Guest guest Posted September 20, 2000 Report Share Posted September 20, 2000 Joanne - you and me both! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 In a message dated 10/16/00 6:11:07 PM Eastern Daylight Time, JJCATHCART@... writes: << m Joanne Cathcart. I was born in 1945, and I am married to a wonderful and very supportive man. I have a daughter , grown with 7 children ...yup and a son with 1 daughter. >> Seven kids!! She Must have the patience of Job!! I would be in a mental ward! Thanks for your story. Now, who else will give us the low-down! Hugs to all, Ginger-gehud119@... Ginger--AIH-IN FLA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 Hi, I am Lori C. from Minnesota. I am 34 years old and am married and have 3 kids aged 15, 12 and 9 years old. I was diagnosed with Chronic Active Autoimmune Hepatitis with Cirrhosis on July 31st 1996. I was seen in the liver transplant clinic at Rochester Methodist Hospital, part of Mayo Clinic. Dr. Louis Letendre, an onocologist at Mayo diagnosed me on July 29th 1996, then the diagnosis was confirmed on July 31 by Dr. Albert Czaja and Dr. Marotta. I was told I would need a liver transplant within a year or I would be dead. At age 30 it was devastating. I was misdiagnosed for 7 years and was told I was just a young mother with 3 kids who was depressed!! =( So I was put through a 5 day transplant evaluation in Sept and Oct 1996 and was put on the transplant list on Oct. 18, 1996. By the grace of God I was transplanted on March 11, 1997 after only about 5 months wait! I was in the hospital 7 days and had 1 bout of rejection 6 days post transplant that was treated with high doses of Solu~ Medrol. I also had troubles with a bile stricture and had that ballooned open 3 times from July 1997 until November 1997. I am currently 43 months post transplant and a doing fairly well. My kidney function has decreased from .08 to 1.3 post transplant and in March 2000 I had a biopsy at 3 years post TX and was told the old disease AIH was rearing its' head and I now have portal infiltrates, which means the AIH has permeated the portal tracts of the liver. I thank God and my donor Tom, every day, for each day that I have been given. My donor was a 43 year old man who had a brain aneurysm and went into a coma and never woke up. He had told his mother he wanted to donate his organs if he should pass on. I keep in touch by letter and phone with my donor's mom, and hope to meet her in person one day. I live each day one day at a time and try to live life to the fullest. I just wish I could have found this group before transplant to benefit from your wonderful support, but hope I can help those who are now facing this dreaded autoimmune disease. I do have a face to face transplant support group started and there are 3 members now, Myself and another transplant patient and a lady with PBC who has been waiting 32 months for a new liver. Please take care of yourselves and reslish in the support that those in this group can give, it is a real wealth of info!! God bless to all! Lori Cummins [ ] Re: Joanne >In a message dated 10/16/00 6:11:07 PM Eastern Daylight Time, >JJCATHCART@... writes: > ><< m Joanne Cathcart. I was born in 1945, > and I am married to a wonderful and very supportive man. I have a daughter , > grown with 7 children ...yup and a son with 1 daughter. >> > >Seven kids!! She Must have the patience of Job!! I would be in a mental ward! > Thanks for your story. >Now, who else will give us the low-down! >Hugs to all, >Ginger-gehud119@... > >Ginger--AIH-IN FLA. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 Glad to hear you are doing pretty good. Take care and God bless, Genny/Jodi's Mon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 > Jerry.....You got it! : ))) web TV can be hard to do and learn from what others tell me...I am here learning Earthlink and Outlook Express mail.....after years of AOL....huge difference. So much to learn ....all so different! But..boy, this is sure faster then my AOL was. This area is a bad place to have AOL.even their ads on TV here say " Availability may be limited. " As Gomer would have said., " surprise, surprise surprise. " : Ok folks I just dated myself I will freely admit my age...I am 56. : )) ---------------------------------------------------------------------------- ---- > http://www.hepatitis-central.com/hcv/liver/prevention/varices.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2001 Report Share Posted September 13, 2001 Thanks Joanne, we sure hope it works. Genny & Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 I will tell him I want to have that blood test done, uncontrolled diabetis is not good for the liver either is it? I am sure there must be some sugar med's that we can take. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Joanne, I'm very glad to hear from you. I'd been told you didn't want any personal e-mail,and I thought you weren't reading the group mail. I hope you see this, so I'll have a way of telling you how much we miss you and that we wish the very best for you. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Joanne, I'm so sorry you're not feeling better yet. I think of you very often -- at LiverSupport times and outside those times. I'm immensely grateful for the help you've provided. I've come to consider you a friend, even given our limited acquaintance. Please, please keep in touch. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Hello Joanne....I am so sorry youll be leaving as Owner. I have great respect for you & want to thank you for all the help & advice youve given me. I pray that it wont be too much longer before you get on top of your illness. Its been a hairy time lately for the group & Im not surprised that you're exhausted after it all. But we all love you very much and it wont be the same without you. Love Jan.....Haere Ra (farewell my friend until your return)....a NZ Maori farewell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2003 Report Share Posted August 6, 2003 Dear Joanne, We've missed you. Sorry you are having more difficulties. It will be nice to hear from you! My thoughts are with Tony. I know things a very rough right now and the emotional and physical set backs are hard to fight when you are always in the battle - I guess that's what we are here for - reinforcements!!! We may have to set a time and day for a bubble blowing party for all of us with special thoughts for Tony - what do you think? Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2003 Report Share Posted December 24, 2003 TONY: THANKS FOR THE UPDATE, YES WILL KEEP ALL OF JOANNE'S FAMILY IN OUR PRAYERS AND FOR JOANNNE. hOW ARE YOU FEELING? CLIFF HAD MRI ON FRIDAY,, THEY CALLED TODAY, TO SCHEDULE A BIOPSY, FOR THE 31ST OF DEC. tHEY FOUND SOMETHING ON THE LIVER--- HE IS WORRIED. bUT, i AM SURE THEY ARE KEEPING HIM UPDATED. hE IS WORRIED ABOUT CANCER. WE HOPE YOU ARE FEELING GOOD FOR YOUR HOLIDAYS , AND HOPE YOU HAVE A GOOD NEW YEAR. hOPE EVERYONE HERE, HAS A BETTER AND BRIGHTER YEAR. BLESS ALL OF YOU. Love Gaynel & CliffXXXX & OOOOOS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 Joanne, So glad you are back and doing well. Continue to rehab and feel better soon. You were missed and we all thought about you. Glad you're back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 Dear Joanne, It brought such a smile to my face to see you writing. I am very happy for you that things are going well and that you are home. You are such a strength and inspiration to us all. I pray for your continued recovery and then on with life! Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Goodmorning Joanne ~ The sad thing, I have story after story of how horrible the medical care is here in the US. I worked in the field for 26 years and had to stop working in 99, so I worked in it when there were doctors that had a true desire to be doctors, and were careing and compassionate and were people of honor, and they respected their hippocratic oath to first do no harm. If they didnt know something, they went and learned. They would charge a reasonable fee and handle what ever you went in for, and didnt feel the need to charge you for every single thing you approached them with. Many times they would see a couple kids for one office visit, and it was affordable. You didnt have to fill out 10 papers of CYA legalities for the doctor to protect " them " from their negligent -malpractice ways, like you do now....... They actually used to examine you, look in your ears, eyes, mouth, nose, feel your neck, check your lymph nodes, listen to your chest and back, check your reflexes, and anything else pertaining to you and your symptoms. They actually asked you questions and listened to your answers. Now, you see a doctor, and they move so fast, they are quickly listening to your chest while they are talking. ( how talented, I wonder if they hear anything at all ? ? also, do they learn that technique in med school ? ) Then, they hand you a lab slip for a CBC, and maybe a urinaylsis, then give you a list of doctors to see for each one of your symptoms. The whole visit took 2-3 full minutes ! For the list of doctors to see, say, you have a cold, headache, cough, hot sweats, fever with a fast pulse due to the fever, and a runny nose. Your list of doctors to see will be: ENT for the runny nose, neurologist for the headache, a lung specialist for the cough, an endocrinologist for the hot sweats, and a heart doctor for the fast pulse. Now 1500 bucks down and a month later, your cold is gone, all on its own....... This is one huge place where the US medical system is failing everyone. Treating symptoms as a disease, with drugs that give you side effects is another huge failure, only a bandaid with toxins on it....never getting to any root cause. It is not just insurace companies that are the problem, it is the way doctors no longer practice medicine. They just shuffel people, papers, and collect money. Nutrician is at least 3/4 of health, and there is very little real true nutrician taught, and with all the fast foods, and restaurants to help our fast paced lives, and foods sold that have been manipulated with toxins, hormones, antibiotics, pasturization and no telling what else, it is a wonder any of us are alive, and there is certainly many sick people due to it. Speaking of the healthcare system or insurance companies failing the people, I was in the hospital for 36 hours for a hystorectomy, bladder repair, and breast surgery, 11 inches, cut on my chest, 3 inches under each breast, and 5 inches under my right arm pit, where they removed strips and strips of my tissue that was riddled with cysts, siliconomas, granulomas, and things of that sort, even strips up over my right shoulder ! They sent me home with a catheter since my bladder wouldnt work, had it for 15 days ! ! That is alot of surgery to be sent home a day and a half later ! I went in on a thursday morning and went home friday evening ! It was a horrible experience ! One I hope no one ever has to experience. I too, hope that I find a doc to help me. But you can see my hesitation...... Have a wonderful day ! more venting helped mine ! ! Hugs Dede **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Dede,I know you don't trust the medical profession (who could blame you?) . . . but surely, if you keep looking you'll find a doctor who really does care! . . . Please keep looking!And do check patient advocates at the hospitals. Maybe one of them will be able to help you find a sympathetic doctor!Love,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2010 Report Share Posted October 14, 2010 Joanne has decided to spend her time doing other things. She posted about a week or so ago. Sharon PA Quote Link to comment Share on other sites More sharing options...
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