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Dede

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Hi a ~

So glad you have a good team of doctors.

I would NOT see the PS that put them in for

removal of them, unless he agrees to do the

enbloc proceedure and use drain tubes. That

is so important because if you dont remove the

capsules, then you have toxic debris and your

body will think it still has implants in there, as

well as give it time to roam your body. The drain

tubes keep the swelling down, and help keep from

getting seromas and all.

I read that IBC does not respond to antibiotics, so

I feel comfortable with the fact that yours did.

I think keeping a close eye on them is a excellent

idea........ insurance.....

I wish you the best of luck with explant ! ! The sooner

you get them out and detox, the sooner you will start to feel better, and maybe get some of this stuff to reverse, and go away, ( joint pain and all )

Hugs N Prayers

Dede

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I would never recommend going back to the doc that put the implants

in. It's because they often don't take our complaints seriously and

almost seem offended that we want to ruin their work. They almost

never remove them right.

Seek a qualified explanting surgeon and don't settle for less than a

total capsulectomy with drains, or en bloc removal.

Patty

>

> Hi dede,

> thanks for the info. Believe me, when i woke with the rash i was

> online rigt away and saw the ibc and read everything i could find

on

> it.

> The doctor I saw was at the breast health center at california

> pacific medical center in san francisco. One of the best places to

> go for BC. I also was seen by one of the best breast cancer

surgeons

> in Sf who diagnosed me as looking fine and it was consistant with

an

> infection. She said she has seen these implants cause infections

> like that.

> She watched the MRI on dvd and said the radiologists report was

> certainly more excitting than the mri was. So she led me to believe

> its all cleared now and I told her I intended to have them removed.

> You know how doctors are tho--she wouldnt say anything else

negative

> about them. Just sort of silently agreed with me to have them

> removed.

> She recomennded i go back to my PS that put them in. He refered me

> to her when the trouble started. I think they are friends or at the

> least know each other. Sound like I really need another opinion?

The

> doctor in the hospital who sees cancer every day (well they both

do)

> didnt seem overly concerned. She said they appeared cystic (fluid

> filled). And wrote a couple notes for the mri tech which i was

> having done after that. I almost feel like Im wishing for cancer

now

> in the fact I cant accept im fine in her opinion. She wants me back

> in 3 months and she wants another mri done at that time too.

>

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  • 1 month later...

I know but my surgery was over friday about 4:30

Maybe that is why they do not know anything yet

because of the weekend and it's only Monday

Sandy~

Cultures usually only take 48 hours to grow, they must be doing a sensitivity test as well.....

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