Guest guest Posted November 15, 2008 Report Share Posted November 15, 2008 Ladies, some of you need to try gluten free living and see if your digestive symptoms and other symptoms go away. You don't need to be tested, unless you want verifiable proof. If you just want to feel better, try eating gluten free for a few weeks and see if it helps! This site is awesome....tons of GREAT recipes for eating gluten free!www.glutenfreegirl.comIn the early spring of 2005, I was terribly ill. My body required 18 hours of sleep a day, my stomach ached all the time, and I could barely move without hurting. Doctors ordered one medical test after another, and none of them yielded answers. (The low point is when I endured a colonoscopy and endoscopy on the same day. Bleh.) All I could eat was soft bread, chicken noodle soup, and crackers. No one understood why I was so ill.It had been a hard few years. In the winter of 2001, I suffered pneumonia for the sixth time in my life. In the beginning of 2003, I required emergency abdominal surgery for a fibroid tumor that had grown to the size of a grapefruit. In the winter of 2003, I was t-boned by another car, in a terrible accident that changed my life. My body reminded me, every day, how lucky I was to be alive, with pain from the injuries that didn't go away. Just as I was starting to recover, I fell into that crisis of 2005.It started to feel like I would never be well.After all those tests, and no answers, I started to despair. A friend of mine who had been a nurse all her life confided in me later, "I thought you were terminal." So did I.Then, a friend of mine called me from Maine, to say she had just heard a story on celiac disease, the most under-diagnosed disease in the States. It sounded like me. I googled it, and found myself in the symptoms. Two years before, in an effort to find my energy, I had given up wheat for six weeks. I felt fantastic, but I slipped back into it. Remembering, my body jolted. What else could it be?And why had I never heard of this before?My gastroenterologist refused to test me for it, even though it only required a blood test before I could stop eating gluten. He refused. Actually, he had his nurse call me. "Celiac is really rare," she said on the message. "That's a long shot. We'll talk about it during your follow-up in two weeks."Heck with that. I knew my body, exhausted as it was. At this point, I was down to eating a jar of baby food a day. I wanted to start living again.I went to a naturopath, who did the blood test. I stopped eating gluten.I have never gone back since.At the end of the first day without gluten, I felt some energy. My stomach didn't hurt when I ate. On the second day, I didn't need a five-hour nap. On the third day, my brain fog cleared, as though my contacts had been cleaned for the first time.When I received the official diagnosis — you have celiac — I clapped my hands and said yes! The naturopath was a little surprised to see my celebration.The gastroenterologist was even more surprised, the next week, when I showed up for my follow-up appointment in great health, blood test results in hand. He confirmed it — I have celiac. And he left the room, embarrassed.I'm not the only one who had to fight her way through the medical system to receive the correct diagnosis and become healthy for the first time in my life. Americans have to wait an average of 11 years, and many doctors, before finally being diagnosed. It is estimated that 1 out of 100 Americans has celiac disease. Only 3% of us have been diagnosed.We have to change this.After I was diagnosed, I felt reborn. I became a self I had never been before.And I started writing about it. About amaranth and quinoa, ume plum vinegar, how to braise a lamb shank, and the life of food I began to live. I wrote to teach, to lead other people to the awakeness I was feeling. I love the fascination of the human body; I dissected cadavers in high school. (It was for an advanced biology class.) And yet, I had never heard of the condition that had been commanding me all my life.I did the only thing I knew how to do. I began to write.And thus, this website was born.Gluten-free woman just doesn't have the same ring.When I had been so sick, my friend Dorothy came over, many times, to bring me food and commiserate. When I just didn't improve — and grew worse and worse each week — she said, in exasperation one day: "We're just going to have to call you the sick girl."When I was finally diagnosed, and told Dorothy about it, she said, ironically, "Oh, we're going to have to call you the Gluten-Free Girl!"I never thought people would stop me at the farmers' market and exclaim, "Oh, you're the Gluten-Free Girl, aren't you?" I certainly never thought I would see that phrase on the cover of my first book.I just liked the alliteration.Focusing on the food.When I first started eating hot food again, I was moved to tears by the physical sensation of it sliding down my throat. It had been so long since I had been able to take pleasure in food.I have always loved food. Every story I share with my dear friend Sharon seems to involve food, of some kind (and falling down). Even though I ate a requisite number of processed foods when growing up (I was born in the late 60s remember, so I was raised on Wonder Bread), my mother was a good cook. She could bake like no one's business. And over the years, I started going to farmers' markets, cooking with good olive oil, and eating food from recipes that originated from outside the boundaries of the United States.But it wasn't until I was diagnosed with celiac that I truly started focusing on the food.Food is the path to healing in celiac. There is no pill we can take, no surgery we can endure, and in fact, no cure other than living on an entirely gluten-free diet. Some find that distressing. I find it a blessing.In order to be well, I have to eat well. I have to feed myself. I have to live in food.Yes.I started taking photographs of my foods as soon as I was diagnosed. Having been so weak and in pain, I had not been able to write. I needed that creative outlet. But more than that, being able to eat again — after at least six weeks of eating bananas and baby food — made me see. Food is so beautiful. The vivid oranges of baby carrots, the fuzzy hair on a soft peach, the little white rings on red quinoa in a skillet, the crumbling flakes of dark chocolate on a cutting board — everything attracted my eye.I began taking photographs of my meals. I haven't stopped since.From May 2005 to July of 2006, I took photographs with my little Nikon Coolpix.In July of 2006, I switched to a Fujifilm Finepix.And in the winter of 2007, I bought the body of a Nikon D-100, and a 2.8 35-70mm lens. It has a wonderful macro capability, which is why I bought it from a professional photographer in Seattle, who needed to move to a different system. That lens has been around the world, taking photographs of people living with AIDS in Kenya, and women singing in Morocco.This camera has good karma.And then there was the Chef. When I was diagnosed, I had a visceral understanding that I was now a self I had never been before. And I needed some time to myself. I decided to take a year off from dating at all.Four days to the year, I met the Chef.I knew, at once. This is the love of my life. But I held off for six weeks from writing about him on this site. I had to be sure. I knew that once I began writing about him here, everything would change.Oh boy has this site changed.From the first post I wrote about him (Meet the Chef), until the post about our honeymoon (la luna di miele), there has not been a single piece I have written here without his influence infused into the words. He lends tender-heartedness, a ribald sense of humor, real working-man's hands, slow-braised flavors, and a wonderful practicality to everything here.The name of this site is still Gluten-Free Girl, but this is our website now. Quote Link to comment Share on other sites More sharing options...
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