Re: Re: your opinion please? (seizures / vitamin A)

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, Could you elaborate on your experience in the first few weeks on Acyclovir - what did you see? How many weeks did it take for the dieoff to subside? Did you do anything to mitigate the dieoff?Thanks,KayTo: mb12 valtrex Sent: Tue, January 18, 2011 5:28:11

AMSubject: Re: your opinion please? (seizures / vitamin A)

Anti-virals brought about some great changes in my daughter, speech, comprehension, so forth... I would def give them a try before anti-seizure meds, I hear those are just awful and can cause more seizures. Really hard to get off of also. There are natural anti-virals you could try at home first to see if he is a responder. If he's had the MMR, vitamin A protocol is a good choice. Make sure you have your dosing right before starting. If it's more herpes in nature (or if thats what u have) you could try coconut oil, monolaurin, or olive leaf (I think, it's early). When I put my dd on acyclovir for 9 months is when we really got progress. It's rough going the first few weeks as those nasty lil boogers are dying off but it's so worth it. Personally I would try every other route before I tried seizure meds. Good luck to you!

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> >

> >

> > Last weekend, we used high dose vitamin A protocol on my daughter. She's

> > never had MMR and shows not immune on those titers, but she shows "positive"

> > on Varicella, and has never had chicken pox or the varicella vaccine.

> >

> > The DAN suggested the high dose A. He said that he thinks it helps all

> > sorts of things, not just measles.

> >

> > We noticed nothing significant from the high dose vitamin A. My daughter

> > did get one whitehead in the middle of her forehead. She has never broken

> > out before in her life, so I definitely link it to the vit A. I would

> > characterize it as a "poc."

> >

> > My son had a couple or three absence seizures this week. He has maybe had a

> > few before.

> > In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal

> > type), all low grade fevers (99-101 degrees) The last seizure he had was in

> > Dec, it was a cluster. The previous seizure he had before this cluster (that

> > wasn't an absence one) was two in two days. These things are always related

> > to a head "cold" it seems.

> >

> > I have been wracking my brain trying to figure out what set off the absence

> > seizures, food, supplement, etc.

> >

> > Do you think kicking up the virus in my daughter could have caused issues

> > with him? He also has varicella titers that show "positive" and has also

> > never had varicella vaccine.

> >

> > Secondly, I don't know what/where to go now. We had a neuro appt today and

> > she is still pressing for meds. She is using some scare tactics, ie

> > mentioning irretractable seizure, brain damage and death.

> > I have been investigating NIDS for a bit. Been trying to get all the NIDS

> > suggested labs.

> >

> > I feel like it was Kismet watching House tonight and seeing the guy on

> > there having seizures due to varicella. I was glad to see it so my husband

> > could see that this is not un-heard of.... even if it IS House. LOL

> > I just don't know what drugs are scarier, the anti-virals or the seizure

> > meds?

> >

> > PS Of interest, the poc my daughter has looks identical to the EXTREME

> > "baby acne" my son was born with (thousands of whiteheads). I always

> > considered his "baby acne" was something more than "mommy's hormones." I

> > wish I knew whether I was around someone whose child had varicella or

> > chicken pox while I was pregnant. :-(

> >

> > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

> >

> >

> >

> >

> > Cheryl

> > ~http://www.gryffins-tail.blogspot.com~

> > ~@midian42~

> >

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>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>