me that's at least 6 times a day). I've just gone this morning and passed quite a bit of blood. They've done stools test last week and there was no blood in the actual stools. This is really worrying me. The immunologist has put me on some extra medication - Myfortic - to supplement the Arava I'm already on with the prednisone. He had me on Myfortic back in December but at that time he had me come off the Arava at the same time. I ended up in all sorts of agony from my arthritis because I wasn't on the Arava. So now he's trying the Myfortic along with the Arava to see if he can lower my prednisone intake. He feels that a lot of my other symptoms - the high blood pressure, cholesterol, diabetes, and nerve tingling/pain etc are caused by the prednisone. I appreciate your advice and intake. I know that you are not just answering from a medical perspective but also from someone who has actually experienced AI. It makes so much difference. I trust my doctors. I know they are trying to help me. But sometimes I think all my AI symptoms are just too expansive for them to really understand when they come from their own "specialities". (((Hugs))) RobynKathy wrote: Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Thanks Kathy. The immunologist is suggesting that if the latest test I'm on in taking the Myfortic and Arava and prednisone combination doesn't work then the next step is to put me onto Cyclophosphamide. I've looked it up on the internet and it looks terrifying. Has anyone else been on this treatment? What side effects did they have? (((Hugs))) RobynKathy wrote: Yes! It takes so long to get a diagnosis and then each Doc seems to focus just on one aspect. I'm lucky that my primary Doc co-ordinates things and keeps studying up on things. LOL--that's what I told Denny when he said his MRA was negative. That I was surprised, 'cause I thought he had a brain, LOL. I hope they find the reason for the bleeding. If they found no blood in the actual stools and it's bright red blood you may have internal hemorrhoids, but I assume the Doc has checked for them. My Dad had those and for a few weeks he even had to wear a pad. Hope they figure it out. (((hugs)))) Kathy Re: Robyn Thanks Kathy. They did a brain scan on me and couldn't find anything. (I mean I think there was a brain! but no cause for the headaches). Yes, I've tried all your other suggestions but to no avail. I went to the immunologist yesterday but he seemed to be more worried about all my other symptoms and ignored the headache stuff. I'm to visit my gastroenterologist next month. I presume they will get another colonoscopy done. I'm having terrible stinging pain going to the toilet. I have haemeroids but my husband says they look okay but I'm constantly bleeding after going to the toilet and passing stools (and for me that's at least 6 times a day). I've just gone this morning and passed quite a bit of blood. They've done stools test last week and there was no blood in the actual stools. This is really worrying me. The immunologist has put me on some extra medication - Myfortic - to supplement the Arava I'm already on with the prednisone. He had me on Myfortic back in December but at that time he had me come off the Arava at the same time. I ended up in all sorts of agony from my arthritis because I wasn't on the Arava. So now he's trying the Myfortic along with the Arava to see if he can lower my prednisone intake. He feels that a lot of my other symptoms - the high blood pressure, cholesterol, diabetes, and nerve tingling/pain etc are caused by the prednisone. I appreciate your advice and intake. I know that you are not just answering from a medical perspective but also from someone who has actually experienced AI. It makes so much difference. I trust my doctors. I know they are trying to help me. But sometimes I think all my AI symptoms are just too expansive for them to really understand when they come from their own "specialities". (((Hugs))) RobynKathy wrote: Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 , What is TMJ? Robyn wrote: From somewhere in my past, I remember something about TMJ problems causing the headaches, too. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 , What is TMJ? Robyn wrote: From somewhere in my past, I remember something about TMJ problems causing the headaches, too. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 , What is TMJ? Robyn wrote: From somewhere in my past, I remember something about TMJ problems causing the headaches, too. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 That makes sense since tension in the jaw and neck muscles causes both. Kathy Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 That makes sense since tension in the jaw and neck muscles causes both. Kathy Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 That makes sense since tension in the jaw and neck muscles causes both. Kathy Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 TMJ- TemperoMandibularJoint (spelling is probably wrong) is the jaw joint. Many people have problems with the muscles & joint there. I have trouble with my jaw locking, popping, hurting. Grinding or clenching your teeth make it worse (I wear a night guard when I sleep to protect my teeth). It can cause headaches - really bad headaches. I'm remembering a patient who had severe headaches after orgasm. The doc where I worked mentioned it to her dentist, who said it's not unusual for people with TMJ problems. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 TMJ- TemperoMandibularJoint (spelling is probably wrong) is the jaw joint. Many people have problems with the muscles & joint there. I have trouble with my jaw locking, popping, hurting. Grinding or clenching your teeth make it worse (I wear a night guard when I sleep to protect my teeth). It can cause headaches - really bad headaches. I'm remembering a patient who had severe headaches after orgasm. The doc where I worked mentioned it to her dentist, who said it's not unusual for people with TMJ problems. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 TMJ- TemperoMandibularJoint (spelling is probably wrong) is the jaw joint. Many people have problems with the muscles & joint there. I have trouble with my jaw locking, popping, hurting. Grinding or clenching your teeth make it worse (I wear a night guard when I sleep to protect my teeth). It can cause headaches - really bad headaches. I'm remembering a patient who had severe headaches after orgasm. The doc where I worked mentioned it to her dentist, who said it's not unusual for people with TMJ problems. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Thanks for the information . Robyn wrote: TMJ- TemperoMandibularJoint (spelling is probably wrong) is the jaw joint. Many people have problems with the muscles & joint there. I have trouble with my jaw locking, popping, hurting. Grinding or clenching your teeth make it worse (I wear a night guard when I sleep to protect my teeth). It can cause headaches - really bad headaches. I'm remembering a patient who had severe headaches after orgasm. The doc where I worked mentioned it to her dentist, who said it's not unusual for people with TMJ problems. -- Robyn Denny had another headache occurance so I finally convinced him to go to the Doc. He went Tues and they immediately sent him for an MRA Weds AM. Which turned out fine. I've done a great deal of reading on this over the past week or so, and now can't remember what you said you had read or not read so if some of this info is stuff you already know, sorry. Apparently the first thing they need to check for is a cerebral aneurysm, which is why the Doc did the MRA. This is extremely important if you haven't had it done because sometimes the aneurysm can bleed, then seal over, only to bleed again when you exert again or even just on it's own. Once that is ruled out you most likely have what is called "coital cephalgia"--which is just medical speak for "sex headaches". (assuming it isn't med related or diet or alcohol related or tobacco related) They say it is more common in men than women, but that alot of people have them at least once in their lifetime. About 1% of the population (I don't know if that was worldwide or just America) have it become a continuing problem. They suggest that after the first episode you wait two weeks, then try again. I know you've already done this, we have. Then you're supposed to try different positions. For us so far the two times were two different positions, but we'll keep trying, LOL. You probably already tried that too. And of course massage, because they feel the most likely cause of them is the muscle tension in shoulders, neck and head. They suggest trying NSAIDS prior--but I suspect you are already on plenty of that type of meds. The only other thing I've found so far is that they've found that putting the person on a beta-blocker usually solves the problem. It is a sort of migraine, actually, as we had talked about before, so migraine treatments sometimes help. My guess is that it is more common in men because all of the blood rushes from the brain to the all-important appendage, LOL. That and that men are often the one on top, causing the stress in the neck and shoulders. I'm going to keep researching this, so if I find anything more I'll let you know. (((hugs))) Kathy Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Thanks Melinda, I'm back home again now. There are two fissures. He has taken a biopsy to check them out but in the meantime I'm to see another surgeon now in Sydney who will do the botox injections. I ring today to see when I can get an appointment with him to see him and after that when I can have the injections. So, its more pain until all that is done. I haven't opened my bowels yet since the operation yesterday afternoon but I can feel it happening soon and I'm NOT looking forward to it. Thanks for your concern. I really appreciate everyone's support. (((Hugs))) Robyn Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Thanks Melinda, I'm back home again now. There are two fissures. He has taken a biopsy to check them out but in the meantime I'm to see another surgeon now in Sydney who will do the botox injections. I ring today to see when I can get an appointment with him to see him and after that when I can have the injections. So, its more pain until all that is done. I haven't opened my bowels yet since the operation yesterday afternoon but I can feel it happening soon and I'm NOT looking forward to it. Thanks for your concern. I really appreciate everyone's support. (((Hugs))) Robyn Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Thanks Melinda, I'm back home again now. There are two fissures. He has taken a biopsy to check them out but in the meantime I'm to see another surgeon now in Sydney who will do the botox injections. I ring today to see when I can get an appointment with him to see him and after that when I can have the injections. So, its more pain until all that is done. I haven't opened my bowels yet since the operation yesterday afternoon but I can feel it happening soon and I'm NOT looking forward to it. Thanks for your concern. I really appreciate everyone's support. (((Hugs))) Robyn Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
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