Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 Hi Lynda ~ I am sorry there is a delay, but it gives you one more week to mess around. I am glad the rib ordeal is something that will go away and not a chemo thing. That is good ! I read where juicing carrots and celery beefed up your white count....I just sent a separate email on a thread I was reading Love Dede**************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 Chemo is delayed for a week because my blood counts are too low. Not low enough for the injections that bring them up and the doc thinks that they will come up on their own in a week (I hope). So, next week will be the start of my new regime of two chemo drugs. It was disappointing because it takes a lot to psych myself up to start a new regime, but doing chemo with such low blood counts could put me in the hospital. So, next Wed. I should have more info. For those who knew about the pain in my rib, it is costochondritis, inflamattion of the cartilage. Painful, probably not related to the cancer, and will go away. I had it before from an allergy to shellfish when I took glucosamine and chondritin for my joints. It did go away when I quit taking the supplement. So, besides the frustration of waiting, all is ok. I plan to go to Oregon for 4 days the end of this month with my sister when she leaves for Hawaii. I am often too tired to do much, so hope I will be ok after 2 rounds of a new chemo and can do some things when I am in Oregon. Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 Oh Lynda,I can't imagine getting psyched up, then dropped like a hot potato! . . . It would be nice if they would do something to build up your blood count between now and next week! . . . Not take any chances.Your remark about shell fish and glucosamine and chondritin got my attention . . . My hubby has been having a bad time with gout . . . Shellfish are out! . . . Is all glucosamine and chondritin made from shellfish?In the meantime . . . How do you like liver?Love,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 Hi Rogene, Yes, if you are allergic to shellfish, you should look for the non-shellfish brand of glucosamine and chondroitin. Patty gave it to me once, but I do not remember what it was. The things they can give you to bring up your blood counts cannot be given unless my blood counts get even lower. Liver will not help the blood counts that are low, but I am taking supplements that are supposed to help bring it up. Hope you are doing well? Love, Lynda At 04:56 PM 9/10/2008, you wrote: >Oh Lynda, > >I can't imagine getting psyched up, then dropped like a hot potato! >. . . It would be nice if they would do something to build up your >blood count between now and next week! . . . Not take any chances. > >Your remark about shell fish and glucosamine and chondritin got my >attention . . . My hubby has been having a bad time with gout . . . >Shellfish are out! . . . Is all glucosamine and chondritin made from shellfish? > >In the meantime . . . How do you like liver? > >Love, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 Lynda,Maybe this is why my hubby is having such a hard time with gout . . . I need to do more investigating. I'm doing OK . . . not great. I'm beginning to feel the effects, but not too bad.Right now I'm concentrating on accepting each day for what it is. . . I can't waste my energy worrying about what MIGHT happen in the future, or change yesterday.Love,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 Rogene, I hope that the effects do not get too bad. I would definitely check out to see if the supplement is causing or helping create the problem with your hubby. I am struggling with the each day thing. I have so much more chemo and treatment to go through, maybe years. Love, Lynda At 06:03 PM 9/10/2008, you wrote: >Lynda, > >Maybe this is why my hubby is having such a hard time with gout . . >. I need to do more investigating. > >I'm doing OK . . . not great. I'm beginning to feel the effects, but >not too bad. > >Right now I'm concentrating on accepting each day for what it is. . >. I can't waste my energy worrying about what MIGHT happen in the >future, or change yesterday. > >Love, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2008 Report Share Posted September 11, 2008 Lynda: Thank you for the update on your chemo. The delay might give you some time to relax; however, it must be disappointing for you. Honey, have a wonderful time with your sister, we will be thinking of you. I am glad that your costochondritis is getting better. Sending love and prayers to you......Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````````````` Update on chemo Chemo is delayed for a week because my blood counts are too low. Not low enough for the injections that bring them up and the doc thinks that they will come up on their own in a week (I hope). So, next week will be the start of my new regime of two chemo drugs. It was disappointing because it takes a lot to psych myself up to start a new regime, but doing chemo with such low blood counts could put me in the hospital. So, next Wed. I should have more info. For those who knew about the pain in my rib, it is costochondritis, inflamattion of the cartilage. Painful, probably not related to the cancer, and will go away. I had it before from an allergy to shellfish when I took glucosamine and chondritin for my joints. It did go away when I quit taking the supplement.So, besides the frustration of waiting, all is ok. I plan to go to Oregon for 4 days the end of this month with my sister when she leaves for Hawaii. I am often too tired to do much, so hope I will be ok after 2 rounds of a new chemo and can do some things when I am in Oregon.Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2008 Report Share Posted September 11, 2008 Hello Lynda ~ I just wanted to wish you a good time on your trip with your sister. I hope you have a blast ! You will be in my thoughts and prayers Love Dede**************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2008 Report Share Posted September 11, 2008 Lea, I was frustrated that I had to psych myself up for the chemo and then it didn't happen. Now I have to do it all over again. And, if the blood counts are still low, I will be waiting again. So, hopefully, they are ok by next Wed. I am going on a 2 day trip to the Royal Gorge and Canon City with my sister, leaving in the Morning. I am trying to figure out what caused the costochondritis. I am wondering about shrimp, since I have had problems with shellfish like lobster, clams, crabs, etc. I also have a problem with salmon. I ate shrimp sometime last week before this pain started. It got a little better today. I will be testing shrimp to see if that is the cause. If not, I don't have a clue. Love, Lynda At 09:04 AM 9/11/2008, you wrote: >Lynda: > >Thank you for the update on your chemo. The delay might give you >some time to relax; however, it must be disappointing for you. > >Honey, have a wonderful time with your sister, we will be thinking >of you. I am glad that your costochondritis is getting better. > >Sending love and prayers to you......Lea >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````````````` > Update on chemo > >Chemo is delayed for a week because my blood counts are too low. Not >low enough for the injections that bring them up and the doc thinks >that they will come up on their own in a week (I hope). So, next >week will be the start of my new regime of two chemo drugs. It was >disappointing because it takes a lot to psych myself up to start a >new regime, but doing chemo with such low blood counts could put me >in the hospital. So, next Wed. I should have more info. For those >who knew about the pain in my rib, it is costochondritis, >inflamattion of the cartilage. Painful, probably not related to the >cancer, and will go away. I had it before from an allergy to >shellfish when I took glucosamine and chondritin for my joints. It >did go away when I quit taking the supplement. > >So, besides the frustration of waiting, all is ok. I plan to go to >Oregon for 4 days the end of this month with my sister when she >leaves for Hawaii. I am often too tired to do much, so hope I will >be ok after 2 rounds of a new chemo and can do some things when I am >in Oregon. > >Lynda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Hello Lynda ~ Sorry you had to have those shots, but they will build yoru blood up real good. They worked well for Dad. Enjoy your trip ! ! This is just a pause, not a setback.... this will give you some time so that hopefully you will feel good on your trip ! Love Dede**************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Hi Dede, I am just anxious to get this whole chemo thing over with. Now I have to wait 9 days to do the next one. But, I will survive, and will definitely try to enjoy my trip. Did your dad ever have extreme fatigue from any of these shots? 39% will experience this, according to what I read online. I was in bed for almost 3 days the last time, but do not know if it was from anemia or the shot. Love, Lynda At 09:32 PM 9/24/2008, you wrote: >Hello Lynda ~ >Sorry you had to have those shots, but they will build >yoru blood up real good. They worked well for Dad. >Enjoy your trip ! ! This is just a pause, not a setback.... >this will give you some time so that hopefully you >will feel good on your trip ! >Love Dede > > >************** >Looking for simple solutions to your real-life financial challenges? >Check out WalletPop for the latest news and information, tips and calculators. >(http://www.walletpop.com/?NCID=emlcntuswall00000001) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Oh, Sweet Lynda, we all hope that the nausea will not hit you today. The blood transfusions will help, and will give you the strength that you need to get through all of this. I am sorry that your hair is gone, but it will grow back, and we are sure that you look cute in your little hats and wigs. You are an inspiration to all of us, what a brave lady. I wish that you had a little kitten or a puppy to love you; however, it might be too much work for you. A little Squirrel is yelling at us, he wants his peanuts. started to feed him just after we moved here, and he has eaten most all of our barbecue cover lining. We think that he is building a nice little home for his family. Little things like that make life so much better. Honey, we are all praying for you, and loving you too....Lea and ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````` Update on chemo Had chemo yesterday, Abraxane and Gemzar. My red blood count was the lowest I have ever seen it, 7.6, so chemo was followed by 2 pints of blood, for which I had to go to the hospital and be there for 5 hours. My white blood count has dropped to 3.7 so we will be watching this closely this next week. I got home at about 9 P.M. I was very tired. 60 miles is a long way to drive after all that.A little nausea this morning. Had to get up abut 5 A.M and take an anti-emetic. Did sleep pretty well, unusual after chemo. Maybe the blood helped.Hopefully chemo next Friday. I will have my blood tested on Tues. This next week I should be receiving Aranesp and Neulasta, although I may have to have Neupogen from Tues. through Thurs. to do chemo on this Friday. Then I will have a week off of chemo. The odds are pretty good that I will be doing regular blood transfusions throughout this chemo regimen, which could be two more months or could last until Jan-Feb. I hope to get a PET scan in Dec. to check on progress.I have a little more energy this morning, compliments of the blood units I received. I can actually walk without my legs aching and not wanting to move. I think I will do laundry today while I have a little energy. And do some meal planning ahead of time because the flu-like symptoms start about 48 hours after the chemo, which gives me until about 2 P.M on Sunday. They last at least 2 days. I spend most of that time in bed. Cooking causes me nausea and makes me not want to eat.For those who do not know, I had my head shaved off last Tuesday as the hair was coming out very fast. I cried when it came off. I still have not looked at it. I did get a cute light red wig which everyone loves. A friend gave me another one yesterday. I think I have enough wigs now. I may have one trimmed so it is not so long and is more easily manageable. When I have someone here who can take the pictures, I will send a few pics of me in the wigs. A lot of the time I wear turbans, more comfortable and cooler and do not itch. I got some cute little caps that cover the crown on my head and keep the wigs from itching anywhere except on the edges. That helps a lot.My eyebrows were itching last week (just what the hair did a week before it came out) so I expect they will go this coming week. My eyelashes are all falling out. I don't have much hair anywhere on my body right now.All in all, I guess I am doing ok. I was stressed about getting blood transfusions. I have to work on that, I guess.This is what I know this week. It seems to change every week.Loie,Lynda Quote Link to comment Share on other sites More sharing options...
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