Re: Need suggestion , Please help

[Guest guest]

thank you for early responses. I will consider your suggestions.

>

> Minus the hyperactivity and you have described my son (PDD-NOS)to a tee.  He

is

> 8 and has come a long way but I would not say he is 100% recovered.  Not

Yet. 

> My son's biggest struggle was language processing.  He simply did not

> understand.  I didn't realize this until he was nearly 5 years old and

started

> to show interest in speaking.  Your son will probably do very well with

intense

> speech therapy.  As much as you can get him with someone he feels comfortable

> with.  If you speak almost completely in your native tongue at home and he's

> going off to school where they are speaking another language, I imagine that's

> twice the battle for him and I would try to stick to one language at a time

for

> him for now.  As far as his lack of attention: picture yourself sitting in a

> room full of people speaking a language almost completely foreign to you 

(let's

> say Latin).  Maybe you can pick up words or phrases here and there, but for

the

> most part, you just don't get it.  Would you be able to focus and pay

> attention?  Or would your mind wander to something you did understand.  Take

> some time to try to figure out whether his lack of focus is physical or if

it's

> a result of him not being able to understand.  I know with my kiddo, if he's

> learning something new (say math for instance).  The more we are able to SHOW

> him using LESS words, the easier he picks up on it.  So I've learned:  Show

him.

> When he gets it down really well, I add in words so he can see what the words

> mean and how they work.  We have taken this year to literally break down the

> English language (our native tongue) word by word so he can understand.  If

> you're interested, I can mail you off-list with some of the things we've

> done...it would make this post twice as long as it already is.

>

> I would keep him as healthy as you can.  If this dan will not, find a dan who

> will pull labs for you.  They may not be 100%, but you might be able to get

a

> decent idea about what's going on with him physically. Through the years, my

son

> made nice, steady progress.  Last winter came and we were blind sided with

new

> behaviors and poor health. It was an extremely difficult time.  I felt so

> helpless.  But since then, I've learned alot and I'm better prepared to

handle

> it if it should ever happen again.  There are things you can do starting

right

> now today that will make it easier for his body to handle whatever's going on

> (and something definitely is no matter what your dan might say).  Be sure

your

> son is getting foods rich in nutrients (super hard with a picky eater, I know.

> There are ways and strategies and one of the most difficult issues to

tackle). 

> Find a good multivitamin. Be sure he gets water, excercise, sunshine, and lots

> and lots of love, hugs and kisses so he knows he's an amazing, wonderful

> person.  Epsom baths are relaxing and detoxing in nature.  Try to cut out

any

> uneccesary chemicals and fragrances in your house and bath and beauty

products. 

> Avoid non stick pans. Try to use stainless steel, or lead-free glass or stone

as

> much as possible.  All these things will ease his body's burden while you try

to

> figure out what's going on with him.

>

> Please keep in mind that a diagnosis is just a title.  Just words on a

page. 

> Don't let his doctor deny him treatment of symptoms because he feels he does

not

> fit the entire diagnosis.  Symptoms exist regardless.  If I were to have my

son

> re-evaluated right now, he would surely lose his " diagnosis " . 

>

> You will find people with recovered children.  And they can tell you what

they

> did.  What you will find is, in most cases, they have done the very same

thing

> as many many other people.  There is no " magic bullet " .  One little

supplement

> can make a world of difference in one kid and not make the slightest

difference

> in another.  You have to find what works best for your individual child.  It

> takes time, money(which few of us have) and an enormous amount of patience. 

> There are some great jump-offs out there to get you started.  TACA.com,

> generationresuecom, stopcallingitautism.com, danasview.net and Cheryl's

> blogspot.  These will lead you to enough information to make your head

spin. 

> And your head will spin.  But it will be well worth it and you will see there

is

> so much you can do to help your son.  Unfortunately there is no one-size-fits

> all magic formula.  Good luck!  You will see how much you can help him!

> -Tammy

>

>

>

> ________________________________

>

> To: mb12 valtrex

> Sent: Sun, January 16, 2011 11:02:09 PM

> Subject: Need suggestion , Please help

>

>  

> I need suggestion from all the moms who recovered their children. Please help

> me.

>

>

> This is regarding the treatment for my son. I first need to understand what

> exactly Autism/ Aspergers is.

>

> My son is five and half year old. He had speech delay, was not interacting

much,

> not very social when he was two years old. Since his speech was delayed we

made

> him attend speech therapy classes when he was in between two and half to three

> yrs old . His speech is better now and is now in Kindergarten and goes to the

> regular school . He interacts very well with his classmates, speaks full

> sentences. But still does not understand what people around him are conversing

> about. He has lack of understanding others emotions: does not understand

jokes,

> takes them in literal sense

> Does not understand others conversation, nor participates in any.

> Difficulty in understanding multiple instructions: either mis-understands or

> avoids understanding multiple instructions.

> Lack of creativity †" learning is built on repetitive memory: does not build

> sentences,

> rather repeats already heard sentences & contexts.

> Severe lack of focus & easily distracted: takes sometimes 10 times more time

to

> complete regular

> homework. This is not lack in skill (he demonstrates good capability, but does

> not finish his work on time).

> Severe multiple tantrums per day without any reason.

> Does not accept mistakes or wrongs, or losing: quite often leads to tantrums

> Affinity towards certain/stereotypical toys: e.g., cars, superheros

> Lack of interest in food, picky eater: avoids most foods except his most

wanted

> choice; does not like gel/fiber like food to touch or eat. Does not eat any

> fruits, except

> bananas on rare occasions.

> Hyperactive: most times in a day, and mostly when playing.

> Does not demonstrate enthusiasm to learn: does not ask why/what/who questions

> that his peers typically ask. Did not pickup mother tongue: Our native

language

> is spoken at home, but he did not pick-up speaking (unlike his peers).

>

> Last week we had an appointment with DAN doctor for the first time and after

we

> discussed everything with him, he felt that our kid was not autistic. he spoke

> with our son and told us that he had very good eye contact,was nicely

> interacting and answering the questions. He did not see 'autistic child' in

him.

> He told us that he could not rule out Aspergers at this time but definitely

saw

> 0% autism. The doctor did not prescribe any medicines but gave us a few tips

to

> deal with the child and told us that he would work with us for the next couple

> of months.

>

>

> Do I need to meet another DAN doctor for second opinion or should I wait and

> see? I want to start possible treatment for my son as soon as possible. What

is

> the next step I should take? Please advise, I am desperate

>

> Could you share your children behavior when they were 5 and half years old. I

> want to know whether your children had similar behavior when they were five

> years old and when you say recovery, what are the areas that still need to get

> improved? Does biomedical treatment necessary for my son? Need suggestions

from

> all the experienced moms whose kids are completely recovered.

>

>

> Thank you so much!

>

[Guest guest]

He sounds like an aspie to me! I would def get a second opinion. He sounds just

like my daughter, while my daughter isn't completely recovered I will give you a

few tips. Zinc helps w/ picky eaters tremendously. Start with 20 mg and work up

to his weight plus 20. Magnesium is great for so many things that is always one

of the first things I recommend along w/ good fats like cod liver oil. Also for

my daughter lithium (the mineral not the drug) helped my daughter greatly w/

transitions, one of our first wow moments. Always start the supplements one at a

time and start slowly and work up. I would also consider the gluten and casein

free diet (gf/cf). These are just beginner biomed options, what most of us start

with while you get your head wrapped around the concept. It's a tough road, I'm

sorry you will be joining us on this journey but you will meet some great people

and help your son tremendously. If it all seems like too much you could see a

homeopath, I hear homeopathic remedies work wonders as well but we dont have any

good docs here in Indiana so I have never tried that route. Good luck!

>

> I need suggestion from all the moms who recovered their children. Please help

me.

>

> This is regarding the treatment for my son. I first need to understand what

exactly Autism/ Aspergers is.

> My son is five and half year old. He had speech delay, was not interacting

much, not very social when he was two years old. Since his speech was delayed we

made him attend speech therapy classes when he was in between two and half to

three yrs old . His speech is better now and is now in Kindergarten and goes to

the regular school . He interacts very well with his classmates, speaks full

sentences. But still does not understand what people around him are conversing

about. He has lack of understanding others emotions: does not understand jokes,

takes them in literal sense

> Does not understand others conversation, nor participates in any.

> Difficulty in understanding multiple instructions: either mis-understands or

avoids understanding multiple instructions.

> Lack of creativity – learning is built on repetitive memory: does not build

sentences,

> rather repeats already heard sentences & contexts.

> Severe lack of focus & easily distracted: takes sometimes 10 times more time

to complete regular

> homework. This is not lack in skill (he demonstrates good capability, but does

not finish his work on time).

> Severe multiple tantrums per day without any reason.

> Does not accept mistakes or wrongs, or losing: quite often leads to tantrums

> Affinity towards certain/stereotypical toys: e.g., cars, superheros

> Lack of interest in food, picky eater: avoids most foods except his most

wanted

> choice; does not like gel/fiber like food to touch or eat. Does not eat any

fruits, except

> bananas on rare occasions.

> Hyperactive: most times in a day, and mostly when playing.

> Does not demonstrate enthusiasm to learn: does not ask why/what/who questions

that his peers typically ask. Did not pickup mother tongue: Our native language

is spoken at home, but he did not pick-up speaking (unlike his peers).

>

> Last week we had an appointment with DAN doctor for the first time and after

we discussed everything with him, he felt that our kid was not autistic. he

spoke with our son and told us that he had very good eye contact,was nicely

interacting and answering the questions. He did not see 'autistic child' in him.

He told us that he could not rule out Aspergers at this time but definitely saw

0% autism. The doctor did not prescribe any medicines but gave us a few tips to

deal with the child and told us that he would work with us for the next couple

of months.

>

> Do I need to meet another DAN doctor for second opinion or should I wait and

see? I want to start possible treatment for my son as soon as possible. What is

the next step I should take? Please advise, I am desperate

>

> Could you share your children behavior when they were 5 and half years old. I

want to know whether your children had similar behavior when they were five

years old and when you say recovery, what are the areas that still need to get

improved? Does biomedical treatment necessary for my son? Need suggestions from

all the experienced moms whose kids are completely recovered.

>

> Thank you so much!

>

[Guest guest]

He sounds like an aspie to me! I would def get a second opinion. He sounds just

like my daughter, while my daughter isn't completely recovered I will give you a

few tips. Zinc helps w/ picky eaters tremendously. Start with 20 mg and work up

to his weight plus 20. Magnesium is great for so many things that is always one

of the first things I recommend along w/ good fats like cod liver oil. Also for

my daughter lithium (the mineral not the drug) helped my daughter greatly w/

transitions, one of our first wow moments. Always start the supplements one at a

time and start slowly and work up. I would also consider the gluten and casein

free diet (gf/cf). These are just beginner biomed options, what most of us start

with while you get your head wrapped around the concept. It's a tough road, I'm

sorry you will be joining us on this journey but you will meet some great people

and help your son tremendously. If it all seems like too much you could see a

homeopath, I hear homeopathic remedies work wonders as well but we dont have any

good docs here in Indiana so I have never tried that route. Good luck!

>

> I need suggestion from all the moms who recovered their children. Please help

me.

>

> This is regarding the treatment for my son. I first need to understand what

exactly Autism/ Aspergers is.

> My son is five and half year old. He had speech delay, was not interacting

much, not very social when he was two years old. Since his speech was delayed we

made him attend speech therapy classes when he was in between two and half to

three yrs old . His speech is better now and is now in Kindergarten and goes to

the regular school . He interacts very well with his classmates, speaks full

sentences. But still does not understand what people around him are conversing

about. He has lack of understanding others emotions: does not understand jokes,

takes them in literal sense

> Does not understand others conversation, nor participates in any.

> Difficulty in understanding multiple instructions: either mis-understands or

avoids understanding multiple instructions.

> Lack of creativity – learning is built on repetitive memory: does not build

sentences,

> rather repeats already heard sentences & contexts.

> Severe lack of focus & easily distracted: takes sometimes 10 times more time

to complete regular

> homework. This is not lack in skill (he demonstrates good capability, but does

not finish his work on time).

> Severe multiple tantrums per day without any reason.

> Does not accept mistakes or wrongs, or losing: quite often leads to tantrums

> Affinity towards certain/stereotypical toys: e.g., cars, superheros

> Lack of interest in food, picky eater: avoids most foods except his most

wanted

> choice; does not like gel/fiber like food to touch or eat. Does not eat any

fruits, except

> bananas on rare occasions.

> Hyperactive: most times in a day, and mostly when playing.

> Does not demonstrate enthusiasm to learn: does not ask why/what/who questions

that his peers typically ask. Did not pickup mother tongue: Our native language

is spoken at home, but he did not pick-up speaking (unlike his peers).

>

> Last week we had an appointment with DAN doctor for the first time and after

we discussed everything with him, he felt that our kid was not autistic. he

spoke with our son and told us that he had very good eye contact,was nicely

interacting and answering the questions. He did not see 'autistic child' in him.

He told us that he could not rule out Aspergers at this time but definitely saw

0% autism. The doctor did not prescribe any medicines but gave us a few tips to

deal with the child and told us that he would work with us for the next couple

of months.

>

> Do I need to meet another DAN doctor for second opinion or should I wait and

see? I want to start possible treatment for my son as soon as possible. What is

the next step I should take? Please advise, I am desperate

>

> Could you share your children behavior when they were 5 and half years old. I

want to know whether your children had similar behavior when they were five

years old and when you say recovery, what are the areas that still need to get

improved? Does biomedical treatment necessary for my son? Need suggestions from

all the experienced moms whose kids are completely recovered.

>

> Thank you so much!

>