SchaferAutismReport: Autism Research Institute’s Biomedical Survey Analysis Tool - SAR Supplement

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Subject: Autism Research Institute’s Biomedical Survey Analysis Tool -

SAR Supplement

Supplement

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Autism Research Institute’s (ARI) Biomedical Survey Analysis

Tool

Use ARI’s database

to find possible treatments for your child.

Since 1967, the Autism Research Institute has distributed surveys to

parents to determine which treatments are most beneficial, as well as

potentially harmful, to individuals with autism. These surveys are

distributed through newsletters, conferences, parent information packets,

and the Internet. The results from these surveys are published annually

for both autism and Asperger's syndrome www.autism.com.

Sample treatment: melatonin

The Biomedical Survey Analysis program, available on the

Internet through the ARI website, allows parents to utilize ARI’s

treatment database survey, the largest in the world, to help determine

what treatments to consider trying (or possibly avoid) for their

children. In this program, a parent first rates how his/her child

responded to one to four treatments in the past. The program then

searches ARI treatment database (more than 25,000 records) and

summarizes how other children who responded in a similar manner to

these treatments responded to other treatments. For example, if a child

responded well to melatonin, the program will provide a list of

additional treatments that benefitted children who also responded well

to

melatonin. ARI

cannot guarantee whether or not your son/daughter will respond in a certain

way to a specific treatment. The results from the program should not be

considered as “medical advice,†rather, the results are based on the

observations of thousands of parents.

www.autism.com/biomedicalsurveyanalysis/

If your son/daughter has already received one or more treatments in the

past, we would appreciate your completing our treatment survey form www.autism.com/treatable/biomed/treatrating.htm.

You can also read about Biomedical Treatments in Autism: Effective

Biomedical Treatments, by Jon Pangborn, PhD and Sidney Baker, MD

(leading clinicians in the field of autism).

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ARI's Yahoo Parent Support Group Listserv Online

ARI has a parent support listserv intended as a forum

where parents can compare notes, laugh, cry, or share anything from

resources to recipes. It is for anybody interested or committed to the

biomedical

approach to

treatment for autism spectrum disorders. The biomedical approach mostly

involves restricted diets, nutritional supplements, and the removal of

toxic substances. The listserv is by definition exploratory rather than

explanatory. It does not constitute a how-to manual and is meant as an

open forum for information and layperson's opinions. Parents need to

consult with their child’s doctor before altering their child's treatment

plan, even with products that are available without a prescription. Any

educational, legal, therapeutic, or medical opinions expressed on the

listserv are solely those of the individuals involved and should not be

construed as medical advice. However, the discussion and support between

parents can be highly beneficial, and we encourage parents to subscribe

to and participate in this listserv.

health.groups.yahoo.com/group/ARIsupport/

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Autism and GI problems: A major milestone

Please see Dr.

Edelson's compelling editorial under the What's New section

(right sidebar) of the ARI website at www.autism.com.

Dr. Edelson gives an historical perspective on the evolution of awareness

of gastrointestinal problems in the ASD population. Notably, " In

1995, in Dallas, Texas, ARI sponsored the first think tank on biomedical

problems in autism. Approximately 30 researchers and physicians met to

discuss various health issues commonly encountered in their research or

practices. Toward the end of the meeting, there was general consensus

that two areas, the immune system and GI system, were of great importance

in understanding and treating individuals on the autism spectrum. "

ARI and Defeat Autism Now! have been leading the way in efficacious

therapies and research for autism spectrum disorders for a great many

years, contributing innovative ideas to the arena of research. "

Another important step forward was in 2002, when ARI awarded the

newly-formed Autism Treatment Network (ATN) a grant for $100,000. This

went to support the research of three Harvard scientists, Drs.

Buie, Harland Winter, and Dr. Rafail Kushak, to investigate GI

disorders. " More recently, Pediatrics (a journal of the

American Association of Pediatrics) published two articles on

gastrointestinal (GI) problems associated with autism. One, titled “Evaluation,

Diagnosis, and Treatment of Gastrointestinal Disorders in Individuals

with ASDs: A Consensus Report,†is a scientific review of the most

current research on GI problems. The second article, titled

“Recommendations for Evaluation and Treatment of Common Gastrointestinal

Problems in Children with ASDs,†is a detailed description of diagnosis

and treatment recommendations for GI disorders in these children. These

landmark papers are a result of many years of perseverance; much of this

effort was spearheaded by the Autism Research Institute. ARI continues to

be a thought-leader in the field of autism research that helps heal

children.

Please see the direct link for this excellent editorial at www.autism.com/pdf/GI_editorial.pdf.

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Survey on treatment for children with autism with and

without seizures

Over the past year ARI and AutismOne have held several complementary

think tanks on seizures and seizures-like activity in autism. One of the

conclusions of the think tanks was that there is little understanding of

the treatments that help control seizures and seizure-like activity in

children with autism. To help understand which treatments are effective

for controlling seizures, seizure-like activity and subclinical

epileptiform discharges in autism, Dr. Frye, along with the think

tank attendees, has developed a relatively easy-to-complete online

seizure survey for parents with children with autism spectrum disorder

with and without seizures to complete. It is important that we obtain

information about individuals without seizures, so that we can determine

whether treatments affect individuals with and without seizures differently.

If your son/daughter (or you) suffers from autism spectrum disorder,

regardless of whether you have clinical seizures, subclinical

epileptiform discharges or seizure-like activity, we would like to ask

you to fill out a survey created by Dr. Frye with the help of

Prof. . We think that this very detailed survey will provide a

much richer understanding of the efficacy and possible side-effects of

current treatments for seizures.

Please help us by filling out the survey and by forwarding information

about this survey to other autism groups.

For individuals with seizures, subclinical epileptiform discharges or

seizure-like activity, please use the following link:

www.surveymethods.com/EndUser.aspx?ECC8A4B7EEA9B9BC

For individuals without seizures, subclinical epileptiform discharges or

seizure-like activity, please use the following link:

www.surveymethods.com/EndUser.aspx?F6D2BEADF4B2A2AD

Thank you very much for helping us find answers to seizures in autism.

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Healing our kids and keeping the next generation healthy:

Autism Research Institute (ARI) staff member Fulton and her husband

Dean Fulton just had a baby boy, Reese Fulton. (Jack)

was on born April 14, 2010 and joins big brother Grant Fulton.

Congratulations to the Fulton family!

Lenny Schafer editor@... The Schafer

Autism Report is a non-profit corporation Unsubscribe here: www.sarnet.org/frm/unsub2.htm

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