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Re: your opinion please? (seizures / vitamin A)

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Posted
Posted

I think it's really important you get the seizures under control with rx. The

older aed's have a long history and case studies so those are in my opinion the

safer bet as there are known histories of aide effects etc. Andy Cutler

recommends getting seizures under control with rx and then begin chelation.

>

> Last weekend, we used high dose vitamin A protocol on my daughter. She's

> never had MMR and shows not immune on those titers, but she shows " positive "

> on Varicella, and has never had chicken pox or the varicella vaccine.

>

> The DAN suggested the high dose A. He said that he thinks it helps all sorts

> of things, not just measles.

>

> We noticed nothing significant from the high dose vitamin A. My daughter did

> get one whitehead in the middle of her forehead. She has never broken out

> before in her life, so I definitely link it to the vit A. I would

> characterize it as a " poc. "

>

> My son had a couple or three absence seizures this week. He has maybe had a

> few before.

> In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal

> type), all low grade fevers (99-101 degrees) The last seizure he had was in

> Dec, it was a cluster. The previous seizure he had before this cluster (that

> wasn't an absence one) was two in two days. These things are always related

> to a head " cold " it seems.

>

> I have been wracking my brain trying to figure out what set off the absence

> seizures, food, supplement, etc.

>

> Do you think kicking up the virus in my daughter could have caused issues

> with him? He also has varicella titers that show " positive " and has also

> never had varicella vaccine.

>

> Secondly, I don't know what/where to go now. We had a neuro appt today and

> she is still pressing for meds. She is using some scare tactics, ie

> mentioning irretractable seizure, brain damage and death.

> I have been investigating NIDS for a bit. Been trying to get all the NIDS

> suggested labs.

>

> I feel like it was Kismet watching House tonight and seeing the guy on there

> having seizures due to varicella. I was glad to see it so my husband could

> see that this is not un-heard of.... even if it IS House. LOL

> I just don't know what drugs are scarier, the anti-virals or the seizure

> meds?

>

> PS Of interest, the poc my daughter has looks identical to the EXTREME " baby

> acne " my son was born with (thousands of whiteheads). I always considered

> his " baby acne " was something more than " mommy's hormones. " I wish I knew

> whether I was around someone whose child had varicella or chicken pox while

> I was pregnant. :-(

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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Guest guest

Posted
Posted

I think it's really important you get the seizures under control with rx. The

older aed's have a long history and case studies so those are in my opinion the

safer bet as there are known histories of aide effects etc. Andy Cutler

recommends getting seizures under control with rx and then begin chelation.

>

> Last weekend, we used high dose vitamin A protocol on my daughter. She's

> never had MMR and shows not immune on those titers, but she shows " positive "

> on Varicella, and has never had chicken pox or the varicella vaccine.

>

> The DAN suggested the high dose A. He said that he thinks it helps all sorts

> of things, not just measles.

>

> We noticed nothing significant from the high dose vitamin A. My daughter did

> get one whitehead in the middle of her forehead. She has never broken out

> before in her life, so I definitely link it to the vit A. I would

> characterize it as a " poc. "

>

> My son had a couple or three absence seizures this week. He has maybe had a

> few before.

> In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal

> type), all low grade fevers (99-101 degrees) The last seizure he had was in

> Dec, it was a cluster. The previous seizure he had before this cluster (that

> wasn't an absence one) was two in two days. These things are always related

> to a head " cold " it seems.

>

> I have been wracking my brain trying to figure out what set off the absence

> seizures, food, supplement, etc.

>

> Do you think kicking up the virus in my daughter could have caused issues

> with him? He also has varicella titers that show " positive " and has also

> never had varicella vaccine.

>

> Secondly, I don't know what/where to go now. We had a neuro appt today and

> she is still pressing for meds. She is using some scare tactics, ie

> mentioning irretractable seizure, brain damage and death.

> I have been investigating NIDS for a bit. Been trying to get all the NIDS

> suggested labs.

>

> I feel like it was Kismet watching House tonight and seeing the guy on there

> having seizures due to varicella. I was glad to see it so my husband could

> see that this is not un-heard of.... even if it IS House. LOL

> I just don't know what drugs are scarier, the anti-virals or the seizure

> meds?

>

> PS Of interest, the poc my daughter has looks identical to the EXTREME " baby

> acne " my son was born with (thousands of whiteheads). I always considered

> his " baby acne " was something more than " mommy's hormones. " I wish I knew

> whether I was around someone whose child had varicella or chicken pox while

> I was pregnant. :-(

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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Guest guest

Posted
Posted

I think it's really important you get the seizures under control with rx. The

older aed's have a long history and case studies so those are in my opinion the

safer bet as there are known histories of aide effects etc. Andy Cutler

recommends getting seizures under control with rx and then begin chelation.

>

> Last weekend, we used high dose vitamin A protocol on my daughter. She's

> never had MMR and shows not immune on those titers, but she shows " positive "

> on Varicella, and has never had chicken pox or the varicella vaccine.

>

> The DAN suggested the high dose A. He said that he thinks it helps all sorts

> of things, not just measles.

>

> We noticed nothing significant from the high dose vitamin A. My daughter did

> get one whitehead in the middle of her forehead. She has never broken out

> before in her life, so I definitely link it to the vit A. I would

> characterize it as a " poc. "

>

> My son had a couple or three absence seizures this week. He has maybe had a

> few before.

> In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal

> type), all low grade fevers (99-101 degrees) The last seizure he had was in

> Dec, it was a cluster. The previous seizure he had before this cluster (that

> wasn't an absence one) was two in two days. These things are always related

> to a head " cold " it seems.

>

> I have been wracking my brain trying to figure out what set off the absence

> seizures, food, supplement, etc.

>

> Do you think kicking up the virus in my daughter could have caused issues

> with him? He also has varicella titers that show " positive " and has also

> never had varicella vaccine.

>

> Secondly, I don't know what/where to go now. We had a neuro appt today and

> she is still pressing for meds. She is using some scare tactics, ie

> mentioning irretractable seizure, brain damage and death.

> I have been investigating NIDS for a bit. Been trying to get all the NIDS

> suggested labs.

>

> I feel like it was Kismet watching House tonight and seeing the guy on there

> having seizures due to varicella. I was glad to see it so my husband could

> see that this is not un-heard of.... even if it IS House. LOL

> I just don't know what drugs are scarier, the anti-virals or the seizure

> meds?

>

> PS Of interest, the poc my daughter has looks identical to the EXTREME " baby

> acne " my son was born with (thousands of whiteheads). I always considered

> his " baby acne " was something more than " mommy's hormones. " I wish I knew

> whether I was around someone whose child had varicella or chicken pox while

> I was pregnant. :-(

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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Posted
Posted

I don't know the answer to your question but as you saw from house, seizures can be viral. The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though). Again, it's because of the antivirals. Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?If you go onto pubmed and search "HHV6 seizures" or "CMV seizures" or any other herpes virus and add seizure to it, you'll find quite a bit of info. This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows "positive" on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a "poc."

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head "cold" it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show "positive" and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME "baby acne" my son was born with (thousands of whiteheads). I always considered his "baby acne" was something more than "mommy's hormones." I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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I don't know the answer to your question but as you saw from house, seizures can be viral. The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though). Again, it's because of the antivirals. Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?If you go onto pubmed and search "HHV6 seizures" or "CMV seizures" or any other herpes virus and add seizure to it, you'll find quite a bit of info. This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows "positive" on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a "poc."

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head "cold" it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show "positive" and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME "baby acne" my son was born with (thousands of whiteheads). I always considered his "baby acne" was something more than "mommy's hormones." I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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I forgot to mention that this wasn't just pure coincidence that Dr. G's kids were doing this, the medical community already knows that viruses can cause seizures but I think we are just now starting to look into latent viruses. A study was coming out while I was with him suggesting the link between latent pockets of viruses in the brain coinciding with where seizure activity was occurring. I don't know if I can find them again, it was a few years ago.I think I posted it back then but I've made so many posts that I don't think it would be easy to search for in the archives anymore, I can't think of a keyword search that would be specific enough. If I didn't post that particular one, it was one that was similar, though if you really wanted to dig around for it.Marcia might have it. If Elyse sees this, she might have them, too. I think it was either CMV or EBV that this particular study was linking to. But here's a different one that might interest you.Virological and immunological aspects of seizure disorders.Eeg-Olofsson O.Department of Women's and Children's Health, Section for Pediatrics, Uppsala University, S-751 85 Uppsala, Sweden.AbstractThe brain is a symptom-producing organ, and one of the symptoms due to a basic brain dysfunction is epilepsy. The pathophysiologic background is in most epilepsies multifactorial, as different pre-, peri-, and postnatal triggers or environmental conditions influence one or several genetic factors, where also gender is of importance. One of the genetic factors is immunodysfunction, and the trigger mechanism may be a virus infection. Viruses are the most common agents to which the human being is exposed throughout life. The herpes virus group is of special interest with respect to complications of the central nervous system. Herpes viruses, especially herpes simplex virus type 1 (HSV-1), human herpes virus type 6 (HHV-6), cytomegalovirus (CMV) and Epstein-Barr virus (EBV), are capable of establishing latent infection and reactivating under a variety of stimuli. In this review especially HHV-6 will be emphasized, as well as CMV in relation to Rasmussen's syndrome. The immunological aspects will focus on immunoglobulins, antibodies, especially the glutamate receptors, human leukocyte antigens, T- and B-lymphocytes, and their respective interaction with the antigen presenting cell. This course of events concerns the 'immunological synapse'. Finally, reports on herpes virus genomes in the human brain are discussed. A study on herpes viral DNA in brain tissue from patients operated for focal epilepsy is briefly mentioned.PMID: 12536027 [PubMed - indexed for MEDLINE]

Cheryl ~http://the-ink-slinger.blogspot.com/~http://www.gryffins-tail.blogspot.com~~@midian42~

I don't know the answer to your question but as you saw from house, seizures can be viral. The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though). Again, it's because of the antivirals. Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?If you go onto pubmed and search "HHV6 seizures" or "CMV seizures" or any other herpes virus and add seizure to it, you'll find quite a bit of info. This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows "positive" on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a "poc."

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head "cold" it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show "positive" and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME "baby acne" my son was born with (thousands of whiteheads). I always considered his "baby acne" was something more than "mommy's hormones." I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

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I wasn't ready to take the leap. We have only been doing biomed about 11 months and just really trying to do basic nutritional things... just started RXs in October with Respen-A and now in December with LDN.My DAN sorta takes his time?? He didn't suggest LDN, I did. I just asked for an RX for Carnitor, when my kids have been on L-carnitine and Co-Q10 intermittently for months. He said, sure. So I'm not really sure how I'd characterize his style, maybe laid-back? Maye he just waits for the parent to take the reins? :-\

 

I don't know the answer to your question but as you saw from house, seizures can be viral.  The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though).  Again, it's because of the antivirals.  Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?

If you go onto pubmed and search " HHV6 seizures " or " CMV seizures " or any other herpes virus and add seizure to it, you'll find quite a bit of info.  This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

 

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows " positive " on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a " poc. "

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head " cold " it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show " positive " and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME " baby acne " my son was born with (thousands of whiteheads). I always considered his " baby acne " was something more than " mommy's hormones. " I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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I wasn't ready to take the leap. We have only been doing biomed about 11 months and just really trying to do basic nutritional things... just started RXs in October with Respen-A and now in December with LDN.My DAN sorta takes his time?? He didn't suggest LDN, I did. I just asked for an RX for Carnitor, when my kids have been on L-carnitine and Co-Q10 intermittently for months. He said, sure. So I'm not really sure how I'd characterize his style, maybe laid-back? Maye he just waits for the parent to take the reins? :-\

 

I don't know the answer to your question but as you saw from house, seizures can be viral.  The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though).  Again, it's because of the antivirals.  Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?

If you go onto pubmed and search " HHV6 seizures " or " CMV seizures " or any other herpes virus and add seizure to it, you'll find quite a bit of info.  This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

 

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows " positive " on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a " poc. "

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head " cold " it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show " positive " and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME " baby acne " my son was born with (thousands of whiteheads). I always considered his " baby acne " was something more than " mommy's hormones. " I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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I wasn't ready to take the leap. We have only been doing biomed about 11 months and just really trying to do basic nutritional things... just started RXs in October with Respen-A and now in December with LDN.My DAN sorta takes his time?? He didn't suggest LDN, I did. I just asked for an RX for Carnitor, when my kids have been on L-carnitine and Co-Q10 intermittently for months. He said, sure. So I'm not really sure how I'd characterize his style, maybe laid-back? Maye he just waits for the parent to take the reins? :-\

 

I don't know the answer to your question but as you saw from house, seizures can be viral.  The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though).  Again, it's because of the antivirals.  Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?

If you go onto pubmed and search " HHV6 seizures " or " CMV seizures " or any other herpes virus and add seizure to it, you'll find quite a bit of info.  This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

 

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows " positive " on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a " poc. "

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head " cold " it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show " positive " and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME " baby acne " my son was born with (thousands of whiteheads). I always considered his " baby acne " was something more than " mommy's hormones. " I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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PS I should say, when we started bio-med it was b/c my daughter was dx'd with Asperger's. To most she is a " bratty " neuro-typical child. LOL I pretty much had to dig to link up the ASD traits. She is a " good girl " rule follower, and it was my son's bad behavior that led me to have him see a DAN as well... and the blood work finding he has issues. But basically what I am saying, I didn't intend on seeing a DAN for him when he started having seizures (Ap 2009) But he seems to be the one more in need of bio-med.

I wasn't ready to take the leap. We have only been doing biomed about 11 months and just really trying to do basic nutritional things... just started RXs in October with Respen-A and now in December with LDN.My DAN sorta takes his time?? He didn't suggest LDN, I did. I just asked for an RX for Carnitor, when my kids have been on L-carnitine and Co-Q10 intermittently for months. He said, sure. So I'm not really sure how I'd characterize his style, maybe laid-back? Maye he just waits for the parent to take the reins? :-\

 

I don't know the answer to your question but as you saw from house, seizures can be viral.  The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though).  Again, it's because of the antivirals.  Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?

If you go onto pubmed and search " HHV6 seizures " or " CMV seizures " or any other herpes virus and add seizure to it, you'll find quite a bit of info.  This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

 

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows " positive " on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a " poc. "

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head " cold " it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show " positive " and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME " baby acne " my son was born with (thousands of whiteheads). I always considered his " baby acne " was something more than " mommy's hormones. " I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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PS I should say, when we started bio-med it was b/c my daughter was dx'd with Asperger's. To most she is a " bratty " neuro-typical child. LOL I pretty much had to dig to link up the ASD traits. She is a " good girl " rule follower, and it was my son's bad behavior that led me to have him see a DAN as well... and the blood work finding he has issues. But basically what I am saying, I didn't intend on seeing a DAN for him when he started having seizures (Ap 2009) But he seems to be the one more in need of bio-med.

I wasn't ready to take the leap. We have only been doing biomed about 11 months and just really trying to do basic nutritional things... just started RXs in October with Respen-A and now in December with LDN.My DAN sorta takes his time?? He didn't suggest LDN, I did. I just asked for an RX for Carnitor, when my kids have been on L-carnitine and Co-Q10 intermittently for months. He said, sure. So I'm not really sure how I'd characterize his style, maybe laid-back? Maye he just waits for the parent to take the reins? :-\

 

I don't know the answer to your question but as you saw from house, seizures can be viral.  The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though).  Again, it's because of the antivirals.  Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?

If you go onto pubmed and search " HHV6 seizures " or " CMV seizures " or any other herpes virus and add seizure to it, you'll find quite a bit of info.  This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

 

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows " positive " on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a " poc. "

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head " cold " it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show " positive " and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME " baby acne " my son was born with (thousands of whiteheads). I always considered his " baby acne " was something more than " mommy's hormones. " I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Is it this one?http://www.ncbi.nlm.nih.gov/pubmed/17572889Has anyone had a neuroimaging (MRI) done based on this or similar technique to identify viral infection in the brain?Thanks,To: mb12 valtrex Sent: Mon, January 17, 2011 10:02:10 PMSubject: Re: your opinion please? (seizures / vitamin A)

I forgot to mention that this wasn't just pure coincidence that Dr. G's kids were doing this, the medical community already knows that viruses can cause seizures but I think we are just now starting to look into latent viruses. A study was coming out while I was with him suggesting the link between latent pockets of viruses in the brain coinciding with where seizure activity was occurring. I don't know if I can find them again, it was a few years ago.I think I posted it back then but I've made so many posts that I don't think it would be easy to search for in the archives anymore, I can't think of a keyword search that would be specific enough. If I didn't post that particular one, it was one that was similar, though if you really wanted to dig around for it.Marcia might have it. If Elyse sees this, she might have them, too. I think it was either CMV or EBV that this

particular study was linking to. But here's a different one that might interest you.Virological and immunological aspects of seizure disorders.Eeg-Olofsson O.Department of Women's and Children's Health, Section for Pediatrics, Uppsala University, S-751 85 Uppsala, Sweden.AbstractThe brain is a symptom-producing organ, and one of the symptoms due to a basic brain dysfunction is epilepsy. The pathophysiologic background is in most epilepsies multifactorial, as different pre-, peri-, and postnatal triggers or environmental conditions influence one or several genetic factors, where also gender is of importance. One of the genetic factors is immunodysfunction, and the trigger mechanism may be a virus infection. Viruses are the most common agents to which the human being is exposed throughout life. The herpes virus group is of special interest with respect to complications of the central nervous system. Herpes viruses, especially herpes simplex virus type 1 (HSV-1), human herpes virus type 6 (HHV-6), cytomegalovirus (CMV) and Epstein-Barr virus (EBV), are capable of establishing latent infection and reactivating under a

variety of stimuli. In this review especially HHV-6 will be emphasized, as well as CMV in relation to Rasmussen's syndrome. The immunological aspects will focus on immunoglobulins, antibodies, especially the glutamate receptors, human leukocyte antigens, T- and B-lymphocytes, and their respective interaction with the antigen presenting cell. This course of events concerns the 'immunological synapse'. Finally, reports on herpes virus genomes in the human brain are discussed. A study on herpes viral DNA in brain tissue from patients operated for focal epilepsy is briefly mentioned.PMID: 12536027 [PubMed - indexed for MEDLINE]

Cheryl ~http://the-ink-slinger.blogspot.com/~http://www.gryffins-tail.blogspot.com~~@midian42~

I don't know the answer to your question but as you saw from house, seizures can be viral. The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though). Again, it's because of the antivirals. Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?If you go onto pubmed and search "HHV6 seizures" or "CMV seizures" or any other herpes virus and add seizure to it, you'll find quite a bit of info. This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows "positive" on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a "poc."

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head "cold" it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show "positive" and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME "baby acne" my son was born with (thousands of whiteheads). I always considered his "baby acne" was something more than "mommy's hormones." I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

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Nope. This one is talking about active infections and uses MRIs. Although the spect scan one might have been active infections, too. I can't remember anymore.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

Is it this one?http://www.ncbi.nlm.nih.gov/pubmed/17572889Has anyone had a neuroimaging (MRI) done based on this or similar technique to identify viral infection in the brain?Thanks,To: mb12 valtrex Sent: Mon, January 17, 2011 10:02:10 PMSubject: Re: your opinion please? (seizures / vitamin A)

I forgot to mention that this wasn't just pure coincidence that Dr. G's kids were doing this, the medical community already knows that viruses can cause seizures but I think we are just now starting to look into latent viruses. A study was coming out while I was with him suggesting the link between latent pockets of viruses in the brain coinciding with where seizure activity was occurring. I don't know if I can find them again, it was a few years ago.I think I posted it back then but I've made so many posts that I don't think it would be easy to search for in the archives anymore, I can't think of a keyword search that would be specific enough. If I didn't post that particular one, it was one that was similar, though if you really wanted to dig around for it.Marcia might have it. If Elyse sees this, she might have them, too. I think it was either CMV or EBV that this

particular study was linking to. But here's a different one that might interest you.Virological and immunological aspects of seizure disorders.Eeg-Olofsson O.Department of Women's and Children's Health, Section for Pediatrics, Uppsala University, S-751 85 Uppsala, Sweden.AbstractThe brain is a symptom-producing organ, and one of the symptoms due to a basic brain dysfunction is epilepsy. The pathophysiologic background is in most epilepsies multifactorial, as different pre-, peri-, and postnatal triggers or environmental conditions influence one or several genetic factors, where also gender is of importance. One of the genetic factors is immunodysfunction, and the trigger mechanism may be a virus infection. Viruses are the most common agents to which the human being is exposed throughout life. The herpes virus group is of special interest with respect to complications of the central nervous system. Herpes viruses, especially herpes simplex virus type 1 (HSV-1), human herpes virus type 6 (HHV-6), cytomegalovirus (CMV) and Epstein-Barr virus (EBV), are capable of establishing latent infection and reactivating under a

variety of stimuli. In this review especially HHV-6 will be emphasized, as well as CMV in relation to Rasmussen's syndrome. The immunological aspects will focus on immunoglobulins, antibodies, especially the glutamate receptors, human leukocyte antigens, T- and B-lymphocytes, and their respective interaction with the antigen presenting cell. This course of events concerns the 'immunological synapse'. Finally, reports on herpes virus genomes in the human brain are discussed. A study on herpes viral DNA in brain tissue from patients operated for focal epilepsy is briefly mentioned.PMID: 12536027 [PubMed - indexed for MEDLINE]

Cheryl ~http://the-ink-slinger.blogspot.com/~http://www.gryffins-tail.blogspot.com~~@midian42~

I don't know the answer to your question but as you saw from house, seizures can be viral. The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though). Again, it's because of the antivirals. Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?If you go onto pubmed and search "HHV6 seizures" or "CMV seizures" or any other herpes virus and add seizure to it, you'll find quite a bit of info. This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows "positive" on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a "poc."

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head "cold" it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show "positive" and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME "baby acne" my son was born with (thousands of whiteheads). I always considered his "baby acne" was something more than "mommy's hormones." I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

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Thanks.Well, I did a Dr. Google and searched < high natural killer cells chronic infection seizures >(just re-noticed or noticed for the first time that my son's bloodwork in Dec showed high NKC)

and found this among the top hits http://emedicine.medscape.com/article/1134049-overviewwhich mentions: " The reactivation of herpesviruses, including HHV-6 and EBV (Epstein-Barr

virus), is linked with a potentially serious drug eruption known as DRESS (drug reaction with eosinophilia and systemic symptoms).6 A report of high-level HHV-6 viremia associated with the onset of s- syndrome suggests an association.7 "

Which just happens to be the " rash " that the neuro mentioned today as being the " biggest problem with Lamictal. " (Which isn't really... as it has been linked to meningitis, equally or more disturbing)

So again it seems to me that fate is pointing me towards anti-viral therapy before I even think about anti-seizure meds. Do I try to get the DAN to prescribe anti-virals the way NIDS do, or do I just try to get in with Dr. ? (Can't see me butting heads with Dr. Goldberg)

 

Is it this one?http://www.ncbi.nlm.nih.gov/pubmed/17572889

Has anyone had a neuroimaging (MRI) done based on this or similar technique to identify viral infection in the brain?Thanks,

To: mb12 valtrex Sent: Mon, January 17, 2011 10:02:10 PM

Subject: Re: your opinion please? (seizures / vitamin A)

 

I forgot to mention that this wasn't just pure coincidence that Dr. G's kids were doing this, the medical community already knows that viruses can cause seizures but I think we are just now starting to look into latent viruses.  A study was coming out while I was with him suggesting the link between latent pockets of viruses in the brain coinciding with where seizure activity was occurring.  I don't know if I can find them again, it was a few years ago.

I think I posted it back then but I've made so many posts that I don't think it would be easy to search for in the archives anymore, I can't think of a keyword search that would be specific enough.  If I didn't post that particular one, it was one that was similar, though if you really wanted to dig around for it.

Marcia might have it.  If Elyse sees this, she might have them, too.  I think it was either CMV or EBV that this

particular study was linking to.  But here's a different one that might interest you.

Virological and immunological aspects of seizure disorders.Eeg-Olofsson O.

Department of Women's and Children's Health, Section for Pediatrics, Uppsala University, S-751 85 Uppsala, Sweden.

AbstractThe brain is a symptom-producing organ, and one of the symptoms due to a basic brain dysfunction is epilepsy. The pathophysiologic background is in most epilepsies multifactorial, as different pre-, peri-, and postnatal triggers or environmental conditions influence one or several genetic factors, where also gender is of importance. One of the genetic factors is immunodysfunction, and the trigger mechanism may be a virus infection. Viruses are the most common agents to which the human being is exposed throughout life. The herpes virus group is of special interest with respect to complications of the central nervous system. Herpes viruses, especially herpes simplex virus type 1 (HSV-1), human herpes virus type 6 (HHV-6), cytomegalovirus (CMV) and Epstein-Barr virus (EBV), are capable of establishing latent infection and reactivating under a

variety of stimuli. In this review especially HHV-6 will be emphasized, as well as CMV in relation to Rasmussen's syndrome. The immunological aspects will focus on immunoglobulins, antibodies, especially the glutamate receptors, human leukocyte antigens, T- and B-lymphocytes, and their respective interaction with the antigen presenting cell. This course of events concerns the 'immunological synapse'. Finally, reports on herpes virus genomes in the human brain are discussed. A study on herpes viral DNA in brain tissue from patients operated for focal epilepsy is briefly mentioned.

PMID: 12536027 [PubMed - indexed for MEDLINE]

Cheryl ~http://the-ink-slinger.blogspot.com/

~http://www.gryffins-tail.blogspot.com~~@midian42~

I don't know the answer to your question but as you saw from house, seizures can be viral.  The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though).  Again, it's because of the antivirals.  Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?

If you go onto pubmed and search " HHV6 seizures " or " CMV seizures " or any other herpes virus and add seizure to it, you'll find quite a bit of info.  This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

 

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows " positive " on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a " poc. "

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head " cold " it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show " positive " and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME " baby acne " my son was born with (thousands of whiteheads). I always considered his " baby acne " was something more than " mommy's hormones. " I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Posted

Thanks.Well, I did a Dr. Google and searched < high natural killer cells chronic infection seizures >(just re-noticed or noticed for the first time that my son's bloodwork in Dec showed high NKC)

and found this among the top hits http://emedicine.medscape.com/article/1134049-overviewwhich mentions: " The reactivation of herpesviruses, including HHV-6 and EBV (Epstein-Barr

virus), is linked with a potentially serious drug eruption known as DRESS (drug reaction with eosinophilia and systemic symptoms).6 A report of high-level HHV-6 viremia associated with the onset of s- syndrome suggests an association.7 "

Which just happens to be the " rash " that the neuro mentioned today as being the " biggest problem with Lamictal. " (Which isn't really... as it has been linked to meningitis, equally or more disturbing)

So again it seems to me that fate is pointing me towards anti-viral therapy before I even think about anti-seizure meds. Do I try to get the DAN to prescribe anti-virals the way NIDS do, or do I just try to get in with Dr. ? (Can't see me butting heads with Dr. Goldberg)

 

Is it this one?http://www.ncbi.nlm.nih.gov/pubmed/17572889

Has anyone had a neuroimaging (MRI) done based on this or similar technique to identify viral infection in the brain?Thanks,

To: mb12 valtrex Sent: Mon, January 17, 2011 10:02:10 PM

Subject: Re: your opinion please? (seizures / vitamin A)

 

I forgot to mention that this wasn't just pure coincidence that Dr. G's kids were doing this, the medical community already knows that viruses can cause seizures but I think we are just now starting to look into latent viruses.  A study was coming out while I was with him suggesting the link between latent pockets of viruses in the brain coinciding with where seizure activity was occurring.  I don't know if I can find them again, it was a few years ago.

I think I posted it back then but I've made so many posts that I don't think it would be easy to search for in the archives anymore, I can't think of a keyword search that would be specific enough.  If I didn't post that particular one, it was one that was similar, though if you really wanted to dig around for it.

Marcia might have it.  If Elyse sees this, she might have them, too.  I think it was either CMV or EBV that this

particular study was linking to.  But here's a different one that might interest you.

Virological and immunological aspects of seizure disorders.Eeg-Olofsson O.

Department of Women's and Children's Health, Section for Pediatrics, Uppsala University, S-751 85 Uppsala, Sweden.

AbstractThe brain is a symptom-producing organ, and one of the symptoms due to a basic brain dysfunction is epilepsy. The pathophysiologic background is in most epilepsies multifactorial, as different pre-, peri-, and postnatal triggers or environmental conditions influence one or several genetic factors, where also gender is of importance. One of the genetic factors is immunodysfunction, and the trigger mechanism may be a virus infection. Viruses are the most common agents to which the human being is exposed throughout life. The herpes virus group is of special interest with respect to complications of the central nervous system. Herpes viruses, especially herpes simplex virus type 1 (HSV-1), human herpes virus type 6 (HHV-6), cytomegalovirus (CMV) and Epstein-Barr virus (EBV), are capable of establishing latent infection and reactivating under a

variety of stimuli. In this review especially HHV-6 will be emphasized, as well as CMV in relation to Rasmussen's syndrome. The immunological aspects will focus on immunoglobulins, antibodies, especially the glutamate receptors, human leukocyte antigens, T- and B-lymphocytes, and their respective interaction with the antigen presenting cell. This course of events concerns the 'immunological synapse'. Finally, reports on herpes virus genomes in the human brain are discussed. A study on herpes viral DNA in brain tissue from patients operated for focal epilepsy is briefly mentioned.

PMID: 12536027 [PubMed - indexed for MEDLINE]

Cheryl ~http://the-ink-slinger.blogspot.com/

~http://www.gryffins-tail.blogspot.com~~@midian42~

I don't know the answer to your question but as you saw from house, seizures can be viral.  The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though).  Again, it's because of the antivirals.  Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?

If you go onto pubmed and search " HHV6 seizures " or " CMV seizures " or any other herpes virus and add seizure to it, you'll find quite a bit of info.  This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

 

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows " positive " on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a " poc. "

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head " cold " it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show " positive " and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME " baby acne " my son was born with (thousands of whiteheads). I always considered his " baby acne " was something more than " mommy's hormones. " I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Thanks.Well, I did a Dr. Google and searched < high natural killer cells chronic infection seizures >(just re-noticed or noticed for the first time that my son's bloodwork in Dec showed high NKC)

and found this among the top hits http://emedicine.medscape.com/article/1134049-overviewwhich mentions: " The reactivation of herpesviruses, including HHV-6 and EBV (Epstein-Barr

virus), is linked with a potentially serious drug eruption known as DRESS (drug reaction with eosinophilia and systemic symptoms).6 A report of high-level HHV-6 viremia associated with the onset of s- syndrome suggests an association.7 "

Which just happens to be the " rash " that the neuro mentioned today as being the " biggest problem with Lamictal. " (Which isn't really... as it has been linked to meningitis, equally or more disturbing)

So again it seems to me that fate is pointing me towards anti-viral therapy before I even think about anti-seizure meds. Do I try to get the DAN to prescribe anti-virals the way NIDS do, or do I just try to get in with Dr. ? (Can't see me butting heads with Dr. Goldberg)

 

Is it this one?http://www.ncbi.nlm.nih.gov/pubmed/17572889

Has anyone had a neuroimaging (MRI) done based on this or similar technique to identify viral infection in the brain?Thanks,

To: mb12 valtrex Sent: Mon, January 17, 2011 10:02:10 PM

Subject: Re: your opinion please? (seizures / vitamin A)

 

I forgot to mention that this wasn't just pure coincidence that Dr. G's kids were doing this, the medical community already knows that viruses can cause seizures but I think we are just now starting to look into latent viruses.  A study was coming out while I was with him suggesting the link between latent pockets of viruses in the brain coinciding with where seizure activity was occurring.  I don't know if I can find them again, it was a few years ago.

I think I posted it back then but I've made so many posts that I don't think it would be easy to search for in the archives anymore, I can't think of a keyword search that would be specific enough.  If I didn't post that particular one, it was one that was similar, though if you really wanted to dig around for it.

Marcia might have it.  If Elyse sees this, she might have them, too.  I think it was either CMV or EBV that this

particular study was linking to.  But here's a different one that might interest you.

Virological and immunological aspects of seizure disorders.Eeg-Olofsson O.

Department of Women's and Children's Health, Section for Pediatrics, Uppsala University, S-751 85 Uppsala, Sweden.

AbstractThe brain is a symptom-producing organ, and one of the symptoms due to a basic brain dysfunction is epilepsy. The pathophysiologic background is in most epilepsies multifactorial, as different pre-, peri-, and postnatal triggers or environmental conditions influence one or several genetic factors, where also gender is of importance. One of the genetic factors is immunodysfunction, and the trigger mechanism may be a virus infection. Viruses are the most common agents to which the human being is exposed throughout life. The herpes virus group is of special interest with respect to complications of the central nervous system. Herpes viruses, especially herpes simplex virus type 1 (HSV-1), human herpes virus type 6 (HHV-6), cytomegalovirus (CMV) and Epstein-Barr virus (EBV), are capable of establishing latent infection and reactivating under a

variety of stimuli. In this review especially HHV-6 will be emphasized, as well as CMV in relation to Rasmussen's syndrome. The immunological aspects will focus on immunoglobulins, antibodies, especially the glutamate receptors, human leukocyte antigens, T- and B-lymphocytes, and their respective interaction with the antigen presenting cell. This course of events concerns the 'immunological synapse'. Finally, reports on herpes virus genomes in the human brain are discussed. A study on herpes viral DNA in brain tissue from patients operated for focal epilepsy is briefly mentioned.

PMID: 12536027 [PubMed - indexed for MEDLINE]

Cheryl ~http://the-ink-slinger.blogspot.com/

~http://www.gryffins-tail.blogspot.com~~@midian42~

I don't know the answer to your question but as you saw from house, seizures can be viral.  The reality is that some people should actually should be on antivirals and not on antiepileptics. One thing that I noticed with NIDS is that kids that had seizures before antivirals, became seizure free or had greatly reduced seizure activity (obviously not *all* kids did, though).  Again, it's because of the antivirals.  Is your DAN just not willing to Rx antivirals or are you not ready to take the leap?

If you go onto pubmed and search " HHV6 seizures " or " CMV seizures " or any other herpes virus and add seizure to it, you'll find quite a bit of info.  This subject is actually on my list of things to blog about.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

On Jan 17, 2011, at 8:12 PM, Toni Marie Lombardo wrote:

 

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows " positive " on Varicella, and has never had chicken pox or the varicella vaccine.

The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a " poc. "

My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These things are always related to a head " cold " it seems.

I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show " positive " and has also never had varicella vaccine.

Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs.

I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOL

I just don't know what drugs are scarier, the anti-virals or the seizure meds?PS Of interest, the poc my daughter has looks identical to the EXTREME " baby acne " my son was born with (thousands of whiteheads). I always considered his " baby acne " was something more than " mommy's hormones. " I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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If your son has had several seizures I think you do need to put him on an antiseizure med for awhile. Since they both test positive for varicella certainly a trial of valtrex with a strong antifungal would be warrranted. Have you tried any diets? Food can definetly cause seizures too.

Subject: your opinion please? (seizures / vitamin A)To: mb12 valtrex Date: Monday, January 17, 2011, 11:12 PM

Last weekend, we used high dose vitamin A protocol on my daughter. She's never had MMR and shows not immune on those titers, but she shows "positive" on Varicella, and has never had chicken pox or the varicella vaccine.The DAN suggested the high dose A. He said that he thinks it helps all sorts of things, not just measles.We noticed nothing significant from the high dose vitamin A. My daughter did get one whitehead in the middle of her forehead. She has never broken out before in her life, so I definitely link it to the vit A. I would characterize it as a "poc."My son had a couple or three absence seizures this week. He has maybe had a few before. In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal type), all low grade fevers (99-101 degrees) The last seizure he had was in Dec, it was a cluster. The previous seizure he had before this cluster (that wasn't an absence one) was two in two days. These

things are always related to a head "cold" it seems.I have been wracking my brain trying to figure out what set off the absence seizures, food, supplement, etc.Do you think kicking up the virus in my daughter could have caused issues with him? He also has varicella titers that show "positive" and has also never had varicella vaccine.Secondly, I don't know what/where to go now. We had a neuro appt today and she is still pressing for meds. She is using some scare tactics, ie mentioning irretractable seizure, brain damage and death.I have been investigating NIDS for a bit. Been trying to get all the NIDS suggested labs. I feel like it was Kismet watching House tonight and seeing the guy on there having seizures due to varicella. I was glad to see it so my husband could see that this is not un-heard of.... even if it IS House. LOLI just don't know what drugs are scarier, the anti-virals or the seizure meds?PS

Of interest, the poc my daughter has looks identical to the EXTREME "baby acne" my son was born with (thousands of whiteheads). I always considered his "baby acne" was something more than "mommy's hormones." I wish I knew whether I was around someone whose child had varicella or chicken pox while I was pregnant. :-(-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Anti-virals brought about some great changes in my daughter, speech,

comprehension, so forth... I would def give them a try before anti-seizure meds,

I hear those are just awful and can cause more seizures. Really hard to get off

of also. There are natural anti-virals you could try at home first to see if he

is a responder. If he's had the MMR, vitamin A protocol is a good choice. Make

sure you have your dosing right before starting. If it's more herpes in nature

(or if thats what u have) you could try coconut oil, monolaurin, or olive leaf

(I think, it's early). When I put my dd on acyclovir for 9 months is when we

really got progress. It's rough going the first few weeks as those nasty lil

boogers are dying off but it's so worth it. Personally I would try every other

route before I tried seizure meds. Good luck to you!

> >

> >

> >

> > Last weekend, we used high dose vitamin A protocol on my daughter. She's

> > never had MMR and shows not immune on those titers, but she shows " positive "

> > on Varicella, and has never had chicken pox or the varicella vaccine.

> >

> > The DAN suggested the high dose A. He said that he thinks it helps all

> > sorts of things, not just measles.

> >

> > We noticed nothing significant from the high dose vitamin A. My daughter

> > did get one whitehead in the middle of her forehead. She has never broken

> > out before in her life, so I definitely link it to the vit A. I would

> > characterize it as a " poc. "

> >

> > My son had a couple or three absence seizures this week. He has maybe had a

> > few before.

> > In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal

> > type), all low grade fevers (99-101 degrees) The last seizure he had was in

> > Dec, it was a cluster. The previous seizure he had before this cluster (that

> > wasn't an absence one) was two in two days. These things are always related

> > to a head " cold " it seems.

> >

> > I have been wracking my brain trying to figure out what set off the absence

> > seizures, food, supplement, etc.

> >

> > Do you think kicking up the virus in my daughter could have caused issues

> > with him? He also has varicella titers that show " positive " and has also

> > never had varicella vaccine.

> >

> > Secondly, I don't know what/where to go now. We had a neuro appt today and

> > she is still pressing for meds. She is using some scare tactics, ie

> > mentioning irretractable seizure, brain damage and death.

> > I have been investigating NIDS for a bit. Been trying to get all the NIDS

> > suggested labs.

> >

> > I feel like it was Kismet watching House tonight and seeing the guy on

> > there having seizures due to varicella. I was glad to see it so my husband

> > could see that this is not un-heard of.... even if it IS House. LOL

> > I just don't know what drugs are scarier, the anti-virals or the seizure

> > meds?

> >

> > PS Of interest, the poc my daughter has looks identical to the EXTREME

> > " baby acne " my son was born with (thousands of whiteheads). I always

> > considered his " baby acne " was something more than " mommy's hormones. " I

> > wish I knew whether I was around someone whose child had varicella or

> > chicken pox while I was pregnant. :-(

> >

> > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

> >

> >

> >

> >

> > Cheryl

> > ~http://www.gryffins-tail.blogspot.com~

> > ~@midian42~

> >

> >

> >

> >

> >

> >

>

>

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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What do you mean by "nasty"? We started our son on Acyclovir last week. The Dr said to expect a healing regression. He had some nasty black stools the first few days, but that's it.

Anti-virals brought about some great changes in my daughter, speech, comprehension, so forth... I would def give them a try before anti-seizure meds, I hear those are just awful and can cause more seizures. Really hard to get off of also. There are natural anti-virals you could try at home first to see if he is a responder. If he's had the MMR, vitamin A protocol is a good choice. Make sure you have your dosing right before starting. If it's more herpes in nature (or if thats what u have) you could try coconut oil, monolaurin, or olive leaf (I think, it's early). When I put my dd on acyclovir for 9 months is when we really got progress. It's rough going the first few weeks as those nasty lil boogers are dying off but it's so worth it. Personally I would try every other route before I tried seizure meds. Good luck to you!

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Can you help me with a list of most used natural anti-virals in the ASD

community -

1. LDM-100

2. OLE

3. Monolaurin

4. L-Lysine

5. Virastop (protease, not an anti-viral by itself)

> > >

> > >

> > >

> > > Last weekend, we used high dose vitamin A protocol on my daughter. She's

> > > never had MMR and shows not immune on those titers, but she shows

" positive "

> > > on Varicella, and has never had chicken pox or the varicella vaccine.

> > >

> > > The DAN suggested the high dose A. He said that he thinks it helps all

> > > sorts of things, not just measles.

> > >

> > > We noticed nothing significant from the high dose vitamin A. My daughter

> > > did get one whitehead in the middle of her forehead. She has never broken

> > > out before in her life, so I definitely link it to the vit A. I would

> > > characterize it as a " poc. "

> > >

> > > My son had a couple or three absence seizures this week. He has maybe had

a

> > > few before.

> > > In 4.5 years of age, he has had 6 episodes of " real " seizures (grand mal

> > > type), all low grade fevers (99-101 degrees) The last seizure he had was

in

> > > Dec, it was a cluster. The previous seizure he had before this cluster

(that

> > > wasn't an absence one) was two in two days. These things are always

related

> > > to a head " cold " it seems.

> > >

> > > I have been wracking my brain trying to figure out what set off the

absence

> > > seizures, food, supplement, etc.

> > >

> > > Do you think kicking up the virus in my daughter could have caused issues

> > > with him? He also has varicella titers that show " positive " and has also

> > > never had varicella vaccine.

> > >

> > > Secondly, I don't know what/where to go now. We had a neuro appt today and

> > > she is still pressing for meds. She is using some scare tactics, ie

> > > mentioning irretractable seizure, brain damage and death.

> > > I have been investigating NIDS for a bit. Been trying to get all the NIDS

> > > suggested labs.

> > >

> > > I feel like it was Kismet watching House tonight and seeing the guy on

> > > there having seizures due to varicella. I was glad to see it so my husband

> > > could see that this is not un-heard of.... even if it IS House. LOL

> > > I just don't know what drugs are scarier, the anti-virals or the seizure

> > > meds?

> > >

> > > PS Of interest, the poc my daughter has looks identical to the EXTREME

> > > " baby acne " my son was born with (thousands of whiteheads). I always

> > > considered his " baby acne " was something more than " mommy's hormones. " I

> > > wish I knew whether I was around someone whose child had varicella or

> > > chicken pox while I was pregnant. :-(

> > >

> > > --

> > > Toni

> > >

> > > ------

> > > Mind like a steel trap...

> > > Rusty and illegal in 37 states.

> > >

> > >

> > >

> > >

> > >

> > > Cheryl

> > > ~http://www.gryffins-tail.blogspot.com~

> > > ~@midian42~

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

>

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Posted
Posted

There are some transfer factors you might want to look into. http://www.naturalhealthconsult.com/Monographs/immunfactor.htmlPricey but good.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

Can you help me with a list of most used natural anti-virals in the ASD community -

1. LDM-100

2. OLE

3. Monolaurin

4. L-Lysine

5. Virastop (protease, not an anti-viral by itself)

> > >

> > >

> > >

> > > Last weekend, we used high dose vitamin A protocol on my daughter. She's

> > > never had MMR and shows not immune on those titers, but she shows "positive"

> > > on Varicella, and has never had chicken pox or the varicella vaccine.

> > >

> > > The DAN suggested the high dose A. He said that he thinks it helps all

> > > sorts of things, not just measles.

> > >

> > > We noticed nothing significant from the high dose vitamin A. My daughter

> > > did get one whitehead in the middle of her forehead. She has never broken

> > > out before in her life, so I definitely link it to the vit A. I would

> > > characterize it as a "poc."

> > >

> > > My son had a couple or three absence seizures this week. He has maybe had a

> > > few before.

> > > In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal

> > > type), all low grade fevers (99-101 degrees) The last seizure he had was in

> > > Dec, it was a cluster. The previous seizure he had before this cluster (that

> > > wasn't an absence one) was two in two days. These things are always related

> > > to a head "cold" it seems.

> > >

> > > I have been wracking my brain trying to figure out what set off the absence

> > > seizures, food, supplement, etc.

> > >

> > > Do you think kicking up the virus in my daughter could have caused issues

> > > with him? He also has varicella titers that show "positive" and has also

> > > never had varicella vaccine.

> > >

> > > Secondly, I don't know what/where to go now. We had a neuro appt today and

> > > she is still pressing for meds. She is using some scare tactics, ie

> > > mentioning irretractable seizure, brain damage and death.

> > > I have been investigating NIDS for a bit. Been trying to get all the NIDS

> > > suggested labs.

> > >

> > > I feel like it was Kismet watching House tonight and seeing the guy on

> > > there having seizures due to varicella. I was glad to see it so my husband

> > > could see that this is not un-heard of.... even if it IS House. LOL

> > > I just don't know what drugs are scarier, the anti-virals or the seizure

> > > meds?

> > >

> > > PS Of interest, the poc my daughter has looks identical to the EXTREME

> > > "baby acne" my son was born with (thousands of whiteheads). I always

> > > considered his "baby acne" was something more than "mommy's hormones." I

> > > wish I knew whether I was around someone whose child had varicella or

> > > chicken pox while I was pregnant. :-(

> > >

> > > --

> > > Toni

> > >

> > > ------

> > > Mind like a steel trap...

> > > Rusty and illegal in 37 states.

> > >

> > >

> > >

> > >

> > >

> > > Cheryl

> > > ~http://www.gryffins-tail.blogspot.com~

> > > ~@midian42~

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

>

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Share on other sites
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Posted
Posted

There are some transfer factors you might want to look into. http://www.naturalhealthconsult.com/Monographs/immunfactor.htmlPricey but good.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

Can you help me with a list of most used natural anti-virals in the ASD community -

1. LDM-100

2. OLE

3. Monolaurin

4. L-Lysine

5. Virastop (protease, not an anti-viral by itself)

> > >

> > >

> > >

> > > Last weekend, we used high dose vitamin A protocol on my daughter. She's

> > > never had MMR and shows not immune on those titers, but she shows "positive"

> > > on Varicella, and has never had chicken pox or the varicella vaccine.

> > >

> > > The DAN suggested the high dose A. He said that he thinks it helps all

> > > sorts of things, not just measles.

> > >

> > > We noticed nothing significant from the high dose vitamin A. My daughter

> > > did get one whitehead in the middle of her forehead. She has never broken

> > > out before in her life, so I definitely link it to the vit A. I would

> > > characterize it as a "poc."

> > >

> > > My son had a couple or three absence seizures this week. He has maybe had a

> > > few before.

> > > In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal

> > > type), all low grade fevers (99-101 degrees) The last seizure he had was in

> > > Dec, it was a cluster. The previous seizure he had before this cluster (that

> > > wasn't an absence one) was two in two days. These things are always related

> > > to a head "cold" it seems.

> > >

> > > I have been wracking my brain trying to figure out what set off the absence

> > > seizures, food, supplement, etc.

> > >

> > > Do you think kicking up the virus in my daughter could have caused issues

> > > with him? He also has varicella titers that show "positive" and has also

> > > never had varicella vaccine.

> > >

> > > Secondly, I don't know what/where to go now. We had a neuro appt today and

> > > she is still pressing for meds. She is using some scare tactics, ie

> > > mentioning irretractable seizure, brain damage and death.

> > > I have been investigating NIDS for a bit. Been trying to get all the NIDS

> > > suggested labs.

> > >

> > > I feel like it was Kismet watching House tonight and seeing the guy on

> > > there having seizures due to varicella. I was glad to see it so my husband

> > > could see that this is not un-heard of.... even if it IS House. LOL

> > > I just don't know what drugs are scarier, the anti-virals or the seizure

> > > meds?

> > >

> > > PS Of interest, the poc my daughter has looks identical to the EXTREME

> > > "baby acne" my son was born with (thousands of whiteheads). I always

> > > considered his "baby acne" was something more than "mommy's hormones." I

> > > wish I knew whether I was around someone whose child had varicella or

> > > chicken pox while I was pregnant. :-(

> > >

> > > --

> > > Toni

> > >

> > > ------

> > > Mind like a steel trap...

> > > Rusty and illegal in 37 states.

> > >

> > >

> > >

> > >

> > >

> > > Cheryl

> > > ~http://www.gryffins-tail.blogspot.com~

> > > ~@midian42~

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

>

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Posted
Posted

There are some transfer factors you might want to look into. http://www.naturalhealthconsult.com/Monographs/immunfactor.htmlPricey but good.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

Can you help me with a list of most used natural anti-virals in the ASD community -

1. LDM-100

2. OLE

3. Monolaurin

4. L-Lysine

5. Virastop (protease, not an anti-viral by itself)

> > >

> > >

> > >

> > > Last weekend, we used high dose vitamin A protocol on my daughter. She's

> > > never had MMR and shows not immune on those titers, but she shows "positive"

> > > on Varicella, and has never had chicken pox or the varicella vaccine.

> > >

> > > The DAN suggested the high dose A. He said that he thinks it helps all

> > > sorts of things, not just measles.

> > >

> > > We noticed nothing significant from the high dose vitamin A. My daughter

> > > did get one whitehead in the middle of her forehead. She has never broken

> > > out before in her life, so I definitely link it to the vit A. I would

> > > characterize it as a "poc."

> > >

> > > My son had a couple or three absence seizures this week. He has maybe had a

> > > few before.

> > > In 4.5 years of age, he has had 6 episodes of "real" seizures (grand mal

> > > type), all low grade fevers (99-101 degrees) The last seizure he had was in

> > > Dec, it was a cluster. The previous seizure he had before this cluster (that

> > > wasn't an absence one) was two in two days. These things are always related

> > > to a head "cold" it seems.

> > >

> > > I have been wracking my brain trying to figure out what set off the absence

> > > seizures, food, supplement, etc.

> > >

> > > Do you think kicking up the virus in my daughter could have caused issues

> > > with him? He also has varicella titers that show "positive" and has also

> > > never had varicella vaccine.

> > >

> > > Secondly, I don't know what/where to go now. We had a neuro appt today and

> > > she is still pressing for meds. She is using some scare tactics, ie

> > > mentioning irretractable seizure, brain damage and death.

> > > I have been investigating NIDS for a bit. Been trying to get all the NIDS

> > > suggested labs.

> > >

> > > I feel like it was Kismet watching House tonight and seeing the guy on

> > > there having seizures due to varicella. I was glad to see it so my husband

> > > could see that this is not un-heard of.... even if it IS House. LOL

> > > I just don't know what drugs are scarier, the anti-virals or the seizure

> > > meds?

> > >

> > > PS Of interest, the poc my daughter has looks identical to the EXTREME

> > > "baby acne" my son was born with (thousands of whiteheads). I always

> > > considered his "baby acne" was something more than "mommy's hormones." I

> > > wish I knew whether I was around someone whose child had varicella or

> > > chicken pox while I was pregnant. :-(

> > >

> > > --

> > > Toni

> > >

> > > ------

> > > Mind like a steel trap...

> > > Rusty and illegal in 37 states.

> > >

> > >

> > >

> > >

> > >

> > > Cheryl

> > > ~http://www.gryffins-tail.blogspot.com~

> > > ~@midian42~

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

>

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Posted
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Wow, lucky you. My daughter turned into a raving lunatic. Flapping around,

telling us " no! " so forth. A good antifungal is usually in order when your on

them though, I think the yeast flare is what turned my daughter into the

lunatic.

As far as the seizures go did I mention a good amount of DHA and of course

magnesium? They will take you far...

>

> > Anti-virals brought about some great changes in my daughter, speech,

comprehension, so forth... I would def give them a try before anti-seizure meds,

I hear those are just awful and can cause more seizures. Really hard to get off

of also. There are natural anti-virals you could try at home first to see if he

is a responder. If he's had the MMR, vitamin A protocol is a good choice. Make

sure you have your dosing right before starting. If it's more herpes in nature

(or if thats what u have) you could try coconut oil, monolaurin, or olive leaf

(I think, it's early). When I put my dd on acyclovir for 9 months is when we

really got progress. It's rough going the first few weeks as those nasty lil

boogers are dying off but it's so worth it. Personally I would try every other

route before I tried seizure meds. Good luck to you!

> >

>

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Posted
Posted

Wow, lucky you. My daughter turned into a raving lunatic. Flapping around,

telling us " no! " so forth. A good antifungal is usually in order when your on

them though, I think the yeast flare is what turned my daughter into the

lunatic.

As far as the seizures go did I mention a good amount of DHA and of course

magnesium? They will take you far...

>

> > Anti-virals brought about some great changes in my daughter, speech,

comprehension, so forth... I would def give them a try before anti-seizure meds,

I hear those are just awful and can cause more seizures. Really hard to get off

of also. There are natural anti-virals you could try at home first to see if he

is a responder. If he's had the MMR, vitamin A protocol is a good choice. Make

sure you have your dosing right before starting. If it's more herpes in nature

(or if thats what u have) you could try coconut oil, monolaurin, or olive leaf

(I think, it's early). When I put my dd on acyclovir for 9 months is when we

really got progress. It's rough going the first few weeks as those nasty lil

boogers are dying off but it's so worth it. Personally I would try every other

route before I tried seizure meds. Good luck to you!

> >

>

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