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Hi,!

I have taught Language Arts in an intermediate school (5th-6th) for the last 10 years. I have taught for 25 years total. This year I had the worst kids ever and the mystery illness to cope with. I have two full years until I can retire with full benefits. I need the insurance more than ever, but stress and infection are the two things that might make working impossible. I do have a wonderful husband and two great kids, but this whole thing has taken a huge toll on us all. I was extremely close to my parents who lived nearby. Dad died Jan.'07 and Mom has Alzheimer's and lives in a place fairly close. Husband is not real talky, and my kids are busy with their lives of work, school, and relationships. I need to get more involved in something actively to keep me in the best frame of mind possible. I am such a people person, so I may be looking for some volunteer work to keep me having too many pity parties.

What did you teach, ? I know you just retired. I hope that Don is having a good day, and you, too, for that matter!

(PF, Sjogren's,Raynaud's 4/08)

Subject: Re: To: Breathe-Support Date: Saturday, May 31, 2008, 2:27 PM

Wow what a nice family you have. That pie looked good enough to eat. What do you teach?

K

Illinois

K

Central Il

Hubby ipf- 2006

As for me and my house, we will serve the Lord

14

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, great info on these sites for your health:

http://invisiblegardener.com/ Registartion is free at this time for a limitted time, you have access to an expert, let him know dragonflymcs sent you, I am trying to work with him for the other community as well. !!! Blessings !!!

http://www.organicgardening.com/ Magazine, informational !

Safer Cleaning http://www.checnet.org/HealtheHouse/education/articles-detail.asp?Main_ID=564

God Bless !!

dragonflymcs

Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ IRD +14

< Click on me !!

Re: Newly Diagnosed

Brett,

Thank you so much for sharing. I would appreciate any input you have for me. Being of the same age and having young children to consider is a bit of a spin. Your daughter is a beauty and that picture is priceless. I will take everything I read with a grain of salt. That's why I feel this board is important. None of the information seems to explain what people go through the course of the disease.

I waited to respond to you because I did meet with the Pulmonologist yesterday. He does feel I am in the early stages based on the CT scan. I did ask him if he was certain of the diagnosis and he said 90%. Lung biopsy being 100%. Not anxious to do that at this time. The Prednisone and Azathioprine seems to have helped. While I still can't walk too far and stairs make me cringe, I can get around my house better. He offered the O2 for exertion, but I am waiting for my insurance. Yep, this whole thing caught me without any insurance and I will have to start over with another health provider next week.

I guess I am just wondering what lifestyle changes I need to make to not worsen my situation. Did you change your diet? Do you take any of the enzymes or supplements? Well intentding family members think they are going to make me their guinea pig. My husband is going to grow vegetables. Thanks for any input you may have. Enjoy your weekend.

Elissa

Age 41, PF 5/08

Hello Everyone!My name is Elissa (like no M). I have recenly been diagnosed with PF. I guess I am still in the shock and comprehend stage. I am 41 years old with a 9 year old son. I have been reading through the messages and gained strength from all of you. However, I must confess that I still am mourning the life I thought I would have and preparing for this new course. I guess that's the main reason I'm here. To find out what that course is going to be and how to prepare for it. Awhile after I found out I have this disease, a friend the same

age died unexpectedly. Today I went to her funeral and watched her nine year old play with mine. It put things in perspective a bit. I have to feel some appreciation that I get the time to prepare my family for the inevitable. On the other hand nobody knows how much time they have and there is no truer statement than to live everyday as if it's your last. The funny thing is, I finally realized that about 7 months ago and decided to change my life. After years of trying to get ahead and building 2 businesses with my husband, I decided it's time to enjoy my son

and family. Almost immediately I got sick and never recovered. I kept telling everyone, this is the year I get my life back. I hope this doesn't ring too much of negativity, but I just find it ironic. I do feel there will be many positive things to come from this situation. My family and friends have really shown their support and love. That is such an amazing feeling. But I must admit handling people has been a challenge for me. I am a realist and when people say, "Oh, you'll be fine." it is annoying to me. If anybody has any suggestions on how to convey the situation it would be helpful. Oh, and I don't have medical insurance. I've been paying cash to all these appointments, x-rays, tests and the CT scan. Honestly, I still paid less than many people pay in monthly insurance payments. My Doctor warned me that is about to change and am scrambling to obtain insurance. I've had Asthma since I was a child and numerous bouts with pneumonia and bronchitis. I always joked with everyone that my lungs would kill me. Well I hope my ramblings are not inappropriate and I do feel better to get it off my chest. I was recently asked if I was angry about the situation. Definately not. I believe the Lord has a plan for me and I am scrambling to figure it out. I just want to get through this with dignity and grace. Be a good example of a life well lived. I know many of you are just that and I look forward to getting to know you better. I have many questions, but another time. Thanks for the space.ElissaAge 41, PF 5/08

brett bowser

brettvectordist (DOT) com

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Guest guest

, I'm Z. and I also was a

teacher...College instructor with a MA in Reading.

I taught a total of 25 years...some in elementary school and the last

18years ( until 2005) in a community

college, teaching Study Skills and ESL. I also had to retire due to

this miserable disease.

There are several 's here. My husband is Mike. K's husband

is Don and he's the one with PF.

.. She comes here for information to help him.

There's a S. from TX too!

I hope I haven't confused you..Have a good week-end.

..

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna be

iron like a lion in Zion” Bob Marley

TX wrote:

Hi,!

I have taught Language Arts in an intermediate school

(5th-6th) for the last 10 years. I have taught for 25 years total. This

year I had the worst kids ever and the mystery illness to cope with. I

have two full years until I can retire with full benefits. I need the

insurance more than ever, but stress and infection are the two things

that might make working impossible. I do have a wonderful husband and

two great kids, but this whole thing has taken a huge toll on us all. I

was extremely close to my parents who lived nearby. Dad died Jan.'07

and Mom has Alzheimer's and lives in a place fairly close. Husband is

not real talky, and my kids are busy with their lives of work, school,

and relationships. I need to get more involved in something actively to

keep me in the best frame of mind possible. I am such a people person,

so I may be looking for some volunteer work to keep me having too many

pity parties.

What did you teach, ? I know you just retired. I hope

that Don is having a good day, and you, too, for that matter!

(PF,

Sjogren's,Raynaud's 4/08)

From:

Kennelly <l_kennelly>

Subject: Re:

To: Breathe-Support

Date: Saturday, May 31, 2008, 2:27 PM

Wow what a nice family you have.

That pie looked good enough to eat. What do you teach?

K

Illinois

K

Central Il

Hubby ipf- 2006

As for me and my house, we will

serve the Lord

14

No virus found in this incoming message.

Checked by AVG. Version: 8.0.100 / Virus Database: 269.24.4/1475 - Release Date: 5/30/2008 2:53 PM

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Guest guest

, I'm Z. and I also was a

teacher...College instructor with a MA in Reading.

I taught a total of 25 years...some in elementary school and the last

18years ( until 2005) in a community

college, teaching Study Skills and ESL. I also had to retire due to

this miserable disease.

There are several 's here. My husband is Mike. K's husband

is Don and he's the one with PF.

.. She comes here for information to help him.

There's a S. from TX too!

I hope I haven't confused you..Have a good week-end.

..

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna be

iron like a lion in Zion” Bob Marley

TX wrote:

Hi,!

I have taught Language Arts in an intermediate school

(5th-6th) for the last 10 years. I have taught for 25 years total. This

year I had the worst kids ever and the mystery illness to cope with. I

have two full years until I can retire with full benefits. I need the

insurance more than ever, but stress and infection are the two things

that might make working impossible. I do have a wonderful husband and

two great kids, but this whole thing has taken a huge toll on us all. I

was extremely close to my parents who lived nearby. Dad died Jan.'07

and Mom has Alzheimer's and lives in a place fairly close. Husband is

not real talky, and my kids are busy with their lives of work, school,

and relationships. I need to get more involved in something actively to

keep me in the best frame of mind possible. I am such a people person,

so I may be looking for some volunteer work to keep me having too many

pity parties.

What did you teach, ? I know you just retired. I hope

that Don is having a good day, and you, too, for that matter!

(PF,

Sjogren's,Raynaud's 4/08)

From:

Kennelly <l_kennelly>

Subject: Re:

To: Breathe-Support

Date: Saturday, May 31, 2008, 2:27 PM

Wow what a nice family you have.

That pie looked good enough to eat. What do you teach?

K

Illinois

K

Central Il

Hubby ipf- 2006

As for me and my house, we will

serve the Lord

14

No virus found in this incoming message.

Checked by AVG. Version: 8.0.100 / Virus Database: 269.24.4/1475 - Release Date: 5/30/2008 2:53 PM

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I, like Z, was a reading specialist. I taught all different grades, mainly where they needed me the most. While 1st grade and kindergarten are not my favorite age groups the last year I taught 1st and 2nd grades. I was on a family leave of absence since Feb. I absolutely loved my job. It was so much fun to dig around and figure out why the kids aren't reading. When I was in 5Th grade I taught study skills and expository reading. I believe that no one works harder than the elementary teacher, Jr. High and High School Language Arts teacher.. Not me by a long stretch. I could never do it. As you will be able to tell writing is not my best and favorite expertise. Today was a pretty good day for Don. He mowed in the late morning and then watched while I planted flowers, adding his farmer 2 cents

worth every now and then. It was good to have him out there. He doesn't talk too much any more. His coughing has returned with a vengence. Thanks for asking . You look so happy with your student. That is what I'm going to miss the most. The kids-----and the friends I left behind. K Illinois TX wrote: Hi,! I have taught Language Arts in an intermediate school (5th-6th) for the last 10 years. I have taught for 25 years total. This year I had the worst kids ever and the mystery illness to cope with. I have two full years until I can retire with full benefits. I need the insurance more than ever, but stress and infection are the two things that might make working impossible. I do have a wonderful husband and two great kids, but this whole thing has taken a huge toll on us all. I was extremely close to my parents who lived nearby. Dad died Jan.'07 and Mom has Alzheimer's and lives in a place fairly close. Husband is not real talky, and my kids are busy with their lives of work, school, and relationships. I need to get more involved in something actively to keep me in the best frame of mind possible. I am such a people person, so I may be looking for

some volunteer work to keep me having too many pity parties. What did you teach, ? I know you just retired. I hope that Don is having a good day, and you, too, for that matter! (PF, Sjogren's,Raynaud's 4/08) From: Kennelly <l_kennelly>Subject: Re: To: Breathe-Support Date: Saturday, May 31, 2008, 2:27 PM Wow what a nice

family you have. That pie looked good enough to eat. What do you teach? K Illinois K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14

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