New and overwhlmed....

January 18, 2011

I've been browsing the messages for the past few days and I am overwhelmed by

all of the medical terms and names of mineral/vitamins etc. I feel like a real

rookie, but I guess I have to start somewhere. This is our story..

I am a mother of 3 living in Northern CT. My eldest son is 14 and has had

allergy issues all of his life, although I was not " clued in " until he was about

4. He was a happy baby and very independent, but he did not want to be hugged

and temper tantrums were worse than the usual terrible twos! He did not talk

until he was 3, read early, but is mildly dyslexic. We are starting to get a

grip on his health issues and have eliminated most of the offending foods.

It is really my youngest son who I am struggling with right now. He is 8 and was

truly ADHD as a younger kid, (not diagnosed, but he was highly active to the

point that I had to put dead locks high up on the doors to stop him getting out

of the house!). He walked at 9 months,ran the day after and has not stopped

since! He has calmed down significantly, but still has attention/focus problems.

He is seeing a vision therapist (2 years now, as he has tracking issues. He is

starting to read and shows a slight interest in academics, but he is definitely

behind in the " normal " learning curve. He has many reversals and his memory is

extremely weak. He easily forgets academics, blends, math facts etc and he is

slow to pick up new things.

I have read " Breaking the Vicious Cycle " and a lot about the GAPS diet, but I

have not taken the full plunge to eliminate so much more out of our diets. We

see a Chinese healer once a month, he takes pro-biotics and fish oil, I have

recently started him on Magnesium/Vit D.

I am concerned about his overall health; he has a high metabolism and is thinner

than his friends (doctors have not been concerned about this). I have little

faith in conventional medicine, but I have given him courses of antibiotics over

the years, as he's had extremely high fevers, to the point that he would be

delirious. He had scarlet fever two years ago, with a fever of 104, his legs

hurt and he couldn't walk; by the time we got to the ER he was so delirious he

couldn't even recognize me as his Mom. I am wondering if he may still be

harboring some residual infection. He has always had enlarged lymph nodes(from

birth), nothing any doctor has ever been concerned about either. He also needs

to get to the bathroom urgently when he needs to pee and was 7 before he was dry

at night. I had him at the doctors last week, as he is now complaining of his

chest hurting after playing basket ball and sledding. He is still complaining of

his chest hurting even without exertion, so now I have an appointment with a

cardiologist in February to have his heart checked!

I guess I am at my wits end to know where to begin. I need a good doctor who

understands these issues, who knows about different tests to find out what is

going on with my little guy, and who can help him get on the road to healing.

Are any of you in CT? Can you recommend a doctor that you have worked with?

I am reluctant to give him anything else without the council of a doctor

(non-conventional)who knows what they are doing, has experience and results with

these symptoms. I know food can be the cure, but I feel there are other things

at play here too.

Any advice is welcome. Thank you in advance!

January 18, 2011

Dr Ohara is in CT and I have heard she is good. is a physicians assistant in Edison NJ (He works with Dr Neubrander) . is excellent. www.drneubrander.com Dr Lynch is with Northampton Wellness in Northampton MA.

Out of those 3 I think is the best.

Subject: New and overwhlmed....To: mb12 valtrex Date: Tuesday, January 18, 2011, 1:40 PM

I've been browsing the messages for the past few days and I am overwhelmed by all of the medical terms and names of mineral/vitamins etc. I feel like a real rookie, but I guess I have to start somewhere. This is our story.. I am a mother of 3 living in Northern CT. My eldest son is 14 and has had allergy issues all of his life, although I was not "clued in" until he was about 4. He was a happy baby and very independent, but he did not want to be hugged and temper tantrums were worse than the usual terrible twos! He did not talk until he was 3, read early, but is mildly dyslexic. We are starting to get a grip on his health issues and have eliminated most of the offending foods.It is really my youngest son who I am struggling with right now. He is 8 and was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the point that I had to put dead locks high up on the doors to stop him getting out of the house!). He

walked at 9 months,ran the day after and has not stopped since! He has calmed down significantly, but still has attention/focus problems. He is seeing a vision therapist (2 years now, as he has tracking issues. He is starting to read and shows a slight interest in academics, but he is definitely behind in the "normal" learning curve. He has many reversals and his memory is extremely weak. He easily forgets academics, blends, math facts etc and he is slow to pick up new things.I have read "Breaking the Vicious Cycle" and a lot about the GAPS diet, but I have not taken the full plunge to eliminate so much more out of our diets. We see a Chinese healer once a month, he takes pro-biotics and fish oil, I have recently started him on Magnesium/Vit D.I am concerned about his overall health; he has a high metabolism and is thinner than his friends (doctors have not been concerned about this). I have little faith in conventional medicine, but I

have given him courses of antibiotics over the years, as he's had extremely high fevers, to the point that he would be delirious. He had scarlet fever two years ago, with a fever of 104, his legs hurt and he couldn't walk; by the time we got to the ER he was so delirious he couldn't even recognize me as his Mom. I am wondering if he may still be harboring some residual infection. He has always had enlarged lymph nodes(from birth), nothing any doctor has ever been concerned about either. He also needs to get to the bathroom urgently when he needs to pee and was 7 before he was dry at night. I had him at the doctors last week, as he is now complaining of his chest hurting after playing basket ball and sledding. He is still complaining of his chest hurting even without exertion, so now I have an appointment with a cardiologist in February to have his heart checked!I guess I am at my wits end to know where to begin. I need a good doctor who

understands these issues, who knows about different tests to find out what is going on with my little guy, and who can help him get on the road to healing. Are any of you in CT? Can you recommend a doctor that you have worked with? I am reluctant to give him anything else without the council of a doctor (non-conventional)who knows what they are doing, has experience and results with these symptoms. I know food can be the cure, but I feel there are other things at play here too.Any advice is welcome. Thank you in advance!

January 18, 2011

Dr Ohara is in CT and I have heard she is good. is a physicians assistant in Edison NJ (He works with Dr Neubrander) . is excellent. www.drneubrander.com Dr Lynch is with Northampton Wellness in Northampton MA.

Out of those 3 I think is the best.

Subject: New and overwhlmed....To: mb12 valtrex Date: Tuesday, January 18, 2011, 1:40 PM

I've been browsing the messages for the past few days and I am overwhelmed by all of the medical terms and names of mineral/vitamins etc. I feel like a real rookie, but I guess I have to start somewhere. This is our story.. I am a mother of 3 living in Northern CT. My eldest son is 14 and has had allergy issues all of his life, although I was not "clued in" until he was about 4. He was a happy baby and very independent, but he did not want to be hugged and temper tantrums were worse than the usual terrible twos! He did not talk until he was 3, read early, but is mildly dyslexic. We are starting to get a grip on his health issues and have eliminated most of the offending foods.It is really my youngest son who I am struggling with right now. He is 8 and was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the point that I had to put dead locks high up on the doors to stop him getting out of the house!). He

walked at 9 months,ran the day after and has not stopped since! He has calmed down significantly, but still has attention/focus problems. He is seeing a vision therapist (2 years now, as he has tracking issues. He is starting to read and shows a slight interest in academics, but he is definitely behind in the "normal" learning curve. He has many reversals and his memory is extremely weak. He easily forgets academics, blends, math facts etc and he is slow to pick up new things.I have read "Breaking the Vicious Cycle" and a lot about the GAPS diet, but I have not taken the full plunge to eliminate so much more out of our diets. We see a Chinese healer once a month, he takes pro-biotics and fish oil, I have recently started him on Magnesium/Vit D.I am concerned about his overall health; he has a high metabolism and is thinner than his friends (doctors have not been concerned about this). I have little faith in conventional medicine, but I

have given him courses of antibiotics over the years, as he's had extremely high fevers, to the point that he would be delirious. He had scarlet fever two years ago, with a fever of 104, his legs hurt and he couldn't walk; by the time we got to the ER he was so delirious he couldn't even recognize me as his Mom. I am wondering if he may still be harboring some residual infection. He has always had enlarged lymph nodes(from birth), nothing any doctor has ever been concerned about either. He also needs to get to the bathroom urgently when he needs to pee and was 7 before he was dry at night. I had him at the doctors last week, as he is now complaining of his chest hurting after playing basket ball and sledding. He is still complaining of his chest hurting even without exertion, so now I have an appointment with a cardiologist in February to have his heart checked!I guess I am at my wits end to know where to begin. I need a good doctor who

understands these issues, who knows about different tests to find out what is going on with my little guy, and who can help him get on the road to healing. Are any of you in CT? Can you recommend a doctor that you have worked with? I am reluctant to give him anything else without the council of a doctor (non-conventional)who knows what they are doing, has experience and results with these symptoms. I know food can be the cure, but I feel there are other things at play here too.Any advice is welcome. Thank you in advance!

January 18, 2011

Dr Ohara is in CT and I have heard she is good. is a physicians assistant in Edison NJ (He works with Dr Neubrander) . is excellent. www.drneubrander.com Dr Lynch is with Northampton Wellness in Northampton MA.

Out of those 3 I think is the best.

Subject: New and overwhlmed....To: mb12 valtrex Date: Tuesday, January 18, 2011, 1:40 PM

I've been browsing the messages for the past few days and I am overwhelmed by all of the medical terms and names of mineral/vitamins etc. I feel like a real rookie, but I guess I have to start somewhere. This is our story.. I am a mother of 3 living in Northern CT. My eldest son is 14 and has had allergy issues all of his life, although I was not "clued in" until he was about 4. He was a happy baby and very independent, but he did not want to be hugged and temper tantrums were worse than the usual terrible twos! He did not talk until he was 3, read early, but is mildly dyslexic. We are starting to get a grip on his health issues and have eliminated most of the offending foods.It is really my youngest son who I am struggling with right now. He is 8 and was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the point that I had to put dead locks high up on the doors to stop him getting out of the house!). He

walked at 9 months,ran the day after and has not stopped since! He has calmed down significantly, but still has attention/focus problems. He is seeing a vision therapist (2 years now, as he has tracking issues. He is starting to read and shows a slight interest in academics, but he is definitely behind in the "normal" learning curve. He has many reversals and his memory is extremely weak. He easily forgets academics, blends, math facts etc and he is slow to pick up new things.I have read "Breaking the Vicious Cycle" and a lot about the GAPS diet, but I have not taken the full plunge to eliminate so much more out of our diets. We see a Chinese healer once a month, he takes pro-biotics and fish oil, I have recently started him on Magnesium/Vit D.I am concerned about his overall health; he has a high metabolism and is thinner than his friends (doctors have not been concerned about this). I have little faith in conventional medicine, but I

have given him courses of antibiotics over the years, as he's had extremely high fevers, to the point that he would be delirious. He had scarlet fever two years ago, with a fever of 104, his legs hurt and he couldn't walk; by the time we got to the ER he was so delirious he couldn't even recognize me as his Mom. I am wondering if he may still be harboring some residual infection. He has always had enlarged lymph nodes(from birth), nothing any doctor has ever been concerned about either. He also needs to get to the bathroom urgently when he needs to pee and was 7 before he was dry at night. I had him at the doctors last week, as he is now complaining of his chest hurting after playing basket ball and sledding. He is still complaining of his chest hurting even without exertion, so now I have an appointment with a cardiologist in February to have his heart checked!I guess I am at my wits end to know where to begin. I need a good doctor who

understands these issues, who knows about different tests to find out what is going on with my little guy, and who can help him get on the road to healing. Are any of you in CT? Can you recommend a doctor that you have worked with? I am reluctant to give him anything else without the council of a doctor (non-conventional)who knows what they are doing, has experience and results with these symptoms. I know food can be the cure, but I feel there are other things at play here too.Any advice is welcome. Thank you in advance!

January 18, 2011

I've heard nothing but good things about , too. I know people that preferred him over Bradstreet when he was at ICDRC.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

Dr Ohara is in CT and I have heard she is good. is a physicians assistant in Edison NJ (He works with Dr Neubrander) . is excellent. www.drneubrander.com Dr Lynch is with Northampton Wellness in Northampton MA.

Out of those 3 I think is the best.

Subject: New and overwhlmed....To: mb12 valtrex Date: Tuesday, January 18, 2011, 1:40 PM

I've been browsing the messages for the past few days and I am overwhelmed by all of the medical terms and names of mineral/vitamins etc. I feel like a real rookie, but I guess I have to start somewhere. This is our story.. I am a mother of 3 living in Northern CT. My eldest son is 14 and has had allergy issues all of his life, although I was not "clued in" until he was about 4. He was a happy baby and very independent, but he did not want to be hugged and temper tantrums were worse than the usual terrible twos! He did not talk until he was 3, read early, but is mildly dyslexic. We are starting to get a grip on his health issues and have eliminated most of the offending foods.It is really my youngest son who I am struggling with right now. He is 8 and was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the point that I had to put dead locks high up on the doors to stop him getting out of the house!). He

walked at 9 months,ran the day after and has not stopped since! He has calmed down significantly, but still has attention/focus problems. He is seeing a vision therapist (2 years now, as he has tracking issues. He is starting to read and shows a slight interest in academics, but he is definitely behind in the "normal" learning curve. He has many reversals and his memory is extremely weak. He easily forgets academics, blends, math facts etc and he is slow to pick up new things.I have read "Breaking the Vicious Cycle" and a lot about the GAPS diet, but I have not taken the full plunge to eliminate so much more out of our diets. We see a Chinese healer once a month, he takes pro-biotics and fish oil, I have recently started him on Magnesium/Vit D.I am concerned about his overall health; he has a high metabolism and is thinner than his friends (doctors have not been concerned about this). I have little faith in conventional medicine, but I

have given him courses of antibiotics over the years, as he's had extremely high fevers, to the point that he would be delirious. He had scarlet fever two years ago, with a fever of 104, his legs hurt and he couldn't walk; by the time we got to the ER he was so delirious he couldn't even recognize me as his Mom. I am wondering if he may still be harboring some residual infection. He has always had enlarged lymph nodes(from birth), nothing any doctor has ever been concerned about either. He also needs to get to the bathroom urgently when he needs to pee and was 7 before he was dry at night. I had him at the doctors last week, as he is now complaining of his chest hurting after playing basket ball and sledding. He is still complaining of his chest hurting even without exertion, so now I have an appointment with a cardiologist in February to have his heart checked!I guess I am at my wits end to know where to begin. I need a good doctor who

understands these issues, who knows about different tests to find out what is going on with my little guy, and who can help him get on the road to healing. Are any of you in CT? Can you recommend a doctor that you have worked with? I am reluctant to give him anything else without the council of a doctor (non-conventional)who knows what they are doing, has experience and results with these symptoms. I know food can be the cure, but I feel there are other things at play here too.Any advice is welcome. Thank you in advance!

January 18, 2011

I've heard nothing but good things about , too. I know people that preferred him over Bradstreet when he was at ICDRC.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

Dr Ohara is in CT and I have heard she is good. is a physicians assistant in Edison NJ (He works with Dr Neubrander) . is excellent. www.drneubrander.com Dr Lynch is with Northampton Wellness in Northampton MA.

Out of those 3 I think is the best.

Subject: New and overwhlmed....To: mb12 valtrex Date: Tuesday, January 18, 2011, 1:40 PM

I've been browsing the messages for the past few days and I am overwhelmed by all of the medical terms and names of mineral/vitamins etc. I feel like a real rookie, but I guess I have to start somewhere. This is our story.. I am a mother of 3 living in Northern CT. My eldest son is 14 and has had allergy issues all of his life, although I was not "clued in" until he was about 4. He was a happy baby and very independent, but he did not want to be hugged and temper tantrums were worse than the usual terrible twos! He did not talk until he was 3, read early, but is mildly dyslexic. We are starting to get a grip on his health issues and have eliminated most of the offending foods.It is really my youngest son who I am struggling with right now. He is 8 and was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the point that I had to put dead locks high up on the doors to stop him getting out of the house!). He

walked at 9 months,ran the day after and has not stopped since! He has calmed down significantly, but still has attention/focus problems. He is seeing a vision therapist (2 years now, as he has tracking issues. He is starting to read and shows a slight interest in academics, but he is definitely behind in the "normal" learning curve. He has many reversals and his memory is extremely weak. He easily forgets academics, blends, math facts etc and he is slow to pick up new things.I have read "Breaking the Vicious Cycle" and a lot about the GAPS diet, but I have not taken the full plunge to eliminate so much more out of our diets. We see a Chinese healer once a month, he takes pro-biotics and fish oil, I have recently started him on Magnesium/Vit D.I am concerned about his overall health; he has a high metabolism and is thinner than his friends (doctors have not been concerned about this). I have little faith in conventional medicine, but I

have given him courses of antibiotics over the years, as he's had extremely high fevers, to the point that he would be delirious. He had scarlet fever two years ago, with a fever of 104, his legs hurt and he couldn't walk; by the time we got to the ER he was so delirious he couldn't even recognize me as his Mom. I am wondering if he may still be harboring some residual infection. He has always had enlarged lymph nodes(from birth), nothing any doctor has ever been concerned about either. He also needs to get to the bathroom urgently when he needs to pee and was 7 before he was dry at night. I had him at the doctors last week, as he is now complaining of his chest hurting after playing basket ball and sledding. He is still complaining of his chest hurting even without exertion, so now I have an appointment with a cardiologist in February to have his heart checked!I guess I am at my wits end to know where to begin. I need a good doctor who

understands these issues, who knows about different tests to find out what is going on with my little guy, and who can help him get on the road to healing. Are any of you in CT? Can you recommend a doctor that you have worked with? I am reluctant to give him anything else without the council of a doctor (non-conventional)who knows what they are doing, has experience and results with these symptoms. I know food can be the cure, but I feel there are other things at play here too.Any advice is welcome. Thank you in advance!

January 18, 2011

It is overwhelming. It's hard to put it all in order in your head but you will. Just give it time and you'll be spewing out the acronyms, too!

Cheryl ~http://www.gryffins-tail.blogspot.com~~@midian42~

I've been browsing the messages for the past few days and I am overwhelmed by all of the medical terms and names of mineral/vitamins etc. I feel like a real rookie, but I guess I have to start somewhere. This is our story..

I am a mother of 3 living in Northern CT. My eldest son is 14 and has had allergy issues all of his life, although I was not "clued in" until he was about 4. He was a happy baby and very independent, but he did not want to be hugged and temper tantrums were worse than the usual terrible twos! He did not talk until he was 3, read early, but is mildly dyslexic. We are starting to get a grip on his health issues and have eliminated most of the offending foods.

It is really my youngest son who I am struggling with right now. He is 8 and was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the point that I had to put dead locks high up on the doors to stop him getting out of the house!). He walked at 9 months,ran the day after and has not stopped since! He has calmed down significantly, but still has attention/focus problems. He is seeing a vision therapist (2 years now, as he has tracking issues. He is starting to read and shows a slight interest in academics, but he is definitely behind in the "normal" learning curve. He has many reversals and his memory is extremely weak. He easily forgets academics, blends, math facts etc and he is slow to pick up new things.

I have read "Breaking the Vicious Cycle" and a lot about the GAPS diet, but I have not taken the full plunge to eliminate so much more out of our diets. We see a Chinese healer once a month, he takes pro-biotics and fish oil, I have recently started him on Magnesium/Vit D.

I am concerned about his overall health; he has a high metabolism and is thinner than his friends (doctors have not been concerned about this). I have little faith in conventional medicine, but I have given him courses of antibiotics over the years, as he's had extremely high fevers, to the point that he would be delirious. He had scarlet fever two years ago, with a fever of 104, his legs hurt and he couldn't walk; by the time we got to the ER he was so delirious he couldn't even recognize me as his Mom. I am wondering if he may still be harboring some residual infection. He has always had enlarged lymph nodes(from birth), nothing any doctor has ever been concerned about either. He also needs to get to the bathroom urgently when he needs to pee and was 7 before he was dry at night. I had him at the doctors last week, as he is now complaining of his chest hurting after playing basket ball and sledding. He is still complaining of his chest hurting even without exertion, so now I have an appointment with a cardiologist in February to have his heart checked!

I guess I am at my wits end to know where to begin. I need a good doctor who understands these issues, who knows about different tests to find out what is going on with my little guy, and who can help him get on the road to healing. Are any of you in CT? Can you recommend a doctor that you have worked with?

I am reluctant to give him anything else without the council of a doctor (non-conventional)who knows what they are doing, has experience and results with these symptoms. I know food can be the cure, but I feel there are other things at play here too.

Any advice is welcome. Thank you in advance!

January 18, 2011

Swollen lymph nodes from birth is not normal. Has he has some basic immunity labs done? IgG, IgE, IgM? Sounds like you need a good DAN! doc. Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ourlearningloungeSent: Tuesday, January 18, 2011 1:40 PMTo: mb12 valtrex Subject: New and overwhlmed.... I've been browsing the messages for the past few days and I am overwhelmed by all of the medical terms and names of mineral/vitamins etc. I feel like a real rookie, but I guess I have to start somewhere. This is our story.. I am a mother of 3 living in Northern CT. My eldest son is 14 and has had allergy issues all of his life, although I was not " clued in " until he was about 4. He was a happy baby and very independent, but he did not want to be hugged and temper tantrums were worse than the usual terrible twos! He did not talk until he was 3, read early, but is mildly dyslexic. We are starting to get a grip on his health issues and have eliminated most of the offending foods.It is really my youngest son who I am struggling with right now. He is 8 and was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the point that I had to put dead locks high up on the doors to stop him getting out of the house!). He walked at 9 months,ran the day after and has not stopped since! He has calmed down significantly, but still has attention/focus problems. He is seeing a vision therapist (2 years now, as he has tracking issues. He is starting to read and shows a slight interest in academics, but he is definitely behind in the " normal " learning curve. He has many reversals and his memory is extremely weak. He easily forgets academics, blends, math facts etc and he is slow to pick up new things.I have read " Breaking the Vicious Cycle " and a lot about the GAPS diet, but I have not taken the full plunge to eliminate so much more out of our diets. We see a Chinese healer once a month, he takes pro-biotics and fish oil, I have recently started him on Magnesium/Vit D.I am concerned about his overall health; he has a high metabolism and is thinner than his friends (doctors have not been concerned about this). I have little faith in conventional medicine, but I have given him courses of antibiotics over the years, as he's had extremely high fevers, to the point that he would be delirious. He had scarlet fever two years ago, with a fever of 104, his legs hurt and he couldn't walk; by the time we got to the ER he was so delirious he couldn't even recognize me as his Mom. I am wondering if he may still be harboring some residual infection. He has always had enlarged lymph nodes(from birth), nothing any doctor has ever been concerned about either. He also needs to get to the bathroom urgently when he needs to pee and was 7 before he was dry at night. I had him at the doctors last week, as he is now complaining of his chest hurting after playing basket ball and sledding. He is still complaining of his chest hurting even without exertion, so now I have an appointment with a cardiologist in February to have his heart checked!I guess I am at my wits end to know where to begin. I need a good doctor who understands these issues, who knows about different tests to find out what is going on with my little guy, and who can help him get on the road to healing. Are any of you in CT? Can you recommend a doctor that you have worked with? I am reluctant to give him anything else without the council of a doctor (non-conventional)who knows what they are doing, has experience and results with these symptoms. I know food can be the cure, but I feel there are other things at play here too.Any advice is welcome. Thank you in advance!

January 18, 2011

I felt like you when I found this list. It's about 11 months later and I feel like things make sense now, usually. ;-)It's a lot of reading and learning.I am not done with the book, but started Dr. Bock's Healing the Childhood Epidemics and it is really good. I really recommend it. It might be easier to make sense of what we are talking about if you get thru it. :-)

I really like this document http://www.icdrc.org/documents/Rossignol%20simplified%20biomed%20autism%20file%202009.pdf

It is helpful for first line interventions, and to refer back to.FWIW, your 8 yr old sounds like my 4 yr old, a bit. My son has febrile seizures at low temps. We believe due to viruses. Anyway, he has an abnormal EEG of course and a lot of auditory processing issues and ADHD. He is better on supplements and we are using a couple RX. We've spent the first year doing basic dietary changes, vitamins, minerals, aminos, some herbs, blood work (A LOT) and stool and urine tests. This all helped us get a good picture.

We use a DAN doctor. We've done a lot of things on hunches from reading the lists, still with the guidance of standard practice. You will get more comfortable giving vitamins as you become more familiar with them and dosages and what your child/ren can handle.

I really like this document as well: http://www.autism.com/pdf/providers/adams_biomed_summary.pdfand this one too:http://gfcf-diet.talkaboutcuringautism.org/autism_blueprint_pdfs/TACAJourneyBlueprints2010.pdf

Nothing against SCD, and in fact we were going to try it first before everything else! BUT we didn't and it would have been so stressful. We started with GFCF, moved onto Feingold and LOD next. Maybe we will do SCD someday but I am not a person who enjoys cooking so I do not want to venture there yet.

If you love spending time in the kitchen and preparing meals, SCD may be easier for you. If you don't enjoy the kitchen, I would try a different dietary intervention to begin with. For ADHD, Feingold is a great diet (Feingold.org) and you will see improvements rapidly.

I've been browsing the messages for the past few days and I am overwhelmed by all of the medical terms and names of mineral/vitamins etc. I feel like a real rookie, but I guess I have to start somewhere. This is our story..

I am a mother of 3 living in Northern CT. My eldest son is 14 and has had allergy issues all of his life, although I was not " clued in " until he was about 4. He was a happy baby and very independent, but he did not want to be hugged and temper tantrums were worse than the usual terrible twos! He did not talk until he was 3, read early, but is mildly dyslexic. We are starting to get a grip on his health issues and have eliminated most of the offending foods.

It is really my youngest son who I am struggling with right now. He is 8 and was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the point that I had to put dead locks high up on the doors to stop him getting out of the house!). He walked at 9 months,ran the day after and has not stopped since! He has calmed down significantly, but still has attention/focus problems. He is seeing a vision therapist (2 years now, as he has tracking issues. He is starting to read and shows a slight interest in academics, but he is definitely behind in the " normal " learning curve. He has many reversals and his memory is extremely weak. He easily forgets academics, blends, math facts etc and he is slow to pick up new things.

I have read " Breaking the Vicious Cycle " and a lot about the GAPS diet, but I have not taken the full plunge to eliminate so much more out of our diets. We see a Chinese healer once a month, he takes pro-biotics and fish oil, I have recently started him on Magnesium/Vit D.

I am concerned about his overall health; he has a high metabolism and is thinner than his friends (doctors have not been concerned about this). I have little faith in conventional medicine, but I have given him courses of antibiotics over the years, as he's had extremely high fevers, to the point that he would be delirious. He had scarlet fever two years ago, with a fever of 104, his legs hurt and he couldn't walk; by the time we got to the ER he was so delirious he couldn't even recognize me as his Mom. I am wondering if he may still be harboring some residual infection. He has always had enlarged lymph nodes(from birth), nothing any doctor has ever been concerned about either. He also needs to get to the bathroom urgently when he needs to pee and was 7 before he was dry at night. I had him at the doctors last week, as he is now complaining of his chest hurting after playing basket ball and sledding. He is still complaining of his chest hurting even without exertion, so now I have an appointment with a cardiologist in February to have his heart checked!

I guess I am at my wits end to know where to begin. I need a good doctor who understands these issues, who knows about different tests to find out what is going on with my little guy, and who can help him get on the road to healing. Are any of you in CT? Can you recommend a doctor that you have worked with?

I am reluctant to give him anything else without the council of a doctor (non-conventional)who knows what they are doing, has experience and results with these symptoms. I know food can be the cure, but I feel there are other things at play here too.

Any advice is welcome. Thank you in advance!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

January 18, 2011

, I hate to muddy the waters further but there are similarities in your 8 yr old and my son (whose now 17). My son has PANDAS and when he's in a flare (they usually last about 18 mos) he, like many, many other PANDAS kids, has issues with attention and focus, urinary frequency, leg pain, chest pain (specifically leg and chest) and a thin frame. Does your son have any ocd tendencies or does he require things to be a certain way lest a tantrum ensue? Does he have any separation anxiety issues? Has he been tested for strep or (and this is important) mycoplasma pneumoniae? I know you have a lot on your plate but if you are having labs drawn anytime soon, testing for strep and myco p would be worth doing as many kids respond to appropriate antibiotics for those infections. It'll start to come

together, you'll see. Best wishes to you.To: mb12 valtrex Sent: Tue, January 18, 2011 8:13:46 PMSubject: Re: New and overwhlmed....

I felt like you when I found this list. It's about 11 months later and I feel like things make sense now, usually. ;-)It's a lot of reading and learning.I am not done with the book, but started Dr. Bock's Healing the Childhood Epidemics and it is really good. I really recommend it. It might be easier to make sense of what we are talking about if you get thru it. :-)

I really like this document http://www.icdrc.org/documents/Rossignol%20simplified%20biomed%20autism%20file%202009.pdf

It is helpful for first line interventions, and to refer back to.FWIW, your 8 yr old sounds like my 4 yr old, a bit. My son has febrile seizures at low temps. We believe due to viruses. Anyway, he has an abnormal EEG of course and a lot of auditory processing issues and ADHD. He is better on supplements and we are using a couple RX. We've spent the first year doing basic dietary changes, vitamins, minerals, aminos, some herbs, blood work (A LOT) and stool and urine tests. This all helped us get a good picture.

We use a DAN doctor. We've done a lot of things on hunches from reading the lists, still with the guidance of standard practice. You will get more comfortable giving vitamins as you become more familiar with them and dosages and what your child/ren can handle.

I really like this document as well: http://www.autism.com/pdf/providers/adams_biomed_summary.pdfand this one too:http://gfcf-diet.talkaboutcuringautism.org/autism_blueprint_pdfs/TACAJourneyBlueprints2010.pdf

Nothing against SCD, and in fact we were going to try it first before everything else! BUT we didn't and it would have been so stressful. We started with GFCF, moved onto Feingold and LOD next. Maybe we will do SCD someday but I am not a person who enjoys cooking so I do not want to venture there yet.

If you love spending time in the kitchen and preparing meals, SCD may be easier for you. If you don't enjoy the kitchen, I would try a different dietary intervention to begin with. For ADHD, Feingold is a great diet (Feingold.org) and you will see improvements rapidly.

I've been browsing the messages for the past few days and I am overwhelmed by all of the medical terms and names of mineral/vitamins etc. I feel like a real rookie, but I guess I have to start somewhere. This is our story..

I am a mother of 3 living in Northern CT. My eldest son is 14 and has had allergy issues all of his life, although I was not "clued in" until he was about 4. He was a happy baby and very independent, but he did not want to be hugged and temper tantrums were worse than the usual terrible twos! He did not talk until he was 3, read early, but is mildly dyslexic. We are starting to get a grip on his health issues and have eliminated most of the offending foods.

It is really my youngest son who I am struggling with right now. He is 8 and was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the point that I had to put dead locks high up on the doors to stop him getting out of the house!). He walked at 9 months,ran the day after and has not stopped since! He has calmed down significantly, but still has attention/focus problems. He is seeing a vision therapist (2 years now, as he has tracking issues. He is starting to read and shows a slight interest in academics, but he is definitely behind in the "normal" learning curve. He has many reversals and his memory is extremely weak. He easily forgets academics, blends, math facts etc and he is slow to pick up new things.

I have read "Breaking the Vicious Cycle" and a lot about the GAPS diet, but I have not taken the full plunge to eliminate so much more out of our diets. We see a Chinese healer once a month, he takes pro-biotics and fish oil, I have recently started him on Magnesium/Vit D.

I am concerned about his overall health; he has a high metabolism and is thinner than his friends (doctors have not been concerned about this). I have little faith in conventional medicine, but I have given him courses of antibiotics over the years, as he's had extremely high fevers, to the point that he would be delirious. He had scarlet fever two years ago, with a fever of 104, his legs hurt and he couldn't walk; by the time we got to the ER he was so delirious he couldn't even recognize me as his Mom. I am wondering if he may still be harboring some residual infection. He has always had enlarged lymph nodes(from birth), nothing any doctor has ever been concerned about either. He also needs to get to the bathroom urgently when he needs to pee and was 7 before he was dry at night. I had him at the doctors last week, as he is now complaining of his chest hurting after playing basket ball and sledding. He is still complaining of his chest hurting even

without exertion, so now I have an appointment with a cardiologist in February to have his heart checked!

I guess I am at my wits end to know where to begin. I need a good doctor who understands these issues, who knows about different tests to find out what is going on with my little guy, and who can help him get on the road to healing. Are any of you in CT? Can you recommend a doctor that you have worked with?

I am reluctant to give him anything else without the council of a doctor (non-conventional)who knows what they are doing, has experience and results with these symptoms. I know food can be the cure, but I feel there are other things at play here too.

Any advice is welcome. Thank you in advance!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

January 18, 2011

Boy, I know where you are and it SUCKS! You feel helpless and when you visit

the doctor you wonder where the hell your co-pay went. Welcome to our little

(and growing) world!

It's terrifying and overwhelming to the point where you have no idea whether you

should cry or fall down into fetal position...Yep, been there..in fact, most of

us have...so you are in good company. In fact, excellent company.

I have an 'almost' recovered son. I say 'almost' because he is normal in almost

every way, except he needs his supplements and his diet. His last little bit of

'recovery' is in the form of speech therapy, because he 'jargons' some. I think

(thanks to a good friend on this forum) she has figured it out for me.

I had scarlet fever when I was 8, and I had mono when I was 16, both had high

fevers (106+) and I was delirious. Here's the good news, I am mostly normal (of

course, depending who you talk to), and have excelled in school and career. So,

get it out of your head, he's not going to have to live with you for the rest of

your life. LOL! I also had dyslexia, and rashes all over my body. It turned

around for me when my Mom put me on a meat and veg diet only, with liver

(calves) 2 times a week, plus chicken foot soup (that just seems gross)..I was

8, I didn't really get grossed out the way I would today, and I was a bed wetter

until I was 15 (okay that is finally off my chest and I no longer feel

embarrassed.) I have yet to calm down, but the addition of magnesium lately, has

been wonderful. I feel inner calm that I don't think I have ever felt. I'll be

40 in Sept. There is hope. There is always hope. And my Mom didn't have these

guys to lean on. You do.

For your eldest...consider going wheat free. (If you haven't already, you

didn't mention what foods..)

Here's an article you may find interesting (it's short, but very compelling)

http://www.timesonline.co.uk/tol/news/uk/article444290.ece

I have dead locks on the top of my doors too. I laughed when I read that. It

was after my neighbor brought my son back home while I was in the shower.

Yes, little escape artists they are!!

I don't know if you clued yourself into B12 yet, but it might just save your

children. You see, I have/had pernicious anemia, and I was given Ferrous

sulfate..and constipation! What you describe to me sounds like a B12

deficiency. Pale complexion, low tone, inability to focus, fogginess, head in

clouds, uninterested in learning, forgetful...You know, I am sure if you closed

your eyes, and thought about him, you might think " dementia " or " Alzheimer " for

children. As dementia is for old people (not anymore!)

If his heart is hurting, you could suggest an HCY or Homocycsteine test. It's

how B12 is recycled. There are 2 paths.

HCY - B12 - Methionine OR HCY - Betaine -Methionine

When a B12 deficiency is present --HCY will rise, and Methionine will decrease.

When Homocycsteine is too high, it wreaks havoc on the cardio system. -- B12

allows folate to turn HCY into a non-toxic amino acid Methionine.

So in addition to a blood serum test of B12, an HCY Test is necessary. -- It's

a good place to start with the good doctor.

If it's possible, a MMA (Urine) test can also rule out or confirm a B12

deficiency.

There is a great book: Could it be B12? The Epidemic of a misdiagnosis. By

Sally Pacholok and J. Stuart.

Honestly, from personal experience, and just reading the book, I can't think of

a better place to start. (you know, while you are trying to get your wits about

you!)

I was going to add - great job on the magnesium. It took me a while to get that

one! (thanks to the great people on this forum) I have done lots of diets...and

worked thru it all, and I have never felt alone and since joining this group -I

haven't felt scared. I know it's going to be okay. You're going to be okay.

10 deep breaths -- My Mom used to say that. 10 deep breaths.

laura

>

> I've been browsing the messages for the past few days and I am overwhelmed by

all of the medical terms and names of mineral/vitamins etc. I feel like a real

rookie, but I guess I have to start somewhere. This is our story..

>

> I am a mother of 3 living in Northern CT. My eldest son is 14 and has had

allergy issues all of his life, although I was not " clued in " until he was about

4. He was a happy baby and very independent, but he did not want to be hugged

and temper tantrums were worse than the usual terrible twos! He did not talk

until he was 3, read early, but is mildly dyslexic. We are starting to get a

grip on his health issues and have eliminated most of the offending foods.

>

> It is really my youngest son who I am struggling with right now. He is 8 and

was truly ADHD as a younger kid, (not diagnosed, but he was highly active to the

point that I had to put dead locks high up on the doors to stop him getting out

of the house!). He walked at 9 months,ran the day after and has not stopped

since! He has calmed down significantly, but still has attention/focus problems.

He is seeing a vision therapist (2 years now, as he has tracking issues. He is

starting to read and shows a slight interest in academics, but he is definitely

behind in the " normal " learning curve. He has many reversals and his memory is

extremely weak. He easily forgets academics, blends, math facts etc and he is

slow to pick up new things.

>

> I have read " Breaking the Vicious Cycle " and a lot about the GAPS diet, but I

have not taken the full plunge to eliminate so much more out of our diets. We

see a Chinese healer once a month, he takes pro-biotics and fish oil, I have

recently started him on Magnesium/Vit D.

>

> I am concerned about his overall health; he has a high metabolism and is

thinner than his friends (doctors have not been concerned about this). I have

little faith in conventional medicine, but I have given him courses of

antibiotics over the years, as he's had extremely high fevers, to the point that

he would be delirious. He had scarlet fever two years ago, with a fever of 104,

his legs hurt and he couldn't walk; by the time we got to the ER he was so

delirious he couldn't even recognize me as his Mom. I am wondering if he may

still be harboring some residual infection. He has always had enlarged lymph

nodes(from birth), nothing any doctor has ever been concerned about either. He

also needs to get to the bathroom urgently when he needs to pee and was 7 before

he was dry at night. I had him at the doctors last week, as he is now

complaining of his chest hurting after playing basket ball and sledding. He is

still complaining of his chest hurting even without exertion, so now I have an

appointment with a cardiologist in February to have his heart checked!

>

> I guess I am at my wits end to know where to begin. I need a good doctor who

understands these issues, who knows about different tests to find out what is

going on with my little guy, and who can help him get on the road to healing.

Are any of you in CT? Can you recommend a doctor that you have worked with?

>

> I am reluctant to give him anything else without the council of a doctor

(non-conventional)who knows what they are doing, has experience and results with

these symptoms. I know food can be the cure, but I feel there are other things

at play here too.

>

> Any advice is welcome. Thank you in advance!

>

January 18, 2011