Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 I guess im going to have to start fighting for him, the last time i talked to the dr' it was like pulling teeth to get the information if his spleen was enlarged or not, and the fact that he only has one kidney because of cancer, my thing is when my dads girlfriend asked about the red blood count being low, the dr just stated it may take months for that to go up, in my thinking and i could be wrong if the white count and blood platelets are down shouldn't the red count be going up, and if its not then shouldnt it be watched. I want to thank all of you for your information, what you are giving me is going to help me with my website for cancer From: hey00nanc <ncogan@...> Subject: Re: [ ] my dad Date: Wednesday, November 11, 2009, 6:51 PM Â > > i did get to go to one of his appt, the dr was a but abrupt but did finally answer my question, the last two times he went he did not see this dr but a standard md, so now im stuck waiting for 3 months, my concern is the fact that he will not be seen for 4 months and really he has only been on gleevec 400 for two weeks ____________ _________ ___ Hi , If you Dad has only been on Gleevec for 2 weeks....... YES, he should not be waiting 4 months to see the doctor again. He should have a simple CBC maybe every week or two until his blood counts have stabilized (to know that they are not dropping too low). Usually the blood test can just be done locally at a lab and the results faxed to the doctor....also the doctor should give you and your Dad permission to have a copy of the results each time the test is done (it is a quick test, or the results could be mailed to you). They also should do a blood chemistry to make sure the drug is not affecting his liver and causing the liver enzymes to go up. This should be about every 4-6 weeks in the early stages also. These are the standard blood tests that the CML specialists do and they monitor regularly in the beginning. I hope you will have good luck in talking to someone about getting more frequent blood tests. If your Dad has a local GP, that doctor can order these blood tests and then fax them to the oncologist at the VA. C. Quote Link to comment Share on other sites More sharing options...
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