Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Dear , Gosh, perhaps you do not have it from what you say. The confirmation is the biopsy. I hope you do not have it. [ ] appt Hi friends... Just wanted to give you the latest update and to ask once again for your prayers. I went to my primary physician today. It is the first time I have seen him in almost 1 yr. I went in and talked to him about the last year. He looked over everything, and was a bit upset at how things have been handled. He said that a liver biopsy was supposed to have been done when I had active liver imflammation to rule out the autoimmune hepatitis. He said that is the only sure way to eliminate it. He said that since my liver enzymes have been down that it looks more promising that it may not be that. That made me happy to hear. I had lab work today to check my liver enzymes and my sed rate. Please pray that they come back normal. If not, I'll be having a liver biopsy and I'll be sent to Shands medical school in Gainsville for more testing. He said autoimmune hepatitis is very rare and no one in my area treats it. He was a bit concerned as to why someone my age has such severe gastroparesis. He said that usually that is associated with diabetes. He said he would like to know what underlying condition is causing that, but the GI was content to tell me that a virus in the past must have caused it. He said there is some concern about a rheumatic (autoimmune) disease because of the + anticardiolipin antibody I have. That is what they thought caused me to m/c. That is associated with Lupus etc. There is also a history of rheumatoid arthritis in my family...my great grandma, that increases my chances of having an autoimmune disease. He says he fears I may have a " smoldering " autoimmune disease that hasn't hit me full force. He said he may send me to a rheumatologist or a hematologist. He isn't sure yet. He said to give him 48 hrs to do some research and to get the labwork back. Then we'll discuss the next step. He wants to send me to someone who will be able to shed some light on things. He doesn't want me to be running from one MD to the next. That is the latest. Please just pray for good lab results! He did strongly advise me against getting pg right now until we have more answers. He said that since I do want more children, he'll get on it right now, and not let any time waste. forgive me for not knowing all the names yet, but I would like to wish Tony the best on his trip to NY. I believe God has a miracle waiting for you! I'll be praying for you! } Denice?? I think it is you who is getting the transplant from a living donor?? What wonderful news! I will be thinking of you and praying for a speedy recovery! Please keep us posted! Jeanette--My heart broke for you when I read what a hard time you are having. Please hang in there and know that you have a wonderful support system here. I'll say a special prayer for you! Debbie--I see that you are in FL too. Where are you from? I live in Sarasota. My PCP says there is no one in my area that treats AIH, and that I'll have to go to Gainsville. I was wondering if anyone after finding they had elevated enzymes and such to have them go down to normal with no intervention. They seem to think that because my enzymes have gone down to normal by themselves and stayed down for a few months that I may not have it. I'll know more after I get this panel and the sed rate back. Please keep me in your prayers. You'll all be in mine. I will keep you posted! /FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 , your appointment seemed to go well today!I am glad that your doctor was upset at the treatment and that things might be getting under way now. HOWEVER, it is wonderful that your enzymes went down! Wonderful! Good luck...debby [ ] appt Hi friends...Just wanted to give you the latest update and to ask once again for your prayers. I went to my primary physician today. It is the first time I have seen him in almost 1 yr. I went in and talked to him about the last year. He looked over everything, and was a bit upset at how things have been handled. He said that a liver biopsy was supposed to have been done when I had active liver imflammation to rule out the autoimmune hepatitis. He said that is the only sure way to eliminate it. He said that since my liver enzymes have been down that it looks more promising that it may not be that. That made me happy to hear. I had lab work today to check my liver enzymes and my sed rate. Please pray that they come back normal. If not, I'll be having a liver biopsy and I'll be sent to Shands medical school in Gainsville for more testing. He said autoimmune hepatitis is very rare and no one in my area treats it. He was a bit concerned as to why someone my age has such severe gastroparesis. He said that usually that is associated with diabetes. He said he would like to know what underlying condition is causing that, but the GI was content to tell me that a virus in the past must have caused it. He said there is some concern about a rheumatic (autoimmune) disease because of the + anticardiolipin antibody I have. That is what they thought caused me to m/c. That is associated with Lupus etc. There is also a history of rheumatoid arthritis in my family...my great grandma, that increases my chances of having an autoimmune disease. He says he fears I may have a "smoldering" autoimmune disease that hasn't hit me full force. He said he may send me to a rheumatologist or a hematologist. He isn't sure yet. He said to give him 48 hrs to do some research and to get the labwork back. Then we'll discuss the next step. He wants to send me to someone who will be able to shed some light on things. He doesn't want me to be running from one MD to the next. That is the latest. Please just pray for good lab results! He did strongly advise me against getting pg right now until we have more answers. He said that since I do want more children, he'll get on it right now, and not let any time waste. forgive me for not knowing all the names yet, but I would like to wish Tony the best on his trip to NY. I believe God has a miracle waiting for you! I'll be praying for you! }Denice?? I think it is you who is getting the transplant from a living donor?? What wonderful news! I will be thinking of you and praying for a speedy recovery! Please keep us posted!Jeanette--My heart broke for you when I read what a hard time you are having. Please hang in there and know that you have a wonderful support system here. I'll say a special prayer for you!Debbie--I see that you are in FL too. Where are you from? I live in Sarasota. My PCP says there is no one in my area that treats AIH, and that I'll have to go to Gainsville. I was wondering if anyone after finding they had elevated enzymes and such to have them go down to normal with no intervention. They seem to think that because my enzymes have gone down to normal by themselves and stayed down for a few months that I may not have it. I'll know more after I get this panel and the sed rate back. Please keep me in your prayers. You'll all be in mine. I will keep you posted!/FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 , I'll keep on praying for you. /Il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Marta stay off those feet with them up high,,, > hu Jo???LOL > Pat The heck with that! The more I move around the better my pain is. I only hurt when I sit for long periods of time. THe swelling is better this morning since I slept in my bed on my back with my legs up on a sofa pillow. I actually got eight hours of sleep! Marta who is moving her birds into her bedroom today so that was probably the last good night's sleep I will get in six months. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Hi , Just checking in on you guys.. How did the appt. go? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Hi Everyone My youngest has a appt Sept 4th. with the rheumatologist..They said to plan on being there for several hours...The pdoc also noticed the difference in leg length..His leg has been swelling quite a bit at the joint and complainin of pain..Makes me sad to see my lil guy in pain..But I thought I would let everyone know he is gonna see a specialist..Will keep everyone posted..Been doing research on jra..Dang its depressing right along with other things..Hugs to all in the group Peggy Z --------------------------------- Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Great, we will watch for the outcome. Hope they find a way to help the little guy. You are in my prayers. Dolores & Mike Rosner peggy marshall <friendly45036@...> wrote: Hi Everyone My youngest has a appt Sept 4th. with the rheumatologist..They said to plan on being there for several hours...The pdoc also noticed the difference in leg length..His leg has been swelling quite a bit at the joint and complainin of pain..Makes me sad to see my lil guy in pain..But I thought I would let everyone know he is gonna see a specialist..Will keep everyone posted..Been doing research on jra..Dang its depressing right along with other things..Hugs to all in the group Peggy Z --------------------------------- Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Going to that breast surgeon in awhile Be back soon Sandy~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Good luck sweet Sandy, please let us know how you make out. Love you.....Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~` Appt Going to that breast surgeon in awhile Be back soon Sandy~ Quote Link to comment Share on other sites More sharing options...
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