Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 Qiessence ~ It sounds like the one breast had more trauma than the other. Did the doctor did pathology on the implants and surrounding tissue and capsules ? ? You need to call and get the report. The fluid sounds like plasma, but here is a page I found about drain tubes: http://www.brighamandwomens.org/surgicaloncology/BreastCenter_IncisionCare.aspx The Comprehensive Breast Health Center - Post Surgery Patient Care Here is part of what it says, for the full discussion, click on the link, or copy and paste the web page into your browser......... If the drainage suddenly stops, it may mean that the tubing is clogged or leaking. You may try “milking†the drain tube. To do this, grasp the tubing tightly between your thumb and index finger near your skin. With the other hand, compress the tubing and slide your fingers down the tube toward the bulb. This will help dislodge any material that may be blocking the tube and resolve the leakage. Do this at least two times per day until the drain is removed. Milking the tubing is easier using a small alcohol pad. If there is still no drainage, please call your surgeon’s office. Gradually the color of the drainage may change from cherry-red to a red-yellow to a straw color. What to watch out for: Be sure to call your surgeon if any of the following occur: 1. Temperature greater than 101.5°F. 2. Signs of infection (redness, swelling) 3. Foul-smelling drainage from the wound 4. Worsening of pain 5. Nausea and vomiting 6. Chest pain, shortness-of-breath, rapid heart beat 7. Leg-calf tenderness or pain 8. Bruising easily 9. Blood in stool or urine 10. Black, tarry stool 11. Unusual weight gain or loss 12. Sudden trouble seeing clearly 13. Loss of speech or trouble talking 14. Sudden weakness or numbness of face, arm, or leg on one side of the body 15. Sudden, severe headache with no known cause 16. Other:________________________________ For peace of mind, I would call the surgeon's office and discuss this with them. Another concern is the headache/migrane you have had for so long...do you have any of the other symptoms listed above ? ? There is usually a period of time at surgery that you feel like a million bucks, I think it is cuz of the meds used in anesthesia. I know that darvon gave me migranes, and I had to stop that med and get a different one. Please keep us posted and let us know how you are and what your doc says. You are in my thoughts and prayers ~ Love Dede **************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 Qiessence ~ Bless your heart. Is there a neighbor that can help you? or perhaps, do you go to a church? are there church folks that can help ? ? How about calling s Ministries in your area....I am sorry you are feeling so badly and have little or no help. You are in my prayers....... Where do you live ? ? Hugs Dede**************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 Hi, I can't tell you much about the drains...except that some women have them longer than others. Your doctor should be able to monitor this and tell you when they are ready to come out. As for the feeling worse, that can be expected and happens quite consistently after explant. There is a honeymoon period that lasts about 6 weeks, and typically after this period, you begin to experience the same old symptoms and even some new ones. That happened to me, and I felt quite ill for about 18 months after explant. I detoxed that whole time, but boy did I ever feel sick. The biggest mistake women can make is to expect to feel like they can take on the world after explant and everything will be hunky-dorey. Doesn't happen that way, unfortunately. It's not like pulling a bad tooth, because it's much more involved than a localized infection. It is a systemic dysfunction that can take a couple of years to recover from. Take care of yourself, and just relax as much as you can about your healing. If you see something that looks like abnormal, make sure to get it checked out....with drains there IS risk of infection, so you need to make sure all is clear and nothing is going on. But other than that, your healing experience will more than likely be just starting, and it will be a journey. Patty > > My left drain was taken out last Thursday, but my right was still > producing over 30cc's a day. As of today, the total output for the > right drain since surgery on the 5th is 346.5 cc's, with no signs of > slowing down. > > The fluid is an orangy color - it was still bloody the day the left > was pulled, but changed color that night. > > Is something wrong? Shouldn't it be slowing down by now? Am starting > to get a bit nervous about it and about the amount of headaches and > migraines I have had in the last week. I felt so great in the first 3 > days after surgery - I was happy and ready to take on the world, and > now I feel worse than I did before surgery. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 Qiessence . . . Just be glad you have drains! . . . You would be one of the women who would be in a world of hurt if you didn't have drains! . . . One of our women stayed near her doctor for several weeks! . . . If you have any concern about the appearance of the fluid, please contact your surgeon. . . If you used a surgeon who's some distance from you, you might be able to email a photo to him/her. He/she would be the best person to advise you.Hugs and prayers,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 Thank you for all of that information. He did send everything to pathology and they are expecting the results any day now. I don't have any of the other symptoms - I do have severe dry skin even though I drink a ton of filtered water, and I feel off balance, but attribute that to the migraines/headaches. Not eating well - I live alone and don't have many people to rely on. I decided if I feel okay when I wake up tomorrow, I will clean myself up and attempt to drive 4 blocks to the grocery store in order to get some decent food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 I have a brother who goes MIA for days at a time - I try not to bother him because I feel guilty - he has a family and things going on. I don't go to church and would not trust any of my neighbors (live in an apartment in Iowa). I pride myself on my independence, but I guess it isn't working for me so well right now. > > Qiessence ~ > Bless your heart. Is there a neighbor that can > help you? or perhaps, do you go to a church? > are there church folks that can help ? ? > How about calling s Ministries in your > area....I am sorry you are feeling so badly > and have little or no help. > You are in my prayers....... > Where do you live ? ? > Hugs > Dede > > > ************** > Psssst...Have you heard the news? There's a new fashion > blog, plus the latest fall trends and hair styles at StyleList.com. > > (http://www.stylelist.com/trends?ncid=aolsty00050000000014) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Qiessence . . . Please call some of the churches in your area . . . 's ministers are found in a number of denominations. . . . They want to help.Hugs and prayers,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 qiessence,If you don't feel up to cooking anything, at least get some Ensure . . . It contains enough vitamins/minerals/nutrients that you could live off it. . . It's liquid . . . found at grocery and drug stores.Hugs and prayers,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Rogene, They never returned my calls. Lynda At 02:39 PM 9/16/2008, you wrote: >Qiessence . . . > >Please call some of the churches in your area . . . 's >ministers are found in a number of denominations. . . . They want to help. > >Hugs and prayers, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Thank you. Against my doctors orders (I am not released to drive yet) I did, after taking 2 hours to wash my hair and clean myself up, drive to the grocery store for food. I am vegan, so there are a lot of foods I don't consume due to animal products. It was a rough drive....thought I would pass out at one point. And even though I was told not to lift anything over 10 pounds, the bag I had felt like 100 pounds - and did not feel very good to carry. I did finally eat, but have been glued to the couch all day. On a side note, I drained 60cc's of fluid yesterday and 42cc's today. I am thinking I may be stuck with this for a while. We will see what Thursday brings...... > > qiessence, > > If you don't feel up to cooking anything, at least get some Ensure . .. . It contains enough vitamins/minerals/nutrients that you could live off it. . . It's liquid . . . found at grocery and drug stores. > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Lynda . . . They may not be active in your area. Did you find a listing for them? . . . or did you contact a church? . . It's all done by volunteers. I suspect each group is as good as the person in charge.It never hurts to try though.Love,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Rogene, I did contact a church in my area that was listed as part of this organization. No response, and I tried several times. Lynda At 09:36 PM 9/16/2008, you wrote: >Lynda . . . They may not be active in your area. Did you find a >listing for them? . . . or did you contact a church? . . It's all >done by volunteers. I suspect each group is as good as the person in charge. > >It never hurts to try though. > >Love, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Qiessence ~ Girl, I am glad you are at home and safe. Please rest, alot ! I am glad to hear that the fluid reduced 12 cc hopefully it will continue to reduce day to day. You are in my thoughts and prayers ~ Dede**************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Qiessence ~ Were your implants under the muscle ? If so, it takes longer to heal that because the muscle had to be cut. I was told not to lift my arms for 3 weeks after my surgery, but that was from a massive silicone rupture and they were under the muscle, also had some lymph nodes removed because they were large and hard, and full of silicone..... I am glad to hear you had even less drainage today ! That is great news ! ! Are you wearing a sports bra ? something to hold you firm but not tight ? If not, you need to be, you will heal better. Hugs ~ Dede**************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 I am glad too!! I drained 12cc's this am, which has steadily been 15-20cc's every morning. I hope this is a sign that it is finally slowing down even if it is a little bit. Although I am very happy I had these removed, I never thought recovery would be worse than when I had them put in. I wonder how long it will take for the muscle and floppy breast tissue to shrink - especially the muscle. It really does hurt to try lifting my arms.... > > Qiessence ~ > Girl, I am glad you are at home and safe. > Please rest, alot ! I am glad to hear > that the fluid reduced 12 cc hopefully > it will continue to reduce day to day. > You are in my thoughts and prayers ~ > Dede > > > ************** > Psssst...Have you heard the news? There's a new fashion > blog, plus the latest fall trends and hair styles at StyleList.com. > > (http://www.stylelist.com/trends?ncid=aolsty00050000000014) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Quessence ~ Well, since they were under the muscle, I am sure it will take more time to heal because of the cut muscles. I am glad to hear you have your breasts in a garmet. I was off work 6 weeks. but the PS that did the explant did a horrible job, left tons of silicone in me, and also left the scar capsules in, so I just continued to get very ill. I was infected, got phlebitis in my left arm, it was a horrible experience. Glad it is past. I had many surgeries to remove all the siliconomas that formed, then I had salines put in, they were a gift....what a gift they were....NOT .......it was a stupid mindless moment when I agreed to getting them. Now the lesson learned 9 years later, my breasts are blown up like footballs........hurt very badly, and i have been dealing with a seriously ill body. I tell ya, I certainly have gotten a collage degree on this one.....Hopefully when I get a new heart device I can have these out too. I see my cardiologist in Oct. I cant wait to see what your report says. How kewl, forensics, I would love to work in forensics. I am a blood and guts kinda gal. I know that sounds gruesome, but It is quite the subject, never a dull moment, and so much to learn and discover. I hope you feel better , Hugs ~ Dede **************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 I had a mastectomy, so they placed the implants under the muscle to hold them in place. They have been in for 8 years...had been that is. I do have an ugly sports bra type thing on...it isn't really a sports bra - is all the same size and has a large vertical velcro closing. The breast tissue is still floppy - I assume the muscle is as well judging by the pain I feel anytime I try to move, do dishes, etc. I am now understanding why I will be off work much longer than I was when I had those toxic bags of crap put into me. I cannot imagine the hell you went/are going through with a silicone rupture. I was offered those, but decided on saline because they were 'safe'. My heart goes out to you.... I hopefully will have photos and a path report to share tomorrow - have an appointment at 10:30am Thursday with the surgeon. From what I was told, the photos were 'uneventful', but I asked him to photograph them to share with you. I id ask him to photograph them in body as well - once upon a time I worked in forensics (until my intelligence was over taken by toxins) and wanted the chain of evidence to by as good as possible. > > Qiessence ~ > Were your implants under the muscle ? > If so, it takes longer to heal that because > the muscle had to be cut. > I was told not to lift my arms for 3 weeks > after my surgery, but that was from a massive > silicone rupture and they were under the muscle, > also had some lymph nodes removed because they > were large and hard, and full of silicone..... > I am glad to hear you had even less drainage today ! > That is great news ! ! Are you wearing a sports bra ? > something to hold you firm but not tight ? > If not, you need to be, you will heal better. > Hugs ~ Dede > > > ************** > Psssst...Have you heard the news? There's a new > fashion blog, plus the latest fall trends and hair styles at StyleList.com. > > (http://www.stylelist.com/trends?ncid=aolsty00050000000014) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Qiessence, Many times the implants appear to be clear and without obvious problems when they are removed from a woman's body, thereby causing the doctor to be strengthened in his position that the implants don't cause illness. However, it's much more complex. I will be interested to hear if they found anything upon pathologica examination, but I won't be surprised if they don't. My implants upon removal were clear and pathology didn't find anything, but I was clearly ill, with an elevated rheumatoid factor indicating some type of autoimmune response. YOu may never find something specific to point to, such as bacteria, fungus, or whatever...but if you do, we certainly want to hear about it. You're just beginning your healing journey, which I am sure will be very intense as you deal with your loss of breasts. We will be here to help you through it. It's not easy, but the best thing you can do is to fill your mind with good, healing thoughts, with positive hope for your future. It's not the worst thing that could happen to you! And you can now begin healing. I have one concern and that is a lack of animal protein that I think you mentioned. I can respect your dietary choices, but there is some indication that foregoing animal protein can delay the healing process. If you need references, I can provide them. Patty > > > > Qiessence ~ > > Were your implants under the muscle ? > > If so, it takes longer to heal that because > > the muscle had to be cut. > > I was told not to lift my arms for 3 weeks > > after my surgery, but that was from a massive > > silicone rupture and they were under the muscle, > > also had some lymph nodes removed because they > > were large and hard, and full of silicone..... > > I am glad to hear you had even less drainage today ! > > That is great news ! ! Are you wearing a sports bra ? > > something to hold you firm but not tight ? > > If not, you need to be, you will heal better. > > Hugs ~ Dede > > > > > > ************** > > Psssst...Have you heard the news? There's a new > > fashion blog, plus the latest fall trends and hair styles at > StyleList.com. > > > > (http://www.stylelist.com/trends?ncid=aolsty00050000000014) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 I am very pleased with my doctor - he seems to have done everything right. My family doctor, who has been a blessing to me since this whole thing started, has also been a huge blessing. Both are willing to do what it takes to try to help me. I actually wasn't going to do implants after the mastectomy until I was hit from all sides...no one would accept that, so I caved and believed that I would never feel whole without them. If I could only have that one moment back.... I know what you mean about the college degree - I don't have one on this, but have had to study nutrition (which I promptly forget because of the massive brain fog) due to all of the unexplained symptoms I have had over the years. I talked to my family doc before surgery and told her how excited I was - that I knew this would solve all of my problems....she stopped me and said in a motherly tone that it may not. I understood what she was doing - obviously fibromyalgia may not ever go away, but she knew how close to the edge I have been and she did not want to see me get my hopes up and watch me go further over the edge. It is nice to have someone care so much. I just cannot even begin to imagine how you have made it through....I have many days where I feel I cannot go on, so knowing you have such strength, really helps me to know I can make it through. I was in forensics for 16 years - I loved it but when I couldn't remember easy things that I did on a daily basis, I knew it was time to leave. It killed me on many levels because not only was it my 'passion' so-to-speak, but also my livelihood. I am still struggling to live on less than half of what I was making and no longer have the extra cash to travel, or live. > > Quessence ~ > Well, since they were under the muscle, I > am sure it will take more time to heal > because of the cut muscles. > I am glad to hear you have your breasts > in a garmet. I was off work 6 weeks. > but the PS that did the explant did a horrible > job, left tons of silicone in me, and also > left the scar capsules in, so I just continued > to get very ill. I was infected, got > phlebitis in my left arm, it was a horrible > experience. Glad it is past. I had many surgeries > to remove all the siliconomas that formed, then > I had salines put in, they were a gift....what a gift > they were....NOT .......it was a stupid mindless > moment when I agreed to getting them. Now > the lesson learned 9 years later, my breasts are > blown up like footballs........hurt very badly, > and i have been dealing with a seriously ill > body. I tell ya, I certainly have gotten > a collage degree on this one.....Hopefully when > I get a new heart device I can have these out too. > I see my cardiologist in Oct. > I cant wait to see what your report says. > How kewl, forensics, I would love to work in > forensics. I am a blood and guts kinda gal. I > know that sounds gruesome, but It is quite > the subject, never a dull moment, and so > much to learn and discover. I hope you feel > better , Hugs ~ Dede > > > > ************** > Psssst...Have you heard the news? There's a new fashion blog, > plus the latest fall trends and hair styles at StyleList.com. > > (http://www.stylelist.com/trends?ncid=aolsty00050000000014) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 I know what you are saying. I did send my MRI to a good friend of mine who is a radiologist - she said she had no doubt that the biggest part of my pain was because my left implant was severely deformed due to folds caused by scar tissue, causing damage to my muscles and tissues...she said in her many years in her field, she had never seen one as deformed as mine. Not one of the radiologists who initially read the MRI or report informed me of that. One strange thing I am dealing with is crying at the drop of a hat for no apparent reason. Been doing that a lot and am not really sure why. I know the loss of my breasts for a second time is rough, but the tears do not feels related. Before the surgery, I lost the passion to do things, live, and do my photography. I am so afraid I will never get that passion back and that I will be destined to live a life without meaning. As far as the diet, I appreciate what you are saying, however, because of my beliefs, I cannot eat animal proteins. I have a naturopath I see for nutrition and she makes sure I get the proper proteins and nutrients. > > > > > > Qiessence ~ > > > Were your implants under the muscle ? > > > If so, it takes longer to heal that because > > > the muscle had to be cut. > > > I was told not to lift my arms for 3 weeks > > > after my surgery, but that was from a massive > > > silicone rupture and they were under the muscle, > > > also had some lymph nodes removed because they > > > were large and hard, and full of silicone..... > > > I am glad to hear you had even less drainage today ! > > > That is great news ! ! Are you wearing a sports bra ? > > > something to hold you firm but not tight ? > > > If not, you need to be, you will heal better. > > > Hugs ~ Dede > > > > > > > > > ************** > > > Psssst...Have you heard the news? There's a new > > > fashion blog, plus the latest fall trends and hair styles at > > StyleList.com. > > > > > > (http://www.stylelist.com/trends?ncid=aolsty00050000000014) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Qiessence . . . You're still very early in the healing process to know what you're going to look like by this time next year . . . I remember one woman who saw Dr. Melmed years ago . . . She didn't get a lift and was, initially, horrified by how she looked. Dr. Melmed told her that, if she wasn't happy after six months to a year, he would do a lift. . . She was happy and didn't need a lift.I'm glad to hear your drainage is diminishing. . . . The fact that you have had so much likely speaks for why you are recovering more slowly than usual. Most women report explant is much easier than implant. I'm thinking of it as your body "sputtering" . . . Thankfully you have really good, supportive physicians!Hugs,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Qiessence, That crying at the drop of the hat MAY be a hormonal upheaval. I know that I've been through it, as has Kathy (mikat) and probably other women as well. I don't experience that anymore, but I didn't relate it to my emotions at the time either... I think your passion for life will return as you heal. Gosh....I've been there! I felt no drive to accomplish anything when I was so sick, no creativity, no energy, no life of passion. I'm very happy to say that it has come back! (Most definitely!) So, keep hanging onto the fact that you are going to be doing the very best thing for yourself by taking this journey of healing, free from any foreign object. It takes time, but you can get there. Patty > > > > > > > > Qiessence ~ > > > > Were your implants under the muscle ? > > > > If so, it takes longer to heal that because > > > > the muscle had to be cut. > > > > I was told not to lift my arms for 3 weeks > > > > after my surgery, but that was from a massive > > > > silicone rupture and they were under the muscle, > > > > also had some lymph nodes removed because they > > > > were large and hard, and full of silicone..... > > > > I am glad to hear you had even less drainage today ! > > > > That is great news ! ! Are you wearing a sports bra ? > > > > something to hold you firm but not tight ? > > > > If not, you need to be, you will heal better. > > > > Hugs ~ Dede > > > > > > > > > > > > ************** > > > > Psssst...Have you heard the news? There's a new > > > > fashion blog, plus the latest fall trends and hair styles at > > > StyleList.com. > > > > > > > > (http://www.stylelist.com/trends?ncid=aolsty00050000000014) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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