Re: My own little survey...

[Guest guest]

In a message dated 7/1/2002 6:23:29 PM Mountain Daylight Time,

weehoo8@... writes:

> Of the HI children here who...

>

> has been since birth?

>

> Lost hearing in infant/toddler years for a known reason?

> What is the reason?

>

Lost hearing at approx. five days due to hyperbilirubinaemia as a result of

Rh disease.

> Lost hearing in infant/toddler years for NO known reason?

>

> has Cochlear Implant?

>

Received cochlear implant (N24) at age 5 yrs and 9 months.

> Will get the implant?

>

> Can sign?

>

Signing since 10 months old, first Irish Sign Language and then American Sign

Language.

> can speak?

>

comprehends oral language at one yr above age (current age 8 yrs and 9

months), expresses himself in oral english at age level (had NO oral language

prior to implant) but speech is delayed due to global apraxia, articulation

is at approx age 4.

Still uses and comprehends ASL.

órfhlaith

" Education is not the filling of a bucket but the lighting of a fire "

W.B.Yeats

[Guest guest]

In a message dated 7/1/2002 6:23:29 PM Mountain Daylight Time,

weehoo8@... writes:

> Of the HI children here who...

>

> has been since birth?

>

> Lost hearing in infant/toddler years for a known reason?

> What is the reason?

>

Lost hearing at approx. five days due to hyperbilirubinaemia as a result of

Rh disease.

> Lost hearing in infant/toddler years for NO known reason?

>

> has Cochlear Implant?

>

Received cochlear implant (N24) at age 5 yrs and 9 months.

> Will get the implant?

>

> Can sign?

>

Signing since 10 months old, first Irish Sign Language and then American Sign

Language.

> can speak?

>

comprehends oral language at one yr above age (current age 8 yrs and 9

months), expresses himself in oral english at age level (had NO oral language

prior to implant) but speech is delayed due to global apraxia, articulation

is at approx age 4.

Still uses and comprehends ASL.

órfhlaith

" Education is not the filling of a bucket but the lighting of a fire "

W.B.Yeats

[Guest guest]

In a message dated 7/1/2002 6:23:29 PM Mountain Daylight Time,

weehoo8@... writes:

> Of the HI children here who...

>

> has been since birth?

>

> Lost hearing in infant/toddler years for a known reason?

> What is the reason?

>

Lost hearing at approx. five days due to hyperbilirubinaemia as a result of

Rh disease.

> Lost hearing in infant/toddler years for NO known reason?

>

> has Cochlear Implant?

>

Received cochlear implant (N24) at age 5 yrs and 9 months.

> Will get the implant?

>

> Can sign?

>

Signing since 10 months old, first Irish Sign Language and then American Sign

Language.

> can speak?

>

comprehends oral language at one yr above age (current age 8 yrs and 9

months), expresses himself in oral english at age level (had NO oral language

prior to implant) but speech is delayed due to global apraxia, articulation

is at approx age 4.

Still uses and comprehends ASL.

órfhlaith

" Education is not the filling of a bucket but the lighting of a fire "

W.B.Yeats

[Guest guest]

For my daughter 0.7 >

>Ok, that survey gots me thinking.... Of the HI children here who...

>

>has been since birth? YES - - - - -

reason?

>not known yet - bloodwork will be ordered with the rest of her one year

>check up blood work - she's only 7 months old right now, no risk factors,

>total shock - even the audiologist didn't believe it has Cochlear Implant?

>

>Will get the implant? We go for a consult on 7/9

>

>Can sign? I think she understands some signs, but of course is too young to

>sign or speak.

>

>can speak?

>

Angel Gasior - mom to 5, hearing; andra, 4, hearing; and

profound SNHL 0.7

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

For my daughter 0.7 >

>Ok, that survey gots me thinking.... Of the HI children here who...

>

>has been since birth? YES - - - - -

reason?

>not known yet - bloodwork will be ordered with the rest of her one year

>check up blood work - she's only 7 months old right now, no risk factors,

>total shock - even the audiologist didn't believe it has Cochlear Implant?

>

>Will get the implant? We go for a consult on 7/9

>

>Can sign? I think she understands some signs, but of course is too young to

>sign or speak.

>

>can speak?

>

Angel Gasior - mom to 5, hearing; andra, 4, hearing; and

profound SNHL 0.7

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

For my daughter 0.7 >

>Ok, that survey gots me thinking.... Of the HI children here who...

>

>has been since birth? YES - - - - -

reason?

>not known yet - bloodwork will be ordered with the rest of her one year

>check up blood work - she's only 7 months old right now, no risk factors,

>total shock - even the audiologist didn't believe it has Cochlear Implant?

>

>Will get the implant? We go for a consult on 7/9

>

>Can sign? I think she understands some signs, but of course is too young to

>sign or speak.

>

>can speak?

>

Angel Gasior - mom to 5, hearing; andra, 4, hearing; and

profound SNHL 0.7

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Of the HI children here who...

has been since birth?

Our son's loss was identified at birth through the Newborn Hearing Screening

Program and follow-up testing confirmed that he was born profoundly deaf.

Lost hearing in infant/toddler years for a known reason?

What is the reason?

Lost hearing in infant/toddler years for NO known reason?

We believe that a virus that I had when I was pregnant caused his hearing

loss, although this cannot be confirmed 100%. We ruled out Connexin-26 and

other genetic factors, and since he has no other issues this is the most likely

cause for his loss.

has Cochlear Implant?

Will get the implant?

Yes. Without question a decision that we would make again as he has done

wonderfully with his implant. He had no benefit from hearing aids as his

audiogram started around 90 and sloped off the chart. He was implanted at 13

months with the N24.

Can sign?

can speak?

We've were strictly verbal with our son, until recently when we began to

learn/use basic signs during those times when we need to communicate to him when

his implant is not on. It's funny to us that we sign to him, but our deaf child

talks back to us - even when he can't hear!

mom to (3 yrs N24 06/00) and (5 yrs hearing)

[Guest guest]

Of the HI children here who...

has been since birth?

Our son's loss was identified at birth through the Newborn Hearing Screening

Program and follow-up testing confirmed that he was born profoundly deaf.

Lost hearing in infant/toddler years for a known reason?

What is the reason?

Lost hearing in infant/toddler years for NO known reason?

We believe that a virus that I had when I was pregnant caused his hearing

loss, although this cannot be confirmed 100%. We ruled out Connexin-26 and

other genetic factors, and since he has no other issues this is the most likely

cause for his loss.

has Cochlear Implant?

Will get the implant?

Yes. Without question a decision that we would make again as he has done

wonderfully with his implant. He had no benefit from hearing aids as his

audiogram started around 90 and sloped off the chart. He was implanted at 13

months with the N24.

Can sign?

can speak?

We've were strictly verbal with our son, until recently when we began to

learn/use basic signs during those times when we need to communicate to him when

his implant is not on. It's funny to us that we sign to him, but our deaf child

talks back to us - even when he can't hear!

mom to (3 yrs N24 06/00) and (5 yrs hearing)

[Guest guest]

Of the HI children here who...

has been since birth?

Our son's loss was identified at birth through the Newborn Hearing Screening

Program and follow-up testing confirmed that he was born profoundly deaf.

Lost hearing in infant/toddler years for a known reason?

What is the reason?

Lost hearing in infant/toddler years for NO known reason?

We believe that a virus that I had when I was pregnant caused his hearing

loss, although this cannot be confirmed 100%. We ruled out Connexin-26 and

other genetic factors, and since he has no other issues this is the most likely

cause for his loss.

has Cochlear Implant?

Will get the implant?

Yes. Without question a decision that we would make again as he has done

wonderfully with his implant. He had no benefit from hearing aids as his

audiogram started around 90 and sloped off the chart. He was implanted at 13

months with the N24.

Can sign?

can speak?

We've were strictly verbal with our son, until recently when we began to

learn/use basic signs during those times when we need to communicate to him when

his implant is not on. It's funny to us that we sign to him, but our deaf child

talks back to us - even when he can't hear!

mom to (3 yrs N24 06/00) and (5 yrs hearing)

[Guest guest]

Here are my answers:

has been since birth? Yes - found out through infant hearing screening.

What a Blessing!

Lost hearing in infant/toddler years for a known reason? no idea

What is the reason?

Lost hearing in infant/toddler years for NO known reason?

has Cochlear Implant? implanted 6/14, turning it on tomorrow! (Clarion)

Will get the implant?

Can sign? No we are going with the oral approach. So far so good!

can speak? Ellie is only 17 months old, but she does several words.

Excited to see how she does with the implant. Also a little scared!

mom to Ellie 17months implanted 6/14

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Here are my answers:

has been since birth? Yes - found out through infant hearing screening.

What a Blessing!

Lost hearing in infant/toddler years for a known reason? no idea

What is the reason?

Lost hearing in infant/toddler years for NO known reason?

has Cochlear Implant? implanted 6/14, turning it on tomorrow! (Clarion)

Will get the implant?

Can sign? No we are going with the oral approach. So far so good!

can speak? Ellie is only 17 months old, but she does several words.

Excited to see how she does with the implant. Also a little scared!

mom to Ellie 17months implanted 6/14

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Here are my answers:

has been since birth? Yes - found out through infant hearing screening.

What a Blessing!

Lost hearing in infant/toddler years for a known reason? no idea

What is the reason?

Lost hearing in infant/toddler years for NO known reason?

has Cochlear Implant? implanted 6/14, turning it on tomorrow! (Clarion)

Will get the implant?

Can sign? No we are going with the oral approach. So far so good!

can speak? Ellie is only 17 months old, but she does several words.

Excited to see how she does with the implant. Also a little scared!

mom to Ellie 17months implanted 6/14

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

My answers are below... - Pam

> Of the HI children here who...

>

> has been since birth?

Probably normal hearing or mild loss at birth -- don't know for sure.

> Lost hearing in infant/toddler years for a known reason?

> What is the reason?

Don't know when she lost hearing -- identified with mild-moderate loss at

age 6 and progressive since then.

> Lost hearing in infant/toddler years for NO known reason?

No known reason.

> has Cochlear Implant?

Nope.

> Will get the implant?

If or when she is a candidate, we will probably pursue this.

> Can sign?

Just " fun " stuff like " I love you " , " mommy " , " thank you " , etc.

> can speak?

Oh, yeah. The trick is getting her to be quiet!!

[Guest guest]

My answers are below... - Pam

> Of the HI children here who...

>

> has been since birth?

Probably normal hearing or mild loss at birth -- don't know for sure.

> Lost hearing in infant/toddler years for a known reason?

> What is the reason?

Don't know when she lost hearing -- identified with mild-moderate loss at

age 6 and progressive since then.

> Lost hearing in infant/toddler years for NO known reason?

No known reason.

> has Cochlear Implant?

Nope.

> Will get the implant?

If or when she is a candidate, we will probably pursue this.

> Can sign?

Just " fun " stuff like " I love you " , " mommy " , " thank you " , etc.

> can speak?

Oh, yeah. The trick is getting her to be quiet!!

[Guest guest]

My answers are below... - Pam

> Of the HI children here who...

>

> has been since birth?

Probably normal hearing or mild loss at birth -- don't know for sure.

> Lost hearing in infant/toddler years for a known reason?

> What is the reason?

Don't know when she lost hearing -- identified with mild-moderate loss at

age 6 and progressive since then.

> Lost hearing in infant/toddler years for NO known reason?

No known reason.

> has Cochlear Implant?

Nope.

> Will get the implant?

If or when she is a candidate, we will probably pursue this.

> Can sign?

Just " fun " stuff like " I love you " , " mommy " , " thank you " , etc.

> can speak?

Oh, yeah. The trick is getting her to be quiet!!

[Guest guest]

These answers are for my son ny 6, severe/profound

and my daughter 3, Mod/profound

> Ok, that survey gots me thinking....

> Of the HI children here who...

>

> has been since birth?*****NO*******

>

> Lost hearing in infant/toddler years for a known reason? *NO**

> What is the reason?**We THINK Autoimmune Inner Ear Disease*****

>

> Lost hearing in infant/toddler years for NO known reason?**YES**

>

> has Cochlear Implant?******NO*****

>

> Will get the implant?*******NO*****

>

> Can sign?****YES*****

>

> can speak?****YES*****

>

>

> I think this will help me know you all better. Thanks for your time.

>

>

>

> OH..my answers

>

> (3.3 = mod-severe bi-laterally)

> lost his hearing this year for no known reason as of yet. I believe

> there was some neglect issues b/c the pediatriction (ours was on

> maternity leave) didn't refer to an ENT...four months/ 5 rounds of

> antibiotics with a double ear infection.

> He speaks above his age level according to the speech therapist.

> Plan on keeping it that way!

>

> Thanks again!

>

>

>

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

[Guest guest]

These answers are for my son ny 6, severe/profound

and my daughter 3, Mod/profound

> Ok, that survey gots me thinking....

> Of the HI children here who...

>

> has been since birth?*****NO*******

>

> Lost hearing in infant/toddler years for a known reason? *NO**

> What is the reason?**We THINK Autoimmune Inner Ear Disease*****

>

> Lost hearing in infant/toddler years for NO known reason?**YES**

>

> has Cochlear Implant?******NO*****

>

> Will get the implant?*******NO*****

>

> Can sign?****YES*****

>

> can speak?****YES*****

>

>

> I think this will help me know you all better. Thanks for your time.

>

>

>

> OH..my answers

>

> (3.3 = mod-severe bi-laterally)

> lost his hearing this year for no known reason as of yet. I believe

> there was some neglect issues b/c the pediatriction (ours was on

> maternity leave) didn't refer to an ENT...four months/ 5 rounds of

> antibiotics with a double ear infection.

> He speaks above his age level according to the speech therapist.

> Plan on keeping it that way!

>

> Thanks again!

>

>

>

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

[Guest guest]

These answers are for my son ny 6, severe/profound

and my daughter 3, Mod/profound

> Ok, that survey gots me thinking....

> Of the HI children here who...

>

> has been since birth?*****NO*******

>

> Lost hearing in infant/toddler years for a known reason? *NO**

> What is the reason?**We THINK Autoimmune Inner Ear Disease*****

>

> Lost hearing in infant/toddler years for NO known reason?**YES**

>

> has Cochlear Implant?******NO*****

>

> Will get the implant?*******NO*****

>

> Can sign?****YES*****

>

> can speak?****YES*****

>

>

> I think this will help me know you all better. Thanks for your time.

>

>

>

> OH..my answers

>

> (3.3 = mod-severe bi-laterally)

> lost his hearing this year for no known reason as of yet. I believe

> there was some neglect issues b/c the pediatriction (ours was on

> maternity leave) didn't refer to an ENT...four months/ 5 rounds of

> antibiotics with a double ear infection.

> He speaks above his age level according to the speech therapist.

> Plan on keeping it that way!

>

> Thanks again!

>

>

>

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

[Guest guest]

Of the HI children here who...

Lost hearing in infant/toddler years for a known reason?

What is the reason?

<<We don't know when ' hearing loss began but it became noticeable when he

was nearly three and his language development seemed to halt and then reverse

itself. He was diagnosed at age 4 with a mild to severe loss which has now

progressed to mod to profound. has EVAS (enlarged vestibular aqueduct

syndrome) which was diagnosed by CAT scan.

Will get the implant?

is not a candidate at this time, nor have we considered it. We would also

never say never about anything like this, however.

Can sign?

We had introduced simple signs when ' communication skills were failing.

He now is nearly fluent in SEE (signed exact english) and we're trying to be.

:-)

can speak?

has wonderful speech skills now but that's after almost two years in a

total communication environment with daily auditory training. As another mom

here mentioned for her own child, benefits from sign for his receptive

language but usually responds orally to us. Most strangers would understand his

speech now.

I think this will help me know you all better. Thanks for your time.

You're welcome. :-)

Carol - mom to , 6.2

[Guest guest]

<< Of the HI children here who...

Neal (2 yrs 10 months):

has been since birth? Yes, although we didn't find out until he was 18 months.

Lost hearing in infant/toddler years for a known reason?

What is the reason? Unknown at this time.

Lost hearing in infant/toddler years for NO known reason?

has Cochlear Implant? Yes. Activated for 3 weeks now.

Will get the implant?

Can sign? Yes

can speak? Not yet.

>>

~Rhonda

[Guest guest]

<< Of the HI children here who...

Neal (2 yrs 10 months):

has been since birth? Yes, although we didn't find out until he was 18 months.

Lost hearing in infant/toddler years for a known reason?

What is the reason? Unknown at this time.

Lost hearing in infant/toddler years for NO known reason?

has Cochlear Implant? Yes. Activated for 3 weeks now.

Will get the implant?

Can sign? Yes

can speak? Not yet.

>>

~Rhonda

[Guest guest]

is 7 1/2 years old.

We suspected a hearing loss as early as 4 years old - but looking back, we

realize it must have been there from at least toddlerhood. It was officially

diagnosed when he was 6 years old and was a mild to moderate loss. Between

ages 6 and 7 it progressed to a moderate to severe loss. It has been fairly

stable the last 6 months.

After much testing (bloodwork, EKG, MRI, CAT Scan) we have not found a reason.

We have our test kit for the genetic bloodwork and will be doing that soon.

is still learning to read well, but is advanced a year above grade

level in math. He loves to do his reading lessons and wants very much to be an

independent reader!

We know the alphabet in sign language and a few other signs. We rarely use it.

He is a happy, outgoing, social, kind, and spiritual little boy and a great

brother to his 4 siblings. We are so very lucky to have him in our family. I

often say that everyone should have a " Brother Ben! "

in NC

[Guest guest]

is 7 1/2 years old.

We suspected a hearing loss as early as 4 years old - but looking back, we

realize it must have been there from at least toddlerhood. It was officially

diagnosed when he was 6 years old and was a mild to moderate loss. Between

ages 6 and 7 it progressed to a moderate to severe loss. It has been fairly

stable the last 6 months.

After much testing (bloodwork, EKG, MRI, CAT Scan) we have not found a reason.

We have our test kit for the genetic bloodwork and will be doing that soon.

is still learning to read well, but is advanced a year above grade

level in math. He loves to do his reading lessons and wants very much to be an

independent reader!

We know the alphabet in sign language and a few other signs. We rarely use it.

He is a happy, outgoing, social, kind, and spiritual little boy and a great

brother to his 4 siblings. We are so very lucky to have him in our family. I

often say that everyone should have a " Brother Ben! "

in NC

[Guest guest]

is 7 1/2 years old.

We suspected a hearing loss as early as 4 years old - but looking back, we

realize it must have been there from at least toddlerhood. It was officially

diagnosed when he was 6 years old and was a mild to moderate loss. Between

ages 6 and 7 it progressed to a moderate to severe loss. It has been fairly

stable the last 6 months.

After much testing (bloodwork, EKG, MRI, CAT Scan) we have not found a reason.

We have our test kit for the genetic bloodwork and will be doing that soon.

is still learning to read well, but is advanced a year above grade

level in math. He loves to do his reading lessons and wants very much to be an

independent reader!

We know the alphabet in sign language and a few other signs. We rarely use it.

He is a happy, outgoing, social, kind, and spiritual little boy and a great

brother to his 4 siblings. We are so very lucky to have him in our family. I

often say that everyone should have a " Brother Ben! "

in NC

[Guest guest]

My own little survey...

> Ok, that survey gots me thinking....

> Of the HI children here who...

>

> has been since birth?

My son, Dontae, is 2 years 5 months old. He has a bilateral sensorineural

severe / profound loss and was born with this loss.

> Lost hearing in infant/toddler years for a known reason?

> What is the reason?

>

> Lost hearing in infant/toddler years for NO known reason?

>

> has Cochlear Implant?

Dontae has 2 hearing aids (Phonak Novo Forte E4) and a Microlink MLX FM

System.

He is probably a candidate for the CI but we have decided not to pursue it

at this time.

> Will get the implant?

>

> Can sign?

Dontae signs Exact English. He has a pretty good amount of signs at this

point, at least 100 signs.

> can speak?

Dontae is learning to speak, he reads lips better than he listens with his

equipment.

>

>

>

>