Re: What should be our next step?

[Guest guest]

I forgot one thing. Dr.Usmans office told me that if they do

valtrex,they only use 2-250mg. a day for a 75 pound child(its

supposed to be 3-500mg. a day). With all my studies on Valtrex,that

dose may only cause problems. Tammy F.

Is all those things getting to the root of the problem?

I have to tell you,I have spent 11 years going doctor to

doctor for my son.Going to ones I thought where the best.

Including a Dan doc. for 9 years(he was always in the

background).I still thought a Dan doctor was appropriate

along with biomedical.I chose Dr. Usmans office(they all

work together in her office,supposedly).I talked to 2

nurses and they insisted my son was just like the other

patients they have gotten well.My son has extreme

reactions to everything!They still thought he is a perfect

fit. So Nov.9,2010 I drove my son to there office for the

appt.. Guess what,I ended up leaving with 10 different

natural therapies.I thought I would give them the benefit

of the doubt ,so I tried there treatment protocol.Well,my

son reacted to everything severely just as I told the docs

would happen.They suggested to start them slower.I did one

every 5 days.The docs where never available.They might

call you the next day or maybe 3 days later.And maybe they

had consulted with the docs and maybe not. It finally came

down to my son being so sick that he needed to be in the

hospital.They finaly were convinced that I needed a phone

appt. I waited my week.Had the phone appt..The only

suggested thing to do was to stop everything.They didn't

have all the most important blood work.The appt. was a

waste($225.00).They did not know what to do.And left on

vacation(for 2 weeks) and told me nothing.I received a

phone call after that and they said "I can't help your

son.He can't do the naturals we need him on".They had no

referrals for me and no ideas where to go from there.

Neadless to say,$1200.00 later and my son even sicker,I

will never refer any one to that office. I went to Dr.

Jan.12,2011. For NIDS treatment and he seems to

understand a lot more on what is going on.He talks about

the root of the problem,not just the symptoms.I think he

is right on.Good luck on your decision. If you would like

to talk please call Tammy F.(785)842-1725.

Our biomedical journey began 6 months ago,to date

we have started the GFCFSF diet, B12 shots, Mito

Support, and mult supplements.We did two months on

Nystatin which I think I messed up by giving grape

juice during that time to get down the other

supplements do so 2 weeks after she got off

Nystatin the yeast was back and this time she was

put on Diflucan for 30 days, she is almost done

with that and the yeast seems to be under control

The last time I spoke with my Dan was in November

after I received the lab results for her

titers..which makes me sick to my stomach. My

daughter has 6 titers that are all high..5 are

between 2 and 5 and her Reballa is 385.3. When I

pick up the lab results I spoke with Dr Usman who

is the head Dan but wasn't my dan, she went over

the labs and said that Rublla should never be so

high and when I asked if we should do antiviral

treatment she said that virus's can be

"tricky" and asked if I have tried the Vitamin A

protocol for her measules which was 5.35, I said

no and she said that it may help.

Anyway I spoke with my dan who said that she is

concerned that my daughter may have a mitochondria

dysfunction or a disorder based on some high/low

amino acids and also because of something to do

with a lactate acid test however because my

daughter was on the MCT oil that lab results said

to retest once we are off. She started my daughter

on a mito support then, added Larix to her

supplements and

changed her from B12 drops to B12 Shots.

When I called to schedule my 90 day check up I was

told that my dan is turning me over to Dr Usman

the head dan.I go in Feb to meet with her. I'm

sorry that my post is SO long but my question is

what do you think we should be doing next? We know

that she has HIGH Viral titers and to be honest

with all that we are on I would think I would see

some HUGE gains. Since starting biomedical I have

been able to get her to make more eye contact,

seems to understand alittle bit more

what's going on around her and here and there does

show interest books, toys and my other children

however she is still doing HER thing most of the

time. She has a couple words that she uses from

time to time but not everyday,she doesn't

commucate in anyway what she wants and the only

time she cries is when one of the other kids takes

a toy from her. She is still having aproblem

completing even a simply task in therapy and most

of the time we have a hard time keeping her in the

room for therapy.She is 2.5 and I am really

struggling with the diet because she is SO picky.

So I guess I'm just wondering what my next step

should be? Should I let the dan guide me or should

I ask to start antiviral or maybe talk about

chelation? I just know that diet and supplements

are not going to get her recovered. On my

Assessment plan from Novemeber my dan wrote that

she would like to do the Vit A protocol, and add

BCCA(which I don't now what that is) and also

Methione Sl

which I was told because that level is low it

makes a person do the same thing over and over.

Any advise on what my next step shoud be? My

daghter wasn't tested for heavy metals yet

either.Again I'm sorry for the long post...it's

just driving me crazy to see her like this and

therapy is helping but I know that she has alot of

things that are holding her back.

One more thing I don't know if the Vitamin A

protocol would be a good thing because she gets a

bloated belly from just 5000 iu's of Vit A and I

heard that all it does is stur up yeast

anyway..her high titers are on the 6 shots from

the MMR and DPT.

Thanks for listening

jENNIFER