Fw: THE LIFE YOU SAVE MAY BE YOUR OWN

[Guest guest]

Hello Sweet Lea ~

So, Superman has X-ray vision, huh? hum........

hee hee hee.......

I am researching myself right now, that article

instigated me into doing it again. Because of the

multiple lung nodules in each lung, and my history

of smoking for 36 years, but smoke free 3+ now, Yay,

and the history of the massive silicone rupture, and

with my history of polyps, Nasal, colon, and vaginal.....

and history of granulomas, siliconomas, silicone granulomas, leimyomas, and the other ones I had ( started with a M ) and fibromas in my uterus, many early cancer

cell changes in most of those, but all removed before invasive ,

I feel weird about this waiting I did for 6 months as the

oncologist suggested........So.....where do I go from

here ? ? So, I will continue to research til I decide. I have

had such bad luck with doctors in Austin. None of them have

really been even wanting to be at work the days I have seen

them, and certainly havent listened, or even read what I have

written in the forms I have filled out.

So discouraged.....but have to decide what to do.......this is

too important.

Love you ~ Dede**************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

This come from a silent Angel...love always........Lea

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Sent: Monday, September 09, 2002 12:58 PM

Subject: THE LIFE YOU SAVE MAY BE YOUR OWN

THE LIFE YOU SAVE MAY BE YOUR OWN Learning About Medical Standards Of Care By Marilyn Holasek Lloyd September 9, 2002 Medicine has what is called "Standards of Care." These guidelines are very important when it comes to lawsuits. If a physician does not follow a standard of care, he/she is open to attack. Each specialty in medicine has a set of standards, and they involve the diagnosis and treatment of a wide range of conditions. These standards do not necessarily mean, for example, that the therapies are the correct ones for patients; only that the medical profession has agreed that they are the best going at any given time. One expects every physician to at least be up-to-date on the standards. This is why medical continuing education is so readily available to doctors. Lawyers specializing in medical issues are certainly likely to be very familiar with these standards. According to my husband, a physician, who was a reviewer on medical practice panels, some doctors have a peculiar sense of what standards of care are all about. In one extreme case, he remembers, an obstetrician went to a hockey game with a patient who was in active labor. Another troubling case that I learned about involves a friend. She is now a nine-year breast cancer survivor after having been given a dire diagnosis. This year, what she thought was a bug bite turned out to be, on biopsy, a return of her lobular cancer in the skin of her neck. She was sent from a surgeon to an oncologist. He looked at the pathology report and announced that my friend would be getting C.U.D (my term for chemo until death) This was proposed without conducting any other tests. And then he made the appointment for the small operation to put the drug-delivering shunt in her chest. The nurse in the office tried to comfort her by saying, "you can get different drugs over and over and over." Well, I went ballistic when I heard this, because I had already looked up the standard of care for a post-menopausal breast cancer recurrence of someone who had positive estrogen receptors and was once on tamoxifen; hormone therapy was in order. And besides that, I read the pathology report. It said "cancer in the dermis" and that is the skin of her neck. That was all it said. So, I had to step in for my friend. I pleaded with her to do the following: Get another opinion at a major medical institution Meanwhile, cancel the shunt procedure until more information was gained Get a CAT SCAN and PET SCAN to see the extent of her disease (The scans came back negative). After a local doctor saw the PET SCAN was negative, he suggested radiation. My friend then sought yet another opinion at a university hospital where the diagnosis of the skin cancer on her neck was confirmed. She was then sent to a surgical oncologist who said it was inoperable, because it covered such a large area on her neck. He put her on tamoxifen. He said radiation would "cause too much damage and would be used as a last resort." She consulted another oncologist who agreed. She then consulted an expert in integrative medicine, and finally ended up taking matters into her own hands and went on a fast. Forty days later, the tumor was almost gone. The doctors at the university hospital were pleased and said the tumor "was now so small it was operable, and it could probably go away on its own." As you might imagine, my friend and I have been questioning why her original doctor had not followed the appropriate standard of care. He even had admitted: "I don’t know much about the hormonal treatment of breast cancer." Which I thought was absurd. Was this about money? One chemotherapy regimen could cost a patient around $35,000. A patient could live through many rounds of chemo like this. Hormone therapy is mainly a pill. Was this about power and control? My friend is not a sheep-type patient and is an advocate of alternative therapies. And what about the local doctor and university specialist? Should they not have been applying a similar standard of care? What if she had gone through the unnecessary and potentially damaging radiation therapy? All of which brings me to the issue of what a person should do if they suspect that a doctor is not, at the very least, following a standard of care. Get a copy of your pathology report--It is yours for the asking. Look up the standard of care--do an Internet search, or ask for help in the library Buy a simple Merck Manual--it lists most standard treatments Have a friend help you that might be knowledgeable in this area Don’t hesitate to get another medical opinion or a third, if necessary. The life you save may be your own. OR The quality of the life you save, may be your own. "Informed Consent Begins With Informed Individuals"

[Guest guest]

Darling Dede:

Thank you. I have been trying to find the cartoon for you....no luck yet. I have found so much good stuff, it is hard to believe what there is in my folder, it would make a book. Superman will use his X-ray vision to find it for you.

We love you so much.....Lea and Superman

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Re: Fw: THE LIFE YOU SAVE MAY BE YOUR OWN

Outstanding article, thank you Lea ~ How are you doing today? I see you havebeen busy this morning ! Love you ~ Dede**************It's only a deal if it's where you want to go. Find your travel deal here.(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

Ya know, that is a good idea. More importantly

pics of me only 3 years ago, there is a huge, I mean

huge difference in the before and after.

Before implants would be almost 20 years ago, but I

about looked the same 3 years ago that I did 20 years

ago. Although There were no pics taken while I was

in flares, or during all those surgeries.....

Well, have fun ! ! Chat when you get back......

Love

Dede**************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014)

[Guest guest]

Dede,

You might add a letter of your own to those disgusting forms, spelling out, in plain English, your health problems. . . . Start with who you were before implants (pictures and all).

I watched a doctors jaw dropp as she read my "letter" . . . When I asked her if she was interested in taking me as a patient, she commented that it would be a learning experience for her. . . . Still she was interested in seeing me.

Love,

Rogene

[Guest guest]

Darling Dede:

We hope that you will find the right doctors soon. You have suffered for so long, it is time for action. It is heartbreaking to see you suffer when they could help you. Our quality of life means nothing to them.

Stay strong sweet Dede....love you so....Lea and Superman

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Re: Fw: THE LIFE YOU SAVE MAY BE YOUR OWN

Ya know, that is a good idea. More importantly pics of me only 3 years ago, there is a huge, I meanhuge difference in the before and after. Before implants would be almost 20 years ago, but Iabout looked the same 3 years ago that I did 20 yearsago. Although There were no pics taken while I wasin flares, or during all those surgeries.....Well, have fun ! ! Chat when you get back......LoveDede**************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.(http://www.stylelist.com/trends?ncid=aolsty00050000000014)