Re: My own little survey...

[Guest guest]

My own little survey...

> Ok, that survey gots me thinking....

> Of the HI children here who...

>

> has been since birth?

My son, Dontae, is 2 years 5 months old. He has a bilateral sensorineural

severe / profound loss and was born with this loss.

> Lost hearing in infant/toddler years for a known reason?

> What is the reason?

>

> Lost hearing in infant/toddler years for NO known reason?

>

> has Cochlear Implant?

Dontae has 2 hearing aids (Phonak Novo Forte E4) and a Microlink MLX FM

System.

He is probably a candidate for the CI but we have decided not to pursue it

at this time.

> Will get the implant?

>

> Can sign?

Dontae signs Exact English. He has a pretty good amount of signs at this

point, at least 100 signs.

> can speak?

Dontae is learning to speak, he reads lips better than he listens with his

equipment.

>

>

>

>

[Guest guest]

My own little survey...

> Ok, that survey gots me thinking....

> Of the HI children here who...

>

> has been since birth?

My son, Dontae, is 2 years 5 months old. He has a bilateral sensorineural

severe / profound loss and was born with this loss.

> Lost hearing in infant/toddler years for a known reason?

> What is the reason?

>

> Lost hearing in infant/toddler years for NO known reason?

>

> has Cochlear Implant?

Dontae has 2 hearing aids (Phonak Novo Forte E4) and a Microlink MLX FM

System.

He is probably a candidate for the CI but we have decided not to pursue it

at this time.

> Will get the implant?

>

> Can sign?

Dontae signs Exact English. He has a pretty good amount of signs at this

point, at least 100 signs.

> can speak?

Dontae is learning to speak, he reads lips better than he listens with his

equipment.

>

>

>

>

[Guest guest]

> has been since birth?

Probably. He wasn't diagnosed till 1 1/2, but as early as 6 months we

noticed signs that he had a hearing problem.

> Lost hearing in infant/toddler years for NO known reason?

Again, yes. Our son's hearing loss has been progressive and his first

deterioration was near the end of his toddler years.

> has Cochlear Implant?

Yes. Our son received his CI when he was 12 (he's now 15) and he loves it!

> Can sign?

For some reason, our son has always had a strong dislike of sign language,

but has shown a slight interest in it since he got his CI. He's taken 2 sign

language classes and he seems to have a problem retaining the signs he's

learns.

> can speak?

As someone else mentioned, speaking is no problem for him, shutting him up

is another matter. ;-)

He speaks so well that he was interviewed for a local TV Segment on Cochlear

Implants that aired recently. He does have some slight slurring to his

speech, but that's because he wears a retainer and is not due to his hearing

loss.

-Kay

[Guest guest]

> has been since birth?

Probably. He wasn't diagnosed till 1 1/2, but as early as 6 months we

noticed signs that he had a hearing problem.

> Lost hearing in infant/toddler years for NO known reason?

Again, yes. Our son's hearing loss has been progressive and his first

deterioration was near the end of his toddler years.

> has Cochlear Implant?

Yes. Our son received his CI when he was 12 (he's now 15) and he loves it!

> Can sign?

For some reason, our son has always had a strong dislike of sign language,

but has shown a slight interest in it since he got his CI. He's taken 2 sign

language classes and he seems to have a problem retaining the signs he's

learns.

> can speak?

As someone else mentioned, speaking is no problem for him, shutting him up

is another matter. ;-)

He speaks so well that he was interviewed for a local TV Segment on Cochlear

Implants that aired recently. He does have some slight slurring to his

speech, but that's because he wears a retainer and is not due to his hearing

loss.

-Kay

[Guest guest]

answers below for our 9-year-old, Jo

My own little survey...

> Ok, that survey gots me thinking....

> Of the HI children here who...

>

> has been since birth?

YES

>

> has Cochlear Implant?

YES, FOR 7 OF HER 9 YEARS

>

> Can sign?

NO

>

> can speak?

YES, VERY WELL

>

>

> I think this will help me know you all better. Thanks for your time.

>

>

>

[Guest guest]

answers below for our 9-year-old, Jo

My own little survey...

> Ok, that survey gots me thinking....

> Of the HI children here who...

>

> has been since birth?

YES

>

> has Cochlear Implant?

YES, FOR 7 OF HER 9 YEARS

>

> Can sign?

NO

>

> can speak?

YES, VERY WELL

>

>

> I think this will help me know you all better. Thanks for your time.

>

>

>

[Guest guest]

Of the HI children here who...

has been since birth?

YES, AS FAR AS WE KNOW

Lost hearing in infant/toddler years for a known reason?

What is the reason?

Lost hearing in infant/toddler years for NO known reason?

WE DO NOT KNOW THE REASON FOR ALEX'S HEARING LOSS, BUT THEY ARE ASSUMING IT'S

GENETIC. SHE DID NOT TEST POSITIVE FOR CONNEXIN 26, BUT IT COULD BE ONE OF THE

GENES THEY HAVEN'T IDENTIFIED YET. WE HAVE NO HISTORY OF HEARING LOSS IN OUR

FAMILIES.

has Cochlear Implant?

NO

Will get the implant?

NO, AS ALEX HAS A MODERATE LOSS.

Can sign?

NO

can speak?

YES - ALEX IS 19 MONTHS OLD AND HAS A VOCAB OF ABOUT 60 WORDS. SHE CAN EVEN

ACCURATELY HUM 6 SONGS WHICH WE ARE VERY PROUD OF!

I think this will help me know you all better. Thanks for your time.

OH..my answers

(3.3 = mod-severe bi-laterally)

lost his hearing this year for no known reason as of yet. I believe

there was some neglect issues b/c the pediatriction (ours was on

maternity leave) didn't refer to an ENT...four months/ 5 rounds of

antibiotics with a double ear infection.

He speaks above his age level according to the speech therapist.

Plan on keeping it that way!

Thanks again!

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

Of the HI children here who...

has been since birth?

YES, AS FAR AS WE KNOW

Lost hearing in infant/toddler years for a known reason?

What is the reason?

Lost hearing in infant/toddler years for NO known reason?

WE DO NOT KNOW THE REASON FOR ALEX'S HEARING LOSS, BUT THEY ARE ASSUMING IT'S

GENETIC. SHE DID NOT TEST POSITIVE FOR CONNEXIN 26, BUT IT COULD BE ONE OF THE

GENES THEY HAVEN'T IDENTIFIED YET. WE HAVE NO HISTORY OF HEARING LOSS IN OUR

FAMILIES.

has Cochlear Implant?

NO

Will get the implant?

NO, AS ALEX HAS A MODERATE LOSS.

Can sign?

NO

can speak?

YES - ALEX IS 19 MONTHS OLD AND HAS A VOCAB OF ABOUT 60 WORDS. SHE CAN EVEN

ACCURATELY HUM 6 SONGS WHICH WE ARE VERY PROUD OF!

I think this will help me know you all better. Thanks for your time.

OH..my answers

(3.3 = mod-severe bi-laterally)

lost his hearing this year for no known reason as of yet. I believe

there was some neglect issues b/c the pediatriction (ours was on

maternity leave) didn't refer to an ENT...four months/ 5 rounds of

antibiotics with a double ear infection.

He speaks above his age level according to the speech therapist.

Plan on keeping it that way!

Thanks again!

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

Of the HI children here who...

has been since birth?

YES, AS FAR AS WE KNOW

Lost hearing in infant/toddler years for a known reason?

What is the reason?

Lost hearing in infant/toddler years for NO known reason?

WE DO NOT KNOW THE REASON FOR ALEX'S HEARING LOSS, BUT THEY ARE ASSUMING IT'S

GENETIC. SHE DID NOT TEST POSITIVE FOR CONNEXIN 26, BUT IT COULD BE ONE OF THE

GENES THEY HAVEN'T IDENTIFIED YET. WE HAVE NO HISTORY OF HEARING LOSS IN OUR

FAMILIES.

has Cochlear Implant?

NO

Will get the implant?

NO, AS ALEX HAS A MODERATE LOSS.

Can sign?

NO

can speak?

YES - ALEX IS 19 MONTHS OLD AND HAS A VOCAB OF ABOUT 60 WORDS. SHE CAN EVEN

ACCURATELY HUM 6 SONGS WHICH WE ARE VERY PROUD OF!

I think this will help me know you all better. Thanks for your time.

OH..my answers

(3.3 = mod-severe bi-laterally)

lost his hearing this year for no known reason as of yet. I believe

there was some neglect issues b/c the pediatriction (ours was on

maternity leave) didn't refer to an ENT...four months/ 5 rounds of

antibiotics with a double ear infection.

He speaks above his age level according to the speech therapist.

Plan on keeping it that way!

Thanks again!

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

In a message dated 7/1/02 7:22:25 PM Central Daylight Time, weehoo8@...

writes:

These responses are about , 6 years old. Severe-profound unaided. She

wears a cochlear implant in one ear, hearing aid in the other.

> Ok, that survey gots me thinking....

> Of the HI children here who...

>

> has been since birth?

>

> Lost hearing in infant/toddler years for a known reason?

> What is the reason? Yes, lost some hearing at 3 months of age because of

> pneumococcal meningitis.

>

> Lost hearing in infant/toddler years for NO known reason?

>

> has Cochlear Implant? Yes, the MedEL Combi 40+ BTE speech processor - this

> has been an absolute miracle! She was hooked up 1/13/01.

>

> Will get the implant?

>

> Can sign? She only knows a few signs

>

> can speak? is oral and consistantly communicates in 4-5 word

> sentences spontaneously. I have to correct her articulation on occasion -

> very easy to do with her speech processor in place. She simply can hear me

> like she never could before! She is still speech delayed, but in the last

> school year she acquired 15 months of language. I anticipate that by the

> end of next school year, she can be at age appropriate level. WOW!

>